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Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals. 接受姑息治疗的患者及其与医疗保健专业人员接触的经历。
IF 2 4区 心理学 Q2 Social Sciences Pub Date : 2024-06-01 Epub Date: 2022-03-02 DOI: 10.1177/00302228221077486
Haavisto Elina, Eriksson Sofia, Cleland Silva Tricia, Koivisto Jaana-Maija, Kausamo Katariina, Soikkeli-Jalonen Anu

The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient's physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

本研究旨在探讨在专科姑息治疗住院部接受癌症姑息治疗的病人与医护人员的接触经验。质性探索性研究设计在专科姑息治疗住院病人设置进行。数据收集采用半结构化的个人访谈(20例姑息治疗癌症患者),并采用归纳内容分析法进行分析。姑息治疗患者经历了与医疗保健专业人员有意义和不尊重的遭遇。有意义的遭遇包括真实和支持的经历,而不尊重的遭遇包括冷漠和不充分的经历。照顾接受姑息治疗的病人需要的照顾不仅仅是照顾病人的身体需要。患者应该作为一个整体和平等的人来对待,而不是突出他们作为患者的角色。医疗保健专业人员和组织也应该认识到花时间和精力与病人接触和交谈的重要性,而不是把资源主要集中在身体护理上。
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引用次数: 0
Structural Equation Model of Factors Related to Death Anxiety for Chinese Patients with Cancer. 癌症患者死亡焦虑相关因素的结构方程模型。
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-06-01 Epub Date: 2022-03-11 DOI: 10.1177/00302228221078349
Hong Yang, Zhanying Wang, Wenhua Yu, Youhui Gu, Jinxing Shao, Yaru Zhang, Xiaoting Hou, Dongqin Kang, Yuhan Lu

This study aimed to develop a model that specifies the predictive effects of factors on death anxiety among Chinese patients with cancer using structural equation modeling. Using convenience sampling, data were collected from 353 cancer patients. Self-administered questionnaires included Social Support Rating Scale, Rosenberg Self-Esteem Scale, Connor Davidson Resilience Scale, Templer's Death Anxiety Scale, and socio-demographic factors. The results showed that social support, self-esteem, and resilience significantly impacted death anxiety. The final model fitted the data acceptably (χ2 = 37.319, df =31, p = 0.201). Social support mediated death anxiety through self-esteem and resilience. Resilience mediated the buffer effect of self-esteem on death anxiety as an intermediary factor. Findings suggest the need for further studies to explore effective interventions to provide social support and improve self-esteem and resilience among patients with cancer to alleviate death anxiety.

本研究旨在建立一个模型,通过结构方程模型来确定癌症患者死亡焦虑因素的预测效果。采用方便抽样的方法,从353名癌症患者中收集数据。自我管理问卷包括社会支持量表、Rosenberg自尊量表、Connor Davidson韧性量表、Templer死亡焦虑量表和社会人口学因素。结果表明,社会支持、自尊和恢复力显著影响死亡焦虑。社会支持通过自尊和恢复力介导死亡焦虑。韧性作为中介因素介导自尊对死亡焦虑的缓冲作用。研究结果表明,需要进一步研究,以探索有效的干预措施,为癌症患者提供社会支持,提高自尊和复原力,缓解死亡焦虑。
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引用次数: 0
Quality of Life and Illness Acceptance among End-Stage Renal Disease (ESRD) Patients on Hemodialysis: The Moderating Effect of Death Anxiety during COVID-19 pandemic. 终末期肾脏疾病(ESRD)血液透析患者的生活质量和疾病接受度:COVID-19大流行期间死亡焦虑的调节作用
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-06-01 Epub Date: 2022-03-07 DOI: 10.1177/00302228221075202
Iqra Mushtaque, Muhammad Awais-E-Yazdan, Rabab Zahra, Muhammad Anas

The purpose of the study was to examine the quality of life and illness acceptance among ESRD patients with the moderating effects of death anxiety. The cross-sectional design was incorporated. The sample was comprised of 240 participants. Individuals with ESRD on hemodialysis were approached above 20 years of age. A self-administered questionnaire was used for data collection. The results revealed that COVID-19 has a significant impact on the quality of life of patients and their illness acceptance. Covid-19 affected the general health of patients, their psychological health, as well as their social relationships. The results also confirmed that death anxiety negatively moderates the relationship between quality of life and illness acceptance among ESRD patients. This study will shed light on the need to provide appropriate psychosocial care as well as supportive therapies to people with end-stage renal disease who are experiencing mental distress during and after the COVID-19 outbreak.

本研究的目的是检验ESRD患者的生活质量和疾病接受度,并对死亡焦虑的调节作用。纳入了横截面设计。样本由240名参与者组成。对20岁以上的ESRD患者进行血液透析。数据收集采用了自行填写的调查表。研究结果表明,新冠肺炎对患者的生活质量和疾病接受度有显著影响。新冠肺炎影响了患者的总体健康、心理健康以及社会关系。研究结果还证实,死亡焦虑对ESRD患者的生活质量和疾病接受度之间的关系具有负面调节作用。这项研究将阐明为新冠肺炎爆发期间和之后经历精神痛苦的终末期肾病患者提供适当的心理社会护理和支持性治疗的必要性。
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引用次数: 0
Psychosocial Intervention on the Dual-Process Model for a Group of COVID-19 Bereaved Individuals in Wuhan: A Pilot Study. 基于双过程模型的武汉地区新型冠状病毒感染者心理社会干预试点研究
IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-06-01 Epub Date: 2022-03-26 DOI: 10.1177/00302228221083067
Zhihong Yu, Jinjun Liang, Liping Guo, Lirui Jiang, Jian-Ying Wang, Moli Ke, Liao Shen, Ningning Zhou, Xinxian Liu

Wuhan was the first large city where the initial breakout of COVID-19 took numerous lives. A group of social workers and mental health specialists coordinated the "Be Together Program" (BTP), a psychosocial grief intervention program to help a group of Wuhan COVID-19 bereaved people. Under the Dual-process model framework, BTP used the internet and social media as the main tools, combined with group and individual intervention. Additionally, it employed a "Supermarket Mode" with abundant intervention themes and approaches for BTP participants to choose according to their special needs. Additionally, Chinese cultural elements are integrated into the program. At the end of the program, the grief scores of participants in the qualified sample reduced significantly, and the prevalence of the potential Prolonged Grief Disorder diagnosis reduced from 75% to 12%. The study also found that the BTP was especially effective for those who had high levels of grief reaction.

武汉是新冠肺炎最初爆发夺走无数生命的第一个大城市。一群社会工作者和心理健康专家协调了“在一起计划”(BTP),这是一项心理社会悲伤干预计划,旨在帮助一群新冠肺炎武汉患者。在双过程模型框架下,BTP以互联网和社交媒体为主要工具,结合群体和个人干预。此外,它采用了“超市模式”,有丰富的干预主题和方法,供BTP参与者根据他们的特殊需求进行选择。此外,节目还融入了中国文化元素。在项目结束时,合格样本中参与者的悲伤评分显著降低,潜在的长期悲伤障碍诊断的患病率从75%降至12%。研究还发现,BTP对那些有高度悲伤反应的人特别有效。
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引用次数: 0
Experiences of miscarriage: the voice of parents and health professionals. 流产的经验:父母和卫生专业人员的声音。
IF 2 4区 心理学 Q2 Social Sciences Pub Date : 2024-06-01 Epub Date: 2022-03-30 DOI: 10.1177/00302228221085188
Natalie Figueredo-Borda, Mirliana Ramírez-Pereira, Pedro Gaudiano, Cecilia Cracco, Beatriz Ramos

The death of a child in the intrauterine stage has legal, psychological, spiritual, and health-related connotations that condition the woman's experience. To understand better the processes set in motion around early pregnancy loss, this ethnographic study explores the experiences of miscarriage in a group of 15 women. The following themes are analyzed: Experience of losing the child, spirituality, health care, and the need to physically recognize the child. The study shows that the need women have to honor the child who did not live may be conditioned by the perception of an uncertain loss and by the absence of a place to honor him/her. Attitudes among professionals are revealed that could be perceived as gender-related abuse. The care of women places emphasis on physical aspects, underlining the lack of comprehensive care during the grieving process.

胎儿在宫内阶段的死亡具有法律、心理、精神和健康方面的内涵,影响着妇女的经历。为了更好地理解早期流产的过程,这项人种学研究探讨了一组15名妇女的流产经历。分析了以下主题:失去孩子的经历、精神、保健和需要从身体上认出孩子。研究表明,妇女必须尊重死去的孩子的需要可能是由于对不确定的损失的感知以及缺乏尊重他/她的地方。调查显示,专业人员的态度可能被视为与性别有关的虐待。对妇女的照顾侧重于身体方面,强调在悲伤过程中缺乏全面的照顾。
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引用次数: 0
From Ritual Mourning to Solitary Grief: Reinterpretation of Hindu Death Rituals in India. 从仪式哀悼到孤独悲伤——印度印度教死亡仪式的再解读。
IF 2 4区 心理学 Q2 Social Sciences Pub Date : 2024-06-01 Epub Date: 2022-03-31 DOI: 10.1177/00302228221085175
Banhishikha Ghosh, Athira Bk

This paper considers the way the outbreak of coronavirus and the subsequent lockdown has egregiously impeded the Hindu death ceremonies and mourning rituals in India. It makes a comparative analysis of how Hindu death rituals get renegotiated, modified and reinterpreted across two vastly different regions of India, both of which have their local customs. Whilst death rituals in India are contingent on the deceased's caste, community, class, gender and age, the impediment to the major death rituals creates a central conundrum for all mourners. It results from the substitution of 'sacred' ritual guidelines with new 'profane' ones for the 'disposal' of deceased COVID-19 patients. Departure from many significant pre-liminal rites, specific transition rites, and post-liminal rites has eschatological, ritual and cultural ramifications. The inability to grieve in unison during a Shraddh ceremony denies mourners any scope to quell distressing feelings about mortality which serves as a source of consolation.

本文考虑了冠状病毒的爆发和随后的封锁严重阻碍了印度印度教的死亡仪式和哀悼仪式。它对印度两个截然不同的地区如何重新谈判、修改和重新解释印度教的死亡仪式进行了比较分析,这两个地区都有各自的当地习俗。虽然印度的死亡仪式取决于死者的种姓、社区、阶级、性别和年龄,但主要死亡仪式的障碍给所有哀悼者带来了一个核心难题。它的结果是用新的“亵渎”仪式指南取代了“神圣”仪式指南,以“处置”新冠肺炎已故患者。偏离许多重要的临世前仪式、特定的过渡仪式和临世后仪式具有末世论、仪式和文化的影响。在Shraddh仪式上,哀悼者无法齐声哀悼,这使他们无法平息对死亡的痛苦情绪,而死亡是一种安慰。
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引用次数: 0
Death and Other Losses in the COVID-19 Pandemic in Long-Term Care Facilities for Older Adults in the Perception of Occupational Therapists: A Qualitative Study. 职业治疗师对老年人长期护理机构新冠肺炎大流行死亡和其他损失的认知:一项定性研究
IF 2 4区 心理学 Q2 Social Sciences Pub Date : 2024-06-01 Epub Date: 2022-03-31 DOI: 10.1177/00302228221086169
Carolina de S Figueiredo, Karla C Giacomin, Ramon F Gual, Simone C de Almeida, Marcella G Assis

Long-term care facilities for older adults (LTCFs) were directly affected by the COVID-19 pandemic. This study aimed to discuss the perceptions of occupational therapists about deaths and other losses in LTCFs during the pandemic. This qualitative study is anchored in social phenomenology, and conducted in-depth interviews with eight occupational therapists who worked in LTCFs. Thus, two themes were generated after the Thematic Analyses: "The proximity of death" and "Losses associated with living and dying in a LTCF." In the first theme, the interviewees addressed the feeling of imminent death in the daily life of the LTCF, and feelings related to their own death, that of their family members and other older adults. In the second, the professionals highlighted three groups of losses: social, functional, and psychological/cognitive. These results highlighted the challenges faced by occupational therapists and can contribute to improve behavior and care for institutionalized older adults during the pandemic.

老年人长期护理机构(LTCF)直接受到新冠肺炎大流行的影响。本研究旨在讨论职业治疗师对疫情期间LTCF死亡和其他损失的看法。这项定性研究以社会现象学为基础,对在LTCF工作的八名职业治疗师进行了深入访谈。因此,在专题分析之后产生了两个主题:“死亡的接近性”和“与LTCF中的生存和死亡相关的损失”。在第一个主题中,受访者谈到了LTCF日常生活中即将死亡的感觉,以及与他们自己、家人和其他老年人的死亡相关的感觉。在第二篇文章中,专业人士强调了三组损失:社交损失、功能损失和心理/认知损失。这些结果突出了职业治疗师面临的挑战,有助于改善疫情期间被收容的老年人的行为和护理。
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引用次数: 0
Living Authentically in the Face of Death: Predictors of Autonomous Motivation Among Individuals Exposed to Chronic Mortality Cues Compared to a Matched Community Sample. 面对死亡真实地生活:与匹配的社区样本相比,暴露于慢性死亡率线索的个体的自主动机预测因素。
IF 2 4区 心理学 Q2 Social Sciences Pub Date : 2024-05-01 Epub Date: 2022-03-01 DOI: 10.1177/00302228221074160
Andrew F A Arena, Carolyn MacCann, Sam G Moreton, Rachel E Menzies, Niko Tiliopoulos

Despite research demonstrating positive outcomes of conscious death reflection, very little research directly examines a core proposition of existential psychologists-that death reflection provides an opportunity for more authentic living. The current study compared individuals chronically exposed to genuine mortality cues (funeral/cemetery workers, n = 107) to a matched control sample (n = 121) on autonomous motivation. It also assessed the moderating role of six constructs implicated in growth-oriented processing of death reflection: psychological flexibility, curiosity, neutral death acceptance, death anxiety, approach-oriented coping, and avoidant coping. Funeral/cemetery workers were significantly higher on autonomous motivation, and death-related work was found to have a more positive association with autonomous motivation for those higher on flexibility and lower on death anxiety. This has implications for both understanding which individuals are most likely to experience growth motivations when confronting death, and potential avenues for facilitating these motivations to enhance well-being.

尽管研究证明了有意识的死亡反思的积极结果,但很少有研究直接检验存在主义心理学家的核心命题,即死亡反思为更真实的生活提供了机会。目前的研究比较了长期暴露于真实死亡线索的个体(葬礼/墓地工作人员,n=107)与自主动机匹配的对照样本(n=121)。它还评估了六个结构在死亡反思的生长导向过程中的调节作用:心理灵活性、好奇心、中性死亡接受、死亡焦虑、方法导向应对和回避型应对。殡葬/墓地工作人员的自主动机显著更高,与死亡相关的工作与自主动机的相关性更大,灵活性更高,死亡焦虑更低。这既有助于理解哪些人在面对死亡时最有可能经历成长动机,也有助于促进这些动机以提高幸福感的潜在途径。
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引用次数: 0
Suicide Attitudes Among Suicide Loss Survivors and Their Adaptation to Loss: A Cross-Cultural Study in Japan and the United States. 自杀损失幸存者的自杀态度及其对损失的适应:日本和美国的跨文化研究。
IF 2 4区 心理学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-03-28 DOI: 10.1177/00302228211051512
Daisuke Kawashima, Shizuka Kawamoto, Keisuke Shiraga, Athena Kheibari, Julie Cerel, Kenji Kawano

Survivors' adaptation to a suicide loss is likely influenced by their attitudes toward suicide and their respective sociocultural contexts. Our study aimed to compare suicide attitudes and their association with depressive symptoms and sense of community safety in Japanese and American suicide loss survivors. A total of 193 Japanese survivors and 232 American survivors completed online surveys. The results show that Japanese survivors tended not to consider suicide as an illness or to recognize that others understood their experience but were more likely than American survivors to consider suicide as justifiable. Regression analyses indicated that taking suicide as a right was associated with depressive symptoms. Further, their sense of being understood by others was positively correlated with perceived community safety in both samples, but justifying suicide and considering it to be an illness was positively related to perceived community safety only among Japanese survivors.

幸存者对自杀损失的适应可能受到他们对自杀的态度和他们各自的社会文化背景的影响。本研究旨在比较日本和美国自杀幸存者的自杀态度及其与抑郁症状和社区安全感的关系。共有193名日本幸存者和232名美国幸存者完成了在线调查。结果显示,日本幸存者倾向于不认为自杀是一种疾病,也不认为其他人理解他们的经历,但与美国幸存者相比,日本幸存者更有可能认为自杀是正当的。回归分析表明,将自杀作为一种权利与抑郁症状相关。此外,在两个样本中,他们被他人理解的感觉与感知社区安全呈正相关,但只有在日本幸存者中,为自杀辩护和认为自杀是一种疾病与感知社区安全呈正相关。
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引用次数: 0
Book Review: Boss, Pauline. The Myth of Closure: Ambiguous Loss in a Time of Pandemic and Change 书评:老板,波琳。封闭的神话:大流行和变化时代的模糊损失
4区 心理学 Q2 Social Sciences Pub Date : 2023-10-19 DOI: 10.1177/00302228231204458
Paul A. Metzler
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引用次数: 0
期刊
Omega-Journal of Death and Dying
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