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Why catastrophic events, human enhancement and progress in robotics may limit individual health rights. 为什么灾难性事件、人类的增强和机器人技术的进步可能限制个人的健康权利。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-12-01 Epub Date: 2022-01-23 DOI: 10.1007/s40592-021-00150-4
Konrad Szocik

Despite the fact that people usually believe that individual health rights have an intrinsic value, they have, in fact, only extrinsic value. They are context dependent. While in normal conditions the current societies try to guarantee individual health rights, the challenge arises in emergency situations. Ones of them are pandemics including current covid-19 pandemic. Emergency situations challenge individual health rights due to insufficient medical resources and non-random criteria of selection of patients. However, there are some reasons to assume that societal and technological processes in the near future will threaten permanently individual health rights in normal conditions. Such processes include progress in commonly available human enhancement technologies, and progress in robotics and automation. In this paper I show how individual health rights will be challenged in both scenarios including catastrophic events and future technological progress. In both cases, the idea of assisted dying is discussed as possibly the unique healthcare principle available for people whose individual health rights will be limited or canceled due to catastrophes or technological and financial exclusion. The special case of future space missions is also discussed as an example of an extreme environment affecting the way moral norms are viewed in health care ethics.

尽管人们通常认为个人健康权具有内在价值,但实际上它们只有外在价值。它们依赖于上下文。虽然当前社会在正常情况下努力保障个人健康权,但在紧急情况下出现了挑战。其中之一是大流行,包括当前的covid-19大流行。由于医疗资源不足和选择病人的标准非随机,紧急情况对个人健康权构成挑战。然而,有一些理由认为,在不久的将来,社会和技术进程将永久威胁到正常条件下的个人健康权。这些过程包括普遍可用的人类增强技术的进步,以及机器人和自动化的进步。在本文中,我展示了个人健康权利将如何在两种情况下受到挑战,包括灾难性事件和未来的技术进步。在这两种情况下,辅助死亡的想法都被讨论为可能是个人健康权利因灾难或技术和经济排斥而受到限制或取消的人可用的独特保健原则。还讨论了未来空间任务的特殊情况,作为极端环境影响在保健伦理中看待道德规范方式的一个例子。
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引用次数: 0
Russian orthodox church on bioethical debates: the case of ART. 俄罗斯东正教关于生命伦理的辩论:ART的案例。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-12-01 DOI: 10.1007/s40592-022-00154-8
Roman Tarabrin

This article assesses the role of an important Russian public institution, the Russian Orthodox Church (ROC), in shaping the religious discourse on bioethics in Russia. An important step in this process was the approval of 'The Basis of the Social Concept of the Russian Orthodox Church' (2000), one chapter of which is devoted to bioethics. However, certain inadequacies in the creation of this document resulted in the absence of a clear position of the Russian Orthodox Church on some end-of-life issues, reproductive technologies, embryo stem cells, and other topics.Using the example of reproductive dilemmas, the author researches how the ROC clarifies its teaching on issues relating to bioethics. In the 2010s the ROC introduced a new method of taking into account the views of believers and the articulation of the church's position. This article examines the extensive public discussion of a new document, 'Ethical issues Associated with In Vitro Fertilization'.

本文评估了一个重要的俄罗斯公共机构,俄罗斯东正教会(ROC),在塑造俄罗斯的生命伦理宗教话语的作用。这一过程中的一个重要步骤是批准了“俄罗斯东正教社会概念基础”(2000年),其中一章专门讨论了生命伦理学。然而,在这份文件的创建过程中,某些不足之处导致俄罗斯东正教会在一些生命终结问题、生殖技术、胚胎干细胞和其他主题上缺乏明确的立场。以生殖困境为例,探讨中华民国如何澄清其生命伦理问题的教学。在2010年代,中华民国引入了一种新的方法来考虑信徒的观点和教会立场的表达。本文探讨了一份新文件的广泛公开讨论,“与体外受精相关的伦理问题”。
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引用次数: 1
Risk, benefit, and social value in Covid-19 human challenge studies: pandemic decision making in historical context. 新冠肺炎人类挑战研究中的风险、收益和社会价值:历史背景下的大流行决策
IF 1.6 Q2 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-06-15 DOI: 10.1007/s40592-022-00156-6
Mabel Rosenheck

During the Covid-19 pandemic, ethicists and researchers proposed human challenge studies as a way to speed development of a vaccine that could prevent disease and end the global public health crisis. The risks to healthy volunteers of being deliberately infected with a deadly and novel pathogen were not low, but the benefits could have been immense. This essay is a history of the three major efforts to set up a challenge model and run challenge studies in 2020 and 2021. The pharmaceutical company Johnson and Johnson, the National Institutes of Health in the United States, and a private-public partnership of industry, university, and government partners in Britain all undertook preparations. The United Kingdom's consortium began their Human Challenge Programme in March of 2021.Beyond documenting each effort, the essay puts these scientific and ethical debates in dialogue with the social, epidemiological, and institutional conditions of the pandemic as well as the commercial, intellectual, and political systems in which medical research and Covid-19 challenge studies operated. It shows how different institutions understood risk, benefit, and social value depending on their specific contexts. Ultimately the example of Covid-19 challenge studies highlights the constructedness of such assessments and reveals the utility of deconstructing them retrospectively so as to better understand the interplay of medical research and research ethics with larger social systems and historical contexts.

在 Covid-19 大流行期间,伦理学家和研究人员提议进行人体挑战研究,以此加快疫苗的研发,从而预防疾病,结束全球公共卫生危机。蓄意感染一种致命的新型病原体对健康志愿者造成的风险并不低,但带来的益处却可能是巨大的。本文记录了为建立挑战模型并在 2020 年和 2021 年开展挑战研究而做出的三大努力。强生制药公司、美国国立卫生研究院和英国的一个由企业、大学和政府合作伙伴组成的公私合作组织都进行了准备工作。除了记录每项工作外,这篇文章还将这些科学和伦理辩论与大流行病的社会、流行病学和机构条件以及医学研究和 Covid-19 挑战研究运作的商业、知识和政治体系进行了对话。它展示了不同机构如何根据其具体情况理解风险、利益和社会价值。最终,Covid-19 挑战研究的例子凸显了此类评估的建构性,并揭示了回溯解构此类评估的效用,从而更好地理解医学研究和研究伦理与更大的社会体系和历史背景之间的相互作用。
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引用次数: 0
The creation of the Belmont Report and its effect on ethical principles: a historical study. 贝尔蒙特报告》的创作及其对伦理原则的影响:一项历史研究。
IF 1.6 Q2 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-11-10 DOI: 10.1007/s40592-022-00165-5
Hiroyuki Nagai, Eisuke Nakazawa, Akira Akabayashi

The Belmont Report continues to be held in high regard, and most bioethical analyses conducted in recent years have presumed that it affects United States federal regulations. However, the assessments of the report's creators are sharply divided. Understanding the historic reputation of this monumental report is thus crucial. We first recount the historical context surrounding the creation of this report. Subsequently, we review the process involved in developing ethical guidelines and describe the report's features. Additionally, we analyze the effect of unfolding events on the subsequent creation of federal regulations, especially on gene therapy clinical trials. Moreover, throughout this paper we evaluate the ethical principles outlined in this report and describe how they overlap with the issue of protecting socially vulnerable groups. Based on the analysis, we conclude that the features of the Belmont Report cannot be considered as having affected the basic sections of the federal regulations for ethical reviews that were made uniform in 1981. Nevertheless, regarding the regulations on gene therapy clinical trials-which were at first expected to be applicable to research involving children-in addition to implementing policies regarding the public review of protocols that passed ethical review, this report's principles are clearly reflected in the key notes that should have been referred to when the report was created.

贝尔蒙特报告》继续受到高度评价,近年来进行的大多数生物伦理分析都假定该报 告影响了美国联邦法规。然而,对该报告创作者的评价却众说纷纭。因此,了解这份不朽报告的历史声誉至关重要。我们首先回顾了该报告产生的历史背景。随后,我们回顾了制定伦理指南的过程,并介绍了报告的特点。此外,我们还分析了事件发展对随后制定联邦法规的影响,尤其是对基因治疗临床试验的影响。此外,在本文中,我们还对报告中概述的伦理原则进行了评估,并阐述了这些原则与保护社会弱势群体问题的重叠之处。根据分析,我们得出结论,《贝尔蒙特报告》的特点不能被视为影响了 1981 年统一制定的联邦伦理审查法规的基本部分。尽管如此,关于基因治疗临床试验的规定--起初预计将适用于涉及儿童的研究--除了实施有关对通过伦理审查的方案进行公开审查的政策外,该报告的原则在关键说明中得到了明确的体现,而这些关键说明本应在该报告制定时得到参考。
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引用次数: 0
Nancy Segal: Deliberately divided: inside the controversial study of twins and triplets adopted apart 南希·西格尔:故意分开:对被分开收养的双胞胎和三胞胎进行的有争议的研究
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-06-30 DOI: 10.1007/s40592-022-00159-3
A. McDowell
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引用次数: 0
The abandonment of Australians in India: an analysis of the right of entry as a security right in the age of COVID-19. 澳大利亚人在印度被抛弃:新冠肺炎时代入境权作为一种担保权的分析。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-06-01 Epub Date: 2022-02-18 DOI: 10.1007/s40592-022-00151-x
Diego S Silva

In May 2021, when the Delta variant of SARS-CoV2 was wreaking havoc in India, the Australian Federal Government banned its citizens and residents who were there from coming back to Australia for 14 days on penalty of fines or imprisonment. These measures were justified on the grounds of protecting the broader Australian public from potentially importing the Delta strain, which officials feared would then seed a local outbreak. Those Australians stranded in India, and their families and communities back home, claimed that they were abandoned by Prime Minister Scott Morrison's government. This case-along with other barriers used as part of border control measures in the name of public health-raises the following question: is it ever morally permissible for a state to ban its citizens and residents from entering their own country during a pandemic? I conclude that it's impermissible. I argue that persons have a right of entry that should be understood as a security right. This security right should be non-derogable because it's a foundational good that is necessary for life-planning purposes. Moreover, it is a right that people should be able to rely upon absolutely, even during pandemics. At the very least, should someone believe that there are rare exceptions to the right of entry on public health grounds, governments have a duty-grounded in the principle of reciprocity-to support those who are temporarily denied entry. In the case of Australians stranded in India, I will argue that the Australian Federal Government failed on all accounts.

2021年5月,当SARS-CoV2的三角洲变种在印度肆虐时,澳大利亚联邦政府禁止在印度的公民和居民在14天内返回澳大利亚,否则将处以罚款或监禁。这些措施是合理的,因为它们可以保护澳大利亚广大公众免受可能进口三角洲病毒的影响,官员们担心这会在当地引发疫情。那些被困在印度的澳大利亚人,以及他们在国内的家人和社区,声称他们被总理斯科特·莫里森(Scott Morrison)的政府抛弃了。这一案例以及以公共卫生的名义作为边境控制措施的一部分使用的其他障碍提出了以下问题:在大流行期间,一个国家禁止其公民和居民进入自己的国家在道德上是否允许?我认为这是不允许的。我认为人的进入权应该被理解为担保权。这种担保权应该是不可减损的,因为它是一种基本利益,对于人生规划的目的是必要的。此外,即使在大流行期间,人们也应该能够绝对依赖这一权利。至少,如果有人认为基于公共卫生理由的入境权存在罕见的例外情况,政府有责任——基于互惠原则——支持那些暂时被拒绝入境的人。在澳大利亚人滞留印度的情况下,我认为澳大利亚联邦政府在各方面都失败了。
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引用次数: 2
School in the time of Covid. 新冠疫情时期的学校。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-06-01 Epub Date: 2022-07-20 DOI: 10.1007/s40592-022-00161-9
Shamik Dasgupta

This article argues that extended school closures during the Covid-19 pandemic were a moral catastrophe. It focuses on closures in the United States of America and discusses their effect on the pandemic (or lack thereof), their harmful effects on children, and other morally relevant factors. It concludes by discussing how these closures came to pass and suggests that the root cause was structural, not individual: the relevant decision-makers were working in an institutional setting that stacked the deck heavily in favor of extended closures.

本文认为,在Covid-19大流行期间延长学校关闭是一场道德灾难。本报告的重点是美利坚合众国的关闭,并讨论关闭对大流行病的影响(或缺乏关闭)、对儿童的有害影响以及其他与道德有关的因素。文章最后讨论了这些关闭是如何通过的,并指出根本原因是结构性的,而不是个人的:相关决策者在一个制度性的环境中工作,这个环境严重支持延长关闭。
{"title":"School in the time of Covid.","authors":"Shamik Dasgupta","doi":"10.1007/s40592-022-00161-9","DOIUrl":"https://doi.org/10.1007/s40592-022-00161-9","url":null,"abstract":"<p><p>This article argues that extended school closures during the Covid-19 pandemic were a moral catastrophe. It focuses on closures in the United States of America and discusses their effect on the pandemic (or lack thereof), their harmful effects on children, and other morally relevant factors. It concludes by discussing how these closures came to pass and suggests that the root cause was structural, not individual: the relevant decision-makers were working in an institutional setting that stacked the deck heavily in favor of extended closures.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":" ","pages":"120-144"},"PeriodicalIF":1.6,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9537117/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40522137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Public health ethics: critiques of the "new normal". 公共卫生伦理:对"新常态"的批评。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-06-01 Epub Date: 2022-09-27 DOI: 10.1007/s40592-022-00163-7
Euzebiusz Jamrozik

The global response to the recent coronavirus pandemic has revealed an ethical crisis in public health. This article analyses key pandemic public health policies in light of widely accepted ethical principles: the need for evidence, the least restrictive/harmful alternative, proportionality, equity, reciprocity, due legal process, and transparency. Many policies would be considered unacceptable according to pre-pandemic norms of public health ethics. There are thus significant opportunities to develop more ethical responses to future pandemics. This paper serves as the introduction to this Special Issue of Monash Bioethics Review and provides background for the other articles in this collection.

全球对最近冠状病毒大流行的反应揭示了公共卫生领域的道德危机。本文根据广泛接受的伦理原则分析了主要的流行病公共卫生政策:证据的必要性、限制性最小/危害最小的替代方案、相称性、公平、互惠、正当法律程序和透明度。根据大流行前的公共卫生伦理规范,许多政策被认为是不可接受的。因此,对于未来的流行病,我们有很大的机会制定更合乎道德的对策。本文作为《莫纳什生物伦理学评论》特刊的介绍,并为该合集中的其他文章提供背景。
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引用次数: 4
Fear, freedom and political culture during COVID-19. 2019冠状病毒病期间的恐惧、自由和政治文化。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-06-01 Epub Date: 2022-06-15 DOI: 10.1007/s40592-022-00157-5
Tim Soutphommasane, Marc Stears

Australia's experience of the COVID-19 pandemic has been widely perceived to have been a successful one, based on the relatively few number of lives lost to the virus compared to the rest of the world. There remain, nonetheless, serious ethical challenges at the heart of the Australian response to COVID-19. The broadly positive outcomes of Australia's pandemic response mask more troubling developments within its political culture, and the costs it has imposed on its society. This article examines two concerns in particular: the normalisation of fear and emergency through the language and policy responses adopted by governments, and the significant diminution of individual freedoms and human rights.

人们普遍认为,澳大利亚在应对COVID-19大流行方面的经验是成功的,因为与世界其他地区相比,澳大利亚死于该病毒的人数相对较少。然而,澳大利亚应对COVID-19的核心仍然存在严重的道德挑战。澳大利亚应对大流行病的总体积极成果掩盖了其政治文化中更令人不安的事态发展,以及它给社会带来的代价。本文特别探讨了两个问题:通过政府采取的语言和政策反应使恐惧和紧急情况正常化,以及个人自由和人权的显著减少。
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引用次数: 2
Covid heterodoxy in three layers. Covid异质三层。
IF 1.6 Q1 Arts and Humanities Pub Date : 2022-06-01 Epub Date: 2021-11-27 DOI: 10.1007/s40592-021-00140-6
Peter Godfrey-Smith

Lockdowns and related policies of behavioral and economic restriction introduced in response to the COVID-19 pandemic are criticized, drawing on three sets of ideas and arguments that are organized in accordance with the likely degree of controversy associated with their guiding assumptions. The first set of arguments makes use of cost-benefit reasoning within a broadly utilitarian framework, emphasizing uncertainty, the role of worst-case scenarios, and the need to consider at least the medium term as well as immediate effects. The second draws on assumptions about the political value of basic liberties. The third draws on ideas about the roles of different stages within human life.

为应对COVID-19大流行而采取的封锁和相关的行为和经济限制政策受到了批评,并根据与其指导假设相关的可能争议程度组织了三套观点和论点。第一组论点在广泛的功利主义框架内利用成本效益推理,强调不确定性,最坏情况的作用,以及至少要考虑中期和立即影响的必要性。第二种是基于对基本自由的政治价值的假设。第三种观点借鉴了人类生命中不同阶段的角色。
{"title":"Covid heterodoxy in three layers.","authors":"Peter Godfrey-Smith","doi":"10.1007/s40592-021-00140-6","DOIUrl":"https://doi.org/10.1007/s40592-021-00140-6","url":null,"abstract":"<p><p>Lockdowns and related policies of behavioral and economic restriction introduced in response to the COVID-19 pandemic are criticized, drawing on three sets of ideas and arguments that are organized in accordance with the likely degree of controversy associated with their guiding assumptions. The first set of arguments makes use of cost-benefit reasoning within a broadly utilitarian framework, emphasizing uncertainty, the role of worst-case scenarios, and the need to consider at least the medium term as well as immediate effects. The second draws on assumptions about the political value of basic liberties. The third draws on ideas about the roles of different stages within human life.</p>","PeriodicalId":43628,"journal":{"name":"Monash Bioethics Review","volume":"40 1","pages":"17-39"},"PeriodicalIF":1.6,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8627291/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39673743","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
期刊
Monash Bioethics Review
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