Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974080
David James Dj Savarese
{"title":"Out to There.","authors":"David James Dj Savarese","doi":"10.1353/nib.2025.a974080","DOIUrl":"https://doi.org/10.1353/nib.2025.a974080","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"E8-E11"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a979954
Stephanie Schnizlein
{"title":"It's Not So Simple.","authors":"Stephanie Schnizlein","doi":"10.1353/nib.2025.a979954","DOIUrl":"https://doi.org/10.1353/nib.2025.a979954","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 3","pages":"E1-E2"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974063
Jared Howes
Drawing on the analogy of lenses, this commentary examines two themes in first-person narratives of neurodivergence. The first, situatedness, explores how contexts-such as geography, culture, policy, and built environments-shape the neurodivergent experience. The second, blind spots, reveals how unexamined assumptions and biases, like the 'mind-blindness' of assuming everyone shares a mainstream perspective, are sustained. Together, these themes underscore the need for a more reflexive and dialogue-driven bioethics, one attuned to the specific contexts of lived experiences.
{"title":"Reflexivity in Bioethics: Insights from Neurodivergent Narratives.","authors":"Jared Howes","doi":"10.1353/nib.2025.a974063","DOIUrl":"10.1353/nib.2025.a974063","url":null,"abstract":"<p><p>Drawing on the analogy of lenses, this commentary examines two themes in first-person narratives of neurodivergence. The first, situatedness, explores how contexts-such as geography, culture, policy, and built environments-shape the neurodivergent experience. The second, blind spots, reveals how unexamined assumptions and biases, like the 'mind-blindness' of assuming everyone shares a mainstream perspective, are sustained. Together, these themes underscore the need for a more reflexive and dialogue-driven bioethics, one attuned to the specific contexts of lived experiences.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"123-126"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974065
Holly K Tabor
The narratives in this issue powerfully illuminate the lived experiences of neurodiverse individuals, particularly the long-term effects of labels and mislabels. Authors describe being called "lazy," "robotic," or "broken," as well as misperceptions of being "gifted" or a "child prodigy." These mis-labels often deepened feelings of isolation and fueled masking, camouflaging, or cocooning to navigate daily life. Several contributors highlight the transformative role of social media, especially TikTok, in fostering recognition, diagnosis, and community, offering both relief and validation while also raising concerns about misinformation. A central theme is the liberating clarity of adult diagnosis, reframing identity with pride and self-acceptance: "autism is not a bad word: it is beautiful, joyous, intense, and empowering." Collectively, these stories underscore the power of narrative to challenge ableism, expose systemic failures, and affirm the motto "nothing about us without us," reminding readers of the need to listen, learn, and support authentic inclusion.
{"title":"Labels, Mis-labels, and Liberation: Narratives of Neurodiversity.","authors":"Holly K Tabor","doi":"10.1353/nib.2025.a974065","DOIUrl":"10.1353/nib.2025.a974065","url":null,"abstract":"<p><p>The narratives in this issue powerfully illuminate the lived experiences of neurodiverse individuals, particularly the long-term effects of labels and mislabels. Authors describe being called \"lazy,\" \"robotic,\" or \"broken,\" as well as misperceptions of being \"gifted\" or a \"child prodigy.\" These mis-labels often deepened feelings of isolation and fueled masking, camouflaging, or cocooning to navigate daily life. Several contributors highlight the transformative role of social media, especially TikTok, in fostering recognition, diagnosis, and community, offering both relief and validation while also raising concerns about misinformation. A central theme is the liberating clarity of adult diagnosis, reframing identity with pride and self-acceptance: \"autism is not a bad word: it is beautiful, joyous, intense, and empowering.\" Collectively, these stories underscore the power of narrative to challenge ableism, expose systemic failures, and affirm the motto \"nothing about us without us,\" reminding readers of the need to listen, learn, and support authentic inclusion.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"133-137"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a979956
Adelle Purdham
{"title":"Listening with the Ear of My Heart.","authors":"Adelle Purdham","doi":"10.1353/nib.2025.a979956","DOIUrl":"https://doi.org/10.1353/nib.2025.a979956","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 3","pages":"E4-E6"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100835","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a979939
Chris Bailey
{"title":"Don't Apologize, This Is Not a Tragedy.","authors":"Chris Bailey","doi":"10.1353/nib.2025.a979939","DOIUrl":"https://doi.org/10.1353/nib.2025.a979939","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 3","pages":"180-182"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974077
K R Halley
{"title":"Confessions of a Crayon-Eater.","authors":"K R Halley","doi":"10.1353/nib.2025.a974077","DOIUrl":"https://doi.org/10.1353/nib.2025.a974077","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"85-88"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}