Pub Date : 2025-06-01Epub Date: 2025-01-17DOI: 10.1007/s10912-024-09924-3
Nathan Carlin
This is an edited transcript of an interview with Rita Charon. Nathan Carlin conducted the interview in her apartment in New York City on October 18, 2024. They discussed a number of topics, including Charon's educational journey, her mentors, the founding of narrative medicine, the status of narrative medicine today as well as its future, the relationship between narrative medicine and literature and medicine, and the ethics of writing about patients.
{"title":"An Interview with Rita Charon.","authors":"Nathan Carlin","doi":"10.1007/s10912-024-09924-3","DOIUrl":"10.1007/s10912-024-09924-3","url":null,"abstract":"<p><p>This is an edited transcript of an interview with Rita Charon. Nathan Carlin conducted the interview in her apartment in New York City on October 18, 2024. They discussed a number of topics, including Charon's educational journey, her mentors, the founding of narrative medicine, the status of narrative medicine today as well as its future, the relationship between narrative medicine and literature and medicine, and the ethics of writing about patients.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"267-298"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2024-09-09DOI: 10.1007/s10912-024-09891-9
Ed Garland
In a widely cited 2017 study, Robinson et al. (2017) found that 'emotionally expressive' writing makes physical wounds heal faster when compared to writing that did not engage the emotions. The Writing Long COVID project at Aberystwyth University engaged similar territory in a recent pilot study. Participants' writing activities explored how literary production can affect a person's experience of this new chronic condition, as well as contribute to our understanding of its symptoms. In this short essay, I show how we designed a course of short-duration online workshops that increased accessibility for people with Long COVID-related fatigue. I also argue that future Long COVID creative activities should let their timing, venue, content, and structure be influenced by the preferences of the Long COVID patient. The preliminary study suggests that the traditional parameters of the writing workshop, including its duration, could deter participation in potentially beneficial creative activities.
在 2017 年一项被广泛引用的研究中,罗宾逊等人(2017 年)发现,与没有调动情感的写作相比,"情感表达型 "写作能使身体伤口愈合得更快。阿伯里斯特威斯大学的 "长期写作"(Writing Long COVID)项目在最近的一项试点研究中也涉及了类似的领域。参与者的写作活动探讨了文学创作如何影响人们对这种新型慢性疾病的体验,以及如何促进我们对其症状的理解。在这篇短文中,我将展示我们是如何设计一门短期在线研讨会课程,以提高长期慢性阻塞性肺病相关疲劳患者的可及性。我还认为,未来的 Long COVID 创造性活动应根据 Long COVID 患者的喜好来安排时间、地点、内容和结构。初步研究表明,写作工作坊的传统参数(包括持续时间)可能会阻碍人们参与可能有益的创造性活动。
{"title":"New Chaotic Reality: Creative Writing Workshops for Long COVID Patients.","authors":"Ed Garland","doi":"10.1007/s10912-024-09891-9","DOIUrl":"10.1007/s10912-024-09891-9","url":null,"abstract":"<p><p>In a widely cited 2017 study, Robinson et al. (2017) found that 'emotionally expressive' writing makes physical wounds heal faster when compared to writing that did not engage the emotions. The Writing Long COVID project at Aberystwyth University engaged similar territory in a recent pilot study. Participants' writing activities explored how literary production can affect a person's experience of this new chronic condition, as well as contribute to our understanding of its symptoms. In this short essay, I show how we designed a course of short-duration online workshops that increased accessibility for people with Long COVID-related fatigue. I also argue that future Long COVID creative activities should let their timing, venue, content, and structure be influenced by the preferences of the Long COVID patient. The preliminary study suggests that the traditional parameters of the writing workshop, including its duration, could deter participation in potentially beneficial creative activities.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"243-248"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176946/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142157192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2024-08-22DOI: 10.1007/s10912-024-09889-3
Lorna Sankey
{"title":"Bite Marks.","authors":"Lorna Sankey","doi":"10.1007/s10912-024-09889-3","DOIUrl":"10.1007/s10912-024-09889-3","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"315-316"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176921/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2024-06-26DOI: 10.1007/s10912-024-09856-y
Mar Rosàs Tosas
At the outbreak of the Covid-19 pandemic, several countries declared "states of exception," that is, authorized legal devices that, in the face of circumstances deemed catastrophic, permit the implementation of extraordinary measures and the temporary suspension of some rights in order to restore the previous state of affairs as soon as possible. This paper offers a comparative textual analysis of the different states of exception declared in the USA, France, and Spain. I argue that these texts constitute a privileged site to explore how prevalent global political logics and mainstream discourses on illness are interwoven. Regarding the global political logics in play, I hold that these declarations constitute an instantiation of democracy's autoimmune character; it attacks itself in order to protect itself. Regarding mainstream discourses on illness, I explore how illness is regarded as a threat to one's self (by something seemingly other) and the notion that therapy must consist of securing the self's triumph over anything seemingly other. This twofold analysis reveals that an aporetic dialectic between self and other-as regards politics and illness-operates in these declarations, most likely because it is, in fact, one and the same dialectic, upon which Western epistemology rests. Furthermore, I suggest that these texts reflect and promote these dominant logics, contributing to shape human relationships around the globe in a certain dangerous way.
{"title":"Global Political Logics and Mainstream Discourses on Illness in the Declarations of the State of Exception in the Context of the Covid-19 Pandemic: The Case of the USA, France, and Spain.","authors":"Mar Rosàs Tosas","doi":"10.1007/s10912-024-09856-y","DOIUrl":"10.1007/s10912-024-09856-y","url":null,"abstract":"<p><p>At the outbreak of the Covid-19 pandemic, several countries declared \"states of exception,\" that is, authorized legal devices that, in the face of circumstances deemed catastrophic, permit the implementation of extraordinary measures and the temporary suspension of some rights in order to restore the previous state of affairs as soon as possible. This paper offers a comparative textual analysis of the different states of exception declared in the USA, France, and Spain. I argue that these texts constitute a privileged site to explore how prevalent global political logics and mainstream discourses on illness are interwoven. Regarding the global political logics in play, I hold that these declarations constitute an instantiation of democracy's autoimmune character; it attacks itself in order to protect itself. Regarding mainstream discourses on illness, I explore how illness is regarded as a threat to one's self (by something seemingly other) and the notion that therapy must consist of securing the self's triumph over anything seemingly other. This twofold analysis reveals that an aporetic dialectic between self and other-as regards politics and illness-operates in these declarations, most likely because it is, in fact, one and the same dialectic, upon which Western epistemology rests. Furthermore, I suggest that these texts reflect and promote these dominant logics, contributing to shape human relationships around the globe in a certain dangerous way.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"181-192"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176960/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141451843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2025-01-24DOI: 10.1007/s10912-025-09931-y
Andrea Charise
This article explores the rise of comics-based research (CBR) as an innovative method for disseminating and translating academic findings to broader audiences. Rooted in the established use of comics in technical communication, CBR takes the unique strengths of graphic media-accessibility, multimodal engagement, and visual storytelling-to communicate complex concepts to diverse audiences, particularly in health-related disciplines. A recent development in this field is the comic research abstract, a concise, visually enriched alternative to traditional textual abstracts. By integrating clarity, brevity, and expressive visuals, this format enhances research accessibility and promotes interdisciplinary collaboration. Drawing on an example from the author's work on intergenerational storytelling, this article introduces the comic research abstract as a transformative interdisciplinary tool that bridges the arts, humanities, and health sciences. It highlights how this format translates research into advocacy-driven narratives, fostering inclusion, activism, and public engagement. By combining written and visual content, the comic research abstract underscores the potential of comics for advancing health humanities, arts-based academic communication, and inclusive scholarship.
{"title":"The Comic Research Abstract: Graphic Medicine as Interdisciplinary Health Research (Example: Intergenerational Storytelling).","authors":"Andrea Charise","doi":"10.1007/s10912-025-09931-y","DOIUrl":"10.1007/s10912-025-09931-y","url":null,"abstract":"<p><p>This article explores the rise of comics-based research (CBR) as an innovative method for disseminating and translating academic findings to broader audiences. Rooted in the established use of comics in technical communication, CBR takes the unique strengths of graphic media-accessibility, multimodal engagement, and visual storytelling-to communicate complex concepts to diverse audiences, particularly in health-related disciplines. A recent development in this field is the comic research abstract, a concise, visually enriched alternative to traditional textual abstracts. By integrating clarity, brevity, and expressive visuals, this format enhances research accessibility and promotes interdisciplinary collaboration. Drawing on an example from the author's work on intergenerational storytelling, this article introduces the comic research abstract as a transformative interdisciplinary tool that bridges the arts, humanities, and health sciences. It highlights how this format translates research into advocacy-driven narratives, fostering inclusion, activism, and public engagement. By combining written and visual content, the comic research abstract underscores the potential of comics for advancing health humanities, arts-based academic communication, and inclusive scholarship.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"249-254"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176985/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2024-07-22DOI: 10.1007/s10912-024-09873-x
Jorge J Locane
The spread of the coronavirus SARS-CoV-2 has stimulated eschatological speculation. To the environmentalist and liberal diagnostician that had already been warning about the Anthropocene and the breakdown of post-Cold War global harmony, an alarm has now been added that in its worst prognosis estimates that, in 2020, we only started witnessing the beginning of a staggered health debacle. The idea of the world, as conceptual support for an imaginary community with global reach, has become a crisis. The world, an object often invoked by theoretical speculation over the last 30 years, has been now decreed finished. However, infectious diseases, in their epidemic and pandemic form, have devastated different societies at different times. This paper parallels two historical scenarios and a series of texts dealing with contagious diseases to shed light on the idea of (the end of) the world. The analysis centres on documents that bear witness to the importation of smallpox and other diseases into America and its spread during the European invasion and colonization. By recovering the concept of Pachakuti, a radical turnaround that can be understood as "end of one world", this paper shows that the chronicles reporting on the outbreaks of smallpox in America document a material end of the world for subjects who were not protagonists of history. The current end of the world is, on the contrary, that which would correspond to the protagonist of our phase of globalization and, eventually, to his world-which makes it more resonant and absolute.
{"title":"On Wor(l)ds and Pandemics.","authors":"Jorge J Locane","doi":"10.1007/s10912-024-09873-x","DOIUrl":"10.1007/s10912-024-09873-x","url":null,"abstract":"<p><p>The spread of the coronavirus SARS-CoV-2 has stimulated eschatological speculation. To the environmentalist and liberal diagnostician that had already been warning about the Anthropocene and the breakdown of post-Cold War global harmony, an alarm has now been added that in its worst prognosis estimates that, in 2020, we only started witnessing the beginning of a staggered health debacle. The idea of the world, as conceptual support for an imaginary community with global reach, has become a crisis. The world, an object often invoked by theoretical speculation over the last 30 years, has been now decreed finished. However, infectious diseases, in their epidemic and pandemic form, have devastated different societies at different times. This paper parallels two historical scenarios and a series of texts dealing with contagious diseases to shed light on the idea of (the end of) the world. The analysis centres on documents that bear witness to the importation of smallpox and other diseases into America and its spread during the European invasion and colonization. By recovering the concept of Pachakuti, a radical turnaround that can be understood as \"end of one world\", this paper shows that the chronicles reporting on the outbreaks of smallpox in America document a material end of the world for subjects who were not protagonists of history. The current end of the world is, on the contrary, that which would correspond to the protagonist of our phase of globalization and, eventually, to his world-which makes it more resonant and absolute.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"193-204"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176992/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01DOI: 10.1007/s10912-024-09910-9
Virginjia Vilkelyte, Luna Dolezal, Juanita Navarro-Páez, Charlotte A Wu, Will Bynum, Zara Slattery
{"title":"Correction to: The Room.","authors":"Virginjia Vilkelyte, Luna Dolezal, Juanita Navarro-Páez, Charlotte A Wu, Will Bynum, Zara Slattery","doi":"10.1007/s10912-024-09910-9","DOIUrl":"10.1007/s10912-024-09910-9","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"323"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176989/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142577021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2024-08-31DOI: 10.1007/s10912-024-09871-z
Sheila Giffen
South African writer Phaswane Mpe (1970-2004) is often canonized and memorialized as a brave truth-teller who broke the silence on HIV/AIDS in the context of government silence and denial. And yet Mpe's writings-including poetry, short stories, a novel, and scholarly criticism-contemplate illness as a problem for truth and representation in works that linger in silence and ambiguity. This article analyses the tension between silence and speech in Mpe's creative writing in response to HIV/AIDS. Using Mpe's works as an illustrative example, I trouble the desire to read illness narratives as forms of truth-telling and silence-breaking. The desire for the transparency of speech in a global archive of illness narratives also informs a colonial politics of representation that instrumentalizes literature as ethnographic evidence. Mpe's writing on HIV/AIDS refuses a demand for authenticity by holding the embodied experience of disease at a slight remove from the reader in order to register the forms of spiritual and epistemological crisis that epidemic and social loss produce. My contention is that the political stakes of this writing lie not in Mpe's ability to render a public health crisis with verisimilitude, but in the capacity for writing to provide solace and sublimity faced with death. Through an analysis of Mpe's fiction and poetry, this article proposes a methodology for reading the politics of illness narratives across globalized space which attends to the world-building potential of creative expression as a radical practice that resists incorporative models of aesthetic intelligibility.
{"title":"Silent Speech in Phaswane Mpe's HIV/AIDS Writing.","authors":"Sheila Giffen","doi":"10.1007/s10912-024-09871-z","DOIUrl":"10.1007/s10912-024-09871-z","url":null,"abstract":"<p><p>South African writer Phaswane Mpe (1970-2004) is often canonized and memorialized as a brave truth-teller who broke the silence on HIV/AIDS in the context of government silence and denial. And yet Mpe's writings-including poetry, short stories, a novel, and scholarly criticism-contemplate illness as a problem for truth and representation in works that linger in silence and ambiguity. This article analyses the tension between silence and speech in Mpe's creative writing in response to HIV/AIDS. Using Mpe's works as an illustrative example, I trouble the desire to read illness narratives as forms of truth-telling and silence-breaking. The desire for the transparency of speech in a global archive of illness narratives also informs a colonial politics of representation that instrumentalizes literature as ethnographic evidence. Mpe's writing on HIV/AIDS refuses a demand for authenticity by holding the embodied experience of disease at a slight remove from the reader in order to register the forms of spiritual and epistemological crisis that epidemic and social loss produce. My contention is that the political stakes of this writing lie not in Mpe's ability to render a public health crisis with verisimilitude, but in the capacity for writing to provide solace and sublimity faced with death. Through an analysis of Mpe's fiction and poetry, this article proposes a methodology for reading the politics of illness narratives across globalized space which attends to the world-building potential of creative expression as a radical practice that resists incorporative models of aesthetic intelligibility.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"205-220"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01Epub Date: 2024-10-08DOI: 10.1007/s10912-024-09899-1
Virginjia Vilkelyte, Luna Dolezal, Juanita Navarro-Páez, Charlotte A Wu, Will Bynum, Zara Slattery
{"title":"The Room.","authors":"Virginjia Vilkelyte, Luna Dolezal, Juanita Navarro-Páez, Charlotte A Wu, Will Bynum, Zara Slattery","doi":"10.1007/s10912-024-09899-1","DOIUrl":"10.1007/s10912-024-09899-1","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"259-265"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142394133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-06-01DOI: 10.1007/s10912-024-09917-2
Rachel Conrad Bracken, Kenneth A Richman, Rebecca Garden, Rebecca Fischbein, Raman Bhambra, Neli Ragina, Shay Dawson, Ariel Cascio
{"title":"Correction: Developing Disability-Focused Pre-Health and Health Professions Curricula.","authors":"Rachel Conrad Bracken, Kenneth A Richman, Rebecca Garden, Rebecca Fischbein, Raman Bhambra, Neli Ragina, Shay Dawson, Ariel Cascio","doi":"10.1007/s10912-024-09917-2","DOIUrl":"10.1007/s10912-024-09917-2","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"321-322"},"PeriodicalIF":1.2,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12176981/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}