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A Holy Mess of a Story: Maternal Reflections on Caregiving, Chaos, and Intellectual Disability 一个神圣的混乱的故事:母亲对照顾、混乱和智力残疾的反思
Q2 Arts and Humanities Pub Date : 2021-06-01 DOI: 10.1080/23312521.2021.1932688
L. Macgregor
Abstract Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experiences of mothers caring for children with intellectual disabilities, particularly among faith communities. Rather than a journey of spiritual growth, research indicates that the lives of mothers often resemble a chaos narrative of spiritual confusion, paradoxically fused with joy. Providing effective spiritual care requires that faith communities honor anti-narratives of caregiving chaos.
借鉴弗兰克的疾病叙述,这位有严重残疾儿子的母亲认为,Vanier和Nouwen对照顾的描述符合社会强制的追求叙事,需要胜利的故事。他们的精神成长故事已经成为了母亲照顾智障儿童的经验的主要文本,特别是在宗教团体中。研究表明,母亲的生活与其说是精神成长的旅程,不如说是一种精神困惑的混乱叙事,矛盾地融合了喜悦。提供有效的精神护理需要信仰团体尊重对护理混乱的反叙述。
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引用次数: 0
The Minority Body: A Theory of Disability. Elizabeth Barnes (Oxford: Oxford University Press, 2016) xii + 200pp. Hardback, £25 ISBN, 978-0-1987-3258-7 少数群体:残疾理论。伊丽莎白·巴恩斯(牛津:牛津大学出版社,2016)12 + 200页。精装本,25英镑ISBN, 978-0-1987-3258-7
Q2 Arts and Humanities Pub Date : 2021-05-27 DOI: 10.1080/23312521.2021.1930625
B. Brock
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引用次数: 0
Persistent Pain and Promised Perfection:The Significance of an Embodied Eschatologyof Disability 持续的痛苦和承诺的完美:残疾具体化末世论的意义
Q2 Arts and Humanities Pub Date : 2021-05-12 DOI: 10.1080/23312521.2021.1925199
M. A. Walker
Abstract People with disabilities experience different kinds of pain. That said, they are told in the Jewish and Christian scriptures that, in Heaven, their experiences of suffering will be relieved, and their disabilities normalized. Is that true, or will suffering (as distinct from pain) be allowed to persist in the afterlife? In order to explore this question, this paper will perform three tasks using biblical reflection, scholarly discourse, and autoethnographic narrative. First, it will define disability both as a physiological phenomenon and as a social construct, and similarly identify ableism, pain, and perfection; its definitions of pain will depend on Sarah Coakley’s polyvalent 2007 description. Second, having affirmed Jesus’ definition of perfection from Matthew 5:43–48, the essay will use scholarly reflections on pain and disability, Kathy Black’s explorations of a Gospel healing-narrative, and some of the author’s life-experiences, to demonstrate that kind of perfection. Third and finally, it will expand on that definition of perfection by drawing on both Amos Yong’s Christian meditations on resurrection, and Sharon Betcher’s postcolonial paradigm of illness as a creative matrix that promotes wholeness.
残疾人经历着不同种类的痛苦。也就是说,犹太教和基督教的经文告诉他们,在天堂,他们的痛苦经历将得到缓解,他们的残疾将得到正常化。这是真的吗?或者痛苦(不同于疼痛)会被允许在死后继续存在吗?为了探讨这个问题,本文将使用圣经反思、学术话语和自我民族志叙事来完成三个任务。首先,它将残疾定义为一种生理现象和一种社会结构,并同样识别残疾歧视、痛苦和完美;它对疼痛的定义将取决于Sarah Coakley 2007年的多价描述。其次,在肯定了马太福音5:43-48中耶稣对完美的定义之后,这篇文章将使用对痛苦和残疾的学术反思,凯西·布莱克对福音治愈叙事的探索,以及作者的一些生活经历,来展示那种完美。第三,也是最后一点,它将通过借鉴阿莫斯·杨(Amos Yong)关于复活的基督教思考,以及莎伦·贝彻(Sharon Betcher)的后殖民疾病范式来扩展完美的定义,将其作为促进整体性的创造性矩阵。
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引用次数: 0
Anne Katherine Shurley, Pastoral Care and Intellectual Disability: A Person-Centred Approach 《教牧关怀与智障:以人为本的方法》
Q2 Arts and Humanities Pub Date : 2021-05-11 DOI: 10.1080/23312521.2021.1925201
Wen-Pin Leow
This book is written to address the issue of how pastoral care can be undertaken for and together with people with intellectual disabilities. Shurley’s approach to pastoral care is grounded in Bart...
这本书是为了解决如何为智障人士提供教牧关怀的问题而写的。Shurley的教牧关怀方法是基于Bart…
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引用次数: 0
Christian Laes, Disabilities and the Disabled in the Roman World 罗马世界的基督教法律、残疾和残疾人
Q2 Arts and Humanities Pub Date : 2021-05-11 DOI: 10.1080/23312521.2021.1925202
Wen-Pin Leow
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引用次数: 0
Disability in the Hebrew Bible: A Literature Review 希伯来圣经中的残疾:文献回顾
Q2 Arts and Humanities Pub Date : 2021-04-28 DOI: 10.1080/23312521.2021.1911739
K. Jones
Abstract This article charts the emergent engagement of scholars with disability in the Hebrew Bible, highlighting key aspects of the major edited works and monographs in the field. The HB contains numerous texts which focus on disability, sometimes in reference to particular characters, but also in wider tropes without being located in an individual’s body. Scholarship in disability in the HB is a complex and dynamic endeavor, but has value within critical studies of the HB. To close, I offer some suggestions on further growth areas in the discipline.
本文描绘了残疾学者在希伯来圣经中的新兴参与,突出了该领域主要编辑作品和专著的关键方面。HB包含大量关注残疾的文本,有时涉及特定角色,但也有更广泛的比喻,而不是定位于个人的身体。在HB残疾的奖学金是一个复杂的和动态的努力,但在HB的批判性研究有价值。最后,我对该学科进一步发展的领域提出了一些建议。
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引用次数: 0
Disability and New Testament Studies: Reflections, Trajectories, and Possibilities 残疾和新约研究:反思、轨迹和可能性
Q2 Arts and Humanities Pub Date : 2021-04-28 DOI: 10.1080/23312521.2021.1911737
Isaac T. Soon
Abstract This article offers a survey and assessment of the state of New Testament scholarship and disability studies. It provides some critical reflections on the current trends and trajectories of the field and potential futures for it to progress further. While some work has been done on the Catholic Epistles, Revelation, and Paul, the majority of focus has been on the canonical Gospels. Studies often encompass meta-critical, historical, literary, or theological focuses. A number of problems have been raised, such as the question of lived disabled experience in antiquity, anachronism, and ableism within the field itself. Still, there are a number of potential futures for the field, especially in dialogue with adjacent fields to biblical studies like second temple Jewish studies and classics.
摘要本文对新约学术和残疾研究的现状进行了综述和评价。它提供了对该领域当前趋势和轨迹的一些批判性思考,以及该领域进一步发展的潜在未来。虽然有一些关于天主教书信、启示录和保罗的工作,但主要的重点是关于正典福音书。研究通常包括元批判、历史、文学或神学的焦点。提出了许多问题,例如古代生活残疾经验的问题,时代错误,以及该领域本身的残疾歧视。尽管如此,这个领域仍有许多潜在的未来,特别是在与圣经研究的邻近领域,如第二圣殿犹太研究和经典研究的对话中。
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引用次数: 2
Faith and Disability: Engaging Theologically 信仰与残疾:神学参与
Q2 Arts and Humanities Pub Date : 2021-04-20 DOI: 10.1080/23312521.2021.1901638
Thomas L. Boehm
One feature that often marks conversations about faith and disability is the wide variety of stakeholders involved. It is not uncommon for theologians and academics, pastors and clergy, special educators and researchers, medical professionals and social service providers, families and individuals with disabilities to interact and converse about disability and specifically how disability relates to flourishing. Each of the various stakeholders, especially the individual with disability, brings something unique and important to the conversation. While this diversity and variety of perspectives can enrich the conversation, it can also complexify it. As conversations at the intersection of faith and disability have increased, so have the variety of faith perspectives brought to bear on thinking critically about disability. Different religions have their own sacred texts and traditions that offer different ideas about the origin and meaning of disability that can uniquely shape and suggest different responses to people with disability and their role in society. I have devoted my professional life to challenging what I call the “disability as tragedy narrative.” This narrative assumes that the experience of having a disability is best described in terms of a tragedy. Thus, when a child is born with a congenital disability, like Down syndrome or cerebral palsy, the assumption that a tragedy has occurred typically overshadows the inclination to rejoice at the miracle of a new life. Similarly, viewing an acquired disability through the lens of tragedy, such as an amputated limb or brain injury, can narrowly frame that experience in ways that can interfere with adaptive coping and healing. On all these fronts, it is clear that faith reshapes how one understands and responds to disability in important ways. This special issue explores disability through a lens of faith, and specifically, faith in the God of the bible. The articles in this issue, therefore, address disability through a biblical lens by engaging this topic theologically. A companion special issue will extend these scripturally oriented reflections by engaging faith and disability empirically and practically. While different faiths may look at disability differently depending on their sacred texts and traditions, the articles in this issue explore the following four core questions with an eye toward biblical and theological reflection about disability from a broad Christian perspective.
关于信仰和残疾的对话经常有一个特点,那就是涉及的利益相关者种类繁多。神学家和学者、牧师和神职人员、特殊教育工作者和研究人员、医疗专业人员和社会服务提供者、残疾人家庭和个人就残疾,特别是残疾与繁荣之间的关系进行互动和交谈,这并不罕见。每一个不同的利益相关者,尤其是残疾人,都会为对话带来一些独特而重要的东西。虽然这种多样性和观点的多样性可以丰富对话,但也会使对话变得复杂。随着信仰和残疾之间的对话越来越多,各种各样的信仰视角也被引入到对残疾的批判性思考中。不同的宗教有自己的神圣文本和传统,对残疾的起源和意义提出了不同的看法,可以独特地塑造和建议对残疾人及其在社会中的作用作出不同的反应。我的整个职业生涯都在挑战我所谓的“残疾是悲剧”的说法。这种叙述假设残疾的经历最好用悲剧来描述。因此,当一个孩子出生时患有先天性残疾,如唐氏综合症或脑瘫,悲剧发生的假设通常掩盖了对新生命奇迹的喜悦。同样,通过悲剧的视角来看待后天的残疾,比如截肢或脑损伤,会以一种干扰适应性应对和康复的方式狭隘地定义这种经历。在所有这些方面,很明显,信仰在重要方面重塑了一个人对残疾的理解和反应。本期特刊从信仰的角度探讨残疾,特别是对圣经中上帝的信仰。因此,本期的文章从神学的角度切入,从圣经的角度来探讨残疾问题。一个配套的特刊将扩展这些以圣经为导向的反思,通过经验和实践参与信仰和残疾。虽然不同的信仰可能因其神圣的文本和传统而对残疾有不同的看法,但本期的文章从基督教的广泛视角出发,以圣经和神学对残疾的反思为视角,探讨了以下四个核心问题。
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引用次数: 0
Cognitive Disability and the Hebrew Bible 认知障碍和希伯来圣经
Q2 Arts and Humanities Pub Date : 2021-04-19 DOI: 10.1080/23312521.2021.1911736
A. Sloane
Abstract Knowledge is a major theme in the Hebrew Bible, and raises both challenges and possibilities for theology and cognitive disability. This paper will focus on these issues with particular reference to disability theology, and the Psalter. Pervasive negative portrayals of ignorance and folly, of dullness of mind or heart, become problematic in light of cognitive disability. I will suggest that these negative construals pertain to willed ignorance, rather than those who live with cognitive disabilities. On the other hand, cognitive disability encourages broader reflections on YHWH’s care for those who are vulnerable and marginalized, whatever form that might take. In social conditions such as ours, where cognitive agency is so prized, those with cognitive disabilities are weak and vulnerable—orphaned, so to speak, by our institutions and practices. The Psalms, in particular, remind us that God cares for them—and so should we. Cognitive disability may also help us rethink our assumptions, and so gain fresh insight from biblical texts in relation to identity, vulnerability and agency (and its absence), and the need to name human brokenness and avail ourselves of the resources Scripture gives us to address it. Finally, dealing with people with cognitive disabilities requires that we reconsider our epistemology and the values inherent in it. If the knowledge of God is (fundamentally) relationship with God and not mere cognition, then we must consider both how people with cognitive disabilities might exemplify that knowledge, and how their patterns of knowing might contribute to the fullness of human knowing.
知识是希伯来圣经的一个重要主题,它对神学和认知障碍提出了挑战和可能性。本文将重点讨论这些问题,特别涉及残疾神学和诗篇。普遍存在的对无知和愚蠢、头脑或心灵迟钝的负面描述,在认知障碍的情况下变得有问题。我想说的是,这些消极的识解与有意的无知有关,而不是那些患有认知障碍的人。另一方面,认知障碍鼓励更广泛地思考耶和华对那些脆弱和边缘化的人的照顾,无论采取何种形式。在像我们这样的社会条件下,认知能力是如此珍贵,那些有认知障碍的人是脆弱的,易受伤害的——可以说,被我们的制度和实践遗弃了。尤其是《诗篇》提醒我们,上帝关心他们——我们也应该如此。认知障碍也可以帮助我们重新思考我们的假设,从而从圣经文本中获得关于身份、脆弱性和能动性(及其缺失)的新见解,以及命名人类破碎的必要性,并利用圣经给我们的资源来解决它。最后,处理有认知障碍的人需要我们重新考虑我们的认识论及其固有的价值观。如果对上帝的认识(从根本上)是与上帝的关系,而不仅仅是认知,那么我们必须考虑认知障碍的人如何作为这种认识的例证,以及他们的认识模式如何有助于人类认识的全面。
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引用次数: 2
Communication, Agency, and the Relational Self in ASD and the Letters of Paul 泛自闭症障碍与保罗书信中的沟通、代理和关系自我
Q2 Arts and Humanities Pub Date : 2021-04-19 DOI: 10.1080/23312521.2021.1911743
Susan Eastman
Abstract The experience and reflections of people on the autism spectrum act as a “context of discovery” about human communication and agency, in conversation with a robust theological account drawn from Paul’s depiction of personhood in relationship to sin and salvation. I claim that autism is not an exception to understanding the self as a self-in-relation; it is a unique and therefore illuminating instantiation of self-in-relation. The testimonies of autistic people render visible two key aspects of human personhood that are shared by both so-called “neurotypical” and “non-neurotypical” people: the priority of embodied interpersonal connection for the development of human communication and agency, and the risk and vulnerability of such connection.
自闭症患者的经历和反思作为人类交流和代理的“发现背景”,与保罗对人格与罪和救赎关系的描述进行了强有力的神学描述。我认为自闭症并不是将自我理解为自我关系的例外;这是一个独特的,因此启发性的实例的自我关系。自闭症患者的证词显示了所谓的“神经典型”和“非神经典型”人所共有的人类人格的两个关键方面:体现人际关系对人类交流和能动性发展的优先性,以及这种关系的风险和脆弱性。
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引用次数: 0
期刊
Journal of Disability and Religion
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