Pub Date : 2023-11-09DOI: 10.1332/23978821y2023d000000012
Kelly A. Bergstrom, Emily D. Gerstein, Ann M. Steffen
Family carers have high rates of stress, anxiety and depression, but there are also positive aspects of caregiving. The aim of this study is to explore correlates of caregiving competence, a positive aspect of caregiving, in 146 female family carers. Regression analyses identify that self-efficacy for controlling upsetting thoughts, caregiver preparedness and self-reassurance were significantly related to caregiving competence, after controlling for contextual variables. These findings indicate that mental health practitioners working with family carers should target positive psychosocial mechanisms, along with factors directly related to the caregiving situation, to enhance carer well-being and promote sustainable care.
{"title":"Self-efficacy for controlling upsetting thoughts and positive appraisals of stressors relate to caregiving competence in female family carers","authors":"Kelly A. Bergstrom, Emily D. Gerstein, Ann M. Steffen","doi":"10.1332/23978821y2023d000000012","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000012","url":null,"abstract":"Family carers have high rates of stress, anxiety and depression, but there are also positive aspects of caregiving. The aim of this study is to explore correlates of caregiving competence, a positive aspect of caregiving, in 146 female family carers. Regression analyses identify that self-efficacy for controlling upsetting thoughts, caregiver preparedness and self-reassurance were significantly related to caregiving competence, after controlling for contextual variables. These findings indicate that mental health practitioners working with family carers should target positive psychosocial mechanisms, along with factors directly related to the caregiving situation, to enhance carer well-being and promote sustainable care.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135192326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-01DOI: 10.1332/175795923x16749917135261
Paula Jacobs, Ethel Quayle, Heather Wilkinson
Old age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explores the experiences of social care staff in two life-sharing communities where adults with a learning disability and staff live together. Four main themes were identified, highlighting different dimensions of care. These included an emphasis on relational care, responsive care and collaborative care, and an acknowledgement of barriers to care and caring that allowed people to live and die within the communities.
{"title":"“What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”: exploring care relationships at the end of life in two life-sharing communities for people with a learning disability","authors":"Paula Jacobs, Ethel Quayle, Heather Wilkinson","doi":"10.1332/175795923x16749917135261","DOIUrl":"https://doi.org/10.1332/175795923x16749917135261","url":null,"abstract":"Old age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explores the experiences of social care staff in two life-sharing communities where adults with a learning disability and staff live together. Four main themes were identified, highlighting different dimensions of care. These included an emphasis on relational care, responsive care and collaborative care, and an acknowledgement of barriers to care and caring that allowed people to live and die within the communities.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136102912","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-01DOI: 10.1332/23978821y2023d000000003
Grazielle Valentim
{"title":"“Carework in Uncertain Times: Convergences and Divergences around the World.” Third Global Carework Summit. 7-9 June, Costa Rica, 2023.","authors":"Grazielle Valentim","doi":"10.1332/23978821y2023d000000003","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000003","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135112549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-01DOI: 10.1332/23978821y2023d000000009
Gabriela Ramos Bonilla
{"title":"Care for Older Adults in India: Living Arrangements and Quality of Life by Bailey A., Hyde M. and James K.S. (eds) (2022)","authors":"Gabriela Ramos Bonilla","doi":"10.1332/23978821y2023d000000009","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000009","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135062225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-01DOI: 10.1332/23978821y2023d000000004
Obert Tawodzera
{"title":"Ending the Social Care Crisis: A New Road to Reform by Richard Humphries (2023)","authors":"Obert Tawodzera","doi":"10.1332/23978821y2023d000000004","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000004","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135061399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-01DOI: 10.1332/23978821y2023d000000008
Albert Banerjee
{"title":"Social imaginaries and the application of feminist care perspectives to nursing home reform","authors":"Albert Banerjee","doi":"10.1332/23978821y2023d000000008","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000008","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135062231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-18DOI: 10.1332/23978821y2023d000000011
Shunqi Zhang
{"title":"Ageing and the Crisis in Health and Social Care: Global and National Perspectives by Bethany Simmonds (2021)","authors":"Shunqi Zhang","doi":"10.1332/23978821y2023d000000011","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000011","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135825488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-11DOI: 10.1332/23978821y2023d000000006
Maritza García-Toro, María Cruz Sánchez-Gómez, Ariana Castillo-Alzuguren
There is an urgent need to deepen understanding of the particular experience of family caregivers of people with early-onset familial Alzheimer’s disease. In this effort, we aim to identify the socio-demographic variables associated with social support, self-efficacy and coping strategies. Not belonging to the family lineage carrying the disease-causing mutation, having secondary or professional education, and caring for a relative in the early stages of dementia are associated with better coping tools. However, belonging to the family lineage carrying the mutation increases the use of passive coping, escape or emotional discharge, which risks adverse psychological outcomes.
{"title":"Early-onset familial Alzheimer’s disease: do socio-demographic variables differentiate family caregivers on social support, self-efficacy and coping strategies?","authors":"Maritza García-Toro, María Cruz Sánchez-Gómez, Ariana Castillo-Alzuguren","doi":"10.1332/23978821y2023d000000006","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000006","url":null,"abstract":"There is an urgent need to deepen understanding of the particular experience of family caregivers of people with early-onset familial Alzheimer’s disease. In this effort, we aim to identify the socio-demographic variables associated with social support, self-efficacy and coping strategies. Not belonging to the family lineage carrying the disease-causing mutation, having secondary or professional education, and caring for a relative in the early stages of dementia are associated with better coping tools. However, belonging to the family lineage carrying the mutation increases the use of passive coping, escape or emotional discharge, which risks adverse psychological outcomes.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136062885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-09DOI: 10.1332/23978821y2023d000000007
Camille Allard
Many studies have discussed the challenges of reconciling work and care, but few address the role of carers’ voice in advocating for, and facilitating access to, workplace support. Drawing on qualitative case studies of three large UK organisations, we examine the role of working carers’ voice in the development of a carer’s leave policy at work. Findings indicate that working carers’ voice is shaped by various factors, including available voice mechanisms; workers’ perceptions of their care responsibilities; and stigma, work processes and inequalities. Research implications indicate the need for a more effective representation of working carers through voice channels at work.
{"title":"Speaking up as a working carer: working carers’ use of voice and struggles for representation in the workplace","authors":"Camille Allard","doi":"10.1332/23978821y2023d000000007","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000007","url":null,"abstract":"Many studies have discussed the challenges of reconciling work and care, but few address the role of carers’ voice in advocating for, and facilitating access to, workplace support. Drawing on qualitative case studies of three large UK organisations, we examine the role of working carers’ voice in the development of a carer’s leave policy at work. Findings indicate that working carers’ voice is shaped by various factors, including available voice mechanisms; workers’ perceptions of their care responsibilities; and stigma, work processes and inequalities. Research implications indicate the need for a more effective representation of working carers through voice channels at work.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135044463","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-05DOI: 10.1332/23978821y2023d000000002
Vincent Horn, Cornelia Schweppe
In Cuba, the number of older people in need of care is increasing rapidly. At the same time, many younger people are leaving the country in search of a better life. This article focuses on these two processes by asking how care for older people is organized when (some) children live abroad. It shows that in the absence of an adequate public old age care infrastructure, a private market for home-based old age care has emerged. This development is linked to the sending of remittances and may potentially exacerbate social inequalities between older people receiving and not receiving money from abroad.
{"title":"Ageing, migration, and old age care in transnational Cuba","authors":"Vincent Horn, Cornelia Schweppe","doi":"10.1332/23978821y2023d000000002","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000002","url":null,"abstract":"In Cuba, the number of older people in need of care is increasing rapidly. At the same time, many younger people are leaving the country in search of a better life. This article focuses on these two processes by asking how care for older people is organized when (some) children live abroad. It shows that in the absence of an adequate public old age care infrastructure, a private market for home-based old age care has emerged. This development is linked to the sending of remittances and may potentially exacerbate social inequalities between older people receiving and not receiving money from abroad.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135482743","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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