首页 > 最新文献

Monash Bioethics Review最新文献

英文 中文
A queer feminist posthuman framework for bioethics: on vulnerability, antimicrobial resistance, and justice. 生物伦理学的后人类同性恋女权主义框架:关于脆弱性、抗菌药耐药性和正义。
IF 1.6 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-11-13 DOI: 10.1007/s40592-024-00192-4
Tiia Sudenkaarne

In this paper, I discuss the bioethical principle of justice and the bioethical key concept of vulnerability, in a queer feminist posthuman framework. I situate these contemplations, philosophical by nature, in the context of antimicrobial resistance (AMR), one the most vicious moral problems of our time. Further, I discuss how gender and sexual variance, vulnerability and justice manifest in AMR. I conclude by considering my queer feminist posthuman framework for vulnerability and justice in relation to the notion of antibiotic vulnerabilities, suggesting a lacuna for further AMR research.

在本文中,我将在一个同性恋女权主义者的后人类框架内讨论生物伦理的正义原则和生物伦理的关键概念--脆弱性。我将这些具有哲学性质的思考置于抗生素耐药性(AMR)这一当代最恶毒的道德问题的背景之下。此外,我还讨论了性别和性差异、脆弱性和正义是如何在 AMR 中体现出来的。最后,我将结合抗生素的脆弱性概念,考虑我的关于脆弱性和正义的后人类同性恋女权主义框架,并提出进一步研究 AMR 的空白点。
{"title":"A queer feminist posthuman framework for bioethics: on vulnerability, antimicrobial resistance, and justice.","authors":"Tiia Sudenkaarne","doi":"10.1007/s40592-024-00192-4","DOIUrl":"10.1007/s40592-024-00192-4","url":null,"abstract":"<p><p>In this paper, I discuss the bioethical principle of justice and the bioethical key concept of vulnerability, in a queer feminist posthuman framework. I situate these contemplations, philosophical by nature, in the context of antimicrobial resistance (AMR), one the most vicious moral problems of our time. Further, I discuss how gender and sexual variance, vulnerability and justice manifest in AMR. I conclude by considering my queer feminist posthuman framework for vulnerability and justice in relation to the notion of antibiotic vulnerabilities, suggesting a lacuna for further AMR research.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"72-88"},"PeriodicalIF":1.6,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11850565/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Zero-covid advocacy during the COVID-19 pandemic: a case study of views on Twitter/X. COVID-19 大流行期间的零病毒宣传:Twitter/X 上观点的案例研究。
IF 1.6 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-09-03 DOI: 10.1007/s40592-024-00205-2
Kasper P Kepp, Kevin Bardosh, Tijl De Bie, Louise Emilsson, Justin Greaves, Tea Lallukka, Taulant Muka, J Christian Rangel, Niclas Sandström, Michaéla C Schippers, Jonas Schmidt-Chanasit, Tracy Vaillancourt

During the COVID-19 pandemic, many advocacy groups and individuals criticized governments on social media for doing either too much or too little to mitigate the pandemic. In this article, we review advocacy for COVID-19 elimination or "zero-covid" on the social media platform X (Twitter). We present a thematic analysis of tweets by 20 influential co-signatories of the World Health Network letter on ten themes, covering six topics of science and mitigation (zero-covid, epidemiological data on variants, long-term post-acute sequelae (Long COVID), vaccines, schools and children, views on monkeypox/Mpox) and four advocacy methods (personal advice and promoting remedies, use of anecdotes, criticism of other scientists, and of authorities). The advocacy, although timely and informative, often appealed to emotions and values using anecdotes and strong criticism of authorities and other scientists. Many tweets received hundreds or thousands of likes. Risks were emphasized about children's vulnerability, Long COVID, variant severity, and Mpox, and via comparisons with human immunodeficiency viruses (HIV). Far-reaching policies and promotion of remedies were advocated without systematic evidence review, or sometimes, core field expertise. We identified potential conflicts of interest connected to private companies. Our study documents a need for public health debates to be less polarizing and judgmental, and more factual. In order to protect public trust in science during a crisis, we suggest the development of mechanisms to ensure ethical guidelines for engagement in "science-based" advocacy, and consideration of cost-benefit analysis of recommendations for public health decision-making.

在 COVID-19 大流行期间,许多倡导团体和个人在社交媒体上批评政府在缓解疫情方面做得太多或太少。在本文中,我们回顾了社交媒体平台 X(Twitter)上关于消除 COVID-19 或 "零 COVID "的倡议。我们对世界卫生网络信件中 20 个有影响力的共同署名者的推文进行了专题分析,这些推文涉及 10 个主题,涵盖 6 个科学和缓解主题(零感染、变异体的流行病学数据、长期急性后遗症(Long COVID)、疫苗、学校和儿童、对猴痘/天花的看法)和 4 种宣传方法(个人建议和推广补救措施、使用轶事、批评其他科学家和权威人士)。宣传虽然及时且信息量大,但往往利用趣闻轶事和对权威人士和其他科学家的强烈批评来唤起人们的情感和价值观。许多推文获得了数百或数千个赞。通过与人类免疫缺陷病毒(HIV)的比较,强调了儿童易感性、长 COVID、变异严重性和 Mpox 的风险。在没有系统性证据审查,有时甚至没有核心领域专业知识的情况下,就鼓吹影响深远的政策和推广补救措施。我们发现了与私营公司有关的潜在利益冲突。我们的研究表明,公共卫生辩论需要减少两极分化和评判性,更注重事实。为了在危机期间保护公众对科学的信任,我们建议建立相关机制,确保参与 "以科学为基础 "的宣传活动符合道德准则,并考虑对公共卫生决策建议进行成本效益分析。
{"title":"Zero-covid advocacy during the COVID-19 pandemic: a case study of views on Twitter/X.","authors":"Kasper P Kepp, Kevin Bardosh, Tijl De Bie, Louise Emilsson, Justin Greaves, Tea Lallukka, Taulant Muka, J Christian Rangel, Niclas Sandström, Michaéla C Schippers, Jonas Schmidt-Chanasit, Tracy Vaillancourt","doi":"10.1007/s40592-024-00205-2","DOIUrl":"10.1007/s40592-024-00205-2","url":null,"abstract":"<p><p>During the COVID-19 pandemic, many advocacy groups and individuals criticized governments on social media for doing either too much or too little to mitigate the pandemic. In this article, we review advocacy for COVID-19 elimination or \"zero-covid\" on the social media platform X (Twitter). We present a thematic analysis of tweets by 20 influential co-signatories of the World Health Network letter on ten themes, covering six topics of science and mitigation (zero-covid, epidemiological data on variants, long-term post-acute sequelae (Long COVID), vaccines, schools and children, views on monkeypox/Mpox) and four advocacy methods (personal advice and promoting remedies, use of anecdotes, criticism of other scientists, and of authorities). The advocacy, although timely and informative, often appealed to emotions and values using anecdotes and strong criticism of authorities and other scientists. Many tweets received hundreds or thousands of likes. Risks were emphasized about children's vulnerability, Long COVID, variant severity, and Mpox, and via comparisons with human immunodeficiency viruses (HIV). Far-reaching policies and promotion of remedies were advocated without systematic evidence review, or sometimes, core field expertise. We identified potential conflicts of interest connected to private companies. Our study documents a need for public health debates to be less polarizing and judgmental, and more factual. In order to protect public trust in science during a crisis, we suggest the development of mechanisms to ensure ethical guidelines for engagement in \"science-based\" advocacy, and consideration of cost-benefit analysis of recommendations for public health decision-making.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"169-199"},"PeriodicalIF":1.6,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142120808","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Distributive justice and value trade-offs in antibiotic use in aged care settings. 老年护理机构抗生素使用中的分配公正和价值权衡。
IF 1.6 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-07-11 DOI: 10.1007/s40592-024-00191-5
Jane Williams, Sittichoke Chawraingern, Chris Degeling

Residential aged care facilities (RACF) are sites of high antibiotic use in Australia. Misuse of antimicrobial drugs in RACF contributes to antimicrobial resistance (AMR) burdens that accrue to individuals and the wider public, now and in the future. Antimicrobial stewardship (AMS) practices in RACF, e.g. requiring conformation of infection, are designed to minimise inappropriate use of antibiotics. We conducted dialogue groups with 46 participants with a parent receiving aged care to better understand families' perspectives on antibiotics and care in RACF. Participants grappled with value trade offs in thinking about their own parents' care, juggling imagined population and future harms with known short term comfort of individuals and prioritising the latter. Distributive justice in AMR relies on collective moral responsibility and action for the benefit of future generations and unknown others. In RACF, AMS requires value trade-offs and compromise on antimicrobial use in an environment that is heavily reliant on antimicrobial drugs to perform caring functions. In the context of aged care, AMS is a technical solution to a deeply relational and socio-structural problem and there is a risk that carers (workers, families) are morally burdened by system failures that are not addressed in AMS solutions.

养老院(RACF)是澳大利亚抗生素使用率较高的场所。在养老院中滥用抗菌药物会导致抗菌药物耐药性(AMR),给个人和广大公众带来现在和未来的负担。RACF 中的抗菌药物管理(AMS)措施(如要求提供感染信息)旨在最大限度地减少抗生素的不当使用。我们与 46 位父母正在接受老年护理的参与者进行了对话,以更好地了解家庭对抗生素和护理中心护理的看法。参与者在考虑自己父母的护理问题时努力进行价值权衡,在想象的人口和未来危害与已知的个人短期舒适度之间进行权衡,并优先考虑后者。AMR 中的分配正义依赖于集体的道德责任和行动,以造福子孙后代和未知的其他人。在康复和护理设施中,在严重依赖抗菌药物来履行护理功能的环境中,抗菌药物管理需要在抗菌药物的使用上进行价值权衡和妥协。在老年护理方面,抗菌药物管理系统是对一个深层关系和社会结构问题的技术解决方案,护理人员(工作人员、家庭)有可能因抗菌药物管理系统解决方案未解决的系统故障而背上道德负担。
{"title":"Distributive justice and value trade-offs in antibiotic use in aged care settings.","authors":"Jane Williams, Sittichoke Chawraingern, Chris Degeling","doi":"10.1007/s40592-024-00191-5","DOIUrl":"10.1007/s40592-024-00191-5","url":null,"abstract":"<p><p>Residential aged care facilities (RACF) are sites of high antibiotic use in Australia. Misuse of antimicrobial drugs in RACF contributes to antimicrobial resistance (AMR) burdens that accrue to individuals and the wider public, now and in the future. Antimicrobial stewardship (AMS) practices in RACF, e.g. requiring conformation of infection, are designed to minimise inappropriate use of antibiotics. We conducted dialogue groups with 46 participants with a parent receiving aged care to better understand families' perspectives on antibiotics and care in RACF. Participants grappled with value trade offs in thinking about their own parents' care, juggling imagined population and future harms with known short term comfort of individuals and prioritising the latter. Distributive justice in AMR relies on collective moral responsibility and action for the benefit of future generations and unknown others. In RACF, AMS requires value trade-offs and compromise on antimicrobial use in an environment that is heavily reliant on antimicrobial drugs to perform caring functions. In the context of aged care, AMS is a technical solution to a deeply relational and socio-structural problem and there is a risk that carers (workers, families) are morally burdened by system failures that are not addressed in AMS solutions.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"41-50"},"PeriodicalIF":1.6,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11850501/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141581084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Book review: ethics of artificial intelligence. 书评:人工智能伦理。
IF 1.6 Q2 ETHICS Pub Date : 2024-10-17 DOI: 10.1007/s40592-024-00219-w
Mohammad Hosseini

The book Ethics of Artificial Intelligence offers a solid exploration of arguments and real-world examples that enrich the ongoing debate surrounding AI ethics. With 12 insightful chapters, the book delves into pressing ethical issues, such as the enhancement of human abilities, the nature of consciousness, and questions of responsibility and accountability in various contexts where AI technology is used. This work connects technology ethics with broader philosophical discussions and provides valuable perspectives on the societal implications of AI. Engaging and accessible, it can serve as an essential resource for scholars, technology-enthusiasts, policymakers, and anyone with an interest in the transformative potential of AI and its ethical dimensions.

人工智能伦理学》一书对各种论点和现实世界中的实例进行了扎实的探讨,丰富了当前围绕人工智能伦理学展开的讨论。该书通过 12 个富有洞察力的章节,深入探讨了紧迫的伦理问题,如人类能力的增强、意识的本质,以及在使用人工智能技术的各种情况下的责任和问责问题。这部著作将技术伦理学与更广泛的哲学讨论联系起来,为人工智能的社会影响提供了宝贵的视角。本书引人入胜、通俗易懂,是学者、技术爱好者、政策制定者以及任何对人工智能的变革潜力及其伦理层面感兴趣的人的重要资源。
{"title":"Book review: ethics of artificial intelligence.","authors":"Mohammad Hosseini","doi":"10.1007/s40592-024-00219-w","DOIUrl":"https://doi.org/10.1007/s40592-024-00219-w","url":null,"abstract":"<p><p>The book Ethics of Artificial Intelligence offers a solid exploration of arguments and real-world examples that enrich the ongoing debate surrounding AI ethics. With 12 insightful chapters, the book delves into pressing ethical issues, such as the enhancement of human abilities, the nature of consciousness, and questions of responsibility and accountability in various contexts where AI technology is used. This work connects technology ethics with broader philosophical discussions and provides valuable perspectives on the societal implications of AI. Engaging and accessible, it can serve as an essential resource for scholars, technology-enthusiasts, policymakers, and anyone with an interest in the transformative potential of AI and its ethical dimensions.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Where do families turn? Ethical dilemmas in the care of chronically critically Ill children. 家庭该何去何从?慢性重症儿童护理中的伦理困境。
IF 1.6 Q2 ETHICS Pub Date : 2024-07-08 DOI: 10.1007/s40592-024-00201-6
Johnson Pang, Lora Batson, Kathryn Detwiler, Mattea E Miller, Dörte Thorndike, Renee D Boss, Miriam C Shapiro

Advancements in early diagnosis and novel treatments for children with complex and chronic needs have improved their chances of survival. But many survive with complex medical needs and ongoing medical management in the setting of prognostic uncertainty. Their medical care relies more and more on preference-sensitive decisions, requiring medical team and family engagement in ethically challenging situations. Many families are unprepared as they face these ethical challenges and struggle to access relevant ethical resources. In this paper, Timmy's narrative, situated in the context of what is known about ethical challenges in the care of children with chronic critical illness (CCI), serves as a case study of the gap in available ethical resources to guide families in their approach to difficult decision making for children with significant medical complexity and CCI. Our author group, inclusive of parents of children with complex medical needs and medical professionals, identifies domains of ethical challenges facing families of children with CCI and we highlight the development of family/caregiver-oriented ethics resources as an essential expansion of pediatric bioethics.

针对有复杂和慢性需求的儿童的早期诊断和新型治疗方法的进步提高了他们的生存机会。但是,许多患儿在预后不确定的情况下,带着复杂的医疗需求和持续的医疗管理存活下来。他们的医疗护理越来越依赖于对偏好敏感的决定,这就要求医疗团队和家庭参与到具有伦理挑战性的情况中。许多家庭在面对这些伦理挑战时毫无准备,并且难以获得相关的伦理资源。在本文中,Timmy 的叙述以人们对慢性危重症(CCI)患儿护理过程中的伦理挑战的了解为背景,作为一个案例研究,说明在可用的伦理资源方面存在的差距,以指导家庭如何为患有严重医疗复杂性和慢性危重症的患儿做出艰难的决策。我们的作者群包括有复杂医疗需求儿童的家长和医疗专业人士,他们确定了 CCI 儿童家庭面临的伦理挑战领域,我们强调开发以家庭/护理人员为导向的伦理资源是儿科生命伦理学的重要扩展。
{"title":"Where do families turn? Ethical dilemmas in the care of chronically critically Ill children.","authors":"Johnson Pang, Lora Batson, Kathryn Detwiler, Mattea E Miller, Dörte Thorndike, Renee D Boss, Miriam C Shapiro","doi":"10.1007/s40592-024-00201-6","DOIUrl":"https://doi.org/10.1007/s40592-024-00201-6","url":null,"abstract":"<p><p>Advancements in early diagnosis and novel treatments for children with complex and chronic needs have improved their chances of survival. But many survive with complex medical needs and ongoing medical management in the setting of prognostic uncertainty. Their medical care relies more and more on preference-sensitive decisions, requiring medical team and family engagement in ethically challenging situations. Many families are unprepared as they face these ethical challenges and struggle to access relevant ethical resources. In this paper, Timmy's narrative, situated in the context of what is known about ethical challenges in the care of children with chronic critical illness (CCI), serves as a case study of the gap in available ethical resources to guide families in their approach to difficult decision making for children with significant medical complexity and CCI. Our author group, inclusive of parents of children with complex medical needs and medical professionals, identifies domains of ethical challenges facing families of children with CCI and we highlight the development of family/caregiver-oriented ethics resources as an essential expansion of pediatric bioethics.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141555654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
COVID-19 vaccines: history of the pandemic's great scientific success and flawed policy implementation. COVID-19 疫苗:大流行病的巨大科学成功与政策实施缺陷的历史。
IF 1.6 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-03-09 DOI: 10.1007/s40592-024-00189-z
Vinay Prasad, Alyson Haslam

The COVID-19 vaccine has been a miraculous, life-saving advance, offering staggering efficacy in adults, and was developed with astonishing speed. The time from sequencing the virus to authorizing the first COVID-19 vaccine was so brisk even the optimists appear close-minded. Yet, simultaneously, United States' COVID-19 vaccination roll-out and related policies have contained missed opportunities, errors, run counter to evidence-based medicine, and revealed limitations in the judgment of public policymakers. Misplaced utilization, contradictory messaging, and poor deployment in those who would benefit most-the elderly and high-risk-alongside unrealistic messaging, exaggeration, and coercion in those who benefit least-young, healthy Americans-is at the heart. It is important to consider the history of COVID-19 vaccines to identify where we succeeded and where we failed, and the effects that these errors may have more broadly on vaccination hesitancy and routine childhood immunization programs in the decades to come.

COVID-19 疫苗是一项拯救生命的奇迹,它对成人的疗效惊人,而且研发速度惊人。从病毒测序到授权生产第一支 COVID-19 疫苗的时间如此之快,甚至连乐观主义者都显得心胸狭窄。然而,与此同时,美国 COVID-19 疫苗的推广和相关政策却错失良机,出现失误,与循证医学背道而驰,并暴露出公共政策制定者判断力的局限性。其核心问题是,对受益最大的人群--老年人和高危人群--使用不当、信息矛盾、部署不当,而对受益最小的人群--年轻、健康的美国人--则采取了不切实际的信息传递、夸大宣传和强制措施。回顾 COVID-19 疫苗的历史,找出我们成功的地方和失败的地方,以及这些错误在未来几十年中可能对疫苗接种犹豫不决和常规儿童免疫计划产生的更广泛的影响,这一点非常重要。
{"title":"COVID-19 vaccines: history of the pandemic's great scientific success and flawed policy implementation.","authors":"Vinay Prasad, Alyson Haslam","doi":"10.1007/s40592-024-00189-z","DOIUrl":"10.1007/s40592-024-00189-z","url":null,"abstract":"<p><p>The COVID-19 vaccine has been a miraculous, life-saving advance, offering staggering efficacy in adults, and was developed with astonishing speed. The time from sequencing the virus to authorizing the first COVID-19 vaccine was so brisk even the optimists appear close-minded. Yet, simultaneously, United States' COVID-19 vaccination roll-out and related policies have contained missed opportunities, errors, run counter to evidence-based medicine, and revealed limitations in the judgment of public policymakers. Misplaced utilization, contradictory messaging, and poor deployment in those who would benefit most-the elderly and high-risk-alongside unrealistic messaging, exaggeration, and coercion in those who benefit least-young, healthy Americans-is at the heart. It is important to consider the history of COVID-19 vaccines to identify where we succeeded and where we failed, and the effects that these errors may have more broadly on vaccination hesitancy and routine childhood immunization programs in the decades to come.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"28-54"},"PeriodicalIF":1.6,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11368972/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140066044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assisted dying in Swedish healthcare: a qualitative analysis of physicians' reasoning about physician-assisted suicide. 瑞典医疗保健中的协助死亡:对医生协助自杀推理的定性分析。
IF 1.6 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-07-26 DOI: 10.1007/s40592-024-00202-5
Anna Lindblad, Niklas Juth, Ingemar Engström, Mikael Sandlund, Niels Lynøe

To explore Swedish physicians' arguments and values for and against physician-assisted suicide (PAS) extracted from the free-text comments in a postal survey. A random selection of approximately 240 physicians from each of the following specialties: general practice, geriatrics, internal medicine, oncology, surgery and psychiatry. All 123 palliative care physicians in Sweden. A qualitative content analysis of free-text comments in a postal questionnaire commissioned by the Swedish Medical Society in collaboration with the Karolinska Institute in Stockholm. The total response rate was 59.2%. Of the 933 respondents, 1107 comments were provided. The free-text comments entailed both normative and factual arguments for and against PAS. The analysis resulted in two main categories: (1) "Safe implementation of PAS is unachievable" (with subcategories "Criteria of PAS difficult to fulfil" and "PAS puts societal norms and values at risk") and (2) "The role of PAS in healthcare" (with subcategories "No medical need for PAS", "PAS is not a task for physicians", "No ethical difference to other end-of-life decisions" and "PAS is in the patient's best interest"). The respondents brought up well-known arguments from academic and public debate on the subject. Comments from physicians against PAS were more often emotionally charged and used devices like dysphemisms and slippery-slope arguments.

从一项邮寄调查的自由文本评论中提取瑞典医生支持和反对医生协助自杀(PAS)的论点和价值观。从以下各专科随机抽取约 240 名医生:全科、老年病科、内科、肿瘤科、外科和精神病科。瑞典所有 123 名姑息关怀医生。瑞典医学会与斯德哥尔摩卡罗林斯卡研究所合作,对邮寄问卷中的自由文本评论进行了定性内容分析。总回复率为 59.2%。在 933 位受访者中,有 1107 条评论。自由文本评论包括支持和反对 PAS 的规范性和事实性论据。分析结果分为两大类:(1) "无法安全实施临终关怀"(子类为 "临终关怀的标准难以实现 "和 "临终关怀使社会规范和价值观面临风险")和 (2) "临终关怀在医疗保健中的作用"(子类为 "临终关怀没有医疗需求"、"临终关怀不是医生的任务"、"与其他临终决定在伦理上没有区别 "和 "临终关怀符合患者的最佳利益")。受访者提出了学术界和公众辩论中众所周知的论点。医生反对临终关怀的评论则更多地带有情绪色彩,并使用了语病和滑坡论证等手段。
{"title":"Assisted dying in Swedish healthcare: a qualitative analysis of physicians' reasoning about physician-assisted suicide.","authors":"Anna Lindblad, Niklas Juth, Ingemar Engström, Mikael Sandlund, Niels Lynøe","doi":"10.1007/s40592-024-00202-5","DOIUrl":"10.1007/s40592-024-00202-5","url":null,"abstract":"<p><p>To explore Swedish physicians' arguments and values for and against physician-assisted suicide (PAS) extracted from the free-text comments in a postal survey. A random selection of approximately 240 physicians from each of the following specialties: general practice, geriatrics, internal medicine, oncology, surgery and psychiatry. All 123 palliative care physicians in Sweden. A qualitative content analysis of free-text comments in a postal questionnaire commissioned by the Swedish Medical Society in collaboration with the Karolinska Institute in Stockholm. The total response rate was 59.2%. Of the 933 respondents, 1107 comments were provided. The free-text comments entailed both normative and factual arguments for and against PAS. The analysis resulted in two main categories: (1) \"Safe implementation of PAS is unachievable\" (with subcategories \"Criteria of PAS difficult to fulfil\" and \"PAS puts societal norms and values at risk\") and (2) \"The role of PAS in healthcare\" (with subcategories \"No medical need for PAS\", \"PAS is not a task for physicians\", \"No ethical difference to other end-of-life decisions\" and \"PAS is in the patient's best interest\"). The respondents brought up well-known arguments from academic and public debate on the subject. Comments from physicians against PAS were more often emotionally charged and used devices like dysphemisms and slippery-slope arguments.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"99-114"},"PeriodicalIF":1.6,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11369034/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141767618","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The foundations of informed consent and bodily self-sovereignty: a positive suggestion. 知情同意和身体自我主权的基础:一个积极的建议。
IF 1.6 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-08-22 DOI: 10.1007/s40592-024-00203-4
Joanna Smolenski

In medical care, the obtaining of informed consent is taken to be required prior to treatment in order to ensure that patients sufficiently understand the potential risks and benefits of a given medical procedure. In this paper, I begin by looking at the history of informed consent and consider how the norms and laws in medicine have evolved away from benevolent paternalism and toward a blanket obligation to obtain informed consent. In so doing, I consider what values might be taken to underpin such a requirement. After dismissing some unsatisfactory answers, I offer a positive view as to the constellation of values I think informed consent ought to be protecting. I call these bodily self-sovereignty, which I take to be a coupling of two groups of values: autonomy and non-domination on the one hand, and self-ownership and personal integrity on the other. Given the connection between autonomy and responsibility, autonomy is both required for the act of consenting, and respected by allowing it. And, because of our special and inescapable relationship to our own bodies, this authorization is particularly important when our bodies are involved. So, I suggest that informed consent protects our self-sovereignty over our own bodies.

在医疗保健中,为了确保患者充分了解特定医疗程序的潜在风险和益处,在治疗前必须获得知情同意。在本文中,我首先回顾了知情同意的历史,并探讨了医学规范和法律是如何从仁慈的家长式管理演变为全面的知情同意义务的。在此过程中,我还考虑了支持这一要求的价值观是什么。在否定了一些不尽人意的答案之后,我提出了一个积极的观点,即我认为知情同意应当保护的价值观。我把这些价值称为身体的自我主权,我认为它是两组价值的结合:一方面是自主权和非统治权,另一方面是自我所有权和人格完整。鉴于自主与责任之间的联系,自主既是同意行为的必要条件,也是允许同意行为的尊重条件。而且,由于我们与自己的身体有着不可分割的特殊关系,当涉及到我们的身体时,这种授权就显得尤为重要。因此,我认为知情同意保护了我们对自己身体的自我主权。
{"title":"The foundations of informed consent and bodily self-sovereignty: a positive suggestion.","authors":"Joanna Smolenski","doi":"10.1007/s40592-024-00203-4","DOIUrl":"10.1007/s40592-024-00203-4","url":null,"abstract":"<p><p>In medical care, the obtaining of informed consent is taken to be required prior to treatment in order to ensure that patients sufficiently understand the potential risks and benefits of a given medical procedure. In this paper, I begin by looking at the history of informed consent and consider how the norms and laws in medicine have evolved away from benevolent paternalism and toward a blanket obligation to obtain informed consent. In so doing, I consider what values might be taken to underpin such a requirement. After dismissing some unsatisfactory answers, I offer a positive view as to the constellation of values I think informed consent ought to be protecting. I call these bodily self-sovereignty, which I take to be a coupling of two groups of values: autonomy and non-domination on the one hand, and self-ownership and personal integrity on the other. Given the connection between autonomy and responsibility, autonomy is both required for the act of consenting, and respected by allowing it. And, because of our special and inescapable relationship to our own bodies, this authorization is particularly important when our bodies are involved. So, I suggest that informed consent protects our self-sovereignty over our own bodies.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"115-136"},"PeriodicalIF":1.6,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The mutuality account of parenthood: a subjective approach to parent-child relationships. 亲子关系的相互性:亲子关系的主观方法。
IF 1.6 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-07-11 DOI: 10.1007/s40592-024-00198-y
Isabella Holmes, Rosalind McDougall

Stimulated by development of reproductive technologies, many current bioethical accounts of parenthood focus on defining parenthood at or around birth. They tend to exclude from their scope some parent-child relationships that develop later in a child's life. In reality, a parent-child relationship can emerge or dissolve over time: the parents of person A as an adolescent or adult may be different to her parents when she is a young child. To address this aspect of parenthood, we propose a new 'mutuality account' of parenthood, grounded in the concept of ontological security. We argue that in most cases a parent-child relationship exists if there is mutual ontological security between the parent and child. We suggest that this mutual ontological security is constituted and sustained by shared frameworks of reality and cohesive personal narratives. Our intention is to broaden the conceptual understanding of parenthood, to include parent-child relationships that do not fall neatly into current bioethical accounts, and to argue against the notion that objective physiological, causal, or social ties are necessary to 'make' a parent.

在生殖技术发展的推动下,目前许多关于父母身份的生物伦理论述都侧重于界定出生时或出生前后的父母身份。它们往往将儿童生命后期发展起来的一些亲子关系排除在外。在现实生活中,亲子关系会随着时间的推移而出现或消解:青少年或成年人 A 的父母可能不同于她年幼时的父母。针对亲子关系的这一方面,我们提出了一种新的亲子关系 "相互性解释",其基础是本体安全概念。我们认为,在大多数情况下,如果父母与子女之间存在本体论上的相互安全感,亲子关系就会存在。我们认为,这种相互的本体论安全感是由共同的现实框架和有凝聚力的个人叙事构成和维持的。我们的目的是拓宽对亲子关系的概念性理解,将那些不完全属于当前生命伦理学范畴的亲子关系纳入其中,并反对客观的生理、因果或社会关系是 "造就 "父母的必要条件这一观点。
{"title":"The mutuality account of parenthood: a subjective approach to parent-child relationships.","authors":"Isabella Holmes, Rosalind McDougall","doi":"10.1007/s40592-024-00198-y","DOIUrl":"10.1007/s40592-024-00198-y","url":null,"abstract":"<p><p>Stimulated by development of reproductive technologies, many current bioethical accounts of parenthood focus on defining parenthood at or around birth. They tend to exclude from their scope some parent-child relationships that develop later in a child's life. In reality, a parent-child relationship can emerge or dissolve over time: the parents of person A as an adolescent or adult may be different to her parents when she is a young child. To address this aspect of parenthood, we propose a new 'mutuality account' of parenthood, grounded in the concept of ontological security. We argue that in most cases a parent-child relationship exists if there is mutual ontological security between the parent and child. We suggest that this mutual ontological security is constituted and sustained by shared frameworks of reality and cohesive personal narratives. Our intention is to broaden the conceptual understanding of parenthood, to include parent-child relationships that do not fall neatly into current bioethical accounts, and to argue against the notion that objective physiological, causal, or social ties are necessary to 'make' a parent.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"87-98"},"PeriodicalIF":1.6,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11368976/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141581086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Biosafety, biosecurity, and bioethics. 生物安全、生物安保和生物伦理。
IF 1.6 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-07-30 DOI: 10.1007/s40592-024-00204-3
David B Resnik

The COVID-19 pandemic has highlighted the importance of biosafety in the biomedical sciences. While it is often assumed that biosafety is a purely technical matter that has little to do with philosophy or the humanities, biosafety raises important ethical issues that have not been adequately examined in the scientific or bioethics literature. This article reviews some pivotal events in the history of biosafety and biosecurity and explores three different biosafety topics that generate significant ethical concerns, i.e., risk assessment, risk management, and risk distribution. The article also discusses the role of democratic governance in the oversight of biosafety and offers some suggestions for incorporating bioethics into biosafety practice, education, and policy.

COVID-19 大流行凸显了生物医学科学中生物安全的重要性。虽然人们通常认为生物安全是一个纯粹的技术问题,与哲学或人文学科关系不大,但生物安全提出了一些重要的伦理问题,而这些问题在科学或生物伦理学文献中尚未得到充分研究。本文回顾了生物安全和生物安保历史上的一些关键事件,探讨了引发重大伦理问题的三个不同的生物安全主题,即风险评估、风险管理和风险分配。文章还讨论了民主治理在生物安全监督中的作用,并就将生物伦理纳入生物安全实践、教育和政策提出了一些建议。
{"title":"Biosafety, biosecurity, and bioethics.","authors":"David B Resnik","doi":"10.1007/s40592-024-00204-3","DOIUrl":"10.1007/s40592-024-00204-3","url":null,"abstract":"<p><p>The COVID-19 pandemic has highlighted the importance of biosafety in the biomedical sciences. While it is often assumed that biosafety is a purely technical matter that has little to do with philosophy or the humanities, biosafety raises important ethical issues that have not been adequately examined in the scientific or bioethics literature. This article reviews some pivotal events in the history of biosafety and biosecurity and explores three different biosafety topics that generate significant ethical concerns, i.e., risk assessment, risk management, and risk distribution. The article also discusses the role of democratic governance in the oversight of biosafety and offers some suggestions for incorporating bioethics into biosafety practice, education, and policy.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"137-167"},"PeriodicalIF":1.6,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11368980/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141793695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Monash Bioethics Review
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1