{"title":"Debate: ‘Neurodiversity’ – has it outrun its usefulness?","authors":"Richard Fry","doi":"10.1111/camh.12684","DOIUrl":"10.1111/camh.12684","url":null,"abstract":"","PeriodicalId":49291,"journal":{"name":"Child and Adolescent Mental Health","volume":"29 3","pages":"314-315"},"PeriodicalIF":6.8,"publicationDate":"2024-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139713262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marinos Kyriakopoulos, Ioannis Rokas, Vasiliki Kokkinakou, Katerina Tselika
<p>Ioannis Rokas</p><p>National and Kapodistrian University of Athens</p><p>Psychosis risk identification has been a major focus of psychiatric research for the past 25 years, with the ultra high-risk or clinical high-risk (CHR) approach, based on psychotic symptoms, being the dominant paradigm. However, the CHR approach identifies only a small proportion (4.4%–13.7%) of individuals at risk for psychosis. An alternative approach is to investigate systems where psychosis risk factors are concentrated during childhood. Child and Adolescent Mental Health Services (CAMHS) could be a high-risk system for psychosis and bipolar disorder when attendees are followed into adulthood.</p><p>Lang et al. (2022) conducted a longitudinal study of all Finns (<i>N</i> = 59,476) born in 1987, using data from the nationwide 1987 Finnish Birth Cohort study, until 2015, in order to explore this hypothesis. The study involved 55,875 individuals (48.5% females), with 12.5% having one or more contacts with CAMHS in childhood or adolescence and 4% having at least one inpatient CAMHS admission. The authors found that 12.8% of all individuals who attended CAMHS during childhood or adolescence received a diagnosis of a psychotic or bipolar disorder by the age of 28 years, compared to 1.8% of the rest of the population (OR = 7.9, 95% CI: 7.2–8.7). This risk was much higher when individuals had at least one inpatient CAMHS admission (24%). More than one third of young people with a first CAMHS inpatient admission when aged 13–17 years had been diagnosed with psychosis or bipolar disorder by the age of 28 years. In nearly 60% of these cases, the diagnosis was first made later in life, on average 3 years after the initial contact. In addition, at least half of all individuals diagnosed with psychosis or bipolar disorder by the age of 28 years had, at some point in their childhood or adolescence, attended specialist CAMHS. Just 16.6% of these psychosis or bipolar disorder cases were diagnosed within 3 months of first attending outpatient CAMHS or on first inpatient CAMHS admission. For the majority (83.4%), the median time from first CAMHS contact to psychosis or bipolar diagnosis was >6 years. Individuals who attended CAMHS but received no mental disorder diagnosis within the first 3 months (when this was assessed) had an equally high risk of psychosis and bipolar disorder as individuals who did receive a diagnosis. A diagnosis of mood disorder and disruptive behavior disorder, at that time point, was associated with increased risk and a diagnosis of neurodevelopmental disorders with reduced risk of developing psychosis or bipolar disorder.</p><p>A key strength of this study was the use of total population and official service data. It highlights the elevated risk of future diagnosis of psychosis or bipolar disorder among children and young people attending CAMHS, especially those who require inpatient admission. One limitation of the study is that except for psychosis and bi
{"title":"Clinical research updates","authors":"Marinos Kyriakopoulos, Ioannis Rokas, Vasiliki Kokkinakou, Katerina Tselika","doi":"10.1111/camh.12687","DOIUrl":"10.1111/camh.12687","url":null,"abstract":"<p>Ioannis Rokas</p><p>National and Kapodistrian University of Athens</p><p>Psychosis risk identification has been a major focus of psychiatric research for the past 25 years, with the ultra high-risk or clinical high-risk (CHR) approach, based on psychotic symptoms, being the dominant paradigm. However, the CHR approach identifies only a small proportion (4.4%–13.7%) of individuals at risk for psychosis. An alternative approach is to investigate systems where psychosis risk factors are concentrated during childhood. Child and Adolescent Mental Health Services (CAMHS) could be a high-risk system for psychosis and bipolar disorder when attendees are followed into adulthood.</p><p>Lang et al. (2022) conducted a longitudinal study of all Finns (<i>N</i> = 59,476) born in 1987, using data from the nationwide 1987 Finnish Birth Cohort study, until 2015, in order to explore this hypothesis. The study involved 55,875 individuals (48.5% females), with 12.5% having one or more contacts with CAMHS in childhood or adolescence and 4% having at least one inpatient CAMHS admission. The authors found that 12.8% of all individuals who attended CAMHS during childhood or adolescence received a diagnosis of a psychotic or bipolar disorder by the age of 28 years, compared to 1.8% of the rest of the population (OR = 7.9, 95% CI: 7.2–8.7). This risk was much higher when individuals had at least one inpatient CAMHS admission (24%). More than one third of young people with a first CAMHS inpatient admission when aged 13–17 years had been diagnosed with psychosis or bipolar disorder by the age of 28 years. In nearly 60% of these cases, the diagnosis was first made later in life, on average 3 years after the initial contact. In addition, at least half of all individuals diagnosed with psychosis or bipolar disorder by the age of 28 years had, at some point in their childhood or adolescence, attended specialist CAMHS. Just 16.6% of these psychosis or bipolar disorder cases were diagnosed within 3 months of first attending outpatient CAMHS or on first inpatient CAMHS admission. For the majority (83.4%), the median time from first CAMHS contact to psychosis or bipolar diagnosis was >6 years. Individuals who attended CAMHS but received no mental disorder diagnosis within the first 3 months (when this was assessed) had an equally high risk of psychosis and bipolar disorder as individuals who did receive a diagnosis. A diagnosis of mood disorder and disruptive behavior disorder, at that time point, was associated with increased risk and a diagnosis of neurodevelopmental disorders with reduced risk of developing psychosis or bipolar disorder.</p><p>A key strength of this study was the use of total population and official service data. It highlights the elevated risk of future diagnosis of psychosis or bipolar disorder among children and young people attending CAMHS, especially those who require inpatient admission. One limitation of the study is that except for psychosis and bi","PeriodicalId":49291,"journal":{"name":"Child and Adolescent Mental Health","volume":"29 1","pages":"119-121"},"PeriodicalIF":6.1,"publicationDate":"2024-01-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/camh.12687","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139492599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
An important setting to detect youth mental health problems and provide interventions is the school context, but effective and affordable school-based interventions are scarce and implementation of the available evidence-based interventions is limited. In this editorial, we highlight three issues and propose a research agenda. First, we emphasize that many of the mental health interventions currently used in school settings lack a solid evidence base. Second, we outline that high-quality studies are needed to determine what works, for whom it works and under which circumstances. This includes insight into the most effective intervention elements, subgroups of students who profit more or less from these interventions, and the most effective modes of delivery. These questions should drive our research agenda on school-based mental health interventions. Finally, while answering these pivotal questions, a collaborative multidisciplinary effort should be made to implement school-based interventions with a solid evidence base, which involves, among others, studying how this can be done most effectively.
{"title":"Editorial: The need for more effective school-based youth mental health interventions","authors":"Tycho J. Dekkers, Marjolein Luman","doi":"10.1111/camh.12688","DOIUrl":"10.1111/camh.12688","url":null,"abstract":"<p>An important setting to detect youth mental health problems and provide interventions is the school context, but effective and affordable school-based interventions are scarce and implementation of the available evidence-based interventions is limited. In this editorial, we highlight three issues and propose a research agenda. First, we emphasize that many of the mental health interventions currently used in school settings lack a solid evidence base. Second, we outline that high-quality studies are needed to determine what works, for whom it works and under which circumstances. This includes insight into the most effective intervention elements, subgroups of students who profit more or less from these interventions, and the most effective modes of delivery. These questions should drive our research agenda on school-based mental health interventions. Finally, while answering these pivotal questions, a collaborative multidisciplinary effort should be made to implement school-based interventions with a solid evidence base, which involves, among others, studying how this can be done most effectively.</p>","PeriodicalId":49291,"journal":{"name":"Child and Adolescent Mental Health","volume":"29 1","pages":"1-3"},"PeriodicalIF":6.1,"publicationDate":"2023-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/camh.12688","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138886331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<p>I am grateful to my respondents for their varied and thoughtful responses to my article – and also to CAMH for the opportunity to respond to some of their points.</p><p>I thank <b>Rhiannon Hawkins</b>, as a neurodiverse person and service user, for her challenges as well as supportive comments. Dialogue including clear feedback from the experiences of autistic people has been a key part of how we have evolved in clinical thinking, language and practice over recent years; I am sure we all continue to fall short of satisfactory and many have echoed Rhiannon's point about the lack of service adaptation to autistic peoples' needs. I agree that co-production in knowledge development can be tokenistic or late on in the design process (‘consultation’ rather than ‘co-development’), but I do believe that this is now changing, with much more writing and attention to detailed procedures for co-design, both in healthcare generally (Donetto, Pierri, Tsianakas, & Robert, <span>2015</span>; Moll et al., <span>2020</span>) and in autism (Fletcher-Watson et al., <span>2019</span>). Rhiannon supports the call I made conceptually to separate autism from ID and give more research focus to ID. Her point on cultural expression and understanding of autism is surely relevant as we enter an era of globalised healthcare, as well as the need to respond well to the intersection of autism and cultural diversity in the UK and similar countries. My own experience of working in autism across the UK, South Asia and other countries suggests to me that there are key cultural universals in neurodiversity and autism development across cultures, but indeed the pattern of awareness and health beliefs varies greatly and needs to be understood and engaged with if we are to truly to be clinically acceptable and to make a difference.</p><p>I thank <b>Andrew Whitehouse</b> for his clarity and support of the model I have proposed – and his tremendous achievement in advocating successfully for the state-wide Western Australia implementation of a pre-emptive care pathway that flows from both the model and the intervention evidence built up over two decades of trials work, including our collaboration. Implementing evidenced changes into already stretched health systems – moving from a primarily ‘wait and see’ or a later reactive stance, to one that is on the front foot, pre-emptive and developmentally focused – is hard! But our own experience with the pathway over the last several years, with both CAMHS and developmental community services colleagues in Manchester, is that with patience and determination such change can come, and we plan soon to report on our early outcomes from this implementation. Andrew's state-wide implementation is on a substantially larger scale and we look forward to reports of his experience. It is also worth noting that, over the next 5 years, my group and colleagues in South Asia are also leading an NIHR-funded implementation scale-up of this kind of detection
{"title":"Debate: Responses to commentaries – neurodiversity, autism and healthcare","authors":"Jonathan Green","doi":"10.1111/camh.12691","DOIUrl":"10.1111/camh.12691","url":null,"abstract":"<p>I am grateful to my respondents for their varied and thoughtful responses to my article – and also to CAMH for the opportunity to respond to some of their points.</p><p>I thank <b>Rhiannon Hawkins</b>, as a neurodiverse person and service user, for her challenges as well as supportive comments. Dialogue including clear feedback from the experiences of autistic people has been a key part of how we have evolved in clinical thinking, language and practice over recent years; I am sure we all continue to fall short of satisfactory and many have echoed Rhiannon's point about the lack of service adaptation to autistic peoples' needs. I agree that co-production in knowledge development can be tokenistic or late on in the design process (‘consultation’ rather than ‘co-development’), but I do believe that this is now changing, with much more writing and attention to detailed procedures for co-design, both in healthcare generally (Donetto, Pierri, Tsianakas, & Robert, <span>2015</span>; Moll et al., <span>2020</span>) and in autism (Fletcher-Watson et al., <span>2019</span>). Rhiannon supports the call I made conceptually to separate autism from ID and give more research focus to ID. Her point on cultural expression and understanding of autism is surely relevant as we enter an era of globalised healthcare, as well as the need to respond well to the intersection of autism and cultural diversity in the UK and similar countries. My own experience of working in autism across the UK, South Asia and other countries suggests to me that there are key cultural universals in neurodiversity and autism development across cultures, but indeed the pattern of awareness and health beliefs varies greatly and needs to be understood and engaged with if we are to truly to be clinically acceptable and to make a difference.</p><p>I thank <b>Andrew Whitehouse</b> for his clarity and support of the model I have proposed – and his tremendous achievement in advocating successfully for the state-wide Western Australia implementation of a pre-emptive care pathway that flows from both the model and the intervention evidence built up over two decades of trials work, including our collaboration. Implementing evidenced changes into already stretched health systems – moving from a primarily ‘wait and see’ or a later reactive stance, to one that is on the front foot, pre-emptive and developmentally focused – is hard! But our own experience with the pathway over the last several years, with both CAMHS and developmental community services colleagues in Manchester, is that with patience and determination such change can come, and we plan soon to report on our early outcomes from this implementation. Andrew's state-wide implementation is on a substantially larger scale and we look forward to reports of his experience. It is also worth noting that, over the next 5 years, my group and colleagues in South Asia are also leading an NIHR-funded implementation scale-up of this kind of detection","PeriodicalId":49291,"journal":{"name":"Child and Adolescent Mental Health","volume":"29 1","pages":"99-100"},"PeriodicalIF":6.1,"publicationDate":"2023-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/camh.12691","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138717074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cindy C. Zhang, Grayden Zaleski, Jaya N. Kailley, Katelyn A. Teng, Mahala English, Anna Riminchan, Julie M. Robillard
Most social media platforms censor and moderate content related to mental illness to protect users from harm, though this may be at the expense of potential positive outcomes for youth mental health. Current evidence does not offer strong support for the relationship between censoring mental health content and preventing harm. In fact, existing moderation strategies can perpetuate negative consequences for mental health by creating isolated and polarized communities where at-risk youth remain exposed to harmful content, such as pro-eating disorder communities that use lexical variants to evade censorship. Social media censorship of content related to mental illness can also silence positive discourse about mental health, create barriers to accessing online support and resources, and hinder research efforts on youth well-being. Social media content about mental health can have important positive impacts on youth mental health by facilitating help-seeking, depicting positive coping strategies, and promoting a sense of belonging for struggling youth, but these benefits are minimized under existing moderation and censorship practices. This article presents a call to action for evidence-based social media policies and for practitioners to consider the clinical implications of social media engagement when connecting with young patients.
{"title":"Debate: Social media content moderation may do more harm than good for youth mental health","authors":"Cindy C. Zhang, Grayden Zaleski, Jaya N. Kailley, Katelyn A. Teng, Mahala English, Anna Riminchan, Julie M. Robillard","doi":"10.1111/camh.12689","DOIUrl":"10.1111/camh.12689","url":null,"abstract":"<p>Most social media platforms censor and moderate content related to mental illness to protect users from harm, though this may be at the expense of potential positive outcomes for youth mental health. Current evidence does not offer strong support for the relationship between censoring mental health content and preventing harm. In fact, existing moderation strategies can perpetuate negative consequences for mental health by creating isolated and polarized communities where at-risk youth remain exposed to harmful content, such as pro-eating disorder communities that use lexical variants to evade censorship. Social media censorship of content related to mental illness can also silence positive discourse about mental health, create barriers to accessing online support and resources, and hinder research efforts on youth well-being. Social media content about mental health can have important positive impacts on youth mental health by facilitating help-seeking, depicting positive coping strategies, and promoting a sense of belonging for struggling youth, but these benefits are minimized under existing moderation and censorship practices. This article presents a call to action for evidence-based social media policies and for practitioners to consider the clinical implications of social media engagement when connecting with young patients.</p>","PeriodicalId":49291,"journal":{"name":"Child and Adolescent Mental Health","volume":"29 1","pages":"104-106"},"PeriodicalIF":6.1,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/camh.12689","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138631372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}