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A Journey of Discovery: Modelling Participation to Enhance Multifunctional Collaboration among Children with Disabilities 探索之旅:塑造参与模式,促进残疾儿童的多功能合作
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.16993/sjdr.976
Anu Maarit Kinnunen, Leena Holopainen
Children’s participation refers to involvement in interaction with others together with attendance in family and community activities. There is an urgent need to develop actions that promote participation of children with disabilities, but there is still limited understanding of processes that may enable it. This study focuses on how the participants (five parents, two teachers, three therapists) enhance participation of Finnish children with neurological disabilities at school, home, and in the therapy and how participants develop multifunctional collaboration to promote participation. Participants were interviewed five times in group interviews for one year. The data were analysed with a qualitative grounded theory approach. Three central factors enhancing participation were found: factors preparing and building participation and factors promoting participation in action. A participatory multifunctional collaboration model enhancing participation showed that collaboration is built up through a child-centred approach by sharing information and know-how and by transcending adults’ prejudices and fears.
儿童的参与是指参与与他人的互动,以及参加家庭和社区活动。迫切需要制定促进残疾儿童参与的行动,但对可能实现这一目标的进程的了解仍然有限。本研究的重点是参与者(5名家长、2名教师、3名治疗师)如何提高芬兰神经障碍儿童在学校、家庭和治疗中的参与度,以及参与者如何发展多功能合作以促进参与。参与者在一年的时间里接受了五次小组访谈。数据分析与定性接地理论的方法。发现了三个促进参与的核心因素:准备和建立参与的因素和促进行动参与的因素。促进参与的参与式多功能协作模式表明,协作是通过以儿童为中心的方法建立起来的,通过分享信息和专门知识,并超越成人的界限;偏见和恐惧。
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引用次数: 0
‘Even the Way I Make My Coffee is Autistic’: Meaning of Autism in the Lives of Middle-Aged Women prior to and After their Diagnoses “连我煮咖啡的方式都是自闭症”:自闭症在中年女性诊断前后的生活中的意义
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.16993/sjdr.1003
Kremena Nikolova-Fontaine, Snæfríður Þóra Egilson
The aim of this qualitative interview study was to shed light on the meaning and experiences of autism in the lives of middle-aged women, prior to and after their diagnosis. The study was informed by critical disability studies and critical autism studies. Six women who all had shared their experiences in an Icelandic documentary about autistic women participated. The Interpretative Phenomenological Analysis (IPA) was used in data analysis. In retrospect the women described painful experiences from their youth and their struggles with meeting the demands of typical social and work environments due to their autistic characteristics and inaccessible environments. Personal and environmental dimensions uniquely interacted to mediate the women’s exclusion in various situations. The women’s late diagnosis made them revise and rewrite their past, emphasizing environmental aspects instead of assuming personal blame for the hardship they had endured.
这个定性访谈研究的目的是阐明自闭症在中年妇女诊断前后的生活中的意义和经历。这项研究是由重要的残疾研究和重要的自闭症研究提供的。六名女性在冰岛一部关于自闭症女性的纪录片中分享了她们的经历。数据分析采用解释性现象学分析(IPA)。回顾过去,这些女性描述了她们年轻时的痛苦经历,以及由于她们的自闭症特征和难以接近的环境而在满足典型的社会和工作环境要求方面的挣扎。个人和环境因素独特地相互作用,调解妇女在各种情况下的排斥。这些妇女的晚期诊断使她们重新审视和改写自己的过去,强调环境因素,而不是为自己所经历的苦难承担个人责任。
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引用次数: 0
‘You Never Know where their Hands Have Been’ – the Notion of Intellectual Disability as Contaminated “你永远不知道他们的手曾经在哪里”——智障被污染的概念
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.16993/sjdr.1010
Stine Marlen Henriksen, Johans Tveit Sandvin
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引用次数: 0
The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation 个人就是政治——然后呢?瑞典残疾人组织的意识形态、代表性和合法性
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.16993/sjdr.1001
Oskar Krantz, Stina Melander, J. Bahner
Background: Who can or cannot claim to represent other members within the disability rights movement has been discussed for decades, mainly concerning being disabled as an eligibility prerequisite. Aim(s): The aim is to analyse arguments concerning representational claims within a Swedish disability rights organisation (DHR, Disability Human Rights). Method: Every member of DHR was given the opportunity to answer three open-ended questions. Answers were subjected to a qualitative content analysis. Results: Two main dimensions of arguments were found. The ideological dimension legitimises representation through lived experience or a human rights approach. The pragmatic dimension legitimises representation through relational claims or organisational necessities. Further analysis revealed a paradox: When a representative is required to have a body with certain characteristics, other knowledge-related aspects risk devaluation. Conclusion(s): Paradoxically, the organisation has a goal of rendering impairment irrelevant in society, while rendering impairment a main issue when electing representatives.
背景:在残疾人权利运动中,谁可以或不能代表其他成员已经讨论了几十年,主要是关于残疾作为资格先决条件。目的:目的是分析瑞典残疾人权利组织(DHR,残疾人人权)内关于代表性要求的争论。方法:每位DHR成员都有机会回答三个开放式问题。对答案进行定性内容分析。结果:发现了争论的两个主要维度。意识形态维度通过生活经验或人权方法使代表合法化。实用主义维度通过关系要求或组织需要使表现合法化。进一步的分析揭示了一个悖论:当一个代表被要求拥有一个具有某些特征的身体时,其他与知识相关的方面就有贬值的风险。结论:矛盾的是,该组织的目标是使残疾与社会无关,而使残疾成为选举代表时的主要问题。
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引用次数: 0
Physical Management of Pain and Disability among Healthcare Workers Due to Mechanical Neck Pain: A Randomized Controlled Trial 机械性颈部疼痛对医护人员疼痛和残疾的物理管理:一项随机对照试验
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.57197/jdr-2023-0022
M. Salman, M. Shrahili, I. Elbatal
Mechanical neck pain (MNP) in the second most common disability among healthcare workers. The main objective of this study was to compare the effects of dry needling (DN) and transcutaneous electrical nerve stimulation (TENS) for the management of MNP among healthcare workers. A single blind RCT (n = 30) was conducted at the Neuro Counsel Clinic, Islamabad. Simple convenient sampling techniques were used to recruit participants of age 20-50 years who had no comorbidity of any kind. Two equal groups were made. Group A received DN for ×1/day for 2 weeks and Group B received TENS at the rate of ×2/day for 2 weeks. Data were evaluated on the basis of Numeric Pain Rating Scale (NPRS) and Neck Disability Index (NDI) score. Prepost data were analyzed for within group (Wilcoxon rank test) and between groups (Mann–Whitney U test). The level of significance was kept at P < 0.05. The mean ± standard deviation (SD) of age in Group A was 33.87 ± 8.18 while in Group B it was 33.67 ± 7.60. Wilcoxon rank test revealed that both techniques are effective for within-group analysis (P < 0.001). Mann–Whitney U test revealed that both techniques showed no significant results on NPRS score as P > 0.05 but the NDI score revealed that there is a significant difference between groups (P < 0.05). On the basis of results, it is concluded that DN is more effective when compared to TENS for disability management in MNP sufferers.
机械性颈痛(MNP)是医疗工作者中第二常见的残疾。本研究的主要目的是比较干针(DN)和经皮神经电刺激(TENS)治疗医护人员MNP的效果。在伊斯兰堡神经咨询诊所进行单盲随机对照试验(n = 30)。采用简单方便的抽样技术,招募年龄在20-50岁、无任何合并症的参与者。分成两组。A组给予DN (×1/天),连续2周;B组给予TENS (×2/天),连续2周。根据数字疼痛评定量表(NPRS)和颈部残疾指数(NDI)评分对数据进行评估。对前后资料进行组内(Wilcoxon秩检验)和组间(Mann-Whitney U检验)分析。显著性水平保持在P < 0.05。A组年龄均值±标准差(SD)为33.87±8.18,B组年龄均值±标准差(SD)为33.67±7.60。Wilcoxon秩次检验显示两种方法对组内分析都有效(P < 0.001)。Mann-Whitney U检验显示,两种技术对NPRS评分的影响均无显著性差异(P < 0.05),但NDI评分组间差异有显著性意义(P < 0.05)。结果表明,与TENS相比,DN对MNP患者的残疾管理更有效。
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引用次数: 0
Assisting Healthcare Using a Time-Series-Based Nonstationary Model for Smart Beds 使用基于时间序列的智能床非平稳模型协助医疗保健
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.57197/jdr-2023-0009
Mohamed Maddeh, S. Ayouni, Shaha T. Al-Otaibi, M. Alazzam, Nazik Alturki, Fahima Hajjej
Under any medical circumstance, the first and foremost requirement is to monitor physiological factors such as heart rate, blood pressure and oxygen level. Any breakdown in their coupling has been linked to ageing or illness. These physiological signals are nonstationary, and this paper analyses the transfer functions of nonstationary multidimensional time series of physiological signals. In this work, a method that integrates physiological modelling and functional elements into the smart bed for patients is proposed. This work includes experimentation on 10 smart bed patients. The proposed idea is validated and analysed to automatically capture any changes in the physiological signals due to postural changes, any impact of ageing or any requirement of a medical emergency. Next, it is demonstrated that the proposed method can be used to identify transient changes linked to medical emergencies for the given time-series data. These findings show the value of the proposed method in predicting the complicated vital-sign processes where conventional manual autoregulatory systems may fail in both healthy and pathological situations. The relation between the time series of physiological signals is an essential study field. A reliable time-varying model is presented to account for the possible nonstationarity of physiological data to determine the possibility of emergency care for patients. The suggested approach can identify variations and relations between signals because it is built as a dynamic model based on time-varying parameters. The technique used in this research includes readings of heart rate, blood pressure and oxygen level connected to the patient’s smart bed. The paper includes transient analysis and parametric evaluation as part of this work.
在任何医疗情况下,首要的要求是监测心率、血压和氧含量等生理因素。夫妻关系的任何破裂都与衰老或疾病有关。这些生理信号是非平稳的,本文分析了生理信号的非平稳多维时间序列的传递函数。在这项工作中,提出了一种将生理建模和功能元素集成到患者智能床中的方法。这项工作包括对10名智能床患者进行实验。所提出的想法经过验证和分析,可以自动捕捉由于姿势变化、衰老的影响或医疗紧急情况的任何要求而引起的生理信号的任何变化。接下来,证明了所提出的方法可用于识别与给定时间序列数据的医疗紧急情况相关的瞬态变化。这些发现显示了所提出的方法在预测复杂的生命体征过程中的价值,在这些过程中,传统的手动自动调节系统可能在健康和病理情况下失效。生理信号时间序列之间的关系是一个重要的研究领域。提出了一个可靠的时变模型来解释生理数据可能的非平稳性,以确定对患者进行紧急护理的可能性。由于该方法是基于时变参数的动态模型,因此可以识别信号之间的变化和关系。这项研究中使用的技术包括读取与患者智能床相连的心率、血压和氧气水平。本文包括暂态分析和参数评估作为这项工作的一部分。
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引用次数: 0
Automated Gesture-Recognition Solutions using Optimal Deep Belief Network for Visually Challenged People 基于最优深度信念网络的视觉障碍者自动手势识别解决方案
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.57197/jdr-2023-0028
G. Aldehim, Radwa Marzouk, M. Al-Hagery, A. Hilal, Amani A. Alneil
Gestures are a vital part of our communication. It is a procedure of nonverbal conversation of data which stimulates great concerns regarding the offer of human–computer interaction methods, while permitting users to express themselves intuitively and naturally in various contexts. In most contexts, hand gestures play a vital role in the domain of assistive technologies for visually impaired people (VIP), but an optimum user interaction design is of great significance. The existing studies on the assisting of VIP mostly concentrate on resolving a single task (like reading text or identifying obstacles), thus making the user switch applications for performing other actions. Therefore, this research presents an interactive gesture technique using sand piper optimization with the deep belief network (IGSPO-DBN) technique. The purpose of the IGSPO-DBN technique enables people to handle the devices and exploit different assistance models by the use of different gestures. The IGSPO-DBN technique detects the gestures and classifies them into several kinds using the DBN model. To boost the overall gesture-recognition rate, the IGSPO-DBN technique exploits the SPO algorithm as a hyperparameter optimizer. The simulation outcome of the IGSPO-DBN approach was tested on gesture-recognition dataset and the outcomes showed the improvement of the IGSPO-DBN algorithm over other systems.
手势是我们交流的重要组成部分。它是一种非语言的数据对话过程,它激发了人们对人机交互方法的极大关注,同时允许用户在各种环境中直观和自然地表达自己。在大多数情况下,手势在视障人士辅助技术领域发挥着至关重要的作用,但优化用户交互设计具有重要意义。现有关于VIP辅助的研究大多集中在解决单一任务(如阅读文本或识别障碍物),从而使用户切换应用程序执行其他动作。因此,本研究提出了一种基于沙笛优化和深度信念网络(IGSPO-DBN)技术的交互式手势技术。IGSPO-DBN技术的目的是使人们能够通过使用不同的手势来处理设备并利用不同的辅助模型。IGSPO-DBN技术检测手势并使用DBN模型将其分类为几种类型。为了提高整体手势识别率,IGSPO-DBN技术利用SPO算法作为超参数优化器。在手势识别数据集上对IGSPO-DBN方法的仿真结果进行了测试,结果表明IGSPO-DBN算法比其他系统有改进。
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引用次数: 0
Piece-Wise Linear Chaotic Mapping-based Beluga Whale Optimization Algorithm-based Indoor Activity Monitoring for Elderly and Visually Impaired Persons 基于分段线性混沌映射的白鲸优化算法的老年人和视障人士室内活动监测
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.57197/jdr-2023-0030
Jaber S. Alzahrani, Mohammed Rizwanullah, A. Osman
Currently, the methods of mobile communications and Internet of Things (IoT) are designed to collect human and environmental data for various intelligent applications and services. Remote monitoring of disabled and elderly people living in smart homes is challenging. Localization and positioning in indoor surroundings need unique solutions. Moreover, positioning remains a crucial feature of any navigation system that assists visually impaired persons (VIPs) in mobility. Other indispensable features of a common indoor navigation system are obstacle avoidance, pathfinding, and abilities for user communication. In recent times, the arrival of smartphones, artificial intelligence, IoT, wearables, etc. makes it possible to devise indoor monitoring systems for smart homecare. Therefore, this study presents an Improved Beluga Whale Optimization Algorithm with fuzzy-based Indoor Activity Monitoring (IBWOA-FIMS) for elderly and VIPs. The presented IBWOA-FIMS technique mainly focused on the identification and classification of indoor activities of elderly and disabled people. To accomplish this, the IBWOA-FIMS technique employs an adaptive neuro fuzzy inference system (ANFIS) model for the indoor monitoring process. In order to improve the monitoring results of the IBWOA-FIMS technique, the IBWOA is used to adjust the parameters related to the ANFIS model. For illustrating the enhanced indoor monitoring results of the IBWOA-FIMS technique, a series of simulations were performed. The simulation values portrayed the betterment of the IBWOA-FIMS technique in terms of different metrics.
目前,移动通信和物联网(IoT)的方法旨在为各种智能应用和服务收集人类和环境数据。对生活在智能家居中的残疾人和老年人进行远程监控是一项挑战。室内环境的定位和定位需要独特的解决方案。此外,定位仍然是任何帮助视障人士(vip)移动的导航系统的关键功能。普通室内导航系统的其他不可缺少的特征是避障、寻径和用户通信能力。近年来,智能手机、人工智能、物联网、可穿戴设备等的出现,使得设计智能家居室内监控系统成为可能。为此,本研究提出了一种基于模糊室内活动监测(IBWOA-FIMS)的改进白鲸优化算法。本文提出的IBWOA-FIMS技术主要针对老年人和残疾人的室内活动进行识别和分类。为了实现这一目标,IBWOA-FIMS技术采用自适应神经模糊推理系统(ANFIS)模型进行室内监测过程。为了改善IBWOA- fims技术的监测结果,利用IBWOA对ANFIS模型相关参数进行调整。为了说明IBWOA-FIMS技术增强的室内监测效果,进行了一系列的模拟。仿真值描述了IBWOA-FIMS技术在不同度量方面的改进。
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引用次数: 0
Premenstrual Syndrome and Mindfulness: The Mediating Effect of Perceived Social Support and Health-Related Quality of Life Among Deaf/Hard-of-Hearing Women 经前症候群与正念:知觉社会支持与耳聋/重听妇女健康相关生活质量的中介作用
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.57197/jdr-2023-0015
M. Alkahtani, H. Alqahtani, Sahar Ziedan Zaien, Tameem Melhem, Abdullah Naif Alanazi
The purpose of this study is to explore the relationship between premenstrual syndrome (PMS) and mindfulness as well as the mediating role of perceived social support (PSS) and health-related quality of life (HRQoL) among deaf/hard-of-hearing women. This is a cross-sectional study. An overall sample of 202 participants was selected. Path analysis was used. As indicated by the results obtained, PMS correlated significantly with mindfulness, PSS, and HRQoL. Moreover, mindfulness correlated significantly and positively with PSS and HRQoL. Besides, there is a significant negative relationship between PSS and HRQoL. PMS has direct effects on PSS and HRQoL. In addition, both PSS and HRQoL have immediate impacts on mindfulness. To conclude, this study examined and confirmed the relationship between PMS and mindfulness as mediated by PSS and HRQoL among deaf/hard-of-hearing women.
本研究旨在探讨耳聋/听障女性经前症候群(PMS)与正念的关系,以及知觉社会支持(PSS)与健康相关生活质量(HRQoL)的中介作用。这是一项横断面研究。总共选择了202名参与者。采用通径分析。结果表明,PMS与正念、PSS和HRQoL显著相关。正念与PSS、HRQoL呈显著正相关。PSS与HRQoL呈显著负相关。PMS对PSS和HRQoL有直接影响。此外,PSS和HRQoL都对正念有直接影响。综上所述,本研究考察并证实了经前综合症与正念之间的关系,并通过经前综合症和HRQoL介导。
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引用次数: 0
What’s the ‘Problem’ with Workplace Accommodation? A Disability Policy Journey Over Time 工作场所住宿的“问题”是什么?随着时间的推移,残疾政策之旅
Q2 REHABILITATION Pub Date : 2023-01-01 DOI: 10.16993/sjdr.918
J. S. Vedeler, C. Anvik
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引用次数: 0
期刊
Scandinavian Journal of Disability Research
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