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'Personal Health Surveillance': The Use of mHealth in Healthcare Responsibilisation. “个人健康监测”:移动医疗在医疗责任中的应用
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-05-16 eCollection Date: 2021-11-01 DOI: 10.1093/phe/phab013
Ben Davies

There is an ongoing increase in the use of mobile health (mHealth) technologies that patients can use to monitor health-related outcomes and behaviours. While the dominant narrative around mHealth focuses on patient empowerment, there is potential for mHealth to fit into a growing push for patients to take personal responsibility for their health. I call the first of these uses 'medical monitoring', and the second 'personal health surveillance'. After outlining two problems which the use of mHealth might seem to enable us to overcome-fairness of burdens and reliance on self-reporting-I note that these problems would only really be solved by unacceptably comprehensive forms of personal health surveillance which applies to all of us at all times. A more plausible model is to use personal health surveillance as a last resort for patients who would otherwise independently qualify for responsibility-based penalties. However, I note that there are still a number of ethical and practical problems that such a policy would need to overcome. The prospects of mHealth enabling a fair, genuinely cost-saving policy of patient responsibility are slim.

移动健康(mHealth)技术的使用正在持续增加,患者可以使用该技术来监测与健康相关的结果和行为。虽然围绕mHealth的主流叙事侧重于患者赋权,但mHealth有可能融入越来越多的推动患者对自己的健康承担个人责任的行列。我把第一种用途称为“医疗监测”,第二种用途则称为“个人健康监测”。在概述了mHealth的使用似乎使我们能够克服负担的公平性和对自我报告的依赖的两个问题之后,我注意到,只有通过适用于我们所有人的不可接受的全面的个人健康监测形式,这些问题才能真正得到解决。一个更合理的模式是将个人健康监测作为患者的最后手段,否则这些患者将独立获得基于责任的处罚。然而,我注意到,这种政策仍然需要克服一些道德和实际问题。mHealth制定公平、真正节约成本的患者责任政策的前景渺茫。
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引用次数: 7
Afro-Communitarianism and the Role of Traditional African Healers in the COVID-19 Pandemic 非洲社群主义与非洲传统治疗师在2019冠状病毒病大流行中的作用
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-03-20 DOI: 10.1093/phe/phab006
L. Cordeiro‐Rodrigues, Thaddeus Metz
Abstract The COVID-19 pandemic has brought significant challenges to healthcare systems worldwide, and in Africa, given the lack of resources, they are likely to be even more acute. The usefulness of Traditional African Healers in helping to mitigate the effects of pandemic has been neglected. We argue from an ethical perspective that these healers can and should have an important role in informing and guiding local communities in Africa on how to prevent the spread of COVID-19. Particularly, we argue not only that much of the philosophy underlying Traditional African Medicine is adequate and compatible with preventive measures for COVID-19, but also that Traditional African Healers have some unique cultural capital for influencing and enforcing such preventive measures. The paper therefore suggests that not only given the cultural context of Africa where Traditional African Healers have a special role, but also because of the normative strength of the Afro-communitarian philosophy that informs it, there are good ethical reasons to endorse policies that involve Traditional Healers in the fight against COVID-19. We also maintain that concerns about Traditional African Healers objectionably violating patient confidentiality or being paternalistic are much weaker in the face of COVID-19.
2019冠状病毒病大流行给全球卫生保健系统带来了重大挑战,而在非洲,由于缺乏资源,这些挑战可能更加严峻。非洲传统治疗师在帮助减轻流行病影响方面的作用被忽视了。我们认为,从伦理角度来看,这些治疗者可以而且应该在告知和指导非洲当地社区如何预防COVID-19传播方面发挥重要作用。特别是,我们认为,不仅非洲传统医学的大部分基础哲学是充分的,与COVID-19的预防措施兼容,而且非洲传统治疗师在影响和执行这些预防措施方面拥有一些独特的文化资本。因此,本文认为,不仅考虑到非洲传统治疗师发挥特殊作用的文化背景,而且考虑到这种文化背景所体现的非洲社群主义哲学的规范性力量,我们有充分的道德理由支持让传统治疗师参与抗击COVID-19的政策。我们还认为,面对COVID-19,对传统非洲治疗师违反患者保密或家长式作风的担忧要弱得多。
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引用次数: 4
Nipping Diseases in the Bud? Ethical and Social Considerations of the Concept of 'Disease Interception'. 把疾病消灭在萌芽状态?“疾病拦截”概念的伦理和社会考虑。
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-03-15 eCollection Date: 2021-04-01 DOI: 10.1093/phe/phaa036
Jonas Narchi, Eva C Winkler

'Disease interception' describes the treatment of a disease in its clinically inapparent phase and is increasingly used in medical literature. However, no precise definition, much less an ethical evaluation, has been developed yet. This article starts with a definition of 'disease interception' by distinguishing it from other preventions. It then analyses the ethical and social implications of the concept in light of the four principles of medical ethics by Beauchamp and Childress. The term 'disease interception' refers to a form of secondary prevention applied in a short interception window intended to prevent a preclinical disease from developing further. We propose the definition 'early and targeted secondary prevention by treatment'. The ethical evaluation of the concept shows that while it promises to be beneficial, it raises a number of ethical and social challenges regarding patient autonomy and justice. In order to ensure decision-making that respects patient autonomy, commercially motivated metaphors such as 'disease interception' should make way for precise definitions. Future research should not only focus on how to detect clinically inapparent diseases but also on the ethical question, when this is justifiable and what consequences it has for the individual and society as a whole.

“疾病拦截”描述了在临床不明显阶段对疾病的治疗,在医学文献中越来越多地使用。然而,目前还没有精确的定义,更不用说道德评价了。本文首先将“疾病拦截”的定义与其他预防区分开来。然后,根据比彻姆和柴尔德里斯提出的医学伦理四原则,分析了这一概念的伦理和社会含义。术语“疾病拦截”是指在短期拦截窗口中应用的一种二级预防形式,旨在防止临床前疾病进一步发展。我们提出了“通过治疗进行早期和有针对性的二级预防”的定义。对这一概念的伦理评估表明,虽然它有望有益,但它在患者自主和正义方面提出了一些伦理和社会挑战。为了确保决策尊重患者的自主权,诸如“疾病拦截”之类出于商业动机的隐喻应该让位于精确的定义。未来的研究不仅应该关注如何检测临床不明显的疾病,还应该关注伦理问题,什么时候这样做是合理的,以及它对个人和整个社会会产生什么后果。
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引用次数: 0
Friedman Howard Steven. Ultimate Price: The Value We Place on Life 弗里德曼-霍华德-史蒂文。终极价格:我们对生活的价值
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-02-28 DOI: 10.1093/PHE/PHAB007
L. Fleck
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引用次数: 0
Mental wellbeing in a pandemic: the role of solidarity and care 疫情中的心理健康:团结和关怀的作用
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-02-23 DOI: 10.1093/phe/phab005
Hui Yun Chan
Abstract COVID-19 deeply affects many spheres of life. Lockdown measures implemented worldwide have accentuated mental wellbeing changes in the population from the perspectives of space and social relations. These changes leave lasting imprints on individuals and communities. This article draws upon solidarity and care ethics in exploring their role in rebuilding mental wellbeing in the light of constraints arising from lockdown. The diversity of responses to physical and social isolation during the pandemic illuminates the distinctly relational nature of human beings, offering the opportunity for care and solidarity to respond to mental wellbeing challenges in an inclusive and context-sensitive way.
摘要新冠肺炎深刻影响了生活的许多领域。世界各地实施的封锁措施从空间和社会关系的角度强调了人口心理健康的变化。这些变化给个人和社区留下了持久的印记。这篇文章借鉴了团结和护理伦理,探讨了在封锁带来的限制下,他们在重建心理健康方面的作用。在疫情期间,对身体和社会隔离的反应多种多样,这说明了人类明显的关系本质,为照顾和团结提供了机会,以包容和敏感的方式应对心理健康挑战。
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引用次数: 12
The Ethics of Stigma in Medical Male Circumcision Initiatives Involving Adolescents in Sub-Saharan Africa. 涉及撒哈拉以南非洲青少年的医疗男性包皮环切倡议中的耻辱伦理。
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-02-13 eCollection Date: 2021-04-01 DOI: 10.1093/phe/phab004
Stuart Rennie, Adam Gilbertson, Denise Hallfors, Winnie K Luseno

Ongoing global efforts to circumcise adolescent and adult males to reduce their risk of acquiring HIV constitute the largest public health prevention initiative, using surgical means, in human history. Voluntary medical male circumcision (VMMC) programs in Africa have significantly altered social norms related to male circumcision among previously non-circumcising groups and groups that have practiced traditional (non-medical) circumcision. One consequence of this change is the stigmatization of males who, for whatever reason, remain uncircumcised. This paper discusses the ethics of stigma with regard to uncircumcised adolescent males in global VMMC programs, particularly in certain recruitment, demand creation and social norm interventions. Grounded in our own experiences gained while conducting HIV-related ethics research with adolescents in Kenya, we argue that use of explicit or implicit stigma to increase the number of VMMC volunteers is unethical from a public health ethics perspective, particularly in campaigns that leverage social norms of masculinity. Ongoing global efforts to circumcise adolescent and adult males to reduce their risk of acquiring HIV constitute the largest public health prevention initiative, using surgical means, in human history. VMMC programs in Africa have significantly altered social norms related to male circumcision among previously non-circumcising groups and groups that have practiced traditional (non-medical) circumcision. One consequence of this change is the stigmatization of males who, for whatever reason, remain uncircumcised. This paper discusses the ethics of stigma with regard to uncircumcised adolescent males in global VMMC programs, particularly in certain recruitment, demand creation and social norm interventions. Grounded in our own experiences gained while conducting HIV-related ethics research with adolescents in Kenya, we argue that use of explicit or implicit stigma to increase the number of VMMC volunteers is unethical from a public health ethics perspective, particularly in campaigns that leverage social norms of masculinity.

目前全球正在努力为青少年和成年男子进行包皮环切手术,以减少他们感染艾滋病毒的风险,这是人类历史上使用外科手段进行的最大的公共卫生预防行动。自愿医疗男性包皮环切(VMMC)项目在非洲显著地改变了与男性包皮环切相关的社会规范,在以前没有包皮环切的群体和实行传统(非医疗)包皮环切的群体中。这种变化的后果之一是,无论出于何种原因,未割包皮的男性都被污名化。本文讨论了全球VMMC项目中未割包皮的青少年男性的耻辱伦理,特别是在某些招募,需求创造和社会规范干预方面。根据我们在肯尼亚对青少年进行艾滋病毒相关伦理研究时获得的经验,我们认为,从公共卫生伦理的角度来看,使用显性或隐性耻辱来增加自愿自愿医疗服务志愿者的数量是不道德的,特别是在利用男性气概社会规范的运动中。目前全球正在努力为青少年和成年男子进行包皮环切手术,以减少他们感染艾滋病毒的风险,这是人类历史上使用外科手段进行的最大的公共卫生预防行动。非洲的VMMC项目显著地改变了以前未行包皮环切术的群体和实行传统(非医学)包皮环切术的群体中与男性包皮环切术相关的社会规范。这种变化的后果之一是,无论出于何种原因,未割包皮的男性都被污名化。本文讨论了全球VMMC项目中未割包皮的青少年男性的耻辱伦理,特别是在某些招募,需求创造和社会规范干预方面。根据我们在肯尼亚对青少年进行艾滋病毒相关伦理研究时获得的经验,我们认为,从公共卫生伦理的角度来看,使用显性或隐性耻辱来增加自愿自愿医疗服务志愿者的数量是不道德的,特别是在利用男性气概社会规范的运动中。
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引用次数: 3
Shaming and Stigmatizing Healthcare Workers in Japan During the COVID-19 Pandemic 在COVID-19大流行期间,日本医护人员受到羞辱和污名化
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-02-07 DOI: 10.1093/phe/phab003
N. Jecker, Shizuko Takahashi
Abstract Stigmatization and sharming of healthcare workers in Japan during the coronavirus 2019 (COVID-19) pandemic reveal uniquely Japanese features. Seken, usually translated as ‘social appearance or appearance in the eyes of others,’ is a deep undercurrent woven into the fabric of Japanese life. It has led to providers who become ill with the SARS-CoV-2 virus feeling ashamed, while concealing their conditions from coworkers and public health officials. It also has led to healthcare providers being perceived as polluted and their children being told they were not welcome in schools. Although such experiences are not isolated to Japan and have appeared in other parts of the world, the cultural forces driving them in Japan are unique. Overcoming stigmatization and shaming of Japanese healthcare providers will require concerted efforts to understand cultural barriers and to view such practices as raising human rights issues affecting the safety and well-being of all.
在2019冠状病毒(COVID-19)大流行期间,日本医护人员的污名化和sharming揭示了日本独有的特点。“面子”通常被翻译为“社会形象或他人眼中的形象”,是一股深植在日本人生活结构中的暗流。这导致感染了SARS-CoV-2病毒的医护人员感到羞耻,同时向同事和公共卫生官员隐瞒自己的病情。这也导致医疗服务提供者被认为受到污染,他们的孩子被告知他们在学校不受欢迎。虽然这样的经历并不局限于日本,在世界其他地方也出现过,但在日本,推动这种经历的文化力量是独一无二的。要克服对日本医疗保健提供者的污名化和羞辱,就需要共同努力,理解文化障碍,并将这种做法视为提出了影响所有人安全和福祉的人权问题。
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引用次数: 11
Smokers’ Regrets and the Case for Public Health Paternalism 吸烟者的遗憾和公共卫生家长主义的案例
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-01-30 DOI: 10.1093/PHE/PHAB002
T. Wilkinson
Paternalist policies in public health often aim to improve people’s well-being by reducing their options, regulating smoking offering a prime example. The well-being challenge is to show that people really are better off for having their options reduced. The distribution challenge is to show how the policies are justified since they produce losers as well as winners. If we start from these challenges, we can understand the importance of the empirical evidence that a very high proportion of smokers regret smoking. In short, it is important that they regret it and important that the proportion is so high. This paper explains how, philosophically, regret can relate to well-being and it considers some of the strengths and weakness in the empirical research that the explanation brings out. The regret case for regulating smoking is indeed strong, although not as strong as the empirical researchers think. It is much weaker for paternalistic intervention in other public health problems, such as obesity and binge drinking.
公共卫生领域的家长式政策往往旨在通过减少人们的选择来改善人们的福祉,管制吸烟就是一个最好的例子。幸福的挑战是要证明人们在减少选择后确实过得更好。分配方面的挑战在于,如何证明这些政策是合理的,因为它们既产生了赢家,也产生了输家。如果我们从这些挑战开始,我们就能理解经验证据的重要性,即非常高比例的吸烟者后悔吸烟。简而言之,重要的是他们后悔,重要的是比例如此之高。本文从哲学上解释了后悔如何与幸福相关,并考虑了实证研究中解释所带来的一些优势和弱点。管制吸烟的遗憾理由确实很充分,尽管没有实证研究人员认为的那么充分。对于其他公共健康问题,如肥胖和酗酒,家长式干预的效果要弱得多。
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引用次数: 1
Quarantines: Between Precaution and Necessity. A Look at COVID-19 隔离:在预防和必要之间。透视COVID-19
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-01-25 DOI: 10.1093/phe/phaa037
V. Raposo
Abstract The events surrounding COVID-19, combined with the mandatory quarantines widely imposed in Asia and Europe since the virus outbreak, have reignited discussion of the balance between individual rights and liberties and public health during epidemics and pandemics. This article analyses this issue from the perspectives of precaution and necessity. There is a difficult relationship between these two seemingly opposite principles, both of which are frequently invoked in this domain. Although the precautionary principle (PP) encourages the use of quarantines, including mandatory quarantines, and associated restrictive measures, the principle of necessity (PN) puts a break on such measures. The COVID-19 pandemic reveals once again the different interrelations between these two principles. However, the alleged conflict between the PN and the PP is based on a superficial analysis. The relation between these two principles is far more complex, as this article will demonstrate.
围绕COVID-19的事件,加上自病毒爆发以来在亚洲和欧洲广泛实施的强制隔离,重新引发了关于流行病和大流行期间个人权利和自由与公共卫生之间平衡的讨论。本文从预防和必要性两个角度对这一问题进行了分析。这两个看似相反的原则之间存在一种困难的关系,这两个原则在这个领域中都经常被调用。虽然预防性原则(PP)鼓励使用隔离措施,包括强制隔离和相关的限制性措施,但必要性原则(PN)则禁止此类措施。2019冠状病毒病大流行再次揭示了这两个原则之间不同的相互关系。然而,所谓的PN和PP之间的冲突是基于一个肤浅的分析。正如本文将演示的那样,这两个原则之间的关系要复杂得多。
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引用次数: 9
What Are the Implications of Applying Equipoise in Planning Citizens Basic Income Pilots in Scotland? 在苏格兰公民基本收入试点计划中应用均衡的意义是什么?
IF 2.1 3区 哲学 Q1 Nursing Pub Date : 2021-01-25 eCollection Date: 2021-04-01 DOI: 10.1093/phe/phab001
Gerry McCartney, Neil Craig, Fiona Myers, Wendy Hearty, Coryn Barclay

We have been asked to consider the feasibility of piloting a Citizens' Basic Income (CBI): a basic, unconditional, universal, individual, regular payment that would replace aspects of social security and be introduced alongside changes to taxes. Piloting and evaluating a CBI as a Cluster Randomized Control Trial (RCT) raises the question of whether intervention and comparison groups would be in equipoise, and thus whether randomization would be ethical. We believe that most researchers would accept that additional income, or reduced conditions on receiving income would be likely to improve health, especially at lower income levels. However, there are genuine uncertainties about the impacts on other outcomes, and CBI as a mechanism of providing income. There is also less consensus amongst civil servants and politicians about the impacts on health, and substantial disagreement about whether these would outweigh other impacts. We believe that an RCT is ethical because of these uncertainties. We also argue that the principle of equipoise should apply to randomized and non-randomized trials; that randomization is a fairer means of allocating to intervention and comparison groups; and that there is an ethical case for experimentation to generate higher-quality evidence for policymaking that may otherwise do harm.

我们被要求考虑试行公民基本收入(CBI)的可行性:一种基本的、无条件的、普遍的、个人的、定期的支付,将取代社会保障的某些方面,并与税收改革一起引入。将CBI作为集群随机对照试验(RCT)进行试验和评估,提出了一个问题,即干预组和对照组是否处于平衡状态,因此随机化是否符合伦理。我们相信,大多数研究人员会接受,额外收入或减少获得收入的条件可能会改善健康,特别是在低收入水平。然而,对于其他结果的影响,以及CBI作为一种提供收入的机制,确实存在不确定性。公务员和政界人士对其对健康的影响也没有达成共识,对这些影响是否会超过其他影响也存在重大分歧。由于这些不确定性,我们认为随机对照试验是合乎道德的。我们还认为,均衡原则应适用于随机和非随机试验;随机化是分配给干预组和对照组的一种更公平的方法;而且,通过实验为政策制定提供更高质量的证据是有道德依据的,否则这些证据可能会造成伤害。
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引用次数: 0
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Public Health Ethics
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