首页 > 最新文献

Omega-Journal of Death and Dying最新文献

英文 中文
To Lose a Loved One by Medical Assistance in Dying or by Natural Death with Palliative Care: A Mixed Methods Comparison of Grief Experiences. 通过临终医疗救助或通过姑息治疗自然死亡来失去爱人:悲伤经历的混合方法比较。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-14 DOI: 10.1177/00302228221085191
Philippe Laperle, Marie Achille, Deborah Ummel

The integration of assisted dying into end-of-life care is raising reflections on bereavement. Patients and families may be faced with a choice between this option and natural death assisted by palliative care; a choice that may affect grief. Therefore, this study describes and compares grief experiences of individuals who have lost a loved one by medical assistance in dying or natural death with palliative care. A mixed design was used. Sixty bereaved individuals completed two grief questionnaires. The qualitative component consisted of 16 individual semi-structured interviews. We found no statistically significant differences between medically assisted and natural deaths, and scores did not suggest grief complications. Qualitative results are nuanced: positive and negative imprints may influence grief in both contexts. Hastened and natural deaths are death circumstances that seem to generally help ease mourning. However, they can still, in interaction with other risk factors, produce difficult experiences for some family caregivers.

将协助死亡纳入临终关怀引起了人们对丧亲之痛的反思。患者和家属可能面临在这一选择和姑息治疗辅助下的自然死亡之间的选择;一个可能影响悲伤的选择。因此,本研究描述并比较了因临终医疗救助或自然死亡与姑息治疗而失去亲人的个人的悲伤经历。采用了混合设计。60名丧亲者完成了两份悲伤问卷。定性部分包括16次个人半结构化访谈。我们发现,医疗辅助死亡和自然死亡之间没有统计学上的显著差异,评分也没有表明悲伤并发症。定性结果是微妙的:积极和消极的印记可能会在这两种情况下影响悲伤。仓促和自然死亡是死亡的情况,似乎通常有助于减轻哀悼。然而,在与其他风险因素的互动中,它们仍然会给一些家庭照顾者带来困难。
{"title":"To Lose a Loved One by Medical Assistance in Dying or by Natural Death with Palliative Care: A Mixed Methods Comparison of Grief Experiences.","authors":"Philippe Laperle, Marie Achille, Deborah Ummel","doi":"10.1177/00302228221085191","DOIUrl":"10.1177/00302228221085191","url":null,"abstract":"<p><p>The integration of assisted dying into end-of-life care is raising reflections on bereavement. Patients and families may be faced with a choice between this option and natural death assisted by palliative care; a choice that may affect grief. Therefore, this study describes and compares grief experiences of individuals who have lost a loved one by medical assistance in dying or natural death with palliative care. A mixed design was used. Sixty bereaved individuals completed two grief questionnaires. The qualitative component consisted of 16 individual semi-structured interviews. We found no statistically significant differences between medically assisted and natural deaths, and scores did not suggest grief complications. Qualitative results are nuanced: positive and negative imprints may influence grief in both contexts. Hastened and natural deaths are death circumstances that seem to generally help ease mourning. However, they can still, in interaction with other risk factors, produce difficult experiences for some family caregivers.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"931-953"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11317015/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44898586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Providing Legal Assisted Dying and Euthanasia Services in a Global Pandemic: Lessons for Ensuring Service Continuity. 在全球流行病中提供法律协助死亡和安乐死服务:确保服务连续性的经验教训。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-22 DOI: 10.1177/00302228221089120
Pam Oliver, Michael Wilson, Cameron McLaren, Rob Jonquiere

Background & objectives: Identifying the impacts of COVID-19 on patients' and practitioners' access to legal assisted dying and euthanasia (AD&E) services is vital to informing service continuity in an ongoing pandemic.Methods: An anonymous online survey collected qualitative and quantitative data from health practitioners and agencies providing legal AD&E services (n = 89), complemented by semi-structured interviews with 18 survey respondents who volunteered.Results: Following governments' responses to the dynamic pandemic context, rates of AD&E inquiries and requests fluctuated across and within jurisdictions, based on a complex interaction of factors affecting patient access to AD&E agencies and assessors as services were disrupted. Service flexibility and nimbleness became key elements in continuing service availability and included calculated 'rule-breaking' considered justifiable to adhere to established bioethics. Making innovative adjustments to usual practice led to reviewing the effectiveness of AD&E services and laws, resulting in providers now improving services and lobbying for legislative change.

背景与目标:确定COVID-19对患者和从业人员获得法律协助死亡和安乐死(AD&E)服务的影响,对于在持续的大流行中告知服务连续性至关重要。方法:一项匿名在线调查收集了来自卫生从业人员和提供法律AD&E服务的机构(n = 89)的定性和定量数据,并辅以对18名自愿调查对象的半结构化访谈。结果:在各国政府对动态大流行背景作出反应之后,由于服务中断,影响患者获得AD&E机构和评估人员服务的因素相互作用复杂,因此,AD&E查询和请求的比率在不同司法管辖区和辖区内波动。服务的灵活性和敏捷性成为持续服务可用性的关键因素,包括计算的“打破规则”,被认为是遵守既定生物伦理的正当理由。对常规做法进行创新调整,导致审查AD&E服务和法律的有效性,导致供应商现在改善服务并游说立法改革。
{"title":"Providing Legal Assisted Dying and Euthanasia Services in a Global Pandemic: Lessons for Ensuring Service Continuity.","authors":"Pam Oliver, Michael Wilson, Cameron McLaren, Rob Jonquiere","doi":"10.1177/00302228221089120","DOIUrl":"10.1177/00302228221089120","url":null,"abstract":"<p><p><b>Background & objectives:</b> Identifying the impacts of COVID-19 on patients' and practitioners' access to legal assisted dying and euthanasia (AD&E) services is vital to informing service continuity in an ongoing pandemic.<b>Methods:</b> An anonymous online survey collected qualitative and quantitative data from health practitioners and agencies providing legal AD&E services (<i>n</i> = 89), complemented by semi-structured interviews with 18 survey respondents who volunteered.<b>Results:</b> Following governments' responses to the dynamic pandemic context, rates of AD&E inquiries and requests fluctuated across and within jurisdictions, based on a complex interaction of factors affecting patient access to AD&E agencies and assessors as services were disrupted. Service flexibility and nimbleness became key elements in continuing service availability and included calculated 'rule-breaking' considered justifiable to adhere to established bioethics. Making innovative adjustments to usual practice led to reviewing the effectiveness of AD&E services and laws, resulting in providers now improving services and lobbying for legislative change.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1253-1272"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43734298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Are Sensory Experiences of One's Deceased Spouse Associated with Bereavement-Related Distress? 已故配偶的感官体验是否与丧亲相关的痛苦有关?
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-06 DOI: 10.1177/00302228221078686
Karina S Kamp, Andrew Moskowitz, Helena Due, Helle Spindler

Following late-life spousal bereavement, sensory and quasi-sensory experiences of the deceased (SED) are commonly reported. This longitudinal study examined SED among 310 older widowed adults 6-10 (T1) and 18-20 (T2) months post loss. Reports of SED in the first 6-10 months after loss were associated with higher symptom levels of prolonged grief, post-traumatic stress, and loneliness at T1. Experiencers of SED were more likely to experience symptoms of prolonged grief and post-traumatic stress above cut-off scores at T1. Importantly, only a minority of the experiencers of SED displayed these elevated levels of bereavement-related distress. In addition, employing multi-level-modeling, a similar trajectory of decreasing bereavement-related distress over time was found for both experiencers and non-experiencers of SED. We argue that SED may be one of several potential reactions to bereavement, which should not be seen as an indicator of grief complications per se.

随着晚年配偶丧亲,死者的感官和准感官体验(SED)通常被报道。这项纵向研究调查了310名老年丧偶成人在丧偶后6-10 (T1)和18-20 (T2)个月的SED。在失去亲人后的前6-10个月,SED的报告与T1时长期悲伤、创伤后应激和孤独感的较高症状水平相关。经历过SED的人更有可能经历长期悲伤和创伤后压力的症状,高于T1的临界值。重要的是,只有少数经历过SED的人表现出与丧亲相关的痛苦水平升高。此外,采用多层次模型,发现在经历过和没有经历过SED的人身上,随着时间的推移,丧亲相关的痛苦都有相似的减少轨迹。我们认为,SED可能是丧亲之痛的几种潜在反应之一,它本身不应被视为悲伤并发症的指标。
{"title":"Are Sensory Experiences of One's Deceased Spouse Associated with Bereavement-Related Distress?","authors":"Karina S Kamp, Andrew Moskowitz, Helena Due, Helle Spindler","doi":"10.1177/00302228221078686","DOIUrl":"10.1177/00302228221078686","url":null,"abstract":"<p><p>Following late-life spousal bereavement, sensory and quasi-sensory experiences of the deceased (SED) are commonly reported. This longitudinal study examined SED among 310 older widowed adults 6-10 (T1) and 18-20 (T2) months post loss. Reports of SED in the first 6-10 months after loss were associated with higher symptom levels of prolonged grief, post-traumatic stress, and loneliness at T1. Experiencers of SED were more likely to experience symptoms of prolonged grief and post-traumatic stress above cut-off scores at T1. Importantly, only a minority of the experiencers of SED displayed these elevated levels of bereavement-related distress. In addition, employing multi-level-modeling, a similar trajectory of decreasing bereavement-related distress over time was found for both experiencers and non-experiencers of SED. We argue that SED may be one of several potential reactions to bereavement, which should not be seen as an indicator of grief complications per se.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"895-915"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46372362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Crying in My Uniform, For Sure": A Qualitative Thematic Analysis of Loss and Grief Among Soldiers After Losing a Comrade in Combat. “穿着我的制服哭泣,这是肯定的”:对在战斗中失去一位同志后士兵的损失和悲伤的定性主题分析。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-22 DOI: 10.1177/00302228221090749
Einat Yehene, Talya Eitam

Recent studies investigate grief among soldiers who experienced combat loss, but little research exists on the qualitative lived experience of such an event. In this study, semi-structured interviews were conducted with soldiers (n = 19) who lost a comrade (3-21 years ago) to delve into their bereavement process. The reflexive thematic analysis of soldiers' accounts identified six main themes: (1) an unexpected and shattering experience; (2) emotional dissociation; (3) detachment from the outside world; (4) group formation; (5) accommodating the bereaved family; and (6) life-long impact. These themes were positioned on four distinct circles relating to the self and the surrounding social systems, indicating how soldiers' grief unfolds and remains encapsulated and disenfranchised. The findings emphasize the value of peer support groups that should be facilitated and encouraged by official bodies-even years after-as part of providing social recognition.

最近的研究调查了经历过战斗损失的士兵的悲伤,但很少有关于此类事件的定性生活经历的研究。在这项研究中,对(3-21年前)失去战友的士兵(n=19)进行了半结构化访谈,以深入了解他们的丧亲过程。对士兵叙述的反身主题分析确定了六个主要主题:(1)一次意想不到的、令人震惊的经历;(2) 情感分离;(3) 脱离外部世界;(4) 群体形成;(5) 照顾失去亲人的家庭;以及(6)终身影响。这些主题被定位在与自我和周围社会制度相关的四个不同的圆圈上,表明士兵的悲伤是如何展开的,并且仍然被封装和剥夺了权利。研究结果强调了同行支持团体的价值,即使在几年后,作为提供社会认可的一部分,官方机构也应该为其提供便利和鼓励。
{"title":"\"Crying in My Uniform, For Sure\": A Qualitative Thematic Analysis of Loss and Grief Among Soldiers After Losing a Comrade in Combat.","authors":"Einat Yehene, Talya Eitam","doi":"10.1177/00302228221090749","DOIUrl":"10.1177/00302228221090749","url":null,"abstract":"<p><p>Recent studies investigate grief among soldiers who experienced combat loss, but little research exists on the qualitative lived experience of such an event. In this study, semi-structured interviews were conducted with soldiers (n = 19) who lost a comrade (3-21 years ago) to delve into their bereavement process. The reflexive thematic analysis of soldiers' accounts identified six main themes: (1) an unexpected and shattering experience; (2) emotional dissociation; (3) detachment from the outside world; (4) group formation; (5) accommodating the bereaved family; and (6) life-long impact. These themes were positioned on four distinct circles relating to the self and the surrounding social systems, indicating how soldiers' grief unfolds and remains encapsulated and disenfranchised. The findings emphasize the value of peer support groups that should be facilitated and encouraged by official bodies-even years after-as part of providing social recognition.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1211-1232"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45101108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Death Positivity in America: The Movement-Its History and Literature. 美国的死亡积极主义运动——历史与文学。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-23 DOI: 10.1177/00302228221085176
Aubrey DeVeny Incorvaia

Western society is in an era of death awareness, its most recent salience: A Positive Death Movement. This article traces the evolution of American death culture by describing key periods of change, starting with the 1700s and going through the 21st century, and overviews contemporary movement scholarship. Experts suggest our current epoch is one in which a diffuse collection of individuals and organizations advocate for approaching death differently. Movement proponents aim to modify society's "conventional" death framework, which is characterized as medicalized, institutionalized, impersonal, and lacking psychosocial emotional preparation and engagement.

西方社会正处于一个死亡意识的时代,其最近的突出表现是:积极死亡运动。本文通过描述从18世纪到21世纪的关键变化时期,追溯了美国死亡文化的演变,并概述了当代运动学术。专家认为,我们当前的时代是一个分散的个人和组织提倡以不同的方式对待死亡的时代。运动的支持者旨在改变社会的“传统”死亡框架,这种框架的特点是医疗化、制度化、非个人化、缺乏心理情感准备和参与。
{"title":"Death Positivity in America: The Movement-Its History and Literature.","authors":"Aubrey DeVeny Incorvaia","doi":"10.1177/00302228221085176","DOIUrl":"10.1177/00302228221085176","url":null,"abstract":"<p><p>Western society is in an era of death awareness, its most recent salience: A Positive Death Movement. This article traces the evolution of American death culture by describing key periods of change, starting with the 1700s and going through the 21st century, and overviews contemporary movement scholarship. Experts suggest our current epoch is one in which a diffuse collection of individuals and organizations advocate for approaching death differently. Movement proponents aim to modify society's \"conventional\" death framework, which is characterized as medicalized, institutionalized, impersonal, and lacking psychosocial emotional preparation and engagement.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1233-1252"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43951946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systematic Review of Common Refractory Symptoms in the End-Of-Life Situation and Its Relation With Euthanasia. 生命末期常见难治性症状及其与安乐死的关系的系统综述
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-20 DOI: 10.1177/00302228221089123
Alba Lucena, Oriol Yuguero

Aim: To analyse the available evidence regarding refractory symptoms to treatment in patients receiving palliative/terminal healthcare.

Design: A systematic review of various databases between September and December 2020; Pubmed; Cochrane; Scopus and ScienceDirect. Study eligibility criteria: Studies published between 1st January 2015 and 31st of March 2020, in Spanish, English or Catalan conducted in elderly people or terminal patients. The study included systematic reviews, clinical trials and interventions.

Results: The search returned 782 articles, of which 22 articles were finally reviewed. Of the selected articles, 16 were systematic reviews and three were clinical trials. Three refractory symptoms are notable; breathlessness, delirium and existential suffering. There are various therapeutic approaches for the first two symptoms, but palliative sedation seems to be most effective for existential suffering.

Conclusions: Although palliative care enables controlling these symptoms effectively, and following a multidisciplinary approach, there remains a group of patients for whom euthanasia could save foreseeable suffering that is difficult to manage.

目的:分析接受姑息/临终保健的患者的难治性症状与治疗的现有证据。2020年9月至12月DESIGNA各数据库系统综述;Pubmed;科克伦;Scopus和ScienceDirect。研究资格标准:2015年1月1日至2020年3月31日期间发表的研究,以西班牙语、英语或加泰罗尼亚语在老年人或晚期患者中进行。该研究包括系统综述、临床试验和干预。结果共检索到文献782篇,最终审阅了22篇。在入选的文章中,16篇是系统综述,3篇是临床试验。三种难治性症状显著;呼吸困难,精神错乱和存在的痛苦。对于前两种症状有多种治疗方法,但姑息性镇静似乎对存在性痛苦最有效。结论:虽然姑息治疗能够有效地控制这些症状,并遵循多学科方法,但仍有一组患者安乐死可以减轻可预见的痛苦,难以管理。
{"title":"Systematic Review of Common Refractory Symptoms in the End-Of-Life Situation and Its Relation With Euthanasia.","authors":"Alba Lucena, Oriol Yuguero","doi":"10.1177/00302228221089123","DOIUrl":"10.1177/00302228221089123","url":null,"abstract":"<p><strong>Aim: </strong>To analyse the available evidence regarding refractory symptoms to treatment in patients receiving palliative/terminal healthcare.</p><p><strong>Design: </strong>A systematic review of various databases between September and December 2020; Pubmed; Cochrane; Scopus and ScienceDirect. Study eligibility criteria: Studies published between 1<sup>st</sup> January 2015 and 31<sup>st</sup> of March 2020, in Spanish, English or Catalan conducted in elderly people or terminal patients. The study included systematic reviews, clinical trials and interventions.</p><p><strong>Results: </strong>The search returned 782 articles, of which 22 articles were finally reviewed. Of the selected articles, 16 were systematic reviews and three were clinical trials. Three refractory symptoms are notable; breathlessness, delirium and existential suffering. There are various therapeutic approaches for the first two symptoms, but palliative sedation seems to be most effective for existential suffering.</p><p><strong>Conclusions: </strong>Although palliative care enables controlling these symptoms effectively, and following a multidisciplinary approach, there remains a group of patients for whom euthanasia could save foreseeable suffering that is difficult to manage.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1113-1127"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47360761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Camp Draws You Back Into Life Again: Exploring the Impact of a Therapeutic Recreation-Based Bereavement Camp for Families Who Have Lost a Child to Serious Illness. 夏令营让你重新回到生活中:探索一个以治疗性娱乐为基础的丧亲营对那些因严重疾病失去孩子的家庭的影响。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-19 DOI: 10.1177/00302228221075282
Peter Hanlon, Gemma Kiernan, Suzanne Guerin

This qualitative study explores the perceptions of impact associated with engaging in a therapeutic recreation-based bereavement camp for families whose child has died from serious illness. Interviews were completed with 12 parents who had participated in a three-camp cycle of the program over 12-month period, including a subgroup who had also attended a reunion camp. Interviews were also conducted with program staff. Thematic analysis generated key themes relating to the perceived impact which suggest that those engaged in this program perceived positive contributions associated with participation, including perceptions of positive impact on coping with bereavement, access to support and implications for family functioning. This study highlights the areas of impact associated with engagement in a therapeutic recreation-based bereavement intervention, and the potential contribution of wider access to these programs for families whose child has died from serious illness.

这项定性研究探讨了儿童死于严重疾病的家庭对参与以治疗性娱乐为基础的丧亲之痛营的影响的看法。对12名参加了为期12个月的三个夏令营的家长进行了采访,其中包括一个也参加过团聚夏令营的小组。还对项目工作人员进行了访谈。主题分析产生了与感知影响相关的关键主题,这些主题表明,参与该计划的人感知到了与参与相关的积极贡献,包括对应对丧亲之痛、获得支持的机会以及对家庭功能的影响的积极影响。这项研究强调了与参与基于治疗性娱乐的丧亲干预相关的影响领域,以及为孩子死于严重疾病的家庭更广泛地参与这些计划的潜在贡献。
{"title":"<i>Camp Draws You Back Into Life Again</i>: Exploring the Impact of a Therapeutic Recreation-Based Bereavement Camp for Families Who Have Lost a Child to Serious Illness.","authors":"Peter Hanlon, Gemma Kiernan, Suzanne Guerin","doi":"10.1177/00302228221075282","DOIUrl":"10.1177/00302228221075282","url":null,"abstract":"<p><p>This qualitative study explores the perceptions of impact associated with engaging in a therapeutic recreation-based bereavement camp for families whose child has died from serious illness. Interviews were completed with 12 parents who had participated in a three-camp cycle of the program over 12-month period, including a subgroup who had also attended a reunion camp. Interviews were also conducted with program staff. Thematic analysis generated key themes relating to the perceived impact which suggest that those engaged in this program perceived positive contributions associated with participation, including perceptions of positive impact on coping with bereavement, access to support and implications for family functioning. This study highlights the areas of impact associated with engagement in a therapeutic recreation-based bereavement intervention, and the potential contribution of wider access to these programs for families whose child has died from serious illness.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"986-997"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11317014/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46950953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Operational Definition of End-of-Life Healthcare: A Complex and Subjective Construct. 临终关怀的操作定义:一个复杂的主观建构。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-13 DOI: 10.1177/00302228221086058
Erin E Mauck

Comprehensively defining end-of-life healthcare is a challenge due to the diverse areas of healthcare involved, the various stakeholders, and the range of patient options. This qualitative study examined many areas of end-of-life healthcare including quality, areas for improvement, and healthcare policy in Tennessee, in which the definition of end-of-life healthcare was a focus. Data were collected using semi-structured interviews with 19 participants who included end-of-life healthcare experts and Tennessee legislators. Through this research an operational definition of end-of-life healthcare, encompassing five concepts, was developed. Concepts include: a diagnosis, a timeframe, type of care, location of care, and planning for the future. When considered together, they are the embodiment of what end-of-life healthcare encompasses. Not in a one-fits-all definition, but individually tailored. An understanding of what end-of-life healthcare denotes is essential to maintaining open communication, high quality standards of care, and the protection of patient autonomy.

由于所涉及的医疗保健领域不同、利益相关者不同以及患者选择范围广泛,全面定义临终医疗保健是一项挑战。这项定性研究考察了田纳西州临终医疗的许多领域,包括质量、需要改进的领域和医疗政策,其中临终医疗的定义是重点。数据是通过对19名参与者的半结构化访谈收集的,其中包括临终医疗专家和田纳西州立法者。通过这项研究,制定了包括五个概念的临终医疗保健的操作定义。概念包括:诊断、时间框架、护理类型、护理地点和未来规划。如果把它们放在一起考虑,它们就是临终医疗所包含内容的体现。不是一刀切的定义,而是个性化的。了解临终医疗意味着什么,对于保持开放的沟通、高质量的护理标准和保护患者自主性至关重要。
{"title":"An Operational Definition of End-of-Life Healthcare: A Complex and Subjective Construct.","authors":"Erin E Mauck","doi":"10.1177/00302228221086058","DOIUrl":"10.1177/00302228221086058","url":null,"abstract":"<p><p>Comprehensively defining end-of-life healthcare is a challenge due to the diverse areas of healthcare involved, the various stakeholders, and the range of patient options. This qualitative study examined many areas of end-of-life healthcare including quality, areas for improvement, and healthcare policy in Tennessee, in which the definition of end-of-life healthcare was a focus. Data were collected using semi-structured interviews with 19 participants who included end-of-life healthcare experts and Tennessee legislators. Through this research an operational definition of end-of-life healthcare, encompassing five concepts, was developed. Concepts include: a diagnosis, a timeframe, type of care, location of care, and planning for the future. When considered together, they are the embodiment of what end-of-life healthcare encompasses. Not in a one-fits-all definition, but individually tailored. An understanding of what end-of-life healthcare denotes is essential to maintaining open communication, high quality standards of care, and the protection of patient autonomy.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"954-966"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44974528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Mediating Role of Death Obsessions in the Relationship Between Caregiver Burden and Somatic Symptoms: A Study on the Informal Dementia Caregivers in India. 死亡执念在照顾者负担与躯体症状关系中的中介作用:对印度非正式痴呆症照顾者的研究
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-16 DOI: 10.1177/00302228221090757
Vanshika Beri

This study aimed to analyze the relationship between the caregiver burden, death obsessions, and somatic symptoms; and whether the death obsessions are playing a mediating role in the relationship between the caregiver burden and somatic symptoms. The study was done on the informal dementia caregivers residing in India. Three questionnaires in a google form were circulated. The correlational and mediation analysis revealed that there was a significant and positive correlation between the caregiver burden, death obsessions, and somatic symptoms. Further, the death obsessions significantly mediated the relationship between caregiver burden and somatic symptoms.

本研究旨在分析照顾者负担、死亡困扰和躯体症状之间的关系;以及死亡痴迷是否在照顾者负担与躯体症状之间的关系中发挥了中介作用。这项研究是对居住在印度的非正规痴呆症护理人员进行的。分发了三份谷歌形式的问卷。相关和中介分析显示,照顾者负担、死亡困扰和躯体症状之间存在显著正相关。此外,死亡困扰显著地介导了照顾者负担与躯体症状之间的关系。
{"title":"The Mediating Role of Death Obsessions in the Relationship Between Caregiver Burden and Somatic Symptoms: A Study on the Informal Dementia Caregivers in India.","authors":"Vanshika Beri","doi":"10.1177/00302228221090757","DOIUrl":"10.1177/00302228221090757","url":null,"abstract":"<p><p>This study aimed to analyze the relationship between the caregiver burden, death obsessions, and somatic symptoms; and whether the death obsessions are playing a mediating role in the relationship between the caregiver burden and somatic symptoms. The study was done on the informal dementia caregivers residing in India. Three questionnaires in a google form were circulated. The correlational and mediation analysis revealed that there was a significant and positive correlation between the caregiver burden, death obsessions, and somatic symptoms. Further, the death obsessions significantly mediated the relationship between caregiver burden and somatic symptoms.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1010-1025"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49107850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Re-Conceptualizing Bereavement Care Practices: Insights Gained from Service Providers. 重新构想丧亲护理实践:从服务提供商那里获得的见解。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-08-01 Epub Date: 2022-04-19 DOI: 10.1177/00302228221086178
Geok Ling Lee, Wai Yee Chee, Irene Teo, Carolyn Ng

The management and delivery of bereavement care and support services present practical challenges. A national-level, qualitative study was conducted to examine the current practices in Singapore. The study's purpose was to inform bereavement care practices by drawing from perspectives of service providers offering death, dying and bereavement-related services. This qualitative study was undertaken using focused group discussion (FGD) with service providers from the health, social and death-related sectors. Ten FGDs were conducted with a total of 69 participants. Thematic analysis yield two themes - identifying challenging circumstances to provide bereavement care and strategies for dealing with the gaps in service delivery. The service providers' experiential knowledge could be borrowed to strengthen the current bereavement care practices for the good of the community. The findings have informed the reconceptualization of a local bereavement care and support service model, with the public health model as the recommended underpinning conceptual framework.

丧亲护理和支持服务的管理和提供带来了实际挑战。进行了一项国家一级的定性研究,以审查新加坡目前的做法。该研究的目的是通过从提供死亡、垂死和丧亲相关服务的服务提供者的角度,为丧亲护理实践提供信息。这项定性研究是通过与卫生、社会和死亡相关部门的服务提供商进行重点小组讨论(FGD)进行的。共进行了10次FGD,共有69名参与者。专题分析产生了两个主题——确定提供丧亲护理的挑战性环境和解决服务提供差距的战略。为了社区的利益,可以借鉴服务提供者的经验知识来加强当前的丧亲护理实践。研究结果为重新定义当地丧亲护理和支持服务模式提供了依据,公共卫生模式是建议的基本概念框架。
{"title":"Re-Conceptualizing Bereavement Care Practices: Insights Gained from Service Providers.","authors":"Geok Ling Lee, Wai Yee Chee, Irene Teo, Carolyn Ng","doi":"10.1177/00302228221086178","DOIUrl":"10.1177/00302228221086178","url":null,"abstract":"<p><p>The management and delivery of bereavement care and support services present practical challenges. A national-level, qualitative study was conducted to examine the current practices in Singapore. The study's purpose was to inform bereavement care practices by drawing from perspectives of service providers offering death, dying and bereavement-related services. This qualitative study was undertaken using focused group discussion (FGD) with service providers from the health, social and death-related sectors. Ten FGDs were conducted with a total of 69 participants. Thematic analysis yield two themes - identifying challenging circumstances to provide bereavement care and strategies for dealing with the gaps in service delivery. The service providers' experiential knowledge could be borrowed to strengthen the current bereavement care practices for the good of the community. The findings have informed the reconceptualization of a local bereavement care and support service model, with the public health model as the recommended underpinning conceptual framework.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1074-1093"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46017765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Omega-Journal of Death and Dying
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1