Pub Date : 2023-10-03DOI: 10.1332/23978821y2023d000000005
Amy E. Hodel, Sarah E. Barron, Anca M. Miron
A total of 60 young adults responded to vignettes presenting moral dilemmas experienced in caregiving interactions with a family member with dementia. Four types of reasons for deceiving (or not deceiving) a family member with dementia emerged: care reasons (improving the welfare of the person with dementia), justice reasons (universal principles), care-for-others reasons (protecting the welfare of others), and relationship reasons (maintaining the relationship). Care reasons and care-for-others reasons positively predicted moral decisions to lie, whereas justice reasons and relationship reasons negatively predicted these decisions. These findings underscore the importance of understanding the motives underlying deception in dementia relationships.
{"title":"Lying as a moral choice: an examination of moral reasons for lying in dementia relationships","authors":"Amy E. Hodel, Sarah E. Barron, Anca M. Miron","doi":"10.1332/23978821y2023d000000005","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000005","url":null,"abstract":"A total of 60 young adults responded to vignettes presenting moral dilemmas experienced in caregiving interactions with a family member with dementia. Four types of reasons for deceiving (or not deceiving) a family member with dementia emerged: care reasons (improving the welfare of the person with dementia), justice reasons (universal principles), care-for-others reasons (protecting the welfare of others), and relationship reasons (maintaining the relationship). Care reasons and care-for-others reasons positively predicted moral decisions to lie, whereas justice reasons and relationship reasons negatively predicted these decisions. These findings underscore the importance of understanding the motives underlying deception in dementia relationships.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135696052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-11DOI: 10.1332/23978821y2023d000000001
Lea Graff, Mia Vabø
Reablement has been positioned as a superior care ideal distinct from home care. Drawing on cross-national ethnographic data, this article instead demonstrates how the continuity and interdependency between reablement and conventional home care is more significant than suggested by policy rhetoric. Findings highlight the continuities and overlaps between activating and compensatory care, for example, how compensatory care might take the form of psychosocial reablement, activating and enabling even the frailest clients to age in place. The article concludes by pointing to the dangers of a narrow conception of reablement and argues for the benefits of more focused attention on clients’ psychosocial well-being.
{"title":"Unravelling the dichotomisation of care and reablement: an ethnographic exploration of contradictions between policy rhetoric and practice in Danish and Norwegian eldercare","authors":"Lea Graff, Mia Vabø","doi":"10.1332/23978821y2023d000000001","DOIUrl":"https://doi.org/10.1332/23978821y2023d000000001","url":null,"abstract":"Reablement has been positioned as a superior care ideal distinct from home care. Drawing on cross-national ethnographic data, this article instead demonstrates how the continuity and interdependency between reablement and conventional home care is more significant than suggested by policy rhetoric. Findings highlight the continuities and overlaps between activating and compensatory care, for example, how compensatory care might take the form of psychosocial reablement, activating and enabling even the frailest clients to age in place. The article concludes by pointing to the dangers of a narrow conception of reablement and argues for the benefits of more focused attention on clients’ psychosocial well-being.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135938345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-08DOI: 10.1332/239788221x16917415568825
Katharine Orellana, K. Samsi, Jill Manthorpe, Caroline Green
The closure of day centres during the COVID-19 pandemic placed these, generally under-researched, services of day centres under the spotlight. We report priority areas for support and research concerning English adult and older people’s day centres identified by a 2021 survey. Day centres and other day centre stakeholders have an appetite for evidence and supportive resource materials, covering how to remain current and sustainable, demonstrate impact, and support the workforce. An underlying focus on day centres for older people and people living with dementia suggested that centres catering for these groups experienced the most difficulty in providing appealing evidence to service funders.
{"title":"Priorities for day centre support and research, and the importance of centralised supportive information for day centres and their stakeholders","authors":"Katharine Orellana, K. Samsi, Jill Manthorpe, Caroline Green","doi":"10.1332/239788221x16917415568825","DOIUrl":"https://doi.org/10.1332/239788221x16917415568825","url":null,"abstract":"The closure of day centres during the COVID-19 pandemic placed these, generally under-researched, services of day centres under the spotlight. We report priority areas for support and research concerning English adult and older people’s day centres identified by a 2021 survey. Day centres and other day centre stakeholders have an appetite for evidence and supportive resource materials, covering how to remain current and sustainable, demonstrate impact, and support the workforce. An underlying focus on day centres for older people and people living with dementia suggested that centres catering for these groups experienced the most difficulty in providing appealing evidence to service funders.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43962667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-07DOI: 10.1332/239788221x16916503736939
Emily Burn, Sam Redgate, Catherine Needham, Stephen Peckham
Many countries are reforming long-term care to deal with the social risks created by demographic and social change. However, the passage of legislation is often followed by a new set of challenges as policy is implemented. This article examines England’s Care Act 2014 through Compton and ‘t Hart’s criteria of policy endurance to demonstrate the importance of assessing effectiveness at multiple time points. Early success in ‘implementation readiness’ was followed by the abandonment or dilution of key commitments. Yet, the Act’s foundational principles – well-being, prevention and capping private spending – continue to shape care policy, much as its original supporters hoped.
{"title":"Implementing England’s Care Act 2014: was the Act a success and when will we know?","authors":"Emily Burn, Sam Redgate, Catherine Needham, Stephen Peckham","doi":"10.1332/239788221x16916503736939","DOIUrl":"https://doi.org/10.1332/239788221x16916503736939","url":null,"abstract":"Many countries are reforming long-term care to deal with the social risks created by demographic and social change. However, the passage of legislation is often followed by a new set of challenges as policy is implemented. This article examines England’s Care Act 2014 through Compton and ‘t Hart’s criteria of policy endurance to demonstrate the importance of assessing effectiveness at multiple time points. Early success in ‘implementation readiness’ was followed by the abandonment or dilution of key commitments. Yet, the Act’s foundational principles – well-being, prevention and capping private spending – continue to shape care policy, much as its original supporters hoped.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-09-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44404647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-07DOI: 10.1332/239788221x16887228610432
Abigail Dunn, Paul A. Tiffin, M. Wilberforce
Homecare providers face acute staff shortages, yet identifying new candidates with values aligned to person-centred care is challenging. This study aimed to develop and provisionally evaluate situational judgement tests to support recruitment. A total of 11 in-depth interviews with homecare workers yielded 59 ‘critical incidents’ in which person-centred values were tested. Draft scenarios were developed alongside behavioural response options, and a scoring key was devised by 15 people with lived experiences. After piloting, the final situational judgement tests comprised 11 scenarios with 63 response options. Homecare providers reported high acceptability and feasibility, feeling that the situational judgement tests could support recruitment. Future research will test their psychometric properties.
{"title":"Promoting person-centred care in the home support of older people through situational judgement tests: a feasibility study","authors":"Abigail Dunn, Paul A. Tiffin, M. Wilberforce","doi":"10.1332/239788221x16887228610432","DOIUrl":"https://doi.org/10.1332/239788221x16887228610432","url":null,"abstract":"Homecare providers face acute staff shortages, yet identifying new candidates with values aligned to person-centred care is challenging. This study aimed to develop and provisionally evaluate situational judgement tests to support recruitment. A total of 11 in-depth interviews with homecare workers yielded 59 ‘critical incidents’ in which person-centred values were tested. Draft scenarios were developed alongside behavioural response options, and a scoring key was devised by 15 people with lived experiences. After piloting, the final situational judgement tests comprised 11 scenarios with 63 response options. Homecare providers reported high acceptability and feasibility, feeling that the situational judgement tests could support recruitment. Future research will test their psychometric properties.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-09-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47612426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-31DOI: 10.1332/239788221x16890895484088
Hugo A. Garciamarín Hernández, Ana Heatley Tejada
In this article, a methodological proposal for the analysis of the state’s actions on care is developed. We consider care as a way of inhabiting the world, and from this conception, we further argue it is a way of governing. Then, we elaborate on some considerations on the state’s field of action in care matters. Next, we propose a methodology to identify and classify those state actions that can be considered care actions. Finally, we exemplify its use with the Mexican federal budget of 2022. We find that care policies receive only 0.4 per cent of the total budget.
{"title":"State, public policy and care: a methodology for the analysis of state policy on care","authors":"Hugo A. Garciamarín Hernández, Ana Heatley Tejada","doi":"10.1332/239788221x16890895484088","DOIUrl":"https://doi.org/10.1332/239788221x16890895484088","url":null,"abstract":"In this article, a methodological proposal for the analysis of the state’s actions on care is developed. We consider care as a way of inhabiting the world, and from this conception, we further argue it is a way of governing. Then, we elaborate on some considerations on the state’s field of action in care matters. Next, we propose a methodology to identify and classify those state actions that can be considered care actions. Finally, we exemplify its use with the Mexican federal budget of 2022. We find that care policies receive only 0.4 per cent of the total budget.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49018374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-30DOI: 10.1332/239788221x16903916006520
J. Stovall, Lorita Daniels, Laurie M. Slifka
Caregiving for persons with severe mental health disorders is associated with higher stress levels and a lower quality of life. As rates of mental health disorders increase worldwide, the need for assisting familial caregivers with strategies to reduce stress is paramount. The present study examines the relationships between empathy (cognitive and affective), emotional intelligence and stress in these caregivers. A parallel mediation model demonstrates that cognitive empathy, in particular, partially mediated the negative relationship between emotional intelligence and stress, indicating the importance of cognitive empathy in caregiving. The results of this study can help design targeted interventions to reduce caregiver stress.
{"title":"Empathy, emotional intelligence and cohabitant caregiver stress: caring for persons with severe mental health disorders","authors":"J. Stovall, Lorita Daniels, Laurie M. Slifka","doi":"10.1332/239788221x16903916006520","DOIUrl":"https://doi.org/10.1332/239788221x16903916006520","url":null,"abstract":"Caregiving for persons with severe mental health disorders is associated with higher stress levels and a lower quality of life. As rates of mental health disorders increase worldwide, the need for assisting familial caregivers with strategies to reduce stress is paramount. The present study examines the relationships between empathy (cognitive and affective), emotional intelligence and stress in these caregivers. A parallel mediation model demonstrates that cognitive empathy, in particular, partially mediated the negative relationship between emotional intelligence and stress, indicating the importance of cognitive empathy in caregiving. The results of this study can help design targeted interventions to reduce caregiver stress.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41512259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-30DOI: 10.1332/239788221x16909940695901
Kristin Häikiö, J. Rugkåsa
Many family carers of older people living with dementia report reduced quality of life, but limited research has investigated what they believe could improve it. Our thematic analysis of in-depth interviews with 23 family carers questions the standardisation of carer support and the appropriateness of the current scope of services, and suggests strengthening carers’ independent right to support. We propose the notion of a ‘care–life balance’, which also draws attention to the different logics inherent in informal and formal care that future service development should seek to reconcile to better support families affected by dementia.
{"title":"Seeking a care–life balance: family carers’ perspectives on how quality of life can improve when caring for an older person living with dementia","authors":"Kristin Häikiö, J. Rugkåsa","doi":"10.1332/239788221x16909940695901","DOIUrl":"https://doi.org/10.1332/239788221x16909940695901","url":null,"abstract":"Many family carers of older people living with dementia report reduced quality of life, but limited research has investigated what they believe could improve it. Our thematic analysis of in-depth interviews with 23 family carers questions the standardisation of carer support and the appropriateness of the current scope of services, and suggests strengthening carers’ independent right to support. We propose the notion of a ‘care–life balance’, which also draws attention to the different logics inherent in informal and formal care that future service development should seek to reconcile to better support families affected by dementia.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41689121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-29DOI: 10.1332/239788223x16893442145108
Rachel Collins, E. Dawson, C. Pentecost, S. Stapley, C. Quinn, Catherine Charlwood, L. Allan, C. Victor, L. Clare
We explored carers’ experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies from carers participating in a British longitudinal cohort study. Semi-structured interview data were compared to accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles, but without appropriate support, carers risked reaching crisis point. Evidence points to a requirement for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.
{"title":"Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort","authors":"Rachel Collins, E. Dawson, C. Pentecost, S. Stapley, C. Quinn, Catherine Charlwood, L. Allan, C. Victor, L. Clare","doi":"10.1332/239788223x16893442145108","DOIUrl":"https://doi.org/10.1332/239788223x16893442145108","url":null,"abstract":"We explored carers’ experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies from carers participating in a British longitudinal cohort study. Semi-structured interview data were compared to accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles, but without appropriate support, carers risked reaching crisis point. Evidence points to a requirement for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42428670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-08-28DOI: 10.1332/239788221x16890880355113
E. Verbakel, Mark Visser, Klara Raiber
This study sets out to identify and describe informal care trajectories over the lifecourse in the Netherlands, and evaluate theoretical ideas on informal care trajectories. We conduct latent profile analysis on a sample of 949 respondents who retrospectively reported on all informal care episodes they had ever experienced, based on the number of episodes, age at first caring episode, duration and overlap. We identified four informal care trajectories – the one-time partner, mid-aged parental, serial and lifelong care trajectories – and assessed their differences in felt obligation, intensity and task complexity. The theoretical ideas of Keating and colleagues find support in our empirical evidence.
{"title":"Informal care trajectories over the lifecourse in the Netherlands","authors":"E. Verbakel, Mark Visser, Klara Raiber","doi":"10.1332/239788221x16890880355113","DOIUrl":"https://doi.org/10.1332/239788221x16890880355113","url":null,"abstract":"This study sets out to identify and describe informal care trajectories over the lifecourse in the Netherlands, and evaluate theoretical ideas on informal care trajectories. We conduct latent profile analysis on a sample of 949 respondents who retrospectively reported on all informal care episodes they had ever experienced, based on the number of episodes, age at first caring episode, duration and overlap. We identified four informal care trajectories – the one-time partner, mid-aged parental, serial and lifelong care trajectories – and assessed their differences in felt obligation, intensity and task complexity. The theoretical ideas of Keating and colleagues find support in our empirical evidence.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2023-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44321749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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