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Cultivating Gratitude in Bereaved Families: Understanding the Impact of the Bereavement Workshop on the Families of Deceased Patients in the Pediatric Palliative Care Program 培养丧亲家庭的感恩之心:了解丧亲工作坊对儿童姑息治疗项目中已故患者家属的影响
Q2 Social Sciences Pub Date : 2022-10-06 DOI: 10.1177/10541373221130877
María Isabel Cuervo-Suárez, Karen Molina-Gómez, Jhon Edwar Bolaños-Lopez, Luisa Fernanda Pereira, Angela María Devia, Natalia Duque Nieto, Isabel Correa, Tatiana Álvarez Saa, Ximena García-Quintero
Grief in parents has been described as a very intense long-lasting experience, characterized by deep sadness, and social isolation, therefore, the recommendation of scientific societies in pediatrics is to provide bereavement care to parents and relatives of deceased children who have previously been cared for by health professionals. A bereavement workshop for parents is proposed as an intervention strategy, providing accompaniment to the families of deceased patients who received pediatric palliative care (PPC). This is a descriptive, qualitative, and exploratory study. Two focal group sessions were performed in 2019 with 23 families who were formal caregivers of pediatric patients in the Programa de Cuidando de ti (Program “Taking Care of You”), Cali, Colombia. These sessions, guided by the pediatric palliative care group. Data were analyzed using content analysis. 60 families received the personalized letter of condolences with invitation to the workshop, 23 families attended the workshop. From the gratitude activity, families made 49 thank you cards, the following categories were highlighted: Communication, Hope, compassion, acceptance, humanization, learning, gratitude, active listening, coping strategies, regards, faith and humanization. Strategies that favor adequate emotional management of the grieving process should be promoted. This study reflects the perceptions of parents attending a bereavement workshop. It highlights the gratitude, feelings and reflections of the family members during the health process and the death of the child while receiving accompaniment by a pediatric palliative care team.
父母的悲伤被描述为一种非常强烈的长期经历,其特征是深深的悲伤和社会孤立,因此,儿科科学协会的建议是向以前由卫生专业人员照顾的已故儿童的父母和亲属提供丧亲护理。建议为父母举办丧亲研讨会,作为一种干预策略,为接受儿科姑息治疗(PPC)的已故患者家属提供陪伴。这是一项描述性、定性和探索性的研究。2019年,在哥伦比亚卡利的“照顾你”项目(Program de Cuidando de ti)中,23个家庭作为儿科患者的正式照顾者进行了两次焦点小组会议。这些会议,由儿科姑息治疗组指导。数据采用内容分析法进行分析。60个家庭收到了个性化的慰问信,邀请他们参加研讨会,23个家庭参加了研讨会。在感恩活动中,各家庭制作了49张感恩卡片,重点是:沟通、希望、同情、接纳、人性化、学习、感恩、积极倾听、应对策略、关怀、信仰和人性化。应该提倡对悲伤过程进行适当的情绪管理的策略。本研究反映参加丧亲工作坊的家长的看法。它突出了家庭成员在健康过程中的感激、感受和反思,以及在儿童姑息治疗团队的陪伴下孩子的死亡。
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引用次数: 0
Beyond the Corporatization of Death Systems: Towards Green Death Practices. 超越死亡系统的公司化:走向绿色死亡实践。
Q2 Social Sciences Pub Date : 2022-10-01 Epub Date: 2021-04-07 DOI: 10.1177/10541373211006882
Mark Shelvock, Elizabeth Anne Kinsella, Darcy Harris

One less explored area of research concerns the response to the ecological crisis through environmentally sustainable death practices, which we broadly define in this paper as 'green death practices'. In this paper, interdisciplinary research and scholarship are utilized to critically analyze death practices, and to demonstrate how contemporary Westernized death practices such as embalming, traditional burial, and cremation can have harmful environmental and public health implications. This paper also investigates the multi-billion-dollar funeral industry, and how death systems which place economic growth over human wellbeing can be socially exploitative, oppressive, and marginalizing towards recently bereaved persons and the environment. Death-care as corporatized care is explicitly questioned, and the paper provides a new social vision for death systems in industrialized Western societies. Ultimately, the paper advocates for how green death practices may offer new pathways for honoring our relationships to the planet, other human beings, and even our own deepest values.

一个较少探索的研究领域涉及通过环境可持续的死亡实践来应对生态危机,我们在本文中将其广泛定义为“绿色死亡实践”。在本文中,跨学科的研究和学术被用来批判性地分析死亡实践,并展示当代西方化的死亡实践,如防腐、传统埋葬和火葬,如何对环境和公共卫生产生有害影响。本文还调查了数十亿美元的殡葬业,以及将经济增长置于人类福祉之上的死亡系统如何对最近失去亲人的人和环境进行社会剥削,压迫和边缘化。死亡护理作为公司化护理是明确的质疑,并提出了一个新的社会视野在工业化的西方社会的死亡系统。最后,这篇论文提倡绿色死亡的实践如何为尊重我们与地球、其他人甚至我们自己最深刻的价值观的关系提供新的途径。
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引用次数: 5
Meaning-Making Coping With COVID-19 in Academic Settings: The Case of Sweden. 在学术环境中应对COVID-19的意义:瑞典的案例。
Q2 Social Sciences Pub Date : 2022-10-01 DOI: 10.1177/10541373211022002
Fereshteh Ahmadi, Önver A Cetrez, Sharareh Akhavan, Saeid Zandi

In this study, we map and describe the coping methods used by members of the university community in Sweden to deal with the first wave of the coronavirus pandemic. This study, which used simple random sampling, was quantitative. It employed a modified version of the RCOPE instrument as well as items from earlier studies of meaning-making coping in Sweden. Among participants (n = 277, 64% women), the most frequently used coping method was nature as a resource in dealing with stress and sadness, followed by listening to the sounds of surrounding nature and thinking of life as part of a greater whole; these coping methods were the most common in all subgroups studied. We used a cultural perspective to better understand the application of certain meaning-making coping methods.

在这项研究中,我们绘制并描述了瑞典大学社区成员应对第一波冠状病毒大流行所使用的应对方法。本研究采用简单随机抽样,是定量的。它采用了RCOPE工具的修改版本以及瑞典早期意义制造应对研究的项目。在参与者(n = 277,其中64%为女性)中,最常用的应对方法是将自然作为应对压力和悲伤的资源,其次是倾听周围自然的声音,并将生活视为更大整体的一部分;这些应对方法在研究的所有亚组中最为常见。我们使用文化视角来更好地理解某些意义生成应对方法的应用。
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引用次数: 9
The Psychological Effects of Mesothelioma in the UK Military Context From the Carer’s Perspective: A Qualitative Study 从护理人员的角度看英国军事环境中间皮瘤的心理影响:一项定性研究
Q2 Social Sciences Pub Date : 2022-09-05 DOI: 10.1177/10541373221122964
Virginia Sherborne, A. Tod, B. Taylor
Mesothelioma is an incurable asbestos-related cancer with a high symptom burden. Its long lead time means cases in the military context tend to be amongst veterans. Research into the lived experience of mesothelioma is sparse. Research shows British veterans and their families are likely to have particular needs accessing health services and support. This study explored the psychological effects of mesothelioma in the UK military context from the carer's perspective. It comprised a secondary data analysis of interview data plus semi-structured interviews with family carers of UK veterans with a mesothelioma diagnosis. Themes developed included ‘ Going the extra mile’; ‘Shifts in previously robust characteristics and roles’; and ‘Needing to know’. Military culture impacted both patients and carers, with participants reporting a reluctance to show weakness. Carers experienced guilt and traumatic stress symptoms. Moral injury was reported relating to carers’ interactions with the Ministry of Defence (MOD) and the National Health Service (NHS).
间皮瘤是一种无法治愈的石棉相关癌症,具有很高的症状负担。它的筹备时间很长,这意味着在军事背景下,案件往往发生在退伍军人身上。对间皮瘤患者生活经历的研究很少。研究表明,英国退伍军人和他们的家人可能对获得医疗服务和支持有特殊需求。本研究从护理人员的角度探讨了间皮瘤对英国军人的心理影响。它包括对访谈数据的二次数据分析,以及对诊断为间皮瘤的英国退伍军人的家庭护理人员的半结构化访谈。开发的主题包括“加倍努力”;“以前强大的特征和角色的转变”;和“需要知道”。军事文化对病人和护理人员都产生了影响,参与者表示不愿表现出软弱。护理人员经历了内疚和创伤性压力症状。据报道,精神伤害与护理人员与国防部(MOD)和国民保健服务(NHS)的互动有关。
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引用次数: 0
‘Beyond my Control’: Dealing with the Existential Uncertainty of Cancer in Online Texts “超出我的控制”:处理在线文本中癌症存在的不确定性
Q2 Social Sciences Pub Date : 2022-08-24 DOI: 10.1177/10541373221122874
K. Kvaale, O. Lian, H. Bondevik
In this paper, we explore how existential aspects of being diagnosed and living with cancer are shared in stories that are publicly communicated online. Through a narrative analysis of online texts and blogs, we explore how people deal with their cancer experiences, how cultural norms about illness are expressed in their stories and why they write and publish their stories online. We found that the writers described cancer diagnosis as a defining moment in their lives. They portrayed it as a crisis that was followed by unpredictability, doubt, grief and loss, fitting with the term ‘existential uncertainty’. Writing and sharing their stories online, connecting with others and staying positive were ways of dealing with this uncertainty. These naturally occurring data offer insights into phenomena that are not easily accessed in a clinical setting; moreover, they provide unique insights into the cultural norms in which online illness narratives are embedded.
在本文中,我们探讨了被诊断和与癌症生活的存在方面如何在网上公开传播的故事中分享。通过对网络文本和博客的叙述分析,我们探索人们如何处理他们的癌症经历,关于疾病的文化规范如何在他们的故事中表达,以及他们为什么在网上写作和发表他们的故事。我们发现,作者将癌症诊断描述为他们生命中的决定性时刻。他们将其描述为一场危机,随之而来的是不可预测、怀疑、悲伤和损失,这与“存在的不确定性”一词相吻合。在网上撰写和分享他们的故事,与他人联系,保持积极的态度是应对这种不确定性的方法。这些自然发生的数据提供了对在临床环境中不易获得的现象的见解;此外,它们对嵌入网络疾病叙事的文化规范提供了独特的见解。
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引用次数: 0
Should Psychotic Experience Contraindicate Organ Transplant? A Narrative Review 精神病经历应该是器官移植的禁忌吗?叙述性回顾
Q2 Social Sciences Pub Date : 2022-08-22 DOI: 10.1177/10541373221116748
A. McCulloch, C. O’Leary
The scarcity of organs for transplant and significant rates of organ transplantation failure mean it is important to identify factors relating to transplant success and failure. Experiencing psychosis or mania is often seen as a contraindication for transplant, and many transplant teams have been cautious at transplanting people with significant mental health difficulties. In this paper we explore whether there is any evidence to support this attitude towards psychiatric diagnosis and transplantation; consider modifiable risks to transplantation; and ask what is needed to provide equitable care for individuals with experience of psychosis. To place context to our discussion, we present the experience of a person who had a history of psychotic experience and who was assessed for double lung transplant.
移植器官的稀缺性和器官移植失败率的显著性意味着确定与移植成功和失败相关的因素非常重要。患有精神病或狂躁症通常被视为移植的禁忌症,许多移植团队在移植有严重精神健康问题的人时都很谨慎。在本文中,我们探讨是否有任何证据支持这种态度精神病学诊断和移植;考虑移植可改变的风险;并询问需要什么来为有精神病经历的个人提供公平的护理。为了给我们的讨论提供一个背景,我们提出了一个有精神病病史的人的经历,他被评估为双肺移植。
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引用次数: 0
The Management of Social Anxiety: More Than 25 Years Later, Where are we? 社交焦虑的管理:超过25年后,我们在哪里?
Q2 Social Sciences Pub Date : 2022-08-10 DOI: 10.1177/10541373221118645
Amani ElBarazi, Pierre Meshreky
Behavioral and cognitive therapies are today the most effective toolbox and the most evidenced-based therapy for social anxiety. The purpose of this article is to provide an overview of some of the most popular methods for treating social anxiety. A selective review of literature published between 1997 and 2022 on social anxiety management. We have found that the majority of behavioral and cognitive treatment protocols are based on the following pillars: exposure to avoided situations, cognitive restructuring, assertiveness, and social skills training, as well as decentration techniques such as getting out of self-observation and cognitive fusion. Several psychotherapists agree on some components of social anxiety management while others do not. Within these agreements and disagreements, the path to the sketch of a new model should open. We argue that some techniques may ultimately be useless, counterproductive, and time-consuming. Alter the existing models and improve them in a different way in light of the multiple information and clinical examples is much needed. We suggest reconfiguring the theoretical and clinical elements to derive a new therapeutic combination of old techniques. In this new theoretical model of social anxiety, we scrupulously suggest including the cognitive and emotional elements and opt for primacy to be given to behavioral inhibition and the role of the biological part such as amygdala.
行为和认知疗法是当今治疗社交焦虑最有效的工具,也是最具证据基础的疗法。这篇文章的目的是概述一些最流行的治疗社交焦虑的方法。对1997年至2022年间发表的关于社交焦虑管理的文献进行了选择性回顾。我们发现大多数行为和认知治疗方案是基于以下支柱:暴露于避免的情况,认知重组,自信,社交技能训练,以及分散技术,如摆脱自我观察和认知融合。一些心理治疗师同意社交焦虑管理的一些组成部分,而另一些则不同意。在这些协议和分歧中,应该开辟一条通往新模式草图的道路。我们认为,一些技术最终可能是无用的、适得其反的、耗时的。根据多种信息和临床实例,改变现有模型并以不同的方式改进它们是非常必要的。我们建议重新配置理论和临床元素,以获得旧技术的新治疗组合。在这个新的社会焦虑理论模型中,我们谨慎地建议包括认知和情感因素,并选择优先考虑行为抑制和杏仁核等生物部分的作用。
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引用次数: 0
Talking Through the Silence: How do Clinical Psychologists who Have Experienced Suicide Bereavement ‘Make Sense’ of Suicide? 打破沉默:经历过自杀丧亲之痛的临床心理学家如何“理解”自杀?
Q2 Social Sciences Pub Date : 2022-07-29 DOI: 10.1177/10541373221113005
Farahnaaz Dauhoo, Jacqui Gratton, Jeanette Fuller, Lizette Nolte
There is a lack of research concerning therapists’ emotional responses to the suicide of clients and/or friends and family and yet, professionally, therapists commonly manage suicide risk of their clients and need to abide by relevant policies. Using a purposive sampling technique, twelve female clinical psychologists working in the UK were recruited via social media platforms. A qualitative method was adopted to offer an in-depth understanding into the lived experiences of losing a loved one and/or client to suicide. The semi-structured interviews took place via video-call or via telephone for up to one hour. Three themes were identified as follows: how talk is experienced as a way of making sense of suicide the messiness of being human,and an experience that helps psychologists face suicide. This study brings to light the dilemmas experienced by clinical psychologists who are both clinicians and survivors of suicide. The findings highlight the lack of conversation relating to bereavement by suicide within mental health services. This study offers insight into how clinical psychologists experience suicide bereavement, and discusses the clinical and UK policy implications.
目前缺乏关于治疗师对客户和/或朋友和家人自杀的情绪反应的研究,然而,专业地说,治疗师通常会管理客户的自杀风险,并需要遵守相关政策。采用有目的的抽样技术,通过社交媒体平台招募了12名在英国工作的女性临床心理学家。采用定性方法,深入了解失去亲人和/或客户自杀的生活经历。半结构化的采访通过视频通话或电话进行,时间长达一小时。他们确定了以下三个主题:谈话是如何作为一种理解自杀的方式,作为人类的混乱,以及帮助心理学家面对自杀的经历。这项研究揭示了临床医生和自杀幸存者的临床心理学家所经历的困境。研究结果强调,在心理健康服务中,缺乏与自杀造成的丧亲之痛相关的对话。这项研究提供了深入了解临床心理学家如何经历自杀丧亲之痛,并讨论了临床和英国政策的影响。
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引用次数: 0
The Psychological Consequences of SARS-CoV 2 in Healthcare Professionals SARS-CoV 2对医护人员的心理影响
Q2 Social Sciences Pub Date : 2022-07-18 DOI: 10.1177/10541373221113497
E. Micali, Mario Di Salvo, Angela Spallina, C. Di Salvo
During the Covid-19 health emergency, the self-assessment of psychological relapses in 24 health workers through a Covid-19 Emergency Triage Card sought to examine how doctors, health technicians, nurses and auxiliaries perceived their mental state immediately after the communication coronavirus positivity. A Covid-19 Emergency Triage Card consisting of two sections was submitted to the study sample. First section personal data: age, sex, educational qualification, seniority, marital status, offspring, job, workload in hours, presence of night shifts, lifestyle habits (use of alcohol, tobacco, coffee). Second section: self-assessment of the psychological repercussions of the pandemic event with five sub-dimensions: anxiety; psychosomatic disorder; depression; thought disorder. behavioral changes, rated on a three-level scale: mild - medium - severe. The analysis of our results shows that anxiety-depressive symptoms take on significant values in Covid-19 positive healthcare personnel, with greater predominance among nurses. This results in identifying workers most at risk of adverse mental health outcomes during times of health emergency is a public health task. Ensuring the physical and mental health of health care workers is crucial to maintaining a high level of health care in the population.
在Covid-19突发卫生事件期间,通过Covid-19紧急分类卡对24名卫生工作者的心理复发进行了自我评估,旨在检查医生、卫生技术人员、护士和辅助人员在传播冠状病毒阳性后如何立即感知他们的精神状态。向研究样本提交了由两个部分组成的Covid-19紧急分类卡。第一部分个人资料:年龄、性别、学历、年资、婚姻状况、子女、工作、工作时间、是否上夜班、生活习惯(饮酒、吸烟、喝咖啡)。第二部分:大流行事件心理影响的自我评估,分五个维度:焦虑;心身疾病;抑郁症;思想障碍。行为改变,分为三个等级:轻度-中度-严重。分析结果显示,焦虑抑郁症状在Covid-19阳性医护人员中具有显著价值,在护士中更占优势。因此,确定在突发卫生事件期间最有可能出现不良心理健康结果的工人是一项公共卫生任务。确保卫生保健工作者的身心健康对于维持人口中的高水平卫生保健至关重要。
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引用次数: 0
Supporting Women to Heal from Trauma and Post-Traumatic Stress Disorder 支持妇女从创伤和创伤后应激障碍中康复
Q2 Social Sciences Pub Date : 2022-07-12 DOI: 10.1177/10541373221113138
Amani ElBarazi, Salma Ahmed
It is normal to feel anxious, terrified, and agitated after being involved in a potentially dangerous or traumatic incident. Most emotions disappear after a few weeks have passed. Some people continue to have these emotions for many months or even years following the traumatic event. This article looks at how post-traumatic stress disorder (PTSD) might manifest differently in men and women. It was discussed how PTSD develops, what causes it, how it affects women, and what treatments are available. PTSD is far more common in women than in males. PTSD can result in feelings of guilt and worry, as well as shame, hopelessness, depression, and frustration. When someone suffering from PTSD is treated with empathy, compassion, understanding, and acceptance, she feels safe and secure, which has been linked to the development and improvement of PTSD symptoms. With the aid of loved ones, it is possible to overcome feelings of helplessness, grief, and hopelessness. Patients suffering from PTSD may benefit from the encouragement and support of their friends and family. With the help of their loved ones, women may enhance their health and well-being.
在卷入潜在危险或创伤性事件后,感到焦虑、恐惧和激动是正常的。大多数情绪在几周后就消失了。有些人在创伤事件发生后的几个月甚至几年里仍然有这些情绪。这篇文章着眼于创伤后应激障碍(PTSD)在男性和女性身上的不同表现。讨论了创伤后应激障碍是如何发展的,是什么导致了它,它是如何影响女性的,以及有什么治疗方法。PTSD在女性中比在男性中更常见。创伤后应激障碍会导致内疚和担忧的感觉,以及羞耻、绝望、抑郁和沮丧。当一个患有创伤后应激障碍的人得到同情、同情、理解和接受的治疗时,她会感到安全和有保障,这与创伤后应激障碍症状的发展和改善有关。在亲人的帮助下,克服无助、悲伤和绝望的感觉是可能的。患有创伤后应激障碍的患者可能会从他们的朋友和家人的鼓励和支持中受益。在她们所爱的人的帮助下,妇女可以增进她们的健康和幸福。
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引用次数: 1
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Illness Crisis and Loss
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