Pub Date : 2024-08-08DOI: 10.1332/23978821y2024d000000070
Jennifer Bibb, Samuel McMaster, Victoria J. Palmer
Wellbeing programmes have the potential to support young carers in their formative years. However, there is a scarcity of research into wellbeing programmes for young carers and their associated outcomes. This review aims to identify targeted community programmes that support the mental health and social wellbeing of young carers and their outcomes through the academic literature. An initial search of databases retrieved 335 articles, with ten meeting the inclusion criteria. Findings were organised thematically according to the programme outcomes: improvement in emotional wellbeing and quality of life; the development of new skills; respite from caring; and social connectedness and peer support.
{"title":"A narrative review of community wellbeing programmes and the reported outcomes for young carers","authors":"Jennifer Bibb, Samuel McMaster, Victoria J. Palmer","doi":"10.1332/23978821y2024d000000070","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000070","url":null,"abstract":"Wellbeing programmes have the potential to support young carers in their formative years. However, there is a scarcity of research into wellbeing programmes for young carers and their associated outcomes. This review aims to identify targeted community programmes that support the mental health and social wellbeing of young carers and their outcomes through the academic literature. An initial search of databases retrieved 335 articles, with ten meeting the inclusion criteria. Findings were organised thematically according to the programme outcomes: improvement in emotional wellbeing and quality of life; the development of new skills; respite from caring; and social connectedness and peer support.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141927338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-29DOI: 10.1332/23978821y2024d000000069
Y. Wittenberg, Rick H Kwekkeboom, Alice H. de Boer, Arnoud P. Verhoeff
Challenges in keeping healthcare affordable make informal care increasingly important. It is essential to understand the context in which people provide informal care and gain insight into their wishes with regard to the division of care responsibilities. A total of 37 interviews and eight focus groups were conducted to investigate how Dutch carers’ care attitudes are shaped. Results show that carers’ intersecting social positions, such as gender, migration background, socio-economic status and stage of life, largely influence their care attitudes. Carers want to provide care but experience challenges in doing so. They request a government that takes the lead and facilitates cooperation with professionals.
{"title":"Variety in carers’ views regarding care responsibilities from an intersectional perspective","authors":"Y. Wittenberg, Rick H Kwekkeboom, Alice H. de Boer, Arnoud P. Verhoeff","doi":"10.1332/23978821y2024d000000069","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000069","url":null,"abstract":"Challenges in keeping healthcare affordable make informal care increasingly important. It is essential to understand the context in which people provide informal care and gain insight into their wishes with regard to the division of care responsibilities. A total of 37 interviews and eight focus groups were conducted to investigate how Dutch carers’ care attitudes are shaped. Results show that carers’ intersecting social positions, such as gender, migration background, socio-economic status and stage of life, largely influence their care attitudes. Carers want to provide care but experience challenges in doing so. They request a government that takes the lead and facilitates cooperation with professionals.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141796716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-22DOI: 10.1332/23978821y2024d000000066
N. Dalmer
This article highlights carers’ information-related work of caring for community-dwelling older adults living with dementia. Within an institutional ethnography method of inquiry, two sets of interviews with 13 carers and five paid dementia care staff map out the social organisation of carers’ information work. Carers’ information work is organised by timescales of past, present and future. Paid dementia care staff’s work reveals the broader institutional agendas that shape and constrain the ways that family caregivers experience their information work. As carers contend with information that is ‘fluid’ and ambiguous, differing supports are required to agentively support carers’ information needs.
{"title":"(In)Forming care: negotiating tensions in everyday information work in dementia care","authors":"N. Dalmer","doi":"10.1332/23978821y2024d000000066","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000066","url":null,"abstract":"This article highlights carers’ information-related work of caring for community-dwelling older adults living with dementia. Within an institutional ethnography method of inquiry, two sets of interviews with 13 carers and five paid dementia care staff map out the social organisation of carers’ information work. Carers’ information work is organised by timescales of past, present and future. Paid dementia care staff’s work reveals the broader institutional agendas that shape and constrain the ways that family caregivers experience their information work. As carers contend with information that is ‘fluid’ and ambiguous, differing supports are required to agentively support carers’ information needs.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141817105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-22DOI: 10.1332/23978821y2024d000000068
Annica L. Barcenilla-Wong, Raquel Skaf, Nicola Hancock, Lee-Fay Low
In this article, perceived benefits, facilitators and challenges of peer support offered for and by people living with dementia are explored by comparing peer support provided by Dementia Lifestyle Coach (DLC) and Dementia Alliance International (DAI). Semi-structured interviews were conducted with interviewees from DLC and DAI. Interview recordings were transcribed verbatim and thematically analysed. Peer support offered by DLC and DAI provided connection and emotional and informational support and promoted living well with dementia. Each programme had unique barriers and facilitators. The article concludes that peer support for and by people living with dementia should be considered in post-diagnostic dementia support programmes.
本文通过比较痴呆症生活方式指导中心（DLC）和国际痴呆症联盟（DAI）提供的同伴支持，探讨了为痴呆症患者提供的同伴支持所带来的益处、促进因素和挑战。我们对来自 DLC 和 DAI 的受访者进行了半结构化访谈。对访谈记录进行了逐字转录和主题分析。由 DLC 和 DAI 提供的同伴支持提供了联系、情感和信息支持，并促进了痴呆症患者的健康生活。每项计划都有其独特的障碍和促进因素。文章的结论是，在诊断后痴呆症支持计划中应考虑为痴呆症患者提供同伴支持，以及由痴呆症患者提供同伴支持。
{"title":"Peer support for people with dementia: an exploratory study of two peer support models","authors":"Annica L. Barcenilla-Wong, Raquel Skaf, Nicola Hancock, Lee-Fay Low","doi":"10.1332/23978821y2024d000000068","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000068","url":null,"abstract":"In this article, perceived benefits, facilitators and challenges of peer support offered for and by people living with dementia are explored by comparing peer support provided by Dementia Lifestyle Coach (DLC) and Dementia Alliance International (DAI). Semi-structured interviews were conducted with interviewees from DLC and DAI. Interview recordings were transcribed verbatim and thematically analysed. Peer support offered by DLC and DAI provided connection and emotional and informational support and promoted living well with dementia. Each programme had unique barriers and facilitators. The article concludes that peer support for and by people living with dementia should be considered in post-diagnostic dementia support programmes.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141816403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-19DOI: 10.1332/23978821y2024d000000067
Aleksandra Głos
This article analyses the relevance of the ethics of solidarity for unpaid care and discusses its implications for public health policy. It combines philosophical and health-policy-oriented methodologies and claims that solidarity obliges us not only to care for the most vulnerable populations but also to care with those who care. Both draw attention to the work of carers, who, despite their indispensable contribution, are notoriously invisible to healthcare systems. The article argues for their threefold recognition: as partners in healthcare provision; as co-citizens and employees with special needs; and as a potentially vulnerable population themselves.
{"title":"Recognition of informal carers: a solidarity-based approach","authors":"Aleksandra Głos","doi":"10.1332/23978821y2024d000000067","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000067","url":null,"abstract":"This article analyses the relevance of the ethics of solidarity for unpaid care and discusses its implications for public health policy. It combines philosophical and health-policy-oriented methodologies and claims that solidarity obliges us not only to care for the most vulnerable populations but also to care with those who care. Both draw attention to the work of carers, who, despite their indispensable contribution, are notoriously invisible to healthcare systems. The article argues for their threefold recognition: as partners in healthcare provision; as co-citizens and employees with special needs; and as a potentially vulnerable population themselves.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141823405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-15DOI: 10.1332/23978821y2024d000000065
Kofi Awuviry-Newton, Kwamina Abekah-Carter, Jacob Oppong Nkansah, Brilliant Asamoah, Abdul Rashid Umar
This article explores the experiences of hospitalised older adults concerning the care they receive from family carers. Employing a descriptive qualitative approach, alongside semi-structured interviews, data were gathered from eight older adults admitted to a teaching hospital in the Ashanti Region of Ghana. The nature of care received by older adults and their attitudes towards it emerged as the two overarching themes identified from the data. Given the dissatisfaction levels with the care provided to older adults and the importance of familial support for them, implementing interventions that foster collaboration between the state and families to offer supportive services for older adults and their carers could enhance satisfaction with care and contribute to the sustainability of long-term care for older adults.
{"title":"Exploring care experiences and satisfaction: a descriptive qualitative study of hospitalised older adults","authors":"Kofi Awuviry-Newton, Kwamina Abekah-Carter, Jacob Oppong Nkansah, Brilliant Asamoah, Abdul Rashid Umar","doi":"10.1332/23978821y2024d000000065","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000065","url":null,"abstract":"This article explores the experiences of hospitalised older adults concerning the care they receive from family carers. Employing a descriptive qualitative approach, alongside semi-structured interviews, data were gathered from eight older adults admitted to a teaching hospital in the Ashanti Region of Ghana. The nature of care received by older adults and their attitudes towards it emerged as the two overarching themes identified from the data. Given the dissatisfaction levels with the care provided to older adults and the importance of familial support for them, implementing interventions that foster collaboration between the state and families to offer supportive services for older adults and their carers could enhance satisfaction with care and contribute to the sustainability of long-term care for older adults.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141644341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-12DOI: 10.1332/23978821y2024d000000064
Wenjing Zhang, Rasa Mikelyte, A. Milne
This pilot study examines the role and impact of a coaching intervention on carers’ lives and well-being, drawing on interview data with 12 carers and two coaches. It shows that carers highly value coaching. Reported benefits include: carers feeling listened to and treated as individuals; increased levels of self-awareness, self-care and confidence; and feeling more empowered, in control and able to make choices. Carers also reported improved relationships with their relatives and reduced feelings of hopelessness and anxiety. Further research is needed to capture the impact of coaching on a larger carer population, the sustainability of impact and cost-effectiveness.
{"title":"Evaluating the role and impact of coaching for family carers: a pilot study","authors":"Wenjing Zhang, Rasa Mikelyte, A. Milne","doi":"10.1332/23978821y2024d000000064","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000064","url":null,"abstract":"This pilot study examines the role and impact of a coaching intervention on carers’ lives and well-being, drawing on interview data with 12 carers and two coaches. It shows that carers highly value coaching. Reported benefits include: carers feeling listened to and treated as individuals; increased levels of self-awareness, self-care and confidence; and feeling more empowered, in control and able to make choices. Carers also reported improved relationships with their relatives and reduced feelings of hopelessness and anxiety. Further research is needed to capture the impact of coaching on a larger carer population, the sustainability of impact and cost-effectiveness.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141652585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-08DOI: 10.1332/23978821y2024d000000062
Kristina Westerberg, Robert Lundmark, Maria Nordin, M. Romeo, M. Yepes-Baldó
Poor working conditions and high employee turnover in eldercare have frequently been addressed over the years. The aim of the study is to examine the relation between work overcommitment and employee well-being and turnover intentions in eldercare and whether leader support and role clarity moderate the relation between overcommitment and employee outcomes. A questionnaire was distributed to workplaces in eight Swedish municipalities. The results show that overcommitment was related to employees’ impaired well-being, as well as to their turnover intentions. We also found that leader support buffered the negative effects of overcommitment. The role clarity was quite high; however, it did not have a moderating effect.
{"title":"Overcommitment and employee outcomes in Swedish eldercare: the buffering effects of role clarity and leader support","authors":"Kristina Westerberg, Robert Lundmark, Maria Nordin, M. Romeo, M. Yepes-Baldó","doi":"10.1332/23978821y2024d000000062","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000062","url":null,"abstract":"Poor working conditions and high employee turnover in eldercare have frequently been addressed over the years. The aim of the study is to examine the relation between work overcommitment and employee well-being and turnover intentions in eldercare and whether leader support and role clarity moderate the relation between overcommitment and employee outcomes. A questionnaire was distributed to workplaces in eight Swedish municipalities. The results show that overcommitment was related to employees’ impaired well-being, as well as to their turnover intentions. We also found that leader support buffered the negative effects of overcommitment. The role clarity was quite high; however, it did not have a moderating effect.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141668516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-08DOI: 10.1332/23978821y2024d000000063
Christina David, Deua Stojanovska, Sharlene Nipperess, Caroline Lambert, Caroline Walters, Melissa Petrakis, Amaya Alvarez, Marianne Wyder, Lisa Casaceli, Daniel Gor, Annette Mercuri
{"title":"Setting priorities for mental health family carer research and advocacy in Australia","authors":"Christina David, Deua Stojanovska, Sharlene Nipperess, Caroline Lambert, Caroline Walters, Melissa Petrakis, Amaya Alvarez, Marianne Wyder, Lisa Casaceli, Daniel Gor, Annette Mercuri","doi":"10.1332/23978821y2024d000000063","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000063","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141669923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This review aims to investigate the challenges and family acceptance of Asian and European families caring for children with cerebral palsy. Ten articles were found through searches of four databases. In both Asian and European contexts, the review reveals a variety of challenges faced by families (physical, psychological, social, emotional and financial). Family acceptance plays a substantial role in overcoming these challenges. In Asian contexts, cultural belief, stigma, prejudice and discrimination have a significant impact on family acceptance, whereas in European contexts, family acceptance is affected by children’s and families’ conditions, parents’ optimism, and their access to health and educational services.
{"title":"Challenges and acceptance of families caring for children with cerebral palsy: a scoping review","authors":"Andromeda Andromeda, Nurul Hartini, Suryanto Suryanto","doi":"10.1332/23978821y2024d000000060","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000060","url":null,"abstract":"This review aims to investigate the challenges and family acceptance of Asian and European families caring for children with cerebral palsy. Ten articles were found through searches of four databases. In both Asian and European contexts, the review reveals a variety of challenges faced by families (physical, psychological, social, emotional and financial). Family acceptance plays a substantial role in overcoming these challenges. In Asian contexts, cultural belief, stigma, prejudice and discrimination have a significant impact on family acceptance, whereas in European contexts, family acceptance is affected by children’s and families’ conditions, parents’ optimism, and their access to health and educational services.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141674532","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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