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Die Brücke zwischen Theorie und Praxis schlagen: Veranschaulichung von Implementierungsansätzen für komplexe Familieninterventionen [弥合 "知与行 "之间的差距:复杂家庭干预的实施方法]。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.09.003
Saskia Oesch, Torsten Schwalbach, Lotte Verweij, Myrta Kohler, Simone Sutter, Marco Riguzzi, Rahel Naef

Background

The introduction of complex family interventions poses a challenge since they consist of various interacting components which affect multiple players and often require changes in behaviour and work processes. Implementation success is strongly influenced by environmental factors. The comprehensive implementation of complex interventions therefore needs a deliberate and systematic implementation process, including its evaluation. Implementation science offers a variety of theories and methods to support the integration and evaluation of complex family health interventions in real-world settings, requiring a broad spectrum of knowledge and skills for clinicians and researchers alike. Hence, specific examples may be relevant to both clinicians and researchers who wish to systematically address know-do gaps in clinical practice.

Aim

The aim is to describe and illustrate how complex family interventions can be systematically designed, evaluated and implemented using implementation science frameworks and methods by drawing on two research projects – namely the Family Support in Intensive Care Units (FICUS) and Bereavement Support for Families (B4F).

Methodical steps to implementation

Five steps were used to implement and evaluate the interventions across both research projects: 1) engaging key persons and families, 2) identifying gaps in care and developing/adapting the intervention, 3) understanding the implementation context, 4) tailoring implementation approaches, and 5) evaluating implementation progress and success.

Discussion and conclusion

The five illustrated steps allow for a theory-guided but nevertheless pragmatic approach in the implementation of complex family interventions. This approach may serve as a guide to integrate complex interventions and evidence-based practices into routine care and to close know-do gaps.
背景:采取复杂的家庭干预措施是一项挑战,因为这些措施由各种相互影响的部分组成,影响到多个参与者,而且往往需要改变行为和工作流程。实施成功与否受环境因素的影响很大。因此,复杂干预措施的全面实施需要一个深思熟虑和系统的实施过程,包括对其进行评估。实施科学提供了各种理论和方法,以支持在现实环境中整合和评估复杂的家庭健康干预措施,这需要临床医生和研究人员具备广泛的知识和技能。因此,具体实例可能对希望系统解决临床实践中知行差距的临床医生和研究人员都有意义。目的:旨在通过两个研究项目--即重症监护病房家庭支持(FICUS)和家庭丧亲支持(B4F)--来描述和说明如何利用实施科学框架和方法系统地设计、评估和实施复杂的家庭干预措施:在这两个研究项目中,我们采用了五个步骤来实施和评估干预措施:1) 吸引关键人员和家庭参与;2) 确定护理差距并开发/调整干预措施;3) 了解实施背景;4) 量身定制实施方法;5) 评估实施进展和成功:所说明的五个步骤为复杂家庭干预措施的实施提供了一种理论指导但又务实的方法。这种方法可作为将复杂干预措施和循证实践纳入常规护理的指南,并缩小 "知行 "差距。
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引用次数: 0
Informations- und Unterstützungsbedarfe von Frauen bei geplantem Schwangerschaftsabbruch nach Beratungsregelung in Deutschland – eine qualitative Studie [根据德国的咨询规定,计划堕胎的妇女对信息和支持的需求--一项定性研究]。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.09.001
Caroline Jeltsch, Birte Berger-Höger

Background

For women seeking legal abortion care, access to information and care options is not transparent in Germany. This can affect health and complicate the decision-making process. In its guideline, the WHO recommends the use of evidence-based information to enable women to make informed decisions. This qualitative study aims to assess preferences and decisional needs of women in Germany.

Method

For the needs assessment, a qualitative study based on semi-structured guided interviews was conducted with pregnancy conflict counsellors and women who terminated a pregnancy in the past five years in Germany. These data were supplemented with social media group postings of women with pregnancy conflict experiences. All data were analysed using content-structuring analysis according to Kuckartz.

Results

Three women who had undergone an abortion and two pregnancy conflict counsellors were interviewed. In addition, 89 posts from a closed social media group were analysed. Three main categories were identified: women’s categorisation in value systems, factors influencing the experience of the care process and information needs of women facing conflict situations in connection with their pregnancy (“pregnancy conflict”). Abortion is considered to be stigmatised, so women rarely use existing counselling services. Overall, there is a high need for information and support among those seeking care. Concerns exist, especially with regard to the methods of abortion. The results of the study also indicate a burden caused by fragmented care, which requires a high degree of self-organisation of women.

Discussion

The care situation in Germany does not meet the recommendations of the WHO guideline on safe abortion. The results indicate that care close to home and with an abortion procedure that meets women’s individual preferences and thus complies with their self-determination has not yet been achieved in Germany.

Conclusion

Neutral and evidence-based information could be helpful to enable women to make informed decisions and reduce anxiety. It would also be desirable to increase the opportunities for women to talk about their experiences in a protected environment.
背景:在德国,寻求合法堕胎护理的妇女在获取信息和护理选择方面并不透明。这可能会影响健康并使决策过程复杂化。世界卫生组织在其指南中建议使用循证信息,使妇女能够做出知情决定。这项定性研究旨在评估德国妇女的偏好和决策需求:为了进行需求评估,我们对妊娠冲突咨询师和过去五年中在德国终止妊娠的妇女进行了半结构化引导访谈,并以此为基础开展了一项定性研究。这些数据还得到了社交媒体上有妊娠冲突经历的妇女群体发帖的补充。所有数据均按照库卡茨(Kuckartz)的方法进行了内容结构分析:结果:采访了三位接受过人工流产的女性和两位妊娠冲突咨询师。此外,还分析了来自一个封闭社交媒体群组的 89 个帖子。主要分为三类:妇女在价值体系中的分类、影响护理过程体验的因素以及面临妊娠冲突情况("妊娠冲突")的妇女的信息需求。堕胎被认为是一种耻辱,因此妇女很少使用现有的咨询服务。总体而言,寻求护理的妇女非常需要信息和支持。尤其是在堕胎方法方面,存在着令人担忧的问题。研究结果还表明,分散的医疗服务造成了负担,需要妇女高度的自我组织能力:讨论:德国的护理情况不符合世界卫生组织安全堕胎指南的建议。结果表明,德国尚未实现离家近的医疗服务和符合妇女个人偏好的人工流产程序,因此也不符合妇女的自决权:结论:中立和以证据为基础的信息有助于妇女做出知情决定并减少焦虑。最好还能增加妇女在受保护的环境中谈论自己经历的机会。
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引用次数: 0
Health issues of young adults with hearing loss or deafness: A basis for the development of a chatbot 患有听力损失或耳聋的年轻人的健康问题:开发聊天机器人的基础。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.09.002
Miriam Meng , Hannele Hediger , Alexandre de Spindler , Daniela Händler-Schuster

Background

The loss of hearing and thus communication affects the well-being of millions of people worldwide. Digital tools for coping with everyday life are becoming increasingly important and can have a positive impact on health literacy, especially among young adults. This raises the question of which issues such apps should specifically address in order to meet the needs of young adults with hearing loss or deafness.

Methods

The aim was to identify the health issues of young adults (aged 18–28 years) with hearing loss or deafness in order to derive specific recommendations for a conversational agent (chatbot). A multiple embedded case study design consisting of chat interviews (n = 8) and an online-based expert survey (n = 14) was used.

Results

The central phenomenon focuses on “The sense of belonging and feeling well in spite of hearing loss”, which is influenced by two main categories: a. the ability to be oneself despite one’s vulnerability; b. the desire to be strong despite one’s vulnerability. Important health issues include depression, drug use, diet, exercise, isolation due to COVID measures and HIV prophylaxis.

Conclusion

Written information must be provided in simple and accessible language supported by images and symbols. Conversation agents developed to support people with hearing impairment should be easy to install and self-explanatory to use.
背景:失去听力进而失去交流能力影响着全球数百万人的福祉。应对日常生活的数字工具正变得越来越重要,并能对健康素养产生积极影响,尤其是在年轻成年人中。这就提出了这样一个问题:为了满足听力损失或耳聋的年轻成年人的需求,这些应用程序应该具体解决哪些问题?方法:目的是确定有听力损失或耳聋的年轻人(18-28 岁)的健康问题,以便为对话代理(聊天机器人)提出具体建议。研究采用了多重嵌入式案例研究设计,包括聊天访谈(n = 8)和在线专家调查(n = 14):中心现象集中在 "听力损失的归属感和感觉良好 "上,这主要受两个方面的影响:a. 尽管自己很脆弱,但仍有能力做自己;b. 尽管自己很脆弱,但仍渴望变得强大。重要的健康问题包括抑郁、吸毒、饮食、运动、因 COVID 措施而产生的孤独感以及艾滋病预防:书面信息必须以简单易懂的语言提供,并辅以图像和符号。为支持听力障碍者而开发的对话代理应易于安装和使用。
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引用次数: 0
Inhaltsverzeichnis / Table of Contents
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/S1865-9217(24)00251-4
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引用次数: 0
Gesundheitliche Vorausplanung für die letzte Lebensphase: Wie sind Einrichtungen für erwachsene Menschen mit Behinderungen in Bayern hierauf vorbereitet? [临终关怀规划:巴伐利亚成年残疾人之家的准备情况如何?]
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.09.004
Malte Klemmt , Franziska Zehl , Silke Neuderth , Tanja Henking

Introduction

Autonomy at the end of life is associated with the ability to make self-determined decisions. The heterogeneous field of inpatient integration assistance poses particular challenges in this context. Advance care planning (ACP) is now available to people with disabilities. Nevertheless, little is known about the institution-related needs and the current status with regard to ACP in integration assistance homes.

Methods

A survey of all 850 inpatient homes providing integration assistance for adults in Bavaria was carried out. The survey was conducted online and addressed to home managers. In total, data of 96 homes (11.3% of all homes) was included in the descriptive and categorizing text analysis.

Results

Residents die in 60% of the homes surveyed. 73.7% of the homes offer ACP for their residents, with 62.9% of these homes using standardized procedures. One of the reasons given by the participants for not offering ACP is a better qualification of employees. Barriers include the residents’ lack of ability to participate in ACP meetings or relatives’ reluctant attitude towards ACP.

Discussion

End-of-life care is a relevant topic for inpatient homes providing integration assistance. Accordingly, ACP is already being addressed by a large proportion of homes. Here, special needs of residents due to existing impairments can pose challenges.

Conclusion

The study enables us to draw conclusions about the optimization of ACP from the perspective of care homes, which relate to structural (e.g., adaptation of existing concepts), personal (e. g., qualification) and emotional (e.g., de-tabooization) aspects.
导言:生命末期的自主权与做出自我决定的能力有关。在这一背景下,住院病人融合援助领域的多样性带来了特殊的挑战。现在,残疾人也可以进行预先护理规划(ACP)。然而,人们对与机构相关的需求以及融合辅助院的预先护理规划现状却知之甚少:方法:对巴伐利亚州所有 850 家为成年人提供融合援助的住院机构进行了调查。调查是通过网络进行的,调查对象为养老院管理人员。共有 96 家养老院(占养老院总数的 11.3%)的数据被纳入描述性和分类文本分析:接受调查的安老院中有 60% 的院友死亡。73.7%的养老院为住院患者提供 ACP,其中 62.9%的养老院采用标准化程序。参与者提出的不提供 ACP 的原因之一是员工的资质要求更高。障碍包括住客没有能力参加 ACP 会议或亲属对 ACP 持勉强态度:临终关怀是提供整合援助的住院院舍的一个相关主题。因此,很大一部分安老院已经开始关注 ACP。在这方面,住户因现有缺陷而产生的特殊需求可能会带来挑战:这项研究使我们能够从疗养院的角度得出优化 ACP 的结论,这些结论涉及结构(如现有概念的调整)、个人(如资格)和情感(如去禁忌化)等方面。
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引用次数: 0
Nursing research at German university hospitals: A descriptive, cross-sectional study on the current status of nursing research activities and challenges for ethical approval 德国大学医院的护理研究:关于护理研究活动现状和伦理审批挑战的横断面描述性研究。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.10.005
Anna-Henrikje Seidlein , Helga E. Breimaier , Franziska Wefer , Jennifer Luboeinski , Astrid Stephan , Andreas Kocks , Peter Nydahl

Introduction

Nursing research is an integral part of nursing science and essential for evidence-based nursing practice. Research conducted by nursing scientists employed at university hospitals is shaped by the specific prevailing conditions. It is largely unclear to what extent these nursing scientists are engaged in research and which difficulties they have to face. The purpose of the study was to gain insight into nursing scientists’ research activities in German university hospitals and to assess the challenges they encounter in gaining ethical approval from institutional review boards.

Methods

We conducted a descriptive, cross-sectional study. Data was collected among nursing scientists at university hospitals in Germany with an online survey using closed and open questions.

Results

The response rate was 68 %. In total, the answers of n = 31 nursing researchers could be analysed. The majority of participants (58.1 %) stated that they worked as project leaders on several research projects and estimated the time they spent on research at up to 25 % of their working time. The most frequently used research methodology was qualitative research (45.2 %) with employees (54.8 %) and patients (22.6 %) as study participants. Prior to performing research projects, most of the respondents submitted their study protocols to the local institutional review board (35.5 %). Half of the nursing researchers (48.4 %) had been faced with challenges in this process which were mostly due to board members being unfamiliar with qualitative designs and nursing research.

Discussion

Nursing scientists employed at German university hospitals carry out a considerable number of research projects. However, time constraints and lack of funding in particular pose a challenge not only for productivity in the clinical setting, but also for the process of ethical clearance. The requirements of applying for ethical clearance at the local research ethics committees, the costs and the time required for gaining approval are very heterogeneous and thus lead to uncertainty and complicated processes.

Conclusion

A good cooperative relationship, the adaptation of structural requirements with regard to the assessment of nursing research projects in favour of increased transparency and, finally, better integration of nursing scientists in local research ethics committees should be established in order to better support nursing research activities.
引言护理研究是护理科学不可分割的一部分,对循证护理实践至关重要。受雇于大学医院的护理科学家所开展的研究是由特定的现有条件决定的。目前还不清楚这些护理科学家在多大程度上参与了研究,以及他们需要面对哪些困难。本研究旨在深入了解护理科学家在德国大学医院的研究活动,并评估他们在获得机构审查委员会的伦理批准时遇到的挑战:我们进行了一项描述性横断面研究。方法:我们进行了一项描述性横断面研究,通过使用封闭式和开放式问题的在线调查收集了德国大学医院护理科学家的数据:答复率为 68%。共分析了 n = 31 名护理研究人员的回答。大多数参与者(58.1%)表示,他们在多个研究项目中担任项目负责人,估计用于研究的时间最多占其工作时间的 25%。最常用的研究方法是定性研究(45.2%),研究对象包括员工(54.8%)和病人(22.6%)。在开展研究项目之前,大多数受访者都会向当地机构审查委员会提交研究方案(35.5%)。半数护理研究人员(48.4%)在这一过程中遇到了挑战,主要原因是委员会成员不熟悉定性设计和护理研究:德国大学医院的护理科学家开展了大量研究项目。然而,时间限制和资金短缺不仅对临床工作效率构成挑战,也对伦理审查过程构成挑战。向当地研究伦理委员会申请伦理审查的要求、获得批准所需的费用和时间各不相同,因此导致了不确定性和复杂的程序:结论:为了更好地支持护理研究活动,应建立良好的合作关系,调整对护理研究项目评估的结构性要求,以提高透明度,最后,更好地将护理科学家纳入地方研究伦理委员会。
{"title":"Nursing research at German university hospitals: A descriptive, cross-sectional study on the current status of nursing research activities and challenges for ethical approval","authors":"Anna-Henrikje Seidlein ,&nbsp;Helga E. Breimaier ,&nbsp;Franziska Wefer ,&nbsp;Jennifer Luboeinski ,&nbsp;Astrid Stephan ,&nbsp;Andreas Kocks ,&nbsp;Peter Nydahl","doi":"10.1016/j.zefq.2024.10.005","DOIUrl":"10.1016/j.zefq.2024.10.005","url":null,"abstract":"<div><h3>Introduction</h3><div>Nursing research is an integral part of nursing science and essential for evidence-based nursing practice. Research conducted by nursing scientists employed at university hospitals is shaped by the specific prevailing conditions. It is largely unclear to what extent these nursing scientists are engaged in research and which difficulties they have to face. The purpose of the study was to gain insight into nursing scientists’ research activities in German university hospitals and to assess the challenges they encounter in gaining ethical approval from institutional review boards.</div></div><div><h3>Methods</h3><div>We conducted a descriptive, cross-sectional study. Data was collected among nursing scientists at university hospitals in Germany with an online survey using closed and open questions.</div></div><div><h3>Results</h3><div>The response rate was 68 %. In total, the answers of n = 31 nursing researchers could be analysed. The majority of participants (58.1 %) stated that they worked as project leaders on several research projects and estimated the time they spent on research at up to 25 % of their working time. The most frequently used research methodology was qualitative research (45.2 %) with employees (54.8 %) and patients (22.6 %) as study participants. Prior to performing research projects, most of the respondents submitted their study protocols to the local institutional review board (35.5 %). Half of the nursing researchers (48.4 %) had been faced with challenges in this process which were mostly due to board members being unfamiliar with qualitative designs and nursing research.</div></div><div><h3>Discussion</h3><div>Nursing scientists employed at German university hospitals carry out a considerable number of research projects. However, time constraints and lack of funding in particular pose a challenge not only for productivity in the clinical setting, but also for the process of ethical clearance. The requirements of applying for ethical clearance at the local research ethics committees, the costs and the time required for gaining approval are very heterogeneous and thus lead to uncertainty and complicated processes.</div></div><div><h3>Conclusion</h3><div>A good cooperative relationship, the adaptation of structural requirements with regard to the assessment of nursing research projects in favour of increased transparency and, finally, better integration of nursing scientists in local research ethics committees should be established in order to better support nursing research activities.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"190 ","pages":"Pages 5-12"},"PeriodicalIF":1.4,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The SLIPPS Learning Event Recording Tool for students in Advanced Practice Nursing: A translation and content validation study 用于高级护理实践学生的SLIPPS学习事件记录工具:翻译和内容验证研究。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.11.001
Lisa Pointner , Alison Steven , Piret Paal , Manela Glarcher

Introduction

Patient safety is crucial in healthcare, yet over three million people die annually worldwide due to adverse events. To learn from adverse events and patient safety incidents, they need to be identified, examined, and reflected upon. Therefore, the SLIPPS Learning Event Recording Tool (SLERT) was developed to promote learning from patient safety events, both negative and positive. This study aimed to translate and validate the SLERT, which is already available in seven languages, for German-speaking countries.

Methods

The validation study involved a structured 4-phase blind-back translation to ensure cross-cultural equivalence of the translated tool. This was followed by a cognitive validation to determine content validity, a pilot survey with nursing students, and an evaluation of user-friendliness based on the System Usability Scale (SUS). Data was analysed qualitatively with Mayring’s method using MAXQDA and quantitatively with descriptive analysis in Excel.

Results

Five nurses participated in the group meeting on cognitive validation (Ø age = 28.8; Ø years of professional experience = 4.7). The German SLERT comprises sections underpinned by theory, which prompt students to describe, reflect upon, and learn from patient safety events. The pilot survey with 15 students (80 % women) indicated acceptable user-friendliness, with 50 % scoring between 80 and 100 on the SUS. The incidents described in the pilot exclusively indicated adverse events, near misses, or hazards from the sub-areas “medication management”, “using medical devices”, “confusion of patients”, “staff problems/errors” and “self-harm of patients”.

Discussion

For the first time, the German-language version of the SLERT was used to record and reflect on patient safety events among nursing students.

Conclusion

Standardised reporting and reflective practices are critical to improving patient safety. The SLERT provides a user-friendly way to contribute valuable data for targeted quality and risk management measures and prepare future healthcare professionals for advanced practice.
患者安全在医疗保健中至关重要,但全球每年有300多万人死于不良事件。为了从不良事件和患者安全事件中学习,需要对它们进行识别、检查和反思。因此,SLIPPS学习事件记录工具(SLERT)被开发出来,以促进从患者安全事件中学习,无论是消极的还是积极的。这项研究的目的是为德语国家翻译和验证已经有七种语言版本的SLERT。方法:验证研究包括结构化的四阶段盲反翻译,以确保翻译工具的跨文化等效。随后进行认知验证以确定内容有效性,对护理学生进行试点调查,并基于系统可用性量表(SUS)对用户友好性进行评估。数据用MAXQDA用Mayring法定性分析,用Excel用描述性分析定量分析。结果:5名护士参加了认知验证小组会议(Ø,年龄= 28.8;Ø专业经验年数= 4.7)。德国SLERT包括以理论为基础的部分,这些部分促使学生描述、反思并从患者安全事件中学习。对15名学生(80%为女性)进行的试点调查表明,用户友好性是可以接受的,其中50%的学生在SUS上的得分在80到100之间。试点中描述的事件专门指出了“药物管理”、“使用医疗设备”、“病人困惑”、“工作人员问题/错误”和“病人自我伤害”等子领域的不良事件、险些发生或危险。讨论:第一次使用德语版本的SLERT来记录和反思护理学生的患者安全事件。结论:标准化报告和反思实践对提高患者安全至关重要。SLERT提供了一种用户友好的方式,为有针对性的质量和风险管理措施提供有价值的数据,并为未来的医疗保健专业人员进行高级实践做好准备。
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引用次数: 0
Alternative Versorgungskonzepte für niedrigprioritäre Einsätze im deutschen Rettungsdienst – deskriptive Ergebnisse einer Online-Befragung [德国救护车服务中低急性紧急医疗服务任务的替代护理概念:在线调查的描述性结果]。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.07.008
Johanna Sophie Lubasch , Syrina Beierle , Viktoria Sirkku Marewski , Cassandra Rehbock , Stefan Thate , Hanna Schröder , Stefan K. Beckers , Anja Sommer , Insa Seeger

Introduction

In Germany, the number of emergency missions has been rising for several years. At the same time, it can be observed that the amount of missions involving emergency physicians is decreasing, while the number of outpatient treatments without transport is increasing. To cope with this situation, different alternative care concepts have been developed as complementary resources throughout Germany. This study comprehensively compares these concepts, and it aims to highlight best-practice examples and stimulate a joint learning process.

Methods

As part of an online survey project leaders of various concepts were asked to take part in a standardized online survey. The survey comprised a total of 28 questions relating to various areas such as qualifications and training or resource equipment. The information was supplemented by documents, which were additionally submitted by the respondents.

Results

A total of seven concepts were examined. They all have in common that they are alerted by the dispatch centers to care mainly for low-code cases. Furthermore, the resources are staffed by trained paramedics, and patient transport is not possible. All resources are able to contact other medical facilities. Differences can be seen in the areas of funding, training, equipment, availability, and further areas of responsibility.

Discussion

The development of a large number of different care concepts in Germany has taken place in parallel with the development in other European countries, where different approaches have also been established for low-priority requests for assistance. In order to direct low-priority requests for assistance to a needs-based care unit in Germany as well, rescue dispatch centers should have a broader repertoire of care at their disposal. Implications for research arising from this lie in particular in evaluating the various concepts adequately, especially with regard to the quality of care, and thus ensuring needs-based and targeted care.

Conclusion

Widespread introduction of alternative care concepts might help relieve the burden on emergency medical care. This requires more research and evaluation as well as optimized data quality and standardization. In addition, it is desirable to enhance cooperation with the medical on-call service.
导言:在德国,急诊任务的数量几年来一直在上升。与此同时,有急诊医生参与的任务数量却在减少,而无需转运的门诊治疗数量却在增加。为了应对这种情况,德国各地开发了不同的替代医疗概念,作为补充资源。本研究对这些概念进行了全面比较,旨在突出最佳实践范例,促进共同学习:作为在线调查项目的一部分,各种理念的领导者被要求参加一项标准化在线调查。调查共包括 28 个问题,涉及资质、培训或资源设备等多个领域。调查结果:共研究了七个概念。它们的共同点都是由调度中心发出警报,主要负责处理低代码病例。此外,这些资源都配备了训练有素的辅助医务人员,不可能运送病人。所有资源都能与其他医疗设施取得联系。在资金、培训、设备、可用性和进一步的责任范围等方面都存在差异:德国在发展大量不同护理概念的同时,也在发展其他欧洲国家的护理概念。在德国,为了将低优先级的援助请求也引导到以需求为基础的救护单位,救援调度中心应掌握更广泛的救护方法。由此产生的研究意义尤其在于对各种概念进行充分评估,特别是在护理质量方面,从而确保提供以需求为基础的、有针对性的护理:结论:广泛采用替代性护理概念可能有助于减轻紧急医疗护理的负担。这需要更多的研究和评估,以及优化数据质量和标准化。此外,最好能加强与值班医疗服务机构的合作。
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引用次数: 0
Kinder und Jugendliche mit Post-COVID-Syndrom: eine qualitative Studie zu Erfahrungen und Zufriedenheit mit der Versorgung in einem Modellprojekt in Bayern (Post-COVID Kids Bavaria) [患有后 COVID-19 症状的儿童和青少年:关于巴伐利亚示范项目(巴伐利亚后 COVID 儿童)治疗经验和满意度的定性研究]。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.08.008
Susanne Brandstetter , Maja Pawellek , Chiara Rathgeb , Martin Alberer , Cordula Warlitz , Uta Behrends , Michael Kabesch , Stephan Gerling , Christian Apfelbacher

Background

Against the background of inadequate healthcare provision for children and adolescents with post-COVID-19 syndrome (PCS), a model project was initiated in Bavaria (PoCoKiBa: Post-COVID Kids Bavaria), offering specialized diagnostics and care. The aim of this study was to explore and describe the experiences and satisfaction of children and adolescents with PCS, as well as their parents, with the healthcare provided in the model project.

Methods

From October to December 2022, seven focus group discussions were conducted via video conference or in person with a total of 32 participants (19 children/adolescents, twelve mothers, one father). These represented 28 children and adolescents affected by PCS (aged 7 to 17 years). The focus group discussions were recorded, transcribed and analysed using qualitative content analysis.

Results

Study participants talked about their experiences with the care they received within and beyond the model project, continuity of care, communication between doctors and patients, patient information, and the accompanying study. At the sites of the model project, patients found physicians who spent more time with their patients and took them seriously. Following diagnosis, some patients have benefited from recommendations for therapeutic services or everyday behaviours, while others complained about a lack of treatment suggestions or support for dealing with PCS in their everyday life.

Discussion

The experiences of study participants with the medical care of their PCS symptoms within or beyond the model project mirror the well-known challenges of healthcare provision. There is considerable room for improvement in the care of children and adolescents with PCS, particularly in the organization of the complex diagnostic process, which involves several organ systems, and in the provision of targeted information to patients and families affected.

Conclusion

The supply of healthcare services, as established and offered in the PoCoKiBa model project, is crucial for families with a child affected by PCS, since it can offer expertise in diagnosis and treatment that is currently not available in routine health care.
背景:在为患有后 COVID-19 综合征(PCS)的儿童和青少年提供的医疗服务不足的背景下,巴伐利亚州启动了一个示范项目(PoCoKiBa:Post-COVID Kids Bavaria),提供专门的诊断和护理服务。本研究旨在探讨和描述患有 PCS 的儿童和青少年及其父母对示范项目提供的医疗服务的体验和满意度:2022 年 10 月至 12 月,通过视频会议或面对面的方式进行了七次焦点小组讨论,共有 32 人参加(19 名儿童/青少年、12 名母亲和 1 名父亲)。他们代表了 28 名受 PCS 影响的儿童和青少年(7 至 17 岁)。对焦点小组讨论进行了记录、转录,并采用定性内容分析法进行了分析:研究参与者谈到了他们在示范项目内外所获得的护理、护理的连续性、医生与患者之间的沟通、患者信息以及随访研究等方面的经验。在示范项目的实施地点,病人发现医生花更多时间与病人沟通,并认真对待他们。确诊后,一些患者从治疗服务或日常行为建议中受益,而另一些患者则抱怨缺乏治疗建议或日常生活中处理 PCS 的支持:讨论:研究参与者在示范项目内外对其 PCS 症状进行医疗护理的经历反映了众所周知的医疗服务挑战。在为患有 PCS 的儿童和青少年提供医疗服务方面还有很大的改进空间,尤其是在组织涉及多个器官系统的复杂诊断过程以及为患者和受影响家庭提供有针对性的信息方面:结论:PoCoKiBa 示范项目所建立和提供的医疗保健服务对于有 PCS 患儿的家庭来说至关重要,因为它可以提供目前常规医疗保健所不具备的诊断和治疗方面的专业知识。
{"title":"Kinder und Jugendliche mit Post-COVID-Syndrom: eine qualitative Studie zu Erfahrungen und Zufriedenheit mit der Versorgung in einem Modellprojekt in Bayern (Post-COVID Kids Bavaria)","authors":"Susanne Brandstetter ,&nbsp;Maja Pawellek ,&nbsp;Chiara Rathgeb ,&nbsp;Martin Alberer ,&nbsp;Cordula Warlitz ,&nbsp;Uta Behrends ,&nbsp;Michael Kabesch ,&nbsp;Stephan Gerling ,&nbsp;Christian Apfelbacher","doi":"10.1016/j.zefq.2024.08.008","DOIUrl":"10.1016/j.zefq.2024.08.008","url":null,"abstract":"<div><h3>Background</h3><div>Against the background of inadequate healthcare provision for children and adolescents with post-COVID-19 syndrome (PCS), a model project was initiated in Bavaria (PoCoKiBa: Post-COVID Kids Bavaria), offering specialized diagnostics and care. The aim of this study was to explore and describe the experiences and satisfaction of children and adolescents with PCS, as well as their parents, with the healthcare provided in the model project.</div></div><div><h3>Methods</h3><div>From October to December 2022, seven focus group discussions were conducted via video conference or in person with a total of 32 participants (19 children/adolescents, twelve mothers, one father). These represented 28 children and adolescents affected by PCS (aged 7 to 17 years). The focus group discussions were recorded, transcribed and analysed using qualitative content analysis.</div></div><div><h3>Results</h3><div>Study participants talked about their experiences with the care they received within and beyond the model project, continuity of care, communication between doctors and patients, patient information, and the accompanying study. At the sites of the model project, patients found physicians who spent more time with their patients and took them seriously. Following diagnosis, some patients have benefited from recommendations for therapeutic services or everyday behaviours, while others complained about a lack of treatment suggestions or support for dealing with PCS in their everyday life.</div></div><div><h3>Discussion</h3><div>The experiences of study participants with the medical care of their PCS symptoms within or beyond the model project mirror the well-known challenges of healthcare provision. There is considerable room for improvement in the care of children and adolescents with PCS, particularly in the organization of the complex diagnostic process, which involves several organ systems, and in the provision of targeted information to patients and families affected.</div></div><div><h3>Conclusion</h3><div>The supply of healthcare services, as established and offered in the PoCoKiBa model project, is crucial for families with a child affected by PCS, since it can offer expertise in diagnosis and treatment that is currently not available in routine health care.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"190 ","pages":"Pages 108-118"},"PeriodicalIF":1.4,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dünn in der Fläche? Regionale Disparitäten in der Hospiz- und Palliativversorgung in Deutschland [地面上太单薄?德国临终关怀与姑息关怀的地区差异]。
IF 1.4 Q4 HEALTH POLICY & SERVICES Pub Date : 2024-12-01 DOI: 10.1016/j.zefq.2024.07.007
Beate Apolinarski , Stephanie Stiel , Franziska A. Herbst , Siegfried Geyer

Introduction

Outpatient and inpatient hospice and palliative care services have been significantly expanded in Germany in recent decades and are increasingly being supplemented by day care services. However, the availability of these services varies greatly from region to region. The extent to which the availability of these care structures is matched by a regional need based on local population structures is as yet unknown.

Methods

In four Poisson regression models, the relationship between population indicators from the areas of demographics, employment, income, education and health and the number of offers of outpatient and inpatient hospice work and palliative care is exploratively examined. The cumulated data at district level is drawn from the INKAR database of the Federal Institute for Research on Building, Urban Affairs and Spatial Development on living conditions in Germany and from the guide of the German Association for Palliative Medicine. By means of logistic regression, factors influencing the establishment of day care services will also be identified.

Results

The analysis included 401 districts and cities in Germany. The number of inhabitants, settlement density, and the average age of inhabitants are the strongest predictors of the number of palliative care services. In metropolitan regions, both outpatient palliative care services and palliative care units tend to be more frequently available, while the number of outpatient hospice services and inpatient hospices increases in districts with a higher number of inhabitants regardless of settlement density. The regression model was unable to demonstrate a significant influence on the emergence of semi-inpatient care facilities, neither for the population indicators nor for the existing care structures.

Discussion

Regional population structures can only partially explain the geographically uneven distribution of hospice and palliative care services in districts and cities in Germany. Despite an increase in hospice and palliative care services, fewer hospice and palliative care structures are available in low population density regions that tend to have a higher share of older inhabitants.

Conclusion

Future health care planning should give more consideration to other population characteristics than to population size alone in order to improve care in regions with higher care needs that are, for example, due to a higher proportion of older residents. Subsequent studies should investigate which population characteristics can best describe the actual care needs.
导言:近几十年来,门诊和住院病人的临终关怀与姑息关怀服务在德国得到了大幅扩展,日间护理服务也日益得到补充。然而,这些服务在不同地区的提供情况却大相径庭。这些护理机构的可用性在多大程度上与基于当地人口结构的地区需求相匹配,目前还不得而知:在四个泊松回归模型中,对人口统计、就业、收入、教育和健康等领域的人口指标与提供门诊和住院临终关怀工作和姑息关怀服务的数量之间的关系进行了探索性研究。地区一级的累积数据来自联邦建筑、城市事务和空间发展研究所关于德国生活条件的 INKAR 数据库以及德国姑息治疗医学协会的指南。此外,还将通过逻辑回归法找出影响建立日间护理服务的因素:分析对象包括德国的 401 个地区和城市。居民人数、居住密度和居民平均年龄是预测姑息治疗服务数量的最有力因素。在大都市地区,门诊姑息治疗服务和姑息治疗病房往往更常见,而在居民人数较多的地区,无论居住密度如何,门诊临终关怀服务和住院临终关怀病房的数量都会增加。无论是人口指标还是现有的护理结构,回归模型都无法证明半住院护理设施的出现具有显著影响:讨论:地区人口结构只能部分解释德国临终关怀和姑息关怀服务在地区和城市中的不均衡分布。尽管临终关怀和姑息关怀服务有所增加,但在人口密度低、老年居民比例较高的地区,临终关怀和姑息关怀机构较少:结论:未来的医疗保健规划应更多地考虑其他人口特征,而不仅仅是人口数量,以便改善那些因老年居民比例较高等原因而对医疗保健需求较高的地区的医疗保健服务。后续研究应调查哪些人口特征最能说明实际护理需求。
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引用次数: 0
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Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen
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