Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101165
Kelly E. Tenzek, Emily Lapan, Yotam Ophir, Tahleen A. Lattimer
Alzheimer's disease (AD) is a terminal, neurodegenerative disease, and consequently is difficult to communicate about as it is stigmatized, and discussions are rife with misconceptions. By situating AD conversations in the sociocultural space of the opportunity model of presence during the end-of-life process, a framework developed illustrating the potential trajectory from living with illness through death and into bereavement, we examined networked discussions surrounding Alzheimer's related hashtags on Twitter (N = 132,803) between January 1st, 2010, and September 29th, 2021. Using the mixed-method approach of the Analysis of Topic Model Network (ANTMN) framework, results revealed 30 topics clustered into five distinct themes: promotion, education, action, “You aren't alone”, and dementia. Results indicated that discussions surrounding World Alzheimer's Day focused on changing stigma and promoting engagement in difficult conversations. The frequency of themes over time remained relatively stable. By understanding how Twitter's online discourse may be used to overcome stigmatized topics, we can continue to tailor messages to reduce stigma and provide support for those who experience similar health issues.
{"title":"Staying connected: Alzheimer's hashtags and opportunities for engagement and overcoming stigma","authors":"Kelly E. Tenzek, Emily Lapan, Yotam Ophir, Tahleen A. Lattimer","doi":"10.1016/j.jaging.2023.101165","DOIUrl":"10.1016/j.jaging.2023.101165","url":null,"abstract":"<div><p>Alzheimer's disease (AD) is a terminal, neurodegenerative disease, and consequently is difficult to communicate about as it is stigmatized, and discussions are rife with misconceptions. By situating AD conversations in the sociocultural space of the opportunity model of presence during the end-of-life process, a framework developed illustrating the potential trajectory from living with illness through death and into bereavement, we examined networked discussions surrounding Alzheimer's related hashtags on Twitter (<em>N</em> = 132,803) between January 1st, 2010, and September 29th, 2021. Using the mixed-method approach of the Analysis of Topic Model Network (ANTMN) framework, results revealed 30 topics clustered into five distinct themes: promotion, education, action, “You aren't alone”, and dementia. Results indicated that discussions surrounding World Alzheimer's Day focused on changing stigma and promoting engagement in difficult conversations. The frequency of themes over time remained relatively stable. By understanding how Twitter's online discourse may be used to overcome stigmatized topics, we can continue to tailor messages to reduce stigma and provide support for those who experience similar health issues.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101165"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10241609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101155
James Rupert Fletcher
Following recent regulatory approvals for anti-Alzheimer's monoclonal antibodies, this paper considers the contemporary role of cognitivism in defining the ontological commitments of dementia research, as well as movements away from cognitivism under the umbrella of 4E cognitive science. 4E cognitive theories, extending cognition into bodies, their environs, and active relations between the two, share potentially fruitful affinities with new materialisms which focus on the co-constitution of matter in intra-action. These semi-overlapping conceptual positions furnish some opportunity for an ontological alternative to longstanding cognitivist commitments, particularly to the isolated brain as a material catalyst for commercial interventions. After outlining mainstream cognitivism and its shortcomings, I explore 4E and new materialism as possibly transformative conceptual schemas for dementia research, a field for which cognitivist imaginings of cognitive decline in later life have profound and often regrettable ramifications. To realise this new materialist dementia, I sketch out a cognitive ontology based on Barad's agential realism. This facilitates a reassessment of the biggest conundrum in dementia research – the lack of neat correlation between (apparently material) neuropathology and (apparently immaterial) cognitive impairment – alongside the continued failure of efforts to develop effective interventions. It also gives social researchers working on cognitive decline in later life an opportunity to reappraise the nature of social science as a response to such phenomena. If cognition and cognitive ageing are reimagined as an emergent characteristic of intra-acting matter, then new materialist social science might be at least as conducive to salutogenic interventions as the neuropsychiatric technoscience that dominates the contemporary dementia research economy despite continual failures. I argue that a new materialist cognitive ontology could help us think beyond an ageing cognitivism and, by extension, beyond the Alzheimer conundrum.
{"title":"Cognitivism ageing: The Alzheimer conundrum as switched ontology & the potential for a new materialist dementia","authors":"James Rupert Fletcher","doi":"10.1016/j.jaging.2023.101155","DOIUrl":"10.1016/j.jaging.2023.101155","url":null,"abstract":"<div><p>Following recent regulatory approvals for anti-Alzheimer's monoclonal antibodies, this paper considers the contemporary role of cognitivism in defining the ontological commitments of dementia research, as well as movements away from cognitivism under the umbrella of 4E cognitive science. 4E cognitive theories, extending cognition into bodies, their environs, and active relations between the two, share potentially fruitful affinities with new materialisms which focus on the co-constitution of matter in intra-action. These semi-overlapping conceptual positions furnish some opportunity for an ontological alternative to longstanding cognitivist commitments, particularly to the isolated brain as a material catalyst for commercial interventions. After outlining mainstream cognitivism and its shortcomings, I explore 4E and new materialism as possibly transformative conceptual schemas for dementia research, a field for which cognitivist imaginings of cognitive decline in later life have profound and often regrettable ramifications. To realise this new materialist dementia, I sketch out a cognitive ontology based on Barad's agential realism. This facilitates a reassessment of the biggest conundrum in dementia research – the lack of neat correlation between (apparently material) neuropathology and (apparently immaterial) cognitive impairment – alongside the continued failure of efforts to develop effective interventions. It also gives social researchers working on cognitive decline in later life an opportunity to reappraise the nature of social science as a response to such phenomena. If cognition and cognitive ageing are reimagined as an emergent characteristic of intra-acting matter, then new materialist social science might be at least as conducive to salutogenic interventions as the neuropsychiatric technoscience that dominates the contemporary dementia research economy despite continual failures. I argue that a new materialist cognitive ontology could help us think beyond an ageing cognitivism and, by extension, beyond the Alzheimer conundrum.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101155"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101156
Shvat Eilat
Even before a diagnosis of dementia, people may negotiate in their everyday lives the fears and suspicions about the possibility of a future with dementia. My field of research involves JewishIsraeli older adult individuals who suspect that they are beginning to lose their memory, but before seeking out a formal diagnosis—and when not seeking a diagnosis at all is an equal possibility. By distinguishing their experience of suspecting possible dementia from this of living with dementia, I attempt to illuminate the social, bio-diagnostic and cultural shadows of dementia hovering in the background of their everyday experience. I begin by shedding light on the ethical and methodological context of my specific field in Israel. I next reflect upon the concept of “shadow,” that is constituted within and reflecting the assemblages of lurking presences accompanying my interlocutors' daily negotiations of the possibility of dementia. I then situate their lived experiences, as well as my ethnographic engagement with them, in the context of the prevailing cultural and social moralities surrounding this possibility. Finally, I show how a negotiation of the place that this shadow occupies in their lives arises in the encounter with the ethnographer. This first account of people before diagnosis and not through the diagnostic event, while keeping the space for deciding about a possible future of diagnosis open, can contribute to the understanding of undecidability as an ethical stance in ethnography, incorporating the suspension of the need to order realities through the imperatives of a diagnosis of dementia. Further, understanding these mundane negotiations with these shadows can help us allow more space for uncertainty and unpredictability as legitimate forms of living with dementia.
{"title":"The shadow of dementia: Listening to undecidability in ethnographic interviews with persons suspecting possible dementia","authors":"Shvat Eilat","doi":"10.1016/j.jaging.2023.101156","DOIUrl":"10.1016/j.jaging.2023.101156","url":null,"abstract":"<div><p>Even before a diagnosis of dementia, people may negotiate in their everyday lives the fears and suspicions about the possibility of a future with dementia. My field of research involves JewishIsraeli older adult individuals who suspect that they are beginning to lose their memory, but before seeking out a formal diagnosis—and when not seeking a diagnosis at all is an equal possibility. By distinguishing their experience of suspecting possible dementia from this of living with dementia, I attempt to illuminate the social, bio-diagnostic and cultural shadows of dementia hovering in the background of their everyday experience. I begin by shedding light on the ethical and methodological context of my specific field in Israel. I next reflect upon the concept of “shadow,” that is constituted within and reflecting the assemblages of lurking presences accompanying my interlocutors' daily negotiations of the possibility of dementia. I then situate their lived experiences, as well as my ethnographic engagement with them, in the context of the prevailing cultural and social moralities surrounding this possibility. Finally, I show how a negotiation of the place that this shadow occupies in their lives arises in the encounter with the ethnographer. This first account of people before diagnosis and not through the diagnostic event, while keeping the space for deciding about a possible future of diagnosis open, can contribute to the understanding of undecidability as an ethical stance in ethnography, incorporating the suspension of the need to order realities through the imperatives of a diagnosis of dementia. Further, understanding these mundane negotiations with these shadows can help us allow more space for uncertainty and unpredictability as legitimate forms of living with dementia.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101156"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10233090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101159
Dohee Lee, Inkeri Aula, Masood Masoodian
The growing aging population has become a significant global issue in recent years, increasing the need for research that examines aging-related phenomena such as personal growth and development in later life. A major challenge in achieving this aim is the prevailing deficit perspective on aging, which is so pervasive that it often overshadows older adults' contributions to society and diminishes the opportunities encountered in older adulthood. Although perspectives on the nature of aging are gradually changing in a positive way, and the developments in medicine are improving health-related aspects of aging, it is still a worldwide challenge to eradicate negative stereotypes around aging. This article explores empirical perspectives on aging by analyzing diverse narratives gathered from open-ended interviews we conducted in Finland from 2019 to 2021. Focusing on their aging experiences and the value of a broad range of creative engagements and interventions that older adults have joined voluntarily, the study aims to provide a better understanding of personal perspectives of aging, the creative well-being of older adults, and the growing diversity of experiences within the older age group. Based on the findings of this study, we highlight the importance of promoting older adults' engagement in art-based interventions to enhance their creativity and well-being in later life, as well as fostering aging-friendly co-creative approaches in such interventions by involving the older adults themselves in the process.
{"title":"Perspectives on creative well-being of older adults","authors":"Dohee Lee, Inkeri Aula, Masood Masoodian","doi":"10.1016/j.jaging.2023.101159","DOIUrl":"10.1016/j.jaging.2023.101159","url":null,"abstract":"<div><p>The growing aging population has become a significant global issue in recent years, increasing the need for research that examines aging-related phenomena such as personal growth and development in later life. A major challenge in achieving this aim is the prevailing deficit perspective on aging, which is so pervasive that it often overshadows older adults' contributions to society and diminishes the opportunities encountered in older adulthood. Although perspectives on the nature of aging are gradually changing in a positive way, and the developments in medicine are improving health-related aspects of aging, it is still a worldwide challenge to eradicate negative stereotypes around aging. This article explores empirical perspectives on aging by analyzing diverse narratives gathered from open-ended interviews we conducted in Finland from 2019 to 2021. Focusing on their aging experiences and the value of a broad range of creative engagements and interventions that older adults have joined voluntarily, the study aims to provide a better understanding of personal perspectives of aging, the creative well-being of older adults, and the growing diversity of experiences within the older age group. Based on the findings of this study, we highlight the importance of promoting older adults' engagement in art-based interventions to enhance their creativity and well-being in later life, as well as fostering aging-friendly co-creative approaches in such interventions by involving the older adults themselves in the process.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101159"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101157
Varshaa Kashyap, Zoë Francis
Intergenerational contact is beneficial for both younger and older adults, but friendships that span across generations are uncommon. While this is partially due to situational factors, people's beliefs about the possibility of intergenerational friendship may also affect how they approach potential intergenerational interactions. In a sample of 209 students from a Canadian university, we validate the Beliefs in Intergenerational Friendship (BIGF) scale. Young adults were more likely to believe in intergenerational friendship if they had less ageist attitudes and if they were more conscientious, open, agreeable, and emotionally stable. Number of non-kin intergenerational social contacts (but not number of kin contacts) and closeness of an existing relationship with an older adult also predicted greater belief in intergenerational friendship. BIGF scores predicted willingness to regularly spend time with older adults and were a better predictor than either hostile or benevolent ageism. While not everyone believes that intergenerational friendships are possible, this novel scale may uniquely capture people's willingness to form relationships across generations.
{"title":"Who believes in cross-age friendship? Predictors of the belief in intergenerational friendship scale in young adults","authors":"Varshaa Kashyap, Zoë Francis","doi":"10.1016/j.jaging.2023.101157","DOIUrl":"10.1016/j.jaging.2023.101157","url":null,"abstract":"<div><p>Intergenerational contact is beneficial for both younger and older adults, but friendships that span across generations are uncommon. While this is partially due to situational factors, people's beliefs about the possibility of intergenerational friendship may also affect how they approach potential intergenerational interactions. In a sample of 209 students from a Canadian university, we validate the Beliefs in Intergenerational Friendship (BIGF) scale. Young adults were more likely to believe in intergenerational friendship if they had less ageist attitudes and if they were more conscientious, open, agreeable, and emotionally stable. Number of non-kin intergenerational social contacts (but not number of kin contacts) and closeness of an existing relationship with an older adult also predicted greater belief in intergenerational friendship. BIGF scores predicted willingness to regularly spend time with older adults and were a better predictor than either hostile or benevolent ageism. While not everyone believes that intergenerational friendships are possible, this novel scale may uniquely capture people's willingness to form relationships across generations.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101157"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101164
Liyun Bai
Memory is a major theme running through Kazuo Ishiguro's works, one of which is The Buried Giant. This study aims to analyze the concept of collective memory in Kazuo Ishiguro's novel The Buried Giant through hermeneutic interpretation and sociological analysis. The results show that this novel links collective memory with individual experience and generational identity whilst making aging a central element in the exploration of time and history. In the novel, collective memory is seen through the prism of aging. The aging characters serve as a metonymy to convey the image of memory. They find themselves in circumstances broadcasting a horrific story of decline and marginalization of the nation because they cannot access the past and move into the future. They revisit the story of their lives, but even though they can recount their losses, they do not seem to be critical of their past choices or their responsibilities in the global conflicts they lived through. In The Buried Giant, the aging characters are the ones who come to terms with their individual and collective histories to face their remaining years. This is not an idealized vision of wisdom; rather, it is an acceptance of complicity and guilt. The results can be applied in literary, sociological, and historical studies concerning the collective memory of different historical periods. They are of practical value as they contribute to the study of collective memory in literary theory. Research on collective memory in literature sheds light on the ways historical events and shared experiences impact human behavior, beliefs, and decision-making processes.
{"title":"The philosophy of collective memory in the novel “The Buried Giant” by Kazuo Ishiguro","authors":"Liyun Bai","doi":"10.1016/j.jaging.2023.101164","DOIUrl":"10.1016/j.jaging.2023.101164","url":null,"abstract":"<div><p>Memory is a major theme running through Kazuo Ishiguro's works, one of which is <em>The Buried Giant</em>. This study aims to analyze the concept of collective memory in Kazuo Ishiguro's novel <em>The Buried Giant</em> through hermeneutic interpretation and sociological analysis. The results show that this novel links collective memory with individual experience and generational identity whilst making aging a central element in the exploration of time and history. In the novel, collective memory is seen through the prism of aging. The aging characters serve as a metonymy to convey the image of memory. They find themselves in circumstances broadcasting a horrific story of decline and marginalization of the nation because they cannot access the past and move into the future. They revisit the story of their lives, but even though they can recount their losses, they do not seem to be critical of their past choices or their responsibilities in the global conflicts they lived through. In <em>The Buried Giant</em>, the aging characters are the ones who come to terms with their individual and collective histories to face their remaining years. This is not an idealized vision of wisdom; rather, it is an acceptance of complicity and guilt. The results can be applied in literary, sociological, and historical studies concerning the collective memory of different historical periods. They are of practical value as they contribute to the study of collective memory in literary theory. Research on collective memory in literature sheds light on the ways historical events and shared experiences impact human behavior, beliefs, and decision-making processes.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101164"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10232654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101154
Barbara Groot , Annette Hendrikx , Elena Bendien , Susan Woelders , Lieke de Kock , Tineke Abma
<div><h3>Background</h3><p>Academics aim to understand the experiences of people living with cognitive and/or language impairment in their search for epistemic justice. Methods that do not rely solely on verbal information (e.g., interviews, focus groups) but also employ an attunement to the non-verbal - such as participant observation and creative methods, are seen as a suitable way to do justice to people's non-verbal interactions. However, in practice, researchers still experience ethical issues in everyday encounters with participants with cognitive and/or language impairment even when trying to address epistemic issues while employing such methods. This article aims to demonstrate 1) the importance of attending to the non-verbal in order to prevent epistemic injustice in research and 2) how a case-study approach and discussing ethical dilemmas with peers may help to unpack some of the ethical tensions that the researchers experience.</p></div><div><h3>Aim and methods</h3><p>This article focuses on ethical dilemmas the authors encountered during their research projects in the past. Three cases chosen by the authors illustrate these dilemmas. Dilemmas are presented as auto-ethnographical written accounts, which were discussed during ten retrospective dialogical sessions (60–90 min) organized by the research group consisting of six academic researchers.</p></div><div><h3>Results</h3><p>Ethically sound research, in which older people living with cognitive and/or language impairment are engaged, entails much more than following procedures about informed consent, privacy, submitting a proposal to an ethics committee, and using suitable methods and techniques. Ethical issues in these studies relate to everyday situations in which researchers tried to do justice to the knowledge of people who have difficulties expressing themselves verbally, but were challenged by what they have initially experienced as ‘having it wrong,’ ‘not knowing,’ and ‘losing something in translation’ in their practice. Finally, we learned that the interactions the researchers encountered were complex. They had to constantly evaluate the appropriateness of their approach, balance rational and intuitive forms of interaction and interpretation, and consider ways of communicating the research findings.</p></div><div><h3>Discussion and conclusion</h3><p>Approximating epistemic justice in research with people with cognitive and/or language impairment requires extra effort in daily research routines. Sharing everyday ethical issues via case stories and reflecting on these issues encourages moral learning and brings new knowledge about the craftsmanship of researchers. Especially the collaborative and dialogical reflection helped the researchers to dig deeper and find words for intangible processes that often remain unaddressed. However, sharing stories about ethical issues requires mutual trust and safety because sharing and reflecting may bring discomfort, messiness, and uncertaint
{"title":"In search of epistemic justice. Dialogical reflection of researchers on situated ethics in studies with people living with language and/or cognitive impairment","authors":"Barbara Groot , Annette Hendrikx , Elena Bendien , Susan Woelders , Lieke de Kock , Tineke Abma","doi":"10.1016/j.jaging.2023.101154","DOIUrl":"10.1016/j.jaging.2023.101154","url":null,"abstract":"<div><h3>Background</h3><p>Academics aim to understand the experiences of people living with cognitive and/or language impairment in their search for epistemic justice. Methods that do not rely solely on verbal information (e.g., interviews, focus groups) but also employ an attunement to the non-verbal - such as participant observation and creative methods, are seen as a suitable way to do justice to people's non-verbal interactions. However, in practice, researchers still experience ethical issues in everyday encounters with participants with cognitive and/or language impairment even when trying to address epistemic issues while employing such methods. This article aims to demonstrate 1) the importance of attending to the non-verbal in order to prevent epistemic injustice in research and 2) how a case-study approach and discussing ethical dilemmas with peers may help to unpack some of the ethical tensions that the researchers experience.</p></div><div><h3>Aim and methods</h3><p>This article focuses on ethical dilemmas the authors encountered during their research projects in the past. Three cases chosen by the authors illustrate these dilemmas. Dilemmas are presented as auto-ethnographical written accounts, which were discussed during ten retrospective dialogical sessions (60–90 min) organized by the research group consisting of six academic researchers.</p></div><div><h3>Results</h3><p>Ethically sound research, in which older people living with cognitive and/or language impairment are engaged, entails much more than following procedures about informed consent, privacy, submitting a proposal to an ethics committee, and using suitable methods and techniques. Ethical issues in these studies relate to everyday situations in which researchers tried to do justice to the knowledge of people who have difficulties expressing themselves verbally, but were challenged by what they have initially experienced as ‘having it wrong,’ ‘not knowing,’ and ‘losing something in translation’ in their practice. Finally, we learned that the interactions the researchers encountered were complex. They had to constantly evaluate the appropriateness of their approach, balance rational and intuitive forms of interaction and interpretation, and consider ways of communicating the research findings.</p></div><div><h3>Discussion and conclusion</h3><p>Approximating epistemic justice in research with people with cognitive and/or language impairment requires extra effort in daily research routines. Sharing everyday ethical issues via case stories and reflecting on these issues encourages moral learning and brings new knowledge about the craftsmanship of researchers. Especially the collaborative and dialogical reflection helped the researchers to dig deeper and find words for intangible processes that often remain unaddressed. However, sharing stories about ethical issues requires mutual trust and safety because sharing and reflecting may bring discomfort, messiness, and uncertaint","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101154"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101158
Hasan Cem Çelik
In this study, older characters that appeared in all the episodes of the first seasons of eight most popular Turkish TV series on prime-time televisions in Turkey and those appeared in all the episodes of the first seasons of eight "original" Turkish series on Netflix were submitted to a comparative quantitative and qualitative content analysis. In this sense, the aim of this study was to reveal what kind of old age is promised to viewers by such media environments as TV and Netflix. Findings revealed that, when compared to the Turkish population, older people were significantly underrepresented in prime-time series and that, in other words, they were symbolically eliminated and exposed to age discrimination. Another finding is that older people were portrayed more fairly on Netflix than TV. Although older individuals were inadequately represented on Netflix as well, the difference between the two platforms was not statistically significant. On the other hand, while older women are significantly less represented than older men on both platforms, the study found no significant difference in gender representation between Netflix and prime-time TV. The findings also indicated that no older character, when evaluated qualitatively, was represented as the major character on either platforms and that, especially when it comes to having a profession, older people, specifically older women, were portrayed more negatively on both platforms, which means that older women faced a double jeopardy.
{"title":"Representations of older people in Turkish prime-time TV series and Netflix original Turkish series: A comparative content analysis","authors":"Hasan Cem Çelik","doi":"10.1016/j.jaging.2023.101158","DOIUrl":"10.1016/j.jaging.2023.101158","url":null,"abstract":"<div><p>In this study, older characters that appeared in all the episodes of the first seasons of eight most popular Turkish TV series on prime-time televisions in Turkey and those appeared in all the episodes of the first seasons of eight \"original\" Turkish series on Netflix were submitted to a comparative quantitative and qualitative content analysis. In this sense, the aim of this study was to reveal what kind of old age is promised to viewers by such media environments as TV and Netflix. Findings revealed that, when compared to the Turkish population, older people were significantly underrepresented in prime-time series and that, in other words, they were symbolically eliminated and exposed to age discrimination. Another finding is that older people were portrayed more fairly on Netflix than TV. Although older individuals were inadequately represented on Netflix as well, the difference between the two platforms was not statistically significant. On the other hand, while older women are significantly less represented than older men on both platforms, the study found no significant difference in gender representation between Netflix and prime-time TV. The findings also indicated that no older character, when evaluated qualitatively, was represented as the major character on either platforms and that, especially when it comes to having a profession, older people, specifically older women, were portrayed more negatively on both platforms, which means that older women faced a double jeopardy.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101158"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-01DOI: 10.1016/j.jaging.2023.101107
Teet Teinemaa , Marge Unt
{"title":"Corrigendum to “Contradictions of hegemonic masculinity and the (hopeful) potential of old age and caring masculinity in Estonian society and in films A Friend of Mine (2011) and Tangerines (2013)” [Journal of Aging Studies volume 63 (2022) 1–7/101034]","authors":"Teet Teinemaa , Marge Unt","doi":"10.1016/j.jaging.2023.101107","DOIUrl":"10.1016/j.jaging.2023.101107","url":null,"abstract":"","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101107"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10579820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-01DOI: 10.1016/j.jaging.2023.101131
Linda Naughton , Miguel Padeiro , Beatriz Bueno-Larraz
At the start of the COVID-19 pandemic, the Portuguese government identified those aged 70 or more as a risk group, placing a special duty of protection on them to shelter-at-home. This paper asks how Portuguese municipalities, using Facebook posts, communicated the risk to older adults and to what extent ageist stereotypes were found in the language and frames employed. Over 3800 Facebook posts made by Portuguese municipalities concerning older adults and COVID-19 published between March and July 2020 were analyzed. Language counts for age-related words were used in a first round of content analysis followed by a process of thematic analysis. Findings indicate that the language used to address Portuguese older adults could be understood as ageist in terms of homogenizing older people as a fixed group. The communication of risk was often conflated with the vulnerability narrative already observed in the extant literature. However, context- and culture-specific themes of ‘solidarity’, ‘inter-relatedness’, ‘duty of care’ and ‘support for those living in isolation’ were also found. The study highlights the extent to which language, culture and context are intertwined with our understanding of age, aging and ageism. It provides a culturally-specific case study, which challenges both gerontological interpretations of vulnerability and neoliberal frames which focus responsibility on the individual regardless of age. We argue that these alternative frames echo the emerging discourse of mutual aid and solidarity, providing a wider context for addressing vulnerability in a health crisis.
{"title":"Vulnerability in context; hard numbers, tricky words and grey areas for gerontology","authors":"Linda Naughton , Miguel Padeiro , Beatriz Bueno-Larraz","doi":"10.1016/j.jaging.2023.101131","DOIUrl":"10.1016/j.jaging.2023.101131","url":null,"abstract":"<div><p>At the start of the COVID-19 pandemic, the Portuguese government identified those aged 70 or more as a risk group, placing a special duty of protection on them to shelter-at-home. This paper asks how Portuguese municipalities, using Facebook posts, communicated the risk to older adults and to what extent ageist stereotypes were found in the language and frames employed. Over 3800 Facebook posts made by Portuguese municipalities concerning older adults and COVID-19 published between March and July 2020 were analyzed. Language counts for age-related words were used in a first round of content analysis followed by a process of thematic analysis. Findings indicate that the language used to address Portuguese older adults could be understood as ageist in terms of homogenizing older people as a fixed group. The communication of risk was often conflated with the vulnerability narrative already observed in the extant literature. However, context- and culture-specific themes of ‘solidarity’, ‘inter-relatedness’, ‘duty of care’ and ‘support for those living in isolation’ were also found. The study highlights the extent to which language, culture and context are intertwined with our understanding of age, aging and ageism. It provides a culturally-specific case study, which challenges both gerontological interpretations of vulnerability and neoliberal frames which focus responsibility on the individual regardless of age. We argue that these alternative frames echo the emerging discourse of mutual aid and solidarity, providing a wider context for addressing vulnerability in a health crisis.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"65 ","pages":"Article 101131"},"PeriodicalIF":2.3,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10036039/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9574504","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}