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Safety-Net Leadership Perspectives on Collaborative Care for Children With Developmental Disabilities. 发展性残疾儿童协同照顾的安全网领导视角。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-03-25 DOI: 10.1097/DBP.0000000000001476
Anisha P Srinivasan, Melanie Venegas, R Scott Akins, Erik Fernandez Y Garcia, Aubyn C Stahmer

Objective: To identify key barriers and facilitators to designing and implementing collaborative care (CC) for children with developmental disabilities (DD) in safety-net primary care.

Methods: This pre-implementation qualitative study involved semi-structured interviews with safety-net primary care leaders. Using purposive and respondent-driven sampling, interviews were conducted with 16 leaders across 9 safety-net organizations in Northern California between August 2024 and January 2025. Key Consolidated Framework for Implementation Research (CFIR) constructs guided data collection. Data were analyzed using the Rapid Assessment Process and validated through structured member checking.

Results: Leaders from 8 of 9 organizations reported existing integrated behavioral health programs staffed by mental health counselors and/or psychiatrists, but nearly all noted that these programs did not address the specific needs of children with DD. When asked about developing a CC intervention for this population, leaders identified implementation barriers and facilitators that mapped to CFIR inner and outer setting domains. Four themes were distilled: inner setting barriers (space and cost), inner setting facilitators (perceived clinical need among leadership), outer setting barriers (restrictive Medicaid reimbursement policies and limited performance measurement pressure), and outer setting facilitators (alternative financing mechanisms).

Conclusion: Safety-net leaders indicate a clinical need for CC models specifically for children with DD, but implementation success will depend on addressing space, financing, and policy barriers through targeted implementation strategies.

目的:确定在安全网初级保健中为发育性残疾儿童设计和实施协作护理(CC)的主要障碍和促进因素。方法:本实施前定性研究包括对安全网初级保健负责人的半结构化访谈。在2024年8月至2025年1月期间,采用有目的和受访者驱动的抽样方式,对北加州9个安全网组织的16位领导人进行了采访。实施研究关键综合框架(CFIR)构建指导性数据收集。使用快速评估流程对数据进行分析,并通过结构化成员检查对数据进行验证。结果:9个组织中有8个组织的领导报告了现有的由心理健康顾问和/或精神科医生组成的综合行为健康计划,但几乎所有组织都注意到这些计划没有解决DD儿童的具体需求。当被问及为这一人群开发CC干预措施时,领导确定了实施障碍和促进因素,这些障碍和促进因素与cir内部和外部设置域有关。提炼出四个主题:内部设置障碍(空间和成本)、内部设置障碍(领导层感知到的临床需求)、外部设置障碍(限制性医疗补助报销政策和有限的绩效评估压力)和外部设置障碍(替代融资机制)。结论:安全网的领导者指出,临床需要针对DD儿童的CC模式,但实施成功将取决于通过有针对性的实施策略解决空间、资金和政策障碍。
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引用次数: 0
"Commentary: Complex Attention-Deficit Hyperactivity Disorder is Inherently Intersectional". “评论:复杂的注意力缺陷多动障碍是内在的交叉”。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-03-25 DOI: 10.1097/DBP.0000000000001474
Irene M Loe, Adiaha Spinks-Franklin
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引用次数: 0
Challenging Case: Health Care Professionals as Cultural Brokers for a Boy From Central America With Attention-Deficit Hyperactivity Disorder and Trauma and Stressor-related Disorder. 具有挑战性的案例:卫生保健专业人员作为一个中美洲男孩的文化经纪人,患有注意力缺陷多动障碍和创伤和压力相关障碍。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-03-18 DOI: 10.1097/DBP.0000000000001472
Natalie Cerda, Jeffrey D Shahidullah, Courtney Kates, Anahi Marquez, Elizabeth A Diekroger, Jason Fogler
<p><strong>Case: </strong>"Javier" is an 8-year-old boy with a complex psychosocial history presenting for a developmental-behavioral pediatrics consultation because of concerns regarding hyperactivity (affecting safety) and developmental delays, including "lack of independence." He is not yet toilet trained and in his mother's words, "he has the mindset of a child that is much younger than his actual age." Javier's family emigrated to the United States from Central America a year ago to seek asylum. During his family's journey to the United States, Javier and his mother were kidnapped and sexually assaulted. On settling into the United States, Javier was evaluated by his local school district and qualified for specialized services. His mother is not aware of what support he receives at school and is concerned that he is not making sufficient progress. He has not previously received developmental therapies or psychosocial interventions.Javier has demonstrated developmental delays, including reduced reciprocal social communication skills, since birth. His mother shared that he was not able to attend school in Central America as "no schools had the resources to educate him." He began speaking around age 5 years and currently communicates using phrased speech. There have been long-standing safety concerns related to his impulsivity, including wandering, which first emerged in his early toddler years. His hyperactivity predates his history of trauma and sexual abuse. Currently, he demonstrates intermittent physical aggression toward family members. He is interested in fire and has set objects on fire in the home. He is also drawn to placing items in electrical outlets, which has resulted in multiple self-electrocutions.Javier does not have medical insurance but receives limited health coverage through a program for uninsured residents with low income. He was evaluated by a psychiatrist and prescribed 2 medications, although his mother does not know the names of the medications prescribed. Review of psychiatry records indicated that he was prescribed guanfacine extended-release and amphetamine and dextroamphetamine salts extended release. These medications led to improvements in his behavior regulation, although he was not able to take these medications consistently because of cost.Javier's developmental evaluation included assessment of his cognitive, adaptive, and social communication skills in his native language. His diagnostic evaluation yielded provisional diagnoses of autism spectrum disorder with accompanying speech and intellectual impairment. Psychiatric diagnostic impressions included complex attention-deficit/hyperactivity disorder in the context of his significant trauma history. His mother did not have prior conceptualization of developmental or psychiatric diagnoses, and psychoeducation through a cultural lens was provided. What are your next steps in partnering with Javier's family as they navigate medical and educational systems follo
案例:“哈维尔”是一个8岁的男孩,他有复杂的社会心理病史,由于担心多动症(影响安全)和发育迟缓,包括“缺乏独立性”,他来到发育行为儿科咨询。他还没有学会上厕所,用他母亲的话来说,“他的心态比实际年龄小得多。”哈维尔的家人一年前从中美洲移民到美国寻求庇护。在他的家人前往美国的旅途中,哈维尔和他的母亲被绑架并遭到性侵犯。一到美国,哈维尔就接受了当地学区的评估,有资格接受专门的服务。他的母亲不知道他在学校得到了什么支持,担心他没有取得足够的进步。他以前没有接受过发育治疗或心理社会干预。哈维尔自出生以来就表现出发育迟缓,包括人际交往能力下降。他的母亲告诉他,他无法在中美洲上学,因为“没有学校有教育他的资源”。他在5岁左右开始说话,目前使用短语交流。长期以来,人们一直担心他的冲动会带来安全问题,包括在他蹒跚学步的早期就开始四处游荡。他的多动症早于他的创伤和性虐待史。目前,他对家庭成员表现出间歇性的身体攻击。他对火很感兴趣,在家里放过火。他还喜欢把东西放在电源插座上,这导致了多次自我触电。哈维尔没有医疗保险,但通过一个针对低收入无保险居民的项目获得有限的医疗保险。精神病医生对他进行了评估,并给他开了药,尽管他的母亲不知道所开药物的名称。精神病学记录显示,他的处方是胍法辛缓释和安非他明及右苯丙胺盐缓释。这些药物改善了他的行为调节能力,尽管由于费用原因,他无法持续服用这些药物。哈维尔的发展评估包括对他的母语认知能力、适应能力和社会沟通能力的评估。他的诊断评估初步诊断为自闭症谱系障碍并伴有语言和智力障碍。精神病学诊断印象包括复杂的注意力缺陷/多动障碍在他的重大创伤史的背景下。他的母亲对发育或精神诊断没有事先的概念,因此通过文化视角提供了心理教育。哈维尔的家人最近刚到美国,他们要适应医疗和教育系统,你下一步要怎么跟他们合作?“哈维尔是笔名”。
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引用次数: 0
Effects of Paternal Skin Contact on Physical Parameters, Cortisol Levels and Newborn Comfort: A Randomized Controlled Study. 父亲皮肤接触对身体参数、皮质醇水平和新生儿舒适度的影响:一项随机对照研究。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-03-16 DOI: 10.1097/DBP.0000000000001467
Döndü Sevimli Güler, Yasemin Aydin Kartal, İbrahim Caner

Aim: This study was conducted to investigate the effects of skin-to-skin contact between newborns born by cesarean section and their fathers on the newborns' physiological parameters, salivary cortisol levels, and comfort.

Materials and methods: In this study, which used a randomized controlled experimental design, 80 healthy term newborns delivered by cesarean section. In the intervention group, the fathers applied skin-to-skin contact (SSC) for 45 minutes to their newborns. In the control group, the newborns received routine care. Data were collected using a parent descriptive information form, newborn descriptive information form, (SSC) monitoring form, and Neonatal Comfort Behavior Scale|Newborn Comfort Behavior Scale. Body temperature, oxygen saturation, heart rate, and respiration were measured, and salivary cortisol analysis was performed.

Results: No significant differences were found regarding the sociodemographic characteristics in the intervention and control groups. Body temperature was significantly higher during (20th minute) and after (45th minute) SSC, whereas heart and respiratory rates were significantly lower in newborns in the intervention group than those in the control group. The 45-minute SPO2 values and comfort levels of the intervention group newborns were also significantly higher than those of the control group newborns. The salivary cortisol level was significantly higher in the intervention group at the 20th minute, but there was no significant difference between the groups at the 45th minute.

Conclusion: Paternal SSC with newborns has positive effect on physiological parameters and patient comfort. However, it is recommended that salivary cortisol levels be studied in larger samples with repeated and long-term measurements.

目的:探讨剖宫产新生儿与父亲皮肤接触对新生儿生理参数、唾液皮质醇水平和舒适度的影响。材料与方法:本研究采用随机对照实验设计,选取剖宫产分娩的健康足月新生儿80例。在干预组,父亲对他们的新生儿进行皮肤接触(SSC) 45分钟。对照组新生儿接受常规护理。采用父母描述信息表、新生儿描述信息表、(SSC)监测表和新生儿舒适行为量表|新生儿舒适行为量表收集数据。测量体温、血氧饱和度、心率和呼吸,并进行唾液皮质醇分析。结果:干预组与对照组的社会人口学特征无显著差异。干预组新生儿在SSC期间(20分钟)和之后(45分钟)体温明显升高,而心率和呼吸频率明显低于对照组。干预组新生儿45分钟SPO2值和舒适度也显著高于对照组新生儿。干预组唾液皮质醇水平在第20分钟显著升高,但在第45分钟各组间无显著差异。结论:父亲SSC对新生儿生理参数和患者舒适度有积极影响。然而,建议在更大的样本中反复和长期测量唾液皮质醇水平。
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引用次数: 0
"I Need to Pay Attention to Everything": Perspectives of Low-income Parents of Preterm Children on Early Relational Health. “我需要关注一切”:低收入早产儿父母对早期关系健康的看法。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-03-04 DOI: 10.1097/DBP.0000000000001469
Genevieve G Guyol, Michael Arenson, Katherine Baumann, Stacey Ruiz, Alan L Mendelsohn, Jonathan S Litt, Bryanne N Colvin, Margaret G Parker

Objective: Supporting early relational health (ERH) positively affects lifelong health. We investigated perspectives of low-income parents of preterm children regarding child factors and parenting behaviors (defined as responsive parenting, structure/routines, and warm parent-child relationship) associated with ERH and factors associated with these behaviors.

Methods: We conducted in-depth, semi-structured interviews with low-income parents of children born preterm between Neonatal Intensive Care Unit (NICU) discharge and age 3 years. We examined perceptions of ERH and used the PRECEDE framework to identify predisposing, enabling, and reinforcing factors affecting parenting behaviors associated with ERH. We developed codes and themes iteratively using a deductive qualitative approach.

Results: We interviewed 22 parents of children born 24 to 34 weeks' gestation at 1 to 35 months corrected age. Regarding perspectives on ERH, parents shared that the NICU hospitalization heightens attention to children after discharge and that they feel an intense, sometimes overwhelming, bond with children born preterm. Parents both make accommodations for their preterm children and treat them the same as children born full term. Medical vulnerability affects how they spend time with their children. Regarding predisposing, enabling, and reinforcing factors of parenting behaviors associated with ERH, parents noted that developmental professionals can support relationships, that perceptions of preterm birth affect parents' relationships with their children, and that prior experience parenting preterm and full-term children affects confidence and knowledge of how to form relationships.

Conclusion: Adaptation of existing ERH interventions should incorporate ways that NICU hospitalization and views of prematurity inform low-income parents' perceptions and use of parenting behaviors associated with ERH.

目的:支持早期关系健康(ERH)对终身健康有积极影响。我们调查了低收入早产儿父母关于儿童因素和与ERH相关的父母行为(定义为响应性父母、结构/惯例和温暖的亲子关系)以及与这些行为相关的因素的观点。方法:我们对新生儿重症监护病房(NICU)出院至3岁期间出生的早产儿的低收入父母进行了深入的半结构化访谈。我们检查了对ERH的认知,并使用pre框架来确定影响与ERH相关的父母行为的易感因素、使能因素和强化因素。我们使用演绎定性方法迭代开发代码和主题。结果:我们采访了22位在1 ~ 35个月矫正月龄时出生的24 ~ 34周妊娠患儿的父母。关于ERH的观点,家长们认为新生儿重症监护室住院提高了对出院后儿童的关注,他们对早产儿童有一种强烈的,有时是压倒性的联系。父母都会照顾早产儿,把他们当作足月出生的孩子一样对待。身体上的脆弱会影响她们与孩子相处的时间。关于与ERH相关的养育行为的易感因素、促成因素和强化因素,父母们注意到,发展专业人员可以支持关系,对早产的认知影响父母与孩子的关系,以前养育早产儿和足月儿童的经验影响如何建立关系的信心和知识。结论:适应现有的ERH干预措施应纳入新生儿重症监护室住院和早产儿的观点告知低收入父母与ERH相关的育儿行为的看法和使用方式。
{"title":"\"I Need to Pay Attention to Everything\": Perspectives of Low-income Parents of Preterm Children on Early Relational Health.","authors":"Genevieve G Guyol, Michael Arenson, Katherine Baumann, Stacey Ruiz, Alan L Mendelsohn, Jonathan S Litt, Bryanne N Colvin, Margaret G Parker","doi":"10.1097/DBP.0000000000001469","DOIUrl":"10.1097/DBP.0000000000001469","url":null,"abstract":"<p><strong>Objective: </strong>Supporting early relational health (ERH) positively affects lifelong health. We investigated perspectives of low-income parents of preterm children regarding child factors and parenting behaviors (defined as responsive parenting, structure/routines, and warm parent-child relationship) associated with ERH and factors associated with these behaviors.</p><p><strong>Methods: </strong>We conducted in-depth, semi-structured interviews with low-income parents of children born preterm between Neonatal Intensive Care Unit (NICU) discharge and age 3 years. We examined perceptions of ERH and used the PRECEDE framework to identify predisposing, enabling, and reinforcing factors affecting parenting behaviors associated with ERH. We developed codes and themes iteratively using a deductive qualitative approach.</p><p><strong>Results: </strong>We interviewed 22 parents of children born 24 to 34 weeks' gestation at 1 to 35 months corrected age. Regarding perspectives on ERH, parents shared that the NICU hospitalization heightens attention to children after discharge and that they feel an intense, sometimes overwhelming, bond with children born preterm. Parents both make accommodations for their preterm children and treat them the same as children born full term. Medical vulnerability affects how they spend time with their children. Regarding predisposing, enabling, and reinforcing factors of parenting behaviors associated with ERH, parents noted that developmental professionals can support relationships, that perceptions of preterm birth affect parents' relationships with their children, and that prior experience parenting preterm and full-term children affects confidence and knowledge of how to form relationships.</p><p><strong>Conclusion: </strong>Adaptation of existing ERH interventions should incorporate ways that NICU hospitalization and views of prematurity inform low-income parents' perceptions and use of parenting behaviors associated with ERH.</p>","PeriodicalId":50215,"journal":{"name":"Journal of Developmental and Behavioral Pediatrics","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147391333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Academic Impairment in Children Born Very Preterm at 7 and 13 Years of Age. 7岁和13岁非常早产儿童的学业障碍。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-03-02 DOI: 10.1097/DBP.0000000000001470
Leona Pascoe, Ines Mürner-Lavanchy, Jessie Gordon, Megan Spencer-Smith, Peter J Anderson

Objective: Children born very preterm (VPT) are vulnerable to academic challenges; however, it remains unclear whether these difficulties persist into early adolescence. This study aimed to investigate rates of academic impairment in children born VPT and full-term, and impairment stability from 7 to 13 years in children born VPT using 2 approaches: academic underachievement and IQ-achievement discrepancy.

Method: Participants were children born <30 weeks' gestational age and/or <1250 g and full-term (≥37 weeks' gestational age) assessed at 7 (VPT n = 197, full-term n = 69) and 13 years (VPT n = 179, full-term n = 61) on general cognitive ability (WASI-4 and KBIT-2), word reading, spelling, and mathematics (WRAT-4).

Results: Using an underachievement approach, children born VPT were more likely to have an academic impairment at ages 7 and 13 years compared with term-born controls, particularly in reading (odds ratio [OR] and confidence interval [CI] at 7 years: 3.72 [1.67-8.27], at 13 years: 2.55 [1.06-6.11]) and mathematics (OR [CI] at 7 years: 5.77 [2.51-13.25], at 13 years: 2.78 [1.36-5.69]). Rates of impairment were low for both groups using an IQ-achievement discrepancy approach, although a group difference was evident for mathematics impairment at 7 years (OR [CI] 5.94 [1.37-25.8]), with higher rates in the VPT group (15% vs 3%). Rates of academic impairment remained relatively stable between 7 and 13 years of age, regardless of the approach applied.

Conclusion: The rate of academic impairment varies depending on the approach used to classify impairment. Our findings suggest that academic difficulties in children born VPT may reflect a general cognitive impairment rather than a specific academic deficit.

目的:极早产儿(VPT)易受到学业挑战;然而,目前尚不清楚这些困难是否会持续到青春期早期。本研究采用学业成绩不佳和智商-成就差异两种方法,探讨VPT出生儿童和足月出生儿童的学业障碍发生率,以及7 ~ 13岁VPT出生儿童的学业障碍稳定性。结果:使用成绩不佳的方法,与正常出生的对照组相比,出生的VPT儿童更有可能在7岁和13岁时出现学业障碍,特别是在阅读方面(7岁时的比值比[OR]和置信区间[CI]: 3.72[1.67-8.27], 13岁时的比值比[OR]和置信区间[CI]: 2.55[1.06-6.11])和数学(7岁时的比值比[OR]: 5.77[2.51-13.25], 13岁时的比值比[CI]: 2.78[1.36-5.69])。使用智商成就差异方法,两组的损伤率都很低,尽管7岁时数学损伤的组间差异很明显(OR [CI] 5.94 [1.37-25.8]), VPT组的损伤率更高(15%对3%)。无论采用何种方法,7岁至13岁之间的学业障碍率保持相对稳定。结论:学业障碍的发生率随学业障碍分类方法的不同而不同。我们的研究结果表明,VPT儿童的学习困难可能反映了一般的认知障碍,而不是特定的学习缺陷。
{"title":"Academic Impairment in Children Born Very Preterm at 7 and 13 Years of Age.","authors":"Leona Pascoe, Ines Mürner-Lavanchy, Jessie Gordon, Megan Spencer-Smith, Peter J Anderson","doi":"10.1097/DBP.0000000000001470","DOIUrl":"https://doi.org/10.1097/DBP.0000000000001470","url":null,"abstract":"<p><strong>Objective: </strong>Children born very preterm (VPT) are vulnerable to academic challenges; however, it remains unclear whether these difficulties persist into early adolescence. This study aimed to investigate rates of academic impairment in children born VPT and full-term, and impairment stability from 7 to 13 years in children born VPT using 2 approaches: academic underachievement and IQ-achievement discrepancy.</p><p><strong>Method: </strong>Participants were children born <30 weeks' gestational age and/or <1250 g and full-term (≥37 weeks' gestational age) assessed at 7 (VPT n = 197, full-term n = 69) and 13 years (VPT n = 179, full-term n = 61) on general cognitive ability (WASI-4 and KBIT-2), word reading, spelling, and mathematics (WRAT-4).</p><p><strong>Results: </strong>Using an underachievement approach, children born VPT were more likely to have an academic impairment at ages 7 and 13 years compared with term-born controls, particularly in reading (odds ratio [OR] and confidence interval [CI] at 7 years: 3.72 [1.67-8.27], at 13 years: 2.55 [1.06-6.11]) and mathematics (OR [CI] at 7 years: 5.77 [2.51-13.25], at 13 years: 2.78 [1.36-5.69]). Rates of impairment were low for both groups using an IQ-achievement discrepancy approach, although a group difference was evident for mathematics impairment at 7 years (OR [CI] 5.94 [1.37-25.8]), with higher rates in the VPT group (15% vs 3%). Rates of academic impairment remained relatively stable between 7 and 13 years of age, regardless of the approach applied.</p><p><strong>Conclusion: </strong>The rate of academic impairment varies depending on the approach used to classify impairment. Our findings suggest that academic difficulties in children born VPT may reflect a general cognitive impairment rather than a specific academic deficit.</p>","PeriodicalId":50215,"journal":{"name":"Journal of Developmental and Behavioral Pediatrics","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147328047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bayley Assessment Score Revisions in High-risk Population After Release of New Normatives. 新标准发布后高危人群Bayley评估评分的修订。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-02-19 DOI: 10.1097/DBP.0000000000001466
Desiree Starzyk, Jacob B W Holzman, Kelly Wolfe, Allison G Dempsey

Objective: The Bayley Scales of Infant and Toddler Development, Fourth Edition (Bayley-4), which was released in 2019, received updated normative data in 2023, raising concerns about potential score shifts in previously collected data. This study examined whether developmental interpretations based on the original versus revised norms differ within a cohort of medically complex children.

Method: Scores from 61 children assessed with the Bayley-4 before revised norms were released were used in this study. Frequency of changes in results across Standard Scores at the composite level (cognitive, language, motor) and paired samples t tests of original and new Standard Scores sets were analyzed.

Results: Score changes witnessed went beyond the publisher's descriptions that resulted in increases and decreases throughout several descriptive classifications that are used for clinical interpretation. Of the 3 domains analyzed, language scores showed a minor but statistically significant increase between sample sets (p < 0.01), whereas motor and cognitive scores showed no significant difference (p > 0.05). Only 1 change between original and revised scores in the motor domain resulted in a different descriptive classification.

Conclusion: Although many of the revised scores on the Bayley-4 yielded minor differences, unanticipated changes were observed such as score decreases, classification change, and notable differences in mean language scores. Because of these discrepancies, researchers and clinicians using the Bayley-4 during 2019 to 2023 should consider re-evaluating scores.

目的:2019年发布的Bayley婴幼儿发育量表第四版(Bayley-4)在2023年获得了更新的规范数据,这引起了人们对先前收集数据可能发生评分变化的担忧。本研究考察了在一组医学复杂的儿童中,基于原始规范和修订规范的发展解释是否存在差异。方法:采用修订前的Bayley-4量表对61例儿童进行评估。分析了综合水平(认知、语言、运动)标准分数结果变化的频率,以及原始和新标准分数集的配对样本t检验。结果:观察到的分数变化超出了出版商的描述,导致在用于临床解释的几个描述性分类中增加或减少。在分析的3个领域中,语言得分在样本集之间有轻微但有统计学意义的增加(p < 0.01),而运动和认知得分在样本集之间无显著差异(p < 0.05)。在运动领域的原始和修订分数之间只有1个变化导致了不同的描述性分类。结论:虽然许多修订后的Bayley-4得分产生了较小的差异,但仍观察到意想不到的变化,如得分下降、分类变化和平均语言得分的显着差异。由于这些差异,2019年至2023年期间使用Bayley-4的研究人员和临床医生应考虑重新评估评分。
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引用次数: 0
How are School-aged Children With Autism Spectrum Disorder Using Digital Media? A Qualitative Study of Families' Lived Experiences. 自闭症谱系障碍学龄儿童如何使用数字媒体?家庭生活经历的质性研究。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-02-19 DOI: 10.1097/DBP.0000000000001468
Deanna Pennewitt, Aubrey Borgen, Megan Warfle, Angela Fish, Sarah Mohiuddin, Tiffany Munzer

Objective: Children with autism may be more likely to experience challenges and adverse effects from digital media use; however, prior work has not qualitatively examined children's and caregivers' experiences. Among caregivers and school-age children with autism, we aim to qualitatively examine the context, content, and function of digital media use, behavioral strategies, and challenges navigating digital media.

Methods: Caregivers of school-aged children with autism (aged 6-11 years) completed questionnaires on demographic information, child characteristics, and digital media habits. A total of 22 caregivers and 10 children with autism participated in qualitative interviews by Zoom. Questions probed for family experiences, challenges, and digital media strategies. A multidisciplinary team used interview transcripts to conduct an inductive thematic analysis.

Results: Children with autism in the study had an average of 4.3 hours of screen media use daily; 68.2% had their own tablet and 27.3% had their own mobile device. We identified 7 themes: Wired World (children are exposed to digital media across settings), Diving Deep and Building Skills (children use media to learn and delve into interests), Retreat/Relief from Reality (digital media is less stressful than other tasks), No Size Fits All (caregivers used diverse strategies), Societal Blame and Parental Shame (caregivers expressed internalized guilt around children's media use), The Digital Dark Side (concerns about inappropriate content and privacy), and The Double Edged Sword (digital media comes with both benefits and challenges).

Conclusion: Results from this study emphasize the need for individualized guidance, flexibility, and understanding of digital media's functional role in families of children with autism.

目的:自闭症儿童可能更容易经历数字媒体使用的挑战和不良影响;然而,先前的工作并没有定性地检查儿童和照顾者的经历。在照顾者和学龄自闭症儿童中,我们的目标是定性地研究数字媒体使用的背景、内容和功能、行为策略和驾驭数字媒体的挑战。方法:6-11岁学龄自闭症儿童的照顾者填写人口统计信息、儿童特征和数字媒体习惯问卷。共有22名护理人员和10名自闭症儿童参与了Zoom的定性访谈。探讨了家庭经历、挑战和数字媒体策略的问题。一个多学科团队利用访谈记录进行归纳性专题分析。结果:研究中的自闭症儿童平均每天使用4.3小时的屏幕媒体;68.2%的人拥有自己的平板电脑,27.3%的人拥有自己的移动设备。我们确定了7个主题:《有线世界》(儿童在不同的环境下接触数字媒体)、《深入挖掘和培养技能》(儿童使用媒体来学习和钻研兴趣)、《逃避现实/解脱》(数字媒体比其他任务压力小)、《没有万能的办法》(照顾者使用不同的策略)、《社会指责和父母羞耻》(照顾者对儿童使用媒体表达内化的内疚感)、《数字黑暗面》(担心不恰当的内容和隐私)、《双刃剑》(数字媒体既带来好处,也带来挑战)。结论:本研究的结果强调了个性化指导、灵活性和理解数字媒体在自闭症儿童家庭中的功能角色的必要性。
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引用次数: 0
Five-year Outcomes From a Career Exploration Pilot Program for Developmental & Behavioral Pediatrics. 发展与行为儿科职业探索试点项目的五年成果。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-02-10 DOI: 10.1097/DBP.0000000000001462
Shruti Mittal, Elizabeth Barnhardt, Silvia Pereira-Smith, Shawna McCafferty, Rohan Patel, Karen Miller, Ellen Perrin

Objective: To evaluate the impact of a national career exploration program, Exploring DBP, on trainee interest in pursuing exploring developmental-behavioral pediatrics (DBP) fellowship, and to describe participant demographics, knowledge gains, and perceived barriers to entering the field.

Method: Presurvey and postsurvey results were analyzed from the program's 2019 to 2023 cohorts assessing demographics, DBP knowledge, program satisfaction, and likelihood to apply for fellowship. Data were analyzed descriptively. Qualitative responses were analyzed to explore career decision factors.

Results: From 2019 to 2023, 239 participants completed the program (50.1% residents, 44.8% medical students, and 5.0% general pediatricians). The cohort had greater representation of trainees from ethnically diverse backgrounds compared with national averages (e.g., 26.6% Hispanic vs 7%-9%). Participants consistently rated mentorship and personal stories from DBP professionals as the most valuable program components. After the program, the proportion of participants who were "likely" or "very likely" to apply for a DBP fellowship rose from 46% to 79%. Key reported barriers to pursuing fellowship included inadequate compensation, training length, student loan burden, and competing interest in fields such as child psychiatry or neurology. A 2022 follow-up survey found that 41% of eligible early participants had successfully matched into a DBP fellowship program.

Conclusion: The program effectively increased knowledge and interest in pursuing a DBP career. Structured early exposure may support recruitment into undersubscribed pediatric subspecialties.

目的:评估国家职业探索计划(探索发展行为儿科)对实习生追求探索发展行为儿科(DBP)奖学金的兴趣的影响,并描述参与者的人口统计、知识收获和进入该领域的感知障碍。方法:对该项目2019年至2023年的调查前后结果进行分析,评估人口统计学、DBP知识、项目满意度和申请奖学金的可能性。对数据进行描述性分析。质性回应分析探讨职业决策因素。结果:从2019年到2023年,239名参与者完成了该计划(50.1%的住院医师,44.8%的医学生和5.0%的普通儿科医生)。与全国平均水平相比,该队列中来自不同种族背景的受训者的代表性更大(例如,26.6%的西班牙裔对7%-9%)。参与者一致认为来自DBP专业人士的指导和个人故事是最有价值的项目组成部分。项目结束后,“可能”或“非常可能”申请DBP奖学金的参与者比例从46%上升到79%。据报道,攻读奖学金的主要障碍包括薪酬不足、培训时间长短、学生贷款负担以及在儿童精神病学或神经病学等领域的竞争兴趣。2022年的一项后续调查发现,41%符合条件的早期参与者成功匹配到DBP奖学金项目。结论:该计划有效地提高了追求DBP职业的知识和兴趣。有组织的早期接触可能支持招募到认购不足的儿科亚专科。
{"title":"Five-year Outcomes From a Career Exploration Pilot Program for Developmental & Behavioral Pediatrics.","authors":"Shruti Mittal, Elizabeth Barnhardt, Silvia Pereira-Smith, Shawna McCafferty, Rohan Patel, Karen Miller, Ellen Perrin","doi":"10.1097/DBP.0000000000001462","DOIUrl":"https://doi.org/10.1097/DBP.0000000000001462","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate the impact of a national career exploration program, Exploring DBP, on trainee interest in pursuing exploring developmental-behavioral pediatrics (DBP) fellowship, and to describe participant demographics, knowledge gains, and perceived barriers to entering the field.</p><p><strong>Method: </strong>Presurvey and postsurvey results were analyzed from the program's 2019 to 2023 cohorts assessing demographics, DBP knowledge, program satisfaction, and likelihood to apply for fellowship. Data were analyzed descriptively. Qualitative responses were analyzed to explore career decision factors.</p><p><strong>Results: </strong>From 2019 to 2023, 239 participants completed the program (50.1% residents, 44.8% medical students, and 5.0% general pediatricians). The cohort had greater representation of trainees from ethnically diverse backgrounds compared with national averages (e.g., 26.6% Hispanic vs 7%-9%). Participants consistently rated mentorship and personal stories from DBP professionals as the most valuable program components. After the program, the proportion of participants who were \"likely\" or \"very likely\" to apply for a DBP fellowship rose from 46% to 79%. Key reported barriers to pursuing fellowship included inadequate compensation, training length, student loan burden, and competing interest in fields such as child psychiatry or neurology. A 2022 follow-up survey found that 41% of eligible early participants had successfully matched into a DBP fellowship program.</p><p><strong>Conclusion: </strong>The program effectively increased knowledge and interest in pursuing a DBP career. Structured early exposure may support recruitment into undersubscribed pediatric subspecialties.</p>","PeriodicalId":50215,"journal":{"name":"Journal of Developmental and Behavioral Pediatrics","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146151217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Relationship Between the Survey of Well-being of Young Children and Speech-language Delay Diagnosis. 幼儿幸福感调查与言语语言迟缓诊断的关系。
IF 2.2 3区 医学 Q3 BEHAVIORAL SCIENCES Pub Date : 2026-02-09 DOI: 10.1097/DBP.0000000000001460
Danai Kasambira Fannin, Jiang Shu, Geraldine Dawson, Gary Maslow, Benjamin A Goldstein, Lauren Franz

Objective: The Survey of Well-being of Young Children (SWYC) supports developmental screening at well-child visits. However, a US Preventive Services Task Force report suggests insufficient evidence for this approach for speech-language delay identification. The objective of this study was to determine associations between SWYC use and score at 24-month visits and timing of speech-language delay diagnoses and whether timing differed by sociodemographic characteristics.

Methods: Using electronic health records of 7,198 children born January 2016-December 2020 in a mid-sized health care system, we fit Kaplan-Meier survival curves for time to speech-language delay diagnosis based on SWYC use and score. Cox proportional hazards time-to-event analyses were run, and interactions between SWYC use and score and sociodemographics were assessed.

Results: Fifty percent received the SWYC, with use increasing during the study period with no sociodemographic differences detected. While SWYC use had no association with diagnosis (hazard ratio: 0.986, 95% confidence interval: 0.856-1.1136), lower SWYC scores (indicating greater developmental concern) were associated with higher likelihood of diagnosis (hazard ratio: 0.114, 95% confidence interval: 0.095-0.137). Interactions between scores and diagnostic timing by payer type and race/ethnicity were detected. Boys, publicly insured children, and those with lower SWYC scores were more likely to receive a speech-language delay diagnosis at their 24-month visit.

Conclusion: While clinicians likely rely on clinical judgement to identify delays, results suggest the SWYC is associated with speech-language delay identification. The ability of the SWYC to identify speech-language delay was moderated by insurance and race/ethnicity, warranting further study of factors shaping diagnostic decision-making.

目的:幼儿健康状况调查(SWYC)支持健康儿童访视时的发育筛查。然而,美国预防服务工作组的一份报告显示,这种方法用于言语语言延迟识别的证据不足。本研究的目的是确定SWYC的使用和24个月就诊时的评分与言语语言延迟诊断的时间之间的关系,以及时间是否因社会人口学特征而异。方法:使用一家中型医疗保健系统2016年1月至2020年12月出生的7198名儿童的电子健康记录,我们拟合基于SWYC使用和评分的时间到语言延迟诊断的Kaplan-Meier生存曲线。进行Cox比例风险-事件时间分析,并评估SWYC使用与评分和社会人口统计学之间的相互作用。结果:50%的人接受了SWYC,在研究期间使用率增加,没有发现社会人口统计学差异。虽然SWYC的使用与诊断无关(风险比:0.986,95%可信区间:0.856-1.1136),但较低的SWYC评分(表明更大的发育关注)与较高的诊断可能性相关(风险比:0.114,95%可信区间:0.095-0.137)。检测了付款人类型和种族/民族评分和诊断时间之间的相互作用。男孩、公共保险儿童和SWYC分数较低的儿童在24个月的随访中更有可能被诊断为语言迟缓。结论:虽然临床医生可能依赖于临床判断来识别延迟,但结果表明SWYC与言语语言延迟识别有关。SWYC识别言语语言延迟的能力受到保险和种族/民族的影响,这需要进一步研究影响诊断决策的因素。
{"title":"The Relationship Between the Survey of Well-being of Young Children and Speech-language Delay Diagnosis.","authors":"Danai Kasambira Fannin, Jiang Shu, Geraldine Dawson, Gary Maslow, Benjamin A Goldstein, Lauren Franz","doi":"10.1097/DBP.0000000000001460","DOIUrl":"10.1097/DBP.0000000000001460","url":null,"abstract":"<p><strong>Objective: </strong>The Survey of Well-being of Young Children (SWYC) supports developmental screening at well-child visits. However, a US Preventive Services Task Force report suggests insufficient evidence for this approach for speech-language delay identification. The objective of this study was to determine associations between SWYC use and score at 24-month visits and timing of speech-language delay diagnoses and whether timing differed by sociodemographic characteristics.</p><p><strong>Methods: </strong>Using electronic health records of 7,198 children born January 2016-December 2020 in a mid-sized health care system, we fit Kaplan-Meier survival curves for time to speech-language delay diagnosis based on SWYC use and score. Cox proportional hazards time-to-event analyses were run, and interactions between SWYC use and score and sociodemographics were assessed.</p><p><strong>Results: </strong>Fifty percent received the SWYC, with use increasing during the study period with no sociodemographic differences detected. While SWYC use had no association with diagnosis (hazard ratio: 0.986, 95% confidence interval: 0.856-1.1136), lower SWYC scores (indicating greater developmental concern) were associated with higher likelihood of diagnosis (hazard ratio: 0.114, 95% confidence interval: 0.095-0.137). Interactions between scores and diagnostic timing by payer type and race/ethnicity were detected. Boys, publicly insured children, and those with lower SWYC scores were more likely to receive a speech-language delay diagnosis at their 24-month visit.</p><p><strong>Conclusion: </strong>While clinicians likely rely on clinical judgement to identify delays, results suggest the SWYC is associated with speech-language delay identification. The ability of the SWYC to identify speech-language delay was moderated by insurance and race/ethnicity, warranting further study of factors shaping diagnostic decision-making.</p>","PeriodicalId":50215,"journal":{"name":"Journal of Developmental and Behavioral Pediatrics","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Developmental and Behavioral Pediatrics
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