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Recalls.gov: Your Online Resource for Recalls recall .gov:您的在线召回资源
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2136913
Bethany Figg
Abstract The United States Food and Drug Administration, National Highway Traffic Safety Administration, United States Environmental Protection Agency, The United States Department of Agriculture, United States Coast Guard, and United States Consumer Product Safety Commission joined together to provide alerts for the American people when products are unsafe, hazardous, or defective. While in need of an update, Recalls.gov provides one web page where consumers can obtain recall information, report a dangerous product, and learn important safety updates to stay healthy.
美国食品和药物管理局、国家公路交通安全管理局、美国环境保护局、美国农业部、美国海岸警卫队和美国消费者产品安全委员会联合起来,在产品不安全、危险或有缺陷时向美国人民提供警报。在需要更新的时候,召回网站提供了一个网页,消费者可以在上面获得召回信息,报告危险产品,并了解重要的安全更新以保持健康。
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引用次数: 0
All of Us: A National Effort to Improve Health 我们所有人:改善健康的国家努力
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2138058
H. Epstein
Abstract In healthcare one size does not fit all. If one was ill, wouldn’t it be great for them to receive medicines made precisely for them? It is the aim of the All of Us campaign to do just that. Overtime, All of Us hopes to collect one million DNA samples and other valuable health information from a diverse group of people in the United States by about 2024. Studying these samples will reveal to researchers likenesses and differences across the samples to improve health by creating precise personal remedies and treatments. This column introduces the All of Us campaign, illustrates the research efforts using the All of Us data and closes with where one can contribute to this monumental effort.
摘要在医疗保健领域,一种尺寸并不适合所有人。如果一个人生病了,他们能得到专门为他们制作的药物不是很好吗?我们所有人运动的目的就是要做到这一点。随着时间的推移,All of Us希望在2024年左右从美国不同人群中收集100万份DNA样本和其他有价值的健康信息。研究这些样本将向研究人员揭示样本之间的相似性和差异,通过创造精确的个人疗法和治疗方法来改善健康。本专栏介绍了“我们所有人”运动,说明了使用“我们所有的人”数据进行的研究工作,并结束了人们可以为这一巨大努力做出贡献的地方。
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引用次数: 0
Restart: Designing a Healthy Post-Pandemic Life 重新开始:设计健康的大流行后生活
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2136915
Andrea Slonosky
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引用次数: 1
Alone We Are Rare, Together We Are Strong: A Review of the National Organization for Rare Disorders (NORD®) 独自我们罕见,团结我们强大:国家罕见疾病组织(NORD®)综述
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2139492
Kat Phillips
Abstract The National Organization for Rare Disorders, or NORD®, is a robust resource suitable for patients, families, clinicians, researchers, and advocates of those living with or impacted by rare diseases. Given that rare diseases affect around 30 million people in the United States, half of which are estimated to be children, it is vital to have access to credible and accessible information. An added bonus of NORD is their staunch advocacy platform, which brings to light other consumer health information which may otherwise be hard to find. This consumer health resource review covers the consumer-focused aspects of NORD.
摘要国家罕见病组织(NORD®)是一个强大的资源,适合患者、家庭、临床医生、研究人员和罕见病患者或受罕见病影响者的倡导者。鉴于罕见病影响着美国约3000万人,其中一半估计是儿童,获得可信和可获取的信息至关重要。NORD的一个额外好处是他们坚定的宣传平台,它揭示了其他可能很难找到的消费者健康信息。本消费者健康资源审查涵盖了NORD以消费者为中心的方面。
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引用次数: 0
Is the Authoritative Online COVID-19 Consumer Health Information Intelligible to Adults of the General Public?: A COVID-19 Information Analysis 权威的在线COVID-19消费者健康信息能被普通公众的成年人理解吗?: COVID-19信息分析
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2124493
Feili Tu-Keefner, April Hobbs, Abby Bricker
Abstract Objective To investigate whether the authoritative COVID-19 consumer health information provided by the Centers for Disease Control and Prevention (CDC) in the United States (U.S.) and the World Health Organization (WHO) is at low readability levels (i.e., at or below a sixth-grade reading level). Major public health organizations, such as these have quickly distributed authoritative COVID-19 health information on the Internet during the pandemic. However, scant research has assessed whether the information disseminated by these two major public health organizations enables access by adults from the general public. This study examines the Flesch-Kincaid grade levels of the COVID-19 health information in English distributed by the CDC and the WHO. Design The study is guided by communication and information science frameworks. It examines the reading level of the resources to see if they are compatible with the guidelines of the American Medical Association for patient education materials. Methods/setting The methodology used centered on content and document analyses. The samples analyzed were identified through accessing the COVID-19 health information shared on the websites of the public library systems of the twenty largest cities in the U.S. Key results The results show that the documents reviewed in the study are not compatible with the sixth-grade reading level recommended by the American Medical Association for patient education materials.
摘要目的调查美国疾病控制与预防中心(CDC)和世界卫生组织(WHO)提供的权威新冠肺炎消费者健康信息是否处于低可读性水平(即处于或低于六级阅读水平)。这些主要公共卫生组织在疫情期间迅速在互联网上发布了权威的新冠肺炎健康信息。然而,很少有研究评估这两个主要公共卫生组织传播的信息是否能让成年人从公众中获得。本研究调查了美国疾病控制与预防中心和世界卫生组织分发的新冠肺炎英文健康信息的Flesch-K等级水平。设计本研究以传播学和信息科学框架为指导。它检查了资源的阅读水平,看看它们是否符合美国医学协会关于患者教育材料的指导方针。方法/设置所使用的方法以内容和文档分析为中心。分析的样本是通过访问美国20个最大城市公共图书馆系统网站上共享的新冠肺炎健康信息来识别的。关键结果显示,研究中审查的文件与美国医学会推荐的患者教育材料的六级阅读水平不兼容。
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引用次数: 0
Get Smart About Drugs: A DEA Resource for Parents, Educators, and Caregivers 聪明对待毒品:缉毒局为家长、教育工作者和护理人员提供的资源
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2101329
Bethany Figg
Abstract The Drug Enforcement Administration has provided a resource for parents, educators, and caregivers to help them raise drug-free young people, properly dispose of drugs, stay informed on top drug issues, and keep loved ones safe. This resource, a web site called Get Smart About Drugs, can help users understand what to look for when protecting their loved ones from substance misuse as well as generate awareness about drugs and paraphernalia, and national campaigns for drug and opioid abuse prevention.
摘要美国缉毒局为家长、教育工作者和护理人员提供了一种资源,帮助他们培养无毒品的年轻人,妥善处理毒品,了解最重要的毒品问题,并确保亲人的安全。该资源是一个名为Get Smart About Drugs的网站,可以帮助用户了解在保护亲人免受药物滥用时应该寻找什么,并提高人们对药物和用具的认识,以及预防药物和阿片类药物滥用的全国运动。
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引用次数: 0
Shared Decision-Making Among Women Diagnosed with Breast Cancer: A Phenomenological Study and Exploration into Health Literacy Education 乳腺癌患者的共同决策:健康素养教育的现象学研究与探索
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2093086
Antonio P. DeRosa, Michelle R. Demetres, Ryan R. McComas
Abstract Little is known about how women with breast cancer experience making decisions in collaboration with their medical provider, and how these patient-provider interactions affect autonomy in choosing a treatment option. The purpose of the study is to examine the patient experience with shared decision-making (SDM) among women diagnosed with breast cancer and to explore more effective ways of educating patients when they are faced with a critical treatment choice. The research questions include: (1) What is the meaning of SDM from the perspective of women diagnosed with breast cancer? (2) What facilitates and inhibits SDM around medical treatments for women diagnosed with breast cancer? (3) What kind of health literacy education do women with breast cancer need to better support SDM? Using a phenomenological design and inductive thematic analysis procedure, a purposive sample of 6 women diagnosed with breast cancer were recruited from an academic medical center, consented, and interviewed. Ultimately, participants viewed the SDM process as empowering, self-advocating, collaborative, and inclusive. Participants described key concepts like trust, lack of understanding/ambiguity, social support, and religion/faith as important indicators for SDM. Participants also cited nutrition and mental health literacy, treatment and medication literacy, community education, and high-quality health information as priority areas for education. Conclusions and implications for practice include creating inclusive environments for patients, encouraging empowerment, utilizing diverse and multidisciplinary teams, and providing reliable health information. Future researchers should investigate how SDM may lead to increased satisfaction and improved treatment outcomes.
摘要对于患有癌症的女性如何与医疗提供者合作做出决策,以及这些患者与提供者的互动如何影响选择治疗方案的自主性,我们知之甚少。本研究的目的是检查癌症诊断女性的共享决策(SDM)患者体验,并探索在患者面临关键治疗选择时教育患者的更有效方法。研究问题包括:(1)从癌症诊断女性的角度来看,SDM的意义是什么?(2) 是什么促进和抑制诊断为癌症妇女的医疗SDM?(3) 癌症女性需要什么样的健康素养教育才能更好地支持SDM?采用现象学设计和归纳主题分析程序,从一家学术医疗中心招募了6名被诊断为癌症的女性,并对其进行了同意和访谈。最终,参与者认为SDM过程是赋权、自我倡导、协作和包容的。参与者将信任、缺乏理解/歧义、社会支持和宗教/信仰等关键概念描述为SDM的重要指标。与会者还将营养和心理健康知识、治疗和药物知识、社区教育以及高质量的健康信息列为优先教育领域。结论和对实践的影响包括为患者创造包容性的环境,鼓励赋权,利用多样化和多学科的团队,以及提供可靠的健康信息。未来的研究人员应该研究SDM如何提高满意度和改善治疗结果。
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引用次数: 3
Consumer Health Information for Basic Radiation Safety 基本辐射安全的消费者健康信息
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100210
Deidre Rios, Kenya Haugen
Abstract Patients can require imaging for several reasons. Many are for something other than annual checkups, and this can cause undue stress or fear of radiation. For parents, caregivers, and patients alike, understanding the basics of radiation and how to stay safe and get the imaging exams needed can be daunting. The information provided here will help patients and their caregivers understand the benefits and risks of radiation, and inform them not only about how radiation works, but also where and how they may encounter radiation.
患者可能出于几个原因需要影像学检查。许多人都是为了做年度检查以外的事情,这可能会导致过度的压力或对辐射的恐惧。对于家长、护理人员和病人来说,了解辐射的基本知识以及如何保证安全并进行必要的影像学检查可能会令人望而生畏。这里提供的信息将帮助患者和他们的护理人员了解辐射的好处和风险,不仅告诉他们辐射是如何起作用的,而且告诉他们在哪里和如何可能遇到辐射。
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引用次数: 0
Is YouTube® Adequate as a Source of Patient Information for Intravenous Sedation in Dentistry? YouTube®是否足以作为牙科静脉镇静的患者信息来源?
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2097430
G. Erkan, M. Önder
Abstract Objective According to the results of the research conducted by the Pew Research Center in the USA, 80% of adult Internet users search for health on the Internet, and treatment decisions of 58% of them are affected by the information obtained. YouTube® is the most popular video-sharing platform globally, and many health-related videos are available. However, the information quality of YouTube® videos on intravenous sedation in dentistry is unclear. This study aimed to evaluate the information quality of YouTube® videos on “intravenous sedation in dentistry.” Materials and methods “Intravenous sedation in dentistry” was searched on YouTube®, and the first 200 videos were listed. Video features, i.e., like ratio (LR) and video power index (VPI), were recorded. The quality of videos was evaluated using the DISCERN questionnaire, Global Quality Score (GQS), and Journal of the American Medical Association (JAMA) score. Results The study included 130 videos, and 73.1% of the videos were published by private dental hospitals. However, 96.9% of the videos were of low quality considering the DISCERN total score. Only 14.6% of the videos with GQS and 1.5% with JAMA were of acceptable quality (score ≥3). Videos with “Fair” DISCERN total score and the DQ score of 4 had significantly higher VPI, view ratio, and number of comments. The VPI and view ratio were significantly higher in videos with a GQS score of 4. Moreover, the video quality was positively correlated with the video duration. Conclusion YouTube® content about intravenous sedation in dentistry was generally of low quality. It has been demonstrated that users viewed higher quality videos more and higher quality videos were more popular about “IV sedation in dentistry.” Thus, patients could be informed effectively and adequately by uploading accurate and quality YouTube® videos created by authorized institutions, anesthesiologists, and dentists.
摘要目的根据美国皮尤研究中心的研究结果,80%的成年互联网用户在互联网上搜索健康信息,其中58%的人的治疗决策受到所获得信息的影响。YouTube®是全球最受欢迎的视频共享平台,提供了许多与健康相关的视频。然而,关于牙科静脉镇静的YouTube®视频的信息质量尚不清楚。本研究旨在评估YouTube®关于“牙科静脉镇静”的视频的信息质量。在YouTube®上搜索“牙科静脉麻醉”的材料和方法,列出了前200个视频。记录视频特征,如比率(LR)和视频功率指数(VPI)。视频质量使用DISCERN问卷、全球质量评分(GQS)和美国医学会杂志(JAMA)评分进行评估。结果本研究共收录130个视频,其中73.1%的视频由私立口腔医院发布。然而,考虑到DISCERN总分,96.9%的视频质量较低。只有14.6%的GQS视频和1.5%的JAMA视频质量合格(得分≥3)。总分为“尚可”且DQ得分为4的视频具有显著更高的VPI、观看率和评论数量。GQS评分为4的视频的VPI和观看率明显更高。此外,视频质量与视频持续时间呈正相关。结论YouTube®关于牙科静脉镇静的内容质量普遍较低。事实证明,用户观看质量更高的视频的次数更多,关于“牙科IV镇静”的质量更高视频也更受欢迎。因此,通过上传由授权机构、麻醉师和牙医创建的准确、高质量的YouTube®视频,患者可以得到有效和充分的信息。
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引用次数: 0
Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs 医疗家庭门户网站:将父母和临床医生与有特殊保健需求的儿童和青少年的高质量信息联系起来
IF 0.8 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100177
Shawn Steidinger
Abstract Nearly one fifth of children in the United States have special healthcare needs, but their pediatricians may only deal with 1–3 patients who fall into the category of rare or chronic disease. Where can they find information on treating these conditions when they do not confront them very often? And where can the families of these children find quality information to help care for them? One website that covers both of these situations is the Medical Home Portal. This review will describe the Medical Home Portal website, and discuss the purpose of the site, the site's strengths and weaknesses, and who should use this resource.
在美国,近五分之一的儿童有特殊的医疗需求,但他们的儿科医生可能只处理1-3名属于罕见或慢性疾病的患者。当他们不经常面对这些问题时,他们在哪里可以找到治疗这些疾病的信息?这些孩子的家庭在哪里可以找到高质量的信息来帮助照顾他们?一个涵盖这两种情况的网站是医疗家庭门户网站。本综述将描述医疗家庭门户网站,并讨论该网站的目的,该网站的优势和劣势,以及谁应该使用该资源。
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引用次数: 0
期刊
Journal of Consumer Health on the Internet
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