Pub Date : 2022-07-08DOI: 10.1332/239788222x16546029336165
A. Martin-Matthews, M. Torrejón
We adapt the concept of the ‘consumption ensemble’ to capture the nuanced collaborations between actors in the provision and receipt of home care. Data were from a ten-year study of home care clients, family carers and workers in selected Canadian provinces. Using the lens of the ‘ensemble’, we analysed interviews with 24 dyads (carers and clients) and reviewed findings of our previously published research. Evidence of agency as collective endeavour supporting client autonomy and of improvisation in the ensemble informed a revision of our previous interactive model of care, emphasising the bidirectional nature of care relationships.
{"title":"Care ensembles: examining relational aspects of care in the context of home care","authors":"A. Martin-Matthews, M. Torrejón","doi":"10.1332/239788222x16546029336165","DOIUrl":"https://doi.org/10.1332/239788222x16546029336165","url":null,"abstract":"We adapt the concept of the ‘consumption ensemble’ to capture the nuanced collaborations between actors in the provision and receipt of home care. Data were from a ten-year study of home care clients, family carers and workers in selected Canadian provinces. Using the lens of the ‘ensemble’, we analysed interviews with 24 dyads (carers and clients) and reviewed findings of our previously published research. Evidence of agency as collective endeavour supporting client autonomy and of improvisation in the ensemble informed a revision of our previous interactive model of care, emphasising the bidirectional nature of care relationships.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44102975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-06DOI: 10.1332/239788222x16546112844546
N. Brimblecombe
Under-provision of long-term care services for people with support needs may have consequences for both them and their unpaid carers. Using in-depth interviews with 23 co-resident carers living in England, our study aimed to explore the impacts of unmet need on unpaid carers and how such impacts occur. Unmet need for services – services not being received or gaps between provision and need – had multidimensional impacts on carers. Key mechanisms were constrained opportunities through limited time or emotional resources, and constrained choices about whether and how to provide care, as well as over multiple other aspects of their lives.
{"title":"The consequences for unpaid carers of unmet need for long-term care services in England","authors":"N. Brimblecombe","doi":"10.1332/239788222x16546112844546","DOIUrl":"https://doi.org/10.1332/239788222x16546112844546","url":null,"abstract":"Under-provision of long-term care services for people with support needs may have consequences for both them and their unpaid carers. Using in-depth interviews with 23 co-resident carers living in England, our study aimed to explore the impacts of unmet need on unpaid carers and how such impacts occur. Unmet need for services – services not being received or gaps between provision and need – had multidimensional impacts on carers. Key mechanisms were constrained opportunities through limited time or emotional resources, and constrained choices about whether and how to provide care, as well as over multiple other aspects of their lives.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45031778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-06DOI: 10.1332/239788222x16546112844528
Sophia A. Harris, A. Baird, Celia B. Harris
We investigated perceptions of identity in Alzheimer’s disease and behavioural-variant frontotemporal dementia. We asked family members of people with dementia to describe them before and after onset of the disease, comparing across type (Alzheimer’s disease versus behavioural-variant frontotemporal dementia) and time period. Family members’ perceptions of people with dementia changed over time. Compared with Alzheimer’s disease, behavioural-variant frontotemporal dementia was perceived to cause greater disruption to identity and more often associated with negative moral traits. We found a relationship between assessments of moral character and perceived self-continuity. Our data revealed different ways family members navigate stability and change in the identity of their loved ones with dementia.
{"title":"“She starts to be her old self again”: familial reflections on pre- and post-onset identity in people with Alzheimer’s and behavioural-variant frontotemporal dementia","authors":"Sophia A. Harris, A. Baird, Celia B. Harris","doi":"10.1332/239788222x16546112844528","DOIUrl":"https://doi.org/10.1332/239788222x16546112844528","url":null,"abstract":"We investigated perceptions of identity in Alzheimer’s disease and behavioural-variant frontotemporal dementia. We asked family members of people with dementia to describe them before and after onset of the disease, comparing across type (Alzheimer’s disease versus behavioural-variant frontotemporal dementia) and time period. Family members’ perceptions of people with dementia changed over time. Compared with Alzheimer’s disease, behavioural-variant frontotemporal dementia was perceived to cause greater disruption to identity and more often associated with negative moral traits. We found a relationship between assessments of moral character and perceived self-continuity. Our data revealed different ways family members navigate stability and change in the identity of their loved ones with dementia.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47556986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-30DOI: 10.1332/239788222x16545974368612
M. Dawson
{"title":"Futures of Care Symposium: Relationality and Responsibility in More Than Human Worlds, Thackray Museum of Medicine, Leeds, 8 April 2022","authors":"M. Dawson","doi":"10.1332/239788222x16545974368612","DOIUrl":"https://doi.org/10.1332/239788222x16545974368612","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45183970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-27DOI: 10.1332/239788221x16535005914874
Klara Raiber, E. Verbakel, Mark Visser
Applying fixed-effects models using Waves 2 to 13 (2007–19) of the German Labour Market and Social Security panel study, we examine how unpaid caring changes labour supply and if monthly monetary transfers from the care recipient to the carer motivate a reduction in labour supply. We find that for both women and men, starting high-intensity caring increased the likelihood of becoming non-employed. Women were already likely to reduce working hours when starting non-intensive caring, whereas only intensive caring reduced working hours for men. Receiving low monetary transfers was a higher motivation to become non-employed for men, and receiving low monetary transfers only reduced working hours for women.
{"title":"Helping helpers? The role of monetary transfers in combining unpaid care and paid work","authors":"Klara Raiber, E. Verbakel, Mark Visser","doi":"10.1332/239788221x16535005914874","DOIUrl":"https://doi.org/10.1332/239788221x16535005914874","url":null,"abstract":"Applying fixed-effects models using Waves 2 to 13 (2007–19) of the German Labour Market and Social Security panel study, we examine how unpaid caring changes labour supply and if monthly monetary transfers from the care recipient to the carer motivate a reduction in labour supply. We find that for both women and men, starting high-intensity caring increased the likelihood of becoming non-employed. Women were already likely to reduce working hours when starting non-intensive caring, whereas only intensive caring reduced working hours for men. Receiving low monetary transfers was a higher motivation to become non-employed for men, and receiving low monetary transfers only reduced working hours for women.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"1 1","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41433385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-21DOI: 10.1332/239788221x16535006076388
J. Hajjar, Dina Idriss-Wheeler, Samantha A. Oostlander
Unpaid caregivers provide valuable care that saves the Canadian healthcare system billions of dollars every year. Caregiving is highly taxing, often resulting in psychosocial impacts that are associated with negative health outcomes and decreased quality of life for caregivers. These impacts are exacerbated when public health disasters occur, such as pandemics. This article employs a socioecological approach to explore how existing risk factors at the micro, meso and macro levels negatively impacted caregivers in Canada during the COVID-19 pandemic. We use these findings to suggest policy recommendations and advocate for better support for caregivers in the event of future pandemics or other disasters.
{"title":"Caring for our caregivers in a pandemic: challenges, gaps and suggestions for change","authors":"J. Hajjar, Dina Idriss-Wheeler, Samantha A. Oostlander","doi":"10.1332/239788221x16535006076388","DOIUrl":"https://doi.org/10.1332/239788221x16535006076388","url":null,"abstract":"Unpaid caregivers provide valuable care that saves the Canadian healthcare system billions of dollars every year. Caregiving is highly taxing, often resulting in psychosocial impacts that are associated with negative health outcomes and decreased quality of life for caregivers. These impacts are exacerbated when public health disasters occur, such as pandemics. This article employs a socioecological approach to explore how existing risk factors at the micro, meso and macro levels negatively impacted caregivers in Canada during the COVID-19 pandemic. We use these findings to suggest policy recommendations and advocate for better support for caregivers in the event of future pandemics or other disasters.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-06-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43077203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-05-13DOI: 10.1332/239788221x16504513780378
Eloise Hummell, M. Foster, K. Fisher, Catherine Needham, S. J. Borg, Alyssa Venning
Support coordination for people with disability and complex needs should assist in personalising and implementing individualised funded supports in a coordinated manner. Yet, this also relies on policy and organisational arrangements being conducive to good practice. Designed according to street-level policy research, this study sought to explore challenges and adaptations associated with the implementation of support coordination in Australia’s National Disability Insurance Scheme through interviews with 20 support coordinators and front-line personnel. Findings suggest that more explicit oversight of, and attention to, norms of practice and capacity to work collaboratively with choice and control are warranted to enhance support coordination.
{"title":"Challenges and adaptations of an intermediary: an exploration of support coordination in the Australian National Disability Insurance Scheme","authors":"Eloise Hummell, M. Foster, K. Fisher, Catherine Needham, S. J. Borg, Alyssa Venning","doi":"10.1332/239788221x16504513780378","DOIUrl":"https://doi.org/10.1332/239788221x16504513780378","url":null,"abstract":"Support coordination for people with disability and complex needs should assist in personalising and implementing individualised funded supports in a coordinated manner. Yet, this also relies on policy and organisational arrangements being conducive to good practice. Designed according to street-level policy research, this study sought to explore challenges and adaptations associated with the implementation of support coordination in Australia’s National Disability Insurance Scheme through interviews with 20 support coordinators and front-line personnel. Findings suggest that more explicit oversight of, and attention to, norms of practice and capacity to work collaboratively with choice and control are warranted to enhance support coordination.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42744942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-05-11DOI: 10.1332/239788221x16498691269944
Allison Williams, J. Bank
{"title":"Support for working carers across the globe: the development of international standardised guidelines for the workplace","authors":"Allison Williams, J. Bank","doi":"10.1332/239788221x16498691269944","DOIUrl":"https://doi.org/10.1332/239788221x16498691269944","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-05-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47728728","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-05-10DOI: 10.1332/239788221x16504438497287
Rick Sullivan
{"title":"Individualising Risk: Paid Care Work in the New Gig Economy by Fiona Macdonald (2021)","authors":"Rick Sullivan","doi":"10.1332/239788221x16504438497287","DOIUrl":"https://doi.org/10.1332/239788221x16504438497287","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48170130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-04DOI: 10.1332/239788221x16353551956496
Katherine Zwerger
{"title":"David I.J. Reid (2021) Doing relationship-centred dementia care: learning from each other for better dementia support","authors":"Katherine Zwerger","doi":"10.1332/239788221x16353551956496","DOIUrl":"https://doi.org/10.1332/239788221x16353551956496","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2022-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42240177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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