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The Current State and Challenges of Clinical Ethics Consultation for Prenatal Diagnosis: A Qualitative Study of Committee Employee Perspectives in China
IF 1.3 Q3 ETHICS Pub Date : 2024-09-05 DOI: 10.1007/s41649-024-00303-7
Ying Wu, Tianchi Hao, Xing Liu, Xin Zhang, Yuqiong Zhong, Dan Luo, Xiaomin Wang

Clinical ethics consultations (CECs) play an important role in resolving ethical issues in clinical practice worldwide. The government has encouraged the development of CECs in China to address the ethical challenges arising in prenatal diagnosis. So far, the current state and challenges facing CEC remain understudied. This study aimed to explore the perspectives of employees on ethics committees for prenatal diagnosis in 13 medical institutions in Hunan Province, China. Twenty-eight employees participated in interviews. Our qualitative approach employed content analysis to identify major themes in interviewees’ responses, which covered the composition and vision of their prenatal diagnosis ethics committee, as well as the challenges they faced. The results show that CEC in China is in an exploratory stage, with models for CEC composition, and workflow varying significantly. Therefore, we propose the future direction of efforts to improve CECs, including improving CEC working mechanisms and operating procedures, strengthening ethical training for healthcare workers and ethics committee employees, and developing more specific ethical guidance based on the accumulated experiences of ethics committee employees in the early development of CEC for prenatal diagnosis.

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引用次数: 0
Opening Access to the Bioethics Spectrum 打开生物伦理学的大门
IF 1.3 Q3 ETHICS Pub Date : 2024-09-02 DOI: 10.1007/s41649-024-00320-6
Graeme T. Laurie
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引用次数: 0
An Ethical Analysis of the Online Content of Assisted Reproductive Technology Centers in Bangladesh 对孟加拉国辅助生殖技术中心在线内容的伦理分析
IF 1.3 Q3 ETHICS Pub Date : 2024-08-28 DOI: 10.1007/s41649-024-00316-2
Md Shaikh Farid

Assisted reproductive technologies (ARTs) have become a widely utilized medical technology for treating infertility worldwide. However, societies and countries have applied these technologies in accordance with their cultural practices and belief systems. This paper presents an overview of ART providers in Bangladesh and analyzes their online content in addressing potential infertile couples. Examining the topic within the context of socio-economic and public health challenges in Bangladesh, particularly overpopulation, poverty, and lack of education, the research conducted a web content analysis of ART providers in Bangladesh from July 1 to September 1, 2023. Twenty active ART providers were identified using Google searches and an exploratory key. The analysis considered locations, landing page information, ethical standards, quality certification, foreign affiliations, and success rates. The findings revealed a concentration of centers in urban areas, raising concerns about equitable access. The absence of regulation and guidelines, coupled with the lack of ART clinic registration, highlighted potential risks to patient well-being. Landing page statements utilized highly emotive language and ambiguous terms, raising ethical concerns. The absence of explicit mention of quality standards, including ISO 9001:2000 certification, indicated potential gaps in transparency. Foreign affiliations were employed for credibility, raising concerns of misleading advertising. Limited and ambiguous reporting of success rates posed challenges for informed decision-making. Evident exploitative and commercialized practices raised concerns about potentially commodifying reproductive services. The study emphasizes the need for regulatory frameworks, transparency in reporting, adherence to ethical advertising, and increased cultural sensitivity to enhance the ethical standards of ART providers in Bangladesh.

辅助生殖技术(ART)已成为全世界广泛使用的治疗不孕症的医疗技术。然而,各个社会和国家根据其文化习俗和信仰体系应用这些技术。本文概述了孟加拉国的 ART 提供商,并分析了他们针对潜在不孕夫妇的在线内容。研究结合孟加拉国面临的社会经济和公共卫生挑战,尤其是人口过剩、贫困和教育匮乏等问题,对 2023 年 7 月 1 日至 9 月 1 日期间孟加拉国 ART 提供商的网络内容进行了分析。通过谷歌搜索和探索性关键字,确定了 20 家活跃的抗逆转录病毒疗法提供商。分析考虑了地点、登陆页面信息、道德标准、质量认证、国外附属机构和成功率。研究结果显示,这些中心主要集中在城市地区,这引起了人们对公平获取的担忧。缺乏监管和指导方针,再加上缺乏抗逆转录病毒疗法诊所注册,凸显了对患者福祉的潜在风险。登陆页面的声明使用了高度情绪化的语言和模棱两可的术语,引起了道德方面的担忧。没有明确提及质量标准,包括 ISO 9001:2000 认证,表明在透明度方面存在潜在差距。为了提高可信度,使用了外国附属机构,这引起了对误导性广告的担忧。对成功率的报告有限且含糊不清,给知情决策带来了挑战。明显的剥削和商业化做法引起了人们对生殖服务潜在商品化的担忧。这项研究强调,有必要建立监管框架,提高报告的透明度,遵守广告道德,并增强文化敏感性,以提高孟加拉国抗逆转录病毒疗法提供者的道德标准。
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引用次数: 0
Gender Diversity in the Editorial Boards of Global Obstetrics and Gynecology Journals
IF 1.3 Q3 ETHICS Pub Date : 2024-08-16 DOI: 10.1007/s41649-024-00298-1
Seema Rawat, Pratyush Kumar, Lovish Wadhwa

Gender representation in academic and professional settings is crucial for diversity and inclusivity. Editorial boards of scholarly journals shape research priorities, influencing global knowledge flow. In obstetrics and gynecology, with a focus on women’s health, board composition is of particular significance. This paper explores gender representation in international obstetrics and gynecology journal editorial boards, addressing potential disparities. The study adopts a cross-sectional design, analyzing the gender composition of editorial boards in global obstetrics and gynecology journals. A comprehensive search strategy identified relevant journals, using databases and manual searches. Inclusion criteria ensured journals’ language of use and disciplinary scope within obstetrics and gynecology. Ethical considerations prioritized privacy and confidentiality, with data extracted systematically. Genderize.io aided in gender determination of the board members. At the time of writing, among 1175 editorial members from 20 journals, 44.8% are females. Representation varies across roles: editor-in-chief (27.27% female), deputy/executive positions (43.33% female), senior/specialized positions (50.66% female), wider/general positions (45.89% female), nonacademic positions (36% female), external academic positions (19.56% female), honorary/founding positions (33.33% female), and administrative positions (31.03% female). This study contributes a comprehensive analysis of gender representation in obstetrics and gynecology journal editorial boards. Persistent disparities across roles underscore the need for targeted interventions to foster diversity and equity. Ethical considerations emphasize the importance of addressing these disparities for social justice and research integrity. Recommendations to guide journals in fostering inclusive editorial practices, contributing to a more equitable landscape in obstetrics and gynecology research.

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引用次数: 0
(Not So) Lost in Translation: Considering the GA4GH Diversity in Datasets Policy in the Japanese Context
IF 1.3 Q3 ETHICS Pub Date : 2024-08-16 DOI: 10.1007/s41649-024-00305-5
Momoko Sato, Kaori Muto, Yukihide Momozawa, Yann Joly

The genomics community has long acknowledged the lack of diversity in datasets used for research, prompting various stakeholders to confront this issue. In response, the Global Alliance for Genomics and Health (GA4GH) formulated a policy framework that recognizes the multiplicity of perspectives on diversity and proposed a systemic approach for more optimal data diversity. Given the importance of the research context, assessing this policy’s applicability within countries where diversity is less discussed is important. This study investigated the feasibility of implementing the GA4GH policy in Japan, a nation with a smaller genetic diversity than many Western countries. As the proportion of East Asian genomic research is limited internationally, focusing on the Japanese genome contributes to enhancing diversity. Meanwhile, labelling findings as “Japanese” can inadvertently reinforce perceptions of homogeneity and overlook ethnic minorities. Regions and socioeconomic status are also recognized as substantial factors of diversity within academia, yet concerns persist among the public regarding the heritability of stigmatized conditions. Social inclusion of sexual minorities has begun in Japan, but research surveys generally still use binary sex and gender categories, which underscores the need for additional variables. This study found that both academia and the public need to confront the overemphasis on homogeneity within Japanese society and hesitancy in addressing genetic factors. By doing so, more inclusive and diverse datasets can advance the field both ethically and scientifically. Perhaps the most important impact of the GA4GH policy will be to draw greater attention to the complex diversity challenges ahead in Japan.

长期以来,基因组学界一直承认用于研究的数据集缺乏多样性,这促使各利益相关者正视这一问题。作为回应,全球基因组学与健康联盟(GA4GH)制定了一个政策框架,该框架认识到多样性的多重视角,并提出了一种系统方法,以实现更优化的数据多样性。鉴于研究环境的重要性,在多样性讨论较少的国家评估该政策的适用性非常重要。本研究调查了在遗传多样性低于许多西方国家的日本实施 GA4GH 政策的可行性。由于东亚基因组研究在国际上所占比例有限,关注日本基因组有助于提高多样性。与此同时,将研究结果贴上 "日本 "标签可能会无意中强化同质性观念,忽略少数民族。在学术界,地区和社会经济地位也被认为是多样性的重要因素,但公众对被污名化的病症的遗传性仍然存在担忧。日本已开始将性少数群体纳入社会,但研究调查一般仍使用二元性和性别类别,这凸显了额外变量的必要性。本研究发现,学术界和公众都需要正视日本社会过分强调同质性以及在处理遗传因素时犹豫不决的问题。通过这样做,更具包容性和多样性的数据集可以从道德和科学两方面推动该领域的发展。或许,GA4GH 政策最重要的影响是让人们更加关注日本未来面临的复杂多样性挑战。
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引用次数: 0
Review Mechanisms for Advanced Medical Therapies in Japan and Thailand: A Proposal for the Use of Expert Clinical Benefit Assessments at Designated Institutions
IF 1.3 Q3 ETHICS Pub Date : 2024-08-15 DOI: 10.1007/s41649-024-00301-9
Kenji Matsui, Nipan Israsena, Jaranit Kaewkungwal, Pornpimon Adams, David Wendler, Reidar K. Lie

Advanced new therapies, such as stem cell and gene therapies and xenotransplantation, represent challenges for regulatory and ethical review. Major drug agencies, such as in the U.S., India, and Europe, have asserted regulatory authority and require ethics review by local ethics review committees, using the same strict requirements as those for standard drug approvals. In spite of this, unapproved and undocumented stem cell clinics flourish in all of these places, suggesting that current approaches do not offer patients sufficient protection. Japan has attempted another approach, requiring approvals at local levels for all regenerative medical procedures, and a faster approval of promising new interventions. The Japanese approach has, however, also been criticized as not striking a proper balance between early access and a proper assessment of safety and effectiveness. For smaller and less-resourced countries, such as Thailand, one major challenge is limited expertise to conduct the evaluation of these advanced new therapies. This article provides an overview of the issues facing regulators and proposes that countries should restrict the early adoption of advanced new therapies to specialized clinics with appropriate scientific and ethical expertise for review. Review in these institutions should focus on expert clinical benefit assessments for individual patients being offered such interventions, independently of whether they are offered as research or therapy.

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引用次数: 0
Two Approaches of ‘Proactive Consultation’: Towards Well-Functioning Clinical Ethics Consultation
IF 1.3 Q3 ETHICS Pub Date : 2024-08-15 DOI: 10.1007/s41649-024-00302-8
Atsushi Kogetsu, Jungen Koimizu

In recent years, the global need for clinical ethics consultation services (CECS) has increased to address ethical challenges, dilemmas, and moral distress in clinical environments. In Japan, many hospitals have introduced CECS over the past decade, but few such services work effectively because of the small number of consultations. To address this, we propose two proactive ethics consultation methods: inter-professional ethics rounds and patient note reviews. This paper provides a detailed explanation of these methods, complete with scenarios based on actual cases. These methods can make CECS ‘well-functioning’ by shifting the starting points of consultation from consultees to CECS providers. We then examine the impact and value of proactive ethics consultation as well as four critical factors for its success including attitude, positioning, and competency of proactive consultation teams. We believe our suggestions will provide valuable insights for future clinical ethics consultations and stimulate academic debate about what constitutes a ‘well-functioning’ CECS.

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引用次数: 0
Diversity, Equity, and Inclusion on Editorial Boards of Medical Student Journals 医学生期刊编委会的多样性、公平性和包容性
IF 1.3 Q3 ETHICS Pub Date : 2024-08-14 DOI: 10.1007/s41649-024-00297-2
Muhammad Romail Manan, Iqra Nawaz, Leah Komer, Areeba Salam, Ioana Iustina Chiruţă, Zain Ul Abidin

Ensuring diversity within the healthcare sector is essential for improving team dynamics and ultimately patient outcomes. Diversity among medical students is fundamental to embody this philosophy. With the demand for diversity in the admissions process gaining traction, the authors expanded this conversation to the editorial boards (EBs) of Medical Student Journals (MSJs). The authors designed a cross-sectional study to evaluate the diversity status of EBs of MSJs under gender, geographic, and socioeconomic parameters using the Journal Diversity Index (JDI). Relevant information regarding the journal characteristics and the editorial board members (EBMs) of systematically screened journals was sequentially extracted along with job roles, which were later categorized into eight categories. Chi-squared test was applied to study the association between gender of the editor and the global distribution of the journal. Out of 22 included journals, 90.9% were published by institutions based in high-income countries (HICs). On regional analysis, none of the journals originated from “South Asia,” “Latin America and the Caribbean,” and “Middle East and North Africa”. Disparity in gender representation of EBMs became more prominent in senior roles. Additionally, 78.8% EBMs belonged to HICs. Regional analysis of EBMs revealed 83% belonging to the Global North. This disparity was seen across all editorial job roles. A greater disparity was seen among editors from the Global South with men comprising 66.4% of the total editors (p<0.001). On JDI, 95.5% journals demonstrated poor diversity. Moreover, 72.7% and 77.3% journals had all members of the EB belonging to the same region and the same country income level respectively. As EBs of MSJs offer opportunities for further advancement, networking, and promotion, a commitment to prioritizing diversity, equity, and inclusion accompanied by development and implementation of actionable plans and allocation of sufficient resources should be given precedence.

确保医疗保健行业的多样性对于改善团队活力和最终的患者治疗效果至关重要。医学生的多样性是体现这一理念的基础。随着招生过程中对多样性的要求越来越高,作者将这一话题扩展到了医学生期刊(MSJ)的编辑委员会(EB)。作者设计了一项横断面研究,利用期刊多样性指数(JDI)评估医学生期刊编辑部在性别、地域和社会经济参数方面的多样性状况。研究人员按顺序提取了期刊特征和系统筛选期刊编委会成员(EBMs)的相关信息以及工作角色,并将其分为八类。应用卡方检验研究了编辑性别与期刊全球分布之间的关联。在纳入的 22 种期刊中,90.9% 是由高收入国家(HICs)的机构出版的。从地区分析来看,没有一份期刊来自 "南亚"、"拉丁美洲和加勒比 "以及 "中东和北非"。在高级职位中,经济管理类期刊的性别比例差异更加突出。此外,78.8%的经济管理类期刊属于高收入国家。欧洲管理机构的地区分析显示,83%的机构属于全球北部地区。所有编辑职位都存在这种差异。来自全球南部的编辑之间的差距更大,男性编辑占编辑总数的66.4%(p<0.001)。在 JDI 方面,95.5% 的期刊表现出较低的多样性。此外,分别有 72.7% 和 77.3% 的期刊的所有 EB 成员属于同一地区和同一国家的收入水平。由于 MSJ 的 EB 为进一步发展、建立联系和晋升提供了机会,因此应优先考虑将多样性、公平性和包容性放在首位,同时制定和实施可行的计划并分配足够的资源。
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引用次数: 0
Reflections from Chinese and Japanese Physicians on Medical Disputes 中日医生对医疗纠纷的思考
IF 1.3 Q3 ETHICS Pub Date : 2024-08-13 DOI: 10.1007/s41649-024-00294-5
Hua Xu, Yining Ruan, Taketoshi Okita, Masao Tabata, Yasuhiro Kadooka, Atsushi Asai

Physician–patient disputes are a major problem in healthcare. Physician–patient conflicts, workplace violence, and direct involvement in disputes have a significant negative impact on the well-being of physicians. China and Japan have similar cultures but differing healthcare systems. The present study aimed to examine and compare the experiences and perceptions of Chinese and Japanese physicians regarding medical disputes. Qualitative descriptive content analysis was performed for 18 cases from each country to assess the major issues involved in each case and their impact on the physicians. Common issues in medical disputes for both countries included monetary motives of patients and/or families, violence/threats from patients and/or families, the inability of patients and/or families to understand the risk of complications, and the uncertainties of medicine. The serious impact of medical disputes on the mental health and professionalism of physicians was also an issue shared by physicians of both countries. There were, however, differences in the magnitude and frequency of these issues between the two countries. Pre-existing distrust of physicians among patients and/or families was noted only by Chinese physicians, and insufficient information disclosure by physicians was noted only by Japanese physicians. In conclusion, there were similarities and differences between the two countries in the perceptions of physicians regarding medical disputes. Our analysis revealed differing healthcare situations due to cultural and institutional differences as well as universal problems intrinsic to medicine. Based on our results, we propose several key principles to improve the physician–patient relationship.

医患纠纷是医疗领域的一个主要问题。医患冲突、工作场所暴力以及直接参与纠纷对医生的健康产生了严重的负面影响。中日两国文化相似,但医疗体系不同。本研究旨在考察和比较中日两国医生在医疗纠纷方面的经历和看法。我们对两国的 18 个案例进行了定性描述性内容分析,以评估每个案例所涉及的主要问题及其对医生的影响。两国医疗纠纷的共同问题包括患者和/或家属的金钱动机、患者和/或家属的暴力/威胁、患者和/或家属无法理解并发症的风险以及医学的不确定性。医疗纠纷对医生心理健康和职业精神的严重影响也是两国医生共同面临的问题。然而,两国在这些问题的严重程度和发生频率上存在差异。只有中国医生注意到患者和/或家属对医生预先存在不信任,只有日本医生注意到医生信息披露不足。总之,两国医生对医疗纠纷的看法存在异同。我们的分析表明,由于文化和制度上的差异,以及医学固有的普遍问题,两国的医疗状况各不相同。根据分析结果,我们提出了改善医患关系的几项关键原则。
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引用次数: 0
The Effectiveness of a Hospital Ethics Committee in a Non-Western Country: Lessons from a Ten-Year Experience 非西方国家医院伦理委员会的有效性:十年经验的启示
IF 1.3 Q3 ETHICS Pub Date : 2024-08-12 DOI: 10.1007/s41649-024-00289-2
M. Murat Civaner

Hospital ethics committees (HECs) are relatively new in non-Western countries. This article examines the effectiveness of a HEC established in Bursa/Turkey over ten years, aiming to contribute insights for the wider implementation and enhancement of HECs. The evaluative methodology combines quantitative and qualitative approaches to assess its effectiveness. Patients are the primary users of the HEC, although applications from physicians, hospital managers, and the Patient Rights Board are also observed. Surgical specialities account for the majority of applications, particularly from obstetrics and gynecology, anesthesiology, and emergency medicine. The study identifies the types of applications, with malpractice claims, ethical inquiries, and access-related complaints being the most common. Despite many healthcare professionals encountering ethical dilemmas, the HEC was underutilized for consultations due to factors such as low awareness, perceived autonomy challenges, and skepticism regarding its efficacy. Additionally, the study describes how HEC recommendations contribute to policy development, addressing organizational issues and promoting ethical practices. The decision-making process within the HEC was also scrutinized, emphasizing the necessity of a structured methodology for moral deliberation. Concerns are raised about committee members lacking specific training in ethical analysis, potentially resulting in biases and suboptimal decisions. Contextual factors, including institutional culture and economic considerations, are also recognized for their influence on decision-making. This analysis highlights the multifaceted nature of HECs and the challenges they face in achieving effectiveness. It underscores the need for standardized measures, improved training for committee members, and contextual awareness to enhance the impact and functionality of HECs in healthcare institutions.

医院伦理委员会(HEC)在非西方国家相对较新。本文研究了在土耳其布尔萨成立的医院伦理委员会十年来的有效性,旨在为更广泛地实施和加强医院伦理委员会提供见解。评估方法结合了定量和定性方法,以评估其有效性。患者是医保中心的主要用户,但医生、医院管理人员和患者权利委员会也会提出申请。外科专科的申请占大多数,尤其是妇产科、麻醉科和急诊科。研究确定了申请的类型,其中最常见的是渎职索赔、伦理调查和与就医相关的投诉。尽管许多医护专业人员都会遇到伦理困境,但由于对 HEC 的认识不足、认为其存在自主性挑战以及对其功效持怀疑态度等因素,HEC 在咨询中的使用率并不高。此外,本研究还介绍了 HEC 建议如何促进政策制定、解决组织问题和推广伦理实践。还仔细研究了消除对妇女歧视委员会的决策过程,强调了道德审议结构化方法的必要性。有人担心,委员会成员缺乏道德分析方面的专门培训,可能会导致偏见和不理想的决策。包括机构文化和经济因素在内的环境因素对决策的影响也得到了认可。这项分析强调了高等选举委员会的多面性及其在实现有效性方面所面临的挑战。它强调了采取标准化措施、加强对委员会成员的培训以及提高对环境因素的认识的必要性,从而增强医疗保健机构中 HEC 的影响力和功能。
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引用次数: 0
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Asian Bioethics Review
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