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Environmental barriers to participation for people with spinal cord injury. The case of Ecuador 脊髓损伤患者参与的环境障碍。厄瓜多尔的例子。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-01 Epub Date: 2025-07-15 DOI: 10.1016/j.dhjo.2025.101929
Ana Oña , Andrea Pacheco Barzallo , Jaime Toaquiza , Diana Pacheco Barzallo
This study assesses the environmental barriers faced by people with spinal cord injury (SCI) in Ecuador. Using cross-sectional data from the International Spinal Cord Injury Survey (InSCI), we analyzed responses from 510 participants across 23 provinces. We calculated the total environmental barrier index using the Nottwil Environmental Factor Inventory (NEFI) and applied regression analysis to identify key influencing factors. We also examined the severity of barriers by region, comparing rural and urban areas.
Our findings reveal significant disparities. Individuals with lower incomes, those with tetraplegia, and those without a partner reported higher levels of environmental barriers. Rural residents were disproportionately affected. While both urban and rural participants cited long-distance travel and limited public access as top barriers, finances ranked higher in urban settings, whereas home access was more critical in rural areas.
This is the first national study to map modifiable environmental barriers for people with SCI in Ecuador. The results point to clear spatial and economic inequalities, highlighting the need for targeted policies that improve public infrastructure to promote social inclusion.
本研究评估了厄瓜多尔脊髓损伤(SCI)患者面临的环境障碍。利用国际脊髓损伤调查(InSCI)的横断面数据,我们分析了来自23个省份的510名参与者的回答。利用Nottwil环境因子量表(NEFI)计算总环境屏障指数,并运用回归分析方法确定关键影响因素。我们还按地区考察了障碍的严重程度,比较了农村和城市地区。我们的发现揭示了显著的差异。收入较低的人、四肢瘫痪者和没有伴侣的人报告的环境障碍水平较高。农村居民受到的影响尤为严重。尽管城市和农村的参与者都认为长途旅行和公共交通有限是最大的障碍,但在城市环境中,经济状况排在第一位,而在农村地区,家庭交通更为重要。这是厄瓜多尔首个针对脊髓损伤患者可改变的环境障碍进行的全国性研究。研究结果指出了明显的空间和经济不平等,强调需要制定有针对性的政策,改善公共基础设施,促进社会包容。
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引用次数: 0
Work from home and job Satisfaction: Differences by disability status among healthcare workers 在家工作与工作满意度:医疗工作者残疾状况的差异。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-01 Epub Date: 2025-07-22 DOI: 10.1016/j.dhjo.2025.101931
Yana van der Meulen Rodgers , Lisa Schur , Flora M. Hammond , Renee Edwards , Jennifer Cohen , Douglas Kruse

Background

Many workers with disabilities face negative stereotypical attitudes, pay gaps, and a lack of respect in the workplace, contributing to substantially lower job satisfaction compared to people without disabilities. Work from home may help to increase job satisfaction for people with disabilities.

Objective

This study analyzes how different measures of job satisfaction vary between people with and without disabilities, and the extent to which working from home moderates the relationship between disability and job satisfaction.

Methods

We use multivariable regression analysis to examine if the ability to work from home moderates the relationship between disability and indicators related to job satisfaction. The dataset draws on a novel survey of healthcare professionals.

Results

Results show that people with disabilities have relatively greater turnover intentions, lower sense of organizational commitment and support, weaker perceptions of openness and inclusion in the workplace, and worse relations with management and coworkers. Regressions indicate that working from home helps to improve most perceptions of work experiences but does so more for people without disabilities than for people with disabilities.

Conclusions

The findings suggest that (a) some accommodations typically viewed as exceptions to meet the needs of people with disabilities have even greater benefits for the workforce at large and (b) because workers without disabilities also benefit from remote work, we cannot expect this accommodation to close job satisfaction gaps caused by inequities.
背景:许多残疾工人面临着消极的刻板态度,工资差距,以及在工作场所缺乏尊重,与非残疾人相比,他们的工作满意度大大降低。在家工作可能有助于提高残疾人的工作满意度。目的:本研究分析残疾人士和非残疾人士在工作满意度上的差异,以及在家工作在多大程度上调节残疾与工作满意度之间的关系。方法:我们使用多变量回归分析来检验在家工作的能力是否调节残疾与工作满意度相关指标之间的关系。该数据集借鉴了对医疗保健专业人员的一项新颖调查。结果:残障人士的离职倾向相对较高,组织承诺和支持感较低,工作场所的开放性和包容性较弱,与管理层和同事的关系较差。回归表明,在家工作有助于改善大多数人对工作经历的看法,但对非残疾人的影响比对残疾人的影响更大。结论:研究结果表明:(a)一些通常被视为满足残疾人需求的例外的便利设施对整个劳动力有更大的好处;(b)因为没有残疾的工人也从远程工作中受益,我们不能指望这种便利设施能缩小由不平等造成的工作满意度差距。
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引用次数: 0
Needs assessment of training midwifery, nursing, and medical students in sexual and reproductive health care for people with disabilities in Tanzania 对坦桑尼亚助产学、护理学和医科学生在残疾人性健康和生殖健康方面的培训需求进行评估。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-01 Epub Date: 2025-06-20 DOI: 10.1016/j.dhjo.2025.101919
Kristen P. Mark , Stella E. Mushy , Marguerite Puchner-Hardman , Lucy R. Mgopa , Gift G. Lukumay , B.R. Simon Rosser , Agnes F. Massawe , Dorkasi L. Mwakawanga , Victor Z. Chikwala , Emmanuel I. Sumari , Ally A. Lyimo , Gudrun Kilian , Maria E. Trent , Michael W. Ross , Charlotta Löfgren , Jennifer J. Connor , Rashid H. Mfinanga , Dickson A. Mkoka

Background

Tanzania has a sexual and reproductive health (SRH) crisis, a particularly vulnerable population of people with disabilities (PWD), and a need for healthcare providers trained in PWD-focused SRH care. However, SRH services are limited, and the inclusion of PWD in SRH efforts is rare in Tanzania. The current study examined the feasibility and acceptability of addressing this critical gap by training future healthcare professionals in SRH for PWD.

Objective

To determine the feasibility and acceptability of a PWD-focused SRH training to be delivered to healthcare students attending Muhimbili University of Health and Allied Science (MUHAS) in Dar es Salaam, Tanzania.

Methods

A mixed methods design via a survey taken by 409 medical, nursing, and midwifery student participants was employed to determine the feasibility and acceptability of a new curriculum focused on the SRH needs of PWD. Data were assessed using descriptive statistics and reflexive content analysis.

Results

Data indicate that 83.6% and 97.6% of medical, nursing, and midwifery students believe that an SRH training centered on the needs of PWD is feasible and acceptable, respectively. Moreover, findings indicated that 50.4% of medical, nursing, and midwifery students at MUHAS receive little to no training in SRH for PWD. Participants’ qualitative responses indicated that the training would improve the quality of life for PWD, address their vulnerability and healthcare neglect, and benefit society.

Conclusion

MUHAS students find a PWD-focused SRH training to be feasible, acceptable, and needed, presenting an opportunity for great impact.
背景:坦桑尼亚面临性健康和生殖健康(SRH)危机,特别脆弱的残疾人人口(PWD),需要受过以残疾人为重点的性健康和生殖健康护理培训的保健提供者。然而,性健康和生殖健康服务有限,在坦桑尼亚,将残疾人纳入性健康和生殖健康工作的情况很少见。目前的研究考察了通过培训未来的医疗保健专业人员在残疾患者的性健康和生殖健康方面解决这一关键差距的可行性和可接受性。目的:确定向坦桑尼亚达累斯萨拉姆Muhimbili卫生与相关科学大学(MUHAS)的保健专业学生提供以残疾人为重点的SRH培训的可行性和可接受性。方法:采用混合方法设计,对409名医学、护理和助产学学生进行调查,以确定针对残疾患者SRH需求的新课程的可行性和可接受性。使用描述性统计和反身性内容分析对数据进行评估。结果:83.6%的医科学生、97.6%的护理学学生和97.6%的助产学学生分别认为以残疾人需求为中心的SRH培训是可行的和可接受的。此外,调查结果表明,在MUHAS, 50.4%的医学、护理和助产学学生几乎没有接受过残疾人性健康和生殖健康方面的培训。与会者的定性回答表明,培训将改善残疾人的生活质量,解决他们的脆弱性和医疗忽视问题,造福社会。结论:MUHAS学生发现以残疾人为中心的SRH培训是可行的,可接受的,也是必要的,提供了一个产生巨大影响的机会。
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引用次数: 0
The direct support professional (DSP) workforce as a social determinant of health of people with intellectual and developmental disabilities. 直接支助专业人员作为智力和发育残疾者健康的社会决定因素。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-23 DOI: 10.1016/j.dhjo.2025.102023
Carli Friedman

Background: Direct support professionals (DSPs) play a key role in supporting the health and quality of life of people with intellectual and developmental disabilities (IDD). Despite the importance of their roles, the DSP workforce also represents a major threat to the health and quality of life of people with IDD due to the instability of the workforce, and the consequences of this instability.

Objective: We theorize and purport that the status, availability, and quality of the DSP workforce should be considered a social determinant of health of people with IDD. Thus, the aim of this study was to examine the relationship between DSP turnover, and people with IDD's health and social determinants of health-related outcomes.

Methods: We analyzed secondary Personal Outcome Measures (POM) data from 5457 people with IDD (January 2018 and December 2024) using descriptive statistics, binary logistic regressions, and negative binomial regression models.

Results: People with IDD who experienced DSP turnover were significantly less likely to have health outcomes present, and to receive person-centered health supports (odds ratios ranged from 0.50 to 0.77). People with IDD who experienced DSP turnover also had a 19.10 % decrease in other social determinants of health-related outcomes.

Conclusions: The harms of an unstable DSP workforce can be two-fold, in that it both directly negatively impacts people with IDD's health outcomes and health services, and it negatively impacts other areas of people with IDD's lives that also serve as social determinants of health, which also go on to hinder people with IDD's health.

背景:直接支持专业人员(dsp)在支持智力和发育障碍(IDD)患者的健康和生活质量方面发挥着关键作用。尽管DSP工作人员的作用很重要,但由于工作人员的不稳定以及这种不稳定的后果,它们也对缺碘症患者的健康和生活质量构成了重大威胁。目的:我们的理论和主张,DSP劳动力的地位,可用性和质量应被视为缺乏症患者健康的社会决定因素。因此,本研究的目的是检查DSP转换与IDD患者健康和健康相关结局的社会决定因素之间的关系。方法:采用描述性统计、二元logistic回归和负二项回归模型对5457例IDD患者(2018年1月至2024年12月)的次要个人结局测量(POM)数据进行分析。结果:经历DSP转换的IDD患者出现健康结果和接受以人为中心的健康支持的可能性显著降低(优势比范围为0.50至0.77)。经历过DSP转换的IDD患者在健康相关结果的其他社会决定因素方面也降低了19.10%。结论:不稳定的DSP工作人员的危害可能是双重的,因为它既直接对IDD患者的健康结果和卫生服务产生负面影响,也对IDD患者生活的其他领域产生负面影响,这些领域也是健康的社会决定因素,也会继续阻碍IDD患者的健康。
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引用次数: 0
Disability competencies in the licensure examinations of health professions. 保健专业人员执照考试中的残疾能力。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-22 DOI: 10.1016/j.dhjo.2025.102021
Lucy C Campbell, Leslie Rydberg

Background: Disability-centric curricula in the education of health providers are often limited and highly variable across programs. It is unclear whether disability-centric content is tested in the licensure exams of health professions.

Objective: To evaluate the congruency of the licensure exams of eight health professions with the Core Competencies on Disability for Health Care Education.

Methods: We performed a cross-sectional analysis of publicly available official exam content outlines via key word search and manual mapping to identify the presence of Core Competencies.

Results: The median number of Core Competencies addressed by the content outlines was three (range 1-4). The most common Core Competency was Competency 2 (professionalism and patient-centered care; 8/8 exams), often in the context of using interpretive services or accessible forms of communication. No content outline addressed Competency 4 (teams and systems-based care), and only one addressed Competency 3 (legal obligations). The exams for physical therapy, occupational therapy, and clinical social work addressed the most competencies (4/6); the exam for physician assistants addressed the fewest (1/6). The median number of uses of the words "disabilit (y/ies)" and "disabl (ed/ing)" within content outlines was 1.5 (range: 0-11), with two outlines lacking any uses.

Conclusion: On average, health professions licensure exams, as proxied by their content outlines, addressed only half of the Core Competencies on Disability and often in a limited, specific manner. With the high and increasing prevalence of disability among American adults, health professions should strive to educate and assess their students using a disability-competent curriculum.

背景:以残疾为中心的课程在卫生服务提供者的教育中往往是有限的,并且在不同的项目中变化很大。目前尚不清楚在卫生专业执照考试中是否会测试以残疾人为中心的内容。目的:评价八种卫生专业从业人员执业资格考试与残疾保健教育核心能力的一致性。方法:我们通过关键词搜索和手工映射对公开可用的官方考试内容大纲进行横断面分析,以确定核心竞争力的存在。结果:内容大纲所涉及的核心竞争力的中位数为3(范围1-4)。最常见的核心能力是能力2(专业精神和以病人为中心的护理;8/8考试),通常在使用口译服务或无障碍交流形式的背景下。没有内容大纲提到能力4(团队和基于系统的护理),只有一个提到能力3(法律义务)。物理治疗、职业治疗和临床社会工作考试的能力水平最高(4/6);医师助理的考试涉及最少(1/6)。在内容大纲中,“残疾(y/ies)”和“残疾(ed/ing)”的使用次数中位数为1.5次(范围:0-11),其中两个大纲没有任何使用。结论:平均而言,从其内容大纲来看,卫生专业执照考试只涉及残疾核心能力的一半,而且往往是有限的、具体的方式。随着美国成年人中残疾的高发病率和不断增加的患病率,卫生专业人员应努力使用残疾相关课程来教育和评估学生。
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引用次数: 0
Unmet educational accommodation needs and mental health outcomes in adults with disabilities: A machine learning approach 残疾成人未满足的教育住宿需求和心理健康结果:机器学习方法。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-01 Epub Date: 2025-05-13 DOI: 10.1016/j.dhjo.2025.101849
Bryan R. Christ, Lucie Adams, Benjamin Ertman, Paul B. Perrin

Background

No research has yet determined exactly what accommodation needs are unmet for disabled students and how those needs being unmet predict psychosocial outcomes many years later.

Objective

To address this research gap, we seek to explore the potentially long-term associations of unmet educational accommodation needs and demographic characteristics with the mental health of adults with disabilities (n = 409).

Methods

To explore these associations, we use modern the machine learning technique of Random Forest feature importance.

Results

While 52.3 % of the sample reported having had one or more unmet accommodation needs while going to school, 57.2 % displayed current clinically elevated symptoms of depression and 48.4 % clinically elevated symptoms of anxiety. The machine learning approaches had 65.9 % and 60.0 % accuracy in correctly classifying clinically elevated depression and anxiety symptoms, respectively. For the models predicting clinically elevated depression symptoms using mean decrease in impurity (MDI) and permutation importance, unmet accommodation needs ranked fifth and fourth, respectively, in feature importance after age, disability severity, high school GPA, and individual income (for MDI). For the MDI model predicting clinically elevated anxiety symptoms, unmet academic accommodation ranked third in feature importance behind disability severity and age, while for permutation importance, unmet academic accommodation need ranked fourth behind age, urbanicity, and disability severity.

Conclusion

Unmet academic accommodations may result in reduced psychological adjustment and quality of life potentially many years into adulthood.
背景:目前还没有研究确切地确定残疾学生的哪些住宿需求未得到满足,以及这些需求未得到满足如何预测多年后的社会心理结果。目的:为了解决这一研究空白,我们试图探索未满足的教育住宿需求和人口统计学特征与残疾成人心理健康的潜在长期联系(n = 409)。方法:为了探索这些关联,我们使用随机森林特征重要性的现代机器学习技术。结果:虽然52.3%的样本报告在上学期间有一个或多个未满足的住宿需求,但57.2%的人目前表现出临床升高的抑郁症状,48.4%的人表现出临床升高的焦虑症状。机器学习方法在正确分类临床升高的抑郁和焦虑症状方面分别具有65.9%和60.0%的准确率。对于使用杂质(MDI)和排列重要性的平均减少来预测临床抑郁症状升高的模型,未满足的住宿需求分别排在年龄、残疾严重程度、高中GPA和个人收入(MDI)之后的特征重要性第五和第四。对于预测临床焦虑症状升高的MDI模型,未满足的学术住宿在特征重要性上排名第三,落后于残疾严重程度和年龄,而在排列重要性上,未满足的学术住宿需求排名第四,落后于年龄、城市化和残疾严重程度。结论:未满足的学术住宿可能导致心理适应和生活质量的降低,并可能在成年后很多年。
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引用次数: 0
Use of the International Classification of Functioning, Disability and Health (ICF) in integrated care for people with disabilities: A scoping review using the SELFIE framework 在残疾人综合护理中使用国际功能、残疾和健康分类:使用自拍框架的范围审查。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-01 Epub Date: 2025-05-14 DOI: 10.1016/j.dhjo.2025.101854
Hye-Jin Kim , Bokyoung Choi , Eunhee Choi , Haesong Kim , Soong-Nang Jang , Jae-Young Lim , Kim Bulkeley , Jennifer Smith-Merry

Background

Integrated care addresses system fragmentation, especially for people with disabilities who require support across multiple domains. Most models focus on healthcare, overlooking social and environmental factors that hinder health management for people with disabilities. The International Classification of Functioning, Disability and Health (ICF)'s biopsychosocial approach integrates these broader factors, but its application in integrated care remains underexplored.

Objective

This scoping review aimed to explore the application of the ICF in research on integrated care, informed by the SELFIE framework, within the context of disability.

Methods

Following Joanna Briggs Institute's guidance and the PRISMA extension for scoping reviews, seven databases were searched from January 2011 to September 2023. Independent screening, selection, and data extraction were performed, with key findings related to integrated care identified deductively using the SELFIE framework.

Results

Twenty-six studies were included. These focused on populations with visual impairments, hearing loss, intellectual or developmental disabilities, spinal cord injuries, brain injuries, physical and learning disabilities, psychological impairment, and wheelchair users. Most studies applied the ICF as a conceptual framework rather than a coding system. Key elements of integrated care, such as holistic assessment, service delivery, leadership, governance, and workforce, were emphasized, while components like financing, technology, and research received limited attention.

Conclusions

Traditional integrated care models, focusing on disease management, fall short for people with disabilities, who have diverse, often cross-system needs and social barriers. This review highlights the importance of integrating the context of disability, with the ICF's biopsychosocial model playing a crucial role in addressing environmental factors impacting body functions, activities, and participation.
背景:综合护理解决了系统碎片化问题,特别是对于需要跨多个领域支持的残疾人。大多数模式侧重于医疗保健,忽略了阻碍残疾人健康管理的社会和环境因素。国际功能、残疾和健康分类(ICF)的生物心理社会方法整合了这些更广泛的因素,但其在综合护理中的应用仍未得到充分探索。目的:本综述旨在探讨ICF在残疾背景下的综合护理研究中的应用,并以自拍框架为依据。方法:根据Joanna Briggs Institute的指导和PRISMA扩展的范围审查,检索2011年1月至2023年9月的7个数据库。进行了独立筛选、选择和数据提取,并使用SELFIE框架推断出与综合护理相关的主要发现。结果:纳入26项研究。这些措施的重点是视力障碍、听力损失、智力或发育障碍、脊髓损伤、脑损伤、身体和学习障碍、心理障碍以及轮椅使用者。大多数研究将ICF作为一个概念框架而不是编码系统。综合护理的关键要素,如整体评估、服务提供、领导、治理和劳动力,得到了强调,而融资、技术和研究等要素得到的关注有限。结论:传统的以疾病管理为重点的综合护理模式无法满足残疾人的需求,因为残疾人的需求多种多样,往往是跨系统的,而且存在社会障碍。这篇综述强调了整合残疾背景的重要性,ICF的生物心理社会模型在解决影响身体功能、活动和参与的环境因素方面起着至关重要的作用。
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引用次数: 0
Author Information 作者信息
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-01 Epub Date: 2025-09-03 DOI: 10.1016/S1936-6574(25)00172-4
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引用次数: 0
Income effects on travel mode choices among people with and without disabilities: Operationalizing the capability approach 收入对残疾人和非残疾人出行方式选择的影响:能力方法的可操作性。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-01 Epub Date: 2025-05-16 DOI: 10.1016/j.dhjo.2025.101850
Jaekyeong Kwon

Background

Income helps low-income individuals reduce their reliance on transit and walking and increase car travel. People with disabilities might face challenges in improving their private vehicle access due to disability-related extra costs.

Objective

This study examines whether income has different impacts on travel mode choice based on disability status, disability type, and level of activity limitations.

Methods

This study used time diary data from the nationally representative American Time Use Survey to estimate the differences in income effects on the likelihood of using public transit, walking, and traveling in private vehicles as drivers or as passengers between working-age adults with and without disabilities. Confounding variables included socioeconomic, demographic, household, and geographic characteristics.

Results

Income was associated with a three-percentage-point (95 % CI: 0, 6) higher likelihood of using private vehicles as passengers for people with disabilities. In addition, people with vision disability were 10 percentage points (95 % CI: 4, 16) more likely to travel as passengers when they had more income. In contrast, people without disabilities were equally likely to travel as passengers regardless of income. Whereas people without disabilities were 10 percentage points (95 % CI: 8, 11) more likely to drive when they had more income, income was not associated with a higher likelihood of driving for people with activity-limiting disability.

Conclusions

Income effectively expands transportation options for people with disabilities beyond transit and walking. Personal care assistant programs with high reimbursement rates can ease the financial burden of people with disabilities who pay others to travel as passengers.
背景:收入帮助低收入人群减少对交通和步行的依赖,增加汽车出行。由于残疾相关的额外费用,残疾人在改善私家车通道方面可能面临挑战。目的:研究收入对不同残疾状况、残疾类型和活动受限程度的出行方式选择是否有不同的影响。方法:本研究使用了具有全国代表性的美国时间使用调查的时间日志数据,以估计收入对使用公共交通、步行和乘坐私家车的可能性的影响,在工作年龄的成年人中,有残疾的和没有残疾的。混杂变量包括社会经济、人口统计学、家庭和地理特征。结果:收入与残疾人使用私家车作为乘客的可能性增加3个百分点(95% CI: 0.6)相关。此外,有视力障碍的人收入越高,作为乘客出行的可能性就越高10个百分点(95% CI: 4,16)。相比之下,无论收入如何,没有残疾的人都同样有可能作为乘客出行。当没有残疾的人收入更高时,他们开车的可能性会高10个百分点(95% CI: 8,11),而收入与活动受限的人开车的可能性无关。结论:收入有效地扩大了残疾人在交通和步行之外的交通选择。报销率高的个人护理助理项目可以减轻残疾人士的经济负担,因为他们要付钱给其他人作为乘客旅行。
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引用次数: 0
Cancer inequalities experienced by people with disability: a systematic review 残疾人经历的癌症不平等:系统回顾。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-01 Epub Date: 2025-05-14 DOI: 10.1016/j.dhjo.2025.101851
Yi Yang , Nina Afshar , Joanna Butchart , Alex Sully , Rebecca J. Bergin , Anne Kavanagh , George Disney

Background

People with disability experience worse cancer outcomes than people without disability. One potential pathway is through low screening participation leading to delayed cancer diagnosis and late disease presentation.

Objective

To summarise and evaluate evidence quantifying disability-related inequalities in (1) cancer mortality, (2) fatality among cancer patients; and for cervical, breast, colorectal and lung cancers: (3) screening participation and (4) stage at diagnosis.

Methods

We searched MEDLINE, Embase, PsycInfo and Scopus up to November 2023 for studies that quantified disability-related inequalities in the four outcomes. Studies were evaluated using the Risk Of Bias In Non-randomized Studies - of Exposures tool.

Results

We found 73 eligible articles globally. People with disability had higher cancer mortality compared to those without. This inequality was most pronounced among people with intellectual disability. Evidence showed substantially higher fatality among cancer patients with disability compared to those without consistently across disability groups and cancer types. Screening uptake for breast, cervical and colorectal cancers was consistently lower for people with various disability types in multiple countries. Evidence regarding inequalities in stage at diagnosis for people with disability was limited and inconsistent. The main methodological challenges for future research are: complexity in defining disability, underestimation of inequalities due to over-adjustment of mediating factors, under-representation of people with severe disability in data, and reporting inequalities on relative scales only.

Conclusions

Existing evidence reinforces the need for high-quality cancer inequality research for this population, and a multi-pronged, inclusive approach to prioritise people with disability in the whole cancer control pathway.
背景:残疾人的癌症预后比正常人差。一个潜在的途径是通过低筛查参与导致延迟癌症诊断和晚期疾病表现。目的:总结和评价量化残疾相关不平等的证据(1)癌症死亡率,(2)癌症患者病死率;对于宫颈癌、乳腺癌、结直肠癌和肺癌:(3)参与筛查和(4)诊断阶段。方法:我们检索MEDLINE、Embase、PsycInfo和Scopus,检索到2023年11月量化这四个结局中残疾相关不平等的研究。使用非随机研究的偏倚风险评估工具对研究进行评估。结果:我们在全球范围内找到了73篇符合条件的文章。与正常人相比,残疾人的癌症死亡率更高。这种不平等在智障人群中表现得最为明显。有证据表明,在残疾群体和癌症类型中,残疾癌症患者的死亡率明显高于非残疾癌症患者。在许多国家,各种残疾类型的人对乳腺癌、宫颈癌和结直肠癌的筛查率一直较低。关于残疾人在诊断阶段不平等的证据有限且不一致。未来研究的主要方法挑战是:定义残疾的复杂性,由于过度调整中介因素而对不平等的低估,数据中严重残疾人群的代表性不足,以及仅在相对尺度上报告不平等。结论:现有证据表明,有必要对这一人群进行高质量的癌症不平等研究,并采取多管齐下、包容性的方法,在整个癌症控制途径中优先考虑残疾人。
{"title":"Cancer inequalities experienced by people with disability: a systematic review","authors":"Yi Yang ,&nbsp;Nina Afshar ,&nbsp;Joanna Butchart ,&nbsp;Alex Sully ,&nbsp;Rebecca J. Bergin ,&nbsp;Anne Kavanagh ,&nbsp;George Disney","doi":"10.1016/j.dhjo.2025.101851","DOIUrl":"10.1016/j.dhjo.2025.101851","url":null,"abstract":"<div><h3>Background</h3><div>People with disability experience worse cancer outcomes than people without disability. One potential pathway is through low screening participation leading to delayed cancer diagnosis and late disease presentation.</div></div><div><h3>Objective</h3><div>To summarise and evaluate evidence quantifying disability-related inequalities in (1) cancer mortality, (2) fatality among cancer patients; and for cervical, breast, colorectal and lung cancers: (3) screening participation and (4) stage at diagnosis.</div></div><div><h3>Methods</h3><div>We searched MEDLINE, Embase, PsycInfo and Scopus up to November 2023 for studies that quantified disability-related inequalities in the four outcomes. Studies were evaluated using the Risk Of Bias In Non-randomized Studies - of Exposures tool.</div></div><div><h3>Results</h3><div>We found 73 eligible articles globally. People with disability had higher cancer mortality compared to those without. This inequality was most pronounced among people with intellectual disability. Evidence showed substantially higher fatality among cancer patients with disability compared to those without consistently across disability groups and cancer types. Screening uptake for breast, cervical and colorectal cancers was consistently lower for people with various disability types in multiple countries. Evidence regarding inequalities in stage at diagnosis for people with disability was limited and inconsistent. The main methodological challenges for future research are: complexity in defining disability, underestimation of inequalities due to over-adjustment of mediating factors, under-representation of people with severe disability in data, and reporting inequalities on relative scales only.</div></div><div><h3>Conclusions</h3><div>Existing evidence reinforces the need for high-quality cancer inequality research for this population, and a multi-pronged, inclusive approach to prioritise people with disability in the whole cancer control pathway.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 4","pages":"Article 101851"},"PeriodicalIF":3.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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Disability and Health Journal
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