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Language brokering between deaf signing parents and healthcare professionals 聋人手语父母与医护人员之间的语言中介
Q4 Medicine Pub Date : 2022-12-19 DOI: 10.1558/cam.20385
Abigail Gee, B. Wright, Jemina Napier, Victoria Ackroyd, Helen Phillips, R. Hayes
Language brokering refers to the informal interpreting performed by children and young people, typically in migrant families. Hearing heritage signers are typically individuals who grow up using a sign language at home with deaf parents. As most of them are hearing, they often broker between their signing deaf parent(s) and hearing non-signers. Brokering has been found to occur in varied contexts, including healthcare settings. Using semi-structured interviews, this study aimed specifically to explore the experiences of hearing heritage signers brokering between their parents and healthcare professionals using British Sign Language. Hearing heritage signers’ experiences of brokering in healthcare settings were found to be varied, as were their attitudes, feelings and views towards brokering. Key themes were identified: pride and pressure; insider and outsider status; conflicting roles; autonomy, dependence and independence; choice and expectation; and perceptions of high- or low-stakes brokering. Based on these findings, recommendations for healthcare providers include increasing awareness of deaf people’s rights and access, recognition of children’s developmental needs in these contexts and the ability to signpost hearing heritage signers to appropriate support networks.
语言中介是指由儿童和年轻人进行的非正式口译,特别是在移民家庭中。听力遗产手语者通常是在父母耳聋的家庭中使用手语长大的人。由于他们中的大多数人都是听力正常的,他们经常在他们的手语聋人父母和听力正常的非手语人之间进行斡旋。人们发现,中介行为出现在各种环境中,包括医疗保健环境。采用半结构化访谈,本研究旨在探讨听力遗产手语者使用英国手语在其父母和医疗保健专业人员之间进行中介的经验。发现听力遗产签名者在医疗保健机构的中介经历各不相同,他们对中介的态度、感受和观点也各不相同。会议确定了关键主题:骄傲和压力;局内人与局外人的身份;角色冲突;自主、依赖、独立;选择与期望;以及对高风险或低风险经纪的看法。基于这些发现,对医疗保健提供者的建议包括提高对聋人权利和获取途径的认识,认识到在这些情况下儿童的发展需求,以及向听力遗产手语者提供适当支持网络的能力。
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引用次数: 0
Individuals recording clinical encounters 记录临床接触的个人
Q4 Medicine Pub Date : 2022-08-10 DOI: 10.1558/cam.20257
G. Elwyn, Jaclyn Engel, P. Scalia, C. Shachar
Background: Clinicians and their employers, concerned with privacy and liability, are often hesitant to support the recording of clinical encounters. However, many people wish to record encounters with healthcare professionals. It is therefore important to understand how existing law applies to situations where an individual requests to record a clinical encounter.Methods: We searched for and reviewed relevant legal documents that could apply to recording clinical encounters. We limited the scope by purposefully examining relevant law in nine countries: Australia, Brazil, Canada, France, Germany, India, Mexico, the United Kingdom and the United States. We analyzed legal texts for consents needed to record a conversation, whether laws applied to remote or face-to-face conversations and penalties for violations.Findings: Most jurisdictions have case law or statutes, derived from a constitutional right to privacy, or a wiretapping or eavesdropping statute, governing the recording of private conversations. However, little to no guidance exists on how to translate constitutional principles and case law into advice for people seeking to record their medical encounters.Interpretation: The law has not kept pace with people’s wish to record clinical interactions, which has been enabled by the arrival of mobile technology.
背景:临床医生和他们的雇主,关心隐私和责任,往往犹豫是否支持记录临床遭遇。然而,许多人希望记录与医疗保健专业人员的接触。因此,了解现行法律如何适用于个人要求记录临床遭遇的情况是很重要的。方法:检索并查阅可用于记录临床接触的相关法律文件。我们有目的地考察了澳大利亚、巴西、加拿大、法国、德国、印度、墨西哥、英国和美国这九个国家的相关法律,从而限制了范围。我们分析了记录对话所需的同意的法律文本,法律是否适用于远程或面对面的对话,以及对违规行为的处罚。调查结果:大多数司法管辖区都有判例法或成文法,源自宪法隐私权,或窃听或窃听法规,对私人谈话的录音进行管理。然而,关于如何将宪法原则和判例法转化为为寻求记录其医疗经历的人提供的建议,几乎没有任何指导。解读:由于移动技术的到来,人们希望记录临床互动,而法律并没有跟上这种愿望的步伐。
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引用次数: 0
Mapping contexts of care 绘制护理情境图
Q4 Medicine Pub Date : 2022-05-04 DOI: 10.1558/cam.19939
Kirk St.Amant
Healthcare today increasingly involves patients using various devices to engage in different care activities and often doing so without the aid of trained healthcare professionals. This situation means patients must often use health and medical information (i.e., content) in various contexts with different dynamics. As a result, usability – or how effectively individuals can use items – becomes central to effective medical communication. Usability expectations affecting such communication dynamics are often guided by psychological processes reflecting prior healthcare experiences. Meeting these expectations involves identifying the cognitive factors influencing how individuals use materials. This conceptual paper examines how the psychological concept of ‘cognitive scripts’ can help address such situations. The paper also presents an approach for identifying the cognitive scripts affecting usability expectations and applying this information to create usable communication materials for healthcare contexts.
今天的医疗保健越来越多地涉及到患者使用各种设备从事不同的护理活动,而且往往没有经过培训的医疗保健专业人员的帮助。这种情况意味着患者必须经常在具有不同动态的各种上下文中使用健康和医疗信息(即内容)。因此,可用性——或者个人如何有效地使用物品——成为有效医疗交流的核心。影响这种交流动态的可用性期望通常受到反映先前医疗保健经验的心理过程的指导。满足这些期望需要识别影响个人如何使用材料的认知因素。这篇概念性论文探讨了“认知脚本”的心理学概念如何帮助解决这种情况。本文还提出了一种方法,用于识别影响可用性期望的认知脚本,并应用此信息为医疗保健环境创建可用的通信材料。
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引用次数: 0
Exploration of the patient’s voice 探索病人的声音
Q4 Medicine Pub Date : 2022-04-01 DOI: 10.1558/cam.18160
Phillip Cox, S. Mihalko, S. Danhauer, J. Kirk, M. Canzona, Heather L. Black, S. Shumaker
Diabetes self-management is a complex process in which individuals are asked to modify established health behaviors. Healthcare providers are instrumental in enhancing individual self-management and are encouraged to consider the patient perspective, often expressed indirectly. Using multidimensional analysis, this study analyzed talk to compare linguistic features used by adherent and non-adherent individuals with diabetes. In-depth telephone interviews were conducted with 108 individuals. Recruitment was stratified by sex, race and glycated hemoglobin (A1C) score. Interviewer contributions were removed from the transcripts, leaving only the participants’ contributions. Using A1C score (?7%, >7%) the texts were divided into adherent and non-adherent datasets. Based on computer-assisted, quantitative analysis, ten linguistic features had a significant difference in frequency of use between the two groups. The participants in the adherent group used a greater frequency of linguistic features related to personal stance than the non-adherent group, and these expressions of personal stance were considered in relation to the participant’s sense of agency. A better understanding of the way in which different subsets of individuals talk about diabetes self-management would facilitate greater healthcare provider understanding of the patient’s perspective during clinical encounters to improve adherence.
糖尿病自我管理是一个复杂的过程,要求个人改变既定的健康行为。医疗保健提供者在加强个人自我管理方面发挥着重要作用,并鼓励他们考虑患者的观点,通常是间接表达的观点。使用多维分析,本研究分析了谈话,以比较糖尿病患者坚持和非坚持使用的语言特征。对108个人进行了深入的电话采访。招募人员按性别、种族和糖化血红蛋白(A1C)评分分层。采访者的贡献从笔录中删除,只留下参与者的贡献。使用A1C评分(?7%, >7%)的文献被分为粘附和非粘附数据集。基于计算机辅助的定量分析,10个语言特征在两组之间的使用频率有显著差异。与非依从组相比,依从组的参与者使用与个人立场相关的语言特征的频率更高,并且这些个人立场的表达被认为与参与者的代理感有关。更好地了解不同人群谈论糖尿病自我管理的方式,将有助于医疗保健提供者在临床接触中更好地了解患者的观点,以提高依从性。
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引用次数: 0
A comparative study of the impact of the COVID-19 crisis on the communication practices of end-of-life care workers COVID-19危机对临终关怀工作者沟通实践影响的比较研究
Q4 Medicine Pub Date : 2022-03-24 DOI: 10.1558/cam.19406
M. Turnbull, X. Wu, B. Watson
Previous research has identified that effective and high-quality communication between patients, families and professionals is a key contributing factor to end-of-life (EOL) care and recovery after bereavement. Increasingly, this communication work is being done by non-clinical staff in places such as homes and community settings. These additional care providers offer important pre- and post-bereavement support that can improve the quality of EOL care as well as promote healthy grieving for families, friends and communities. Despite this contribution, though, little is known about how these non-clinical workers use communication in their daily practices. This paper reports on the analysis of a set of nine in-depth interviews conducted in Hong Kong and in one region of Australia that examined in detail relational aspects of communication that shape interactions between non-clinical workers and service users. Data were collected during the COVID- 19 health crisis, when the workers experienced exceptional restrictions on communication. The findings of this study highlight the fundamental importance of both verbal and non-verbal communication to the relationships established between non-clinical worker  and service users. Specifically, greater support for the development of communication skills in non-clinical EOL workers will promote improvements in the quality of EOL care.
先前的研究已经发现,患者、家属和专业人员之间有效和高质量的沟通是临终关怀和丧亲之痛后康复的关键因素。这种沟通工作越来越多地由家庭和社区等场所的非临床工作人员完成。这些额外的护理提供者提供重要的丧前和丧后支持,可以提高EOL护理的质量,并促进家庭、朋友和社区的健康悲伤。尽管如此,人们对这些非临床工作者如何在日常实践中使用沟通知之甚少。本文报告了在香港和澳大利亚一个地区进行的一组九次深度访谈的分析,这些访谈详细检查了影响非临床工作者和服务用户之间互动的沟通关系方面。数据是在COVID- 19健康危机期间收集的,当时工人们经历了异常的通信限制。这项研究的结果强调了语言和非语言沟通对建立非临床工作者和服务使用者之间关系的根本重要性。具体来说,对非临床EOL工作者沟通技巧发展的更多支持将促进EOL护理质量的提高。
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引用次数: 1
reported responsibilities of mental health workers and clients 精神卫生工作者和客户报告的责任
Q4 Medicine Pub Date : 2022-03-24 DOI: 10.1558/cam.21587
Kirsi Günther, J. Räsänen
This paper explores how mental health workers construct and categorise the responsibilities allocated to themselves and to their clients, based on how these responsibilities are recorded and located in the handwritten shift reports created during an intensive outpatient rehabilitation course in Finland. The data consist of 27 shift reports, which are first sorted using data-driven inductive analysis that then provides the frame for a more detailed analysis. It is found that the workers see their responsibilities as being to make assessments, and to guide and support their clients to increase their ability to function independently and take responsibility for their everyday lives. Reciprocally, the clients’ responsibilities are seen as being to accept the workers’ advice and support and to attend to their own everyday tasks. The clients are also regarded as responsible for their own rehabilitation. There are also shared responsibilities, including promoting client recovery together. The aim of all these reported responsibilities is to improve clients’ wellbeing and independence.
本文探讨了精神卫生工作者如何构建和分类分配给自己和客户的责任,基于这些责任是如何被记录和定位在芬兰密集门诊康复课程期间创建的手写轮班报告中。数据由27份轮班报告组成,首先使用数据驱动的归纳分析对其进行排序,然后为更详细的分析提供框架。研究发现,工作人员认为他们的责任是进行评估,并指导和支持他们的客户提高他们独立工作的能力,并对他们的日常生活负责。反过来,客户的责任被视为接受工人的建议和支持,并关注他们自己的日常任务。客户也被认为对自己的康复负责。还有共同的责任,包括共同促进客户康复。所有这些责任报告的目的都是为了提高客户的幸福感和独立性。
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引用次数: 0
Trouble-talk in therapist–resident encounters 心理医生住院治疗中的麻烦谈话
Q4 Medicine Pub Date : 2022-02-24 DOI: 10.1558/cam.19660
Charlotte Marie Bisgaard Klemmensen
This article focuses on what can be labelled ‘trouble- talk’, and in particular how it is initiated and responded to in therapist–resident encounters. It adopts the perspective of an individual with acquired brain injury. The study is based on a video ethnography of interaction, targeted at identifying trouble-talk and its interactional consequences, and it was carried out in a Danish care home facility for residents with this kind of injury. Encounters involving a case resident, an occupational therapist, a social worker (pædagog) and participant researchers were video recorded (totaling 30 hours) during fieldwork over one year, between 2012 and 2013. The dataset has been analyzed through a combination of discourse analysis and ethnomethodological conversation analysis.The findings show that when the resident takes initiatives and/or makes criticisms, this may be heard by the occupational therapist as complaints about institutional life in general and/or as talking gibberish. Such perceived trouble-talk is responded to by the occupational therapist with misalignment and repair work. In general, trouble-talk is co-constructed; however, it is accentuated by the occupational therapist’s response, which suggests an undesired institutional ramification. In promoting awareness of the impact of impairments on interaction, I discuss how trouble-talk is emergent in the interaction itself and in what ways it can be resolved or minimized.
这篇文章的重点是什么可以被贴上“麻烦谈话”的标签,特别是在治疗师与住院医师的接触中,它是如何被发起和回应的。它采用了一个获得性脑损伤个体的视角。该研究基于互动的视频人种学,旨在识别麻烦谈话及其互动后果,并在丹麦的一家护理机构中为患有这种伤害的居民进行。在2012年至2013年的一年多的实地工作期间,对一名病例居民、一名职业治疗师、一名社会工作者(pædagog)和参与研究人员的接触进行了视频记录(总计30小时)。通过话语分析和民族方法学会话分析相结合的方法对数据集进行了分析。研究结果显示,当住院医生采取主动和/或提出批评时,职业治疗师可能会认为这是对一般机构生活的抱怨和/或胡言乱语。这种感知到的麻烦谈话被职业治疗师用错位和修复工作来回应。一般来说,麻烦的谈话是共同构建的;然而,职业治疗师的反应强调了这一点,这表明了一种不希望的制度分支。为了提高人们对障碍对互动的影响的认识,我讨论了在互动本身中如何出现麻烦谈话,以及如何解决或最小化它。
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引用次数: 1
West meets East 西方与东方相遇
Q4 Medicine Pub Date : 2022-02-17 DOI: 10.1558/cam.19234
Neda Akbari, R. Woodward‐Kron
Research has identified the tasks associated with effective patient-centered communication (PCC), but less is known about the contexts that can enable or hinder its implementation. This study explores East Slavic doctors’ perspectives and experiences of intercultural PCC with Western patients. Semi-structured interviews informed by the principles of PCC were carried out with 15 doctors from two private clinics in Ukraine. The interviews were analyzed both for content and themes, informed by the dimensions of culture approach developed by Geert Hofstede and co-authors.The findings suggest disparities between the Ukrainian doctors’ perspectives and experiences of PCC and those encountered in the West, with those of the former seeming to be influenced by socio-historical and educational barriers, and by dimensions of national culture in Ukraine. In conceptualizing PCC, the societal context needs to be taken into account, lest some important functions of medical communication be placed at risk.
研究已经确定了与有效的以患者为中心的沟通(PCC)相关的任务,但对能够实现或阻碍其实施的环境知之甚少。本研究探讨东斯拉夫医生与西方患者跨文化PCC的观点和经验。根据PCC原则,对乌克兰两家私人诊所的15名医生进行了半结构化访谈。根据Geert Hofstede及其合著者提出的文化维度方法,对访谈内容和主题进行了分析。研究结果表明,乌克兰医生对PCC的看法和经验与西方医生之间存在差异,前者似乎受到社会历史和教育障碍以及乌克兰民族文化方面的影响。在概念化PCC时,需要考虑到社会背景,以免医学传播的一些重要功能受到威胁。
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引用次数: 0
Listening skills in dementia care 痴呆症护理中的倾听技巧
Q4 Medicine Pub Date : 2022-02-17 DOI: 10.1558/cam.19008
Kaitlin E. Cannava, Elizabeth Parks, Bentley Porterfield
Developing strategies to provide effective supportive messages for people with dementia that also promote the wellbeing of active listeners is essential for healthy caregiver–care-recipient relationships. We work to identify, critique and explore the pragmatics of language patterns between caregiving listeners and care-recipient listeners who experience dementia, with a focus on cultivating a more inclusive conceptualization of active listening verbal behaviors. Through content analysis of 66 conversations in the Alzheimer’s and dementia context utilizing an adapted Active Listening Observation Scale (ALOS), our findings create a baseline from which to explore listening behaviors and the wellbeing of both caregivers and care-recipients. The results point to caregivers exhibiting higher active listening behaviors than care-recipients on every measure, and that across the duration of the conversation caregivers’ active listening on a global level decreases and care-recipients’ active listening increases. Ultimately, we hope that this research will decrease negative impacts on caregivers of the caregiving role, by addressing communication challenges; increase the agency and voice of care-recipients as listeners who contribute to communication events; create more inclusive conceptualizations of active listening verbal processes; and improve the quality of active listening in Alzheimer’s and dementia caregiving contexts.
制定战略,为痴呆症患者提供有效的支持性信息,同时促进积极倾听者的福祉,对于健康的照顾者-照顾者-接受者关系至关重要。我们致力于识别、批评和探索痴呆症患者的倾听者和照顾者之间的语言模式的语用学,重点是培养积极倾听言语行为的更具包容性的概念。通过使用主动倾听观察量表(ALOS)对阿尔茨海默氏症和痴呆症背景下的66次对话进行内容分析,我们的研究结果创建了一个基线,从中探索倾听行为和照顾者和被照顾者的幸福感。结果表明,照顾者在每项指标上都表现出比照顾者更高的积极倾听行为,并且在整个谈话过程中,照顾者的积极倾听在全球范围内减少,而照顾者的积极倾听在全球范围内增加。最终,我们希望本研究能够通过解决沟通挑战来减少对照顾者角色的负面影响;增加受照护者作为倾听者的能动性和发言权,他们对沟通事件作出贡献;为主动倾听言语过程创造更具包容性的概念;并提高阿尔茨海默氏症和痴呆症护理环境中积极倾听的质量。
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引用次数: 0
The trajectory of repairs in the defibrillator sequence during emergency cardiac arrest calls – Balancing progressivity and intersubjectivity 紧急心脏骤停期间除颤器序列的修复轨迹——平衡进行性和主体间性
Q4 Medicine Pub Date : 2022-02-17 DOI: 10.1558/cam.19263
Nirukshi Perera, M. Riou, S. Ball, Tanya Birnie, A. Morgan, A. Whiteside, J. Bray, P. Bailey, J. Finn
Due to the urgent, time-sensitive nature of interactions in emergency ambulance phone calls, dealing with repairs (communication trouble) can be challenging. We investigate a critical medical emergency known as out-of-hospital cardiac arrest (OHCA) and focus on how ambulance call-takers handle repairs during an interactive sequence concerning the retrieval of automatic external defibrillators (AED). Clear communication about AEDs is vital, because the device can deliver a life-saving shock to an OHCA patient’s heart. We examined repair initiations, and their subsequent trajectories, during the defibrillator sequences in 58 OHCA emergency calls. We found evidence of competing influences in resolving such repairs: (1) providing a repair solution (including ensuring caller comprehension of what a defibrillator is) to achieve intersubjectivity that could resolve the question of defibrillator availability; or (2) progressing the call as swiftly as possible to an immediately applicable life-saving intervention such as cardiopulmonary resuscitation. The findings suggest that in certain institutional contexts, such as emergency medical service dispatch, the resolution of repairs in communication can take varying trajectories in order to achieve the most feasible goal in immediate time. We suggest that emergency medical services consider these trajectories in helping ambulance call-takers anticipate repairs in OHCA calls.
由于紧急救护电话的紧急和时间敏感性,处理维修(通信问题)可能具有挑战性。我们调查了一种称为院外心脏骤停(OHCA)的严重医疗紧急情况,并重点关注救护车呼叫人员如何在检索自动体外除颤器(AED)的交互序列中处理维修。关于aed的清晰沟通是至关重要的,因为该设备可以给OHCA患者的心脏带来救命的冲击。我们研究了58例OHCA紧急呼叫中除颤器序列中的修复启动及其后续轨迹。我们发现了解决此类维修问题的竞争影响的证据:(1)提供维修解决方案(包括确保呼叫者理解除颤器是什么),以实现可以解决除颤器可用性问题的主体间性;或者(2)尽快将呼叫进展到立即适用的挽救生命的干预措施,如心肺复苏。研究结果表明,在某些机构背景下,如紧急医疗服务调度,解决通信维修问题可以采取不同的轨迹,以便在最短时间内实现最可行的目标。我们建议紧急医疗服务考虑这些轨迹,以帮助救护车呼叫者在OHCA呼叫中预测维修。
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引用次数: 2
期刊
Communication and Medicine
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