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Evaluating the feasibility and utility of machine translation for patient education materials written in plain language to increase accessibility for populations with limited english proficiency 评估机器翻译以通俗语言编写的患者教育材料的可行性和实用性,以提高英语水平有限人群的可及性
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-20 DOI: 10.1016/j.pec.2024.108560
Mohamed Ugas , Maria Anna Calamia , Jessica Tan , Ben Umakanthan , Christine Hill , Karen Tse , Angela Cashell , Zaynab Muraj , Meredith Giuliani , Janet Papadakos

Background

Populations with limited English proficiency (LEP) face comprehension barriers with health information as navigating healthcare systems involves encountering health information that is written at high reading grade levels, utilizes complex medical jargon, and unfamiliar or abstract terms and concepts. Despite the serious consequences of language discordance there is limited funding available for the translation of patient education material in the public healthcare setting. In response to the imperative need to provide equal access to patient education materials to all patients, regardless of English language proficiency, some have raised the feasibility of leveraging machine translation software. This study investigates the feasibility and utility of using machine translation (Google Translate) to translate patient education materials written in plain language.

Methods

A sample of 5 patient education pamphlets were selected for inclusion based on their high usage and importance. These were assessed for their readability and translated by both human translators and using Google Translate into Spanish, Portuguese, Punjabi, Simplified Chinese, and Vietnamese. Medical translators conducted blinded appraisal of both sets of translations on four domains.

Results

Spanish and Vietnamese language pamphlets achieved the highest overall scores. There were significant differences between human and machine translation in favour of the former for all of the languages, although machine translation scored above 3/5 in 90 % of the domains tested. There was no correlation between readability scores and translation scores.

Discussion

Google Translate performs well in multiple translation domains despite its continued inferiority relative to professional human translation. The high scoring of machine translated pamphlets, particularly in the most crucial domain of severity however, points to its potential adoption in a limited capacity in healthcare settings, with processes in place, like pre-screening for high-risk content that may pose a threat to patient well-being.
背景英语水平有限(LEP)的人群在理解健康信息方面面临障碍,因为在浏览医疗保健系统时,他们会遇到以较高阅读水平编写的健康信息、使用复杂的医学术语以及不熟悉或抽象的术语和概念。尽管语言不通会造成严重后果,但用于翻译公共医疗机构患者教育材料的资金却十分有限。为了满足所有患者(无论英语水平如何)平等获取患者教育材料的迫切需要,一些人提出了利用机器翻译软件的可行性。本研究调查了使用机器翻译(谷歌翻译)来翻译以通俗语言编写的患者教育材料的可行性和实用性。对这些小册子的可读性进行了评估,并由人工翻译和谷歌翻译将其翻译成西班牙语、葡萄牙语、旁遮普语、简体中文和越南语。医学翻译人员对两套译文的四个领域进行了盲评。结果西班牙语和越南语小册子的总分最高。尽管机器翻译在 90% 的测试领域中得分都超过了 3/5,但在所有语言中,人工翻译和机器翻译之间都存在明显差异,前者更胜一筹。讨论谷歌翻译在多个翻译领域表现出色,尽管与专业人工翻译相比仍处于劣势。机器翻译的小册子得分很高,尤其是在最关键的严重性领域,这表明它有可能在医疗机构中以有限的能力得到采用,但要有相应的流程,如预先筛选可能对患者健康构成威胁的高风险内容。
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引用次数: 0
Factors associated with communication preferences in transgender and/or gender-diverse individuals – a survey study 变性人和/或不同性别者与交流偏好相关的因素--一项调查研究。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-19 DOI: 10.1016/j.pec.2024.108552
Rieka von der Warth , Mirjam Körner , Erik Farin-Glattacker

Introduction

As communication should be adapted to the individual, the aim of this study was to explore possible factors related to communication preferences in transgender and/or gender-diverse individuals.

Methods

A survey study was conducted in September 2022. Communication preferences were assessed using the CommTrans questionnaire, which included two scales: emotional resonance and gender-related communication. Additionally, we assessed gender, age, relationship status, number of self-reported minorities, health literacy, mental health, and own communication style. Analyses were conducted using multiple linear regression analyses.

Results

A total of 223 individuals completed the survey, of whom 139 (58.2 %) identified as non-binary. Participants valued emotional resonance moderately high (Mean.: 70.6; SD.: 19.5) and gender-related preferences in the middle range (Mean 57.4; SD.: 27.2). As regards emotional resonance, not identifying with a minority was associated with a lower importance of doctors’ response to patients emotions. Furthermore, having a self-confident communication style as a transgender and/or gender-diverse individual was related to a lower perceived importance in gender-related communication, while identifying as non-binary was related with a greater importance.

Conclusion

Our findings might help to expand doctors’ knowledge, and thus help them to provide patient-centered care for transgender and/or gender-diverse individuals.
简介:由于交流应适应个人的情况,本研究旨在探讨与变性人和/或性别多元化者的交流偏好有关的可能因素:由于交流应适应个人的情况,本研究旨在探讨与变性人和/或性别多元化者的交流偏好有关的可能因素:调查研究于 2022 年 9 月进行。交流偏好使用CommTrans问卷进行评估,其中包括两个量表:情感共鸣和与性别相关的交流。此外,我们还评估了性别、年龄、关系状况、自我报告的少数群体数量、健康素养、心理健康和自己的沟通方式。我们使用多元线性回归分析法进行了分析:共有 223 人完成了调查,其中 139 人(58.2%)被认定为非二元。参与者对情感共鸣的评价中等偏上(平均值:70.6;标准差:19.5),对性别相关偏好的评价中等偏上(平均值:57.4;标准差:27.2)。在情感共鸣方面,不认同少数群体与医生对患者情感反应的重视程度较低有关。此外,作为变性人和/或性别多元化的个体,拥有自信的沟通方式与性别相关沟通中较低的感知重要性有关,而认同为非二元身份与较高的重要性有关:我们的研究结果可能有助于扩大医生的知识面,从而帮助他们为跨性别者和/或性别多元化者提供以患者为中心的护理。
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引用次数: 0
Myths and misinformation associated with vaccine incompleteness: A survey study 与疫苗不完整相关的神话和错误信息:一项调查研究。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-18 DOI: 10.1016/j.pec.2024.108556
Lucas Kallas-Silva , Marcia Thereza Couto , Maria Eduarda Muniz Soares , Sofia Natalia Ferreira-Silva , Vivian I. Avelino-Silva

Objective

Vaccine hesitancy is a relevant driver of backslides in immunization rates globally. Myths and misinformation are key contributors to vaccine hesitancy. We aimed to investigate associations between beliefs in popular vaccine myths and vaccine incompleteness.

Methods

In this survey, participants were asked questions on current vaccination status; barriers and motivations for vaccination; and beliefs regarding popular myths: the measles vaccine causes autism in children; acquiring the disease is preferable to facing vaccine side effects; and natural immunity developed from getting the disease is better than the immunity elicited by vaccination. We assessed the effect of failing to disagree with the myths on current vaccination status.

Results

Of 4305 participants, 933 (22 %) were partially vaccinated and 61 (1 %) were fully unvaccinated; 403 (10 %) failed to disagree with the autism myth; 411 (10 %) failed to disagree with the side effects myth; and 904 (22 %) failed to disagree with the natural immunity myth. Failing to disagree with the myths was significantly associated with vaccine incompleteness.

Conclusion

Vaccine-related myths are associated with both partial and total vaccine incompleteness in Brazil.

Practice implications

Strategies to improve adherence to vaccination recommendations should include interventions to limit the spread or elucidate vaccine-related myths and misconceptions.
目的:疫苗犹豫不决是全球免疫接种率倒退的一个重要原因。神话和错误信息是造成疫苗接种犹豫的主要原因。我们的目的是调查流行的疫苗神话与疫苗不完整性之间的关联:在这项调查中,我们向参与者提出了有关当前疫苗接种状况、接种疫苗的障碍和动机以及对流行神话的看法的问题:麻疹疫苗会导致儿童自闭症;得病比面临疫苗副作用更好;得病产生的自然免疫力比接种疫苗产生的免疫力更好。我们评估了不同意这些神话对当前疫苗接种状况的影响:在 4305 名参与者中,933 人(22%)部分接种了疫苗,61 人(1%)完全未接种疫苗;403 人(10%)不同意自闭症的说法;411 人(10%)不同意副作用的说法;904 人(22%)不同意天然免疫的说法。不同意这些说法与疫苗不完整性显著相关:结论:在巴西,疫苗相关神话与部分和全部疫苗接种不全有关:实践意义:提高疫苗接种建议依从性的策略应包括采取干预措施,限制与疫苗相关的神话和误解的传播或澄清这些神话和误解。
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引用次数: 0
Health disparities and health literacy challenges experienced by individuals with hearing loss: A scoping review 听力损失患者的健康差异和健康素养挑战:范围综述。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-17 DOI: 10.1016/j.pec.2024.108549
Joshua Sohmer, Diana Lobaina, Vama Jhumkhawala, Meera Rao, Julianne Baker, Sabina Fridman, Michelle Knecht, Lea Sacca

Objective

The purpose of this scoping review is to explore health disparities and health literacy challenges encountered by U.S. adults with hearing loss when trying to seek specialized care and access to medical devices such as hearing aids.

Methods

The Arksey and O’Malley (2005) York methodology was used for this review: (1) identifying research questions; (2) searching for relevant studies; (3) selecting studies relevant to the research questions; (4) charting the data; (5) collating, summarizing, and reporting results.

Results

A total of 52 articles were retained for analysis. Significant associations were reported between health literacy and health disparities when assessing the relationship between health literacy and poor health outcomes, social support surrounding health, communication with health professionals, accessibility of health information, immediacy of care, income, healthcare costs, age, and gender.

Conclusion

Findings will inform evidence-based strategies to increase equitable access to affordable and quality care among patients with hearing loss.
目的本综述旨在探讨美国成年听力损失患者在寻求专业护理和助听器等医疗设备时遇到的健康差异和健康知识方面的挑战:本综述采用 Arksey 和 O'Malley (2005) York 方法:(1) 确定研究问题;(2) 搜索相关研究;(3) 挑选与研究问题相关的研究;(4) 绘制数据图表;(5) 整理、总结并报告结果:结果:共保留了 52 篇文章进行分析。在评估健康素养与不良健康后果、围绕健康的社会支持、与医疗专业人员的沟通、健康信息的可及性、医疗服务的即时性、收入、医疗费用、年龄和性别之间的关系时,发现健康素养与健康差距之间存在显著关联:研究结果将为循证策略提供依据,以增加听力损失患者公平获得负担得起的优质医疗服务的机会。
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引用次数: 0
Two sides of trust: How cancer survivors’ communication with healthcare providers and on social media predicted healthy behaviors during COVID-19 信任的两面性:在 COVID-19 期间,癌症幸存者与医疗服务提供者以及在社交媒体上的交流如何预测健康行为。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-17 DOI: 10.1016/j.pec.2024.108553
Qiwei Luna Wu , Yue Liao , Grace Ellen Brannon

Objectives

COVID-19 exacerbated pre-existing social inequalities. Using three theories linking clinical and media contexts to patients’ health outcomes, our study investigated (1) potential factors of cancer patients’ trust in healthcare providers and social media; (2) how such trust may influence healthy lifestyles during COVID-19.

Methods

Using structural equation modeling, we investigated effects of key patient-provider communication variables and media factors on healthy behaviors among cancer survivors (N = 1130) using a nationally representative dataset (HINTS-SEER restricted use files, January-July 2021).

Results

More healthy behaviors since COVID-19 began were associated with more trust in healthcare providers, lower trust in social media about COVID-19, and more use of social media for health purposes. More trust in social media about COVID-19 was associated with more use of social media for health purposes (p < .01). More trust in healthcare providers about COVID-19 was associated with increased perceptions of patient-provider communication (p < .01).

Conclusions

Findings can inform interventions to connect at-risk cancer patients (e.g., those younger and with lower educational background) with providers in trust-enhancing conversations during situations like COVID-19.

Practice Implications

Partnership building between providers and patients can be supplemented with scientific videos on popular social media sites like YouTube during public health crises and emergencies.
目标:COVID-19 加剧了原有的社会不平等。利用将临床和媒体环境与患者的健康结果联系起来的三个理论,我们的研究调查了(1)癌症患者对医疗服务提供者和社交媒体信任的潜在因素;(2)这种信任如何影响 COVID-19 期间的健康生活方式:利用结构方程模型,我们使用具有全国代表性的数据集(HINTS-SEER 限制使用文件,2021 年 1 月至 7 月)调查了患者与医疗服务提供者沟通的关键变量和媒体因素对癌症幸存者(N = 1130)健康行为的影响:结果:自 COVID-19 开始以来,更多的健康行为与对医疗保健提供者的信任度更高、对有关 COVID-19 的社交媒体的信任度较低以及更多地将社交媒体用于健康目的有关。对有关 COVID-19 的社交媒体的信任度越高,出于健康目的使用社交媒体的次数就越多(p 结论:研究结果可为干预措施提供参考:研究结果可为干预措施提供参考,以便在 COVID-19 等情况下,将高危癌症患者(如年龄较小、教育背景较低)与医疗服务提供者联系起来,进行增强信任的对话:实践意义:在公共卫生危机和紧急情况下,可以通过 YouTube 等流行社交媒体网站上的科普视频来辅助医疗服务提供者与患者之间建立合作关系。
{"title":"Two sides of trust: How cancer survivors’ communication with healthcare providers and on social media predicted healthy behaviors during COVID-19","authors":"Qiwei Luna Wu ,&nbsp;Yue Liao ,&nbsp;Grace Ellen Brannon","doi":"10.1016/j.pec.2024.108553","DOIUrl":"10.1016/j.pec.2024.108553","url":null,"abstract":"<div><h3>Objectives</h3><div>COVID-19 exacerbated pre-existing social inequalities. Using three theories linking clinical and media contexts to patients’ health outcomes, our study investigated (1) potential factors of cancer patients’ trust in healthcare providers and social media; (2) how such trust may influence healthy lifestyles during COVID-19.</div></div><div><h3>Methods</h3><div>Using structural equation modeling, we investigated effects of key patient-provider communication variables and media factors on healthy behaviors among cancer survivors (N = 1130) using a nationally representative dataset (HINTS-SEER restricted use files, January-July 2021).</div></div><div><h3>Results</h3><div>More healthy behaviors since COVID-19 began were associated with more trust in healthcare providers, lower trust in social media about COVID-19, and more use of social media for health purposes. More trust in social media about COVID-19 was associated with more use of social media for health purposes (p &lt; .01). More trust in healthcare providers about COVID-19 was associated with increased perceptions of patient-provider communication (p &lt; .01).</div></div><div><h3>Conclusions</h3><div>Findings can inform interventions to connect at-risk cancer patients (e.g., those younger and with lower educational background) with providers in trust-enhancing conversations during situations like COVID-19.</div></div><div><h3>Practice Implications</h3><div>Partnership building between providers and patients can be supplemented with scientific videos on popular social media sites like YouTube during public health crises and emergencies.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108553"},"PeriodicalIF":2.9,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integrated oncological treatment decision-making: Creating a practice of patient-centred decision-making 综合肿瘤治疗决策:创建以患者为中心的决策实践。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-17 DOI: 10.1016/j.pec.2024.108555
Hanneke van der Wal-Huisman , Barbara L. van Leeuwen , Anne M. Stiggelbout , Floor M. van Nuenen , Trudy van der Weijden , Suzanne Festen , Lieke Welling
The growing burden of cancer, with its costly and difficult to endure therapies, underscores the urgent need for individualized care that enhances patients' quality of life. Effective individualized treatment planning requires collaboration between healthcare professionals and patients (and their relatives), focusing on patients' personal values and preferences through shared decision-making. In practice, oncology care predominantly follows clinical guidelines, which, while reducing practice variation, may not account for individual patient differences in health status and preferences. Moreover, guidelines often emphasize medical endpoints such as disease-free survival, overlooking quality of life and treatment burden considerations crucial to many patients. This can result in unfitting treatment choices and decisional regret. The Integrated Oncological Decision-making Model (IODM) addresses these challenges by incorporating three essential domains for treatment decision-making: medical treatment options, patient goals and preferences, and general health status. The IODM aims to integrate these domains into the decision-making process, ensuring that treatment plans are tailored to individual patient needs. Initial implementation of the IODM is shown promising results, with a significant proportion of patients receiving less invasive, more appropriate treatments without compromising survival outcomes. The IODM has demonstrated its potential to facilitate patient-centred care, reduce unnecessary treatments, and improve patient outcomes. Continued implementation and evaluation of the IODM across various oncological settings are essential to refine the model and ensure its integration into routine clinical practice, ultimately enhancing the quality and effectiveness of cancer care.
癌症的治疗费用高昂且难以忍受,癌症带来的负担日益沉重,这凸显了人们对提高患者生活质量的个性化护理的迫切需求。有效的个体化治疗计划需要医护人员与患者(及其亲属)之间的合作,通过共同决策来关注患者的个人价值和偏好。在实践中,肿瘤治疗主要遵循临床指南,虽然减少了实践中的差异,但可能无法考虑患者在健康状况和偏好方面的个体差异。此外,指南通常强调无病生存期等医疗终点,而忽视了对许多患者至关重要的生活质量和治疗负担方面的考虑。这可能导致不合适的治疗选择和决策遗憾。综合肿瘤决策模型(IODM)通过整合治疗决策的三个重要领域来应对这些挑战:医学治疗方案、患者目标和偏好以及总体健康状况。IODM 旨在将这些领域纳入决策过程,确保治疗计划符合患者的个体需求。IODM 的初步实施取得了可喜的成果,相当一部分患者在不影响生存结果的情况下接受了创伤更小、更合适的治疗。IODM 在促进以患者为中心的护理、减少不必要的治疗和改善患者预后方面的潜力已得到证明。继续在各种肿瘤环境中实施和评估 IODM 对完善该模式并确保其融入常规临床实践,最终提高癌症护理的质量和有效性至关重要。
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引用次数: 0
Interruptions in multidisciplinary tumor conferences with patient participation: A video interaction analysis 患者参与的多学科肿瘤会议中断:视频交互分析
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-15 DOI: 10.1016/j.pec.2024.108550
Barbara Schellenberger , Christian Heuser , Annika Diekmann , Emily Krüger , Leonie Schreiber , Lena Ansmann , Bernt Schnettler , Nadine Scholten , Nicole Ernstmann

Objective

To identify a) interruptions (secondary activities disrupting the workflow of the main task) occurring during case discussions in multidisciplinary tumor conferences (MTCs) with patient participation, and b) observable reactions among patients and healthcare professionals (HCPs).

Methods

Within the non-interventional mixed-methods study PINTU, we video-recorded five case discussions during MTCs with patient participation at one breast and gynecological cancer center. A qualitative sequential video interaction analysis was used to identify interruptions and related interactions.

Results

Occurring interruptions resulted in reactions of patients and/or HCPs. Work organization and seating arrangement led to interruptions, e.g., turning around to face individuals. Some interruptions caused reactions only among patients and not among HCPs.

Conclusion

Interruptions occur regularly in case discussions during MTCs with patient participation. Certain interruptions, which did not cause observable reactions among HCPs and seem to be commonplace, attracted the patient’s attention. As interruptions can be associated with patients' unmet need for information, HCPs’ awareness of interruptions should be raised.

Practice Implications

When patients participate in MTCs, interruptions should be reduced to improve HCP–patient interactions. Our findings can lead to recommendations for improving organization of MTCs with patient participation aiming to cause fewer interruptions and thus better quality of patient care.
目的确定a)在患者参与的多学科肿瘤会议(mtc)病例讨论期间发生的中断(干扰主要任务工作流程的次要活动),以及b)患者和医疗保健专业人员(HCPs)之间可观察到的反应。方法:在PINTU的非介入性混合方法研究中,我们在一家乳腺癌和妇科癌症中心录制了5例患者参与MTCs的病例讨论。定性顺序视频交互分析用于识别中断和相关交互。结果连续中断导致患者和/或HCPs的反应。工作组织和座位安排导致打断,例如转身面对个人。一些中断仅在患者中引起反应,而在医务人员中没有。结论在患者参与的MTCs过程中,病例讨论经常出现中断。某些中断,没有引起可观察到的反应的hcp,似乎司空见惯,吸引了病人的注意。由于中断可能与患者未满足的信息需求有关,因此应提高医务人员对中断的认识。实践意义当患者参与MTCs时,应减少中断,以改善医患互动。我们的研究结果可以为改进MTCs的组织提供建议,使患者参与,旨在减少中断,从而提高患者护理质量。
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引用次数: 0
The implementation of design methodologies for supporting shared decision making in healthcare services: A systematic review. 在医疗服务中实施支持共同决策的设计方法:系统综述。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-15 DOI: 10.1016/j.pec.2024.108551
Yeray Sañudo , Canan Akoglu , Judith A.C. Rietjens , Dirk Snelders , Anne M. Stiggelbout , Jorge Sierra-Pérez

Objectives

This systematic review examines how design methodologies support Shared Decision Making (SDM), identifies the most suitable for future use, explores types of methodologies used, challenges faced, and the impact on patients, clinicians, and care pathways.

Methods

Studies were searched on Medline, Web of Science, Scopus and grey literature (Google Scholar, CORDIS) up to July 2024, following PRISMA guidelines.

Results

were analysed to identify patient involvement, design strategies, SDM solutions, and their impact on care paths, professionals, and patients.

Results

Out of 2499 studies and 39 grey literature projects identified, 22 studies (reported in 35 publications) were selected, primarily from the USA and Europe (2015 onward). User-Centered Design predominated, involving health professionals more than patients. IPDAS standards were common. Evaluations showed improved patient experience and SDM role, with a potential increase in healthcare professionals' workload.

Conclusion

Although design methodologies are used in SDM implementation, improvement is needed. Service Design can enhance implementation by analysing the entire SDM process, while co-creative approaches develop patient-focused solutions that integrate smoothly into health professionals' workflows.

Practical implications

Introducing SDM in healthcare is complex, but design methodologies can help by analysing stakeholder needs, providing a broader care path view, and facilitating SDM implementation.
目标:本系统综述研究了设计方法如何支持共同决策(SDM),确定了最适合未来使用的方法,探讨了所用方法的类型、面临的挑战以及对患者、临床医生和护理路径的影响:按照 PRISMA 指南,在 Medline、Web of Science、Scopus 和灰色文献(Google Scholar、CORDIS)上检索了截至 2024 年 7 月的研究。结果:分析了患者参与、设计策略、SDM 解决方案及其对护理路径、专业人员和患者的影响:在已确定的 2499 项研究和 39 个灰色文献项目中,选取了 22 项研究(在 35 份出版物中报告),主要来自美国和欧洲(2015 年以后)。以用户为中心的设计占主导地位,医护人员的参与度高于患者。IPDAS 标准很常见。评估结果显示,患者体验和 SDM 作用得到改善,但医护人员的工作量可能会增加:尽管在 SDM 实施过程中使用了设计方法,但仍需改进。服务设计可以通过分析整个 SDM 流程来加强实施,而共同创造的方法则可以开发出以患者为中心的解决方案,顺利融入医疗专业人员的工作流程:在医疗保健中引入 SDM 非常复杂,但设计方法可以通过分析利益相关者的需求、提供更广泛的护理路径视角以及促进 SDM 的实施来提供帮助。
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引用次数: 0
Informal caregivers’ roles and needs regarding shared decision-making in severe aortic stenosis 非正规护理人员在重度主动脉瓣狭窄患者共同决策方面的角色和需求。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-15 DOI: 10.1016/j.pec.2024.108554
Judith J.A.M. van Beek-Peeters , Miriam C. Faes , Mirela Habibovic , Jop B.L. van der Meer , Ruth E. Pel-Littel , Martijn W.A. van Geldorp , Ben J.L. Van den Branden , Nardo J.M. van der Meer , Mirella M.N. Minkman

Objective

To provide insight into experiences, preferences and needs of informal caregivers (ICs) regarding shared decision-making (SDM) in severe aortic stenosis (AS) of patients ≥ 70 years, and the effect of the level of perceived SDM on ICs’ quality of life (QOL) and distress.

Methods

Multiple methods study consisting of a questionnaire at baseline and 3-month follow-up and focus groups.

Results

Ninety-nine ICs (67.6 ± 11.7 years) completed the baseline questionnaire, eighty-two ICs the follow-up questionnaire, ten ICs (70.6 ± 12.6 years) participated in two focus groups. ICs perceived that identifying them as discussion partners and addressing patients’ daily lives were least discussed with professionals (26.3 %; 59.6 %). Most ICs (63.9 %) preferred a collaborative decision-making (DM) role. The level of perceived SDM was positively associated with baseline QOL social relations (p = .038), and follow-up QOL psychological health (p = .048) and environment (p = .024). ICs experienced three roles in SDM: supporters in DM, stimulators in clarifying patient’s personal context, and DM partners.

Conclusion

ICs play valuable roles in SDM for severe AS, but feel professionals do not consistently identify them as discussion partners.

Practice implications

Professionals should involve ICs in SDM for discussing older patient’s QOL and personal context, which can inform personalized decisions regarding severe AS treatment.
目的深入了解非正规照顾者(ICs)对 70 岁以上重度主动脉瓣狭窄(AS)患者共同决策(SDM)的经验、偏好和需求,以及感知到的 SDM 水平对 ICs 生活质量(QOL)和痛苦的影响:方法:多方法研究,包括基线问卷调查、3 个月随访和焦点小组:99 名集成电路设计师(67.6 ± 11.7 岁)完成了基线问卷,82 名集成电路设计师完成了后续问卷,10 名集成电路设计师(70.6 ± 12.6 岁)参加了两个焦点小组。综合症患者认为,与专业人员讨论最少的是确定他们为讨论伙伴和解决患者的日常生活问题(26.3%;59.6%)。大多数集成电路(63.9%)倾向于合作决策(DM)角色。感知到的 SDM 水平与基线 QOL 社会关系(p = .038)、后续 QOL 心理健康(p = .048)和环境(p = .024)呈正相关。综合治疗师在 SDM 中扮演了三种角色:DM 的支持者、澄清患者个人背景的激励者和 DM 的合作伙伴:集成治疗师在重度 AS 的 SDM 中发挥着重要作用,但专业人员并未始终将他们视为讨论伙伴:专业人员应让 IC 参与 SDM,讨论老年患者的 QOL 和个人背景,这可以为有关严重 AS 治疗的个性化决策提供信息。
{"title":"Informal caregivers’ roles and needs regarding shared decision-making in severe aortic stenosis","authors":"Judith J.A.M. van Beek-Peeters ,&nbsp;Miriam C. Faes ,&nbsp;Mirela Habibovic ,&nbsp;Jop B.L. van der Meer ,&nbsp;Ruth E. Pel-Littel ,&nbsp;Martijn W.A. van Geldorp ,&nbsp;Ben J.L. Van den Branden ,&nbsp;Nardo J.M. van der Meer ,&nbsp;Mirella M.N. Minkman","doi":"10.1016/j.pec.2024.108554","DOIUrl":"10.1016/j.pec.2024.108554","url":null,"abstract":"<div><h3>Objective</h3><div>To provide insight into experiences, preferences and needs of informal caregivers (ICs) regarding shared decision-making (SDM) in severe aortic stenosis (AS) of patients ≥ 70 years, and the effect of the level of perceived SDM on ICs’ quality of life (QOL) and distress.</div></div><div><h3>Methods</h3><div>Multiple methods study consisting of a questionnaire at baseline and 3-month follow-up and focus groups.</div></div><div><h3>Results</h3><div>Ninety-nine ICs (67.6 ± 11.7 years) completed the baseline questionnaire, eighty-two ICs the follow-up questionnaire<strong>,</strong> ten ICs (70.6 ± 12.6 years) participated in two focus groups. ICs perceived that identifying them as discussion partners and addressing patients’ daily lives were least discussed with professionals (26.3 %; 59.6 %). Most ICs (63.9 %) preferred a collaborative decision-making (DM) role. The level of perceived SDM was positively associated with baseline QOL social relations (p = .038), and follow-up QOL psychological health (p = .048) and environment (p = .024). ICs experienced three roles in SDM: supporters in DM, stimulators in clarifying patient’s personal context, and DM partners.</div></div><div><h3>Conclusion</h3><div>ICs play valuable roles in SDM for severe AS, but feel professionals do not consistently identify them as discussion partners.</div></div><div><h3>Practice implications</h3><div>Professionals should involve ICs in SDM for discussing older patient’s QOL and personal context, which can inform personalized decisions regarding severe AS treatment.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108554"},"PeriodicalIF":2.9,"publicationDate":"2024-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693847","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development and validation of the chronic condition physician-patient relationship scale (CC-PPR): A patient-informed measurement tool 慢性疾病医患关系量表(CC-PPR)的开发和验证:一种患者知情的测量工具
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-14 DOI: 10.1016/j.pec.2024.108492
Jessica A. Eigeland , Nicola Sheeran , Liz Jones , Robyn L. Moffitt

Objective

Several tools exist to measure the physician-patient relationship; however few are specific to those with chronic physical health conditions, and none to date have been derived from the patient’s perspective. This research aimed to develop and validate a patient-informed tool for measuring the physician-patient relationship with patients who have a chronic physical health condition.

Methods

Study 1: An Australian sample of participants with a diagnosed chronic physical health condition and a self-reported good physician-patient relationship completed a three round Delphi poll to determine items of the chronic condition physician-patient relationship scale (CC-PPR). Fifty-two participants completed round one, 33 completed round two, and 24 completed all three rounds. Study 2: Exploratory and confirmatory factor analysis were conducted on a separate sample (N = 226) to explore the factor structure of the CC-PPR.

Results

The CC-PPR comprised 22 items within a single-factor structure which demonstrated high internal consistency (Cronbach’s α = 0.97) and sound convergent validity.

Discussion

The CC-PPR reliably measures observable, concrete, and specific physician behaviours that patients with chronic physical health conditions believe are critical in forming a good physician-patient relationship. The CC-PPR has potential application in research, educational, and self-assessment contexts, including for the evaluation and development of competence in post-graduate and professional settings.
目的有多种测量医患关系的工具;然而,针对那些患有慢性身体健康状况的人的研究很少,迄今为止也没有一个是从病人的角度出发的。本研究旨在开发并验证一种患者知情的工具,用于测量患有慢性身体健康状况的患者的医患关系。方法研究1:对澳大利亚确诊慢性身体健康状况和自我报告良好医患关系的参与者进行三轮德尔菲民意调查,确定慢性疾病医患关系量表(CC-PPR)的项目。52名参与者完成了第一轮,33名完成了第二轮,24名完成了所有三轮。研究2:对单独样本(N = 226)进行探索性和验证性因子分析,探讨CC-PPR的因子结构。结果CC-PPR在单因素结构中包含22个条目,具有较高的内部一致性(Cronbach’s α = 0.97)和较好的收敛效度。CC-PPR可靠地测量了可观察到的、具体的和特定的医生行为,慢性身体健康状况患者认为这些行为对于形成良好的医患关系至关重要。CC-PPR在研究、教育和自我评估环境中具有潜在的应用,包括在研究生和专业环境中评估和发展能力。
{"title":"Development and validation of the chronic condition physician-patient relationship scale (CC-PPR): A patient-informed measurement tool","authors":"Jessica A. Eigeland ,&nbsp;Nicola Sheeran ,&nbsp;Liz Jones ,&nbsp;Robyn L. Moffitt","doi":"10.1016/j.pec.2024.108492","DOIUrl":"10.1016/j.pec.2024.108492","url":null,"abstract":"<div><h3>Objective</h3><div>Several tools exist to measure the physician-patient relationship; however few are specific to those with chronic physical health conditions, and none to date have been derived from the patient’s perspective. This research aimed to develop and validate a patient-informed tool for measuring the physician-patient relationship with patients who have a chronic physical health condition.</div></div><div><h3>Methods</h3><div><strong>Study 1:</strong> An Australian sample of participants with a diagnosed chronic physical health condition and a self-reported good physician-patient relationship completed a three round Delphi poll to determine items of the chronic condition physician-patient relationship scale (CC-PPR). Fifty-two participants completed round one, 33 completed round two, and 24 completed all three rounds. <strong>Study 2:</strong> Exploratory and confirmatory factor analysis were conducted on a separate sample (<em>N</em> = 226) to explore the factor structure of the CC-PPR.</div></div><div><h3>Results</h3><div>The CC-PPR comprised 22 items within a single-factor structure which demonstrated high internal consistency (Cronbach’s α = 0.97) and sound convergent validity.</div></div><div><h3>Discussion</h3><div>The CC-PPR reliably measures observable, concrete, and specific physician behaviours that patients with chronic physical health conditions believe are critical in forming a good physician-patient relationship. The CC-PPR has potential application in research, educational, and self-assessment contexts, including for the evaluation and development of competence in post-graduate and professional settings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108492"},"PeriodicalIF":2.9,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142748411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Patient Education and Counseling
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