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Implementation of Australia's National Disability Insurance Scheme 澳大利亚国家残疾保险计划的实施
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-07-01 DOI: 10.1097/IYC.0000000000000169
S. Gavidia-Payne
The National Disability Insurance Scheme (NDIS) was introduced in Australia in 2013 to address the inadequacies of a fragmented and underfunded service system for people with disabilities. For young children with developmental disabilities, NDIS services fall under the early childhood early intervention (ECEI) approach, the impact of which is yet to be documented. Considering the critical role of families in supporting their children with a disability, the aim of the present study was therefore to examine their experiences of the ECEI approach in the State of Victoria. Seventeen parents participated in interviews and focus groups, which generated information clustered around five themes: (1) accessing the NDIS and the ECEI; (2) plan development and implementation; (3) choice and control; (4) family and community life; and (5) parental distress. While highlighting the potential of the NDIS funding and its long-term benefits, participating parents reported numerous challenges in their pursuit of supports under the ECEI. It is concluded that for the NDIS to fulfil its promise and potential, substantive revisions of its systems, policies and practices will be required to be relevant and sensitive to the needs of young children with developmental disabilities and their families.
澳大利亚于2013年推出了国家残疾保险计划(NDIS),以解决为残疾人提供的分散和资金不足的服务系统的不足。对于有发育障碍的幼儿,NDIS服务属于早期儿童早期干预(ECEI)方法,其影响尚未被记录。考虑到家庭在支持残疾儿童方面的关键作用,因此,本研究的目的是审查他们在维多利亚州采用ECEI方法的经验。17位家长参加了访谈和焦点小组,主要围绕以下五个主题收集信息:(1)访问NDIS和ECEI;(2)计划的制定与实施;(3)选择与控制;(四)家庭和社区生活;(5)父母苦恼。在强调NDIS资助的潜力及其长期效益的同时,参与的家长报告了他们在寻求ECEI支持时面临的许多挑战。最后得出的结论是,为了实现NDIS的承诺和潜力,将需要对其系统、政策和做法进行实质性修订,以便与有发育障碍的幼儿及其家庭的需要相关并敏感。
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引用次数: 6
Developing a Community-Based Oral Language Preventive Intervention 发展以社区为基础的口头语言预防干预
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-07-01 DOI: 10.1097/IYC.0000000000000171
E. Schaughency, Jessica Riordan, E. Reese, Melissa Derby, G. Gillon
Natural disasters are disruptive to families and communities, particularly when cascading effects continue over time. Such events, and ensuing disruptions to family life, present risks to young children's development, including oral language. Recognition of this potential vulnerability has led to calls for early childhood programming to support parenting and foster children's early learning. Therefore, we developed and trialed a research-informed home literacy preventive intervention for preschool-aged children living in communities adversely affected by devastating earthquakes. In this feasibility case study, 2 community workshops were offered. Both encouraged repeated, interactive shared reading and verbal interactions between parents and their 4- to 5-year-old children. Workshop 1 focused on scaffolding children's comprehension-related language skills through extratextual dialogue and reminiscing about shared experiences related to stories; Workshop 2 focused on promoting children's phonological awareness through playful interactions during reading and wordplay activities outside of reading. Before participation, parent-reported shared reading frequency for this sample (n = 44) was low (mode for shared reading was 1 or 2 days per week). Parent-report data collected after each workshop supported social validity and suggested workshop-specific benefits with medium to large effect sizes. Findings from this process evaluation support proof of concept for efforts to engage families in communities affected by ongoing stressors to support resilience in everyday interactions and promote children's early learning.
自然灾害对家庭和社区具有破坏性,特别是当连锁效应持续一段时间时。这些事件以及随之而来的对家庭生活的破坏,给幼儿的发展带来了风险,包括口头语言。认识到这一潜在的脆弱性,人们呼吁制定幼儿方案,以支持父母的养育和促进儿童的早期学习。因此,我们为生活在遭受毁灭性地震不利影响的社区的学龄前儿童开发并试验了一种研究知情的家庭扫盲预防干预措施。在这个可行性案例研究中,提供了2个社区讲习班。这两项研究都鼓励父母和4到5岁的孩子进行重复的、互动的共同阅读和语言交流。工作坊一:通过文本外对话和回忆与故事相关的共同经历,构建儿童与理解相关的语言技能;工作坊2的重点是通过阅读期间的有趣互动和阅读之外的文字游戏活动来促进儿童的语音意识。参与前,该样本(n = 44)的父母报告共享阅读频率较低(共享阅读模式为每周1或2天)。每次工作坊后收集的家长报告数据支持社会效度,并建议工作坊特有的效益具有中到大的效应量。这一过程评估的结果支持了让受持续压力源影响的社区的家庭参与进来,以支持日常互动中的复原力和促进儿童早期学习的概念证明。
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引用次数: 1
Research Informing Practice in Early Childhood Intervention 幼儿干预中的告知实践研究
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-07-01 DOI: 10.1097/IYC.0000000000000168
Coral Kemp
The adoption of interventions for infants and young children with disabilities/delays or at risk of disability/delay is likely to be influenced by sources other than research evidence. Where the available research evidence does influence the choice of intervention, there may be difficulties translating research that has been implemented in a controlled environment to an intervention that can be successfully applied in natural settings. Such settings include the family home as well as early childhood education and care centers. Incentives for the use of evidence-based interventions in early intervention settings include improved outcomes for infants and young children, service credibility, and program accountability. Barriers to using evidence-based practice (EBP) in natural settings include difficulties with identifying EBP and in reliably implementing evidence-based interventions. Lack of quality professional training and absence of support from competent coaches/mentors can also compromise the adoption and effective implementation of EBP. Collaborative partnerships between researchers and practitioners, where the goals of both parties have equal value, may assist with bridging the research-to-practice gap. Incentives, barriers, and opportunities are explored in this article.
对有残疾/发育迟缓或有残疾/发育迟缓风险的婴幼儿采取干预措施可能会受到研究证据以外来源的影响。在现有研究证据确实影响干预措施选择的情况下,可能难以将在受控环境中实施的研究转化为可在自然环境中成功应用的干预措施。这些环境包括家庭以及幼儿教育和护理中心。在早期干预环境中使用循证干预措施的激励措施包括改善婴幼儿的结果、服务可信度和项目问责制。在自然环境中使用循证实践(EBP)的障碍包括难以识别EBP和可靠地实施循证干预措施。缺乏高质量的专业培训和缺乏有能力的教练/导师的支持也会影响EBP的采用和有效实施。研究人员和实践者之间的合作伙伴关系,双方的目标具有相同的价值,可能有助于弥合研究与实践之间的差距。本文探讨了激励、障碍和机会。
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引用次数: 5
Early Hearing Detection and Intervention (EHDI) Within the Medical Home 早期听力检测和干预(EHDI)在医疗之家
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-07-01 DOI: 10.1097/IYC.0000000000000170
T. A. Woodruff, Tara M. Lutz
The pediatric medical home is a model to provide quality health care to a child that is coordinated and overseen by a team of professionals who are grounded in family-centered practice (Cleveland Clinic, 2012; Munoz, Nelson, Bradham, Hoffman, & Houston, 2011). The medical home can be a centralized, consolidated, and comprehensive approach to address concerns for a child and can bolster the early intervention goals of Early Hearing Detection and Intervention ([EHDI]; Buchino et al., 2019; Munoz, Shisler, Moeller, & White, 2009; Munoz et al., 2011). With early access to screening information for children who are D/deaf or hard of hearing, the medical home plays a role in early diagnostic services and follow-up care that are critical to EHDI. This connection allows for discussion of how the medical home can exist and be supported within the context of existing service provision systems as a potential preemptive intervention to address the needs of children and families. By reviewing publicly accessible materials, the state of Connecticut can be used as a case study to look at various methods of medical home engagement with the outcome of supporting EHDI-based benchmarks (Connecticut Department of Public Health, 2014, 2018). At the same time, a novel means of data collection through the medical home is proposed.
儿科医疗之家是一种为儿童提供高质量医疗保健的模式,由以家庭为中心的专业团队协调和监督(克利夫兰诊所,2012;Munoz, Nelson, Bradham, Hoffman, & Houston, 2011)。医疗之家可以是一个集中、统一和全面的方法来解决儿童的问题,并可以促进早期听力检测和干预的早期干预目标([EHDI];Buchino et al., 2019;Munoz, Shisler, Moeller, & White, 2009;Munoz et al., 2011)。由于失聪儿童或重听儿童能够及早获得筛查信息,医疗之家在早期诊断服务和后续护理方面发挥了作用,这对EHDI至关重要。这种联系允许讨论如何在现有服务提供系统的背景下存在和支持医疗之家,作为解决儿童和家庭需求的潜在先发制人的干预措施。通过审查可公开获取的材料,康涅狄格州可以作为一个案例研究,研究医疗家庭参与的各种方法,以及支持基于ehdi的基准的结果(康涅狄格州公共卫生部,2014年,2018年)。同时,提出了一种通过医疗之家进行数据采集的新方法。
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引用次数: 3
Predictors of Parental Premature Exiting From Early Intervention Services 父母过早退出早期干预服务的预测因素
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-04-01 DOI: 10.1097/IYC.0000000000000164
L. Barnard‐Brak, T. Stevens, Zhanxia Yang
The current study examined 2 sets of variables associated with parents prematurely exiting early intervention services for their child. The first set consisted of the variables predictive of premature parent withdrawal, and the second set consisted of variables predictive of a parent and child being dismissed from early intervention services because of failure in being able to contact them. This study represents the first empirical examination of variables associated with parents prematurely exiting early intervention services despite having children who continued to qualify for services.
目前的研究检查了两组与父母过早退出儿童早期干预服务相关的变量。第一组由预测父母过早退出的变量组成,第二组由预测父母和孩子因为无法联系他们而被早期干预服务解雇的变量组成。本研究代表了与父母过早退出早期干预服务相关的变量的第一次实证检验,尽管他们的孩子继续有资格获得服务。
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引用次数: 1
A Comparison of Dialogic Reading, Modeling, and Dialogic Reading Plus Modeling 对话阅读、建模与对话阅读+建模的比较
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-04-01 DOI: 10.1097/IYC.0000000000000162
C. Coogle, Allison Parsons, Leslie La Croix, Jennifer R. Ottley
The authors used an alternating treatment, single-case design to determine the effect of dialogic reading, modeling, and dialogic reading plus modeling on the expressive vocabulary identification of 2 preschool children identified with autism spectrum disorder. Their preschool teacher implemented each of the conditions within the daily routines of the classroom. Each condition demonstrated effectiveness; however, the dialogic reading condition had the most robust effect on both of the children's labeling of target vocabulary words.
采用交替治疗的单例设计,研究了对话阅读、建模和对话阅读加建模对2名学龄前自闭症谱系障碍儿童表达性词汇识别的影响。他们的学前班老师在教室的日常生活中实施了每一个条件。每个条件都证明了有效性;然而,对话阅读条件对儿童对目标词汇的标记都有最显著的影响。
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引用次数: 4
Evaluating the Dimensionality and Psychometric Properties of a Social–Emotional Screening Instrument for Young Children 评估幼儿社会情绪筛选工具的维度和心理测量特性
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-04-01 DOI: 10.1097/IYC.0000000000000163
C. Chen, J. Squires, Kathleen Scalise
Supplemental Digital Content is Available in the Text. Social–emotional competence is important for children's lifelong positive developmental outcomes. The dimensionality and psychometric properties of a widely used social–emotional assessment, the Ages & Stages Questionnaires: Social–Emotional Second Edition (ASQ:SE-2), were investigated in this study using item response theory models. A comparison was conducted between a unidimensional model, reflecting a compound construct—social–emotional competence, and a multidimensional model, based on the theoretical framework that posits that social competence and emotional competence are highly related but different constructs. The result indicated that the multidimensional structure presented a better fit for the ASQ:SE-2 sample across most intervals (i.e., 6, 12, 18, 24, 30, 36, 48, and 60 months). The psychometric properties estimated by the multidimensional model reflected congruence between the levels of item difficulty and the design of the ASQ:SE-2 and indicated a high quality of items based on the fit item statistics. However, the expected a posteriori/plausible value reliability estimates for several younger age intervals (i.e., 6, 12, 18, and 24 months) did not meet the 0.70 benchmark. The relationship between the 2 dimensions presented a moderate correlation during infancy (r = .43–.56) and a stronger relationship in older ages (r = .71–.83).
补充数字内容可在文本中获得。社会情感能力对儿童终身的积极发展结果至关重要。本研究运用项目反应理论模型,对广泛使用的社会情绪评估量表《年龄与阶段社会情绪问卷第二版》(ASQ:SE-2)的维度和心理测量特征进行了研究。基于社会能力和情感能力是高度相关但不同构式的理论框架,对反映社会-情感能力复合构式的一维模型和反映社会-情感能力复合构式的多维模型进行了比较。结果表明,在6、12、18、24、30、36、48和60个月的大部分时间间隔内,多维结构对ASQ:SE-2样本的拟合效果较好。多维模型估计的心理测量属性反映了题目难度水平与ASQ:SE-2的设计之间的一致性,表明基于拟合项目统计的题目质量较高。然而,对几个较年轻的年龄区间(即6、12、18和24个月)的预期后验/似然值信度估计不符合0.70基准。两个维度之间的关系在婴儿期呈中等相关性(r = 0.43 ~ 0.56),在老年期呈较强相关性(r = 0.71 ~ 0.83)。
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引用次数: 3
Developmental Outcomes of Preschool Special Education 学前特殊教育的发展成果
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-01-01 DOI: 10.1097/IYC.0000000000000155
B. Elbaum
The purpose of this secondary analysis of state-collected data was to investigate developmental outcomes of preschool special education (PSE) services in a statewide cohort of participating children (n = 17,828). In line with federal performance indicators for Individuals with Disabilities Education Act early childhood programs, the outcome of interest in this study was the percentage of children who demonstrated age-expected functioning in all 5 major domains of development—communication, cognitive, motor, personal–social, and adaptive—at the time they exited the PSE program. The study also investigated the extent to which this outcome varied, depending on the severity and complexity of children's delays when they began PSE services. Overall, 38.2% of children exited the program within age norms in all 5 domains; percentages for subgroups of children ranged from 77% for children with no measured delay on entry to 23% for children demonstrating severe delay in 1 or more developmental areas. Holding delay severity constant, each additional domain of delay on entry was associated with a decrease in the percentage of children exiting within age norms. Findings of the study problematize the application of a single definition of “expected progress” for all participating children and underscore the utility of examining and reporting program outcomes for subgroups of children.
对各州收集的数据进行二次分析的目的是调查全州范围内参与儿童队列(n = 17,828)的学前特殊教育(PSE)服务的发展结果。根据《残疾人教育法》早期儿童项目的联邦绩效指标,本研究的结果是在退出PSE项目时,在所有5个主要发展领域(沟通、认知、运动、个人社会和适应)中表现出年龄预期功能的儿童的百分比。该研究还调查了这一结果的变化程度,这取决于儿童开始PSE服务时延迟的严重程度和复杂性。总体而言,在所有5个领域中,38.2%的儿童在年龄标准范围内退出了该计划;儿童亚组的比例从77%(入学时没有测量到的延迟)到23%(在一个或多个发展领域表现出严重延迟)不等。保持延迟严重程度不变,入学时每增加一个延迟领域,就会导致在年龄标准范围内退出的儿童比例下降。该研究的发现对所有参与研究的儿童使用单一的“预期进展”定义提出了问题,并强调了对儿童分组进行检查和报告项目结果的效用。
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引用次数: 4
From the EditorCommentary: Addressing Inequities in the Era of COVID-19: The Pandemic and the Urgent Need for Critical Race Theory 编辑评论:解决COVID-19时代的不平等问题:大流行和对批判种族理论的迫切需要
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-01-01 DOI: 10.1097/IYC.000000000000017210.1097/FCH.0000000000000266
C. Ford
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引用次数: 0
From the Editor The Performance of Chest CT in Evaluating the Clinical Severity of COVID-19 Pneumonia: Identifying Critical Cases Based on CT Characteristics 胸部CT在评估COVID-19肺炎临床严重程度中的作用:基于CT特征识别危重病例
IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Pub Date : 2020-01-01 DOI: 10.1097/iyc.000000000000017210.1097/rli.0000000000000689
P. Lyu, Xing Liu, Rui Zhang, Lei Shi, Jianbo Gao
Objectives The aim of this study was to assess the clinical severity of COVID-19 pneumonia using qualitative and/or quantitative chest computed tomography (CT) indicators and identify the CT characteristics of critical cases Materials and Methods Fifty-one patients with COVID-19 pneumonia including ordinary cases (group A, n = 12), severe cases (group B, n = 15), and critical cases (group C, n = 24) were retrospectively enrolled The qualitative and quantitative indicators from chest CT were recorded and compared using Fisher exact test, one-way analysis of variance, Kruskal-Wallis H test, and receiver operating characteristic analysis Results Depending on the severity of the disease, the number of involved lung segments and lobes, the frequencies of consolidation, crazy-paving pattern, and air bronchogram increased in more severe cases Qualitative indicators including total severity score for the whole lung and total score for crazy-paving and consolidation could distinguish groups B and C from A (69% sensitivity, 83% specificity, and 73% accuracy) but were similar between group B and group C Combined qualitative and quantitative indicators could distinguish these 3 groups with high sensitivity (B + C vs A, 90%;C vs B, 92%), specificity (100%, 87%), and accuracy (92%, 90%) Critical cases had higher total severity score (>10) and higher total score for crazy-paving and consolidation (>4) than ordinary cases, and had higher mean lung density (>−779 HU) and full width at half maximum (>128 HU) but lower relative volume of normal lung density (≦50%) than ordinary/severe cases In our critical cases, 8 patients with relative volume of normal lung density smaller than 40% received mechanical ventilation for supportive treatment, and 2 of them had died Conclusions A rapid, accurate severity assessment of COVID-19 pneumonia based on chest CT would be feasible and could provide help for making management decisions, especially for the critical cases
目的采用定性和/或定量胸部计算机断层扫描(CT)指标评估COVID-19肺炎的临床严重程度,确定危重病例的CT特征材料与方法51例COVID-19肺炎患者,包括普通病例(A组,n = 12)、重症病例(B组,n = 15)、危重病例(C组,C组)。采用Fisher精确检验、单因素方差分析、Kruskal-Wallis H检验、受试者工作特征分析等方法,记录胸部CT的定性和定量指标,并进行比较。结果根据疾病的严重程度,累及的肺节段和肺叶数量、实变频率、病理样、定性指标包括全肺严重程度总分、疯狂铺路和夯实总分均能区分B、C组与A组(灵敏度69%、特异性83%、准确率73%),但B、C组间差异无统计学意义。定性和定量指标结合可区分B、C组与A组具有较高的灵敏度(B + C vs A, 90%;C vs B, 92%)、特异性(100%、87%)、准确性(92%)。危重病例的总严重程度评分(>0)高于普通病例,疯狂铺装和巩固总分(>4)高于普通病例,平均肺密度(>−779 HU)和一半最大全宽(>128 HU)高于普通/重症病例,但正常肺密度相对体积(≦50%)低于正常肺密度。我们的危重病例中,有8例正常肺密度相对体积小于40%的患者接受了机械通气支持治疗。结论基于胸部CT快速、准确地评估COVID-19肺炎的严重程度是可行的,可以为制定管理决策提供帮助,特别是对危重病例
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引用次数: 0
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Infants & Young Children
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