首页 > 最新文献

Illness Crisis and Loss最新文献

英文 中文
Spiritual Distress in Patients with Dyspnea: A Review of Measurement Tools 呼吸困难患者的精神痛苦:测量工具综述
Q2 Social Sciences Pub Date : 2023-03-16 DOI: 10.1177/10541373231163379
Leah McCann Klug
Spiritual care specialists on the palliative care team are uniquely trained in performing spiritual assessments, a skillset necessary for identifying and treating spiritual distress (SD). While the importance of addressing SD as part of whole-person care has been explored in patients with diagnoses such as cancer and heart failure, the prevalence and treatment of SD in patients with dyspnea are not present in the literature. Using valid and reliable measurement tools to assess SD in severe dyspnea could improve patient-centered care at end-of-life, referring patients to spiritual care specialists and incorporating identified needs into the overall care plan. This paper reviews three tools designed to measure SD in patients with dyspnea. One tool, the Spiritual Distress Scale, has the greatest specificity and lowest patient burden. Recommendations for future research include creating and validating a shorter version of the tool to further reduce the burden on dyspneic patients.
姑息治疗团队的精神护理专家在进行精神评估方面接受了独特的培训,这是识别和治疗精神痛苦(SD)所必需的技能。虽然在诊断为癌症和心力衰竭的患者中,将SD作为全人护理的一部分的重要性已经得到了探讨,但在呼吸困难患者中,SD的患病率和治疗方法尚未在文献中出现。使用有效和可靠的测量工具来评估严重呼吸困难的SD,可以改善临终时以患者为中心的护理,将患者转介给精神护理专家,并将确定的需求纳入整体护理计划。本文综述了用于测量呼吸困难患者SD的三种工具。一种工具,精神痛苦量表,具有最大的特异性和最低的病人负担。对未来研究的建议包括创建和验证该工具的更短版本,以进一步减轻呼吸困难患者的负担。
{"title":"Spiritual Distress in Patients with Dyspnea: A Review of Measurement Tools","authors":"Leah McCann Klug","doi":"10.1177/10541373231163379","DOIUrl":"https://doi.org/10.1177/10541373231163379","url":null,"abstract":"Spiritual care specialists on the palliative care team are uniquely trained in performing spiritual assessments, a skillset necessary for identifying and treating spiritual distress (SD). While the importance of addressing SD as part of whole-person care has been explored in patients with diagnoses such as cancer and heart failure, the prevalence and treatment of SD in patients with dyspnea are not present in the literature. Using valid and reliable measurement tools to assess SD in severe dyspnea could improve patient-centered care at end-of-life, referring patients to spiritual care specialists and incorporating identified needs into the overall care plan. This paper reviews three tools designed to measure SD in patients with dyspnea. One tool, the Spiritual Distress Scale, has the greatest specificity and lowest patient burden. Recommendations for future research include creating and validating a shorter version of the tool to further reduce the burden on dyspneic patients.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"99 1","pages":"736 - 747"},"PeriodicalIF":0.0,"publicationDate":"2023-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72953437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Measurement of Yearning in Bereaved Spouses 丧失配偶渴望的测量
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163296
Laura M. Waters
Yearning can best be described as a cognitive-affective process that consists of repetitive counterfactual thoughts in present situations that can elicit positive and negative feelings related to what life would be like if the deceased lived in an alternative reality compounded with frustration and desire to be with them. Yearning is the only emotional response that differentiates bereavement from other life events. How yearning is measured and assessed within the review of literature has been limited and proven problematic based on the assumption that the underlying construct of yearning is homogeneous, whereas yearning is multifaceted and complex. Single-item assessments of such a complex phenomenon are not enough to clinically diagnose and to plan treatment modalities which is required when diagnosed within DSM-TR-5 criteria.
向往可以被最好地描述为一种认知情感过程,它由在当前情况下重复的反事实思想组成,可以引发积极和消极的感受,这些感受与如果死者生活在另一种现实中,生活将会是什么样子有关,这种现实伴随着挫败感和与他们在一起的渴望。思念是将丧亲之痛与其他生活事件区别开来的唯一情感反应。在文献回顾中,如何测量和评估向往是有限的,并且基于向往的潜在结构是同质的假设,而向往是多方面的和复杂的,这被证明是有问题的。对这种复杂现象的单项评估不足以进行临床诊断,也不足以制定符合DSM-TR-5标准诊断时所需的治疗方式。
{"title":"Measurement of Yearning in Bereaved Spouses","authors":"Laura M. Waters","doi":"10.1177/10541373231163296","DOIUrl":"https://doi.org/10.1177/10541373231163296","url":null,"abstract":"Yearning can best be described as a cognitive-affective process that consists of repetitive counterfactual thoughts in present situations that can elicit positive and negative feelings related to what life would be like if the deceased lived in an alternative reality compounded with frustration and desire to be with them. Yearning is the only emotional response that differentiates bereavement from other life events. How yearning is measured and assessed within the review of literature has been limited and proven problematic based on the assumption that the underlying construct of yearning is homogeneous, whereas yearning is multifaceted and complex. Single-item assessments of such a complex phenomenon are not enough to clinically diagnose and to plan treatment modalities which is required when diagnosed within DSM-TR-5 criteria.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"160 1","pages":"748 - 755"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76558243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the Concepts of Death in Bereaved Teens with Intellectual Disabilities: An Examination of Measurement Tools 理解丧失亲人的智障青少年的死亡概念:测量工具的检验
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163297
Arlen G Gaines
Teens with intellectual disabilities experience disenfranchised grief, as they are often excluded from death education and rituals. Such exclusion can impact opportunities to understand the concepts of death and process the loss. This paper examines the psychometric properties of the limited existing tools designed to measure the understanding of concepts of death in parentally bereaved teens with intellectual disabilities (ID) who are included in after-death rituals as compared to those not included. A literature search uncovered no tools for the concept of death understanding for teens with ID, but four related tools were examined due to their potential proximal applicability. Though further development would be needed, the EsCoMu Scale and the Concept of Death Questionnaire showed the most potential use for this population. Further research is needed to develop a tool specific to teens with ID that takes into account the developmental, cognitive, and social aspects of their grieving experiences.
有智力障碍的青少年经历着被剥夺权利的悲伤,因为他们经常被排除在死亡教育和仪式之外。这种排斥会影响理解死亡概念和处理损失的机会。本文考察了有限的现有工具的心理测量特性,这些工具旨在衡量父母失去亲人的智力残疾青少年(ID)对死亡概念的理解,这些青少年被包括在死后仪式中,而不是那些不包括在内的。一项文献检索发现,没有工具可以帮助理解ID青少年的死亡概念,但由于其潜在的近端适用性,我们研究了四个相关的工具。虽然需要进一步发展,但EsCoMu量表和死亡概念问卷显示对这一人群最有潜在的用途。需要进一步的研究来开发一种专门针对患有ID的青少年的工具,该工具要考虑到他们悲伤经历的发展、认知和社会方面。
{"title":"Understanding the Concepts of Death in Bereaved Teens with Intellectual Disabilities: An Examination of Measurement Tools","authors":"Arlen G Gaines","doi":"10.1177/10541373231163297","DOIUrl":"https://doi.org/10.1177/10541373231163297","url":null,"abstract":"Teens with intellectual disabilities experience disenfranchised grief, as they are often excluded from death education and rituals. Such exclusion can impact opportunities to understand the concepts of death and process the loss. This paper examines the psychometric properties of the limited existing tools designed to measure the understanding of concepts of death in parentally bereaved teens with intellectual disabilities (ID) who are included in after-death rituals as compared to those not included. A literature search uncovered no tools for the concept of death understanding for teens with ID, but four related tools were examined due to their potential proximal applicability. Though further development would be needed, the EsCoMu Scale and the Concept of Death Questionnaire showed the most potential use for this population. Further research is needed to develop a tool specific to teens with ID that takes into account the developmental, cognitive, and social aspects of their grieving experiences.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"77 1","pages":"638 - 654"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77374397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Measurement of Hospice Resilience 安宁疗护心理韧性之测量探讨
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163289
Janna Baker Rogers
Resilience is an emergency management concept that encompasses disaster preparedness, continuity of essential services, and recovery and transformation. Attention to healthcare resilience is growing; research on healthcare resilience has increased since events such as the 2014 Ebola epidemic and the COVID-19 pandemic. However, no studies have been conducted on resilience of hospices, despite a unique patient population and the important role hospices could play in public health emergencies. Quantifying hospice resiliency can aid in planning and response, as well as improving the ability of organizations to transform functionally in response to environmental changes; that is, their transformative capacity. This review examines four measures of resilience that have been applied to the healthcare sector. There are no measures of healthcare resilience that are validated and reliable with respect to the operational profiles of hospices. Further research is necessary to assess and develop valid and reliable measures of hospice resiliency.
复原力是一个应急管理概念,包括备灾、基本服务的连续性以及恢复和转型。对医疗韧性的关注日益增加;自2014年埃博拉疫情和2019冠状病毒病大流行等事件以来,对医疗保健复原力的研究有所增加。然而,尽管病人群体独特,临终关怀医院在突发公共卫生事件中可以发挥重要作用,但没有对临终关怀医院的复原力进行过研究。量化安宁疗护复原力可以协助规划和回应,以及改善组织因应环境变化而进行功能转型的能力;也就是他们的变革能力。本文审查了已应用于医疗保健部门的四种弹性措施。就临终关怀医院的运营概况而言,没有经过验证和可靠的医疗保健弹性措施。进一步的研究是必要的,以评估和发展有效和可靠的措施安宁疗护弹性。
{"title":"Exploring the Measurement of Hospice Resilience","authors":"Janna Baker Rogers","doi":"10.1177/10541373231163289","DOIUrl":"https://doi.org/10.1177/10541373231163289","url":null,"abstract":"Resilience is an emergency management concept that encompasses disaster preparedness, continuity of essential services, and recovery and transformation. Attention to healthcare resilience is growing; research on healthcare resilience has increased since events such as the 2014 Ebola epidemic and the COVID-19 pandemic. However, no studies have been conducted on resilience of hospices, despite a unique patient population and the important role hospices could play in public health emergencies. Quantifying hospice resiliency can aid in planning and response, as well as improving the ability of organizations to transform functionally in response to environmental changes; that is, their transformative capacity. This review examines four measures of resilience that have been applied to the healthcare sector. There are no measures of healthcare resilience that are validated and reliable with respect to the operational profiles of hospices. Further research is necessary to assess and develop valid and reliable measures of hospice resiliency.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"9 1","pages":"619 - 637"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78704404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact on Caregiver Burden Experienced by Informal Caregivers of Persons Living with Dementia When Supported by a Palliative Care Doula 在姑息治疗导乐的支持下,对痴呆症患者的非正式照护者所经历的照护负担的影响
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163295
J. Lentz
The incidence of dementia is increasing rapidly with nearly 7 million currently and projected to triple by 2050. As of 2020, there are 53 million informal caregivers. Twenty-four percent of these informal caregivers are caring for persons living with dementia. Informal caregivers experience an exorbitant amount of stress and strain causing decreased quality of life and less energy to provide the care needed as well as personal health issues. Predictions of increased incidence of dementia, as well as concerns for shortages of informal caregiver availability make the concern for caregiver burden a critical issue. Decreasing caregiver burden is a goal of intervention. The palliative care doula (PCD) provides one possible intervention. This paper examines the psychometric measures of five different instruments intended to quantify the level of caregiver burden experienced with and without the intervention of a relationship with a PCD. The most appropriate tool to utilize is the Zarit Burden Interview-12 for this population. Further research is needed to provide pragmatic, patient centered outcomes that will address this public health caregiving crisis.
痴呆症的发病率正在迅速增加,目前接近700万,预计到2050年将增加两倍。截至2020年,有5300万名非正规护理人员。这些非正式护理人员中有24%在照顾痴呆症患者。非正式照顾者承受着巨大的压力和紧张,导致生活质量下降,提供所需照顾的精力减少,以及个人健康问题。对痴呆症发病率增加的预测,以及对非正式护理人员短缺的担忧,使得对护理人员负担的关注成为一个关键问题。减少照顾者负担是干预的一个目标。姑息治疗助产师(PCD)提供了一种可能的干预。本文研究了五种不同工具的心理测量方法,旨在量化与PCD关系的干预或不干预的护理人员负担水平。针对这一人群,最合适的工具是Zarit Burden Interview-12。需要进一步的研究来提供务实的、以患者为中心的结果,以解决这一公共卫生保健危机。
{"title":"Impact on Caregiver Burden Experienced by Informal Caregivers of Persons Living with Dementia When Supported by a Palliative Care Doula","authors":"J. Lentz","doi":"10.1177/10541373231163295","DOIUrl":"https://doi.org/10.1177/10541373231163295","url":null,"abstract":"The incidence of dementia is increasing rapidly with nearly 7 million currently and projected to triple by 2050. As of 2020, there are 53 million informal caregivers. Twenty-four percent of these informal caregivers are caring for persons living with dementia. Informal caregivers experience an exorbitant amount of stress and strain causing decreased quality of life and less energy to provide the care needed as well as personal health issues. Predictions of increased incidence of dementia, as well as concerns for shortages of informal caregiver availability make the concern for caregiver burden a critical issue. Decreasing caregiver burden is a goal of intervention. The palliative care doula (PCD) provides one possible intervention. This paper examines the psychometric measures of five different instruments intended to quantify the level of caregiver burden experienced with and without the intervention of a relationship with a PCD. The most appropriate tool to utilize is the Zarit Burden Interview-12 for this population. Further research is needed to provide pragmatic, patient centered outcomes that will address this public health caregiving crisis.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"140 1","pages":"720 - 735"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79981655","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Screening for Sexual Health Concerns in Patients with Gynecologic Malignancy 妇科恶性肿瘤患者性健康问题的筛查
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163771
Valerie J. Vetter
Individuals living with gynecologic cancer frequently experience sexual health problems, although these issues are often not addressed by the medical team. This article offers an overview of different tools available to evaluate sexual health in patients with cancer, and more specifically, gynecologic cancer. A literature search was conducted using the PubMed® search engine. Article titles and abstracts were reviewed for relevancy, with four screening tools ultimately selected for further evaluation. Tools discussed include the European Organisation for Research and Treatment of Cancer Sexual Health Questionnaire (EORTC QLQ-SH22), Female Sexual Function Index (FSFI), Sexual function – Vaginal Changes Questionnaire (SVQ), and the Patient-Reported Outcomes Measurement Information System ® Sexual Function and Satisfaction (PROMIS ® SexFS). While all measurement tools reviewed offer strengths and limitations, this article posits that the PROMIS ® SexFS offers the most promise for both research and clinical use in this population.
患有妇科癌症的人经常会遇到性健康问题,尽管这些问题往往没有得到医疗团队的解决。本文概述了评估癌症患者性健康的不同工具,更具体地说,是妇科癌症。使用PubMed®搜索引擎进行文献检索。对文章标题和摘要进行相关性审查,最终选择四种筛选工具进行进一步评估。讨论的工具包括欧洲癌症研究和治疗组织性健康问卷(EORTC QLQ-SH22)、女性性功能指数(FSFI)、性功能-阴道变化问卷(SVQ)和患者报告的结果测量信息系统®性功能和满意度(PROMIS®SexFS)。虽然所有的测量工具都有各自的优点和局限性,但本文认为PROMIS®SexFS在这一人群的研究和临床应用中都是最有希望的。
{"title":"Screening for Sexual Health Concerns in Patients with Gynecologic Malignancy","authors":"Valerie J. Vetter","doi":"10.1177/10541373231163771","DOIUrl":"https://doi.org/10.1177/10541373231163771","url":null,"abstract":"Individuals living with gynecologic cancer frequently experience sexual health problems, although these issues are often not addressed by the medical team. This article offers an overview of different tools available to evaluate sexual health in patients with cancer, and more specifically, gynecologic cancer. A literature search was conducted using the PubMed® search engine. Article titles and abstracts were reviewed for relevancy, with four screening tools ultimately selected for further evaluation. Tools discussed include the European Organisation for Research and Treatment of Cancer Sexual Health Questionnaire (EORTC QLQ-SH22), Female Sexual Function Index (FSFI), Sexual function – Vaginal Changes Questionnaire (SVQ), and the Patient-Reported Outcomes Measurement Information System ® Sexual Function and Satisfaction (PROMIS ® SexFS). While all measurement tools reviewed offer strengths and limitations, this article posits that the PROMIS ® SexFS offers the most promise for both research and clinical use in this population.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"48 1","pages":"671 - 686"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87965608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What is the Rate of Depersonalization and Burnout Among Hospital-Based Palliative Care Nurse Practitioners? A Review of Validated Instruments 医院姑息治疗护士的人格解体和倦怠率是多少?验证仪器的回顾
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163288
C. B. Zogby
Nurse practitioners (NPs) account for one-third of all hospital palliative care (PC) consults, and are prone to burnout and depersonalization (DP). DP threatens personalized communication fundamental to PC. This literature review examines instruments validated to measure burnout and DP. An electronic literature review of instruments previously used to measure burnout and DP was conducted in six databases. Three instruments were included in the review; the Maslach Burnout Inventory (MBI)-Human Service Survey (HSS), the Burnout Assessment Tool (BAT), and the Oldenburg Burnout Inventory (OLBI). All three instruments measure DP or similar constructs and are validated in English, but only the OLBI and the BAT measure burnout with a sum score of the constructs. The OLBI has been validated on a single U.S. population study and as a patient-reported outcome measure (PROM) in Europe. The BAT is the newest instrument and has not been validated on any U.S. population.
执业护士(NPs)占所有医院姑息治疗(PC)咨询的三分之一,并且容易倦怠和人格解体(DP)。DP威胁着PC的个性化通信基础。这篇文献综述检验了测量倦怠和DP的有效工具。在六个数据库中对以前用于测量倦怠和DP的仪器进行了电子文献综述。审查中包括三份文书;马斯拉克职业倦怠量表(MBI)-人类服务调查(HSS)、职业倦怠评估工具(BAT)和奥尔登堡职业倦怠量表(OLBI)。这三种工具都测量DP或类似的构念,并以英语进行验证,但只有OLBI和BAT用构念的总和得分来测量倦怠。OLBI已在美国的一项人口研究中得到验证,并在欧洲作为患者报告的结果测量(PROM)。BAT是最新的仪器,尚未在任何美国人群中得到验证。
{"title":"What is the Rate of Depersonalization and Burnout Among Hospital-Based Palliative Care Nurse Practitioners? A Review of Validated Instruments","authors":"C. B. Zogby","doi":"10.1177/10541373231163288","DOIUrl":"https://doi.org/10.1177/10541373231163288","url":null,"abstract":"Nurse practitioners (NPs) account for one-third of all hospital palliative care (PC) consults, and are prone to burnout and depersonalization (DP). DP threatens personalized communication fundamental to PC. This literature review examines instruments validated to measure burnout and DP. An electronic literature review of instruments previously used to measure burnout and DP was conducted in six databases. Three instruments were included in the review; the Maslach Burnout Inventory (MBI)-Human Service Survey (HSS), the Burnout Assessment Tool (BAT), and the Oldenburg Burnout Inventory (OLBI). All three instruments measure DP or similar constructs and are validated in English, but only the OLBI and the BAT measure burnout with a sum score of the constructs. The OLBI has been validated on a single U.S. population study and as a patient-reported outcome measure (PROM) in Europe. The BAT is the newest instrument and has not been validated on any U.S. population.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"32 1","pages":"687 - 703"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87616295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Review of the Psychometrics of Perinatal Grief Instruments 围产期悲伤量表的心理测量学研究进展
Q2 Social Sciences Pub Date : 2023-03-14 DOI: 10.1177/10541373231163260
P. Wright, Joan G. Carpenter
The intense emotional and psychological consequences of pregnancy loss have been studied for decades. With the growing body of literature regarding women's experiences of pregnancy loss, there is an increased need for high quality evidence that underpins perinatal grief and bereavement support interventions. In this paper, we describe and analyze the psychometric properties of existing tools (the Perinatal Grief Scale, the Perinatal Bereavement Scale, the Perinatal Grief Intensity Scale) developed specifically to measure grief following perinatal loss. The psychometric properties of these instruments are presented along with an assessment of their trustworthiness. Of the three perinatal grief instruments, the PGS is the most well-established measure of perinatal grief. The PBS, although promising, has not been as extensively tested as the PGS. The PGIS has compared favorably with the PGS and is also a good choice for use in perinatal bereavement studies despite its shorter history of use and less extensive psychometric testing.
数十年来,人们一直在研究流产对情绪和心理造成的严重影响。随着越来越多的文献关于妇女怀孕失败的经历,有一个高质量的证据,支持围产期悲伤和丧亲支持干预的需求增加。在本文中,我们描述和分析了现有的工具(围产期悲伤量表、围产期丧亲量表、围产期悲伤强度量表)的心理测量特性,这些工具专门用于测量围产期丧亲后的悲伤。这些工具的心理测量特性与他们的可信度评估一起提出。在三种围产期悲伤仪器中,PGS是围产期悲伤最完善的测量方法。PBS虽然很有前途,但还没有像PGS那样得到广泛的测试。与PGS相比,PGIS具有优势,尽管其使用历史较短,心理测量测试较少,但它也是围产期丧亲研究的良好选择。
{"title":"A Review of the Psychometrics of Perinatal Grief Instruments","authors":"P. Wright, Joan G. Carpenter","doi":"10.1177/10541373231163260","DOIUrl":"https://doi.org/10.1177/10541373231163260","url":null,"abstract":"The intense emotional and psychological consequences of pregnancy loss have been studied for decades. With the growing body of literature regarding women's experiences of pregnancy loss, there is an increased need for high quality evidence that underpins perinatal grief and bereavement support interventions. In this paper, we describe and analyze the psychometric properties of existing tools (the Perinatal Grief Scale, the Perinatal Bereavement Scale, the Perinatal Grief Intensity Scale) developed specifically to measure grief following perinatal loss. The psychometric properties of these instruments are presented along with an assessment of their trustworthiness. Of the three perinatal grief instruments, the PGS is the most well-established measure of perinatal grief. The PBS, although promising, has not been as extensively tested as the PGS. The PGIS has compared favorably with the PGS and is also a good choice for use in perinatal bereavement studies despite its shorter history of use and less extensive psychometric testing.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"11 1","pages":"655 - 670"},"PeriodicalIF":0.0,"publicationDate":"2023-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76237740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parental Bereavement in Older age: A Qualitative Descriptive Study 老年父母丧亲:一项定性描述性研究
Q2 Social Sciences Pub Date : 2023-02-23 DOI: 10.1177/10541373231158755
P. Wright, Marian L Farrell
Parental bereavement is often considered one of the most harrowing life experiences. Yet, little is known about losing an adult child in older age. In this qualitative, descriptive study, nine interviews lasting 45 to 120 minutes were conducted with parents who were 65 years or older at the time of their adult child's death. All interviews were transcribed verbatim and analyzed by two researchers independently. Four main themes were identified: disbelief, injustice, uncertainty, and readjustment. The themes were then compared and contrasted with the extant literature to support validity of the findings. The results have implications for future research and practice.
父母丧亲通常被认为是人生中最痛苦的经历之一。然而,人们对老年失去成年子女知之甚少。在这项定性、描述性研究中,对年龄在65岁或以上的父母进行了9次持续45至120分钟的访谈。所有访谈均由两位研究者逐字记录并独立分析。确定了四个主要主题:怀疑、不公正、不确定性和重新调整。然后将主题与现有文献进行比较和对比,以支持研究结果的有效性。研究结果对未来的研究和实践具有启示意义。
{"title":"Parental Bereavement in Older age: A Qualitative Descriptive Study","authors":"P. Wright, Marian L Farrell","doi":"10.1177/10541373231158755","DOIUrl":"https://doi.org/10.1177/10541373231158755","url":null,"abstract":"Parental bereavement is often considered one of the most harrowing life experiences. Yet, little is known about losing an adult child in older age. In this qualitative, descriptive study, nine interviews lasting 45 to 120 minutes were conducted with parents who were 65 years or older at the time of their adult child's death. All interviews were transcribed verbatim and analyzed by two researchers independently. Four main themes were identified: disbelief, injustice, uncertainty, and readjustment. The themes were then compared and contrasted with the extant literature to support validity of the findings. The results have implications for future research and practice.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"79 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90465726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identifying Incarceration Turning Points Through Veteran Lived Experiences 通过退伍军人的生活经历确定监禁的转折点
Q2 Social Sciences Pub Date : 2023-01-17 DOI: 10.1177/10541373221148692
Jason Flake, Steven L. Arxer, J. LePage
Veteran incarceration presents numerous social and public health problems, which often include re-incarceration, homelessness, unemployment, and suicide. Contemporary literature on veteran incarceration often relies on quantitative-based data. While this data is useful in certain settings, it often limits our knowledge and understanding of the problem. Our study used qualitative interviews to focus on veteran-centric views, experiences, and behaviors associated with incarceration. Guided by the Life Course perspective, our interviews yielded several novel turning point behaviors. These novel turning point behaviors provide a more in-depth and nuanced understanding of veteran incarceration, blend veteran centric behaviors with known incarceration factors, and provide a glimpse into how these behaviors interact with other known factors, such as homelessness and unemployment. Understanding how veterans give meaning to these turning point behaviors may assist health care providers in altering veteran risk responses and interrupt these pathways to incarceration.
退伍军人监禁带来了许多社会和公共卫生问题,其中往往包括再次监禁、无家可归、失业和自杀。关于退伍军人监禁的当代文献往往依赖于基于数量的数据。虽然这些数据在某些情况下是有用的,但它往往限制了我们对问题的认识和理解。我们的研究采用定性访谈的方式来关注与监禁相关的以退伍军人为中心的观点、经历和行为。在生命历程观点的指导下,我们的访谈产生了几个新的转折点行为。这些新颖的转折点行为提供了对退伍军人监禁的更深入和细致的理解,将退伍军人为中心的行为与已知的监禁因素结合起来,并提供了这些行为如何与其他已知因素(如无家可归和失业)相互作用的一瞥。了解退伍军人如何赋予这些转折点行为意义,可能有助于医疗服务提供者改变退伍军人的风险反应,并中断这些通往监禁的途径。
{"title":"Identifying Incarceration Turning Points Through Veteran Lived Experiences","authors":"Jason Flake, Steven L. Arxer, J. LePage","doi":"10.1177/10541373221148692","DOIUrl":"https://doi.org/10.1177/10541373221148692","url":null,"abstract":"Veteran incarceration presents numerous social and public health problems, which often include re-incarceration, homelessness, unemployment, and suicide. Contemporary literature on veteran incarceration often relies on quantitative-based data. While this data is useful in certain settings, it often limits our knowledge and understanding of the problem. Our study used qualitative interviews to focus on veteran-centric views, experiences, and behaviors associated with incarceration. Guided by the Life Course perspective, our interviews yielded several novel turning point behaviors. These novel turning point behaviors provide a more in-depth and nuanced understanding of veteran incarceration, blend veteran centric behaviors with known incarceration factors, and provide a glimpse into how these behaviors interact with other known factors, such as homelessness and unemployment. Understanding how veterans give meaning to these turning point behaviors may assist health care providers in altering veteran risk responses and interrupt these pathways to incarceration.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"42 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86512614","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Illness Crisis and Loss
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1