Pub Date : 2024-11-01DOI: 10.1332/239788223X16893442145108
Rachel Collins, Eleanor Dawson, Claire Pentecost, Sally Stapley, Catherine Quinn, Catherine Charlwood, Louise Allan, Christina Victor, Linda Clare
We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles but without appropriate support carers risked reaching crisis point. Evidence points to a need for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.
{"title":"Navigating the coronavirus pandemic two years on: Experiences of carers of people with dementia from the British IDEAL cohort.","authors":"Rachel Collins, Eleanor Dawson, Claire Pentecost, Sally Stapley, Catherine Quinn, Catherine Charlwood, Louise Allan, Christina Victor, Linda Clare","doi":"10.1332/239788223X16893442145108","DOIUrl":"10.1332/239788223X16893442145108","url":null,"abstract":"<p><p>We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles but without appropriate support carers risked reaching crisis point. Evidence points to a need for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.</p>","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" ","pages":"600-621"},"PeriodicalIF":1.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7617182/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42428670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-29DOI: 10.1332/23978821y2023d000000021
Ellen Verbakel, Rosa Glijn
In response to the dominant narrative that informal care episodes become increasingly heavy over time, this study empirically identifies distinct informal care trajectories in terms of developments in care demands (care receivers’ health), intensity (number of hours) and complexity (number and type of tasks) over the course of a care episode. Latent class analysis on 5,595 informal care episodes among 2,884 Dutch carers identified a ‘stable trajectory’ (41 per cent) and ‘decrease trajectory’ (22 per cent) apart from an ‘increase trajectory’ (37 per cent). The trajectories were related to care receivers’ characteristics (age), carers’ difficulty of saying ‘no’ (relationship and obligation) and changes in the care context (living situation).
{"title":"Informal care trajectories: developments in care demands, intensity and complexity over the course of care episodes","authors":"Ellen Verbakel, Rosa Glijn","doi":"10.1332/23978821y2023d000000021","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000021","url":null,"abstract":"In response to the dominant narrative that informal care episodes become increasingly heavy over time, this study empirically identifies distinct informal care trajectories in terms of developments in care demands (care receivers’ health), intensity (number of hours) and complexity (number and type of tasks) over the course of a care episode. Latent class analysis on 5,595 informal care episodes among 2,884 Dutch carers identified a ‘stable trajectory’ (41 per cent) and ‘decrease trajectory’ (22 per cent) apart from an ‘increase trajectory’ (37 per cent). The trajectories were related to care receivers’ characteristics (age), carers’ difficulty of saying ‘no’ (relationship and obligation) and changes in the care context (living situation).","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":" 46","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139143798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-23DOI: 10.1332/23978821y2023d000000022
Nick Morgan, Karolina Gerlich, Lee Stribling
{"title":"Supporting UK care workers through COVID-19: evidence from The Care Workers’ Charity","authors":"Nick Morgan, Karolina Gerlich, Lee Stribling","doi":"10.1332/23978821y2023d000000022","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000022","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"7 12","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138943953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-18DOI: 10.1332/23978821y2023d000000020
Carolin Hess
{"title":"COVID-19 and Social Determinants of Health: Wicked Issues and Relationalism by Adrian Bonner (ed) (2023)","authors":"Carolin Hess","doi":"10.1332/23978821y2023d000000020","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000020","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"26 11","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139173090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-07DOI: 10.1332/23978821y2023d000000015
Odessa McKenna, Afolasade Fakolade, Katherine Cardwell, Lara A Pilutti
This study investigates the lived experiences of multiple sclerosis family carers during the COVID-19 pandemic and explores the impact of the pandemic on psychological resilience processes using a socioecological framework. Following thematic analysis of interviews, two main findings emerged: first, behavioural vigilance intended to mitigate viral spread eclipsed carers’ needs and deprived them of support resources; and, second, multiple sclerosis carers harboured resilience via practices of gratitude and leveraging interpersonal relationships. Future action is needed to develop public crisis responses that integrate multiple sclerosis carers’ needs, including improved care-continuity models, the alleviation of social isolation and advancements in multifaceted wellness preservation.
{"title":"Challenged thriving: a qualitative study of resilience in multiple sclerosis family carers during the COVID-19 pandemic","authors":"Odessa McKenna, Afolasade Fakolade, Katherine Cardwell, Lara A Pilutti","doi":"10.1332/23978821y2023d000000015","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000015","url":null,"abstract":"This study investigates the lived experiences of multiple sclerosis family carers during the COVID-19 pandemic and explores the impact of the pandemic on psychological resilience processes using a socioecological framework. Following thematic analysis of interviews, two main findings emerged: first, behavioural vigilance intended to mitigate viral spread eclipsed carers’ needs and deprived them of support resources; and, second, multiple sclerosis carers harboured resilience via practices of gratitude and leveraging interpersonal relationships. Future action is needed to develop public crisis responses that integrate multiple sclerosis carers’ needs, including improved care-continuity models, the alleviation of social isolation and advancements in multifaceted wellness preservation.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"5 3","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138592036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-07DOI: 10.1332/23978821y2023d000000017
B. Parey
This article examines carers’ potential to care for older adults with disabilities in Trinidad. Quantitative data on willingness, availability and skills, together with qualitative data on factors affecting care potential, were collected from a large, nationally representative sample of Trinidadians. About 68 per cent of Trinidadians were willing to care for older relatives with disabilities, 42 per cent were available and 31 per cent perceived having the required skills. Factors affecting care potential include personal views, potential of social network, competency and constraints. Integrated results indicate the importance of evaluating existing governmental programmes, targeted support for various ethnic groups and to older carers, and skills training.
{"title":"Potential of carers to meet care needs among older adults with disabilities in Trinidad","authors":"B. Parey","doi":"10.1332/23978821y2023d000000017","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000017","url":null,"abstract":"This article examines carers’ potential to care for older adults with disabilities in Trinidad. Quantitative data on willingness, availability and skills, together with qualitative data on factors affecting care potential, were collected from a large, nationally representative sample of Trinidadians. About 68 per cent of Trinidadians were willing to care for older relatives with disabilities, 42 per cent were available and 31 per cent perceived having the required skills. Factors affecting care potential include personal views, potential of social network, competency and constraints. Integrated results indicate the importance of evaluating existing governmental programmes, targeted support for various ethnic groups and to older carers, and skills training.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"57 12","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138593524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-04DOI: 10.1332/23978821y2023d000000018
Stacey Rand, Lavinia Bertini, A. Dargan, Monique Raats, Rebecca Sharp
{"title":"Developing a framework for reflection on policy-relevant care research using a study of older adults’ food and drink care-related needs","authors":"Stacey Rand, Lavinia Bertini, A. Dargan, Monique Raats, Rebecca Sharp","doi":"10.1332/23978821y2023d000000018","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000018","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"19 8","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138603361","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-24DOI: 10.1332/23978821y2023d000000014
Gabriela Gallardo Lastra
{"title":"Transforming Care Conference 2023: boundaries, transitions and crisis contexts","authors":"Gabriela Gallardo Lastra","doi":"10.1332/23978821y2023d000000014","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000014","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"80 5","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-11-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139239095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-23DOI: 10.1332/23978821y2023d000000016
Ana Marrades-Puig
The COVID-19 crisis has demonstrated the extreme vulnerability of the human being and the importance of care within the framework of a social state. This crisis has also brought pre-existing inequalities to light, showing that it is mainly women who continue to take up the tasks of care as they have always done. Indeed, care work has always been carried out by women and this dedication has contributed to diminishing the exercise of other rights, so it is essential to take on the tasks of care by the family and the State in a co-responsible manner. This problem has been taken into consideration by the studies on constitutional reform in Spain in order to prepare a text that includes the right to care, and the rights of caregivers as well. The purpose of this work is to highlight this need and to make proposals to improve the Spanish constitutional framework.
{"title":"The right to care: a proposal from feminist perspectives for a constitutional reform in Spain","authors":"Ana Marrades-Puig","doi":"10.1332/23978821y2023d000000016","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000016","url":null,"abstract":"The COVID-19 crisis has demonstrated the extreme vulnerability of the human being and the importance of care within the framework of a social state. This crisis has also brought pre-existing inequalities to light, showing that it is mainly women who continue to take up the tasks of care as they have always done. Indeed, care work has always been carried out by women and this dedication has contributed to diminishing the exercise of other rights, so it is essential to take on the tasks of care by the family and the State in a co-responsible manner. This problem has been taken into consideration by the studies on constitutional reform in Spain in order to prepare a text that includes the right to care, and the rights of caregivers as well. The purpose of this work is to highlight this need and to make proposals to improve the Spanish constitutional framework.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"2 1","pages":""},"PeriodicalIF":1.4,"publicationDate":"2023-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139245765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-10DOI: 10.1332/23978821y2023d000000013
Maria Nilsson
{"title":"Care Technologies for Ageing Societies: An International Comparison by K. Hamblin and M. Lariviere (eds) (2023)","authors":"Maria Nilsson","doi":"10.1332/23978821y2023d000000013","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000013","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":"87 14","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135091447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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