Pub Date : 2022-01-24DOI: 10.1080/09687599.2022.2029357
S. Robinson, K. Fisher, Anne Graham, Heikki Ikäheimo, Kelley Johnson, Tova Rozengarten
Abstract Policy efforts addressing abuse of people with disability tend to focus on more extreme forms of violence, sometimes at the expense of attending to everyday indignities and insults experienced when receiving support. Recognition theory provides a lens for identifying actions and attitudes of misrecognition that can cause hurt, humiliation or degradation, and have a negative effect on identity formation. Honneth’s concept of misrecognition is used to analyse qualitative data from 42 pairs of young people with intellectual disability and support workers. Many of the casual interactions that signalled misrecognition highlight the everyday harms that people receiving or giving support are exposed to in their paired relationship. Systems must respond to the high likelihood of these risks of misrecognition. Supervision, training, reflective practice and support activities can expose the problems and demonstrate practices more likely to positively impact the identity formation and wellbeing for both people with disability and support workers. Points of interest Everyday harms are things that happen often in services which upset people, but which do not get treated as violence or abuse. They are things like having unkind jokes made about you, being ignored, or being disrespected. In our project, we called this misrecognition. We looked at when misrecognition happened between young people with disability and their paid support workers. A. . . lot of the time, people did not intend to cause harm. The other person was still hurt by the things they did or said. We can improve the way that people with disability and support workers work together if people understand how their actions affect other people.
{"title":"Recasting ‘harm’ in support: Misrecognition between people with intellectual disability and paid workers","authors":"S. Robinson, K. Fisher, Anne Graham, Heikki Ikäheimo, Kelley Johnson, Tova Rozengarten","doi":"10.1080/09687599.2022.2029357","DOIUrl":"https://doi.org/10.1080/09687599.2022.2029357","url":null,"abstract":"Abstract Policy efforts addressing abuse of people with disability tend to focus on more extreme forms of violence, sometimes at the expense of attending to everyday indignities and insults experienced when receiving support. Recognition theory provides a lens for identifying actions and attitudes of misrecognition that can cause hurt, humiliation or degradation, and have a negative effect on identity formation. Honneth’s concept of misrecognition is used to analyse qualitative data from 42 pairs of young people with intellectual disability and support workers. Many of the casual interactions that signalled misrecognition highlight the everyday harms that people receiving or giving support are exposed to in their paired relationship. Systems must respond to the high likelihood of these risks of misrecognition. Supervision, training, reflective practice and support activities can expose the problems and demonstrate practices more likely to positively impact the identity formation and wellbeing for both people with disability and support workers. Points of interest Everyday harms are things that happen often in services which upset people, but which do not get treated as violence or abuse. They are things like having unkind jokes made about you, being ignored, or being disrespected. In our project, we called this misrecognition. We looked at when misrecognition happened between young people with disability and their paid support workers. A. . . lot of the time, people did not intend to cause harm. The other person was still hurt by the things they did or said. We can improve the way that people with disability and support workers work together if people understand how their actions affect other people.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1667 - 1688"},"PeriodicalIF":2.4,"publicationDate":"2022-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48810379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-22DOI: 10.1080/09687599.2021.2020001
Diana Seach
In the UK there continues to be a dearth in research that has explored the diversity of minority ethnic families’ experiences of caring for an autistic child. The research sought to address this under-representation by using a transcultural approach to understand how families are drawing on multiple cultural influences in response to having an autistic child. The findings supported the development of a transcultural model of culturally responsive pedagogical practice in autism education and recommends that there is a need to further address culture and ethnicity in research on autism and special education, encouraging teachers to think about the realities of families’ transcultural lives.
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Pub Date : 2022-01-22DOI: 10.1080/09687599.2021.2019993
Darryl Sellwood
In the UK there continues to be a dearth in research that has explored the diversity of minority ethnic families’ experiences of caring for an autistic child. The research sought to address this under-representation by using a transcultural approach to understand how families are drawing on multiple cultural influences in response to having an autistic child. The findings supported the development of a transcultural model of culturally responsive pedagogical practice in autism education and recommends that there is a need to further address culture and ethnicity in research on autism and special education, encouraging teachers to think about the realities of families’ transcultural lives.
{"title":"Announcement of doctoral theses","authors":"Darryl Sellwood","doi":"10.1080/09687599.2021.2019993","DOIUrl":"https://doi.org/10.1080/09687599.2021.2019993","url":null,"abstract":"In the UK there continues to be a dearth in research that has explored the diversity of minority ethnic families’ experiences of caring for an autistic child. The research sought to address this under-representation by using a transcultural approach to understand how families are drawing on multiple cultural influences in response to having an autistic child. The findings supported the development of a transcultural model of culturally responsive pedagogical practice in autism education and recommends that there is a need to further address culture and ethnicity in research on autism and special education, encouraging teachers to think about the realities of families’ transcultural lives.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"358 - 358"},"PeriodicalIF":2.4,"publicationDate":"2022-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41583433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-02DOI: 10.1080/09687599.2022.2040196
Michele Moore, Carol Thomas
the response to our Call for Papers for this Special issue was tremendous. it was international, activist focused, and scholarly, highlighting contemporary controversies and challenges for disabled people of all ages. the Executive Editorial Board has been privileged to review all submitted papers, resulting in a Special issue that offers a wealth of ideas and insights, raising important questions for further exploration and discussion. Cross-cultural and interdisciplinary collaborations are explored, in keeping with the original aims of the journal: to prioritise the voices of disabled people. Since the Call for Papers for the Special issue went out, Covid-19 has intervened globally, disturbing all aspects of life. disabled people have been particularly badly affected by changes in social conditions and relations of life. drawing on a virtual ethnographic study of disability support networks in China using WeChat, ruikai dai and luanjiao Hu have been able to explore the importance of inclusive communications to confront CoVid-19 disruptions. they highlight self-determination, and self-help actions generated from within disability communities. all papers selected illustrate how societies’ conceptions of how disabled people express themselves fall short. Creative approaches to facilitating the expression of disabled people’s views are discussed, including ways of hearing from those who are seldom heard. in thoughtful and imaginative ways, coping strategies used by disabled people in algeria during the CoVid-19 pandemic are also explored by amel Said Houari and Ghouti Hadjoui. they cover new ways in which interactions and encounters, in the context of pandemic emergency restrictions, can be challenged and changed. one of the most exciting aspects of the Special issue is its overarching analysis of the social construction of different experiences in disabled people’s lives. and contingent relations with socio-political and cultural context are noted. Monica Kaniamattam and Judith oxley are interested in the support needs of mothers with disabled children in South india. Seray ibrahim, asimina Vasalou, laura Benton & MichaSeray ibrahim, asimina Vasalou, laura Benton & Michael Clarke are working in the UK to understand how new communication technologies can be meaningfully developed and deployed through the activities of practitioners and researchers – to raise children’s voices. Kathryn locke, leanne Mcrae, Gwyneth Peaty, Katie Ellis and Mike Kent are similarly concerned with the inclusion of disabled people in the development of new technological advancements in their study of the importance of smartphones for people in the australian blind community. the importance of an intersectionality lens for understanding disabled people’s experiences in relation to their identities, such as ethnicity, gender, sexuality, class or religion, is taken up in research carried out by Steven david Emery and Sanchayeeta iyer with two deaf migrants. Syreeta Nolan’s pe
{"title":"Disability & Society Special Issue: contemporary controversies and challenges","authors":"Michele Moore, Carol Thomas","doi":"10.1080/09687599.2022.2040196","DOIUrl":"https://doi.org/10.1080/09687599.2022.2040196","url":null,"abstract":"the response to our Call for Papers for this Special issue was tremendous. it was international, activist focused, and scholarly, highlighting contemporary controversies and challenges for disabled people of all ages. the Executive Editorial Board has been privileged to review all submitted papers, resulting in a Special issue that offers a wealth of ideas and insights, raising important questions for further exploration and discussion. Cross-cultural and interdisciplinary collaborations are explored, in keeping with the original aims of the journal: to prioritise the voices of disabled people. Since the Call for Papers for the Special issue went out, Covid-19 has intervened globally, disturbing all aspects of life. disabled people have been particularly badly affected by changes in social conditions and relations of life. drawing on a virtual ethnographic study of disability support networks in China using WeChat, ruikai dai and luanjiao Hu have been able to explore the importance of inclusive communications to confront CoVid-19 disruptions. they highlight self-determination, and self-help actions generated from within disability communities. all papers selected illustrate how societies’ conceptions of how disabled people express themselves fall short. Creative approaches to facilitating the expression of disabled people’s views are discussed, including ways of hearing from those who are seldom heard. in thoughtful and imaginative ways, coping strategies used by disabled people in algeria during the CoVid-19 pandemic are also explored by amel Said Houari and Ghouti Hadjoui. they cover new ways in which interactions and encounters, in the context of pandemic emergency restrictions, can be challenged and changed. one of the most exciting aspects of the Special issue is its overarching analysis of the social construction of different experiences in disabled people’s lives. and contingent relations with socio-political and cultural context are noted. Monica Kaniamattam and Judith oxley are interested in the support needs of mothers with disabled children in South india. Seray ibrahim, asimina Vasalou, laura Benton & MichaSeray ibrahim, asimina Vasalou, laura Benton & Michael Clarke are working in the UK to understand how new communication technologies can be meaningfully developed and deployed through the activities of practitioners and researchers – to raise children’s voices. Kathryn locke, leanne Mcrae, Gwyneth Peaty, Katie Ellis and Mike Kent are similarly concerned with the inclusion of disabled people in the development of new technological advancements in their study of the importance of smartphones for people in the australian blind community. the importance of an intersectionality lens for understanding disabled people’s experiences in relation to their identities, such as ethnicity, gender, sexuality, class or religion, is taken up in research carried out by Steven david Emery and Sanchayeeta iyer with two deaf migrants. Syreeta Nolan’s pe","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"1 - 2"},"PeriodicalIF":2.4,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49526817","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-26DOI: 10.1080/09687599.2021.2007361
J. Haegele, A. Maher
Abstract In the United States (US), the drive to integrate, or mainstream, disabled students into the same educational settings as their non-disabled peers has resulted in disparate opportunities and experiences. With that, more autistic youth than ever before are expected to assimilate into systems that are often not considerate of their needs and capabilities. We use a creative non-fiction narrative, crafted from qualitative interview data generated with eight autistic youth from the US, to explore subjective feelings of inclusion in integrated physical education contexts. Through Caleb’s story, we explore the complexity of relationships and interactions between autistic youth and their peers and teachers in physical education, and how they may influence the ways and extent to which autistic youth experience feelings of belonging, value and acceptance in physical education spaces. We also consider the role of teacher expectations, curriculum decisions and pedagogical actions in shaping the PE experiences of autistic students. Points of interest This research explores autistic youths’ perspectives about their experiences in integrated PE contexts in the US and the inclusiveness of those experiences. Findings are presented in a story about Caleb, which shows what challenges within integrated physical education classes may look like from the perspective of autistic youth. Some autistic youth may experience challenges with the hyper-competitive culture often present in integrated physical education classes. Physical educators, like Mr. Jones, can exacerbate these challenges in physical education, perhaps unintentionally, by fostering competitive and physically aggressive behaviors. Caleb’s story highlights often unnoticed repercussions of being dumped into an integrated context, which include the (lack of) meaning he finds in his engagement in activities and (lack of) sense of belonging, acceptance, and value he finds in his overall experiences.
{"title":"A creative non-fiction account of autistic youth integrated physical education experiences","authors":"J. Haegele, A. Maher","doi":"10.1080/09687599.2021.2007361","DOIUrl":"https://doi.org/10.1080/09687599.2021.2007361","url":null,"abstract":"Abstract In the United States (US), the drive to integrate, or mainstream, disabled students into the same educational settings as their non-disabled peers has resulted in disparate opportunities and experiences. With that, more autistic youth than ever before are expected to assimilate into systems that are often not considerate of their needs and capabilities. We use a creative non-fiction narrative, crafted from qualitative interview data generated with eight autistic youth from the US, to explore subjective feelings of inclusion in integrated physical education contexts. Through Caleb’s story, we explore the complexity of relationships and interactions between autistic youth and their peers and teachers in physical education, and how they may influence the ways and extent to which autistic youth experience feelings of belonging, value and acceptance in physical education spaces. We also consider the role of teacher expectations, curriculum decisions and pedagogical actions in shaping the PE experiences of autistic students. Points of interest This research explores autistic youths’ perspectives about their experiences in integrated PE contexts in the US and the inclusiveness of those experiences. Findings are presented in a story about Caleb, which shows what challenges within integrated physical education classes may look like from the perspective of autistic youth. Some autistic youth may experience challenges with the hyper-competitive culture often present in integrated physical education classes. Physical educators, like Mr. Jones, can exacerbate these challenges in physical education, perhaps unintentionally, by fostering competitive and physically aggressive behaviors. Caleb’s story highlights often unnoticed repercussions of being dumped into an integrated context, which include the (lack of) meaning he finds in his engagement in activities and (lack of) sense of belonging, acceptance, and value he finds in his overall experiences.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1647 - 1666"},"PeriodicalIF":2.4,"publicationDate":"2021-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46059159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-20DOI: 10.1080/09687599.2021.2020495
Judy Dhanmatee Taklalsingh
Crip Time in Fin-de-siècle Spain examines how turn-of-the-twentieth-century authors used representations of disability to engage in urgent political questions about population control and the rights of individuals in the face of increasing medical intervention. Scholarship from scientific and economic disciplines of the time shaped expectations for health around ideas of national progress. The inability to satisfy work schedules and heteronormative life milestones simultaneously became threats to social progress and markers of disability. This project demonstrates that literary depictions of disability questioned medical and political discourses, while exploring the precarity of being healthy/able-bodied at a historical moment in which health and ability were defined in continuously narrowing terms.
《西班牙金融时报》（Fin de siècle Spain）的《Crip Time》探讨了二十世纪之交的作者如何利用残疾的表征，在日益增加的医疗干预面前，参与有关人口控制和个人权利的紧迫政治问题。来自当时科学和经济学科的奖学金围绕着国家进步的理念塑造了人们对健康的期望。无法满足工作时间表和不规范的生活里程碑同时成为社会进步的威胁和残疾的标志。该项目表明，对残疾的文学描述质疑了医学和政治话语，同时探索了在一个健康和能力被不断缩小定义的历史时刻，健康/健全的不确定性。
{"title":"Announcement of doctoral theses","authors":"Judy Dhanmatee Taklalsingh","doi":"10.1080/09687599.2021.2020495","DOIUrl":"https://doi.org/10.1080/09687599.2021.2020495","url":null,"abstract":"Crip Time in Fin-de-siècle Spain examines how turn-of-the-twentieth-century authors used representations of disability to engage in urgent political questions about population control and the rights of individuals in the face of increasing medical intervention. Scholarship from scientific and economic disciplines of the time shaped expectations for health around ideas of national progress. The inability to satisfy work schedules and heteronormative life milestones simultaneously became threats to social progress and markers of disability. This project demonstrates that literary depictions of disability questioned medical and political discourses, while exploring the precarity of being healthy/able-bodied at a historical moment in which health and ability were defined in continuously narrowing terms.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"161 - 161"},"PeriodicalIF":2.4,"publicationDate":"2021-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44496511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-16DOI: 10.1080/09687599.2021.1999793
Amel Said Houari, G. Hadjoui
Abstract The contemporary universal challenge of COVID-19 pandemic put more restrictions to disabled people’s social interaction. This paper reports qualitative findings from a short-term art therapy intervention for a person with West Syndrome to examine how art therapy can be used as a coping strategy with the psychological impact of confinement. The data were analysed using Cathy Malchiodi’s theory of ‘art in therapy’ and Edith Kramer’s theory of ‘art as therapy’. Findings from this study show that the use of art therapy as a coping strategy during the confinement period has clear benefits as it promotes emotional well-being and helps to reduce the mobility limitations caused by disability. The article concludes that art therapy can be used as an alternative way to cope with disability. It aims to positively impact parents and caregivers through highlighting new spots of action. Points of interest The article looks in detail at the real-life experiences of a disabled person during the period of home-confinement. Disabled people experience isolation from society and the home-confinement policies put more restrictions to their social interaction. Disabled people need to be involved in activities such as painting, drawing, colouring, singing and story-telling to better cope with confinement. This type of research is important because it can help caregivers improve the quality of personal assistance during the period of confinement.
{"title":"Disabled and confined: using art therapy as a coping strategy during the COVID-19 pandemic","authors":"Amel Said Houari, G. Hadjoui","doi":"10.1080/09687599.2021.1999793","DOIUrl":"https://doi.org/10.1080/09687599.2021.1999793","url":null,"abstract":"Abstract The contemporary universal challenge of COVID-19 pandemic put more restrictions to disabled people’s social interaction. This paper reports qualitative findings from a short-term art therapy intervention for a person with West Syndrome to examine how art therapy can be used as a coping strategy with the psychological impact of confinement. The data were analysed using Cathy Malchiodi’s theory of ‘art in therapy’ and Edith Kramer’s theory of ‘art as therapy’. Findings from this study show that the use of art therapy as a coping strategy during the confinement period has clear benefits as it promotes emotional well-being and helps to reduce the mobility limitations caused by disability. The article concludes that art therapy can be used as an alternative way to cope with disability. It aims to positively impact parents and caregivers through highlighting new spots of action. Points of interest The article looks in detail at the real-life experiences of a disabled person during the period of home-confinement. Disabled people experience isolation from society and the home-confinement policies put more restrictions to their social interaction. Disabled people need to be involved in activities such as painting, drawing, colouring, singing and story-telling to better cope with confinement. This type of research is important because it can help caregivers improve the quality of personal assistance during the period of confinement.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"22 - 37"},"PeriodicalIF":2.4,"publicationDate":"2021-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44606012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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