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The relationship between speculation and translation in Bioethics: methods and methodologies. 生物伦理学中思辨与翻译的关系:方法论与方法论。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2023-09-28 DOI: 10.1007/s40592-023-00181-z
Tess Johnson, Elizabeth Chloe Romanis

There are increasing pressures for bioethics to emphasise 'translation'. Against this backdrop, we defend 'speculative bioethics'. We explore speculation as an important tool and line of bioethical inquiry. Further, we examine the relationship between speculation and translational bioethics and posit that speculation can support translational work. First, speculative research might be conducted as ethical analysis of contemporary issues through a new lens, in which case it supports translational work. Second, speculation might be a first step prior to translational work on a topic. Finally, speculative bioethics might constitute different content altogether, without translational objectives. For each conception of speculative bioethics, important methodological aspects determine whether it constitutes good bioethics research. We conclude that whether speculative bioethics is compatible with translational bioethics-and to what extent-depends on whether it is being employed as tool or content. Applying standards of impact uniformly across bioethics may inappropriately limit speculative bioethics.

生物伦理学强调“翻译”的压力越来越大。在这种背景下,我们为“推测性生物伦理学”辩护。我们将思辨作为生物伦理学研究的一个重要工具和途径。此外,我们研究了推测与翻译生物伦理学之间的关系,并认为推测可以支持翻译工作。首先,推测性研究可能是通过一个新的视角对当代问题进行伦理分析,在这种情况下,它支持翻译工作。其次,推测可能是对某个主题进行翻译工作之前的第一步。最后,推测性的生物伦理学可能完全构成不同的内容,而没有转化的目标。对于每一个推测性生物伦理学的概念,重要的方法论方面决定了它是否构成良好的生物伦理学研究。我们得出的结论是,推测性生物伦理学是否与转化性生物伦理学兼容,在多大程度上取决于它是作为工具还是内容使用。在生物伦理学中统一应用影响标准可能会不适当地限制推测性的生物伦理学。
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引用次数: 0
Ethics and non-evidence based therapies: Portuguese perspective in a global setting. 伦理和非循证疗法:全球背景下的葡萄牙视角。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2022-12-31 DOI: 10.1007/s40592-022-00172-6
João Madruga Dias

A contemporary serious lack of scientific knowledge by the general public and many decision-makers is now quite perceptible, both globally and in Portugal. Living in a science-driven technological world filled with scientific illiteracy is dangerous and a path toward disaster. Recent years brought a fairly strong global movement promoting the so-called "alternative therapy" that also affected Portugal. I propose an evidence-based ethics reflection and argumentation, both encompassing the global and the specific Portuguese reality. I debate the specific arguments used in favour of alternative therapies, demonstrating the inherent fallacies of thought, deliberate manipulation of words and concepts, and the dire consequences for global and local health politics by following this line of biased reasoning.

当代公众和许多决策者严重缺乏科学知识,这在全球和葡萄牙都很明显。生活在一个充斥着科学文盲的科学驱动的技术世界是危险的,是通往灾难的道路。近年来,全球掀起了一场声势浩大的“另类疗法”运动,葡萄牙也受到了影响。我提出一种基于证据的道德反思和论证,既包括全球现实,也包括具体的葡萄牙现实。我对支持替代疗法的具体论点进行了辩论,展示了思想的内在谬误、对词汇和概念的蓄意操纵,以及遵循这种有偏见的推理路线对全球和地方卫生政治的可怕后果。
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引用次数: 0
Protecting civil Liberties in a cognitively enhanced future: the role of classical liberalism. 在认知增强的未来中保护公民自由:古典自由主义的作用。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2023-07-10 DOI: 10.1007/s40592-023-00178-8
Michael Gentzel

A prominent concern in the literature on the ethics of human enhancement is that unequal access to future technology will exacerbate existing societal inequalities. The philosopher Daniel Wikler has argued that a futuristic cognitively enhanced majority would be justified in restricting the civil liberties of the unenhanced minority population for their own good in the same way that, mutatis mutandis, the cognitively normal majority are now justified in restricting the civil liberties of those deemed to be cognitively incompetent. Contrary to this argument, the author of this manuscript presents and defends The Liberal Argument to Protect Cognitive 'Normals'. According to this argument, while classical liberalism authorizes the cognitively competent to paternalistically restrict the civil liberties of the cognitively incompetent, classical liberalism does not authorize the cognitively enhanced to paternalistically restrict the civil liberties of the cognitively normal. Two additional arguments are developed in support of The Liberal Argument to Protect Cognitive 'Normals'. The author of this manuscript concludes by suggesting that classical liberalism could be valuable for protecting the civil liberties of disenfranchised groups in a future in which enhancement technology could exacerbate existing societal inequalities.

关于人类增强的伦理文献中一个突出的担忧是,对未来技术的不平等获取将加剧现有的社会不平等。哲学家丹尼尔·威克勒(Daniel Wikler)认为,未来的认知能力增强的多数人有理由为了自己的利益限制未增强的少数人的公民自由,就像经过必要修改后,认知能力正常的多数人现在有理由限制那些被认为认知能力低下的人的公民自由一样。与这一论点相反,本手稿的作者提出并捍卫了保护认知“正常”的自由主义论点。根据这一观点,古典自由主义允许认知能力强的人以家长式的方式限制认知能力不强的人的公民自由,但古典自由主义不允许认知能力强的人以家长式的方式限制认知正常的人的公民自由。为了支持《保护认知“正常”的自由主义论点》,还提出了另外两个论点。这篇手稿的作者最后提出,在未来,增强技术可能加剧现有的社会不平等,古典自由主义对于保护被剥夺公民权的群体的公民自由可能是有价值的。
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引用次数: 0
Is a deaf future an "Open" future? Reconsidering the open future argument against deaf embryo selection. 聋人的未来是“开放”的未来吗?重新考虑反对聋人胚胎选择的开放未来论点。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2023-05-24 DOI: 10.1007/s40592-023-00175-x
Paul A Tubig

One prominent argument against the use of preimplantation genetic diagnosis to select a deaf embryo with the aim of creating a deaf child is that it violates the child's right to an open future. This paper challenges the open future argument against deaf embryo selection, criticizing its major premise that deafness limits a child's opportunity range in ways that compromise their future autonomy. I argue that this premise is not justified and is supported by negative presumptions about deaf embodiments that are suspect and in need of further argumentation. First, available interpretations of the open future concept fail to justify the devaluation of deaf traits as inherently autonomy-diminishing. Second, arguing against deaf embryo selection requires demonstrating that a deaf trait generally constrains opportunity ranges independent of social context. But such analyses neglect important social and relational components of autonomy. For these reasons, merely appealing to the child's right to an open future does not sufficiently support the conclusion that deaf embryo selection is wrong.

反对使用植入前遗传学诊断来选择一个聋哑胚胎以创造一个聋哑儿童的一个突出的论点是,它侵犯了儿童享有开放未来的权利。本文对反对聋人胚胎选择的开放未来观点提出了挑战,批评其主要前提是聋人限制了儿童的机会范围,从而损害了他们未来的自主性。我认为,这个前提是不合理的,并且是由关于聋人的负面假设所支持的,这些假设是可疑的,需要进一步的论证。首先,对开放未来概念的现有解释无法证明失聪特征的贬值是固有的自主性减弱。其次,反对耳聋胚胎选择需要证明耳聋特征通常会限制与社会背景无关的机会范围。但这种分析忽视了自主性的重要社会和关系组成部分。由于这些原因,仅仅呼吁儿童拥有开放未来的权利并不能充分支持失聪胚胎选择是错误的结论。
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引用次数: 0
Health professionals' knowledge about ethical criteria in the allocation of resources in the COVID-19 pandemic. 在COVID-19大流行中,卫生专业人员对资源分配中的道德标准的了解。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2023-05-08 DOI: 10.1007/s40592-023-00174-y
Priscila Kelly da Silva Neto, Marcela Tavares de Souza, Aline Russomano de Gouvêa, Luciana Regina Ferreira da Mata, Bruna Moretti Luchesi, Juliana Dias Reis Pessalacia

Due to the rapid advance of the pandemic caused by COVID-19, several countries perceived that human and material resources would be insufficient to meet the demand of infected patients. The aim of this study is to analyze the knowledge of health professionals working in the pandemic about the application of ethical criteria in decision-making in situations of resource scarcity. This is a cross-sectional, descriptive, and quantitative survey study, conducted from June to December 2020, with health professionals working in the COVID-19 pandemic in Brazil. We applied a questionnaire to assess the professionals' knowledge about ethical criteria in decision-making in the allocation of scarce resources during the pandemic, containing 14 questions and possible score from 0 to 70, which was developed by researchers from documents and protocols validated by organizations from various countries, available in the first months of the pandemic, a sociodemographic characterization questionnaire and a self-assessment questionnaire regarding knowledge about bioethics. A total of 197 health professionals participated in the study, 37.6% of whom were nurses and 22.8% of whom were physicians, working in the Family Health Unit (28.4%) with a degree at the level of specialization (46.2%). Moreover, (9.5%) of nurses, (18.2%) of dental surgeons and (24.4%) of physicians reported that they have no prior knowledge about bioethics. Physicians and hospital workers scored higher on the knowledge assessment questionnaire. The mean score of the participants was 45.4 (SD = 7.2). Investments in training and professional education in the field of health focused on Bioethics are necessary, considering models and ethical theories that help professionals, managers and society to better position themselves in the face of pandemic contexts.

由于COVID-19大流行的迅速发展,一些国家认为人力和物力资源不足以满足感染患者的需求。本研究的目的是分析在资源短缺的情况下,在大流行中工作的卫生专业人员关于在决策中应用道德标准的知识。这是一项横断面、描述性和定量调查研究,于2020年6月至12月对在巴西从事COVID-19大流行工作的卫生专业人员进行了调查。我们采用了一份调查问卷,以评估专业人员对大流行期间稀缺资源分配决策中的道德标准的了解程度,该问卷包含14个问题,得分从0到70不等,由研究人员根据大流行头几个月提供的各国组织验证的文件和方案编制。一份社会人口学特征问卷和一份关于生命伦理学知识的自我评估问卷。共有197名卫生专业人员参加了这项研究,其中37.6%是护士,22.8%是医生,在家庭保健单位工作(28.4%),具有专业学位(46.2%)。此外,(9.5%)的护士、(18.2%)的牙科外科医生和(24.4%)的内科医生报告说他们事先没有生物伦理学知识。医生和医院工作人员在知识评估问卷上得分更高。参与者的平均得分为45.4 (SD = 7.2)。考虑到可以帮助专业人员、管理人员和社会更好地应对大流行病的模式和伦理理论,必须投资于以生物伦理学为重点的卫生领域的培训和专业教育。
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引用次数: 0
Efficiency and the futures market in organs. 机关效率与期货市场。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2023-09-09 DOI: 10.1007/s40592-023-00180-0
Andreas Albertsen

There has been considerable debate over regulated organ markets. Especially current markets, where people sell one of their kidneys while still alive, have received increased attention. Futures markets remain an interesting and under-discussed alternative specification of a market-based solution to the organ shortage. Futures markets pertain to the sale of the right to procure people's organs after they die. There is a wide range of possible specifications of the futures market. There are, however, some major unaddressed efficiency concerns. This article presents this class of concerns and discusses the implication for organ futures markets. It identifies a number of inefficiency sources pertaining to crowding out, bad organs, costs and missed opportunities, family refusals, moral hazard and strength of the provided incentive. However, a complete assessment of futures market requires better knowledge regarding the potential reaction from donors, families and health professionals.

关于受监管的器官市场,人们一直争论不休。特别是目前的市场,即人们在活着的时候出售自己的一个肾脏,受到了越来越多的关注。期货市场仍然是以市场为基础解决器官短缺问题的另一种有趣且讨论不足的方式。期货市场涉及人们死后器官获取权的出售。期货市场有多种可能的规格。然而,还有一些主要的效率问题没有得到解决。本文介绍了这类问题,并讨论了对器官期货市场的影响。文章指出了一些效率低下的原因,包括挤出效应、不良器官、成本和错失良机、家属拒绝、道德风险和所提供激励的强度。然而,对期货市场进行全面评估需要更好地了解捐赠者、家属和保健专业人员的潜在反应。
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引用次数: 0
The final frontier: what is distinctive about the bioethics of space missions? The cases of human enhancement and human reproduction. 最后的前沿:太空任务的生物伦理学有什么独特之处?人类增强和人类繁殖的案例。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-12-01 Epub Date: 2022-10-28 DOI: 10.1007/s40592-022-00164-6
Konrad Szocik, Michael J Reiss

We examine the bioethical issues that arise from long-duration space missions, asking what there is that is distinctive about such issues. We pay particular attention to the possibility that such space missions, certainly if they lead to self-sustaining space settlements, may require human enhancement, and examine the significance of reproduction in space for bioethics. We conclude that while space bioethics raises important issues to do with human survival and reproduction in very hazardous environments, it raises no issues that are distinct from those in terrestrial bioethics. Rather, space bioethics raises extreme versions of bioethical issues that are already found in the military, when working in extreme environments (such as Antarctica), or when living in circumstances (such as in prison) where one's autonomy is severely curtailed.

我们研究了长时间太空任务产生的生物伦理问题,询问这些问题有什么独特之处。我们特别注意这样一种可能性,即这种空间任务——当然如果它们导致自我维持的空间定居的话——可能需要提高人类的能力,并审查在空间中繁殖对生物伦理的意义。我们的结论是,虽然空间生物伦理学提出了与人类在非常危险的环境中生存和繁殖有关的重要问题,但它所提出的问题与地球生物伦理学所提出的问题没有什么不同。相反,太空生物伦理学引发了生物伦理问题的极端版本,这些问题已经在军队中发现,当在极端环境(如南极洲)工作时,或者当生活在严重限制个人自主权的环境(如监狱)时。
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引用次数: 4
Ethical issues in military bioscience. 军事生物科学中的伦理问题。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-06-01 DOI: 10.1007/s40592-023-00176-w
Rain Liivoja, Ned Dobos
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引用次数: 0
Brain to Brain Interfaces (BBIs) in future military operations; blurring the boundaries of individual responsibility. 未来军事行动中的脑对脑接口(BBIs)模糊个人责任的界限。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-06-01 DOI: 10.1007/s40592-022-00171-7
Sahar Latheef

Developments in neurotechnology took a leap forward with the demonstration of the first Brain to Brain Interface (BBI). BBIs enable direct communication between two brains via a Brain Computer Interface (BCI) and bypasses the peripheral nervous system. This discovery promises new possibilities for future battlefield technology. As battlefield technology evolves, it is more likely to place greater demands on future soldiers. Future soldiers are more likely to process large amounts of data derived from an extensive networks of humans and machines. This raises several ethical and philosophical concerns. This paper will look at BBI technology in current stages of research, future BBI applications in the military and how the potential use of BBIs in military operations challenges the way we understand the concept of responsibility. In this paper, I propose that an individual connected to a BBI ought not to be held fully responsible for her actions. The justification for this proposition is based on three key points such as an individual connected to a BBI does not have the ability to act freely, has a diminished sense of self-agency and may not be able to demonstrate authenticity of the thoughts and memories generated when connected to the interface.

随着首个脑对脑接口(BBI)的展示,神经技术的发展实现了飞跃。脑机接口绕过周围神经系统,通过脑机接口(BCI)实现两个大脑之间的直接交流。这一发现为未来的战场技术带来了新的可能性。随着战场技术的发展,它更有可能对未来的士兵提出更高的要求。未来的士兵更有可能处理来自广泛的人类和机器网络的大量数据。这引发了几个伦理和哲学问题。本文将着眼于当前研究阶段的BBI技术,未来BBI在军事中的应用,以及BBI在军事行动中的潜在使用如何挑战我们理解责任概念的方式。在本文中,我建议,与BBI有关的个人不应该对其行为负全部责任。这一主张的理由基于三个关键点,比如连接到BBI的个人没有自由行动的能力,自我代理意识减弱,并且可能无法证明连接到接口时产生的思想和记忆的真实性。
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引用次数: 1
Whose side are you on? Complexities arising from the non-combatant status of military medical personnel. 你站在哪一边?军事医务人员的非战斗人员身份所引起的复杂性。
IF 1.6 Q1 Arts and Humanities Pub Date : 2023-06-01 DOI: 10.1007/s40592-022-00168-2
Michael C Reade

Since the mid-1800s, clergy, doctors, other clinicians, and military personnel who specifically facilitate their work have been designated "non-combatants", protected from being targeted in return for providing care on the basis of clinical need alone. While permitted to use weapons to protect themselves and their patients, they may not attempt to gain military advantage over an adversary. The rationale for these regulations is based on sound arguments aimed both at reducing human suffering, but also the ultimate advantage of the nation-state fielding non-combatant staff. However, this is sometimes not immediately apparent to combatant colleagues. Clinicians in the armed force are also military officers, owing a "dual loyalty" that can create conflict if their non-combatant status is not well understood. Historical examples of doctors breaching their responsibilities include prioritisation of combat capability over the rights of individual soldiers (as occurred when scarce medical resources were allocated to soldiers more likely to return to battle in preference to those most likely to die without them), use of physicians to facilitate prisoner interrogation, medical research or treatment to enhance physical performance at the expense of health, application of Medical Rules of Eligibility according to factors other than clinical need, provision of treatment contingent upon support for military objectives, and use of medical knowledge to enhance weapons. However, not being a combatant party to a conflict does not imply that the non-combatant clinician cannot act in the national interest. Indeed, by adhering to the same universal ethics as their civilian colleagues, military clinicians provide optimal care to their own troops, facilitate freedom of action in host nations, and build positive international relationships during the conflict and in the post-conflict state.

自19世纪中期以来,神职人员、医生、其他临床医生和专门协助他们工作的军事人员被指定为“非战斗人员”,保护他们不成为目标,以回报他们仅根据临床需要提供护理。虽然允许使用武器来保护自己和病人,但他们不得试图获得对对手的军事优势。这些条例的基本原理是基于合理的论点,目的在于减少人类的痛苦,同时也在于民族国家部署非战斗人员的最终利益。然而,这一点有时并不能立即体现在好斗的同事身上。武装部队的临床医生也是军官,由于“双重忠诚”,如果他们的非战斗人员身份没有得到很好的了解,可能会造成冲突。医生违反其责任的历史例子包括:将作战能力置于士兵个人权利之上(例如,将稀缺的医疗资源分配给更有可能重返战场的士兵,而不是那些最有可能在没有医疗的情况下死亡的士兵),利用医生促进对囚犯的审讯、医学研究或治疗,以牺牲健康为代价提高身体表现,根据临床需要以外的因素适用《医疗资格规则》,根据对军事目标的支持提供治疗,以及利用医学知识改进武器。然而,不是冲突的战斗方并不意味着非战斗临床医生不能为国家利益行事。事实上,通过坚持与文职同事相同的普遍伦理,军事临床医生为自己的部队提供最佳护理,促进东道国的行动自由,并在冲突期间和冲突后国家建立积极的国际关系。
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引用次数: 1
期刊
Monash Bioethics Review
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