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Relationships of self-reported opioid and benzodiazepine use with health-related quality of life among adults with spinal cord injury 脊髓损伤成人自我报告的阿片类药物和苯并二氮杂卓使用情况与健康相关生活质量的关系。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101668
James S. Krause PhD , Nicole D. DiPiro PhD , Clara E. Dismuke-Greer PhD , Jon Laursen-Roesler PhD

Background

There is limited understanding of the relationships between prescription opioid and benzodiazepine use and indices of health-related quality of life (HRQOL) among those with spinal cord injuries (SCI).

Objective

To identify the relationships between self-reported prescription opioid and benzodiazepine use and two indicators of HRQOL, number of days in poor physical health and poor mental health in the past 30 days among adults with SCI.

Methods

A cross-sectional cohort study of 918 adults with chronic (>1 year), traumatic SCI living in the Southeastern United States was conducted. Participants completed a self-report assessment (SRA).

Results

In the preliminary model, both opioid and benzodiazepine use were associated with a greater number of days in poor physical health and poor mental health in the past month. After controlling for health conditions (pain intensity, spasticity, anxiety and perceived sleep insufficiency), opioid use was associated with 2.04 (CI = 0.69; 3.39) additional poor physical health days in the past 30 days, and benzodiazepine use was associated with 2.18 (CI = 0.70; 3.64) additional days of poor mental health. Age was associated with greater number of poor physical health days and fewer poor mental health days. Lower income was associated with poor mental health days. Most of the health conditions were significantly related to the number of past month poor physical and mental health days.

Conclusions

Opioid and benzodiazepine use are associated with poor physical and mental HRQOL, even after controlling for health conditions. Treatment strategies should consider potential unanticipated negative consequences of pharmacological interventions.
背景:对脊髓损伤(SCI)患者使用处方类阿片和苯二氮杂卓与健康相关生活质量(HRQOL)指数之间关系的了解有限:对脊髓损伤(SCI)患者使用处方类阿片和苯二氮杂卓与健康相关生活质量(HRQOL)指标之间的关系了解有限:目的:确定脊髓损伤成人中自我报告的处方阿片类药物和苯二氮卓类药物使用情况与两项健康相关生活质量(HRQOL)指标(过去30天中身体健康状况不佳的天数和精神健康状况不佳的天数)之间的关系:对居住在美国东南部的 918 名患有慢性(1 年以上)创伤性 SCI 的成年人进行了一项横断面队列研究。参与者完成了自我报告评估(SRA):在初步模型中,阿片类药物和苯二氮卓类药物的使用与过去一个月中身体健康状况不佳和精神健康状况不佳的天数增加有关。在对健康状况(疼痛强度、痉挛、焦虑和感知睡眠不足)进行控制后,使用阿片类药物与过去 30 天内身体健康状况不佳天数增加 2.04 天(CI = 0.69; 3.39)有关,使用苯二氮卓类药物与精神健康状况不佳天数增加 2.18 天(CI = 0.70; 3.64)有关。年龄与更多的身体健康状况不佳天数和更少的精神健康状况不佳天数有关。收入越低,精神健康状况越差。大多数健康状况与上个月身体和精神健康状况不良天数有明显关系:结论:即使控制了健康状况,阿片类药物和苯二氮杂卓类药物的使用仍与身体和精神的 HRQOL 差异有关。治疗策略应考虑药物干预可能带来的意想不到的负面影响。
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引用次数: 0
Fetal alcohol syndrome and population level health care usage in British Columbia, Canada 加拿大不列颠哥伦比亚省的胎儿酒精综合症和人口医疗保健使用情况。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101684
Sandra Marquis PhD , Yona Lunsky PhD , Kimberlyn M. McGrail MPH, PhD , Jennifer Baumbusch RN, PhD

Background

The literature indicates that youth with Fetal Alcohol Syndrome (FAS) may experience high rates of both physical and mental health issues compared to youth without FAS. However, there is little population level health data available for youth with FAS, particularly for youth transitioning from pediatric to adult healthcare services.

Objective

The objective of this study was to compare health care usage of youth with Fetal Alcohol Syndrome to youth without any intellectual/developmental disabilities (IDD).

Methods

This study used a retrospective cohort design and population-level administrative health data to examine five aspects of health care usage by youth with FAS and compare them to youth with no intellectual/developmental disability. The variables were medically required dental care, visits to emergency departments and visits for mental health issues. In addition, the study stratified data by age groups and examined the difference between youth aged 15–19 and youth aged 20–24.

Results

Youth with FAS had higher adjusted odds of medically required dental care, visits to the emergency department and visits for anxiety/depression, psychotic illnesses and substance use disorders compared to youth with no IDD. The odds of a medically required dental visit, emergency department visit and visit for psychotic illness or substance use disorder were also higher for youth aged 20–24 years compared to youth aged 15–19 years.

Conclusions

These findings indicate that youth with FAS require urgent attention for each of the medically-related variables included in this study. The need for attention to their health care needs may increase as these youth transition from pediatric to adult health care services.
背景:文献表明,与没有胎儿酒精综合症(FAS)的青少年相比,患有胎儿酒精综合症(FAS)的青少年在身体和心理健康方面的问题发生率都很高。然而,有关胎儿酒精综合症青少年的人群健康数据却很少,尤其是有关从儿科医疗服务过渡到成人医疗服务的青少年的数据:本研究旨在比较患有胎儿酒精综合症的青少年与没有任何智力/发育障碍(IDD)的青少年在医疗保健方面的使用情况:本研究采用回顾性队列设计和人口级行政健康数据,对患有胎儿酒精综合症的青少年使用医疗保健服务的五个方面进行了调查,并将其与没有智力/发育障碍的青少年进行了比较。这些变量包括医疗必需的牙科护理、急诊就诊和因精神健康问题就诊。此外,该研究还按年龄组对数据进行了分层,并检查了 15-19 岁青少年与 20-24 岁青少年之间的差异:与没有 IDD 的青少年相比,患有 FAS 的青少年需要接受牙科医疗护理、到急诊室就诊以及因焦虑/抑郁、精神病和药物使用障碍就诊的调整后几率更高。与 15-19 岁的青少年相比,20-24 岁的青少年需要接受牙科医疗护理、去急诊室就诊以及因精神病或药物使用障碍就诊的几率也更高:这些研究结果表明,患有 FAS 的青少年需要紧急关注本研究中与医疗相关的每一个变量。随着这些青少年从儿科医疗服务过渡到成人医疗服务,他们对医疗保健需求的关注可能会增加。
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引用次数: 0
Relation between work hours, work control, work stress, and quality of life in persons with spinal cord injury 脊髓损伤者的工作时间、工作控制、工作压力和生活质量之间的关系。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101682
Renée van Dinter MSc , Michiel F. Reneman PhD , Marcel W.M. Post PhD

Background

Work participation is related to a better quality of life (QoL) for people with spinal cord injury (SCI), however, the specific work characteristics that are related to QoL in people with SCI are largely unknown.

Objectives

To investigate which work characteristics are related to QoL in people with SCI.

Methods

Cross-sectional survey of people with SCI in the Netherlands. The survey consisted of demographic, SCI-related, and work-related items. Work control was measured with the short Job Content Questionnaire and work stress with the effort-reward imbalance (ERI). People of working age with at least 1 h of paid work per week were included. Hierarchical regression analysis was performed to examine the contribution of work characteristics to QoL while controlling for potential clinical and demographic confounders.

Results

The study included 169 persons with SCI (74.6 % male, 47.8 ± 9.3 years, time since injury 18.9 ± 11.1 years). The final hierarchical regression model explained 31 % of the variance in QoL. The number of SCI-related health complications contributed the strongest to QoL (ß = −.36), followed by work hours (β = .24), and work stress (β = .24). However, work control did not contribute significantly to QoL in our final model.

Conclusion

Work hours and work stress contributed to QoL in people with SCI, but the number of SCI-related health complications was the strongest contributor. Future research and vocational rehabilitation should be directed to both medical and work-related variables to enhance the QoL of working people with SCI.
背景:参与工作与脊髓损伤(SCI)患者更好的生活质量(QoL)有关,然而,与SCI患者QoL有关的具体工作特征在很大程度上是未知的:调查哪些工作特征与 SCI 患者的 QoL 有关:方法:对荷兰的 SCI 患者进行横断面调查。调查包括人口统计学、SCI 相关和工作相关项目。工作控制通过简短的工作内容问卷进行测量,工作压力通过努力-回报不平衡(ERI)进行测量。调查对象包括每周至少从事 1 小时有偿工作的适龄劳动者。在控制潜在的临床和人口统计学混杂因素的同时,进行了层次回归分析,以研究工作特征对 QoL 的影响:研究共纳入 169 名 SCI 患者(74.6% 为男性,47.8 ± 9.3 岁,受伤后 18.9 ± 11.1 年)。最终的分层回归模型解释了 QoL 变异的 31%。与 SCI 相关的健康并发症数量对 QoL 的影响最大(ß = -.36),其次是工作时间(β = .24)和工作压力(β = .24)。然而,在我们的最终模型中,工作控制对 QoL 的影响并不大:结论:工作时间和工作压力对 SCI 患者的 QoL 有影响,但 SCI 相关健康并发症的数量对 QoL 的影响最大。未来的研究和职业康复应针对医疗和工作相关变量,以提高工作的 SCI 患者的 QoL。
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引用次数: 0
Author Information
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/S1936-6574(24)00181-X
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引用次数: 0
Covid-19 Pandemic's impact on socio-emotional problems experienced by victims of violence with disabilities Covid-19 大流行病对残疾暴力受害者所经历的社会情感问题的影响。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101710
Yasemin Irvin-Erickson Ph.D. , Auzeen Shariati Ph.D.

Background

Studies on the emotional well-being of individuals with disabilities during the Covid-19 pandemic focused on the beginning of the pandemic and omitted the experiences of victims with disabilities.

Objective

We compared socio-emotional problems experienced by victims of violence with and without disabilities before and during the Covid-19 pandemic.

Methods

We conducted regression analysis using data from the National Crime Victimization Survey to examine the differences in socio-emotional problems experienced by violent crime victims with and without disabilities before and during the Covid-19 pandemic. We conducted descriptive analyses to explore patterns of receiving victim services.

Results

Male victims without disabilities had lower odds of socio-emotional problems than female and male victims with disabilities before and throughout the pandemic. Female victims with disabilities had higher odds of socio-emotional problems than male victims with disabilities and female victims without disabilities before and during the first year of the pandemic. After the first year of the pandemic, female victims with and without disabilities and male victims with disabilities had no significant differences in their odds of experiencing socio-emotional problems. A higher percentage of victims received services during the pandemic in comparison to these patterns before the pandemic. After the first year of the pandemic, there was a notable increase in the percentage of female victims with and without disabilities and percentage of male victims with disabilities receiving victim services.

Conclusions

Our findings underline the disproportionate effect of the Covid-19 pandemic on socio-emotional well-being of victims with disabilities and especially female victims with disabilities.
背景:关于Covid-19大流行期间残疾人情感健康的研究主要集中在大流行的初期,忽略了残疾人受害者的经历:我们比较了残疾和非残疾暴力受害者在 Covid-19 大流行之前和期间所经历的社会情感问题:我们利用全国犯罪受害者调查(National Crime Victimization Survey)的数据进行了回归分析,以研究在Covid-19大流行之前和期间,有残疾和无残疾的暴力犯罪受害者所经历的社会情感问题的差异。我们还进行了描述性分析,以探索受害者接受服务的模式:在大流行之前和整个大流行期间,非残疾男性受害者出现社会情感问题的几率低于残疾女性和男性受害者。在大流行之前和第一年期间,女性残疾受害者出现社会情感问题的几率高于男性残疾受害者和女性非残疾受害者。在大流行的第一年之后,残疾和非残疾女性受害者与残疾男性受害者在遇到社会情感问题的几率上没有显著差异。与大流行之前的模式相比,在大流行期间接受服务的受害者比例更高。在大流行的第一年之后,接受受害者服务的残疾女性受害者和非残疾女性受害者的比例以及残疾男性受害者的比例都有了显著提高:我们的研究结果表明,Covid-19 大流行对残疾受害者,尤其是残疾女性受害者的社会情感福祉造成了不成比例的影响。
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引用次数: 0
School-based factors influencing physical activity participation in children and adolescents with disabilities: A qualitative systematic review and meta-synthesis 影响残疾儿童和青少年参加体育活动的校本因素:定性系统综述和元综合。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101707
Yuyang Deng MEd , Xuecheng Li MEd , Jiafu Huang MEd , Justin A. Haegele PhD , Brett Smith PhD , Toni Louise Williams PhD , Chunxiao Li PhD

Background

Children and adolescents with disabilities (CAD) frequently encounter barriers to participation in physical activity (PA). Schools play a vital role in promoting PA, making it crucial to understand the school-based factors influencing CAD's PA participation.

Objective

This qualitative systematic review and meta-synthesis aims to identify and elucidate the school-based factors influencing PA engagement among this population.

Methods

A comprehensive search across six databases—Web of Science, PsycINFO, Scopus, SPORTDiscus, and Embase, CNKI—was conducted in August 2023, and subsequently updated in April 2024. English or Chinese peer-reviewed journal articles that contained substantial qualitative data regarding school-based factors affecting PA in CAD were included. The methodological quality of included studies was evaluated utilizing the Critical Appraisal Skills Program Qualitative Checklist. Qualitative data were analyzed through thematic synthesis.

Results

A total of 16 studies (12 qualitative studies and 4 mixed-methods studies) were included, all of which were of moderate to high quality. Thematic synthesis identified four major themes: (a) physical environment (provision of facilities, specialized and adapted equipment, space for activities); (b) social environment (peers, school leaders, teachers and other school staff); (c) opportunities for PA (physical education, classroom movement integration, extra-curricular activities); and (d) characteristics of PA (adaption of rules and task difficulty, competition components, diversified activities, fun).

Conclusions

This review reveals the complex interplay of different school-based factors affecting PA participation among CAD. The findings provide valuable insights for educators, policymakers, and health professionals to enhance PA participation in this population.
背景:残疾儿童和青少年(CAD)在参加体育活动(PA)时经常遇到障碍。学校在促进体育锻炼方面发挥着重要作用,因此了解影响残疾儿童和青少年参加体育锻炼的校本因素至关重要:本定性系统综述和荟萃分析旨在确定并阐明影响该人群参与体育锻炼的校本因素:于 2023 年 8 月对六个数据库--Web of Science、PsycINFO、Scopus、SPORTDiscus 和 Embase、CNKI--进行了全面检索,并于 2024 年 4 月进行了更新。研究纳入了包含大量定性数据的英文或中文同行评审期刊文章,这些数据涉及影响儿童青少年体育锻炼的校本因素。利用 "批判性评估技能计划定性检查表 "对纳入研究的方法学质量进行评估。通过专题综合法对定性数据进行分析:共纳入了 16 项研究(12 项定性研究和 4 项混合方法研究),所有研究的质量均为中上水平。专题综述确定了四个主要专题:(a) 物理环境(提供设施、专门和经调整的设备、活动空间);(b) 社会环境(同伴、学校领导、教师和其他学校工作人员);(c) 体育活动的机会(体育教育、课堂运动整合、课外活动);(d) 体育活动的特点(规则和任务难度的调整、竞争成分、多样化活动、趣味性):本综述揭示了影响民航学院学生参与体育锻炼的不同校本因素之间复杂的相互作用。研究结果为教育工作者、政策制定者和卫生专业人员提供了宝贵的见解,以提高这一人群的体育锻炼参与率。
{"title":"School-based factors influencing physical activity participation in children and adolescents with disabilities: A qualitative systematic review and meta-synthesis","authors":"Yuyang Deng MEd ,&nbsp;Xuecheng Li MEd ,&nbsp;Jiafu Huang MEd ,&nbsp;Justin A. Haegele PhD ,&nbsp;Brett Smith PhD ,&nbsp;Toni Louise Williams PhD ,&nbsp;Chunxiao Li PhD","doi":"10.1016/j.dhjo.2024.101707","DOIUrl":"10.1016/j.dhjo.2024.101707","url":null,"abstract":"<div><h3>Background</h3><div>Children and adolescents with disabilities (CAD) frequently encounter barriers to participation in physical activity (PA). Schools play a vital role in promoting PA, making it crucial to understand the school-based factors influencing CAD's PA participation.</div></div><div><h3>Objective</h3><div>This qualitative systematic review and meta-synthesis aims to identify and elucidate the school-based factors influencing PA engagement among this population.</div></div><div><h3>Methods</h3><div>A comprehensive search across six databases—Web of Science, PsycINFO, Scopus, SPORTDiscus, and Embase, CNKI—was conducted in August 2023, and subsequently updated in April 2024. English or Chinese peer-reviewed journal articles that contained substantial qualitative data regarding school-based factors affecting PA in CAD were included. The methodological quality of included studies was evaluated utilizing the Critical Appraisal Skills Program Qualitative Checklist. Qualitative data were analyzed through thematic synthesis.</div></div><div><h3>Results</h3><div>A total of 16 studies (12 qualitative studies and 4 mixed-methods studies) were included, all of which were of moderate to high quality. Thematic synthesis identified four major themes: (a) physical environment (provision of facilities, specialized and adapted equipment, space for activities); (b) social environment (peers, school leaders, teachers and other school staff); (c) opportunities for PA (physical education, classroom movement integration, extra-curricular activities); and (d) characteristics of PA (adaption of rules and task difficulty, competition components, diversified activities, fun).</div></div><div><h3>Conclusions</h3><div>This review reveals the complex interplay of different school-based factors affecting PA participation among CAD. The findings provide valuable insights for educators, policymakers, and health professionals to enhance PA participation in this population.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101707"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142330809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
History and future directions of DHJO DHJO 的历史和未来方向。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101725
Margaret A. Turk MD (Co-Editor-in-Chief), Monika Mitra PhD (Co-Editor-in-Chief)
{"title":"History and future directions of DHJO","authors":"Margaret A. Turk MD (Co-Editor-in-Chief),&nbsp;Monika Mitra PhD (Co-Editor-in-Chief)","doi":"10.1016/j.dhjo.2024.101725","DOIUrl":"10.1016/j.dhjo.2024.101725","url":null,"abstract":"","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101725"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability's absence from admissions nondiscrimination and recruitment initiatives in Top-Tier US allopathic medical schools 美国顶级对抗疗法医学院的招生非歧视和招聘措施中没有残疾问题。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101679
Allison Kessler MD, MSc , Samantha L. Schroth BS , Leslie Rydberg MD

Background

Diversity in medical school students is essential to ensure that future physicians can care for a range of patients from different backgrounds. However, disability is often overlooked and there are potential examples of discrimination in US medical schools.

Objective

To determine if students with disabilities are included in online recruitment, diversity equity and inclusion (DEI), or nondiscrimination materials for US allopathic medical schools.

Methods

In this descriptive study, the authors reviewed publicly available data from websites of the top ranked 51 US allopathic medical schools to assess inclusion of disability in recruitment efforts or antidiscrimination statements.

Results

The results showed that just under one third of these schools (31 %) mention disability within their DEI or published recruitment efforts. Most commonly (27.5 %), disability is mentioned in a general diversity statement.

Conclusions

These findings suggest that there is a need for greater inclusion of disability in US medical schools' recruitment efforts. This is essential to ensure that people with disabilities are not discriminated against in medical school applications and is one of many factors that will contribute to future physicians being prepared to care for patients with disabilities.
背景:医学院学生的多样性对于确保未来的医生能够照顾来自不同背景的病人至关重要。然而,残疾问题往往被忽视,在美国医学院中存在潜在的歧视实例:目的:确定美国对抗疗法医学院的在线招聘、多元化公平与包容(DEI)或非歧视材料中是否包含残疾学生:在这项描述性研究中,作者查阅了美国排名前 51 位的对抗疗法医学院网站上的公开数据,以评估招聘工作或反歧视声明中是否包含残疾内容:结果显示,在这些学校中,仅有不到三分之一(31%)的学校在其DEI或公布的招聘工作中提及残疾问题。最常见的情况(27.5%)是在一般性多样性声明中提及残疾问题:这些研究结果表明,有必要在美国医学院的招生工作中更多地考虑残疾问题。这对于确保残障人士在申请医学院时不受歧视至关重要,也是有助于未来医生为护理残障患者做好准备的众多因素之一。
{"title":"Disability's absence from admissions nondiscrimination and recruitment initiatives in Top-Tier US allopathic medical schools","authors":"Allison Kessler MD, MSc ,&nbsp;Samantha L. Schroth BS ,&nbsp;Leslie Rydberg MD","doi":"10.1016/j.dhjo.2024.101679","DOIUrl":"10.1016/j.dhjo.2024.101679","url":null,"abstract":"<div><h3>Background</h3><div>Diversity in medical school students is essential to ensure that future physicians can care for a range of patients from different backgrounds. However, disability is often overlooked and there are potential examples of discrimination in US medical schools.</div></div><div><h3>Objective</h3><div>To determine if students with disabilities are included in online recruitment, diversity equity and inclusion (DEI), or nondiscrimination materials for US allopathic medical schools.</div></div><div><h3>Methods</h3><div>In this descriptive study, the authors reviewed publicly available data from websites of the top ranked 51 US allopathic medical schools to assess inclusion of disability in recruitment efforts or antidiscrimination statements.</div></div><div><h3>Results</h3><div>The results showed that just under one third of these schools (31 %) mention disability within their DEI or published recruitment efforts. Most commonly (27.5 %), disability is mentioned in a general diversity statement.</div></div><div><h3>Conclusions</h3><div>These findings suggest that there is a need for greater inclusion of disability in US medical schools' recruitment efforts. This is essential to ensure that people with disabilities are not discriminated against in medical school applications and is one of many factors that will contribute to future physicians being prepared to care for patients with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101679"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Incorporating Easy Language in the ICF: Benefits, opportunities, and challenges 将简易语言纳入 ICF:益处、机遇与挑战。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-01 DOI: 10.1016/j.dhjo.2024.101689
Julia Fuchs Jun.-Prof. Dr. , Sarah Ohnuseit Bachelor of Arts
The World Health Organization's International Classification of Functioning, Disability and Health (ICF), the international standard for the description of functioning and disability, completely ignores a specific form of accessible communication despite its potential to improve functioning and reduce disability: Easy Language, a form of standard language with substantially reduced linguistic complexity. Starting with a proposal for how and where Easy Language could be appropriately integrated into the ICF, the commentary then outlines the various benefits and opportunities for social policy that could be associated with doing so. It also notes several potential challenges involved in this process. If used correctly, the integration of Easy Language into the ICF could prove useful for both professional users of the ICF and Easy Language target groups.
世界卫生组织的《国际功能、残疾和健康分类》(ICF)是描述功能和残疾的国际标准,它完全忽视了一种特殊的无障碍交流形式,尽管这种形式具有改善功能和减少残疾的潜力:简易语言 "是一种语言复杂性大大降低的标准语言。评注首先就如何以及在何处将简易语言适当纳入《国际功能、残疾和健康分类》提出了建议,然后概述了这样做对社会政策可能带来的各种益处和机遇。评论还指出了这一过程中可能面临的一些挑战。如果使用得当,将 "简易语言 "纳入 "国际功能、残疾和健康分类 "对 "国际功能、残疾和健康分类 "的专业用户和 "简易语言 "的目标群体都是有益的。
{"title":"Incorporating Easy Language in the ICF: Benefits, opportunities, and challenges","authors":"Julia Fuchs Jun.-Prof. Dr. ,&nbsp;Sarah Ohnuseit Bachelor of Arts","doi":"10.1016/j.dhjo.2024.101689","DOIUrl":"10.1016/j.dhjo.2024.101689","url":null,"abstract":"<div><div>The World Health Organization's International Classification of Functioning, Disability and Health (ICF), the international standard for the description of functioning and disability, completely ignores a specific form of accessible communication despite its potential to improve functioning and reduce disability: Easy Language, a form of standard language with substantially reduced linguistic complexity. Starting with a proposal for how and where Easy Language could be appropriately integrated into the ICF, the commentary then outlines the various benefits and opportunities for social policy that could be associated with doing so. It also notes several potential challenges involved in this process. If used correctly, the integration of Easy Language into the ICF could prove useful for both professional users of the ICF and Easy Language target groups.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101689"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142047369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding HCBS utilization: The role of disability onset age and length of disability. 了解HCBS的使用:残疾发病年龄和残疾时间长短的作用。
IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-24 DOI: 10.1016/j.dhjo.2024.101771
G Chiri, J N Howard, L Palmer, K Robinson, S Rafiuddin

Background: Younger adults aging with and older adults aging into disability often need support to remain in their homes and communities. However, researchers and policymakers lack sufficient understanding of their differing needs for home and community-based services (HCBS), largely due to limitations in existing data.

Objectives: This study addresses this gap by exploring select HCBS utilization among adults with disability onset before age 60 and those with onset after age 60, focusing on how aging and disability intersect.

Methods: We used data from multiple waves of the Health and Retirement Study (HRS), the HCBS HRS module and the Health Care Mail Survey. Using these data, we identified individuals by their disability onset (before and after age 60) and measured the duration of their disability. We then examined the use of select HCBS and its association with the onset and duration of disability.

Results: Multivariate regression analysis found no significant differences in service utilization based on the timing of disability onset. Instead, a longer disability duration was associated with increased odds of utilizing HCBS, regardless of when the disability began.

Conclusion: As the population continues to age, more individuals will live with disabilities, including both those who acquire them earlier in life and older adults who develop them in later years. This analysis emphasizes the critical role of disability duration in understanding service needs and resource allocation. By combining perspectives from aging and disability research, this study underscores the need for integrated policies and programs that address shared challenges. Such an approach can bridge existing gaps, leading to better outcomes for all individuals living with disabilities.

背景:随着年龄增长而变老的年轻人和变老为残疾的老年人往往需要支持才能留在家中和社区。然而,由于现有数据的限制,研究人员和决策者对他们对家庭和社区服务(HCBS)的不同需求缺乏足够的了解。目的:本研究通过探索60岁之前和60岁之后发病的成人中HCBS的使用情况,重点研究老龄化和残疾之间的关系,从而解决这一差距。方法:我们使用来自健康与退休研究(HRS)、HCBS HRS模块和卫生保健邮件调查的多波数据。使用这些数据,我们根据他们的残疾发病(60岁之前和60岁之后)来识别个体,并测量他们残疾的持续时间。然后,我们检查了选定HCBS的使用及其与残疾发病和持续时间的关系。结果:多因素回归分析发现,残疾发病时间对服务利用率的影响无显著性差异。相反,无论何时开始残疾,较长的残疾持续时间与使用HCBS的几率增加有关。结论:随着人口持续老龄化,越来越多的人将患有残疾,包括那些在生命早期获得残疾的人和在晚年发展残疾的老年人。这一分析强调了残疾持续时间在理解服务需求和资源分配方面的关键作用。通过结合老龄化和残疾研究的观点,本研究强调了制定综合政策和项目以应对共同挑战的必要性。这种方法可以弥合现有差距,为所有残疾人带来更好的结果。
{"title":"Understanding HCBS utilization: The role of disability onset age and length of disability.","authors":"G Chiri, J N Howard, L Palmer, K Robinson, S Rafiuddin","doi":"10.1016/j.dhjo.2024.101771","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101771","url":null,"abstract":"<p><strong>Background: </strong>Younger adults aging with and older adults aging into disability often need support to remain in their homes and communities. However, researchers and policymakers lack sufficient understanding of their differing needs for home and community-based services (HCBS), largely due to limitations in existing data.</p><p><strong>Objectives: </strong>This study addresses this gap by exploring select HCBS utilization among adults with disability onset before age 60 and those with onset after age 60, focusing on how aging and disability intersect.</p><p><strong>Methods: </strong>We used data from multiple waves of the Health and Retirement Study (HRS), the HCBS HRS module and the Health Care Mail Survey. Using these data, we identified individuals by their disability onset (before and after age 60) and measured the duration of their disability. We then examined the use of select HCBS and its association with the onset and duration of disability.</p><p><strong>Results: </strong>Multivariate regression analysis found no significant differences in service utilization based on the timing of disability onset. Instead, a longer disability duration was associated with increased odds of utilizing HCBS, regardless of when the disability began.</p><p><strong>Conclusion: </strong>As the population continues to age, more individuals will live with disabilities, including both those who acquire them earlier in life and older adults who develop them in later years. This analysis emphasizes the critical role of disability duration in understanding service needs and resource allocation. By combining perspectives from aging and disability research, this study underscores the need for integrated policies and programs that address shared challenges. Such an approach can bridge existing gaps, leading to better outcomes for all individuals living with disabilities.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101771"},"PeriodicalIF":3.7,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142984753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Disability and Health Journal
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