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Bearing (Aguantando) With Intimate Partner Violence: A Grounded Theory Study of Self-Silencing Among Hispanic Women Who Experienced Intimate Partner Violence. 承受(Aguantando)亲密伴侣暴力:关于曾遭受亲密伴侣暴力的西班牙裔女性自我沉默的基础理论研究》(A Ground Theory Study of Self-Silencing Among Hispanic Women Who Experienced Intimate Partner Violence.
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-06-01 Epub Date: 2024-01-18 DOI: 10.1177/10497323231225144
María José Baeza, Joseph P De Santis, Rosina Cianelli, Nicholas Metheny, Natalia Villegas

Hispanic women who experience intimate partner violence (IPV) face unique disparities. They have poorer health outcomes and are less likely to seek help than their non-Hispanic counterparts. When women remain in relationships where IPV occurs and refuse to disclose or seek treatment, they may resort to self-silencing, which can also worsen health outcomes. The purpose of this study was to develop a theory that explains how self-silencing evolves among Hispanic women who experience IPV. Participants were recruited from two research studies focused on Hispanic women's health, and from snowball sampling, which involved referrals by previously registered participants. Data were collected via Zoom® and included individual interviews. A total of 25 women participated in this study. Analysis followed constructive grounded theory levels of analysis described by Charmaz and constant comparative methods described by Glaser and Strauss. A grounded theory entitled Bearing (Aguantando) With Intimate Partner Violence emerged from the data. The theory explains the main strategy Hispanic women use to deal with violence while remaining in a relationship where IPV occurs. The theory is constructed of four categories with subcategories. The results of this study provide an initial framework to understand the self-silencing process among Hispanic women who experience IPV. In addition, this study identifies different levels of interventions that can be useful for researchers and healthcare providers to promote Hispanic women's ability to become empowered, use their voices, and seek help.

遭受亲密伴侣暴力 (IPV) 的西班牙裔妇女面临着独特的差异。与非西班牙裔妇女相比,她们的健康状况更差,寻求帮助的可能性也更小。当妇女仍然处于发生 IPV 的关系中,并拒绝披露或寻求治疗时,她们可能会采取自我沉默的方式,这也会使健康状况恶化。本研究的目的是建立一种理论,解释经历过 IPV 的西班牙裔女性是如何进行自我沉默的。研究人员从两项关注西班牙裔女性健康的研究中招募参与者,并通过 "滚雪球式 "抽样(由之前注册的参与者推荐)招募参与者。数据通过 Zoom® 收集,包括个别访谈。共有 25 名妇女参与了这项研究。分析遵循 Charmaz 所描述的建设性基础理论分析水平以及 Glaser 和 Strauss 所描述的恒定比较方法。从数据中得出了题为 "承受亲密伴侣暴力(Aguantando)"的基础理论。该理论解释了西班牙裔妇女在保持发生 IPV 的关系时应对暴力的主要策略。该理论由四个子类别构成。本研究的结果为了解遭受 IPV 的西语裔女性的自我沉默过程提供了一个初步框架。此外,本研究还确定了不同层次的干预措施,这些措施对于研究人员和医疗保健提供者促进西语裔女性增强能力、发出自己的声音和寻求帮助非常有用。
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引用次数: 0
"I Haven't Told Anyone but You": Experiences and Biopsychosocial Support Needs of People With Type 2 Diabetes and Binge Eating. "除了你,我没有告诉任何人":2型糖尿病和暴食患者的经历和生物心理社会支持需求。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-06-01 Epub Date: 2024-01-05 DOI: 10.1177/10497323231223367
Pil Lindgreen, Ingrid Willaing, Loa Clausen, Khalida Ismail, Helle Nergaard Grønbæk, Charlotte Humble Andersen, Frederik Persson, Bryan Cleal

Up to 25% of people with type 2 diabetes (T2D) may binge eat which is almost 10 times as many as in the general population. Binge eating is associated with depression, anxiety, and social isolation. Moreover, binge eating may increase the risk of obesity and high blood glucose levels, both of which can accelerate the onset of complications to diabetes and death in people with T2D. Still, little is known about the experiences, needs, and preferences of people with T2D and binge eating that can inform and develop current and future treatment efforts. The aim of the study was therefore to gain in-depth insights into the experiences and biopsychosocial support needs of women and men with T2D and binge eating. Twenty semi-structured individual interviews (65% with females) were conducted and analyzed according to the methodology of Interpretive Description. Four themes were identified: (a) T2D and binge eating: Feeling trapped in a vicious circle; (b) Unwanted outcasts: Responding to continuous criticism; (c) Biomedical relief: Blaming and adjusting the body; and, (d) Silent struggles: Wanting to cease the secrecy. Pertinent to all themes were the guilt, shame, and worries about developing complications that the participants experienced when binge eating despite having T2D. Although binge eating triggered emotional distress, binge eating was at the same time a way of coping with such distress. Implications for treatment and future research are discussed, including the need to systematically assess and address binge eating in routine T2D care.

多达 25% 的 2 型糖尿病(T2D)患者可能会暴饮暴食,几乎是普通人群的 10 倍。暴饮暴食与抑郁、焦虑和社交孤立有关。此外,暴饮暴食可能会增加肥胖和高血糖的风险,而肥胖和高血糖都会加速糖尿病并发症的发生,并导致 2 型糖尿病患者死亡。然而,人们对 T2D 患者和暴饮暴食者的经历、需求和偏好却知之甚少,而这些经历、需求和偏好可以为当前和未来的治疗工作提供信息并促进其发展。因此,本研究旨在深入了解患有 T2D 并暴饮暴食的女性和男性患者的经历和生物心理社会支持需求。研究人员进行了 20 次半结构式个人访谈(其中 65% 为女性),并根据解释性描述的方法进行了分析。共确定了四个主题(a) T2D 和暴饮暴食:感觉被困在恶性循环中;(b) 不受欢迎的弃儿:回应不断的批评;(c) 生物医学救济:指责和调整身体;以及 (d) 默默挣扎:希望停止隐瞒。与所有主题相关的是参与者在患有 T2D 的情况下暴饮暴食所经历的负罪感、羞耻感和对并发症的担忧。虽然暴饮暴食会引发情绪困扰,但同时暴饮暴食也是应对这种困扰的一种方式。本文讨论了暴饮暴食对治疗和未来研究的影响,包括在常规 T2D 护理中系统评估和解决暴饮暴食问题的必要性。
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引用次数: 0
Understanding Barriers and Facilitators to Living Kidney Donation Within a Sociotechnical Systems Framework. 在社会技术系统框架内了解活体肾脏捐献的障碍和促进因素。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-06-01 Epub Date: 2024-01-16 DOI: 10.1177/10497323231224706
Rachel Crenshaw, Cary Woods, Naoru Koizumi, Hitarth S Dave, Monica Gentili, Jason J Saleem

The objective of this study was to investigate factors influencing one's decision to become a live kidney donor under the framework of sociotechnical systems, by expanding the focus to include larger organizational influences and technological considerations. Semi-structured interviews were conducted with live kidney donors who donated through University of Louisville Health, Trager Transplant Center, a mid-scale transplant program, in the years 2017 through 2019. The interview transcripts were analyzed for barriers and facilitators to live kidney donation within a sociotechnical system. The most salient facilitators included: having an informative, caring, and available care team; the absence of any negative external pressure toward donating; donating to a family or friend; and the ability to take extra time off work for recovery. The most recurrent barriers included: short/medium-term (<1 year) negative health impacts because of donation; the need to make minor lifestyle changes (e.g., less alcohol consumption) after donation; and mental health deterioration stemming from the donation process. The sociotechnical systems framework promotes a balanced system comprised of social, technical, and environmental subsystems. Assessing the facilitators and barriers from the sociotechnical system perspective revealed the importance of and opportunities for developing strategies to promote integration of technical subsystem, such as social media apps and interactive AI platforms, with social and environmental subsystems to enable facilitators and reduce barriers effectively.

本研究的目的是在社会技术系统的框架下,调查影响一个人决定成为活体肾脏捐献者的因素,将重点扩大到更大的组织影响和技术考虑因素。研究人员对 2017 年至 2019 年期间通过路易斯维尔大学特拉格移植中心(一个中等规模的移植项目)捐献肾脏的活体捐献者进行了半结构化访谈。对访谈记录进行了分析,以了解在社会技术系统中活体肾脏捐献的障碍和促进因素。最突出的促进因素包括:拥有一个信息丰富、关怀备至、随时可用的护理团队;在捐献方面没有任何负面的外部压力;捐献给家人或朋友;能够请额外的假进行恢复。最经常出现的障碍包括:短期/中期 (
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引用次数: 0
Adult Burn Survivors and Burn Care Staff Perceptions Regarding Transitioning From the Burn Unit: A Cross-Country Qualitative Study in Ghana and China. 成年烧伤幸存者和烧伤护理人员对从烧伤科过渡的看法:加纳和中国的跨国定性研究。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-06-01 Epub Date: 2024-01-11 DOI: 10.1177/10497323231224378
Jonathan Bayuo, Frances Kam Yuet Wong, Wang Yi, Loretta Yuet Foon Chung

Rehabilitative care for burn patients in developing countries is often wrought with several issues. Post-discharge support is equally challenging as there is often limited rehabilitative care as the burn survivors and their families transition. To inform practice, this study sought to explore the perspectives of adult burn survivors and burn care staff regarding transitioning from the burn unit and the development of a transitional rehabilitation programme. We employed interpretive description for this study. Semi-structured face-to-face interviews were conducted with adult burn survivors and burn care staff across two tertiary healthcare facilities in Lanzhou, Gansu Province of China, and Ghana. The thematic analytical approach was employed to analyse the data. Forty-six participants comprising 26 adult burn survivors and 20 burn care staff participated in this study. Two themes and five subthemes emerged from the data. Transitioning from the burn unit to the home was described as complex with varied biopsychosocial needs emerging. However, available support was not comprehensive to resolve these needs. Existing pre-discharge support is limited across both settings. Burn survivors expressed interest in taking on an active role in the rehabilitation process and being able to self-manage their post-burn symptoms following discharge. Transitional rehabilitative support should include an active follow-up system, ensure patient- and family-centred support, and offer a bundle of comprehensive rehabilitative services using locally available items which do not financially burden burn survivors and their families. In conclusion, transitioning from the burn unit is filled with varied health needs. Transitional rehabilitative care is required to bridge the pre-discharge and post-discharge periods.

在发展中国家,烧伤病人的康复护理往往面临诸多问题。出院后的支持也同样具有挑战性,因为在烧伤幸存者及其家人过渡期间,康复护理往往非常有限。为了为实践提供参考,本研究试图探讨成年烧伤幸存者和烧伤护理人员对从烧伤科过渡到过渡性康复计划的看法。本研究采用了解释性描述方法。我们在中国甘肃省兰州市和加纳的两家三级医疗机构对成年烧伤幸存者和烧伤护理人员进行了半结构化面对面访谈。采用主题分析法对数据进行分析。共有 46 人参与了本研究,其中包括 26 名成年烧伤幸存者和 20 名烧伤护理人员。数据中出现了两个主题和五个次主题。从烧伤科过渡到家庭治疗被描述为一个复杂的过程,其中出现了各种生物心理社会需求。然而,现有的支持并不能全面解决这些需求。在这两种情况下,现有的出院前支持都很有限。烧伤幸存者表示有兴趣在康复过程中发挥积极作用,并在出院后能够自我管理烧伤后的症状。过渡性康复支持应包括一个积极的随访系统,确保以患者和家属为中心的支持,并利用当地可用的物品提供一揽子综合康复服务,从而减轻烧伤幸存者及其家属的经济负担。总之,从烧伤科过渡到其他科室需要满足各种健康需求。需要提供过渡性康复护理,以衔接出院前和出院后的阶段。
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引用次数: 0
Prompts, Pearls, Imperfections: Comparing ChatGPT and a Human Researcher in Qualitative Data Analysis. 提示、珍珠、不完美:比较定性数据分析中的 ChatGPT 和人类研究员。
IF 3.2 2区 医学 Q1 Medicine Pub Date : 2024-05-22 DOI: 10.1177/10497323241244669
Jonas Wachinger, Kate Bärnighausen, Louis N Schäfer, Kerry Scott, Shannon A McMahon

The impact of ChatGPT and other large language model-based applications on scientific work is being debated across contexts and disciplines. However, despite ChatGPT's inherent focus on language generation and processing, insights regarding its potential for supporting qualitative research and analysis remain limited. In this article, we advocate for an open discourse on chances and pitfalls of AI-supported qualitative analysis by exploring ChatGPT's performance when analyzing an interview transcript based on various prompts and comparing results to those derived by an experienced human researcher. Themes identified by the human researcher and ChatGPT across analytic prompts overlapped to a considerable degree, with ChatGPT leaning toward descriptive themes but also identifying more nuanced dynamics (e.g., 'trust and responsibility' and 'acceptance and resistance'). ChatGPT was able to propose a codebook and key quotes from the transcript which had considerable face validity but would require careful review. When prompted to embed findings into broader theoretical discourses, ChatGPT could convincingly argue how identified themes linked to the provided theories, even in cases of (seemingly) unfitting models. In general, despite challenges, ChatGPT performed better than we had expected, especially on identifying themes which generally overlapped with those of an experienced researcher, and when embedding these themes into specific theoretical debates. Based on our results, we discuss several ideas on how ChatGPT could contribute to but also challenge established best-practice approaches for rigorous and nuanced qualitative research and teaching.

关于 ChatGPT 和其他基于大型语言模型的应用程序对科学工作的影响,目前正在不同背景和学科之间展开讨论。然而,尽管 ChatGPT 本身侧重于语言生成和处理,但对其支持定性研究和分析的潜力的见解仍然有限。在本文中,我们通过探索 ChatGPT 在分析基于各种提示的访谈记录时的表现,并将结果与经验丰富的人类研究人员得出的结果进行比较,倡导就人工智能支持的定性分析的机会和陷阱展开公开讨论。人类研究员和 ChatGPT 根据分析提示确定的主题在很大程度上是重叠的,ChatGPT 倾向于描述性主题,但也能确定更细微的动态(如 "信任与责任 "和 "接受与抵制")。ChatGPT 能够提出一个代码集和记录誊本中的关键引文,这些代码集和引文具有相当高的表面效度,但需要仔细审查。当被要求将研究结果纳入更广泛的理论论述时,ChatGPT 能够令人信服地论证所确定的主题如何与所提供的理论相联系,即使是在(看似)不合适的模型的情况下。总的来说,尽管存在挑战,但 ChatGPT 的表现比我们预期的要好,尤其是在确定与经验丰富的研究人员的研究主题相重叠的主题,以及将这些主题嵌入到具体的理论辩论中时。基于我们的研究结果,我们讨论了 ChatGPT 如何为严谨、细致的定性研究和教学提供既有的最佳实践方法,同时也对其提出挑战的几个想法。
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引用次数: 0
A Qualitative Study Into the Relative Stigmatization of Mental Illness by Mental Health Professionals. 心理健康专业人员对精神疾病的相对污名化定性研究。
IF 3.2 2区 医学 Q1 Medicine Pub Date : 2024-05-20 DOI: 10.1177/10497323241238618
Michael Jauch, Stefano Occhipinti, Analise O'Donovan, Bonnie Clough

Mental health professionals stigmatize mental illness, which has significant ramifications for public health and policy. Within this domain, there is a lack of comprehensive research on relative stigma, emotions, and behaviors and an absence of literature that can guide research on these topics. The current study sought to address these limitations. Unstructured interviews were conducted with 22 mental health professionals, and data were analyzed using a grounded theory approach. The current study identified a collection of mental disorders (e.g., borderline personality disorder), stereotypes (e.g., dangerousness), emotion-related responses (e.g., fear), and behaviors (e.g., helping) as being key to the relative stigmatization of mental illness by mental health professionals. The results also suggested that professional context and familiarity with mental illness decrease the stigmatization of mental illness by mental health professionals. These variables and constructs were combined to form a grounded theory of mental health professionals stigmatizing mental illness. The current study has implications for the direction of future research on the stigmatization of mental illness by mental health professionals and interventions that strive to mitigate this type of stigmatization.

心理健康专业人员对精神疾病的污名化,对公共卫生和政策产生了重大影响。在这一领域中,缺乏对相对污名化、情绪和行为的全面研究,也缺乏可以指导这些主题研究的文献。本研究试图解决这些局限性。研究人员对 22 名心理健康专业人员进行了非结构化访谈,并采用基础理论方法对数据进行了分析。本研究发现,精神障碍(如边缘型人格障碍)、刻板印象(如危险性)、与情绪相关的反应(如恐惧)和行为(如帮助)是精神卫生专业人员对精神疾病进行相对污名化的关键。研究结果还表明,专业背景和对精神疾病的熟悉程度会减少精神卫生专业人员对精神疾病的鄙视。这些变量和建构相结合,形成了精神卫生专业人员鄙视精神疾病的基础理论。当前的研究对未来有关精神卫生专业人员对精神疾病的鄙视的研究方向以及努力减轻这种鄙视的干预措施具有重要意义。
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引用次数: 0
Striving for Improved Infection Prevention and Control Practice: A Grounded Theory of Healthcare Workers' Struggles in Implementing Infection Prevention and Control Guidance in Uganda. 努力改进感染预防与控制实践:乌干达医护人员在实施感染预防与控制指南过程中的挣扎的基础理论》(A Ground Theory of Healthcare Workers' Struggles in Implementing Infection Prevention and Control Guidance in Uganda)。
IF 3.2 2区 医学 Q1 Medicine Pub Date : 2024-05-20 DOI: 10.1177/10497323241242660
Andrew O Kalule, Kay Currie, Lesley Price

There is a scarcity of qualitative research focusing on the implementation of infection prevention and control (IPC) guidance in low-income countries. This study aimed to address this gap by exploring the perspectives of healthcare workers (HCWs) regarding the implementation of IPC guidance at the healthcare facility level in Uganda. The study also sought to generate a theoretical understanding of the processes involved in implementing IPC guidance in these settings. This robust qualitative research employed a design based on constructivist grounded theory methodology, conducting individual interviews with 13 frontline health workers such as doctors, nurses, nurse interns, and laboratory staff. The key findings of the study revealed that HCWs undergo a process of 'striving for improved practice' in their efforts to implement IPC guidance. This process involved four phases: recognising the importance of IPC, playing a role, encountering challenges, and overcoming challenges. However, achieving full implementation proved difficult due to various individual and organisational barriers presented by the low-income setting. HCWs employed improvisation as a means to overcome these obstacles. Additionally, the study identified enabling factors that facilitated the implementation of IPC guidance within these settings. This study is significant as it applies robust qualitative research methods to provide valuable evidence of HCWs' perspectives on an important topic in an under-researched context, with findings transferable to similar settings.

针对低收入国家实施感染预防与控制 (IPC) 指南的定性研究十分稀少。本研究旨在通过探讨乌干达医疗机构中医护人员(HCWs)对实施 IPC 指南的看法来填补这一空白。本研究还试图从理论上理解在这些环境中实施 IPC 指南的过程。这项稳健的定性研究采用了基于建构主义基础理论方法的设计,对 13 名一线卫生工作者(如医生、护士、实习护士和实验室工作人员)进行了个别访谈。研究的主要结果显示,医护人员在努力实施 IPC 指南的过程中经历了一个 "努力改进实践 "的过程。这一过程包括四个阶段:认识到 IPC 的重要性、发挥作用、遇到挑战和克服挑战。然而,由于低收入环境给个人和组织带来的各种障碍,要实现全面实施非常困难。医护人员采用了即兴表演的方式来克服这些障碍。此外,研究还发现了在这些环境中促进实施 IPC 指南的有利因素。这项研究意义重大,因为它采用了强有力的定性研究方法,为医护人员在研究不足的背景下对一个重要主题的看法提供了宝贵的证据,而且研究结果也可应用于类似的环境中。
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引用次数: 0
Performances of Hope and Despair: A Case Study of Organ Donation Between a Palestinian and Israeli Jew Amidst War. 希望与绝望的表演:战争中巴勒斯坦犹太人和以色列犹太人器官捐赠案例研究》。
IF 3.2 2区 医学 Q1 Medicine Pub Date : 2024-05-17 DOI: 10.1177/10497323241238919
Ayelet Oreg, Shirley Ben Shlomo
We explore the phenomenon of organ donation between rivals in time of war when a significant gift such as organ donation is given not just to a "stranger" but to a stranger who may be considered an enemy. This is a case study of a unique organ donation event that occurred in Israel during Operation Guardian of the Walls in May 2021. It involved a Palestinian boy killed by a Jewish policeman and a Jewish man killed by Palestinian youths. Both victims, lacking organ donor cards, had their organs donated by their families with the awareness that recipients could come from the "opposing" group. We ask: (1) How do families from rival groups construct meaning in their decision to donate organs? (2) How do they construct meaning in their experience of loss? The findings reveal that bereaved families imbue their actions with political and religious significance, framing the organ donations as a "universal gift" guided by religious commandments to save lives. While these acts initially transcend cultural and national boundaries, a lack of recognition and gratitude afterward can lead to disillusionment, reinforcing "us" versus "them" boundaries. This study underscores the intricate dynamics in organ donations during political conflict and the pivotal role of religious authorities in shaping perceptions and meaning. Moreover, it highlights the potential for organ donations to foster reconciliation and coexistence amidst conflict, provided mutual recognition in cases where compassion and understanding of loss are prioritized.
我们探讨了战争时期对手之间的器官捐献现象,即器官捐献这样的重要礼物不仅要捐献给 "陌生人",还要捐献给可能被视为敌人的陌生人。这是一项关于 2021 年 5 月 "长城守护者行动 "期间发生在以色列的独特器官捐献事件的案例研究。事件涉及一名巴勒斯坦男孩被一名犹太警察杀害,一名犹太男子被巴勒斯坦青年杀害。这两名受害者都没有器官捐献卡,他们的家人捐献了他们的器官,因为他们知道接受者可能来自 "对立 "群体。我们的问题是:(1) 来自对立群体的家庭如何构建他们决定捐赠器官的意义? (2) 他们如何构建他们失去亲人的经历的意义?研究结果表明,失去亲人的家庭将他们的行为赋予了政治和宗教意义,将器官捐赠视为在宗教戒律指导下拯救生命的 "普世礼物"。虽然这些行为最初超越了文化和国界,但事后缺乏认可和感激会导致失望,从而强化 "我们 "与 "他们 "的界限。本研究强调了政治冲突期间器官捐赠的复杂动态,以及宗教权威在塑造观念和意义方面的关键作用。此外,它还强调了器官捐赠在冲突中促进和解与共存的潜力,在同情和理解损失被放在首位的情况下提供相互承认。
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引用次数: 0
Performances of Hope and Despair: A Case Study of Organ Donation Between a Palestinian and Israeli Jew Amidst War. 希望与绝望的表演:战争中巴勒斯坦犹太人和以色列犹太人器官捐赠案例研究》。
IF 3.2 2区 医学 Q1 Medicine Pub Date : 2024-05-17 DOI: 10.1177/10497323241238919
Ayelet Oreg, Shirley Ben Shlomo

We explore the phenomenon of organ donation between rivals in time of war when a significant gift such as organ donation is given not just to a "stranger" but to a stranger who may be considered an enemy. This is a case study of a unique organ donation event that occurred in Israel during Operation Guardian of the Walls in May 2021. It involved a Palestinian boy killed by a Jewish policeman and a Jewish man killed by Palestinian youths. Both victims, lacking organ donor cards, had their organs donated by their families with the awareness that recipients could come from the "opposing" group. We ask: (1) How do families from rival groups construct meaning in their decision to donate organs? (2) How do they construct meaning in their experience of loss? The findings reveal that bereaved families imbue their actions with political and religious significance, framing the organ donations as a "universal gift" guided by religious commandments to save lives. While these acts initially transcend cultural and national boundaries, a lack of recognition and gratitude afterward can lead to disillusionment, reinforcing "us" versus "them" boundaries. This study underscores the intricate dynamics in organ donations during political conflict and the pivotal role of religious authorities in shaping perceptions and meaning. Moreover, it highlights the potential for organ donations to foster reconciliation and coexistence amidst conflict, provided mutual recognition in cases where compassion and understanding of loss are prioritized.

我们探讨了战争时期对手之间的器官捐献现象,即器官捐献这样的重要礼物不仅要捐献给 "陌生人",还要捐献给可能被视为敌人的陌生人。这是一项关于 2021 年 5 月 "长城守护者行动 "期间发生在以色列的独特器官捐献事件的案例研究。事件涉及一名巴勒斯坦男孩被一名犹太警察杀害,一名犹太男子被巴勒斯坦青年杀害。这两名受害者都没有器官捐献卡,他们的家人捐献了他们的器官,因为他们知道接受者可能来自 "对立 "群体。我们的问题是:(1) 来自对立群体的家庭如何构建他们决定捐赠器官的意义? (2) 他们如何构建他们失去亲人的经历的意义?研究结果表明,失去亲人的家庭将他们的行为赋予了政治和宗教意义,将器官捐赠视为在宗教戒律指导下拯救生命的 "普世礼物"。虽然这些行为最初超越了文化和国界,但事后缺乏认可和感激会导致失望,从而强化 "我们 "与 "他们 "的界限。本研究强调了政治冲突期间器官捐赠的复杂动态,以及宗教权威在塑造观念和意义方面的关键作用。此外,它还强调了器官捐赠在冲突中促进和解与共存的潜力,在同情和理解损失被放在首位的情况下提供相互承认。
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引用次数: 0
Cultural Influences on Making Nutritional Adjustments in Type 2 Diabetes in Pakistan: The Perspectives of People Living With Diabetes and Their Family Members. 巴基斯坦 2 型糖尿病患者营养调整的文化影响:糖尿病患者及其家人的观点。
IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Pub Date : 2024-05-01 Epub Date: 2023-12-22 DOI: 10.1177/10497323231219392
Omama Tariq, Claire Rosten, Jörg Huber

In Pakistan, type 2 diabetes is widespread, and although dietary recommendations from healthcare professionals are critical to its treatment, cultural norms can have a great influence on the dietary habits of people living with diabetes (PLwD). Understanding the social aspects of the lives of PLwD is crucial when examining the effectiveness of nutritional recommendations and adjustments. This study investigated (1) how PLwD and their family members adjust their nutrition to the recommendations of healthcare professionals to manage type 2 diabetes mellitus (T2DM) and (2) what do PLwD and their family members perceive as enablers and barriers to the necessary nutritional adjustments for managing T2DM. Prime consideration was given to experiences of living in Pakistan as the cultural context. Semi-structured interviews were conducted with 30 PLwD and 17 family members; the data were analysed thematically. Three themes emerged: (i) 'Influence of family system, gender, and age on meals prepared at home': family hierarchy and opinions based on gender and age can enable or hinder nutritional adjustment in meals prepared at home; (ii) 'Temptations of "unhealthy" foods, festivals, cultural interactions, and social etiquette': family/social interactions at home, gatherings, or festivities can affect PLwD's ability to resist temptations to eat foods prohibited by healthcare professionals; and (iii) 'Folk knowledge, folk remedy, and the balance between culture and Western medicine': PLwD and their family members in Pakistan hold strong beliefs concerning foods' medicinal properties. Power dynamics within families need to be considered when making nutritional recommendations. Medical guidelines should acknowledge personal agency and cultural beliefs.

在巴基斯坦,2 型糖尿病非常普遍,尽管医护人员的饮食建议对其治疗至关重要,但文化规范对糖尿病患者(PLwD)的饮食习惯也有很大影响。在研究营养建议和调整的有效性时,了解糖尿病患者生活的社会方面至关重要。本研究调查了:(1)糖尿病患者及其家人如何根据医护人员的建议调整营养,以控制 2 型糖尿病(T2DM);(2)糖尿病患者及其家人如何看待为控制 T2DM 而进行必要营养调整的促进因素和障碍。在文化背景方面,主要考虑了在巴基斯坦生活的经历。对 30 名 PLwD 和 17 名家庭成员进行了半结构式访谈,并对数据进行了专题分析。得出了三个主题:(i) "家庭制度、性别和年龄对在家准备膳食的影响":基于性别和年龄的家庭等级制度和观点可促进或阻碍在家准备膳食时的营养调整;(ii)"'不健康'食物的诱惑、节日、文化互动和社交礼仪":在家中的家庭/社交互动、聚会或节庆活动会影响 PLwD 抵御诱惑的能力,使其进食医护人员禁止的食物;以及 (iii) "民间知识、民间疗法以及文化与西医之间的平衡":巴基斯坦的 PLwD 及其家人对食物的药用特性持有强烈的信念。在提出营养建议时,需要考虑家庭内部的权力动态。医疗指南应承认个人的作用和文化信仰。
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Qualitative Health Research
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