Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974063
Jared Howes
Drawing on the analogy of lenses, this commentary examines two themes in first-person narratives of neurodivergence. The first, situatedness, explores how contexts-such as geography, culture, policy, and built environments-shape the neurodivergent experience. The second, blind spots, reveals how unexamined assumptions and biases, like the 'mind-blindness' of assuming everyone shares a mainstream perspective, are sustained. Together, these themes underscore the need for a more reflexive and dialogue-driven bioethics, one attuned to the specific contexts of lived experiences.
{"title":"Reflexivity in Bioethics: Insights from Neurodivergent Narratives.","authors":"Jared Howes","doi":"10.1353/nib.2025.a974063","DOIUrl":"10.1353/nib.2025.a974063","url":null,"abstract":"<p><p>Drawing on the analogy of lenses, this commentary examines two themes in first-person narratives of neurodivergence. The first, situatedness, explores how contexts-such as geography, culture, policy, and built environments-shape the neurodivergent experience. The second, blind spots, reveals how unexamined assumptions and biases, like the 'mind-blindness' of assuming everyone shares a mainstream perspective, are sustained. Together, these themes underscore the need for a more reflexive and dialogue-driven bioethics, one attuned to the specific contexts of lived experiences.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"123-126"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974065
Holly K Tabor
The narratives in this issue powerfully illuminate the lived experiences of neurodiverse individuals, particularly the long-term effects of labels and mislabels. Authors describe being called "lazy," "robotic," or "broken," as well as misperceptions of being "gifted" or a "child prodigy." These mis-labels often deepened feelings of isolation and fueled masking, camouflaging, or cocooning to navigate daily life. Several contributors highlight the transformative role of social media, especially TikTok, in fostering recognition, diagnosis, and community, offering both relief and validation while also raising concerns about misinformation. A central theme is the liberating clarity of adult diagnosis, reframing identity with pride and self-acceptance: "autism is not a bad word: it is beautiful, joyous, intense, and empowering." Collectively, these stories underscore the power of narrative to challenge ableism, expose systemic failures, and affirm the motto "nothing about us without us," reminding readers of the need to listen, learn, and support authentic inclusion.
{"title":"Labels, Mis-labels, and Liberation: Narratives of Neurodiversity.","authors":"Holly K Tabor","doi":"10.1353/nib.2025.a974065","DOIUrl":"10.1353/nib.2025.a974065","url":null,"abstract":"<p><p>The narratives in this issue powerfully illuminate the lived experiences of neurodiverse individuals, particularly the long-term effects of labels and mislabels. Authors describe being called \"lazy,\" \"robotic,\" or \"broken,\" as well as misperceptions of being \"gifted\" or a \"child prodigy.\" These mis-labels often deepened feelings of isolation and fueled masking, camouflaging, or cocooning to navigate daily life. Several contributors highlight the transformative role of social media, especially TikTok, in fostering recognition, diagnosis, and community, offering both relief and validation while also raising concerns about misinformation. A central theme is the liberating clarity of adult diagnosis, reframing identity with pride and self-acceptance: \"autism is not a bad word: it is beautiful, joyous, intense, and empowering.\" Collectively, these stories underscore the power of narrative to challenge ableism, expose systemic failures, and affirm the motto \"nothing about us without us,\" reminding readers of the need to listen, learn, and support authentic inclusion.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"133-137"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974077
K R Halley
{"title":"Confessions of a Crayon-Eater.","authors":"K R Halley","doi":"10.1353/nib.2025.a974077","DOIUrl":"https://doi.org/10.1353/nib.2025.a974077","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"85-88"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974082
Sarah Laca
{"title":"The Love Spectrum Disorder.","authors":"Sarah Laca","doi":"10.1353/nib.2025.a974082","DOIUrl":"https://doi.org/10.1353/nib.2025.a974082","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"E6-E8"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974060
James M DuBois, Ana S Iltis, Heidi A Walsh
{"title":"Editors' Note.","authors":"James M DuBois, Ana S Iltis, Heidi A Walsh","doi":"10.1353/nib.2025.a974060","DOIUrl":"https://doi.org/10.1353/nib.2025.a974060","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"vii-viii"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974069
Anya Ovcharenko
{"title":"Multiple Selves. The Story.","authors":"Anya Ovcharenko","doi":"10.1353/nib.2025.a974069","DOIUrl":"https://doi.org/10.1353/nib.2025.a974069","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"100-103"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974068
{"title":"When Autism and Psychosis Intersect with Domestic Violence and Therapy Harm.","authors":"","doi":"10.1353/nib.2025.a974068","DOIUrl":"https://doi.org/10.1353/nib.2025.a974068","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"103-105"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1353/nib.2025.a974067
Regina M Cooper
Baby J is a 10-month-old infant who presented at birth with bilateral opacification of the cornea and elevated eye pressure. She was diagnosed with a severe form of glaucoma due to a genetic mutation. Her condition can be managed with surgery and daily medications. However, studies on her specific condition report poor outcomes and frequent post-operative complications. Despite receiving the first-line surgeries, Baby J's pressure remained difficult to control, and her visual prognosis remained uncertain. The parents, who are both blind due to genetic causes, no longer wished to pursue surgical treatment due to their own adverse experiences, and the potential harm of pursuing surgery. Without further intervention, the visual pathways will fail to develop, and Baby J will become blind permanently. The physician, on the other hand, felt pursuing further surgery was a risk worth taking for the chance at achieving a better future for Baby J. This paper discusses Baby J's case and argues for the safeguarding of parental autonomy following a comprehensive analysis of the case details through the lens of prominent ethical frameworks including the Harm Principle, the Best Interest Standard, and Constrained Parental Autonomy.
{"title":"Navigating Ethical Crossroads in Pediatric Ophthalmology.","authors":"Regina M Cooper","doi":"10.1353/nib.2025.a974067","DOIUrl":"10.1353/nib.2025.a974067","url":null,"abstract":"<p><p>Baby J is a 10-month-old infant who presented at birth with bilateral opacification of the cornea and elevated eye pressure. She was diagnosed with a severe form of glaucoma due to a genetic mutation. Her condition can be managed with surgery and daily medications. However, studies on her specific condition report poor outcomes and frequent post-operative complications. Despite receiving the first-line surgeries, Baby J's pressure remained difficult to control, and her visual prognosis remained uncertain. The parents, who are both blind due to genetic causes, no longer wished to pursue surgical treatment due to their own adverse experiences, and the potential harm of pursuing surgery. Without further intervention, the visual pathways will fail to develop, and Baby J will become blind permanently. The physician, on the other hand, felt pursuing further surgery was a risk worth taking for the chance at achieving a better future for Baby J. This paper discusses Baby J's case and argues for the safeguarding of parental autonomy following a comprehensive analysis of the case details through the lens of prominent ethical frameworks including the Harm Principle, the Best Interest Standard, and Constrained Parental Autonomy.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"15 2","pages":"159-167"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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