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Precarity and Hope at the Intersections of HIV and Cervical Cancer in a Johannesburg Clinic. 约翰内斯堡一家诊所中艾滋病毒与宫颈癌交汇处的危险与希望》(Precarity and Hope at the Intersections of HIV and Cervical Cancer in a Johannesburg Clinic)。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-08-17 Epub Date: 2024-09-05 DOI: 10.1080/01459740.2024.2395273
Jonathan Stadler, Fiona Scorgie

In a tragically ironic twist, antiretroviral therapy (ART) that promised an end to AIDS ushered in a syndemic of viral cancers, transforming hope to despair. In this article we draw from the illness narratives of HIV positive women attending a cervical cancer screening clinic in Johannesburg, South Africa, and chart their pathways from HIV to cancer, and their quest for treatment. Our interlocutors described protracted struggles to access surgical procedures to prevent the onset of cervical cancer. Dealt a double blow of HIV and cervical cancer, women's narratives reveal the intersections of exposure to pathogens and the precarity of hope.

具有讽刺意味的是,抗逆转录病毒疗法(ART)承诺终结艾滋病,但却带来了病毒性癌症综合症,将希望变成了绝望。在这篇文章中,我们从南非约翰内斯堡一家宫颈癌筛查诊所就诊的 HIV 阳性女性的疾病叙述中,描绘了她们从 HIV 感染到患癌的过程,以及她们寻求治疗的过程。我们的对话者描述了为获得手术治疗以预防宫颈癌发病而进行的长期斗争。在艾滋病毒和宫颈癌的双重打击下,妇女们的叙述揭示了病原体暴露和希望渺茫之间的交集。
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引用次数: 0
Collective Sensemaking and Healthcare Workers' Ripple Effect Influencing Vaccine Hesitancy in West Michigan. 影响西密歇根州疫苗接种意愿的集体感性认识和医护人员的涟漪效应。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-08-17 Epub Date: 2024-08-14 DOI: 10.1080/01459740.2024.2388199
Kristin Hedges, Maggie Willson

The social efficacy of vaccines has been a central concern around COVID-19 vaccine uptake rates. As partners on the Vaccinate West Michigan Coalition, we conducted a rapid ethnographic assessment project among adults living in West Michigan. Three case studies are presented to convey the nuanced context around decisions with a focus on the influence of fear, trust, and the ripple effect of healthcare workers' (HCW) beliefs around vaccines. While HCWs' attitudes and beliefs influence their patients, the unique contribution of this study is its focus on how HCWs' perceptions influence friends and family members.

疫苗的社会功效一直是 COVID-19 疫苗接种率的核心问题。作为西密歇根州疫苗接种联盟的合作伙伴,我们在西密歇根州的成年人中开展了一项快速人种学评估项目。本文介绍了三个案例研究,以传达围绕疫苗决策的微妙背景,重点关注恐惧、信任的影响,以及医护人员(HCW)对疫苗信仰的连锁反应。虽然医护人员的态度和信念会影响他们的病人,但本研究的独特之处在于它关注医护人员的观念如何影响朋友和家人。
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引用次数: 0
Ambivalent Speculations: Learning to Live with Barrett's Esophagus in the UK Using Facebook Support Groups. 矛盾的猜测:在英国利用 Facebook 支持小组学会与巴雷特食道癌共存。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-08-02 DOI: 10.1080/01459740.2024.2376004
Elspeth Davies

Drawing on fieldwork in Facebook support groups, in this article I explore how people, now patients, learnt to live with Barrett's esophagus, a risk state or "precancer" for a type of esophageal cancer. This diagnosis brought the possibility of both facing and averting cancerous futures into the present. Far from passive recipients, members worked to foreground speculations of "wanted futures" in which prompt surveillance successfully prevented cancer deaths, transforming cancer risk into an opportunity for hope. Speculation here was an ambivalent and active process, involving not only the "observation of potentiality," but the opening up and foreclosing of both desirable and undesirable potentialities.

通过对 Facebook 支持小组的实地调查,我在本文中探讨了现在的患者是如何学会与巴雷特食管--一种食管癌的危险状态或 "癌前病变"--共处的。这一诊断为我们带来了面对和避免癌症的可能性。成员们绝非被动的接受者,而是努力突出对 "希望的未来 "的推测,在这种推测中,及时的监测成功地预防了癌症死亡,将癌症风险转化为希望的契机。这里的推测是一个矛盾和积极的过程,不仅涉及 "观察潜在性",还涉及对理想和不理想潜在性的开放和取缔。
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引用次数: 0
"As Long as There's a Glimmer of Hope, I'm Willing to Try": The Moral Experiences of Parental Pursuit for Autism Therapy in Urban China. "只要有一线希望,我就愿意尝试":中国城市家长追求自闭症治疗的道德体验》。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2376005
Mengzhu An

In today's China, countless parents embark on a journey of moral peril in search of treatment for their children with autism, navigating a bustling yet chaotic market of therapies. Based on 13 months of fieldwork in the Pearl River Delta, this study examines how the boom of China's autism therapy industry has plunged parents, who are relentlessly striving for their children's futures, into deeper vulnerability. I view the "ethics of trying" as parental enactment of their moral agency in seeking therapy and reveal how it serves as a moral engine for the industry's growth in the early 21st century, as well as how it leads to moral tragedies for parents as new norms of therapeutic choice emerge with government and professional guidance compelling them to make optimal therapeutic choices within a critical developmental window. Although parental efforts to avoid "agent-regret" can paradoxically lead to significant remorse, the moral tragedy they encounter can also prompt reflection and reevaluation of their approach to their child's condition.

在今天的中国,无数家长为了给自闭症儿童寻求治疗,在熙熙攘攘却又混乱不堪的治疗市场上踏上了道德风险之旅。基于在珠江三角洲 13 个月的实地调查,本研究探讨了中国自闭症治疗行业的蓬勃发展如何使为孩子的未来不懈努力的父母陷入更深的脆弱境地。我将 "尝试的伦理 "视为家长在寻求治疗过程中的道德代理,并揭示了它如何成为 21 世纪初自闭症治疗行业发展的道德引擎,以及它如何导致家长的道德悲剧,因为在政府和专业人士的指导下,治疗选择出现了新的规范,迫使他们在关键的发展窗口期做出最佳治疗选择。虽然父母为避免 "代理悔恨 "所做的努力可能会自相矛盾地导致巨大的悔恨,但他们所遭遇的道德悲剧也会促使他们反思和重新评估自己对待孩子病情的方法。
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引用次数: 0
Making it Work: Everyday Life and Healthcare with Multiple Chronic Illnesses in Denmark. 让它发挥作用:丹麦多重慢性病患者的日常生活和医疗保健。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2376015
Anna Louise Skovgaard, Tine Tjørnhøj-Thomsen, Marianne Johansson Jørgensen, Mette Terp Høybye

A growing concern in clinical literature with the "treatment burden" of living with multimorbidity raises questions about how we can study and produce knowledge on the impact of health care. In this article, we draw on ethnographic material from fieldwork among people with multimorbidity in Denmark and recent theorization on "values" in health care, to show how an ongoing "trying out" and ways of "just getting on with it" are enacted in illness trajectories marked by multimorbidity. Our findings point to the importance of attending to the subject positions that particular healthcare relations and encounters make possible.

临床文献越来越关注多病共存的 "治疗负担",这就提出了我们如何研究和产生有关医疗保健影响的知识的问题。在这篇文章中,我们利用在丹麦对多病症患者进行实地调查所获得的人种学材料,以及最近关于医疗保健中 "价值观 "的理论,来说明在以多病症为特征的疾病轨迹中,持续的 "尝试 "和 "继续治疗 "的方式是如何形成的。我们的研究结果表明,关注特定的医疗保健关系和遭遇所促成的主体地位非常重要。
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引用次数: 0
Health Care Delays and Social Suffering Among Indigenous People with Diabetic Foot Complications in Mexico. 墨西哥原住民糖尿病足并发症患者的医疗延误和社会痛苦。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-06-12 DOI: 10.1080/01459740.2024.2364241
Laura Montesi, María Guadalupe Ramírez-Rojas, Jesús Elizarrarás-Rivas

Diabetic foot (DF) is a leading cause of nontraumatic lower-extremity amputations, premature death, and a sign of social inequality in diabetes treatment. In Mexico, the incidence of DF is on the rise yet little is known about its impact among indigenous people, a disadvantaged group. Based on ethnographic research conducted in Oaxaca and analysis of institutional health-data, in this article we show the health care delays that rural indigenous people face when dealing with DF. Indigenous people's uncertainty regarding their right to health and the structural barriers to medical care favor DF complications, a phenomenon that should be read as social suffering. Since health data concerning indigenous health care service users is patchy and imprecise, indigenous people's social suffering is invisibilized. This omission or partiality in the official records limits public health decision-making and undermines the human rights of the population.

糖尿病足(DF)是非创伤性下肢截肢和过早死亡的主要原因,也是糖尿病治疗中社会不平等的标志。在墨西哥,糖尿病足的发病率呈上升趋势,但人们对糖尿病足对原住民这一弱势群体的影响却知之甚少。根据在瓦哈卡州进行的人种学研究和对医疗机构数据的分析,我们在本文中展示了农村原住民在治疗糖尿病时所面临的医疗延误。原住民对其健康权的不确定性以及医疗服务的结构性障碍,都有利于 DF 的并发症,这一现象应被视为社会苦难。由于有关土著医疗服务使用者的健康数据零散而不精确,土著人的社会苦难被掩盖了。官方记录中的这种遗漏或偏袒限制了公共卫生决策,损害了人民的人权。
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引用次数: 0
Pregnancy As Window of Opportunity? A Danish RCT on Physical Activity During Pregnancy. 孕期是机会之窗?丹麦一项关于孕期体育锻炼的 RCT 研究。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2376007
Julie Bønnelycke, Maria Larsen, Astrid Pernille Jespersen

Pregnancy is seen as a window of opportunity for health interventions, with the potential to produce long-term health changes for mother and child. The RCT FitMum investigates the effects of different regimes of physical activity during pregnancy. We suggest that rather than hitting a window of opportunity, the trial works in choreography with different timescapes through the processes of management of time. These timescapes are characterized by linear progression and futurity, alongside composite, complex time. We reconceptualize the intervention as a navigation of flows and passages in collective efforts, providing a situated and sustainable approach to interventions.

孕期被视为健康干预的机会之窗,有可能为母婴带来长期的健康变化。研究性试验 "FitMum "调查了孕期不同体育锻炼方案的效果。我们认为,与其说这项试验抓住了机会之窗,不如说它通过时间管理过程,与不同的时间景观进行了编排。这些时间景观的特点是线性发展和未来性,以及复合、复杂的时间。我们将干预重新概念化为集体努力中流动和通道的导航,为干预提供了一种情景化和可持续的方法。
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引用次数: 0
Pharmaceuticalization and Care Coordination in New York City Outpatient Mental Health. 纽约市精神健康门诊病人的药物治疗和护理协调。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-07-22 DOI: 10.1080/01459740.2024.2378092
Neil Krishan Aggarwal

US government quality measures prioritize pharmaceuticalization and care coordination to promote patient treatment adherence. How these measures affect outpatient mental health service delivery and patient-provider communication where psychiatrists and nonphysicians collaborate is understudied. Analyzing 500 hours of participant-observation, 117 appointments, and 98 interviews with 45 new patients and providers, I show that psychiatrists and social workers coordinated care by encouraging medications and seeing two mental health providers as the default treatment, irrespective of patient preferences. Ethnographic perspectives crucially account for models of service delivery and provider behaviors in researching treatment adherence.

美国政府的质量措施优先考虑药物治疗和护理协调,以促进患者坚持治疗。在精神科医生和非医生合作的情况下,这些措施如何影响门诊精神健康服务的提供以及患者与医疗服务提供者之间的沟通,目前还没有得到充分研究。通过对 500 个小时的参与观察、117 次预约以及对 45 名新患者和医疗服务提供者的 98 次访谈进行分析,我发现精神科医生和社工通过鼓励药物治疗和看两名心理健康服务提供者来协调医疗服务,并将其作为默认的治疗方式,而不考虑患者的偏好。在研究治疗依从性的过程中,人种学视角对服务提供模式和提供者行为的考虑至关重要。
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引用次数: 0
Adoption of Diabetes Technology in Denmark: Continuous Glucose Monitor as Time-Machine. 丹麦采用糖尿病技术的情况:作为时间机器的连续式葡萄糖监测仪。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-06-26 DOI: 10.1080/01459740.2024.2362883
Astrid Andrea Anesen

Health technologies to monitor glucose values are an important part of daily diabetes self-care. Based on 12 months of fieldwork in Denmark with 14 people with type 2 diabetes, I explore people's experience of living with Continuous Glucose Monitoring. This new technology automatically measures glucose levels throughout the day but is not yet common in type 2 diabetes treatment in Denmark. In this article, I capture the social shaping of Continuous Glucose Monitoring, employing the concept of time. I show how adoption of the technology is embedded in a form of biographical time. This refers to people's use of the technology linked to their stories about themselves. Drawing on a notion of habitus, people's embodied past experiences and future prospects come to shape its use, I propose. My main claim is that while people with diabetes implement the technology into their lives in unique ways, adapting it to their circumstances and social conditions, practice of Continuous Glucose Monitoring reproduce social structures. This is evinced, I argue, in people's tinkering with the technology and the frames of reference used to inform it. I introduce the term "tinkering in time", highlighting the introduction of new health technology within the frame of lived human time.

监测血糖值的健康技术是日常糖尿病自我护理的重要组成部分。我在丹麦对 14 名 2 型糖尿病患者进行了为期 12 个月的实地调查,在此基础上,我探讨了人们使用连续葡萄糖监测仪的生活体验。这项新技术可自动测量全天的血糖水平,但在丹麦的 2 型糖尿病治疗中尚未普及。在这篇文章中,我运用时间概念来捕捉持续葡萄糖监测的社会形态。我展示了该技术的采用是如何嵌入到一种传记时间形式中的。这是指人们对技术的使用与他们关于自己的故事相关联。借鉴 "习性"(habitus)的概念,我提出,人们过去的经历和未来的前景决定了他们对技术的使用。我的主要主张是,虽然糖尿病患者以独特的方式将技术应用到自己的生活中,使其适应自己的环境和社会条件,但连续血糖监测的实践却再现了社会结构。我认为,这体现在人们对该技术的修补以及用于指导该技术的参照框架上。我引入了 "时间修补 "一词,强调在人类生活时间框架内引入新的健康技术。
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引用次数: 0
Sound Baths, Trauma Talk, and the Wellness Paradox in the USA. 美国的 "声音浴"、"创伤谈话 "和 "健康悖论"。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2377289
Elisa J Sobo

Yoga-informed sound bath providers orchestrate vibrations from singing bowls, chimes, gongs, and other simple instruments to promote client well-being - sometimes in ways that create a trauma trap. Drawing on immersive research with sound bath providers and receivers in California, USA, I explore how these ritual performances feed on and fuel narratives regarding trauma, stress, and dysregulation, diverting attention from structural and cultural factors creating said disharmony. Beyond thereby ensuring a market, they can perpetuate a trauma-informed self-identification and subjectivity that harmonizes with the American work ethic, diminishes nonproductive sensual enjoyment, promotes self-care over community care, undermines resilience, and amplifies suffering.

以瑜伽为基础的声音沐浴提供者利用歌唱碗、风铃、锣和其他简单乐器的振动来促进客户的健康--有时这种方式会造成创伤陷阱。通过对美国加利福尼亚州的声音沐浴提供者和接受者进行沉浸式研究,我探讨了这些仪式表演如何助长和加剧有关创伤、压力和失调的叙述,转移人们对造成上述不和谐的结构和文化因素的注意力。除了确保市场之外,它们还能延续一种以创伤为基础的自我认同和主体性,这种自我认同和主体性与美国人的工作伦理相一致,减少了非生产性的感官享受,促进了自我保健而非社区保健,削弱了复原能力,扩大了痛苦。
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引用次数: 0
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Medical Anthropology
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