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Shared Decision-Making Among Women Diagnosed with Breast Cancer: A Phenomenological Study and Exploration into Health Literacy Education 乳腺癌患者的共同决策:健康素养教育的现象学研究与探索
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2093086
Antonio P. DeRosa, Michelle R. Demetres, Ryan R. McComas
Abstract Little is known about how women with breast cancer experience making decisions in collaboration with their medical provider, and how these patient-provider interactions affect autonomy in choosing a treatment option. The purpose of the study is to examine the patient experience with shared decision-making (SDM) among women diagnosed with breast cancer and to explore more effective ways of educating patients when they are faced with a critical treatment choice. The research questions include: (1) What is the meaning of SDM from the perspective of women diagnosed with breast cancer? (2) What facilitates and inhibits SDM around medical treatments for women diagnosed with breast cancer? (3) What kind of health literacy education do women with breast cancer need to better support SDM? Using a phenomenological design and inductive thematic analysis procedure, a purposive sample of 6 women diagnosed with breast cancer were recruited from an academic medical center, consented, and interviewed. Ultimately, participants viewed the SDM process as empowering, self-advocating, collaborative, and inclusive. Participants described key concepts like trust, lack of understanding/ambiguity, social support, and religion/faith as important indicators for SDM. Participants also cited nutrition and mental health literacy, treatment and medication literacy, community education, and high-quality health information as priority areas for education. Conclusions and implications for practice include creating inclusive environments for patients, encouraging empowerment, utilizing diverse and multidisciplinary teams, and providing reliable health information. Future researchers should investigate how SDM may lead to increased satisfaction and improved treatment outcomes.
摘要对于患有癌症的女性如何与医疗提供者合作做出决策,以及这些患者与提供者的互动如何影响选择治疗方案的自主性,我们知之甚少。本研究的目的是检查癌症诊断女性的共享决策(SDM)患者体验,并探索在患者面临关键治疗选择时教育患者的更有效方法。研究问题包括:(1)从癌症诊断女性的角度来看,SDM的意义是什么?(2) 是什么促进和抑制诊断为癌症妇女的医疗SDM?(3) 癌症女性需要什么样的健康素养教育才能更好地支持SDM?采用现象学设计和归纳主题分析程序,从一家学术医疗中心招募了6名被诊断为癌症的女性,并对其进行了同意和访谈。最终,参与者认为SDM过程是赋权、自我倡导、协作和包容的。参与者将信任、缺乏理解/歧义、社会支持和宗教/信仰等关键概念描述为SDM的重要指标。与会者还将营养和心理健康知识、治疗和药物知识、社区教育以及高质量的健康信息列为优先教育领域。结论和对实践的影响包括为患者创造包容性的环境,鼓励赋权,利用多样化和多学科的团队,以及提供可靠的健康信息。未来的研究人员应该研究SDM如何提高满意度和改善治疗结果。
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引用次数: 3
Is YouTube® Adequate as a Source of Patient Information for Intravenous Sedation in Dentistry? YouTube®是否足以作为牙科静脉镇静的患者信息来源?
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2097430
G. Erkan, M. Önder
Abstract Objective According to the results of the research conducted by the Pew Research Center in the USA, 80% of adult Internet users search for health on the Internet, and treatment decisions of 58% of them are affected by the information obtained. YouTube® is the most popular video-sharing platform globally, and many health-related videos are available. However, the information quality of YouTube® videos on intravenous sedation in dentistry is unclear. This study aimed to evaluate the information quality of YouTube® videos on “intravenous sedation in dentistry.” Materials and methods “Intravenous sedation in dentistry” was searched on YouTube®, and the first 200 videos were listed. Video features, i.e., like ratio (LR) and video power index (VPI), were recorded. The quality of videos was evaluated using the DISCERN questionnaire, Global Quality Score (GQS), and Journal of the American Medical Association (JAMA) score. Results The study included 130 videos, and 73.1% of the videos were published by private dental hospitals. However, 96.9% of the videos were of low quality considering the DISCERN total score. Only 14.6% of the videos with GQS and 1.5% with JAMA were of acceptable quality (score ≥3). Videos with “Fair” DISCERN total score and the DQ score of 4 had significantly higher VPI, view ratio, and number of comments. The VPI and view ratio were significantly higher in videos with a GQS score of 4. Moreover, the video quality was positively correlated with the video duration. Conclusion YouTube® content about intravenous sedation in dentistry was generally of low quality. It has been demonstrated that users viewed higher quality videos more and higher quality videos were more popular about “IV sedation in dentistry.” Thus, patients could be informed effectively and adequately by uploading accurate and quality YouTube® videos created by authorized institutions, anesthesiologists, and dentists.
摘要目的根据美国皮尤研究中心的研究结果,80%的成年互联网用户在互联网上搜索健康信息,其中58%的人的治疗决策受到所获得信息的影响。YouTube®是全球最受欢迎的视频共享平台,提供了许多与健康相关的视频。然而,关于牙科静脉镇静的YouTube®视频的信息质量尚不清楚。本研究旨在评估YouTube®关于“牙科静脉镇静”的视频的信息质量。在YouTube®上搜索“牙科静脉麻醉”的材料和方法,列出了前200个视频。记录视频特征,如比率(LR)和视频功率指数(VPI)。视频质量使用DISCERN问卷、全球质量评分(GQS)和美国医学会杂志(JAMA)评分进行评估。结果本研究共收录130个视频,其中73.1%的视频由私立口腔医院发布。然而,考虑到DISCERN总分,96.9%的视频质量较低。只有14.6%的GQS视频和1.5%的JAMA视频质量合格(得分≥3)。总分为“尚可”且DQ得分为4的视频具有显著更高的VPI、观看率和评论数量。GQS评分为4的视频的VPI和观看率明显更高。此外,视频质量与视频持续时间呈正相关。结论YouTube®关于牙科静脉镇静的内容质量普遍较低。事实证明,用户观看质量更高的视频的次数更多,关于“牙科IV镇静”的质量更高视频也更受欢迎。因此,通过上传由授权机构、麻醉师和牙医创建的准确、高质量的YouTube®视频,患者可以得到有效和充分的信息。
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引用次数: 0
Consumer Health Information for Basic Radiation Safety 基本辐射安全的消费者健康信息
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100210
Deidre Rios, Kenya Haugen
Abstract Patients can require imaging for several reasons. Many are for something other than annual checkups, and this can cause undue stress or fear of radiation. For parents, caregivers, and patients alike, understanding the basics of radiation and how to stay safe and get the imaging exams needed can be daunting. The information provided here will help patients and their caregivers understand the benefits and risks of radiation, and inform them not only about how radiation works, but also where and how they may encounter radiation.
患者可能出于几个原因需要影像学检查。许多人都是为了做年度检查以外的事情,这可能会导致过度的压力或对辐射的恐惧。对于家长、护理人员和病人来说,了解辐射的基本知识以及如何保证安全并进行必要的影像学检查可能会令人望而生畏。这里提供的信息将帮助患者和他们的护理人员了解辐射的好处和风险,不仅告诉他们辐射是如何起作用的,而且告诉他们在哪里和如何可能遇到辐射。
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引用次数: 0
Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs 医疗家庭门户网站:将父母和临床医生与有特殊保健需求的儿童和青少年的高质量信息联系起来
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100177
Shawn Steidinger
Abstract Nearly one fifth of children in the United States have special healthcare needs, but their pediatricians may only deal with 1–3 patients who fall into the category of rare or chronic disease. Where can they find information on treating these conditions when they do not confront them very often? And where can the families of these children find quality information to help care for them? One website that covers both of these situations is the Medical Home Portal. This review will describe the Medical Home Portal website, and discuss the purpose of the site, the site's strengths and weaknesses, and who should use this resource.
在美国,近五分之一的儿童有特殊的医疗需求,但他们的儿科医生可能只处理1-3名属于罕见或慢性疾病的患者。当他们不经常面对这些问题时,他们在哪里可以找到治疗这些疾病的信息?这些孩子的家庭在哪里可以找到高质量的信息来帮助照顾他们?一个涵盖这两种情况的网站是医疗家庭门户网站。本综述将描述医疗家庭门户网站,并讨论该网站的目的,该网站的优势和劣势,以及谁应该使用该资源。
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引用次数: 0
An Ecological Model Analysis of COVID-19 Social Media Posts 新冠肺炎社交媒体帖子的生态模型分析
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2081910
Suzanne Grossman, J. Alber, D. Henry, David A. Askay, Hunter Glanz, Erika Marts, Anna Ostrander
Abstract This study examined prevention and coping content related to COVID-19 on social media. Publicly available social media posts were examined by levels of the social ecological model (SEM) and by platform (Instagram, TikTok, Twitter). Using systematic random sampling, 1579 public posts were collected from March 2020 to June 2020 using COVID-19 hashtags. Of these, 663 posts written in English about COVID-19 were included. Content was coded by platform, strategies for reducing risk, strategies for coping with stress, and SEM level(s). In total, 41.18% of the posts mentioned a strategy for reducing risk. Few posts mentioned coping strategies (5%). Slightly less than half of the posts focused on the individual level (42.1%). Both the strategies mentioned for reducing risk and SEM levels referenced in each post varied significantly by platform. Results suggest that social media may provide insight into the type of health information the public receives as well as the public’s strategies for reducing risk and coping; however, there is variation among platforms.
摘要本研究调查了社交媒体上与新冠肺炎相关的预防和应对内容。公开发布的社交媒体帖子按社会生态模型(SEM)和平台(Instagram、TikTok、Twitter)的级别进行了检查。使用系统随机抽样,从2020年3月到2020年6月,使用新冠肺炎标签收集了1579篇公共帖子。其中包括663篇关于新冠肺炎的英文帖子。内容按平台、降低风险的策略、应对压力的策略和SEM级别进行编码。总的来说,41.18%的帖子提到了降低风险的策略。很少有帖子提到应对策略(5%)。略低于一半的帖子专注于个人层面(42.1%)。每个帖子中提到的降低风险的策略和SEM水平因平台而异。研究结果表明,社交媒体可以深入了解公众收到的健康信息类型,以及公众降低风险和应对策略;然而,各平台之间存在差异。
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引用次数: 0
The Complete Guide to Food Allergies in Adults and Children 成人和儿童食物过敏完整指南
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100165
Kristen Burroughs
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引用次数: 0
What About Mom? Teen: Usability of a Postpartum App for Teen Mothers 妈妈呢?青少年:产后应用程序对青少年母亲的可用性
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2109096
Cassidy Faught, C. Howe, A. Raines-Milenkov, Teresa Wagner
Abstract Introduction There exists a paucity of literature on availability of health literate, virtual postpartum symptom education empowering adolescent moms to seek urgent medical care when needed. With few postpartum health-related Apps on the market, a gap remains in research of their potential to deliver postpartum symptom instruction. This study examined the usability of the What About Mom App? for adolescent mothers to identify and act on urgent complications potentially reducing morbidity and mortality for this high-risk group. Methods Participants were recruited via email lists and social media of community partners serving new mothers in both English and Spanish in the United States. Participants completed a survey that assessed their e-health literacy and perception of the quality and usability of the What About Mom Apps ? using the User Version Mobility Assessment Rating Scale (uMARS). Results After data cleaning, 159 credible responses were retained for analysis. Participant mean total score for eHEALS was 30.2 (range 9–40; SD 5.9) indicating adequate e-health literacy. The uMARS scores indicate the quality and usability of the app. Compared with the norms in each of the uMARS domains, Functionality was the only category that scored below the standard. Qualitative suggestions were made from the participants to improve Functionality. Discussion The uMARS scores added valuable information to modify the What About Mom App? to improve ease of delivery of health literate postpartum health information. Apps including The What About Mom App? offer promising interventions that can help increase healthcare engagement for moms of all ages to reduce maternal morbidity and mortality.
摘要引言缺乏关于健康知识、虚拟产后症状教育的可用性的文献,这些教育使青春期母亲能够在需要时寻求紧急医疗护理。由于市场上很少有产后健康相关的应用程序,对其提供产后症状指导的潜力的研究仍然存在差距。这项研究考察了What About Mom应用程序的可用性?让青春期母亲识别紧急并发症并采取行动,这可能会降低这一高危人群的发病率和死亡率。方法通过电子邮件列表和社交媒体招募参与者,社区合作伙伴为美国新妈妈提供英语和西班牙语服务。参与者完成了一项调查,评估了他们的电子健康素养以及对妈妈应用程序的质量和可用性的看法?使用用户版本移动性评估评级量表(uMARS)。结果数据清理后,保留了159个可信的应答进行分析。参与者的eHEALS平均总分为30.2(范围为9-40;SD 5.9),表明其具备足够的电子健康素养。uMARS分数表示应用程序的质量和可用性。与每个uMARS领域的标准相比,功能是唯一得分低于标准的类别。参与者提出了改进功能的定性建议。讨论uMARS分数为修改妈妈应用程序添加了有价值的信息?以提高提供健康知识产后健康信息的便利性。应用程序包括“妈妈怎么办”应用程序?提供有前景的干预措施,有助于提高所有年龄段母亲的医疗参与度,以降低孕产妇发病率和死亡率。
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引用次数: 0
New Technological Innovations to Improve Balance against Falling in Older Adults: Exergaming, Virtual Reality and Augmented Realty 提高老年人平衡能力的新技术创新:游戏、虚拟现实和增强现实
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2113303
H. Epstein
Abstract Older adults fall and live with the fear of falling. Until recently vitamin D to strengthen bones, Tai Chi and other slow deliberate exercises have been prescribed. Recent studies introducing these adults to newer technological innovations such as the Nintendo Wii and Microsoft HoloLens and Oculus from Meta show enjoyment of using the equipment, improvement with balance, reduced fear of falling and stronger feelings of independence. This column reports the troubling statistics of older adults falling, introduces technological innovations and highlights studies using these tools.
老年人摔倒,生活在对摔倒的恐惧中。直到最近,维生素D增强骨骼,太极和其他缓慢的刻意练习已经被规定。最近的研究向这些成年人介绍了更新的技术创新,如任天堂Wii和微软HoloLens和Meta的Oculus,显示出使用这些设备的乐趣,平衡能力的提高,对摔倒的恐惧减少和更强的独立感。本专栏报道了老年人跌倒的令人不安的统计数据,介绍了技术创新,并重点介绍了使用这些工具的研究。
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引用次数: 0
Understanding the Silent Killer: A Review of NIAAA, the National Institute on Alcohol Abuse and Alcoholism 理解沉默的杀手:NIAAA的评论,国家酒精滥用和酒精中毒研究所
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100167
Jeannine Creazzo
Abstract Established in 1970 as a part of the National Institute of Mental Health (NIMH), the National Institute on Alcohol Abuse and Alcoholism (NIAAA) has grown into the world’s largest funder of alcohol research. An independent institute of the National Institutes of Health, the NIAAA’s website, https://www.niaaa.nih.gov provides a wealth of resources for researchers, health professionals, and the public, including where to find help. The NIAAA’s ongoing efforts reflect their role as the United States’ primary source of evidence-based information on alcohol and health, in addition to conducting and supporting research and influencing legislation.
美国国家酒精滥用与酒精中毒研究所(NIAAA)成立于1970年,是美国国家精神卫生研究所(NIMH)的一部分,现已发展成为世界上最大的酒精研究资助机构。NIAAA是美国国立卫生研究院的一个独立机构,它的网站https://www.niaaa.nih.gov为研究人员、卫生专业人员和公众提供了丰富的资源,包括在哪里寻求帮助。除了开展和支持研究以及影响立法之外,美国酒精与健康协会正在进行的努力反映了它作为美国关于酒精与健康的循证信息的主要来源的作用。
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引用次数: 0
Dignity for Deeply Forgetful People: How Caregivers Can Meet the Challenges of Alzheimer’s Disease 严重健忘的人的尊严:护理人员如何应对阿尔茨海默病的挑战
IF 0.8 Q3 Social Sciences Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100166
Kristen Burroughs
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引用次数: 0
期刊
Journal of Consumer Health on the Internet
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