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The excess Medicare costs of long-term medical condition or disability: A longitudinal population-based study of Australian children. 长期医疗状况或残疾的额外医疗保险费用:一项基于澳大利亚儿童的纵向人口研究。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-30 DOI: 10.1016/j.dhjo.2025.101971
Kabir Ahmad, Rasheda Khanam, Byron Keating, Syed Afroz Keramat, Rubayyat Hashmi, Enamul Kabir, Hendrik Jürges

Background: Little is known about the longitudinal relationship between the prevalence of childhood medical conditions or disabilities (MCoD) lasting at least six months and associated excess healthcare costs to the public payer (Medicare).

Objective: To determine the additional federally funded Medicare costs for children who have a long-term medical condition or disability and to investigate whether these costs rise due to the recurring presence of the conditions over time.

Methods: This study utilised data from the nationally representative Longitudinal Study of Australian Children, comprising Birth (B) and Kindergarten (K) cohorts, involving 9,224 children. Based on Medicare data linkage, the analysis included 54,285 observations longitudinally. Generalised linear models with a log link and gamma distribution were employed to estimate the impact of childhood MCoD on Medicare costs over 14 years for the B cohort and 12 years for the K cohort. All models were adjusted for demographic, socioeconomic, and selected child medical characteristics.

Results: On average, children with long-term MCoD incurred excess Medicare costs ranging from A$494 to A$784 biennially, in the different age groups of 0-1 to 16-17 years, compared to children without such conditions. Nationally, this translates to an estimated total additional Medicare expenditure of A$313.0 million for a cohort of children from age 0-1 year to 16-17 years.

Conclusion: The findings highlight the significant excess public Medicare costs associated with childhood MCoD in Australia. These results will be beneficial for future cost-effectiveness analysis and for improving public health planning aimed at improving support for children with long-term medical conditions or disabilities.

背景:关于持续至少6个月的儿童医疗状况或残疾(MCoD)患病率与相关的公共支付者(Medicare)的超额医疗费用之间的纵向关系,我们知之甚少。目的:确定患有长期疾病或残疾的儿童的额外联邦资助医疗保险费用,并调查这些费用是否因长期反复出现的疾病而增加。方法:本研究利用了具有全国代表性的澳大利亚儿童纵向研究的数据,包括出生(B)和幼儿园(K)队列,涉及9,224名儿童。基于医疗保险数据链接,分析包括54285个纵向观察。采用具有对数链接和伽马分布的广义线性模型来估计B组14年和K组12年儿童MCoD对医疗保险成本的影响。所有模型都根据人口统计学、社会经济和选定的儿童医学特征进行了调整。结果:平均而言,在0-1岁至16-17岁的不同年龄组中,患有长期MCoD的儿童与没有此类疾病的儿童相比,每年额外的医疗保险费用从494澳元到784澳元不等。在全国范围内,这意味着0-1岁至16-17岁儿童的医疗保险额外支出总额估计为3.13亿澳元。结论:研究结果强调了澳大利亚与儿童MCoD相关的公共医疗保险费用的显著过剩。这些结果将有利于今后的成本效益分析和改善公共卫生规划,以改善对患有长期疾病或残疾的儿童的支助。
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引用次数: 0
Shifting perspectives: Mental health and transition to adulthood in youth with cerebral palsy. 转变观点:脑瘫青年的心理健康和向成年的过渡。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-29 DOI: 10.1016/j.dhjo.2025.101970
Maggie Sheridan, Jensine Clark

Cerebral palsy (CP) is a lifelong condition that affects 1.5-3.4 per 1000 children worldwide. As they grow older, these children must transition from pediatric to adult healthcare services. This transition comes with stress and uncertainty for a population that is already at a higher risk of poor mental health. This paper discusses what is known about mental health in youth with CP and its impact on their transition within the medical system. It also uses a biopsycho-ecological framework to understand how transition impacts several domains of their life including family structure and social participation. Actionable guidance for medical providers and caregivers is given to promote a healthier transition process.

脑瘫是一种终身疾病,全世界每1000名儿童中有1.5-3.4人受到影响。随着年龄的增长,这些儿童必须从儿科医疗服务过渡到成人医疗服务。这一转变伴随着压力和不确定性,这一人群已经处于心理健康状况不佳的高风险之中。本文讨论了什么是已知的心理健康的青少年与CP及其影响他们在医疗系统内的过渡。它还使用生物心理生态框架来理解过渡如何影响他们生活的几个领域,包括家庭结构和社会参与。为医疗提供者和护理人员提供了可操作的指导,以促进更健康的过渡进程。
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引用次数: 0
Association of disability and inflammation: Potential risks to a vulnerable population 残疾和炎症的关联:对脆弱人群的潜在风险。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-29 DOI: 10.1016/j.dhjo.2025.101969
Rachel Liu-Galvin , Frank A. Orlando , Arch G. Mainous

Background

Disabilities are prevalent and linked to a wide variety of functional limitations, while inflammation, a key factor in chronic disease development and progression, is not a screening or treatment target and is therefore very rarely detected. Understanding the association between disabilities and inflammation is essential to address potential risks in this vulnerable population.

Objective

To determine whether individuals with disabilities are more likely to have elevated inflammation compared to those without.

Methods

In this cross-sectional study of a nationally representative sample of U.S. adults in the 2021–2023 National Health and Nutrition Examination Survey, survey-weighted logistic regression examined the associations between disabilities and high-sensitivity C-Reactive Protein (hs-CRP) levels. Adjusted models controlled for age, sex, race/ethnicity, poverty, health insurance, hypertension, diabetes, coronary heart disease, stroke, rheumatoid arthritis, and smoking.

Results

Individuals with disabilities had higher odds of hs-CRP >3 mg/L (adjusted OR: 1.46, 95 % CI: 1.21–1.76) and >10 mg/L (adjusted OR: 1.61, 95 % CI: 1.17–2.22) compared to those without disabilities. Physical disabilities were significantly associated with hs-CRP >3 mg/L (adjusted OR: 1.61, 95 % CI: 1.26–2.07) and >10 mg/L (adjusted OR: 1.94, 95 % CI: 1.47–2.55). Mental disabilities were associated with elevated hs-CRP in unadjusted but not adjusted models.

Conclusions

Disabilities, particularly physical disabilities, are associated with elevated inflammation, which may reflect underlying biological processes, reduced mobility, or cumulative health burden. The increased burden of systemic inflammation among individuals with disabilities supports consideration of hs-CRP as a potential marker for identifying elevated health risk in this population.
背景:残疾很普遍,并与各种各样的功能限制有关,而炎症作为慢性疾病发展和进展的关键因素,并不是筛查或治疗目标,因此很少被发现。了解残疾和炎症之间的关系对于解决这一弱势群体的潜在风险至关重要。目的:确定与正常人相比,残疾人是否更容易出现炎症升高。方法:在2021-2023年全国健康与营养检查调查中,对具有全国代表性的美国成年人样本进行横断面研究,调查加权logistic回归研究了残疾与高敏c反应蛋白(hs-CRP)水平之间的关系。调整后的模型控制了年龄、性别、种族/民族、贫困、健康保险、高血压、糖尿病、冠心病、中风、类风湿关节炎和吸烟等因素。结果:与无残疾的人相比,残疾个体的hs-CRP水平为>3 mg/L(校正OR: 1.46, 95% CI: 1.21-1.76)和>10 mg/L(校正OR: 1.61, 95% CI: 1.17-2.22)的几率更高。身体残疾与hs-CRP >3 mg/L(校正OR: 1.61, 95% CI: 1.26-2.07)和>10 mg/L(校正OR: 1.94, 95% CI: 1.47-2.55)显著相关。在未调整和未调整的模型中,精神残疾与hs-CRP升高有关。结论:残疾,特别是身体残疾,与炎症升高有关,这可能反映了潜在的生物学过程、活动能力降低或累积的健康负担。残疾人群全身性炎症负担的增加支持了hs-CRP作为识别该人群健康风险升高的潜在标记物的考虑。
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引用次数: 0
Does a one-week disability awareness training influence medical students attitudes? A French mixed-methods study. 为期一周的残疾意识训练是否影响医学生的态度?一项法国混合方法研究。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-25 DOI: 10.1016/j.dhjo.2025.101968
Hugo Bessaguet, Charlotte Coeurdacier De Gesnes, Diana Rimaud, Bruno Fernandez, Pierre Flori, Philippe Berthelot, Marilyne Peyroche, Yann Boulon, Ahmed Adham, Pascal Giraux, Vincent Gautheron, Rodolphe Charles, Etienne Ojardias

Background: Disability is experienced by approximately 1.3 billion individuals worldwide. Therefore, people with disabilities (PWD) are part of every physician's patient base, regardless of specialty. Specific educational programs are needed, as medical students and physicians still report discomfort in taking histories, performing clinical examinations and making differential diagnoses when dealing with PWD.

Objective: We hypothesized that participation in a one-week disability awareness training, including theoretical sessions, practical workshops with PWD, and 3-day immersive training courses, would significantly improve the quantitative and qualitative outcomes of medical students toward PWD.

Methods: We conducted a monocentric prospective mixed-methods study targeting 3rd year medical students, using quantitative measurements through repeated synchronous surveys, evaluating disability attitudes in health care (DAHC) scores and performed qualitative explorations through individual semidirected interviews, evaluating students' feelings and attitudes toward PWD.

Results: A total of 218 students (mean age: 21.1 ± 1.4 years) were included in the study. While 60 % of the participants reported no prior working experience with PWD, there was a significant improvement in paired-DAHC scores 3 months after the training (+1.32, p = 0.003). Improvements were predominantly observed in comfort levels during interaction and in discriminatory attitudes. This practical experience was positively reported in the semidirected interviews, in which a facilitated transition from unfamiliarity to informed empathy and knowledge was reported.

Conclusions: The implementation of disability awareness trainings in compulsory medical curricula should be prioritized to improve future physician's skills and attitudes when caring for PWD.

背景:全世界大约有13亿人患有残疾。因此,残疾人(PWD)是每个医生的病人基础的一部分,无论专业如何。具体的教育项目是必要的,因为医学生和医生在记录病史、进行临床检查和在处理PWD时进行鉴别诊断时仍然感到不适。目的:我们假设参加为期一周的残疾意识培训,包括理论课程、残疾实践研讨会和为期3天的沉浸式培训课程,将显著提高医学生对残疾的定量和定性结果。方法:以三年级医学生为研究对象,采用单中心前瞻性混合方法,通过重复同步调查进行定量测量,评估医疗保健中的残疾态度(DAHC)得分,并通过个人半定向访谈进行定性探索,评估学生对残疾的感受和态度。结果:共纳入218名学生,平均年龄21.1±1.4岁。虽然60%的参与者报告之前没有与PWD相关的工作经验,但在培训后3个月,配对dahc评分有显著改善(+1.32,p = 0.003)。改善主要体现在互动时的舒适度和歧视态度上。这种实践经验在半导向访谈中得到了积极的报告,其中报告了从不熟悉到知情的移情和知识的便利过渡。结论:应优先在医学必修课程中开展残疾意识培训,以提高未来医师在护理残疾患者时的技能和态度。
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引用次数: 0
Healthcare disparities in colorectal cancer prevention for people with intellectual and developmental disabilities: A caregiver perspective 智力和发育障碍人群预防结直肠癌的保健差异:护理者视角。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-16 DOI: 10.1016/j.dhjo.2025.101967
Elisabeth L. Zeilinger , Theresa Wagner , Amelie Fuchs , Manon Schroeder , Nadine Brunevskaya , Jakob Pietschnig , Pavol Mikula , Matthias Unseld

Background

Colorectal cancer (CRC) screening is crucial for early detection, but people with intellectual and developmental disabilities (IDD) face significant healthcare disparities, including lower screening rates.

Objective

This study explores barriers and facilitators to CRC screening for individuals with IDD from the caregiver perspective.

Methods

Semi-structured interviews were conducted with 13 caregivers (eight women, mean age 45) of individuals with IDD in Austria and analyzed using thematic analysis. A modified version of the Bowel Cancer Awareness Measure (CAM) questionnaire was used to assess CRC-related healthcare literacy of the caregivers.

Results

The modified CAM revealed low CRC knowledge among caregivers, with gaps in symptom and risk factor recognition and low self-reported confidence in symptom detection. Four themes emerged from the interviews: (1) Improving access to inclusive healthcare, highlighting systemic healthcare challenges, inclusive environments, clinician expertise, and health education; (2) Managing IDD-specific challenges, including communication difficulties, reliance on routines, and comorbidities; (3) The critical role of caregiver support, focusing on the empowerment of people with IDD; and (4) Challenging stigma and bridging social gaps, addressing stereotypes and social segregation of people with IDD.

Conclusions

This study serves as a case study, illustrating how the exclusion of people with IDD from the design of preventive healthcare perpetuates inequities in CRC screening, and emphasizing the need for more inclusive systems and practices. Addressing these shortcomings requires improved knowledge and educational resources, disability-sensitive training for professionals, accessible healthcare environments and systemic efforts to promote autonomy and reduce stigma.
背景:结直肠癌(CRC)筛查对于早期发现至关重要,但智力和发育障碍(IDD)患者面临着显著的医疗差距,包括筛查率较低。目的:本研究从护理者的角度探讨IDD患者CRC筛查的障碍和促进因素。方法:对奥地利IDD患者的13名护理人员(8名女性,平均年龄45岁)进行半结构化访谈,并采用主题分析法进行分析。一个修改版本的肠癌意识测量(CAM)问卷被用来评估crc相关的护理人员的卫生保健素养。结果:改进后的CAM显示护理人员对结直肠癌的认知程度较低,在症状和危险因素认知方面存在差距,在症状检测方面自报信心较低。访谈中出现了四个主题:(1)改善获得包容性医疗的机会,突出系统性医疗挑战、包容性环境、临床医生专业知识和健康教育;(2)应对idd特有的挑战,包括沟通困难、对日常生活的依赖和合并症;(3)护理人员支持的关键作用,重点是增强缺乏症患者的权能;(4)挑战耻辱感,弥合社会差距,解决对缺乏症患者的刻板印象和社会隔离问题。结论:本研究作为一个案例研究,说明将IDD患者排除在预防性医疗保健设计之外如何使CRC筛查中的不公平现象长期存在,并强调需要更具包容性的系统和实践。要解决这些缺点,需要改进知识和教育资源,对专业人员进行对残疾问题敏感的培训,提供无障碍的医疗保健环境,并系统性地努力促进自主和减少耻辱感。
{"title":"Healthcare disparities in colorectal cancer prevention for people with intellectual and developmental disabilities: A caregiver perspective","authors":"Elisabeth L. Zeilinger ,&nbsp;Theresa Wagner ,&nbsp;Amelie Fuchs ,&nbsp;Manon Schroeder ,&nbsp;Nadine Brunevskaya ,&nbsp;Jakob Pietschnig ,&nbsp;Pavol Mikula ,&nbsp;Matthias Unseld","doi":"10.1016/j.dhjo.2025.101967","DOIUrl":"10.1016/j.dhjo.2025.101967","url":null,"abstract":"<div><h3>Background</h3><div>Colorectal cancer (CRC) screening is crucial for early detection, but people with intellectual and developmental disabilities (IDD) face significant healthcare disparities, including lower screening rates.</div></div><div><h3>Objective</h3><div>This study explores barriers and facilitators to CRC screening for individuals with IDD from the caregiver perspective.</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with 13 caregivers (eight women, mean age 45) of individuals with IDD in Austria and analyzed using thematic analysis. A modified version of the Bowel Cancer Awareness Measure (CAM) questionnaire was used to assess CRC-related healthcare literacy of the caregivers.</div></div><div><h3>Results</h3><div>The modified CAM revealed low CRC knowledge among caregivers, with gaps in symptom and risk factor recognition and low self-reported confidence in symptom detection. Four themes emerged from the interviews: (1) <em>Improving access to inclusive healthcare</em>, highlighting systemic healthcare challenges, inclusive environments, clinician expertise, and health education; (2) <em>Managing IDD-specific challenges</em>, including communication difficulties, reliance on routines, and comorbidities; (3) <em>The critical role of caregiver</em> support, focusing on the empowerment of people with IDD; and (4) <em>Challenging stigma and bridging social gaps</em>, addressing stereotypes and social segregation of people with IDD.</div></div><div><h3>Conclusions</h3><div>This study serves as a case study, illustrating how the exclusion of people with IDD from the design of preventive healthcare perpetuates inequities in CRC screening, and emphasizing the need for more inclusive systems and practices. Addressing these shortcomings requires improved knowledge and educational resources, disability-sensitive training for professionals, accessible healthcare environments and systemic efforts to promote autonomy and reduce stigma.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"19 1","pages":"Article 101967"},"PeriodicalIF":3.3,"publicationDate":"2025-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145114560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social and attitudinal barriers to the provision of accessible housing in Canada: A qualitative study 加拿大提供无障碍住房的社会和态度障碍:一项定性研究。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-13 DOI: 10.1016/j.dhjo.2025.101966
Kirstin E. Yuzwa , Farah Bacchus-Misir , Siobhan Galeazzi-Stirling , Eva Cohen , Peter Athanasopoulos , Sander L. Hitzig , Christine L. Sheppard

Background

Housing is a critical social determinant of health and for individuals with accessibility needs, having a roof over one's head is not enough. For people requiring accessibility features to enter and exit their home, use the bathroom, or prepare meals, the absence of these features can limit social participation, increase reliance on caregivers, and negatively impact health, dignity, and safety.

Objective

This article presents a qualitative study with members from diverse key interest groups across the housing, disability, healthcare, and policy sectors to identify social and attitudinal barriers limiting accessible housing and home modifications options in Canada.

Methods

Semi-structured interviews and a demographic survey were conducted with 59 people. Participants included people with lived experience of disabilities and other end-users of accssible housing (i.e., family caregivers and people from the Deaf community), as well as cross-sectoral professionals with expertise in accessible housing. Inductive codebook thematic analysis was used to analyze the data.

Results

Four prevailing themes were identified from the data, including a lack of prioritization by policy makers and housing developers, cost-benefit appraisals of including accessibility features, discriminatory attitudes towards the aesthetics of accessibility and towards end-users, and underestimating of the need for preventative accessibility.

Conclusions

Attitudinal barriers are contributing to a lack of prioritization of accessibility in housing in Canada. To create a more inclusive housing landscape and improve public health, investments in accessible housing, policy advancement, and new regulatory measures are recommended.
背景:住房是健康的一个关键社会决定因素,对于有无障碍需求的个人来说,头上有屋顶是不够的。对于需要无障碍功能进出家中、使用浴室或准备饭菜的人来说,缺乏这些功能可能会限制社会参与,增加对照顾者的依赖,并对健康、尊严和安全产生负面影响。目的:本文对来自住房、残疾、医疗保健和政策部门不同关键利益团体的成员进行了定性研究,以确定加拿大限制无障碍住房和住房改造选择的社会和态度障碍。方法:对59人进行半结构化访谈和人口统计调查。与会者包括有残疾生活经历的人和无障碍住房的其他最终用户(即家庭照顾者和聋人社区的人),以及在无障碍住房方面具有专门知识的跨部门专业人员。采用归纳码本专题分析方法对数据进行分析。结果:从数据中确定了四个主要主题,包括政策制定者和住房开发商缺乏优先考虑,包括可访问性特征的成本效益评估,对可访问性美学和最终用户的歧视性态度,以及低估预防性可访问性需求。结论:态度障碍是导致加拿大住房可及性缺乏优先次序的原因。为创造更具包容性的住房环境和改善公共卫生,建议投资于无障碍住房、推进政策和采取新的监管措施。
{"title":"Social and attitudinal barriers to the provision of accessible housing in Canada: A qualitative study","authors":"Kirstin E. Yuzwa ,&nbsp;Farah Bacchus-Misir ,&nbsp;Siobhan Galeazzi-Stirling ,&nbsp;Eva Cohen ,&nbsp;Peter Athanasopoulos ,&nbsp;Sander L. Hitzig ,&nbsp;Christine L. Sheppard","doi":"10.1016/j.dhjo.2025.101966","DOIUrl":"10.1016/j.dhjo.2025.101966","url":null,"abstract":"<div><h3>Background</h3><div>Housing is a critical social determinant of health and for individuals with accessibility needs, having a roof over one's head is not enough. For people requiring accessibility features to enter and exit their home, use the bathroom, or prepare meals, the absence of these features can limit social participation, increase reliance on caregivers, and negatively impact health, dignity, and safety.</div></div><div><h3>Objective</h3><div>This article presents a qualitative study with members from diverse key interest groups across the housing, disability, healthcare, and policy sectors to identify social and attitudinal barriers limiting accessible housing and home modifications options in Canada.</div></div><div><h3>Methods</h3><div>Semi-structured interviews and a demographic survey were conducted with 59 people. Participants included people with lived experience of disabilities and other end-users of accssible housing (i.e., family caregivers and people from the Deaf community), as well as cross-sectoral professionals with expertise in accessible housing. Inductive codebook thematic analysis was used to analyze the data.</div></div><div><h3>Results</h3><div>Four prevailing themes were identified from the data, including a lack of prioritization by policy makers and housing developers, cost-benefit appraisals of including accessibility features, discriminatory attitudes towards the aesthetics of accessibility and towards end-users, and underestimating of the need for preventative accessibility.</div></div><div><h3>Conclusions</h3><div>Attitudinal barriers are contributing to a lack of prioritization of accessibility in housing in Canada. To create a more inclusive housing landscape and improve public health, investments in accessible housing, policy advancement, and new regulatory measures are recommended.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"19 1","pages":"Article 101966"},"PeriodicalIF":3.3,"publicationDate":"2025-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145132441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hypertension prevalence and coverage and intellectual disability: a systematic review and meta-analysis. 高血压患病率和覆盖范围与智力残疾:系统回顾和荟萃分析。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-10 DOI: 10.1016/j.dhjo.2025.101965
Rodrigo Vargas-Fernández, Akram Hernández-Vásquez, Hannah Kuper

Background: People with intellectual disabilities (ID) frequently experience poorer health and lower treatment coverage compared to those without ID, yet differences in hypertension prevalence and treatment coverage remain unclear.

Objective: To estimate the pooled prevalence ratio (PR) of hypertension and hypertension treatment coverage comparing adults with and without ID.

Methods: We searched MEDLINE, Embase, PsychINFO, Global Health and Global Index Medicus on June 6, 2024. We included observational and intervention studies that estimated the prevalence of hypertension and/or treatment coverage. The risk of bias was assessed using the Newcastle-Ottawa Scale tool. We undertook a random-effects meta-analysis to estimate the pooled PR with 95 % confidence intervals (CI). Sources of heterogeneity were explored through sensitivity and subgroup analyses, and meta-regression.

Results: 21 studies from 10 countries across three regions were included. The pooled PR were 0.71 (95 % CI: 0.47-1.05) for hypertension and 0.61 (95 % CI: 0.47-0.81) for hypertension treatment coverage. Only one study adjusted for age; most reported unadjusted estimates, making them prone to confounding. 14 studies were rated as high risk of bias. Subgroup analysis and meta-regression revealed variability in the methods used to diagnose ID, with sample size emerging as the primary source of variability in the effect estimates.

Conclusions: This systematic review showed that adults with ID have a similar prevalence of hypertension, but lower hypertension treatment coverage compared to those without disabilities. However, these results should be interpreted with caution due to the lack of adjustment for confounding in the association and variability in the diagnosis of ID.

背景:与无智力残疾者相比,智力残疾者经常经历较差的健康状况和较低的治疗覆盖率,但高血压患病率和治疗覆盖率的差异尚不清楚。目的:评估高血压合并患病率(PR)和高血压治疗覆盖率,比较患有和未患有高血压的成年人。方法:检索2024年6月6日的MEDLINE、Embase、PsychINFO、Global Health和Global Index Medicus。我们纳入了估计高血压患病率和/或治疗覆盖率的观察性和干预性研究。使用纽卡斯尔-渥太华量表工具评估偏倚风险。我们进行了随机效应荟萃分析,以95%置信区间(CI)估计合并PR。通过敏感性和亚组分析以及元回归来探索异质性的来源。结果:纳入了来自3个地区10个国家的21项研究。高血压的合并PR为0.71 (95% CI: 0.47-1.05),高血压治疗覆盖率的合并PR为0.61 (95% CI: 0.47-0.81)。只有一项研究调整了年龄;大多数报告的是未经调整的估计,这使它们容易混淆。14项研究被评为高偏倚风险。亚组分析和元回归揭示了用于诊断ID的方法的可变性,样本量成为影响估计可变性的主要来源。结论:本系统综述显示,与无残疾的成年人相比,成年ID患者高血压患病率相似,但高血压治疗覆盖率较低。然而,这些结果应该谨慎解释,因为缺乏对相关性和ID诊断变异性的混淆调整。
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引用次数: 0
Factors associated with uncertainty in parents of children with developmental disabilities: A scoping review 与发育障碍儿童父母的不确定性相关的因素:范围审查。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-07 DOI: 10.1016/j.dhjo.2025.101962
Heejung Choi , GyeongAe Seomun , Jeongeun Song

Background

Parents of children with developmental disabilities (DD) experience ongoing uncertainty, which contributes to various physical and mental health challenges. However, studies mapping the factors influencing this uncertainty and its effects on other variables remain scarce.

Objective

This study aimed to analyze and synthesize existing evidence on the factors influencing uncertainty among parents of children with DD and its impact on parental outcomes.

Methods

A scoping review was conducted following Arksey and O'Malley's framework. Relevant studies were identified through a literature review conducted across five databases—Medline/PubMed, CINAHL, Cochrane Library, Embase, and APA PsycArticles—up to March 1, 2024. Studies with English abstracts were included without time restrictions.

Results

Eight studies involving 1986 participants were analyzed. The identified influencing factors were categorized into health condition-related factors (e.g., the severity of the child's condition), family and community resources (e.g., maternal education level, trust in healthcare professionals, and appraisal support), and appraisals of uncertainty as either a risk (e.g., caregiver burden and marital conflict) or an opportunity (e.g., adaptation, quality of life, parenting efficacy, sense of coherence, optimism, and self-help).

Conclusions

The findings of this study provide essential evidence for developing effective healthcare strategies to reduce parental uncertainty. By addressing these factors, the study aims to contribute to decreasing parental uncertainty and promoting the optimal development of children with DD.
背景:发育障碍儿童(DD)的父母经历了持续的不确定性,这导致了各种身心健康挑战。然而,绘制影响这种不确定性的因素及其对其他变量的影响的研究仍然很少。目的:本研究旨在对影响DD患儿父母不确定性的因素及其对父母结局的影响进行分析和综合。方法:根据Arksey和O'Malley的框架进行范围审查。相关研究是通过对五个数据库(medline /PubMed, CINAHL, Cochrane Library, Embase和APA psycarticles)进行的文献综述确定的,截止到2024年3月1日。有英文摘要的研究纳入,没有时间限制。结果:对8项涉及1986名参与者的研究进行了分析。确定的影响因素被分类为健康状况相关因素(如儿童病情的严重程度)、家庭和社区资源(如母亲教育水平、对医疗保健专业人员的信任和评价支持),以及不确定性评估(如适应、生活质量、养育效能、一致性、乐观主义和自助),或者是风险(如照顾者负担和婚姻冲突)。结论:本研究结果为制定有效的医疗保健策略以减少父母的不确定性提供了必要的证据。通过解决这些因素,本研究旨在有助于减少父母的不确定性,促进DD儿童的最佳发展。
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引用次数: 0
Is disability prevalence higher in rural areas? Evidence from functional difficulty and nightlight data in 15 low- and middle-income countries 农村地区的残疾患病率是否更高?来自15个低收入和中等收入国家的功能困难和夜间照明数据的证据。
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-04 DOI: 10.1016/j.dhjo.2025.101964
Katherine Theiss , Bradley Carpenter , Jill Hanass-Hancock , Sureshkumar Kamalakannan , Rachel J. Kulchar , G.V.S. Murthy , Monica Pinilla-Roncancio , Minerva Rivas Velarde , Shailaja Tetali , Sophie Mitra

Background

There has been emerging evidence from country-level studies that disability prevalence tends to be lower in urban areas than in rural areas. However, such studies are difficult to compare as countries use different ways of categorizing rural and urban areas.

Objectives

We examine the association between disability measured through functional difficulties (seeing, hearing, walking, cognition, selfcare, communicating) and urban development measured through the satellite nightlight composite—an internationally comparable proxy for urban development.

Methods

We use Demographic and Health Survey data for 15 low- and middle-income countries (LMICs) with the Washington Group Short Set of questions on disability. This study uses multilevel random intercept models to estimate whether functional difficulties are negatively associated with village-level nightlight composite.

Results

While country level results vary, in the pooled sample, adults living in villages above the 80th percentile of nightlight activity have odds of reporting any functional difficulty that are 0.765 times those of adults in villages below the 80th percentile of nightlight (AOR = 0.765; 95 % CI = 0.717 to 0.816). The result is robust for each functional domain but the correlation is higher for hearing, cognition and communicating.

Conclusions

In 15 LMICs, adults in rural areas are significantly more likely to have functional difficulties compared to adults in urban areas. Research is needed on the factors that drive such a correlation, including poorer living conditions and access to services in rural areas, differential access to resources and environmental barriers in rural and urban areas and potential differences in rural-urban migration opportunities across functional difficulty status.
背景:从国家一级的研究中出现的新证据表明,城市地区的残疾患病率往往低于农村地区。然而,这些研究很难进行比较,因为各国使用不同的方法对农村和城市地区进行分类。目的:我们研究了通过功能障碍(视觉、听觉、行走、认知、自理、沟通)测量的残疾与通过卫星夜灯组合测量的城市发展之间的关系。卫星夜灯组合是城市发展的国际可比代理。方法:我们使用15个低收入和中等收入国家(LMICs)的人口和健康调查数据以及华盛顿小组关于残疾的短问题集。本研究使用多水平随机截距模型来估计功能困难是否与村庄水平的夜间灯光合成负相关。结果:虽然国家层面的结果有所不同,但在汇总样本中,生活在夜间灯光活动超过80百分位的村庄的成年人报告任何功能困难的几率是低于80百分位的村庄的成年人的0.765倍(AOR = 0.765; 95% CI = 0.717至0.816)。结果在各个功能领域都是鲁棒性的,但在听力、认知和交流方面的相关性更高。结论:在15个中低收入国家中,农村地区的成年人比城市地区的成年人更容易出现功能障碍。需要对推动这种相关性的因素进行研究,包括农村地区较差的生活条件和获得服务的机会,农村和城市地区获得资源和环境障碍的差异,以及不同功能困难状况的农村-城市移徙机会的潜在差异。
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引用次数: 0
Author Information 作者信息
IF 3.3 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-09-03 DOI: 10.1016/S1936-6574(25)00172-4
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引用次数: 0
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Disability and Health Journal
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