Currently, little research exists on disabilities among Native American communities and no research exists on how Native Americans perceive disabilities, services currently available, and unmet needs. Understanding these key areas is essential to providing efficacious and culturally relevant care. To address this gap in the literature, we used Indigenous research methodology through sharing circles throughout the state of Utah to listen and amplify the voices of the Native communities. Participants shared how they conceptualize “disability,” what they thought of current services, and how they thought the needs of Native persons with disabilities should be addressed. Four major themes emerged in the data: a culturally-based conceptualization of “disability,” barriers to services, belonging, and needed actions. These themes highlight the cultural strengths among Native communities surrounding disabilities and bring attention to systematic change needed to better address the needs of Native Americans with disabilities.
{"title":"Perceptions of disabilities among Native Americans within the state of Utah","authors":"Erica Ficklin, Melissa Tehee, Sherry Marx, Eduardo Ortiz, Megan Golson, Tyus Roanhorse","doi":"10.1080/09687599.2023.2195973","DOIUrl":"https://doi.org/10.1080/09687599.2023.2195973","url":null,"abstract":"Currently, little research exists on disabilities among Native American communities and no research exists on how Native Americans perceive disabilities, services currently available, and unmet needs. Understanding these key areas is essential to providing efficacious and culturally relevant care. To address this gap in the literature, we used Indigenous research methodology through sharing circles throughout the state of Utah to listen and amplify the voices of the Native communities. Participants shared how they conceptualize “disability,” what they thought of current services, and how they thought the needs of Native persons with disabilities should be addressed. Four major themes emerged in the data: a culturally-based conceptualization of “disability,” barriers to services, belonging, and needed actions. These themes highlight the cultural strengths among Native communities surrounding disabilities and bring attention to systematic change needed to better address the needs of Native Americans with disabilities.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"156 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135289311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-09DOI: 10.1080/09687599.2023.2198662
Poland Lai
Abstract This article offers the author’s personal reflections on the meaning of article 12 of the Convention on the Rights of Persons with Disabilities (CRP D) by drawing from the author’s experience as a carersupporter. Being recognised as someone who can make decisions is a fundamental human right. For many persons with disabilities, denial of such right is a fact of life. This article explores the issue of exercise of legal capacity as it affects older adults who live with significant cognitive and physical changes. The author highlights some of the complexities when professionals and carers such as family members have tremendous influences over older disabled adults’ decisions about care. It is argued that the State has an obligation to establish appropriate support measures for carers so that they possess the necessary capabilities and strengths to provide decision-making support to older disabled adults who accept such support in care settings.
{"title":"Autonomous care decisions: what can Article 12 of the CRPD offer to older disabled adults and their supporters?","authors":"Poland Lai","doi":"10.1080/09687599.2023.2198662","DOIUrl":"https://doi.org/10.1080/09687599.2023.2198662","url":null,"abstract":"Abstract This article offers the author’s personal reflections on the meaning of article 12 of the Convention on the Rights of Persons with Disabilities (CRP D) by drawing from the author’s experience as a carersupporter. Being recognised as someone who can make decisions is a fundamental human right. For many persons with disabilities, denial of such right is a fact of life. This article explores the issue of exercise of legal capacity as it affects older adults who live with significant cognitive and physical changes. The author highlights some of the complexities when professionals and carers such as family members have tremendous influences over older disabled adults’ decisions about care. It is argued that the State has an obligation to establish appropriate support measures for carers so that they possess the necessary capabilities and strengths to provide decision-making support to older disabled adults who accept such support in care settings.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1502 - 1507"},"PeriodicalIF":2.4,"publicationDate":"2023-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42157780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-05DOI: 10.1080/09687599.2023.2195968
Adriana Meneses Cancino, Pablo Barberán Marshall, Eduardo Vivanco Marchant
Abstract This article provides an overview of the constitution-making process currently developing in Chile from a disability perspective, focusing particularly on the process led by the so-called ‘Constitutional Convention’. First, we describe the measures taken to include persons with disabilities in the composition of the constitutional body tasked with writing the new constitution and how persons with disabilities could participate in the construction of disability as a constitutional matter. Then, we focus on several provisions of the proposal for the new constitution of Chile elaborated by the Constitutional Convention that refer to the rights of persons with disabilities. It is argued that although the proposal drafted by the Constitutional Convention was ultimately rejected, it must not be considered irrelevant to the constitutional protection of the rights of persons with disabilities in Chile. Both for substantive and procedural reasons, the constitutional process led by the Constitutional Convention offers solid ground to advance the rights of persons with disabilities as a constitutional issue.
{"title":"Disability in the Chilean constitutional process","authors":"Adriana Meneses Cancino, Pablo Barberán Marshall, Eduardo Vivanco Marchant","doi":"10.1080/09687599.2023.2195968","DOIUrl":"https://doi.org/10.1080/09687599.2023.2195968","url":null,"abstract":"Abstract This article provides an overview of the constitution-making process currently developing in Chile from a disability perspective, focusing particularly on the process led by the so-called ‘Constitutional Convention’. First, we describe the measures taken to include persons with disabilities in the composition of the constitutional body tasked with writing the new constitution and how persons with disabilities could participate in the construction of disability as a constitutional matter. Then, we focus on several provisions of the proposal for the new constitution of Chile elaborated by the Constitutional Convention that refer to the rights of persons with disabilities. It is argued that although the proposal drafted by the Constitutional Convention was ultimately rejected, it must not be considered irrelevant to the constitutional protection of the rights of persons with disabilities in Chile. Both for substantive and procedural reasons, the constitutional process led by the Constitutional Convention offers solid ground to advance the rights of persons with disabilities as a constitutional issue.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1496 - 1501"},"PeriodicalIF":2.4,"publicationDate":"2023-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46005552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-03-21DOI: 10.1080/09687599.2023.2192381
Michelle Lapierre
Abstract Disability among Latin American indigenous peoples is frequent and has particular characteristics. On the one hand, people understand and experience disability from their own worldview and cultural practices, but on the other hand, these cultural characteristics coexist with the reality of a disability produced by colonialism, colonization and forced assimilation into the states. Additionally, the socioeconomic conditions in which indigenous peoples live, as well as the political violence to which they are subjected, create a complex panorama that challenges disability studies to dialogue with other philosophies. Decoloniality, interculturality, epistemologies of the South, and indigenous thought can be approaches that discuss and problematize the study of disability in indigenous cultures from a more just and situated perspective.
{"title":"Disability and Latin American indigenous peoples","authors":"Michelle Lapierre","doi":"10.1080/09687599.2023.2192381","DOIUrl":"https://doi.org/10.1080/09687599.2023.2192381","url":null,"abstract":"Abstract Disability among Latin American indigenous peoples is frequent and has particular characteristics. On the one hand, people understand and experience disability from their own worldview and cultural practices, but on the other hand, these cultural characteristics coexist with the reality of a disability produced by colonialism, colonization and forced assimilation into the states. Additionally, the socioeconomic conditions in which indigenous peoples live, as well as the political violence to which they are subjected, create a complex panorama that challenges disability studies to dialogue with other philosophies. Decoloniality, interculturality, epistemologies of the South, and indigenous thought can be approaches that discuss and problematize the study of disability in indigenous cultures from a more just and situated perspective.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1276 - 1280"},"PeriodicalIF":2.4,"publicationDate":"2023-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44179168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-03-17DOI: 10.1080/09687599.2023.2190478
S. Brown
Abstract The dramatic increase in the use of online platforms for work and socialising during the early stages of the COVID-19 pandemic supported greater access for disabled people. However, three years in, online options to participate have dwindled or even disappeared entirely in some spaces. This article discusses the changes in online access and their impact, using personal experiences and reflections focused on the context of academia in the UK.
{"title":"Missed opportunities? Accessibility in ‘post-pandemic’ academia","authors":"S. Brown","doi":"10.1080/09687599.2023.2190478","DOIUrl":"https://doi.org/10.1080/09687599.2023.2190478","url":null,"abstract":"Abstract The dramatic increase in the use of online platforms for work and socialising during the early stages of the COVID-19 pandemic supported greater access for disabled people. However, three years in, online options to participate have dwindled or even disappeared entirely in some spaces. This article discusses the changes in online access and their impact, using personal experiences and reflections focused on the context of academia in the UK.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1271 - 1275"},"PeriodicalIF":2.4,"publicationDate":"2023-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46382993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-03-13DOI: 10.1080/09687599.2023.2181771
Subodha Thamali Laththuwa Handhi Galahitiyawa
Abstract The following is a short article about what motivates me to conduct my PhD research on disabled people and their livelihoods in Sri Lanka. In my PhD, I included disabled people to formulate my research aim and objectives. Involving disabled individuals in the research process ensures that the most pressing concerns are addressed, hence enhancing the quality of the research.
{"title":"‘That’s my journey’: what motivated me to conduct disability research?","authors":"Subodha Thamali Laththuwa Handhi Galahitiyawa","doi":"10.1080/09687599.2023.2181771","DOIUrl":"https://doi.org/10.1080/09687599.2023.2181771","url":null,"abstract":"Abstract The following is a short article about what motivates me to conduct my PhD research on disabled people and their livelihoods in Sri Lanka. In my PhD, I included disabled people to formulate my research aim and objectives. Involving disabled individuals in the research process ensures that the most pressing concerns are addressed, hence enhancing the quality of the research.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1084 - 1088"},"PeriodicalIF":2.4,"publicationDate":"2023-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46166628","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-03-12DOI: 10.1080/09687599.2023.2187542
Viji Kuppan
{"title":"Constellating home: trans and queer Asian American rhetorics","authors":"Viji Kuppan","doi":"10.1080/09687599.2023.2187542","DOIUrl":"https://doi.org/10.1080/09687599.2023.2187542","url":null,"abstract":"","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"899 - 900"},"PeriodicalIF":2.4,"publicationDate":"2023-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43322002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-03-07DOI: 10.1080/09687599.2023.2181770
Ebenezer Dassah, E. Bisung
Abstract Improving access to water, sanitation and hygiene (WASH) services in school settings is critical in addressing access disparities experienced by persons with disabilities. As such, the Sustainable Development Goals (SDGs) established ambitious targets which aim to achieve universal access to water and sanitation by 2030. Despite this, access to inclusive WASH services in schools remain a big challenge in many resource-constrained settings. This review seeks to examine access to WASH for persons with disabilities in school settings. We undertook a review to identify a wide range of evidence from peer-reviewed sources. We identified only two studies, and they revealed environmental, social and institutional barriers that negatively affect persons with disabilities’ access to WASH services. We concluded the review with a call for urgent attention to build on this knowledge base as well as practical steps to improve WASH service provision in school settings in low- and middle-income countries.
{"title":"Access to water, sanitation and hygiene (WASH) for persons with disabilities in school settings: A call for research","authors":"Ebenezer Dassah, E. Bisung","doi":"10.1080/09687599.2023.2181770","DOIUrl":"https://doi.org/10.1080/09687599.2023.2181770","url":null,"abstract":"Abstract Improving access to water, sanitation and hygiene (WASH) services in school settings is critical in addressing access disparities experienced by persons with disabilities. As such, the Sustainable Development Goals (SDGs) established ambitious targets which aim to achieve universal access to water and sanitation by 2030. Despite this, access to inclusive WASH services in schools remain a big challenge in many resource-constrained settings. This review seeks to examine access to WASH for persons with disabilities in school settings. We undertook a review to identify a wide range of evidence from peer-reviewed sources. We identified only two studies, and they revealed environmental, social and institutional barriers that negatively affect persons with disabilities’ access to WASH services. We concluded the review with a call for urgent attention to build on this knowledge base as well as practical steps to improve WASH service provision in school settings in low- and middle-income countries.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"893 - 898"},"PeriodicalIF":2.4,"publicationDate":"2023-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42838489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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