Grief in parents has been described as a very intense long-lasting experience, characterized by deep sadness, and social isolation, therefore, the recommendation of scientific societies in pediatrics is to provide bereavement care to parents and relatives of deceased children who have previously been cared for by health professionals. A bereavement workshop for parents is proposed as an intervention strategy, providing accompaniment to the families of deceased patients who received pediatric palliative care (PPC). This is a descriptive, qualitative, and exploratory study. Two focal group sessions were performed in 2019 with 23 families who were formal caregivers of pediatric patients in the Programa de Cuidando de ti (Program “Taking Care of You”), Cali, Colombia. These sessions, guided by the pediatric palliative care group. Data were analyzed using content analysis. 60 families received the personalized letter of condolences with invitation to the workshop, 23 families attended the workshop. From the gratitude activity, families made 49 thank you cards, the following categories were highlighted: Communication, Hope, compassion, acceptance, humanization, learning, gratitude, active listening, coping strategies, regards, faith and humanization. Strategies that favor adequate emotional management of the grieving process should be promoted. This study reflects the perceptions of parents attending a bereavement workshop. It highlights the gratitude, feelings and reflections of the family members during the health process and the death of the child while receiving accompaniment by a pediatric palliative care team.
父母的悲伤被描述为一种非常强烈的长期经历，其特征是深深的悲伤和社会孤立，因此，儿科科学协会的建议是向以前由卫生专业人员照顾的已故儿童的父母和亲属提供丧亲护理。建议为父母举办丧亲研讨会，作为一种干预策略，为接受儿科姑息治疗(PPC)的已故患者家属提供陪伴。这是一项描述性、定性和探索性的研究。2019年，在哥伦比亚卡利的“照顾你”项目(Program de Cuidando de ti)中，23个家庭作为儿科患者的正式照顾者进行了两次焦点小组会议。这些会议，由儿科姑息治疗组指导。数据采用内容分析法进行分析。60个家庭收到了个性化的慰问信，邀请他们参加研讨会，23个家庭参加了研讨会。在感恩活动中，各家庭制作了49张感恩卡片，重点是:沟通、希望、同情、接纳、人性化、学习、感恩、积极倾听、应对策略、关怀、信仰和人性化。应该提倡对悲伤过程进行适当的情绪管理的策略。本研究反映参加丧亲工作坊的家长的看法。它突出了家庭成员在健康过程中的感激、感受和反思，以及在儿童姑息治疗团队的陪伴下孩子的死亡。
{"title":"Cultivating Gratitude in Bereaved Families: Understanding the Impact of the Bereavement Workshop on the Families of Deceased Patients in the Pediatric Palliative Care Program","authors":"María Isabel Cuervo-Suárez, Karen Molina-Gómez, Jhon Edwar Bolaños-Lopez, Luisa Fernanda Pereira, Angela María Devia, Natalia Duque Nieto, Isabel Correa, Tatiana Álvarez Saa, Ximena García-Quintero","doi":"10.1177/10541373221130877","DOIUrl":"https://doi.org/10.1177/10541373221130877","url":null,"abstract":"Grief in parents has been described as a very intense long-lasting experience, characterized by deep sadness, and social isolation, therefore, the recommendation of scientific societies in pediatrics is to provide bereavement care to parents and relatives of deceased children who have previously been cared for by health professionals. A bereavement workshop for parents is proposed as an intervention strategy, providing accompaniment to the families of deceased patients who received pediatric palliative care (PPC). This is a descriptive, qualitative, and exploratory study. Two focal group sessions were performed in 2019 with 23 families who were formal caregivers of pediatric patients in the Programa de Cuidando de ti (Program “Taking Care of You”), Cali, Colombia. These sessions, guided by the pediatric palliative care group. Data were analyzed using content analysis. 60 families received the personalized letter of condolences with invitation to the workshop, 23 families attended the workshop. From the gratitude activity, families made 49 thank you cards, the following categories were highlighted: Communication, Hope, compassion, acceptance, humanization, learning, gratitude, active listening, coping strategies, regards, faith and humanization. Strategies that favor adequate emotional management of the grieving process should be promoted. This study reflects the perceptions of parents attending a bereavement workshop. It highlights the gratitude, feelings and reflections of the family members during the health process and the death of the child while receiving accompaniment by a pediatric palliative care team.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"18 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79812718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-05DOI: 10.1177/10541373221122964
Virginia Sherborne, A. Tod, B. Taylor
Mesothelioma is an incurable asbestos-related cancer with a high symptom burden. Its long lead time means cases in the military context tend to be amongst veterans. Research into the lived experience of mesothelioma is sparse. Research shows British veterans and their families are likely to have particular needs accessing health services and support. This study explored the psychological effects of mesothelioma in the UK military context from the carer's perspective. It comprised a secondary data analysis of interview data plus semi-structured interviews with family carers of UK veterans with a mesothelioma diagnosis. Themes developed included ‘ Going the extra mile’; ‘Shifts in previously robust characteristics and roles’; and ‘Needing to know’. Military culture impacted both patients and carers, with participants reporting a reluctance to show weakness. Carers experienced guilt and traumatic stress symptoms. Moral injury was reported relating to carers’ interactions with the Ministry of Defence (MOD) and the National Health Service (NHS).
{"title":"The Psychological Effects of Mesothelioma in the UK Military Context From the Carer’s Perspective: A Qualitative Study","authors":"Virginia Sherborne, A. Tod, B. Taylor","doi":"10.1177/10541373221122964","DOIUrl":"https://doi.org/10.1177/10541373221122964","url":null,"abstract":"Mesothelioma is an incurable asbestos-related cancer with a high symptom burden. Its long lead time means cases in the military context tend to be amongst veterans. Research into the lived experience of mesothelioma is sparse. Research shows British veterans and their families are likely to have particular needs accessing health services and support. This study explored the psychological effects of mesothelioma in the UK military context from the carer's perspective. It comprised a secondary data analysis of interview data plus semi-structured interviews with family carers of UK veterans with a mesothelioma diagnosis. Themes developed included ‘ Going the extra mile’; ‘Shifts in previously robust characteristics and roles’; and ‘Needing to know’. Military culture impacted both patients and carers, with participants reporting a reluctance to show weakness. Carers experienced guilt and traumatic stress symptoms. Moral injury was reported relating to carers’ interactions with the Ministry of Defence (MOD) and the National Health Service (NHS).","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"28 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77571007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-24DOI: 10.1177/10541373221122874
K. Kvaale, O. Lian, H. Bondevik
In this paper, we explore how existential aspects of being diagnosed and living with cancer are shared in stories that are publicly communicated online. Through a narrative analysis of online texts and blogs, we explore how people deal with their cancer experiences, how cultural norms about illness are expressed in their stories and why they write and publish their stories online. We found that the writers described cancer diagnosis as a defining moment in their lives. They portrayed it as a crisis that was followed by unpredictability, doubt, grief and loss, fitting with the term ‘existential uncertainty’. Writing and sharing their stories online, connecting with others and staying positive were ways of dealing with this uncertainty. These naturally occurring data offer insights into phenomena that are not easily accessed in a clinical setting; moreover, they provide unique insights into the cultural norms in which online illness narratives are embedded.
{"title":"‘Beyond my Control’: Dealing with the Existential Uncertainty of Cancer in Online Texts","authors":"K. Kvaale, O. Lian, H. Bondevik","doi":"10.1177/10541373221122874","DOIUrl":"https://doi.org/10.1177/10541373221122874","url":null,"abstract":"In this paper, we explore how existential aspects of being diagnosed and living with cancer are shared in stories that are publicly communicated online. Through a narrative analysis of online texts and blogs, we explore how people deal with their cancer experiences, how cultural norms about illness are expressed in their stories and why they write and publish their stories online. We found that the writers described cancer diagnosis as a defining moment in their lives. They portrayed it as a crisis that was followed by unpredictability, doubt, grief and loss, fitting with the term ‘existential uncertainty’. Writing and sharing their stories online, connecting with others and staying positive were ways of dealing with this uncertainty. These naturally occurring data offer insights into phenomena that are not easily accessed in a clinical setting; moreover, they provide unique insights into the cultural norms in which online illness narratives are embedded.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"15 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78571686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-22DOI: 10.1177/10541373221116748
A. McCulloch, C. O’Leary
The scarcity of organs for transplant and significant rates of organ transplantation failure mean it is important to identify factors relating to transplant success and failure. Experiencing psychosis or mania is often seen as a contraindication for transplant, and many transplant teams have been cautious at transplanting people with significant mental health difficulties. In this paper we explore whether there is any evidence to support this attitude towards psychiatric diagnosis and transplantation; consider modifiable risks to transplantation; and ask what is needed to provide equitable care for individuals with experience of psychosis. To place context to our discussion, we present the experience of a person who had a history of psychotic experience and who was assessed for double lung transplant.
{"title":"Should Psychotic Experience Contraindicate Organ Transplant? A Narrative Review","authors":"A. McCulloch, C. O’Leary","doi":"10.1177/10541373221116748","DOIUrl":"https://doi.org/10.1177/10541373221116748","url":null,"abstract":"The scarcity of organs for transplant and significant rates of organ transplantation failure mean it is important to identify factors relating to transplant success and failure. Experiencing psychosis or mania is often seen as a contraindication for transplant, and many transplant teams have been cautious at transplanting people with significant mental health difficulties. In this paper we explore whether there is any evidence to support this attitude towards psychiatric diagnosis and transplantation; consider modifiable risks to transplantation; and ask what is needed to provide equitable care for individuals with experience of psychosis. To place context to our discussion, we present the experience of a person who had a history of psychotic experience and who was assessed for double lung transplant.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"6 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80017689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-10DOI: 10.1177/10541373221118645
Amani ElBarazi, Pierre Meshreky
Behavioral and cognitive therapies are today the most effective toolbox and the most evidenced-based therapy for social anxiety. The purpose of this article is to provide an overview of some of the most popular methods for treating social anxiety. A selective review of literature published between 1997 and 2022 on social anxiety management. We have found that the majority of behavioral and cognitive treatment protocols are based on the following pillars: exposure to avoided situations, cognitive restructuring, assertiveness, and social skills training, as well as decentration techniques such as getting out of self-observation and cognitive fusion. Several psychotherapists agree on some components of social anxiety management while others do not. Within these agreements and disagreements, the path to the sketch of a new model should open. We argue that some techniques may ultimately be useless, counterproductive, and time-consuming. Alter the existing models and improve them in a different way in light of the multiple information and clinical examples is much needed. We suggest reconfiguring the theoretical and clinical elements to derive a new therapeutic combination of old techniques. In this new theoretical model of social anxiety, we scrupulously suggest including the cognitive and emotional elements and opt for primacy to be given to behavioral inhibition and the role of the biological part such as amygdala.
{"title":"The Management of Social Anxiety: More Than 25 Years Later, Where are we?","authors":"Amani ElBarazi, Pierre Meshreky","doi":"10.1177/10541373221118645","DOIUrl":"https://doi.org/10.1177/10541373221118645","url":null,"abstract":"Behavioral and cognitive therapies are today the most effective toolbox and the most evidenced-based therapy for social anxiety. The purpose of this article is to provide an overview of some of the most popular methods for treating social anxiety. A selective review of literature published between 1997 and 2022 on social anxiety management. We have found that the majority of behavioral and cognitive treatment protocols are based on the following pillars: exposure to avoided situations, cognitive restructuring, assertiveness, and social skills training, as well as decentration techniques such as getting out of self-observation and cognitive fusion. Several psychotherapists agree on some components of social anxiety management while others do not. Within these agreements and disagreements, the path to the sketch of a new model should open. We argue that some techniques may ultimately be useless, counterproductive, and time-consuming. Alter the existing models and improve them in a different way in light of the multiple information and clinical examples is much needed. We suggest reconfiguring the theoretical and clinical elements to derive a new therapeutic combination of old techniques. In this new theoretical model of social anxiety, we scrupulously suggest including the cognitive and emotional elements and opt for primacy to be given to behavioral inhibition and the role of the biological part such as amygdala.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"29 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85682097","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
There is a lack of research concerning therapists’ emotional responses to the suicide of clients and/or friends and family and yet, professionally, therapists commonly manage suicide risk of their clients and need to abide by relevant policies. Using a purposive sampling technique, twelve female clinical psychologists working in the UK were recruited via social media platforms. A qualitative method was adopted to offer an in-depth understanding into the lived experiences of losing a loved one and/or client to suicide. The semi-structured interviews took place via video-call or via telephone for up to one hour. Three themes were identified as follows: how talk is experienced as a way of making sense of suicide the messiness of being human,and an experience that helps psychologists face suicide. This study brings to light the dilemmas experienced by clinical psychologists who are both clinicians and survivors of suicide. The findings highlight the lack of conversation relating to bereavement by suicide within mental health services. This study offers insight into how clinical psychologists experience suicide bereavement, and discusses the clinical and UK policy implications.
{"title":"Talking Through the Silence: How do Clinical Psychologists who Have Experienced Suicide Bereavement ‘Make Sense’ of Suicide?","authors":"Farahnaaz Dauhoo, Jacqui Gratton, Jeanette Fuller, Lizette Nolte","doi":"10.1177/10541373221113005","DOIUrl":"https://doi.org/10.1177/10541373221113005","url":null,"abstract":"There is a lack of research concerning therapists’ emotional responses to the suicide of clients and/or friends and family and yet, professionally, therapists commonly manage suicide risk of their clients and need to abide by relevant policies. Using a purposive sampling technique, twelve female clinical psychologists working in the UK were recruited via social media platforms. A qualitative method was adopted to offer an in-depth understanding into the lived experiences of losing a loved one and/or client to suicide. The semi-structured interviews took place via video-call or via telephone for up to one hour. Three themes were identified as follows: how talk is experienced as a way of making sense of suicide the messiness of being human,and an experience that helps psychologists face suicide. This study brings to light the dilemmas experienced by clinical psychologists who are both clinicians and survivors of suicide. The findings highlight the lack of conversation relating to bereavement by suicide within mental health services. This study offers insight into how clinical psychologists experience suicide bereavement, and discusses the clinical and UK policy implications.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"115 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82923280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-18DOI: 10.1177/10541373221113497
E. Micali, Mario Di Salvo, Angela Spallina, C. Di Salvo
During the Covid-19 health emergency, the self-assessment of psychological relapses in 24 health workers through a Covid-19 Emergency Triage Card sought to examine how doctors, health technicians, nurses and auxiliaries perceived their mental state immediately after the communication coronavirus positivity. A Covid-19 Emergency Triage Card consisting of two sections was submitted to the study sample. First section personal data: age, sex, educational qualification, seniority, marital status, offspring, job, workload in hours, presence of night shifts, lifestyle habits (use of alcohol, tobacco, coffee). Second section: self-assessment of the psychological repercussions of the pandemic event with five sub-dimensions: anxiety; psychosomatic disorder; depression; thought disorder. behavioral changes, rated on a three-level scale: mild - medium - severe. The analysis of our results shows that anxiety-depressive symptoms take on significant values in Covid-19 positive healthcare personnel, with greater predominance among nurses. This results in identifying workers most at risk of adverse mental health outcomes during times of health emergency is a public health task. Ensuring the physical and mental health of health care workers is crucial to maintaining a high level of health care in the population.
{"title":"The Psychological Consequences of SARS-CoV 2 in Healthcare Professionals","authors":"E. Micali, Mario Di Salvo, Angela Spallina, C. Di Salvo","doi":"10.1177/10541373221113497","DOIUrl":"https://doi.org/10.1177/10541373221113497","url":null,"abstract":"During the Covid-19 health emergency, the self-assessment of psychological relapses in 24 health workers through a Covid-19 Emergency Triage Card sought to examine how doctors, health technicians, nurses and auxiliaries perceived their mental state immediately after the communication coronavirus positivity. A Covid-19 Emergency Triage Card consisting of two sections was submitted to the study sample. First section personal data: age, sex, educational qualification, seniority, marital status, offspring, job, workload in hours, presence of night shifts, lifestyle habits (use of alcohol, tobacco, coffee). Second section: self-assessment of the psychological repercussions of the pandemic event with five sub-dimensions: anxiety; psychosomatic disorder; depression; thought disorder. behavioral changes, rated on a three-level scale: mild - medium - severe. The analysis of our results shows that anxiety-depressive symptoms take on significant values in Covid-19 positive healthcare personnel, with greater predominance among nurses. This results in identifying workers most at risk of adverse mental health outcomes during times of health emergency is a public health task. Ensuring the physical and mental health of health care workers is crucial to maintaining a high level of health care in the population.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"64 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-07-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89699177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-12DOI: 10.1177/10541373221113138
Amani ElBarazi, Salma Ahmed
It is normal to feel anxious, terrified, and agitated after being involved in a potentially dangerous or traumatic incident. Most emotions disappear after a few weeks have passed. Some people continue to have these emotions for many months or even years following the traumatic event. This article looks at how post-traumatic stress disorder (PTSD) might manifest differently in men and women. It was discussed how PTSD develops, what causes it, how it affects women, and what treatments are available. PTSD is far more common in women than in males. PTSD can result in feelings of guilt and worry, as well as shame, hopelessness, depression, and frustration. When someone suffering from PTSD is treated with empathy, compassion, understanding, and acceptance, she feels safe and secure, which has been linked to the development and improvement of PTSD symptoms. With the aid of loved ones, it is possible to overcome feelings of helplessness, grief, and hopelessness. Patients suffering from PTSD may benefit from the encouragement and support of their friends and family. With the help of their loved ones, women may enhance their health and well-being.
{"title":"Supporting Women to Heal from Trauma and Post-Traumatic Stress Disorder","authors":"Amani ElBarazi, Salma Ahmed","doi":"10.1177/10541373221113138","DOIUrl":"https://doi.org/10.1177/10541373221113138","url":null,"abstract":"It is normal to feel anxious, terrified, and agitated after being involved in a potentially dangerous or traumatic incident. Most emotions disappear after a few weeks have passed. Some people continue to have these emotions for many months or even years following the traumatic event. This article looks at how post-traumatic stress disorder (PTSD) might manifest differently in men and women. It was discussed how PTSD develops, what causes it, how it affects women, and what treatments are available. PTSD is far more common in women than in males. PTSD can result in feelings of guilt and worry, as well as shame, hopelessness, depression, and frustration. When someone suffering from PTSD is treated with empathy, compassion, understanding, and acceptance, she feels safe and secure, which has been linked to the development and improvement of PTSD symptoms. With the aid of loved ones, it is possible to overcome feelings of helplessness, grief, and hopelessness. Patients suffering from PTSD may benefit from the encouragement and support of their friends and family. With the help of their loved ones, women may enhance their health and well-being.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"40 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-07-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74310312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-26DOI: 10.1177/10541373221110461
Marya Mobeen, E. Grunfeld, K. Newby, Andrew Turner
Androgen deprivation therapy (ADT) is a hormone treatment for prostate cancer and is linked to altered cognition, including memory changes, which can have detrimental effects on quality of life (QOL). The aim of this research was to develop an intervention to support men with memory changes associated with ADT. The Intervention Mapping framework guided intervention development through a series of rigorous steps. A self-management booklet called MEMORY MANager was developed, which incorporated education, self-assessment, compensatory strategies and techniques to improve mood. It was found to be an acceptable means of supporting men. This booklet could be valuable to healthcare professionals and patients as a means of improving QOL among men who undergo ADT. This is the first reported self-management intervention developed for managing cognitive changes in men who undergo ADT. Although preliminary, findings appear promising. More research is needed to evaluate effectiveness of the intervention and its implementation.
{"title":"Development of a Self-Management Intervention for Memory Changes Linked to Androgen Deprivation Therapy for Prostate Cancer","authors":"Marya Mobeen, E. Grunfeld, K. Newby, Andrew Turner","doi":"10.1177/10541373221110461","DOIUrl":"https://doi.org/10.1177/10541373221110461","url":null,"abstract":"Androgen deprivation therapy (ADT) is a hormone treatment for prostate cancer and is linked to altered cognition, including memory changes, which can have detrimental effects on quality of life (QOL). The aim of this research was to develop an intervention to support men with memory changes associated with ADT. The Intervention Mapping framework guided intervention development through a series of rigorous steps. A self-management booklet called MEMORY MANager was developed, which incorporated education, self-assessment, compensatory strategies and techniques to improve mood. It was found to be an acceptable means of supporting men. This booklet could be valuable to healthcare professionals and patients as a means of improving QOL among men who undergo ADT. This is the first reported self-management intervention developed for managing cognitive changes in men who undergo ADT. Although preliminary, findings appear promising. More research is needed to evaluate effectiveness of the intervention and its implementation.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"18 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85900340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-20DOI: 10.1177/10541373221108457
E. Micali
Several studies dedicated to the risk of work-related stress have already shown for some time that healthcare workers are subjected to multiple sources of stress. Recent literature has shown that the SARS CoV 2 pandemic has subjected healthcare workers in emergency/urgent departments and Covid −19 departments to work-related stress risk. In a Sicilian hospital, a sample of 50 health workers (25 men/25 women) was given the “INAIL questionnaire work-related stress risk” structured in 35 items to investigate 7 dimensions of occupational stress (1) Question, (2) Control, (3) Management support, (4) Support from colleagues, (5) Relationships, (6) Role, (7) Change. The results show in 27% of the sample a high level of occupational stress and in 62% an average level of occupational stress with little control and emotional exhaustion, especially in women. In conclusion, to avoid the chronicization of dysfunctional pictures, health institutions must provide staff with psychosocial support services to protect them from the risk of work-related stress.
{"title":"Occupational Stress in Healthcare During Covid 19","authors":"E. Micali","doi":"10.1177/10541373221108457","DOIUrl":"https://doi.org/10.1177/10541373221108457","url":null,"abstract":"Several studies dedicated to the risk of work-related stress have already shown for some time that healthcare workers are subjected to multiple sources of stress. Recent literature has shown that the SARS CoV 2 pandemic has subjected healthcare workers in emergency/urgent departments and Covid −19 departments to work-related stress risk. In a Sicilian hospital, a sample of 50 health workers (25 men/25 women) was given the “INAIL questionnaire work-related stress risk” structured in 35 items to investigate 7 dimensions of occupational stress (1) Question, (2) Control, (3) Management support, (4) Support from colleagues, (5) Relationships, (6) Role, (7) Change. The results show in 27% of the sample a high level of occupational stress and in 62% an average level of occupational stress with little control and emotional exhaustion, especially in women. In conclusion, to avoid the chronicization of dysfunctional pictures, health institutions must provide staff with psychosocial support services to protect them from the risk of work-related stress.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"29 2 1","pages":"608 - 616"},"PeriodicalIF":0.0,"publicationDate":"2022-06-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75311407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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