Pub Date : 2023-08-18DOI: 10.1332/239788221x16890689455395
E. Miller, D. Seddon, G. Toms, E. Hanson
Unpaid carers form the backbone of health and care systems. Caregiving can be rewarding but can also diminish carer well-being. Many policies recognise that outcome-focused assessments are the foundation of effective support. In practice, carers can struggle to access these, preventing the realisation of carer-oriented policy goals. This systematic search and review explored literature concerning adult carer outcome assessment, retrieving 21 eligible studies spanning work in five countries. A narrative synthesis highlighted the skilled nature of the practice involved, alongside long-standing implementation barriers. We make evidence-based recommendations for policy implementation, with potential to improve outcomes for carers, practitioners and organisations.
{"title":"Talking about what matters: a systematic search and review exploring barriers and facilitators for implementing outcome-focused conversations","authors":"E. Miller, D. Seddon, G. Toms, E. Hanson","doi":"10.1332/239788221x16890689455395","DOIUrl":"https://doi.org/10.1332/239788221x16890689455395","url":null,"abstract":"Unpaid carers form the backbone of health and care systems. Caregiving can be rewarding but can also diminish carer well-being. Many policies recognise that outcome-focused assessments are the foundation of effective support. In practice, carers can struggle to access these, preventing the realisation of carer-oriented policy goals. This systematic search and review explored literature concerning adult carer outcome assessment, retrieving 21 eligible studies spanning work in five countries. A narrative synthesis highlighted the skilled nature of the practice involved, alongside long-standing implementation barriers. We make evidence-based recommendations for policy implementation, with potential to improve outcomes for carers, practitioners and organisations.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48891440","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-09DOI: 10.1332/239788221x16890865753857
Erwin Schweitzer, Margret Jaeger
Current societal transformations in health care and other fields of care have led to an enormous increase in the number of publications in the anthropology of care. Yet, the field turns out to be fragmented and complex. To provide some orientation, we present results of a scoping review on empirical research on paid care work in health-care settings. We structure our findings according to whether the authors tend to focus on ‘good’, ‘bad’ or ‘grey’ areas of care. Anthropology might contribute to the field of care studies by making aspects of care visible that often remain concealed otherwise.
{"title":"The good, the bad and the grey areas of care: a review of the anthropology of care in health care","authors":"Erwin Schweitzer, Margret Jaeger","doi":"10.1332/239788221x16890865753857","DOIUrl":"https://doi.org/10.1332/239788221x16890865753857","url":null,"abstract":"Current societal transformations in health care and other fields of care have led to an enormous increase in the number of publications in the anthropology of care. Yet, the field turns out to be fragmented and complex. To provide some orientation, we present results of a scoping review on empirical research on paid care work in health-care settings. We structure our findings according to whether the authors tend to focus on ‘good’, ‘bad’ or ‘grey’ areas of care. Anthropology might contribute to the field of care studies by making aspects of care visible that often remain concealed otherwise.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"8 4","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41293708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-09DOI: 10.1332/239788221x16887213701095
M. Daly
This article critically assesses the recent European Care Strategy, the European Union’s most significant policy statement yet on long-term care. Using a framework that differentiates between economistic, social protection and configurational approaches, the European Care Strategy is adjudged to rely on an economistic approach. This sees it suggest some important measures for better services and working conditions for care workers but not enough on social protection rights and too little to disrupt the reliance on unpaid carers. Comparing the European Union approach with that of several United Nations entities – the International Labour Organization, World Health Organization and UN Women – indicates that other approaches are possible, though all need improvement.
{"title":"Long-term care as a policy issue for the European Union and United Nations organisations","authors":"M. Daly","doi":"10.1332/239788221x16887213701095","DOIUrl":"https://doi.org/10.1332/239788221x16887213701095","url":null,"abstract":"This article critically assesses the recent European Care Strategy, the European Union’s most significant policy statement yet on long-term care. Using a framework that differentiates between economistic, social protection and configurational approaches, the European Care Strategy is adjudged to rely on an economistic approach. This sees it suggest some important measures for better services and working conditions for care workers but not enough on social protection rights and too little to disrupt the reliance on unpaid carers. Comparing the European Union approach with that of several United Nations entities – the International Labour Organization, World Health Organization and UN Women – indicates that other approaches are possible, though all need improvement.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46077717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-09DOI: 10.1332/239788221x16890865425257
Laura Edwards-Bailey, N. Smyth, T. Cartwright, Jay-Marie Mackenzie
University provides a unique context for carers and care workers; however, there is a paucity of research aimed at understanding experiences of caring, specifically for self-harm, within this setting. This article reports on 24 interviews with informal carers and professional care workers (aged 18–55 years) with experience of supporting students who self-harm during their time at a UK University. Identifying with the role of care, understanding self-harm and the challenges of providing support in a university environment were explored. Findings highlight key areas for universities and student support to address in order to support students, family members and professionals in caring roles.
{"title":"The spectrum of care within a university context: the differing roles of carers in supporting students who self-harm","authors":"Laura Edwards-Bailey, N. Smyth, T. Cartwright, Jay-Marie Mackenzie","doi":"10.1332/239788221x16890865425257","DOIUrl":"https://doi.org/10.1332/239788221x16890865425257","url":null,"abstract":"University provides a unique context for carers and care workers; however, there is a paucity of research aimed at understanding experiences of caring, specifically for self-harm, within this setting. This article reports on 24 interviews with informal carers and professional care workers (aged 18–55 years) with experience of supporting students who self-harm during their time at a UK University. Identifying with the role of care, understanding self-harm and the challenges of providing support in a university environment were explored. Findings highlight key areas for universities and student support to address in order to support students, family members and professionals in caring roles.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45955588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-07-03DOI: 10.1332/239788223x16857179106014
Lorena Armijo
{"title":"Review of ‘Conceptual orientations and recent debates on care: strategies, resistances, vulnerabilities and reproductive justice’, IV Latin American Congress of Social Theory, Santiago, Chile, 7–10 March 2023","authors":"Lorena Armijo","doi":"10.1332/239788223x16857179106014","DOIUrl":"https://doi.org/10.1332/239788223x16857179106014","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43225191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-22DOI: 10.1332/239788221x16855327737356
Myra Hamilton
{"title":"The Reluctant Carer by Anonymous (2022)","authors":"Myra Hamilton","doi":"10.1332/239788221x16855327737356","DOIUrl":"https://doi.org/10.1332/239788221x16855327737356","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45473408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-15DOI: 10.1332/239788221x16855400870491
Francisca Ortiz Ruiz
{"title":"Women, Precarious Work and Care: The Failure of Family-Friendly Rights by Emily Grabham (2021)","authors":"Francisca Ortiz Ruiz","doi":"10.1332/239788221x16855400870491","DOIUrl":"https://doi.org/10.1332/239788221x16855400870491","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44822746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-15DOI: 10.1332/239788221x16825359407198
Nicole Halim, Rosa Comi, Rebecca J Mitchell
Despite widespread acknowledgement of challenges endured by unpaid caregivers, there is still a paucity of studies attempting to elucidate factors that necessitate resilience in caregiving. This integrative review aimed to identify facilitators and barriers to unpaid caregivers’ resilience. Four databases (Medline, PsycINFO, Cumulative Index of Nursing and Allied Health Literature [CINAHL] and Scopus) were searched for English-language articles (January 2000–August 2021) that considered facilitators and barriers to caregiving resilience among the carer population. A total of 22 articles were identified. Facilitators included carers receiving adequate social support and personal time, and remaining positive; barriers included lack of social support, adopting a negative outlook, experiencing family conflict and financial instability.
尽管人们普遍承认无薪照顾者所面临的挑战,但仍然缺乏研究试图阐明照顾中需要弹性的因素。本综合综述旨在确定无薪照顾者恢复力的促进因素和障碍。我们检索了四个数据库(Medline, PsycINFO, Cumulative Index of Nursing and Allied Health Literature [CINAHL] and Scopus),检索了2000年1月至2021年8月期间关于护理人员护理弹性的促进因素和障碍的英文文章。共鉴定出22件物品。促进者包括获得足够的社会支持和个人时间的照顾者,并保持积极;障碍包括缺乏社会支持、持消极看法、经历家庭冲突和经济不稳定。
{"title":"An integrative review of facilitators and barriers to resilience among informal unpaid caregivers","authors":"Nicole Halim, Rosa Comi, Rebecca J Mitchell","doi":"10.1332/239788221x16825359407198","DOIUrl":"https://doi.org/10.1332/239788221x16825359407198","url":null,"abstract":"Despite widespread acknowledgement of challenges endured by unpaid caregivers, there is still a paucity of studies attempting to elucidate factors that necessitate resilience in caregiving. This integrative review aimed to identify facilitators and barriers to unpaid caregivers’ resilience. Four databases (Medline, PsycINFO, Cumulative Index of Nursing and Allied Health Literature [CINAHL] and Scopus) were searched for English-language articles (January 2000–August 2021) that considered facilitators and barriers to caregiving resilience among the carer population. A total of 22 articles were identified. Facilitators included carers receiving adequate social support and personal time, and remaining positive; barriers included lack of social support, adopting a negative outlook, experiencing family conflict and financial instability.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"1 1","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"66315557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-05-18DOI: 10.1332/239788221x16813174808533
P. Savy, S. Hodgkin, Erin Conway
Across Western nations, ‘ageing in place’ policies rely on having a sufficient and skilled aged care workforce. In Australia, due to the impact of successive policy reforms, this workforce including the sector that provides community-based services has declined in number and skills. At the same time the need to upskill and sustain this workforce has intensified as the frailty and health needs of consumers have increased. This paper reports on an integrative literature review undertaken during 2021 to describe workforce needs and peer reviewed reports of programs instituted in aged care settings that aimed to address these needs. The review sought to examine programs implemented in both long-term and community care settings and to draw from these elements that may be utilised in future program design across the sector. It focussed primarily on workforce deficits in the community aged care sector and on the capacity of rurally-based services to meet and respond to growing consumer demand. The findings emphasise current workforce deficits while they also reveal a paucity of peer-reviewed reports of implemented programs across the sector as a whole. Nevertheless, the few programs examined in this review provide examples of the capacity and willingness of workers and providers to trial measures that aim to increase the recruitment, retention, skill and job-satisfaction of direct care workers. We propose that the key elements of the programs identified in this paper provide the foundation for the development of strategically designed programs that address particular workforce needs such as those shaped by rural contexts.
{"title":"Community aged care in Australia: the need for innovative programmes to boost workforce capacity","authors":"P. Savy, S. Hodgkin, Erin Conway","doi":"10.1332/239788221x16813174808533","DOIUrl":"https://doi.org/10.1332/239788221x16813174808533","url":null,"abstract":"Across Western nations, ‘ageing in place’ policies rely on having a sufficient and skilled aged care workforce. In Australia, due to the impact of successive policy reforms, this workforce including the sector that provides community-based services has declined in number and skills. At the same time the need to upskill and sustain this workforce has intensified as the frailty and health needs of consumers have increased. This paper reports on an integrative literature review undertaken during 2021 to describe workforce needs and peer reviewed reports of programs instituted in aged care settings that aimed to address these needs.\u0000The review sought to examine programs implemented in both long-term and community care settings and to draw from these elements that may be utilised in future program design across the sector. It focussed primarily on workforce deficits in the community aged care sector and on the capacity of rurally-based services to meet and respond to growing consumer demand. The findings emphasise current workforce deficits while they also reveal a paucity of peer-reviewed reports of implemented programs across the sector as a whole. Nevertheless, the few programs examined in this review provide examples of the capacity and willingness of workers and providers to trial measures that aim to increase the recruitment, retention, skill and job-satisfaction of direct care workers. We propose that the key elements of the programs identified in this paper provide the foundation for the development of strategically designed programs that address particular workforce needs such as those shaped by rural contexts.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-05-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42331047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-05-15DOI: 10.1332/239788221x16813137336637
K.V.G.S.G. Vithana, T. A. Asurakkody, D. Perera
Spinal cord injury paraplegia is a significant health problem in Sri Lanka. This study explores the psychological experiences of family carers of people with such a condition. A descriptive phenomenological study was conducted with 17 parent, sibling, spouse and adult carers. Thematic analysis revealed four themes related to: carer emotions regarding the caring process; feelings related to the family member’s condition; beliefs beyond the physical world; and behaviour changes due to psychological distress. The findings will help develop interventions for the psychological needs of Sri Lankan carers and may provide insight into the experiences of similar Asian communities living globally.
{"title":"Psychological experiences of family carers of people with spinal cord injury paraplegia: an explorative qualitative study","authors":"K.V.G.S.G. Vithana, T. A. Asurakkody, D. Perera","doi":"10.1332/239788221x16813137336637","DOIUrl":"https://doi.org/10.1332/239788221x16813137336637","url":null,"abstract":"Spinal cord injury paraplegia is a significant health problem in Sri Lanka. This study explores the psychological experiences of family carers of people with such a condition. A descriptive phenomenological study was conducted with 17 parent, sibling, spouse and adult carers. Thematic analysis revealed four themes related to: carer emotions regarding the caring process; feelings related to the family member’s condition; beliefs beyond the physical world; and behaviour changes due to psychological distress. The findings will help develop interventions for the psychological needs of Sri Lankan carers and may provide insight into the experiences of similar Asian communities living globally.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49035340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}