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Resistant, adaptive, and supported agency – Examining narratives of Finnish older home care clients 抵抗,适应和支持机构-检查芬兰老年家庭护理客户的叙述
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-05-29 DOI: 10.1016/j.jaging.2025.101342
Marjo Ring , Feliciano Villar , Hanna Ristolainen , Elisa Tiilikainen
The purpose of this article is to increase our understanding of agency in older home care clients living in Finland. Twenty older home care clients (12 women, eight men) aged 73 and over were interviewed using a thematic interview. The stories narrated in the interview data were analyzed using thematic analysis, resulting in three forms of agency: resistant, adaptive, and supported. The findings show that older adults see themselves – despite their need for help and support – as capable individuals who challenge perceptions of being just objects of care. The stories of the older home care clients made visible how older adults with care needs maintain an experience of continuity of selfhood through agency. Home care workers play an important role in recognizing older home care clients' agency and in supporting their personhood and subjectivity.
本文的目的是增加我们对芬兰老年家庭护理客户机构的理解。采用专题访谈法对20位73岁及以上的老年家庭护理客户(12名女性,8名男性)进行了访谈。对访谈数据中叙述的故事进行专题分析,得出抗拒型、适应性型和支持型三种代理形式。研究结果表明,尽管老年人需要帮助和支持,但他们认为自己是有能力的人,他们挑战了人们认为自己只是被照顾对象的看法。老年家庭护理客户的故事表明,有护理需求的老年人如何通过代理维持自我连续性的体验。家庭护理工作者在认识老年人家庭护理客户的机构和支持他们的人格和主体性方面发挥着重要作用。
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引用次数: 0
Discrimination and loneliness among transgender older adults 变性老年人中的歧视和孤独
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-05-24 DOI: 10.1016/j.jaging.2025.101334
Sacramento Pinazo-Hernandis, Celia Carrascosa
Many members of the Lesbian, Gay, Bisexual and Transgender (LGBT) population have experienced marginalisation throughout their lives. Most related research has focused on the LGBT population in general; however, it is necessary to focus on transgender people because they are particularly socially marginalised and are at greater risk of stigmatisation and discrimination in various aspects across their lifespan and during old age. The aim of this research is to study the experiences of discrimination, the associated feelings of loneliness, and the social support of transgender people over the age of 45. A mixed methodology and a cross-sectional design were used. Twenty-seven transgender people aged 45–77 years answered an online questionnaire that combined open-ended and closed-ended questions. The results of this study revealed different situations of discrimination experienced by older transgender people (62.9 % said they had been discriminated against), low levels of social support (48.1 %) and high scores in loneliness (with 74.1 % of participants scoring high levels of loneliness). If high levels of loneliness and discrimination are related to various health problems, transgender people could find diverse difficulties during their ageing in addition to those of normal biological ageing. Knowing which situations of discrimination affect transgender older people and their relationship with psychological well-being will help to promote better ageing and assist in identifying the most appropriate targets for community-based psychosocial interventions.
许多女同性恋、男同性恋、双性恋和变性人(LGBT)群体在他们的一生中都经历过边缘化。大多数相关研究都集中在一般的LGBT人群上;然而,有必要关注跨性别者,因为他们在社会上特别边缘化,在整个生命周期和老年时期在各个方面受到污名化和歧视的风险更大。本研究的目的是研究45岁以上跨性别者的歧视经历、相关的孤独感和社会支持。采用混合方法和横断面设计。27名年龄在45-77岁之间的跨性别者回答了一份在线问卷,其中包含开放式和封闭式问题。本研究的结果揭示了老年变性人所经历的不同歧视情况(62.9%的人说他们受到过歧视),低水平的社会支持(48.1%)和高水平的孤独(74.1%的参与者感到高水平的孤独)。如果高度的孤独和歧视与各种健康问题有关,那么跨性别者除了正常的生理衰老之外,还可能在衰老过程中遇到各种各样的困难。了解哪些歧视情况会影响跨性别老年人及其与心理健康的关系,将有助于促进更好的老龄化,并有助于确定以社区为基础的社会心理干预的最适当目标。
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引用次数: 0
Exploring the meaning of home for the older adults: A bibliometric analysis of environmental and psychological needs (1969–2023) 探索老年人家的意义:环境和心理需求的文献计量学分析(1969-2023)
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-05-13 DOI: 10.1016/j.jaging.2025.101332
Milad Olfat
As the older adult population continues to grow and modern lifestyles evolve, many older adults encounter challenges in adapting to contemporary homes or transitioning to new living environments. Factors such as loneliness, diminished physical capabilities, and relocation to institutional care settings further exacerbate these difficulties. Designing supportive environments that cater to the psychological needs of older adults can enhance their sense of place attachment, comfort, and overall well-being. This paper aims to present a comprehensive bibliometric review of the existing body of research on the meaning of home, addressing knowledge gaps related to the psychological needs of older adults. The study is based on the analysis of 678 English-language articles indexed in the Scopus database, published between 1969 and 2023. Data were analyzed using VOS Viewer 1.6.20 software, and the PRISMA checklist was employed to ensure accuracy in bibliometric reporting. The findings indicate that research on this topic has predominantly developed around five main domains: “Transactional Processes with the Environment and Factors Affecting Health and Well-being,” “Resilience and Vulnerability in Living Environments,” “Older Adults Care and Welfare Services,” “Architectural Design Principles for Care Environments and Aging Equipment,” and “Independent Living and Modern Technologies.” Nevertheless, expanding the scope to include non-English studies from diverse geographical contexts is expected to contribute to a more comprehensive framework for defining the meaning of home for older adult individuals across different cultures.
随着老年人口的不断增长和现代生活方式的发展,许多老年人在适应现代家庭或过渡到新的生活环境方面遇到了挑战。诸如孤独、身体能力下降和重新安置到机构护理环境等因素进一步加剧了这些困难。设计满足老年人心理需求的支持性环境可以增强他们的地方依恋感、舒适感和整体幸福感。本文旨在对现有的关于家的意义的研究进行全面的文献计量学回顾,以解决与老年人心理需求相关的知识差距。这项研究基于对1969年至2023年间发表的Scopus数据库索引中的678篇英语文章的分析。采用VOS Viewer 1.6.20软件进行数据分析,采用PRISMA核对表确保文献计量报告的准确性。研究结果表明,关于这一主题的研究主要围绕五个主要领域展开:“与环境的交易过程和影响健康和福祉的因素”、“生活环境中的弹性和脆弱性”、“老年人护理和福利服务”、“护理环境和老龄化设备的建筑设计原则”和“独立生活和现代技术”。然而,将范围扩大到包括来自不同地理背景的非英语研究,预计将有助于建立一个更全面的框架,为不同文化背景的老年人定义家的意义。
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引用次数: 0
Age is not just a number: Developing an integrative conceptual framework on age 年龄不仅仅是一个数字:建立一个关于年龄的综合概念框架
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-05-02 DOI: 10.1016/j.jaging.2025.101331
José de São José , Virpi Timonen
Age is omnipresent in our lives and a fundamental element in the organisation of human societies. Age relations, like other power relations, generate social inequality. As a reflection of its importance, age is frequently used in empirical studies in the field of sociology and other social sciences. However, the social theorisation of age is inchoate and dispersed, compromising empirical research on this topic. This article critically analyses relevant conceptual work on age carried out so far in social sciences, proposes a conceptual framework inspired by sociological theory that integrates and expands this work, and provides a set of propositions on age. This framework provides a multilevel perspective on age, mapping the sociocultural structures in which age is embedded and exerts its influence, as well as the dynamics that are established between them, allowing for an analysis of the relationship between age-based structures and age-related practices. Furthermore, this more comprehensive framework includes relevant constructs that have rarely been considered. It is expected that this article will encourage more conceptually informed use of age in empirical research.
年龄在我们的生活中无所不在,是人类社会组织的一个基本要素。年龄关系和其他权力关系一样,会产生社会不平等。作为其重要性的反映,年龄经常被用于社会学和其他社会科学领域的实证研究。然而,年龄的社会理论化是不成熟的和分散的,损害了对这一主题的实证研究。本文批判性地分析了迄今为止社会科学中有关年龄的概念工作,提出了一个受社会学理论启发的概念框架,整合和扩展了这些工作,并提供了一套关于年龄的命题。这一框架提供了关于年龄的多层次视角,描绘了嵌入年龄并发挥其影响的社会文化结构,以及它们之间建立的动态关系,从而能够分析基于年龄的结构与与年龄有关的做法之间的关系。此外,这个更全面的框架包括很少被考虑的相关结构。期望这篇文章将鼓励更多的概念上知情的使用年龄在实证研究。
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引用次数: 0
Understanding frailty experiences in Dutch community-dwelling older people: A qualitative phenomenological study 了解荷兰社区老年人的脆弱经历:一项定性现象学研究
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-05-01 DOI: 10.1016/j.jaging.2025.101330
R.D.J. Golbach , N. Kleinenberg-Talsma , H. Jager-Wittenaar , J.S.M. Hobbelen , E.J. Finnema
As the population ages, the proportion of frail older people is also increasing. While attention to frailty experiences has increased, how these account to a comprehensive understanding of frailty and its impact on behavior and functioning remains understudied. Therefore, in this study, we aimed to understand how frailty is experienced, and how frailty and frailty experiences affect behavior and functioning from the perspectives of Dutch community-dwelling older people. In this phenomenological qualitative study, we conducted semi-structured interviews with 36 community-dwelling older people (≥65 years). The ‘Tilburg Frailty Indicator’ was administered to measure frailty, 15 of the participants were considered frail. Thematic analysis revealed the following themes and subthemes: 1) frailty experiences: situation related, initiated internally, initiated externally, and being and feeling frail; 2) coping: cognitive efforts, behavioral efforts, and emotional aspects. The distinction between being frail and feeling frail was, among other things, reflected in the temporality of frailty experiences, such as short periods of moments in time experiencing frailty. Personal factors and contexts strongly influence an individual's experiences and multiple coping strategies were discovered, with mindset shaping individual coping strategies. We recommend a personalized approach in which the experiences and capabilities of older people are considered to support them in maintaining or enhancing their well-being.
随着人口老龄化,体弱老年人的比例也在增加。虽然对脆弱经历的关注有所增加,但这些如何解释对脆弱及其对行为和功能的影响的全面理解仍未得到充分研究。因此,在本研究中,我们旨在了解脆弱是如何经历的,以及脆弱和脆弱经历如何影响荷兰社区老年人的行为和功能。在这项现象学定性研究中,我们对36名社区居住的老年人(≥65岁)进行了半结构化访谈。“蒂尔堡虚弱指数”被用来衡量虚弱,15名参与者被认为虚弱。主题分析揭示了以下主题和副主题:1)脆弱体验:情境相关、内在触发、外在触发、脆弱存在和脆弱感受;2)应对:认知努力、行为努力和情绪方面。脆弱和感觉脆弱之间的区别,除其他外,反映在脆弱经历的短暂性上,比如短暂的时刻经历脆弱。个人因素和情境对个体的应对体验有显著影响,个体的应对策略有多种,心态塑造个体的应对策略。我们建议采取一种个性化的方法,考虑到老年人的经验和能力,以支持他们维持或提高他们的福祉。
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引用次数: 0
Experiences of grandfathers as primary caregivers raising grandchildren: An integrative literature review 祖父作为主要照顾者抚养孙辈的经验:综合文献回顾
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-04-28 DOI: 10.1016/j.jaging.2025.101329
Michelle Adams , Janine Wiles , Melody Smith , Michelle Honey
When the welfare of a child requires placement away from parents, a grandparent is often the preferred choice for relocation. Placement is predominantly with grandmothers, and the experiences of grandmothers in a parenting role have been well reported. The experiences of grandfathers who parent grandchildren, however, are less understood, despite grandfathers often being present. This integrative review aims to identify and integrate current literature on the experiences of grandfathers in a parenting role. The search strategy involved four electronic databases: CINAHL Complete, Scopus, PubMed and PsycInfo, plus Google Scholar and hand searching using keywords based on five key concepts encompassing the population group (custodial, grandfather), phenomenon (role), and outcome (perceive, experience). Thirteen articles were identified that met the inclusion criteria for review. Two themes were identified using thematic analysis: ‘Change and loss in transitioning to the primary caregiver role’ and ‘Everyday life as grandparent primary caregivers.’ This review found grandfathers who parent grandchildren faced unique challenges. Social role identity was tested by loss of agency over lifestyle choices and deficits in parenting knowledge and skillset. Furthermore, the health and wellbeing of grandfathers were impacted by factors unique to them. Further research to inform tailored support specific to the needs of grandfathers is required.
当一个孩子的福利需要远离父母时,祖父母通常是搬迁的首选。安置主要是祖母,祖母在养育角色中的经历已经得到了很好的报道。然而,尽管祖父经常在场,但祖父母抚养孙子孙女的经历却鲜为人知。这篇综合综述旨在识别和整合目前关于祖父在养育角色中的经验的文献。搜索策略涉及四个电子数据库:CINAHL Complete、Scopus、PubMed和PsycInfo,加上谷歌Scholar和基于五个关键概念的人工搜索,这些概念包括人口群体(监护、祖父)、现象(角色)和结果(感知、经验)。13篇文章符合纳入标准。通过主题分析确定了两个主题:“向主要照顾者角色过渡的变化和损失”和“作为祖父母主要照顾者的日常生活”。这项研究发现,带孙子孙女的祖父们面临着独特的挑战。社会角色认同是通过丧失对生活方式选择的能动性和缺乏养育子女的知识和技能来测试的。此外,祖父的健康和幸福受到他们特有因素的影响。需要进一步的研究,以提供针对祖父需求的量身定制的支持。
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引用次数: 0
Painting as a form of Material Thinking: Promoting agency and expression for people living with dementia 绘画作为一种物质思维形式:促进痴呆症患者的代理和表达
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-04-18 DOI: 10.1016/j.jaging.2025.101328
Megan Wyatt, Paula Boddington
Awareness of the importance of understanding agency and selfhood for people living with dementia (PLWD) is growing. However, more needs to be done to incorporate such awareness into care practices. The importance of arts activities such as music, dance, and painting for enhancing quality of life for people living with dementia is widely recognised. However, research focuses on beneficial outcomes leaving us with scant knowledge relating to the creative processes that PLWD may experience. This paper explores the process of painting for PLWD and offers insight into how engagement with paint and painting materials can explain and embody agency. We argue that the process of painting itself exemplifies a form of embodied agency and cognition, a type of ‘Material Thinking’, hence helping to demonstrate the thinking skills that PLWD may retain even after a degree of decline of other capacities.
This study outlines how eight people living with dementia engaged with and experienced painting whilst working alongside an artist-researcher. Data was captured through semi-structured interviews, and observations captured by video recordings and field notes. Qualitative thematic analysis identified emergent themes, including Mark Making, Flexible Ideas, and Immersion, in relation to how painting engages the Material Thinking of people living with dementia. Our analysis demonstrates that the process of painting involves distinct forms of decision making, agency, and cognition, even in the absence of language. While having many other benefits, painting has great potential to be incorporated into care practices as a valid expression and recognition of cognition and agency.
人们越来越意识到理解代理和自我对痴呆症患者的重要性。然而,需要做更多的工作来将这种认识纳入护理实践。音乐、舞蹈和绘画等艺术活动对于提高痴呆症患者的生活质量的重要性已得到广泛认可。然而,研究的重点是有益的结果,使我们缺乏与PLWD可能经历的创造性过程相关的知识。本文探讨了PLWD的绘画过程,并提供了与油漆和绘画材料的接触如何解释和体现代理的见解。我们认为,绘画过程本身体现了一种具体的代理和认知形式,一种“物质思维”,因此有助于展示PLWD即使在其他能力一定程度下降后仍可能保留的思维技能。这项研究概述了八名痴呆症患者在与艺术家研究人员一起工作时如何参与和体验绘画。数据是通过半结构化访谈获得的,观察结果是通过录像和实地记录获得的。定性主题分析确定了新兴主题,包括标记制作,灵活的想法和沉浸,这些主题与绘画如何参与痴呆症患者的物质思维有关。我们的分析表明,即使在没有语言的情况下,绘画过程也涉及不同形式的决策、代理和认知。虽然有许多其他好处,但绘画作为一种有效的表达和对认知和代理的认可,有很大的潜力被纳入护理实践。
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引用次数: 0
Seeing several sides of the story: Unpacking an ethical dilemma in home-based care 看到故事的多个侧面:解读家庭护理中的道德难题
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-04-06 DOI: 10.1016/j.jaging.2025.101323
Cecilie Knagenhjelm Hertzberg, Morten Magelssen, Anne Kari Tolo Heggestad
Healthcare professionals in home-based care face various challenges at the system and patient levels, which can lead to ethical dilemmas. In addition, home-based care workers lack arenas to share their experiences, as they are often scattered across the care district, work alone, and do not have the immediate support of a colleague. Based on ethnographic fieldwork among professional caregivers in home-based care in Norway, we present a case of an ethical dilemma that occurred during a patient visit. Using a narrative ethics approach, we unpack the case into six “stories” and show the context of the ethical dilemma. Home-based care staff may not be aware of an ethical dilemma as it unfolds. Reflection on the case leads us to suggest that staff would benefit from some form of clinical ethics support to learn, share stories, and receive support. We also suggest that professional caregivers and patients would benefit from advance care planning as a way to clarify expectations between patients and healthcare professionals. Clinical ethics support and advance care planning are ways for staff and patients, respectively, to let their voices and stories be heard.
从事居家护理的医护人员面临着系统和患者层面的各种挑战,这可能会导致伦理困境。此外,居家护理人员缺乏分享经验的场所,因为他们往往分散在不同的护理区,独自工作,没有同事的直接支持。基于对挪威居家护理专业护理人员的人种学实地调查,我们介绍了一个在探访病人时发生的伦理困境案例。我们采用叙事伦理方法,将该案例分解为六个 "故事",并展示了伦理困境的来龙去脉。家庭护理人员可能不会意识到道德困境的发生。通过对案例的反思,我们认为员工可以从某种形式的临床伦理支持中获益,从而学习、分享故事并获得支持。我们还建议,专业护理人员和患者可以从预先护理规划中获益,从而明确患者和医护人员之间的期望。临床伦理支持和预先护理规划分别是员工和患者倾诉心声和故事的途径。
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引用次数: 0
“We try to help each other out”: Older immigrants' perceptions of their support resources “我们试图互相帮助”:老年移民对他们的支持资源的看法
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-04-05 DOI: 10.1016/j.jaging.2025.101327
Pnina Dolberg , Sagit Lev
The number of older migrants is steadily increasing in immigration-receiving countries. Studies show that older immigrants tend to be vulnerable to poverty, health problems, and mental distress. They often face barriers when seeking formal assistance and rely on informal support from family and community members. The present study aims to explore the experiences and perceptions of older immigrants regarding the support resources available to them as they navigate the challenges of their multifaceted needs in their host country.
The study involved in-depth interviews with 21 older immigrants (ages 74–96) from the former Soviet Union (FSU) who migrated to Israel at ages 43–65. Data were collected through semi-structured interviews and analyzed using content analysis. Three categories of support resources emerged: (1) Family: participants attached great importance to family members' support and relationships, maintained connections with relatives abroad, and emphasized the reciprocal nature of family support; (2) Community: support came from friends and neighbors, long-distance relationships with old friends, and ethnic or local immigrant communities, including those formed in assisted living settings; (3) State authorities: participants expressed mixed perceptions about formal assistance, including both appreciation and discomfort. The findings are discussed in light of social exchange theory and intersectionality theory, highlighting the agency and resilience of older immigrants, despite their position at the intersection of age, migration status, and cultural marginalization.
在移民接受国,老年移民的人数正在稳步增加。研究表明,老年移民往往容易遭受贫困、健康问题和精神痛苦。他们在寻求正式援助时往往面临障碍,并依赖于家庭和社区成员的非正式支持。本研究旨在探讨老年移民在东道国应对多方面需求的挑战时,对可获得的支持资源的经验和看法。本研究对 21 名 43-65 岁移居以色列的前苏联(FSU)老年移民(74-96 岁)进行了深入访谈。数据通过半结构化访谈收集,并使用内容分析法进行分析。支持资源分为三类:(1) 家庭:参与者非常重视家庭成员的支持和关系,与海外亲属保持联系,并强调家庭支持的互惠性质;(2) 社区:支持来自朋友和邻居、与老朋友的远距离关系、种族或当地移民社区,包括在生活辅助环境中形成的社区;(3) 国家当局:参与者对正式援助的看法不一,既有赞赏,也有不适。研究结果根据社会交换理论和交叉理论进行了讨论,强调了老年移民的能动性和复原力,尽管他们处于年龄、移民身份和文化边缘化的交叉点上。
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引用次数: 0
The “old aunties (lǎo ā yí)” are not old: Chinese young women's attitudes toward aging and old age through using the generalized kinship term on social media “老阿姨(lǎo ā yí)”并不老:中国年轻女性在社交媒体上使用广义亲属称谓对衰老和老年的态度
IF 1.8 3区 社会学 Q2 GERONTOLOGY Pub Date : 2025-04-01 DOI: 10.1016/j.jaging.2025.101325
Juanjuan Ren , Mingxin Yao
While previous research has discussed representations of and solutions to ageism and aging anxiety, it remains unknown whether Chinese young women's calling and being called “old aunties” [lǎo ā yí] can be related to ageism and aging anxiety. Based on collected Weibo data, we examined the generalized use of this kinship term on social media using discourse analysis and found that it is predominantly self-addressing and secondarily other-addressing in usage and that the addressees are primarily young women in their twenties and thirties. We proposed that they construct a false identity of old aunties for jocular self-mockery or provocative teasing. We also argue (1) that young women's being called “old aunties” suggests that addressers consider old age as undesirable and negative and that ageism still exists among young Weibo users; (2) that young women's calling themselves “old aunties” for jocular self-mockery indicates that they might have aging anxiety and using this address term to resist aging anxiety and social pressures, or that they may hold positive attitudes toward old age and feel comfortable in expressing their own preferences and positive evaluations on aging and old age. The study may contribute to the cultural gerontology research by using discourse analysis to provide discursive evidence of constructing a false identity of older people in digital communication, and help broaden the research scope of kinship term generalization and identity construction worldwide.
虽然以前的研究已经讨论了年龄歧视和衰老焦虑的表现形式和解决方案,但中国年轻女性的称呼和被称为“老阿姨”是否与年龄歧视和衰老焦虑有关仍是未知的[lǎo ā yí]。基于收集到的微博数据,我们运用话语分析的方法考察了这一亲属称谓在社交媒体上的普遍使用情况,发现它的使用以自我称呼为主,其次是他者称呼,并且称呼者主要是二三十岁的年轻女性。我们建议他们为滑稽的自嘲或挑逗性的取笑构建一个老阿姨的虚假身份。我们还认为(1)年轻女性被称为“老阿姨”表明,称呼者认为老年是不受欢迎的和消极的,年龄歧视在年轻微博用户中仍然存在;(2)年轻女性以“老阿姨”自嘲,表明她们可能有衰老焦虑,用这个称呼来抵抗衰老焦虑和社会压力,或者她们对老年持积极的态度,在表达自己对老龄化和老年的偏好和积极评价时感到自在。本研究通过话语分析为数字传播中老年人虚假身份建构提供话语证据,有助于文化老年学研究的开展,并有助于拓宽亲属术语泛化与身份建构的全球研究范围。
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