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Research, HIV/AIDS, and Turning Waria into a Key Population in Indonesia: An Ethnographic Oral History. 研究、艾滋病毒/艾滋病以及将印度尼西亚的瓦里亚人转变为关键人口:人种学口述历史》。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-02 Epub Date: 2024-11-18 DOI: 10.1080/01459740.2024.2425042
Benjamin Hegarty, Ferdiansyah Thajib, Amalia Puri Handayani, Rully Mallay, Arum Marischa

The history of HIV/AIDS is often told from the Global North, a viewpoint that is naturalized in policies and programs that privilege biomedical models of treatment and prevention. This article explores how one Indonesian transgender population known as waria became the subject of various forms of research since the 1980s. Research was one way that waria came to be classified as part of the key population of "transgender people." Drawing on an oral history project conducted in 2021/2022, we show how - while necessarily hierarchical - ethnographic accounts of other HIV/AIDS histories can rethink fundamental global health concepts.

艾滋病毒/艾滋病的历史往往是从全球北方开始讲述的,这种观点在以生物医学模式进行治疗和预防的政策和计划中已自然化。本文探讨了自 20 世纪 80 年代以来,被称为 Waria 的印尼变性人群体如何成为各种形式研究的主题。研究是 waria 被归类为 "变性人 "这一关键人群的一种方式。通过 2021/2022 年开展的一个口述历史项目,我们展示了对其他艾滋病毒/艾滋病历史的人种学描述是如何重新思考基本的全球健康概念的--虽然必然是分等级的。
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引用次数: 0
Reproductive Healthcare After Dobbs: Rethinking Obstetric Harm in the United States. 多布斯之后的生殖保健:重新思考美国的产科伤害。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-02 Epub Date: 2024-12-19 DOI: 10.1080/01459740.2024.2438034
Mara Buchbinder, Erika L Sabbath

The obstetric violence framework proposes that clinicians harm pregnant people through physical and psychological mistreatment and violations of autonomy. In this article, we analyze interviews with 54 obstetrician-gynecologists (OB-GYNs) practicing in US states with near-total abortion bans to show how similar harms may also be performed through actions of the state. Reframing obstetric harm to include the behind-the-scenes work of state legislators as a looming presence in the clinical encounter permits us to see OB-GYNs from a different vantage point, and to understand their role as experiencing - and not just perpetuating - obstetric harm.

产科暴力框架建议临床医生通过身体和心理虐待和侵犯自主权来伤害孕妇。在这篇文章中,我们分析了对54位在几乎完全禁止堕胎的美国各州执业的妇产科医生(OB-GYNs)的采访,以表明通过国家的行动也可能造成类似的伤害。重新定义产科伤害,将州议员的幕后工作作为临床遭遇的隐现,使我们能够从不同的有利位置看待妇产科医生,并理解他们作为经历而不仅仅是延续产科伤害的角色。
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引用次数: 0
Caring for Women of Color: Community-Based Doulas' Strategies in Hospital Birth in Los Angeles. 照顾有色人种妇女:洛杉矶社区助产师在医院分娩中的策略。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-05-04 DOI: 10.1080/01459740.2025.2495633
Kim Sigmund

In the United States, women of color experience worse pregnancy and birth outcomes than white women. Likewise, many women of color report facing discrimination from perinatal health providers, and many experience precarity that can negatively impact birth experiences and outcomes. In this context, more women of color now embrace the use of community-based doulas. Using ethnographic data, I argue that community-based doulas, as members of the communities in which they offer their services, are uniquely able to negotiate the tensions between their clients and biomedical birth practitioners to engender acts of transformative agency and forward the cause of reproductive justice.

在美国,有色人种女性的怀孕和分娩结果比白人女性更糟糕。同样,许多有色人种妇女报告面临围产期保健提供者的歧视,许多人经历了可能对分娩经历和结果产生负面影响的不稳定。在这种情况下,越来越多的有色人种女性开始接受以社区为基础的助产师。利用人种学数据,我认为,社区助产师作为他们提供服务的社区的成员,有独特的能力来协调他们的客户和生物医学生育医生之间的紧张关系,从而产生变革机构的行为,并推动生殖正义的事业。
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引用次数: 0
Hidden Threats: Patient Decision-Making around Abdominal Aortic Aneurysm Surgery in the United States. 隐藏的威胁:美国腹主动脉瘤手术患者的决策。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-12-02 DOI: 10.1080/01459740.2025.2592548
Adrienne E Strong, Samir K Shah

Abdominal aortic aneurysms (AAAs) are pathologic enlargements of the aorta that, if they rupture, are usually fatal. Patients can undergo high-risk surgery to prevent rupture. We explored AAA patients' surgical journeys to understand decision-making and unmet needs. Major interview themes included fear of death, risk perception, importance of partner support, communication with providers, and preparedness for surgery and recovery. The nature of AAAs as chronic conditions that can suddenly become acutely life-threatening lends a unique context to patient decision-making. Understanding patient perspectives and values when undergoing AAA repairs can improve surgeons' abilities to meet patient needs and facilitate shared decision-making.

腹主动脉瘤(AAAs)是主动脉的病理性扩张,如果破裂,通常是致命的。患者可以接受高风险手术以防止破裂。我们探讨了AAA级患者的手术过程,以了解决策和未满足的需求。访谈的主要主题包括对死亡的恐惧、风险感知、伴侣支持的重要性、与提供者的沟通以及对手术和康复的准备。AAAs是一种慢性疾病,可能突然危及生命,这为患者的决策提供了独特的背景。在进行AAA修复时,了解患者的观点和价值观可以提高外科医生满足患者需求的能力,并促进共同决策。
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引用次数: 0
Remedios Caseros: Imperative Resilience Among Mexican Immigrants in the Bronx (USA) During the COVID-19 Pandemic. 雷麦黛丝·卡塞罗:在2019冠状病毒病大流行期间,布朗克斯(美国)墨西哥移民迫切的复原力。
IF 1.5 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-05-26 DOI: 10.1080/01459740.2025.2507973
María Hernández, Alyshia Gálvez, Sandra Verdaguer, Samuel Martínez, César Ernesto Abadía-Barrero, Karen R Flórez

Communities with already high rates of non-communicable diseases, including Mexican immigrants living in the Bronx, were burdened further by the novel coronavirus. In this context, many individuals sought ways to prevent and mitigate symptoms of COVID-19, including homemade remedies. Twenty-five semi-structured interviews with Mexican immigrants living in the Bronx reveal how they devised and deployed remedios caseros (home remedies) during the COVID-19 pandemic. Participants attributed use of remedios caseros to factors such as overpacked hospitals and limited information from authoritative sources about preventing and alleviating COVID-19. Findings suggest that home remedies were a survival strategy born out of necessity, or imperative resilience.Media teaser: Mexican immigrants devised and deployed strategies around remedios caseros in response to the COVID-19 outbreak.

非传染性疾病发病率已经很高的社区,包括居住在布朗克斯的墨西哥移民,受到新型冠状病毒的进一步影响。在这种情况下,许多人寻求预防和减轻COVID-19症状的方法,包括自制偏方。对居住在布朗克斯的墨西哥移民进行的25次半结构化访谈揭示了他们在2019冠状病毒病大流行期间如何设计和部署家庭补救措施。与会者将使用补救措施归咎于医院人满为患以及权威来源关于预防和缓解COVID-19的信息有限等因素。研究结果表明,家庭疗法是一种出于必要性或必要的弹性而产生的生存策略。媒体预告:墨西哥移民为应对2019冠状病毒病的爆发,设计并部署了围绕“remedios caseros”的策略。
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引用次数: 0
Sensing Rhabdomyolysis: Building Sensorial Knowledge in Inherited Metabolic Disorders in Poland. 传感横纹肌溶解:在波兰遗传性代谢紊乱建立感官知识。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-03-06 DOI: 10.1080/01459740.2025.2475925
Małgorzata Rajtar

Sensations have emerged as an increasingly important topic in anthropological studies of health and disease. In this article, I draw from ethnographic research conducted among people living with selected rare inherited metabolic diseases (IMDs) and their caregivers in Poland, focusing specifically on recurrent rhabdomyolysis, a long-term complication that affects energy-consuming organs and muscles. Employing insights from sensorial and medical anthropology, I examine how people with IMDs and their caregivers, as parent-patient units, build anticipatory sensorial knowledge that enables them to attend to bodily sensations symptomatic of elevated creatine kinase levels, which are characteristic of rhabdomyolysis.

在健康和疾病的人类学研究中,感觉已经成为一个越来越重要的话题。在这篇文章中,我借鉴了在波兰选定的罕见遗传代谢疾病(IMDs)患者及其护理人员中进行的人种学研究,特别关注复发性横纹肌溶解,这是一种影响能量消耗器官和肌肉的长期并发症。利用感官人类学和医学人类学的见解,我研究了imd患者及其护理人员如何作为家长-患者单位,建立预期的感官知识,使他们能够注意到肌酸激酶水平升高的身体感觉,这是横纹肌溶解的特征。
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引用次数: 0
Diagnostic Moments in the Rare Disease Life Narratives of Mitochondrial Disease Patients in Germany. 德国线粒体病患者罕见疾病生活叙事中的诊断时刻。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-06-08 DOI: 10.1080/01459740.2025.2504366
Jacquelyne Luce

I draw on interviews I conducted in Germany with four individuals who were eventually diagnosed with mitochondrial disease, a category of rare neurogenetic disorders. Rather than the diagnosis of mitochondrial disease serving as a threshold between a before and after, I show how multiple ″diagnostic moments″ generate and shape mitochondrial disease life narratives as affected individuals embody emergent medical knowledge and navigate scientific unknowns. Attending to the plurality of diagnostic moments in rare disease life narratives illuminates the fragmented temporalities and incoherencies of illness experiences, which are often erased by an emphasis on a singular diagnostic moment.

我在德国采访了四名最终被诊断患有线粒体疾病的人,这是一种罕见的神经遗传疾病。与其将线粒体疾病的诊断作为之前和之后之间的门槛,我展示了多个″诊断时刻″是如何产生和塑造线粒体疾病生活叙事的,因为受影响的个体体现了新兴的医学知识和导航科学未知数。关注罕见疾病生活叙事中的多重诊断时刻,阐明了疾病经历的碎片性时间性和不连贯性,这些往往被强调单一诊断时刻而抹去。
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引用次数: 0
Attuning to Global Health: Health Data Infrastructuring, Epidemiological Accountability and Digital Labor in Ghana. 适应全球健康:加纳的卫生数据基础设施、流行病学问责制和数字劳动。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-08-22 DOI: 10.1080/01459740.2025.2535990
Alena Thiel, Lars Rune Christensen

Drawing on ethnographic fieldwork among Ghanaian officials and international developers in the field of health information systems, we investigate how innovations in health data infrastructures are aligned with global practices of epidemiological accountability. The digital health information system DHIS2 has been adopted in various low- and middle-income countries, including Ghana. While global stakeholders render public health a matter of efficiency and accountability, public health professionals attune at various levels to emerging global health priorities and data practices, e.g. the translation of standard case definitions and quantitative measures into local contexts, or innovations in reporting channels of key public health indicators.

利用加纳官员和国际卫生信息系统开发人员的人种学实地调查,我们调查了卫生数据基础设施的创新如何与流行病学问责制的全球实践保持一致。数字卫生信息系统DHIS2已在包括加纳在内的许多低收入和中等收入国家采用。虽然全球利益攸关方将公共卫生视为一个效率和问责制问题,但公共卫生专业人员在各级适应新出现的全球卫生优先事项和数据做法,例如,将标准病例定义和定量措施转化为当地情况,或创新关键公共卫生指标的报告渠道。
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引用次数: 0
"Is This Violence?" Subtlety, Doubt, and the Struggle to Narrate Transgressive Behavior in Denmark. “这是暴力吗?”微妙、怀疑和对丹麦违法行为的叙述。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-06-13 DOI: 10.1080/01459740.2025.2517580
Ida Nielsen Sølvhøj

Based on multi-sited fieldwork in Denmark, I explore how Danish women and men negotiate their positions as potential victims of intimate partner violence: in particular, psychological violence. First, focusing on retrospective stories about everyday life, I argue that violence may be experienced as subtle and not necessarily noisy. Second, by turning my attention to public narratives about psychological violence, I demonstrate that they often fail to align with the interlocutors' stories. This, I suggest, can lead to transgressive behavior being interpreted as nonviolence. This article offers a detailed analysis of the subtle micro-mechanisms that underpin the first manifestations of violence.

基于在丹麦的多地点实地调查,我探讨了丹麦女性和男性如何谈判他们作为亲密伴侣暴力(特别是心理暴力)的潜在受害者的立场。首先,专注于日常生活中的回顾故事,我认为暴力可能是微妙的,不一定是嘈杂的。其次,通过将我的注意力转向关于心理暴力的公共叙述,我证明了它们往往无法与对话者的故事保持一致。我认为,这可能导致违法行为被解释为非暴力。本文对支持暴力最初表现的微妙微观机制进行了详细分析。
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引用次数: 0
The Socialist Derg Regime and Violence Against Kumpal Ethnomedicine in Ethiopia (1970s-80s). 社会主义德格政权和对埃塞俄比亚Kumpal民族医学的暴力(1970 -80年代)。
IF 1.2 3区 社会学 Q2 ANTHROPOLOGY Pub Date : 2025-01-01 Epub Date: 2025-09-20 DOI: 10.1080/01459740.2025.2563264
Desalegn Amsalu

The relationship between African governments and ethnomedical practices is marked by policy dilemma and ideological conflicts. Through an ethnographic study spanning 2016-17 and employing "violence" as an analytical framework, this article shows how the socialist Derg regime in Ethiopia (1974-1991) devastated ethnomedicinal practice of ethnic Kumpal. The regime persecuted practitioners, accusing them of aiding insurgents with bulletproofing remedies, dismissing their beliefs as feudal remnants, and coercing the community to renounce traditions through oathing. The article presents an uncommon case study of brutal forms of violence by an African socialist regime targeting its own people over their ethnomedical practices.

非洲各国政府与民族医学实践的关系以政策困境和意识形态冲突为特征。通过一项跨越2016-17年的民族志研究,并以“暴力”为分析框架,本文展示了埃塞俄比亚的社会主义德格政权(1974-1991)如何摧毁了Kumpal民族的民族医学实践。该政权迫害修炼者,指责他们用防弹疗法帮助叛乱分子,将他们的信仰视为封建残余,并强迫社区通过宣誓放弃传统。这篇文章提出了一个非洲社会主义政权针对其民族医学实践的野蛮暴力形式的罕见案例研究。
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引用次数: 0
期刊
Medical Anthropology
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