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A rejoinder to ‘Concepts of health, ethics, and communication in shared decision making’ by Lauris Kaldjian 对Lauris Kaldjian的“共同决策中的健康、伦理和沟通概念”的回应
Q4 Medicine Pub Date : 2018-10-26 DOI: 10.1558/CAM.36372
A. Clarke
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引用次数: 0
The road not taken: Forgoing disease-directed treatments in advanced cancer. A rejoinder to ‘Concepts of health, ethics, and communication in shared decision making’ by Lauris Kaldjian 没有走的路:放弃针对晚期癌症的疾病治疗。对Lauris Kaldjian的“共同决策中的健康、伦理和沟通概念”的回应
Q4 Medicine Pub Date : 2018-10-26 DOI: 10.1558/CAM.36371
L. Cripe, R. Frankel
Between 1961 and 1979 physicians changed their practice from most often not telling patients their diagnoses of cancer to routinely disclosing it (Oken 1961; Novack et al. 1979). The change can be explained, in large part, by advances in cancer treatment, growing appreciation of the duty to obtain informed consent, changes in professional values, and the rise of the patients’ rights movement. It soon became apparent, however, that patients with advanced cancer were often unaware of their prognoses because prognostic disclosure was far more challenging to physicians than diagnostic disclosure. In 1995, investigators of the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT) reported that an intervention to inform physicians of prognostic estimates and a nurse to elicit patient preferences and encourage patient–physician communication did not improve the frequency of code status discussions, physician awareness of patient resuscitation preferences, or number of days in the intensive care unit (ICU) (Connors 1995). In reflecting on the progress between the publication of the SUPPORT study and the 2015 Institute of Medicine report Improving Quality and Honoring Individual Preferences near the End of Life, we wondered whether the persistent concerns about the quality of end-of-life (EOL) care and patient awareness of prognosis are due to flaws in clinician appreciation of the ethical principles of informed/shared decision making or clinician communication skills.
从1961年到1979年,医生们改变了他们的做法,从通常不告诉病人他们的癌症诊断到定期披露(Oken 1961;Novack et al. 1979)。这种变化在很大程度上可以解释为癌症治疗的进步、人们越来越认识到获得知情同意的责任、职业价值观的变化以及患者权利运动的兴起。然而,很快就发现,晚期癌症患者往往不知道自己的预后,因为对医生来说,披露预后比披露诊断要困难得多。1995年,“了解预后和治疗结果和风险偏好研究”(SUPPORT)的研究人员报告说,告知医生预后估计的干预和护士诱导患者偏好和鼓励医患沟通的干预并没有提高代码状态讨论的频率,医生对患者复苏偏好的认识,或在重症监护病房(ICU)的天数(Connors 1995)。回顾SUPPORT研究的发表和2015年医学研究所报告《改善生命末期的质量和尊重个人偏好》之间的进展,我们想知道,对生命末期(EOL)护理质量和患者预后意识的持续关注,是否由于临床医生对知情/共同决策的伦理原则或临床医生沟通技巧的理解存在缺陷。
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引用次数: 0
What does shared decision making look like in natural settings? A mixed methods study of patient–provider conversations 在自然环境中,共同决策是什么样子的?病人与医生对话的混合方法研究
Q4 Medicine Pub Date : 2018-10-26 DOI: 10.1558/CAM.32815
J. Lee, W. Callon, C. Haywood, S. Lanzkron, P. Gulbrandsen, M. Beach
Objective: To understand the variability and nature of shared decision making (SDM) regarding a uniform type of serious medical decision, and to make normative judgments about how these conversations might be improved. Methods: This was a mixed-methods sub-analysis of the Improving Patient Outcomes with Respect and Trust (IMPORT) study. We used the Braddock framework to identify and describe seven elements of SDM in audio-recorded encounters regarding initiation of hydroxyurea, and used data from medical records and patient questionnaires to understand whether and how these tasks were achieved. Results: Physicians covered a spectrum of SDM behaviors: all dialogues contained discussion regarding the clinical issue and the pros and cons of treatment; the patient's understanding and role were not explicitly assessed or stated in any encounter. Yet no patient agreed to start hydroxyurea who did not already prefer it. There was no uniform approach to how physicians presented risk; many concerns expressed by patients in a pre-visit questionnaire were not discussed. Conclusion: In this analysis, patients seemed to understand their role in the decision-making process, suggesting that a patient's role may not always need to be explicitly stated. However, shared decision making might be improved with more routine assessment of patient understanding and concerns. Standardized decision aids might help fully inform patients of risks and benefits.
目的:了解关于统一类型的严重医疗决策的共同决策(SDM)的可变性和性质,并就如何改进这些对话做出规范性判断。方法:这是一项通过尊重和信任改善患者预后(IMPORT)研究的混合方法亚分析。我们使用Braddock框架来识别和描述音频记录中关于羟基脲起始的SDM的七个要素,并使用来自医疗记录和患者问卷的数据来了解这些任务是否以及如何实现。结果:医生涵盖了一系列SDM行为:所有对话都包含有关临床问题和治疗利弊的讨论;患者的理解和作用没有明确评估或说明在任何遭遇。然而,没有一个不喜欢羟基脲的病人同意开始使用它。医生如何呈现风险并没有统一的方法;患者在会诊前问卷中表达的许多担忧没有得到讨论。结论:在本分析中,患者似乎了解他们在决策过程中的角色,这表明患者的角色可能并不总是需要明确说明。然而,通过对患者的理解和关注进行更常规的评估,共同决策可能会得到改善。标准化的辅助决策可能有助于充分告知患者风险和收益。
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引用次数: 3
The third speaker: The body as interlocutor in conventional, complementary, and integrative medicine encounters 第三位发言者:身体作为传统、补充和综合医学接触中的对话者
Q4 Medicine Pub Date : 2018-10-26 DOI: 10.1558/CAM.32577
Sonya E. Pritzker, Jennifer R. Guzmán, K. Hui, Derjung M. Tarn
This paper examines talk about the body in interactions between patients and their complementary/ alternative providers (CAM), integrative physicians (IM), or conventional physicians. In an analysis of 603 consultations, we focus on instances where the body is spoken of in agentive terms. We thus examine particular micro-interactive moments where the body is constituted as an agent that speaks, responds, and otherwise acts in ways that direct the flow of conversation or the medical decision-making process. With this data, we demonstrate how body-as-agent metaphors in the clinical encounter underscore the communicative agency of providers and position the body as an interlocutor or ‘third speaker’ in conversation with the patient and provider. We further note that we found only limited differences in the ways body-as-agent metaphors were used by CAM/IM and conventional providers. Rather than arguing that such differences demonstrate a fundamental divide between CAM/IM and conventional approaches, we therefore suggest that these kinds of supportive body-as-agent talk exist as opportunities for all providers to support patients in taking a more active stance in managing their relationship with their body.
本文探讨了患者与他们的补充/替代提供者(CAM)、综合医生(IM)或传统医生之间的互动中关于身体的讨论。在对603次协商的分析中,我们把重点放在以代理术语谈论该机构的情况上。因此,我们研究了特定的微互动时刻,其中身体被构成为说话,回应和其他行为的代理,以指导对话或医疗决策过程的流动。有了这些数据,我们展示了身体作为代理人的隐喻如何在临床遭遇中强调提供者的沟通代理,并将身体定位为与患者和提供者对话的对话者或“第三说话者”。我们进一步注意到,我们发现CAM/IM和传统提供者使用身体作为代理隐喻的方式只有有限的差异。与其争论这些差异表明CAM/IM和传统方法之间的根本区别,我们建议这些支持性的身体作为代理人的谈话是所有提供者支持患者采取更积极的立场来管理他们与身体的关系的机会。
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引用次数: 1
Inter-organisational use of the electronic health record in mental health 电子健康记录在精神健康领域的跨组织使用
Q4 Medicine Pub Date : 2018-07-03 DOI: 10.1558/cam.32398
J. Räsänen, Kirsi Günther
The creation and use of electronic records in welfare services is a subject that has received widespread attention. The electronic health record (EHR) is used by different stakeholders (NGOs, hospitals, health care clinics and commissioning agencies) and thus enables the distribution and sharing of recorded information between them, and in this article we focus on the tensions that arise from the inter-organisational use of the EHR in the context of mental health services. The data corpus consists of four focus group interviews from three NGOs in Finland, and we draw on ethnomethodology to analyse the ways in which mental health workers together talk and make sense of these tensions in their interview talk. Our findings suggest that the EHR addresses concerns about the dislocation of clients and continuity of care, which create a need for mental health workers to trace clients' service use and also the contributions by other professionals. However, the introduction of the EHR has increased the recording work of mental health workers as well as of the monitoring of their work performance. Our findings strengthen the case for more transparent practices and rules of recording and information sharing among the different users of the EHR.
在福利服务中建立和使用电子档案是一个受到广泛关注的课题。电子健康记录(EHR)由不同的利益相关者(非政府组织,医院,保健诊所和委托机构)使用,从而能够在他们之间分发和共享记录信息,在本文中,我们重点关注在精神卫生服务背景下组织间使用EHR所产生的紧张关系。数据语料库包括来自芬兰三个非政府组织的四个焦点小组访谈,我们利用民族方法学来分析精神卫生工作者一起谈话的方式,并在他们的采访谈话中理解这些紧张关系。我们的研究结果表明,电子病历解决了对客户错位和护理连续性的关注,这就需要精神卫生工作者追踪客户的服务使用情况以及其他专业人员的贡献。然而,电子病历的引入增加了精神卫生工作者的记录工作以及对其工作表现的监测。我们的研究结果加强了在电子病历的不同用户之间进行更透明的记录和信息共享的实践和规则。
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引用次数: 0
In support of goals-of-care discussions in shared decision making – An extended response to the rejoinders 支持共同决策中的护理目标讨论-对答复的扩展回应
Q4 Medicine Pub Date : 2018-04-25 DOI: 10.1558/CAM.36373
L. Kaldjian
I am indebted to my colleagues – Larry Cripe and Richard Frankel, Martin Richards, Peter Scalia and Glyn Elwyn, and Angus Clarke – for the time they have taken to pose questions and offer comments that challenge and support my essay on the relationship between goals of care, concepts of health, and shared decision making (Kaldjian 2017). I am also grateful for the opportunity to respond (at some length!) to many of the issues raised, some of which are conceptual, some empirical, and some practical. Because most of the concerns relate to goals of care and shared decision making, it is to aspects of these topics that I will devote most of my attention.
我要感谢我的同事们——拉里·克里普和理查德·弗兰克尔、马丁·理查兹、彼得·斯卡利亚和格林·埃尔温,以及安格斯·克拉克——感谢他们花时间提出问题和提供评论,挑战和支持我关于护理目标、健康概念和共同决策之间关系的文章(Kaldjian 2017)。我也很感激有机会对提出的许多问题做出回应(相当长的!),其中一些是概念上的,一些是经验上的,还有一些是实际的。因为大多数问题都与护理目标和共同决策有关,所以我将主要关注这些主题的各个方面。
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引用次数: 3
Shared decision or decision shared? Interactional trajectories in Huntington’s disease management clinics 共同决策还是共同决策?亨廷顿氏病管理诊所的相互作用轨迹
Q4 Medicine Pub Date : 2018-01-05 DOI: 10.1558/CAM.36402
D. Duffin, S. Sarangi
Shared decision making (SDM) as a corrective to paternalism - particularly in relation to treatment options - is a much-discussed theme in healthcare research and practice. The communicative/interactional dimensions of SDM have lately received scholarly attention, albeit limited to a few clinic sites. The Huntington's disease (HD) management clinic, which is the site of this study, involves the co-presence of family members in their carer role, since the patient with HD may lack the cognitive ability to participate adequately in the decision-making process. We closely examine 12 audio-recorded clinic consultation transcripts, using the combined framework of theme-orientated discourse analysis and activity analysis. Our analytical focus is on how decisions are formulated and shared, or not shared, by the co-participants (the consultant, the patient and the carers) and the extent to which the consultant and the carers negotiate their 'expert' assessments of the patient's current and future management scenarios. We first outline a step-wise structure of decision making - to include problem designation, problem confirmation, generation of options and their assessment, and formulation and confirmation of decision. Contrary to how SDM is represented in various models in the literature, these different steps are interactionally dispersed and become negotiable in particular clinic sessions. Our findingssuggest that the consultant routinely uses three main strategies to steer the decision-making process: foregrounding the decision itself, foregrounding the temporal dimension and foregrounding the person/ carer dimension. Moreover, carer participation differs depending on the carer's relationship with the patient and other contingent matters. -
共同决策(SDM)作为对家长式作风的纠正——特别是与治疗方案有关——是医疗保健研究和实践中备受讨论的主题。SDM的交流/互动维度最近受到了学术界的关注,尽管仅限于少数诊所。亨廷顿舞蹈病(HD)管理诊所是本研究的地点,它涉及家庭成员共同参与照顾者的角色,因为亨廷顿舞蹈病患者可能缺乏充分参与决策过程的认知能力。本文采用主题导向话语分析和活动分析相结合的框架,对12份临床咨询录音进行了详细分析。我们的分析重点是共同参与者(咨询师、患者和护理人员)如何制定和分享决策,或者不分享决策,以及咨询师和护理人员在多大程度上就患者当前和未来的管理方案进行“专家”评估。我们首先概述了决策的阶梯式结构——包括问题指定、问题确认、选择的产生和评估、决策的制定和确认。与文献中各种模型中SDM的表现方式相反,这些不同的步骤是相互分散的,并且在特定的临床会议中可以协商。我们的研究结果表明,咨询师通常使用三种主要策略来引导决策过程:突出决策本身,突出时间维度和突出个人/照顾者维度。此外,护理人员的参与取决于护理人员与患者的关系和其他偶然事项。-
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引用次数: 4
Concepts of health, ethics, and communication in shared decision making. 共同决策中的健康、伦理和沟通概念。
Q4 Medicine Pub Date : 2017-01-01 DOI: 10.1558/cam.32845
Lauris Christopher Kaldjian

Shared decision making depends on respectful dialogue that allows patients and clinicians to discuss medical facts and the beliefs and values that give them meaning for a particular patient. This dialogue is most likely to succeed when tests and treatments are placed within a purpose-oriented landscape that sets goals of care in the foreground so that the direction of decision making is clear before too much focus is placed on interventional options. The beliefs and values that guide patients allow them to identify and prioritize their most important goals of care in light of other dimensions of decision making. These beliefs and values will also reveal concepts of health that anchor goals of care. When patients and clinicians disagree about treatments or goals, it may be because a clinician is guided by a biostatistical concept of health, while a patient is guided by one that prioritizes well-being. Such disagreements may also be described in terms of patient preference (autonomy) and the clinician's assessment of the patient's best interests (beneficence). By probing the beliefs and values that explain goals of care and concepts of health, dialogue can help reconcile disagreements in shared decision making. And even when resolution is not forthcoming, and a decision must be 'un-shared', dialogue can demonstrate respect for patients through the consideration clinicians show when they take time to understand and explain.

共同决策取决于相互尊重的对话,使患者和临床医生能够讨论医学事实以及使其对特定患者具有意义的信仰和价值观。当测试和治疗被置于一个以目的为导向的环境中,在前景中设定护理目标,以便在过多地关注干预选择之前明确决策方向时,这种对话最有可能成功。指导患者的信念和价值观使他们能够根据决策的其他方面确定并优先考虑他们最重要的护理目标。这些信念和价值观也将揭示锚定护理目标的健康概念。当患者和临床医生对治疗方法或目标不一致时,可能是因为临床医生受生物统计学健康概念的指导,而患者受优先考虑福祉的指导。这种分歧也可以用患者偏好(自主)和临床医生对患者最佳利益(慈善)的评估来描述。通过探讨解释护理目标和健康概念的信念和价值观,对话可以帮助调和共同决策中的分歧。即使没有解决方案,而且决定必须是“非共享的”,对话也可以通过临床医生在花时间理解和解释时表现出的考虑来表现对患者的尊重。
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引用次数: 27
Developing a new empathy-specific admissions test for applicants to medical schools: A discourse-pragmatic approach. 为医学院申请者开发一种新的移情入学测试:话语实用主义方法。
Q4 Medicine Pub Date : 2017-01-01 DOI: 10.1558/cam.31522
Gabrina Pounds, Charlotte Salter, Mary Jane Platt, Pauline Bryant

The ability to empathise with patients is an important professional skill for doctors. Medical students practise this skill as part of their medical education, and are tested on their use of empathy within their final examination. Evidence shows that appropriate training makes a difference but that natural aptitude also plays a role. Most medical schools, therefore, probe applicants' basic understanding of empathy at admissions interviews. The purpose of the project presented in this paper was to apply existing understanding of how empathy may be communicated in a clinical context (building on a literature review by Pounds [2011]) to develop a new empathy-specific medical admissions interview station, probing applicants' empathic communicative performance (not just theoretical knowledge) and fitting the widely used Multiple Mini Interview (MMI) format. The paper outlines how this tool was developed, trialled and implemented by: (1) conceptualising empathic communication in discourse-pragmatic terms - that is, as a set of specific but context-dependant empathic speech acts; and (2) formulating and trialling a written and two oral versions of a situational test, capable of probing the applicants' ability to communicate empathically in everyday conversation and suitable for use at Norwich Medical School and other similar educational institutions.

对医生来说,同情病人的能力是一项重要的专业技能。作为医学教育的一部分,医学生练习这项技能,并在期末考试中测试他们使用同理心的能力。有证据表明,适当的训练会有所不同,但天赋也起着作用。因此,大多数医学院在招生面试时都会考察申请者对同理心的基本理解。本文提出的项目目的是应用现有的关于如何在临床环境中沟通共情的理解(建立在Pounds[2011]的文献综述基础上),开发一个新的共情特定的医学招生面试站,探讨申请人的共情沟通表现(不仅仅是理论知识),并适应广泛使用的多重迷你面试(MMI)格式。本文概述了这一工具是如何开发、试验和实施的:(1)用话语语用术语概念化共情沟通——也就是说,作为一组具体但依赖于上下文的共情言语行为;(2)制定并试行情景测试的书面和两个口头版本,能够考察申请人在日常对话中进行移情沟通的能力,适合在诺里奇医学院和其他类似的教育机构使用。
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引用次数: 5
Quantitative metaphor usage patterns in Chinese psychotherapy talk. 汉语心理治疗谈话中的数量隐喻使用模式。
Q4 Medicine Pub Date : 2017-01-01 DOI: 10.1558/cam.27688
Dennis Tay

The study of metaphor in psychotherapy is undergoing a 'contextual turn', shifting emphasis from global mechanisms underlying metaphors and therapeutic change to their naturally occurring properties in therapist-patient interaction. While there have been rich qualitative and contextual descriptions of metaphors in psychotherapy, complementary quantitative accounts of metaphor usage patterns over larger amounts of talk have been less forthcoming. This paper reports metaphor usage patterns as associations between key contextual variables which characterize metaphors in a dataset of Chinese psychotherapy talk. A total of 2893 metaphor vehicle terms from 29.5 hours of talk were coded for SPEAKER, FUNCTION, TARGET, PHASE OF THERAPY, and DYAD. A loglinear analysis revealed significant higher order associations (DYAD*TARGET*FUNCTION*PHASE; DYAD*FUNCTION*PHASE*SPEAKER; TARGET*FUNCTION*SPEAKER), discussed as usage patterns which bear implications for the psychotherapeutic application of metaphor. Limitations and future research directions are discussed.

心理治疗中的隐喻研究正在经历一个“语境转向”,将重点从隐喻和治疗变化的整体机制转移到治疗师-患者互动中自然发生的特性。虽然在心理治疗中有丰富的隐喻定性和上下文描述,但在大量谈话中对隐喻使用模式的补充定量描述较少。本文报道了汉语心理治疗谈话数据集中隐喻的关键语境变量之间的关联。从29.5个小时的谈话中,共有2893个隐喻载体术语被编码为SPEAKER、FUNCTION、TARGET、PHASE of THERAPY和DYAD。对数线性分析显示显著的高阶关联(DYAD*TARGET*FUNCTION*PHASE;二元函数* *期*议长;目标*功能*说话者),作为隐喻的心理治疗应用的使用模式进行讨论。讨论了局限性和未来的研究方向。
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引用次数: 8
期刊
Communication and Medicine
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