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Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury. 护理我们受伤的战士:对与军事有关的创伤性脑损伤个人护理人员健康相关的生活质量的定性检查。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2015.07.0136
Noelle E Carlozzi, Tracey A Brickell, Louis M French, Angelle Sander, Anna L Kratz, David S Tulsky, Nancy D Chiaravalloti, Elizabeth A Hahn, Michael Kallen, Amy M Austin, Jennifer A Miner, Rael T Lange

The purpose of this study was to develop a conceptual framework that captures aspects of health-related quality of life (HRQOL) for caregivers of individuals with military-related traumatic brain injury (TBI). We analyzed qualitative data from nine focus groups composed of caregivers of wounded warriors with a medically documented TBI. Focus group participants were recruited through hospital-based and/or community outreach efforts at the Walter Reed National Military Medical Center, the University of Michigan, and Hearts of Valor support groups (Tennessee and Washington). Participants were the caregivers (n = 45) of wounded warriors who had sustained a mild, moderate, severe, or penetrating TBI. Qualitative frequency analysis indicated that caregivers most frequently discussed social health (44% of comments), followed by emotional (40%) and physical health (12%). Areas of discussion that were specific to this population included anger regarding barriers to health services (for caregivers and servicemembers), emotional suppression (putting on a brave face for others even when things are not going well), and hypervigilance (controlling one's behavior/environment to prevent upsetting the servicemember). Caring for wounded warriors with TBI is a complex experience that positively and negatively affects HRQOL. While some aspects of HRQOL can be evaluated with existing measures, evaluation tools for other important components do not exist. The development of military-specific measures would help facilitate better care for these individuals.

本研究的目的是建立一个概念框架,捕捉与军事相关的创伤性脑损伤(TBI)患者护理人员与健康相关的生活质量(HRQOL)的各个方面。我们分析了来自9个焦点小组的定性数据,这些小组由有医学记录的创伤性脑损伤的受伤战士的护理人员组成。焦点小组参与者是通过沃尔特里德国家军事医学中心、密歇根大学和英勇之心支持小组(田纳西州和华盛顿州)的医院和/或社区外展工作招募的。参与者是患有轻度、中度、重度或穿透性脑外伤的受伤战士的护理人员(n = 45)。定性频率分析表明,照顾者最常讨论的是社会健康(44%的评论),其次是情感(40%)和身体健康(12%)。针对这一群体的具体讨论领域包括对卫生服务障碍(对护理人员和服务人员)的愤怒、情绪压抑(即使在事情进展不顺利时也为他人装出一副勇敢的样子)和过度警惕(控制自己的行为/环境以防止扰乱服务人员)。照顾创伤性脑损伤的战士是一种复杂的经历,对HRQOL有积极和消极的影响。虽然HRQOL的某些方面可以用现有的措施进行评估,但不存在其他重要组成部分的评估工具。制定针对军队的措施将有助于更好地照顾这些人。
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引用次数: 45
Psychometric evaluation of self-report outcome measures for prosthetic applications. 假肢应用自我报告结果测量的心理评估。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2015.12.0228
Brian J Hafner, Sara J Morgan, Robert L Askew, Rana Salem

Documentation of clinical outcomes is increasingly expected in delivery of prosthetic services and devices. However, many outcome measures suitable for use in clinical care and research have not been psychometrically tested with prosthesis users. The aim of this study was to determine test-retest reliability, mode-of-administration (MoA) equivalence, standard error of measurement (SEM), and minimal detectable change (MDC) of standardized, self-report instruments that assess constructs of importance to people with lower limb loss. Prosthesis users (n = 201) were randomly assigned to groups based on MoA (i.e., paper, electronic, or mixed-mode). Participants completed two surveys 2 to 3 d apart. Instruments included the Prosthetic Limb Users Survey of Mobility, Prosthesis Evaluation Questionnaire-Mobility Subscale, Activities-Specific Balance Confidence Scale, Quality of Life in Neurological Conditions-Applied Cognition/General Concerns, Patient-Reported Outcomes Measurement Information System Profile, and Socket Comfort Score. Intraclass correlation coefficients indicated all instruments are appropriate for group-level comparisons and select instruments are suitable for individual-level applications. Several instruments showed evidence of possible floor and ceiling effects. All were equivalent across MoAs. SEM and MDC were quantified to facilitate interpretation of outcomes and change scores. These results can enhance clinicians' and researchers' ability to select, apply, and interpret scores from instruments administered to prosthesis users.

在提供假肢服务和假肢装置的过程中,人们越来越期待对临床结果进行记录。然而,许多适用于临床护理和研究的结果测量方法尚未在假肢使用者身上进行心理测试。本研究旨在确定标准化自我报告工具的重测可靠性、给药方式(MoA)等效性、测量标准误差(SEM)和最小可检测变化(MDC),这些工具可评估对下肢缺失者具有重要意义的结构。假肢使用者(n = 201)根据 MoA(即纸质、电子或混合模式)被随机分配到不同的组别。参与者在2到3天内完成两次调查。调查工具包括假肢使用者活动能力调查表、假肢评估问卷--活动能力分量表、特定活动平衡信心量表、神经系统疾病生活质量--应用认知/一般关注、患者报告结果测量信息系统简介和插座舒适度评分。类内相关系数表明,所有工具都适合用于群体水平的比较,部分工具适合用于个人水平的应用。有几项工具显示出可能存在下限和上限效应。所有工具在不同测量值之间都是等效的。对 SEM 和 MDC 进行了量化,以方便解释结果和变化分数。这些结果可以提高临床医生和研究人员选择、应用和解释假肢使用者所用工具得分的能力。
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引用次数: 0
Prediction of oxygen uptake during walking in ambulatory persons with multiple sclerosis. 预测多发性硬化症患者行走时的摄氧量。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2014.12.0307
Stamatis Agiovlasitis, Brian M Sandroff, Robert W Motl

People with multiple sclerosis (MS) have an increased rate of gross oxygen uptake (gross-VO2) during treadmill walking, and their gross-VO2 may further vary with walking impairment. This study attempted to develop an equation for predicting gross-VO2 from walking speed and an index of walking impairment in persons with MS and examine its accuracy. Gross-VO2 was measured with open-circuit spirometry in 43 persons with MS (47 +/- 9 yr; 38 women) during five treadmill walking trials, each lasting 6 min, at 2.0, 2.5, 3.0, 3.5, and 4.0 mph (0.89, 1.12, 1.34, 1.56, and 1.79 m/s). The 12-Item Multiple Sclerosis Walking Scale (MSWS-12) and the single-item Patient Determined Disease Steps scale (PDDS) provided indices of walking impairment. Multilevel modeling with random intercepts and slopes showed significant effects of speed and MSWS-12 on gross-VO2 (p

患有多发性硬化症(MS)的人在跑步机上行走时总摄氧量(总摄氧量)增加,并且他们的总摄氧量可能会随着行走障碍而进一步变化。本研究试图建立一个从步行速度和MS患者步行障碍指数预测总vo2的方程,并检验其准确性。用开路肺活量法测量43例MS患者的总摄氧量(47 +/- 9年;38名女性)进行了5次跑步机步行试验,每次持续6分钟,速度分别为2.0、2.5、3.0、3.5和4.0英里/小时(0.89、1.12、1.34、1.56和1.79米/秒)。12项多发性硬化症步行量表(MSWS-12)和单项患者确定疾病步数量表(PDDS)提供了步行障碍的指标。具有随机截距和斜率的多层模型显示,速度和MSWS-12对总vo2有显著影响(p
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引用次数: 8
Preliminary evaluation of a novel bladder-liner for facilitating residual limb fluid volume recovery without doffing. 一种新型膀胱衬垫的初步评估,以促进残肢液体容量的恢复。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2014.12.0316
Joan E Sanders, Christian B Redd, John C Cagle, Brian J Hafner, David Gardner, Katheryn J Allyn, Daniel S Harrison, Marcia A Ciol

For people who wear a prosthetic limb, residual-limb fluid volume loss during the day may be problematic and detrimentally affect socket fit. The purpose of this research was to test the capability of a novel liner with adjustable bladders positioned within its wall to mitigate volume loss and facilitate limb fluid volume recovery and retention. Bioimpedance analysis was used to monitor fluid volume changes in the anterior and posterior residual limb of participants with transtibial amputation. Participants underwent six cycles of sitting for 90 s, standing for 90 s, and walking for 5 min with liquid within the bladder-liners. Between the third and fourth cycles, participants sat for 10 min with liquid left within the bladders (Liquid-In) or removed (Liquid-Out). Results showed that participants recovered more fluid volume during the 10 min of sitting with Liquid-Out than Liquid-In (p = 0.09 for anterior and p = 0.04 for posterior). However, those fluid volume recoveries were not well retained in the short term (after the fourth cycle) or the long term (after the sixth cycle). Physiologic differences between sessions, reflected in the rates of fluid volume change at the outset of the session, and excessive stiffness of the bladder-liners may have affected fluid volume retentions.

对于佩戴假肢的人来说,白天的残肢液体量损失可能会造成问题,并对关节窝的契合度产生不利影响。本研究的目的是测试一种新型衬垫的能力,这种衬垫的壁上装有可调节的膀胱,以减轻体积损失,促进肢体液体体积的恢复和保留。生物阻抗分析用于监测经胫骨截肢参与者前后残肢的液体容量变化。参与者进行了6个循环:坐90秒,站90秒,步行5分钟,膀胱衬里有液体。在第三和第四个周期之间,参与者静坐10分钟,让液体留在膀胱内(液体进)或取出(液体出)。结果显示,参与者在液-出坐姿的10分钟内比液-入坐姿恢复了更多的液体体积(前置p = 0.09,后置p = 0.04)。然而,在短期内(在第四个周期之后)或长期(在第六个周期之后),这些液体体积的回收并没有得到很好的保留。疗程之间的生理差异(反映在疗程开始时的液体体积变化速率上)和膀胱衬垫过度僵硬可能影响了液体体积潴留。
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引用次数: 13
Case study: Head orientation and neck electromyography for cursor control in persons with high cervical tetraplegia. 案例研究:头部定位和颈部肌电图用于高颈性四肢瘫痪患者的光标控制。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2014.10.0244
Matthew R Williams, Robert F Kirsch

We evaluated the ability of an individual with a high cervical spinal cord injury (SCI) to control a cursor on a computer screen using two different user interfaces: (1) head movements measured via a head-mounted orientation sensor and (2) electromyography (EMG) signals from four head and neck muscles acquired using a 4-channel implanted upper-limb neuroprosthesis that had been deployed in an earlier study. The subject moved the cursor to a set of targets on the screen in a two-dimensional, center-out, target-acquisition task, and his performance was evaluated with a variety of performance measures to assess both position and velocity control accuracy. The subject's performance with both command sources was also compared with the performance of a group of nondisabled subjects. Head orientation provided more accurate performance but was less responsive than EMG. Both command sources showed some directionally dependent performance, with movement to diagonally located targets being performed by a series of sequential motions rather than via straight paths. Overall, the SCI subject's performance with each command source was similar to that reported for a nondisabled population using the same interfaces and performing the same task.

我们使用两种不同的用户界面评估了高度颈脊髓损伤(SCI)患者控制计算机屏幕上光标的能力:(1)通过头戴式方向传感器测量头部运动;(2)使用早期研究中植入的4通道上肢神经假体获得来自头部和颈部四个肌肉的肌电图(EMG)信号。受试者在一个二维的、中心向外的、目标获取任务中将光标移动到屏幕上的一组目标上,并通过各种性能测量来评估其位置和速度控制的准确性。受试者使用这两种命令源的表现也与一组未禁用的受试者的表现进行了比较。头部定向提供了更准确的表现,但反应不如肌电图。两个命令源都显示了一些方向依赖的性能,移动到对角线位置的目标是通过一系列连续的运动而不是通过直线路径执行的。总的来说,SCI受试者使用每个命令源的表现与使用相同接口和执行相同任务的非残疾人群的表现相似。
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引用次数: 10
Quantitative assessment of hand motor function in cervical spinal disorder patients using target tracking tests. 用目标跟踪试验定量评估颈椎疾患患者的手部运动功能。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2014.12.0319
Sunghoon I Lee, Alex Huang, Bobak Mortazavi, Charles Li, Haydn A Hoffman, Jordan Garst, Derek S Lu, Ruth Getachew, Marie Espinal, Mehrdad Razaghy, Nima Ghalehsari, Brian H Paak, Amir A Ghavam, Marwa Afridi, Arsha Ostowari, Hassan Ghasemzadeh, Daniel C Lu, Majid Sarrafzadeh

Cervical spondylotic myelopathy (CSM) is a chronic spinal disorder in the neck region. Its prevalence is growing rapidly in developed nations, creating a need for an objective assessment tool. This article introduces a system for quantifying hand motor function using a handgrip device and target tracking test. In those with CSM, hand motor impairment often interferes with essential daily activities. The analytic method applied machine learning techniques to investigate the efficacy of the system in (1) detecting the presence of impairments in hand motor function, (2) estimating the perceived motor deficits of CSM patients using the Oswestry Disability Index (ODI), and (3) detecting changes in physical condition after surgery, all of which were performed while ensuring test-retest reliability. The results based on a pilot data set collected from 30 patients with CSM and 30 nondisabled control subjects produced a c-statistic of 0.89 for the detection of impairments, Pearson r of 0.76 with p < 0.001 for the estimation of ODI, and a c-statistic of 0.82 for responsiveness. These results validate the use of the presented system as a means to provide objective and accurate assessment of the level of impairment and surgical outcomes.

脊髓型颈椎病(CSM)是一种发生在颈部的慢性脊柱疾病。它在发达国家的流行率正在迅速增长,因此需要一种客观的评估工具。本文介绍了一种利用手持装置和目标跟踪测试对手部运动功能进行量化的系统。在CSM患者中,手部运动障碍经常干扰基本的日常活动。分析方法应用机器学习技术来研究该系统在以下方面的有效性:(1)检测手部运动功能障碍的存在,(2)使用Oswestry残疾指数(ODI)估计CSM患者的感知运动缺陷,(3)检测手术后身体状况的变化,所有这些都是在确保重测信度的情况下进行的。基于从30名CSM患者和30名非残疾对照组中收集的试点数据集,结果产生了检测损伤的c统计量为0.89,估计ODI的Pearson r为0.76 (p < 0.001),反应性的c统计量为0.82。这些结果验证了所提出的系统作为一种提供客观和准确的评估损伤水平和手术结果的手段的使用。
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引用次数: 11
The effect of caster wheel diameter and mass distribution on drag forces in manual wheelchairs. 脚轮直径和质量分布对手动轮椅拖曳力的影响。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2015.05.0074
Rene Zepeda, Franco Chan, Bonita Sawatzky

This study proposes a way to reduce energy losses in the form of rolling resistance friction during manual wheelchair propulsion by increasing the size of the front caster wheels and adjusting the weight distribution. Drag tests were conducted using a treadmill and a force transducer. Three different casters diameter (4 in., 5 in., and 6 in.) and six different mass distribution combinations (based on percentage of total weight on the caster wheels) were studied. A two-way analysis of variance test was performed to compare caster size and weight distribution contribution with drag force of an ultralight wheelchair. The 4 in. caster contributed significantly more drag, but only when weight was 40% or greater over the casters. Weight distribution contributed more to drag regardless of the casters used.

本研究提出一种通过增大前脚轮尺寸和调整重量分布来减少手动轮椅推进过程中滚动阻力摩擦形式的能量损失的方法。使用跑步机和力传感器进行阻力测试。三个不同的脚轮直径(4英寸)。5英寸。研究了六种不同的质量分布组合(基于脚轮总重量的百分比)。采用双向方差分析检验比较脚轮尺寸和重量分布对超轻型轮椅阻力的贡献。4英寸。脚轮产生了更大的阻力,但只有当重量超过脚轮的40%或更大时。无论使用何种脚轮,重量分布对阻力的贡献都更大。
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引用次数: 11
Fibromyalgia syndrome care of Iraq- and Afghanistan-deployed Veterans in Veterans Health Administration. 退伍军人健康管理局在伊拉克和阿富汗部署的退伍军人的纤维肌痛综合征护理。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2014.10.0265
April F. Mohanty, D. Helmer, Anusha Muthukutty, L. McAndrew, M. Carter, J. Judd, J. Garvin, M. Samore, A. Gundlapalli
Little is known regarding fibromyalgia syndrome (FMS) care among Operation Iraqi Freedom/Operation Enduring Freedom/Operation New Dawn (OIF/OEF/OND) Veterans. Current recommendations include interdisciplinary, team-based combined care approaches and limited opioid use. In this study of OIF/OEF/OND Veterans who accessed Veterans Health Administration services between 2002 and 2012, we hypothesized that combined care (defined as at least 4 primary care visits/yr with visits to mental health and/or rheumatology) versus <4 primary care visits/yr only would be associated with lower risk of at least 2 opioid prescriptions 12 mo following an FMS diagnosis. Using generalized linear models with a log-link, the Poisson family, and robust standard errors, we estimated risk ratios (RRs) and 95% confidence intervals (CIs). We found that 1% of Veterans had at least 2 FMS diagnoses (International Classification of Diseases-9th Revision-Clinical Modification code 729.1) or at least 1 FMS diagnosis by rheumatology. Veterans with (vs without) FMS were more likely to be female, older, Hispanic, and never/currently married. Combined primary, mental health, and rheumatology care was associated with at least 2 opioid prescriptions (RR [95% CI] for males 2.2 [1.1-4.4] and females 2.8 [0.4-18.6]). Also, combined care was associated with at least 2 nonopioid pain-related prescriptions, a practice supported by evidence-based clinical practice guidelines. In tandem, these results provide mixed evidence of benefit of combined care for FMS. Future studies of healthcare encounter characteristics, care coordination, and benefits for Veterans with FMS are needed.
关于伊拉克自由行动/持久自由行动/新黎明行动(OIF/OEF/OND)退伍军人对纤维肌痛综合征(FMS)的护理知之甚少。目前的建议包括跨学科、以团队为基础的联合护理方法和限制阿片类药物的使用。在这项研究中,在2002年至2012年期间获得退伍军人健康管理局服务的OIF/OEF/OND退伍军人,我们假设联合护理(定义为每年至少4次初级保健就诊,包括心理健康和/或风湿病就诊)与每年<4次初级保健就诊相比,在FMS诊断后12个月内至少2次阿片类药物处方的风险较低。使用具有log-link、泊松族和稳健标准误差的广义线性模型,我们估计了风险比(rr)和95%置信区间(ci)。我们发现1%的退伍军人至少有2次FMS诊断(国际疾病分类-第九版-临床修改代码729.1)或至少1次风湿病诊断FMS。有FMS的退伍军人(与没有FMS的退伍军人相比)更可能是女性,年龄较大,西班牙裔,从未/目前未婚。综合初级保健、精神健康和风湿病护理与至少2种阿片类药物处方相关(RR [95% CI]:男性2.2[1.1-4.4],女性2.8[0.4-18.6])。此外,联合治疗与至少2种非阿片类药物疼痛相关处方相关,这一实践得到了循证临床实践指南的支持。综上所述,这些结果为FMS联合治疗的益处提供了混合证据。需要进一步研究FMS退伍军人的医疗保健遭遇特征、护理协调和福利。
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引用次数: 11
Prosthesis management of residual-limb perspiration with subatmospheric vacuum pressure. 亚常压真空修复残肢排汗的处理。
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2015.06.0121
G. Klute, K. J. Bates, J. S. Berge, Wayne Biggs, Charles King
For the ambulatory person with lower-limb amputation, insufficient management of perspiration can result in inadequate prosthesis adherence, reduced mobility, and discomfort. This study compared a dynamic air exchange (DAE) prosthesis designed to expel accumulated perspiration with a total surface bearing suction socket (Suction) that cannot. Five people with unilateral transtibial amputation participated in a randomized, crossover experiment. All subjects were given a 1 wk acclimation to each study prosthesis while we measured their step activity levels. A rest-walk-rest protocol, including a 30 min treadmill walk at a self-selected speed while wearing thermally insulative garments, was then used to observe residual-limb skin temperatures and perspiration. Afterward, subject opinions about the prostheses were assessed with questionnaires. During the week-long acclimation period, no statistical difference in step activity levels were detected between prostheses (p = 0.22), but this may have been due to self-reported behavioral modifications. During the rest-walk-rest protocol, no differences in skin temperatures were observed (p = 0.37). The DAE prosthesis accumulated 1.09 +/- 0.90 g and expelled 0.67 +/- 0.38 g of perspiration, while the Suction prosthesis accumulated 0.97 +/- 0.75 g. The questionnaire results suggest that participants were receptive to both prostheses. The DAE prosthesis was able to expel more than a third of the total perspiration, suggesting it may enable longer uninterrupted periods of perspiration-inducing activity.
对于下肢截肢不能活动的患者,排汗管理不足会导致假体附着不足、活动能力降低和不适。本研究比较了动态空气交换(DAE)假体设计用于排出积汗与全表面承载吸口(吸气)不能排出积汗。五名单侧胫骨截肢患者参加了一项随机交叉实验。所有受试者对每个研究假体进行了1周的适应,同时我们测量了他们的步数活动水平。然后采用休息-步行-休息方案,包括穿着隔热服装以自行选择的速度在跑步机上行走30分钟,观察残肢皮肤温度和排汗。之后,用问卷评估受试者对假体的看法。在为期一周的适应期,假体之间的台阶活动水平没有统计学差异(p = 0.22),但这可能是由于自我报告的行为改变。在休息-行走-休息方案中,没有观察到皮肤温度的差异(p = 0.37)。DAE假体积汗1.09 +/- 0.90 g,排汗0.67 +/- 0.38 g,而吸气假体积汗0.97 +/- 0.75 g。问卷调查结果显示,参与者对两种假肢都能接受。DAE假体能够排出总排汗量的三分之一以上,这表明它可以使不间断的排汗活动持续更长时间。
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引用次数: 8
Validity of the 8-Foot Up and Go, Timed Up and Go, and Activities-Specific Balance Confidence Scale in older adults with and without cognitive impairment. 8-Foot Up and Go, Timed Up and Go,以及特定活动平衡信心量表在有和没有认知障碍的老年人中的有效性
Q Medicine Pub Date : 2016-01-01 DOI: 10.1682/JRRD.2015.03.0042
Elyse Rolenz, Jennifer C Reneker

The purpose of this study was to determine whether (1) mild cognitive impairment (MCI) alters the validity of the Timed Up and Go (TUG), the 8-Foot Up and Go (8UG), or the Activities-Specific Balance Confidence (ABC) scale in the identification of fallers and nonfallers and (2) there were differences in the concurrent validity between the TUG and ABC when compared with the 8UG and ABC in those with and without MCI.. The classification of MCI was based on a score of <26 points on the Montreal Cognitive Assessment. For the 62 participants enrolled, excellent correlations were demonstrated in pairwise comparisons between the outcome measures (on a continuous scale). Based on frequently cited cutpoints, the sensitivity of the TUG was only 20% with a specificity of 94.6% and the sensitivity of the 8UG was 64% with a specificity of 75.7%. The TUG identified fallers at significantly different rates than the 8UG and the ABC (p < 0.05). For this reason, the 8UG is recommended as a more appropriate outcome measure for identifying fall risk in community-dwelling older adults. Fall history was found as the only significant predictor of test outcome for the TUG, 8UG, and ABC, indicating that MCI is not a significant determinant of test performance.

本研究的目的是确定(1)轻度认知障碍(MCI)是否改变了time Up and Go (TUG)、8-Foot Up and Go (8UG)或活动特异性平衡信心(ABC)量表在识别跌倒者和非跌倒者方面的效度;(2)在有和没有MCI的患者中,TUG和ABC的并发效度与8UG和ABC相比存在差异。轻度认知障碍的分类是基于得分
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引用次数: 24
期刊
Journal of Rehabilitation Research and Development
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