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Involuntary admission and treatment of mentally ill patients – the role and accountability of mental health review boards 精神病患者的非自愿入院和治疗——心理健康审查委员会的作用和责任
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-12-31 DOI: 10.7196/sajbl.2021.v14i3.717
M. Swanepoel, S. Mahomed
The involuntary admission or treatment of a mentally ill individual is highly controversial, as it may be argued that such intervention infringes on individual autonomy and the right to choose a particular treatment. However, this argument must be balanced with the need to provide immediate healthcare services to a vulnerable person who cannot or will not make a choice in his or her own best interests at a particular time. A study carried out in Gauteng Province, South Africa (SA), highlighted the fact that the annual rate of involuntary admissions increased by almost double from 2007 to 2008. This could indicate that healthcare providers are not treating patients without their consent only when this is absolutely necessary. Alternatively, it could indicate that healthcare professionals are more aware of the provisions of the Mental Health Care Act and relevant national policy guidelines. Or it could suggest that more patients are presenting with mental illnesses or disorders that require their involuntary admission. It remains for strategies to be developed that change negative perceptions and inequities for individuals with mental illness. Above all, the strategies should be underpinned by inalienable respect for mentally ill individuals – a concept that was blatantly disregarded in the Life Esidimeni case. In this article, we highlight the functions of mental health review boards and their accountability where involuntary admissions are concerned, while emphasising the protections for mentally ill persons as a vulnerable population group, as set out in the SA Constitution.
精神病患者的非自愿入院或治疗极具争议,因为可能有人认为,这种干预侵犯了个人自主权和选择特定治疗的权利。然而,这一论点必须与为弱势群体提供即时医疗服务的必要性相平衡,弱势群体在特定时间无法或不会做出符合自身最大利益的选择。在南非豪登省进行的一项研究强调了一个事实,即从2007年到2008年,非自愿入院的年比率几乎增加了一倍。这可能表明,只有在绝对必要的情况下,医疗保健提供者才会在未经患者同意的情况下治疗患者。或者,它可以表明医疗保健专业人员更了解《精神卫生保健法》和相关国家政策指南的规定。或者,这可能表明更多的患者出现了需要非自愿入院的精神疾病或障碍。改变对精神疾病患者的负面看法和不公平现象的战略还有待制定。最重要的是,这些战略应该以对精神病患者不可剥夺的尊重为基础——这一概念在Life Esidimeni案中被公然忽视。在这篇文章中,我们强调了心理健康审查委员会的职能及其在非自愿入院方面的责任,同时强调了《南非宪法》中对精神病患者作为弱势群体的保护。
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引用次数: 1
The omicron hodge-podge: Travel bans, vaccine mandates, children and vaccine equity 奥密克戎大杂烩:旅行禁令、疫苗强制令、儿童和疫苗公平
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-12-31 DOI: 10.7196/SAJBL.2021.v1431.794
A. Dhai
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引用次数: 0
Public health emergency preparedness and response in South Africa: A review of recommendations for legal reform relating to data and biological sample sharing 南非公共卫生应急准备和应对:审查与数据和生物样本共享有关的法律改革建议
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-12-31 DOI: 10.7196/SAJBL.2021.v14i3.772
M. Steytler, D. Thaldar
COVID-19 exposed flaws in the law regulating the sharing of data and human biological material (HBM). This poses obstacles to the epidemic response, which needs accelerated public health research and, in turn, efficient and legitimate HBM and data sharing. Legal reform and development are needed to ensure that HBM and data are shared efficiently and lawfully. Academics have suggested important legal reforms. The first is the clarification of the susceptibility of HBM and HBM derivatives to ownership, including, inter alia, the promulgation of a revised version of the South African Material Transfer Agreement (SA MTA) by the Minister of Health. This would remove uncertainty regarding the current SA MTA’s perpetual donor ownership clause. The second is the development of data trusts, the adoption of open access to research data, and the creation of an African ‘data corridor’. This would ensure that data are protected while allowing for the efficient transfer of data between researchers for the collective good and in the interest of the public. The third is the amendment of the Space Affairs Act to extend the powers of the Council of Space Affairs to include the management of data collected through the utilisation of Earth observation and geographical information systems. This would ensure the protection of outer space data, legislating its use and sharing once it lands on Earth. The implementation of these legal reforms and developments will better prepare SA to face future epidemics from a health research perspective.
COVID-19暴露了数据和人类生物材料共享法律的缺陷。这对应对流行病构成了障碍,这需要加快公共卫生研究,进而需要有效和合法的HBM和数据共享。需要进行法律改革和发展,以确保HBM和数据有效、合法地共享。学者们建议进行重要的法律改革。首先是澄清HBM和HBM衍生物对所有权的敏感性,除其他外,包括卫生部长颁布了《南非物质转让协定》修订版。这将消除目前SA MTA永久捐赠者所有权条款的不确定性。第二个是发展数据信托,采用对研究数据的开放获取,以及建立非洲“数据走廊”。这将确保数据得到保护,同时允许为了集体利益和公众利益在研究人员之间有效地转移数据。第三是修订《空间事务法》,以扩大空间事务委员会的权力,包括管理通过利用地球观测和地理信息系统收集的数据。这将确保对外层空间数据的保护,为其在地球上的使用和共享制定法律。从卫生研究的角度来看,实施这些法律改革和发展将使南非更好地应对未来的流行病。
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引用次数: 1
Is South Africa ready for the future of human germline genome editing? Comparing South African law and recent proposals for global governance 南非为人类生殖系基因组编辑的未来做好准备了吗?比较南非法律和最近的全球治理建议
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-12-31 DOI: 10.7196/sajbl.2021.v14i3.761
T. Kamwendo, B. Shozi
Over the past few years, developments in the science of precise editing of human genomes using CRISPR-Cas9 have led many countries that lack specific laws in this area, such as South Africa (SA), to contemplate legal reform. Thaldar et al. recently published five principles to guide legal reform in SA on heritable genome editing. In a similar vein, concerns about the global impact of human germline genome editing have led to calls for a global regulatory mechanism. This is what the World Health Organization has tried to achieve with the recently published ‘Draft governance framework for human genome editing’. In this article, we compare the policies proposed by the draft framework to the current SA legal position, as well as the five guiding principles. The article concludes that SA law is in need of reform in order to meet the global standards that the draft framework seems to be moving towards.
在过去几年中,使用CRISPR-Cas9精确编辑人类基因组的科学发展导致许多缺乏该领域具体法律的国家,如南非,考虑进行法律改革。Thaldar等人最近发表了五项原则,以指导SA关于可遗传基因组编辑的法律改革。同样,对人类种系基因组编辑的全球影响的担忧也引发了建立全球监管机制的呼声。这就是世界卫生组织最近发布的“人类基因组编辑治理框架草案”试图实现的目标。在本文中,我们将框架草案提出的政策与SA当前的法律立场以及五项指导原则进行了比较。文章的结论是,SA法律需要改革,以满足框架草案似乎正在朝着的全球标准迈进。
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引用次数: 0
Corruption in the public health sector in South Africa: A global bioethical perspective 南非公共卫生部门的腐败:全球生物伦理视角
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-12-31 DOI: 10.7196/sajbl.2021.v14i3.693
R. Rheeder
It is clear that corruption as the abuse of power is an enormous bioethical issue in the public health sector in SA, but as a challenge, it has not elicited much discussion from a global bioethical perspective. The Universal Declaration of Bioethics and Human Rights (UDBHR) on corruption considers three matters. First, the existence of corruption as a problem of power is recognised in the health environment and condemned (article 18). Second, corruption is indicated as an immoral phenomenon that harms the interests of the patient (article 4), ignores vulnerable people (article 8) and neglects social responsibility (article 14). Third, it can be concluded that the UDBHR expresses the opinion that corruption has to be combated by a process of ethical decision-making (article 18.2-3), the use of ethics committees (article 19) and ethics education (article 23.1).
很明显,作为滥用权力的腐败是南非公共卫生部门的一个巨大的生物伦理问题,但作为一个挑战,它还没有从全球生物伦理的角度引起很多讨论。关于腐败的《世界生命伦理与人权宣言》考虑了三个问题。首先,在卫生环境中承认腐败作为权力问题的存在并予以谴责(第18条)。第二,腐败是一种损害患者利益(第4条)、忽视弱势群体(第8条)和忽视社会责任(第14条)的不道德现象。第三,可以得出结论,《世界人权宣言》表达的观点是,必须通过道德决策过程(第18.2-3条)、使用道德委员会(第19条)和道德教育(第23.1条)来打击腐败。
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引用次数: 0
Extracorporeal Membrane Oxygenation (ECMO) Therapy in Intensive Care Units (ICU) in South African State Hospitals: A Normative Study. 南非国立医院重症监护病房(ICU)的体外膜氧合(ECMO)治疗:一项规范性研究。
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-08-16 DOI: 10.7196/SAJBL.2021.V14I2.00750
S. Murphy, A. Dhai
Background The use of Extracorporeal membrane oxygenation (ECMO) in Critical Care is gathering momentum internationally. There is interest in it being included within the offering of Critical Care services in South African State Hospitals. Objectives Most discussions about ECMO's appropriateness in State hospitals have been focused on healthcare economics and cost: benefit. To date, the bioethical considerations of this topic have not been comprehensively addressed. This research aims to articulate some of the normative ethical considerations to be considered when making decisions about government funding of medical therapies in general and costly life-sustaining therapies, such as ECMO specifically, within a limited resource environment. Methods Using a standard normative/philosophical design and the application of the ethical theories of Responsive Communitarianism and Ubuntu (African Moral Theory), to interrogate whether it is morally justifiable for Intensive Care Units in South African State Hospitals to be implementing ECMO programmes, at present. Conclusions Both Responsive communitarianism and Ubuntu (African Moral theory) advocate that when considering expensive therapies that extend or save lives such as ECMO, it is essential to consider the collective effect of such therapies on the community large – both the benefits as well as burdens. Accordingly, considering the National Department of Health's current state, it is ethically unjustified for ECMO to be included in the current critical care service in State Hospitals at present.
背景体外膜肺氧合(ECMO)在重症监护中的应用在国际上正在兴起。人们有兴趣将其纳入南非州立医院的重症监护服务中。目的大多数关于ECMO在公立医院的适用性的讨论都集中在医疗经济学和成本效益上。迄今为止,对这一主题的生物伦理考虑尚未得到全面处理。这项研究旨在阐明在有限的资源环境下,在决定政府资助一般医疗疗法和昂贵的维持生命疗法(如ECMO)时需要考虑的一些规范性伦理考虑因素。方法采用标准规范/哲学设计,应用响应性社群主义和Ubuntu(非洲道德理论)的伦理理论,质疑目前南非州立医院重症监护室实施ECMO计划在道德上是否合理。结论响应性社群主义和Ubuntu(非洲道德理论)都主张,在考虑延长或挽救生命的昂贵疗法(如ECMO)时,必须考虑这些疗法对整个社区的集体影响——既有好处,也有负担。因此,考虑到国家卫生部目前的状况,将ECMO纳入目前州立医院的重症监护服务在道德上是不合理的。
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引用次数: 0
Expression of concern (4 June 2021) 表达关注(2021年6月4日)
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-08-16 DOI: 10.7196/SAJBL.2021.V14I2.00776
L. Hansen, I. V. Wyk, M. Fouché
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引用次数: 0
Human reproduction: Right, duty or privilege? South African perspective 人类生殖:权利、义务还是特权?南非视角
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-08-16 DOI: 10.7196/SAJBL.2021.V14I2.00697
M. D. Roubaix
There is a great need for responsible parenthood in a country such as South Africa (SA), where the vast majority of pregnancies are unplanned and unwanted, and a large proportion of children experience abject poverty. Human reproduction is a complex issue, and there are numerous reasons why humans want and need children. These can be placed into two broad categories: reproduction is the result of our preintellectual ‘nature’ (instinct); and secondly, it satisfies social and personal needs. Reproductive choice is a human right that our membership of the human race inalienably entitles us to – indirectly guaranteed in the SA Constitution. At a social level, it may be argued, though not very convincingly, to be a duty, while the contra-duty not to procreate is more compelling, when having more children may overburden already large and needy families and lead to child neglect. In contemporary society, reproduction should be argued as a privilege. This opens the door to responsible parenthood. In a country such as ours, there is a particular need to balance reproductive rights, social needs and responsibility.
在像南非这样的国家,非常需要负责任的父母,那里绝大多数怀孕都是计划外的和不想要的,而且很大一部分儿童处于赤贫状态。人类生殖是一个复杂的问题,人类想要和需要孩子的原因有很多。这些可以分为两大类:繁殖是我们前智力“本性”(本能)的结果;其次,它满足了社会和个人的需求。生育选择权是一项人权,作为人类的一员,我们不可剥夺地享有这项权利,这在南非宪法中得到了间接保障。在社会层面上,虽然不是很有说服力,但可能会争辩说,这是一种责任,而不生育的矛盾责任更有说服力,因为生育更多的孩子可能会使已经庞大而贫困的家庭负担过重,并导致儿童被忽视。在当代社会,生育应该被认为是一种特权。这为负责任的父母打开了大门。在象我国这样的国家,特别需要平衡生殖权利、社会需要和责任。
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引用次数: 2
Re: Response to the Stellenbosch University’s Research Ethics Committee: Social, Behavioural and Education Research expression of concern 回复:对斯泰伦博斯大学研究伦理委员会:社会、行为和教育研究关注表达的回应
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-08-16 DOI: 10.7196/SAJBL.2021.V14I2.00779
A. Strode, W. Freedman, Z. Essack, H. Rooyen
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引用次数: 0
Reconsidering solidarity in an African modified principlism 重新考虑非洲修正原则中的团结
IF 0.9 Q4 MEDICAL ETHICS Pub Date : 2021-08-16 DOI: 10.7196/SAJBL.2021.V14I2.00744
A. K. Fayemi
Principlism has attracted severe criticisms in contemporary bioethical scholarship. Scholars working in bioethics in the sub-Sahara have challenged the autonomy component of principlism, with strong emphasis on solidarity as a more fundamental principle that ought to guide bioethical discourses and practices in Africa and beyond. Focusing on Kevin Gary Behrens, who defends an indigenous Africaninspired version of principlism that incorporates salient African moral values including community, relationality, harmony and solidarity, this article questions the nebulous conception of solidarity in Behrens’ African modified principlism (AMP). AMP is anchored in the principles of respect for persons, beneficence, non-maleficence and harmony. Contra Behrens, I argue that the attempt to replace the American principlist model ‘with a new African-inspired principlist mantra’ can only succeed when there is a thorough analysis of the nature and boundaries of solidarity, which is currently lacking. Advancing on Thaddeus Metz’s construction of solidarity in his ‘Afro-bioethic of communion’, I defend a metaphoric normative conception of solidarity that represents historical symbols of the self and the other in a reflexive-care matrix of identification, recognition, inclusion and empathy. Beyond the partialist frame grounding the understanding of solidarity in African bioethical thought, which is inadequate, I offer a metaphoric, sympathetic and unbound space of solidarity. Suggested for future research is investigating the ranging implications of a metaphoric normative understanding of solidarity for dealing with vulnerable and non-vulnerable groups in the context of healthcare and environmental bioethics at the local, regional and global levels.
原则主义在当代生物伦理学学术中受到了严厉的批评。撒哈拉以南地区从事生物伦理学研究的学者对原则主义的自治部分提出了挑战,他们强烈强调团结是一项更基本的原则,应该指导非洲及其他地区的生物伦理学论述和实践。凯文·加里·贝伦斯(Kevin Gary Behrens)为一种非洲本土启发的原则主义辩护,这种原则主义融合了突出的非洲道德价值观,包括社区、关系、和谐和团结。本文对贝伦斯的非洲修正原则主义(AMP)中模糊的团结概念提出了质疑。AMP以尊重人、仁慈、无害和和谐的原则为基础。与贝伦斯相反,我认为,只有对团结的性质和边界进行彻底的分析,才能成功地“用一种新的非洲原则主义咒语”取代美国原则主义模式,而这正是目前所缺乏的。在梅茨(Thaddeus Metz)的《非洲生物伦理的共融》(african - bioethics of communion)中对团结的构建的基础上,我为团结的隐喻性规范概念辩护,该概念代表了自我和他人在认同、认可、包容和共情的反身性关怀矩阵中的历史符号。在对非洲生物伦理思想中团结的理解的片面框架之外,这是不充分的,我提供了一个隐喻性的,同情的和不受约束的团结空间。建议未来的研究是调查在地方、区域和全球各级的卫生保健和环境生物伦理背景下,对团结的隐喻性规范理解对处理弱势群体和非弱势群体的广泛影响。
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引用次数: 2
期刊
South African Journal of Bioethics and Law
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