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Development of a virtual reality-based intervention for community walking post stroke: an integrated knowledge translation approach. 开发一种基于虚拟现实的中风后社区步行干预:一种综合知识翻译方法。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-11-03 DOI: 10.1080/09638288.2023.2277397
Myriam Villeneuve, Tatiana Ogourtsova, Anne Deblock-Bellamy, Andréanne Blanchette, Marco A Bühler, Joyce Fung, Bradford J McFadyen, Anita Menon, Claire Perez, Samir Sangani, Anouk Lamontagne

Purpose: To develop a virtual reality (VR) based intervention targeting community walking requirements.

Methods: Two focus groups each involving 7 clinicians allowed exploring optimal features, needed support and perceived favorable/unfavorable factors associated with the use of the VR-based intervention from the clinicians' perspective. Three stroke survivors and 2 clinicians further interacted with the intervention and filled questionnaires related to acceptability and favorable/unfavorable perceptions on the VR intervention. Stroke participants additionally rated their perceived effort (NASA Tax Load Index), presence (Slater-Usoh-Steed) and cybersickness (Simulator Sickness Questionnaire).

Results: Results identified optimal features (patient eligibility criteria, task complexity), needed support (training, human assistance), as well as favorable (cognitive stimulation, engagement, representativeness of therapeutic goals) and unfavorable factors (misalignment with a natural walking pattern, client suitability, generalization to real-life) associated with the intervention. Acceptability scores following the interaction with the tool were 28 and 42 (max 56) for clinicians and ranged from 43 to 52 for stroke participants. Stroke participants reported moderate perceptions of effort (range:20-33/max:60), high levels of presence (29-42/42) and minimal cybersickness (0-3/64).

Conclusion: Findings collected in the early development phase of the VR intervention will allow addressing favorable/unfavorable factors and incorporating desired optimal features, prior to conducting effectiveness and implementation studies.

目的:针对社区步行需求,开发一种基于虚拟现实的干预措施。方法:两个焦点小组,每个小组涉及7名临床医生,允许从临床医生的角度探索与使用基于VR的干预相关的最佳特征、所需支持和感知的有利/不利因素。三名中风幸存者和两名临床医生进一步参与了干预,并填写了与VR干预的可接受性和有利/不利看法相关的问卷。中风参与者还对他们的感知努力(NASA税收负担指数)、存在(Slater Usoh Steed)和网络病(模拟器疾病问卷)进行了评分。结果:结果确定了最佳特征(患者资格标准、任务复杂性)、所需支持(培训、人类援助),以及与干预相关的有利因素(认知刺激、参与、治疗目标的代表性)和不利因素(与自然行走模式不一致、客户适合性、对现实生活的概括)。临床医生在与该工具交互后的可接受性得分为28和42(最大56),中风参与者的可接受度得分为43至52。中风参与者报告了中等程度的努力感(范围:20-33/max:60)、高水平的存在感(29-42/42)和最低程度的网络病(0-3/64)。结论:在进行有效性和实施研究之前,在VR干预的早期发展阶段收集的结果将有助于解决有利/不利因素,并结合所需的最佳特征。
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引用次数: 0
Musculoskeletal complaints and disability in a group of young adults with major congenital upper limb differences in The Netherlands. 荷兰一组有严重先天性上肢差异的年轻人的肌肉骨骼主诉和残疾。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-11-10 DOI: 10.1080/09638288.2023.2278165
Martinus J J Koenis, Pieter U Dijkstra, Sietke G Postema, Wim G M Janssen, Michael A H Brouwers, Corry K van der Sluis

Purpose: To determine prevalence of musculoskeletal complaints (MSCs) in adults with major congenital upper limb differences (CoULD) compared to able-bodied controls, and to examine associations of MSCs and disability with various biopsychosocial factors.

Materials and methods: Questionnaire-based cross-sectional study assessing MSCs, disability (using the Disabilities of the Arm, Shoulder and Hand questionnaire (DASH)), general and mental health status, physical work demands, and upper extremity range of motion.

Results: Seventy-one individuals with CoULD (participation rate: 41%) and 71 controls matched on age, gender, and education were included (49% female, mean age 28.9 years). Year prevalence of MSCs was significantly higher in the CoULD group (35%) than in the control group (18%). The CoULD group was less often employed and had lower scores on all measures of upper limb range of motion and hand grip. MSCs were associated with higher DASH scores and higher reported work demands. Disability was associated with female gender, more joints with limited range of motion, unemployment, and lower general and mental health. Factors associated with disability did not differ between groups.

Conclusions: MSCs are a frequent problem in young adults with major CoULD. To prevent or reduce MSC and disability, clinicians and researchers should be aware of the associated factors. Implications for rehabilitationThe year prevalence of musculoskeletal complaints (MSCs) in those with major congenital upper limb differences (CoULD) was approximately double to that of the control group, implying a potential relationship between CoULD and MSCs.Rehabilitation professionals should develop personalized strategies to manage work demands in those with CoULD, considering the association between MSCs and higher reported work demands.Recognizing the impact of a negatively perceived body image on mental health, clinicians should integrate psychological counseling into rehabilitation treatments to support mental well-being and improve overall quality of life in those with CoULD.Rehabilitation professionals should educate individuals with CoULD about the potential associations between upper limb work demands, MSCs, and disability.

目的:与健全对照组相比,确定患有严重先天性上肢差异(CoULD)的成人肌肉骨骼疾病(MSCs)的患病率,并检查MSCs和残疾与各种生物心理社会因素的关系。材料和方法:基于问卷的横断面研究,评估MSCs、残疾(使用手臂、肩膀和手部残疾问卷(DASH))、一般和心理健康状况、体力劳动需求和上肢活动范围。结果:纳入71名CoULD患者(参与率:41%)和71名年龄、性别和教育程度匹配的对照组(49%为女性,平均年龄28.9岁)。CoULD组间充质干细胞的年患病率(35%)显著高于对照组(18%)。CoULD组较少使用,在上肢运动范围和握力的所有测量中得分较低。MSC与较高的DASH评分和较高的报告工作需求相关。残疾与女性、活动范围有限的关节较多、失业以及总体和心理健康状况较差有关。与残疾相关的因素在各组之间没有差异。结论:间充质干细胞是患有严重CoULD的年轻人的常见问题。为了预防或减少MSC和残疾,临床医生和研究人员应该意识到相关因素。对康复的影响患有严重先天性上肢差异(CoULD)的患者肌肉骨骼疾病(MSC)的年患病率约为对照组的两倍,这意味着CoULD和MSC之间存在潜在关系。康复专业人员应制定个性化策略来管理CoULD患者的工作需求,考虑到MSC与更高报告的工作需求之间的关联。认识到负面感知的身体形象对心理健康的影响,临床医生应将心理咨询纳入康复治疗,以支持CoULD患者的心理健康并提高其整体生活质量。康复专业人员应教育CoULD患者上肢工作需求、MSC,和残疾。
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引用次数: 0
Contralaterally controlled functional electrical stimulation video game therapy for hand rehabilitation after stroke: a randomized controlled trial. 对侧控制功能电刺激视频游戏治疗中风后手部康复:一项随机对照试验。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-11-14 DOI: 10.1080/09638288.2023.2278174
Jayme S Knutson, Michael J Fu, David A Cunningham, Terri Z Hisel, Amy S Friedl, Douglas D Gunzler, Ela B Plow, Robyn M Busch, Svetlana Pundik

Purpose: To estimate the effect of integrating custom-designed hand therapy video games (HTVG) with contralaterally controlled functional electrical stimulation (CCFES) therapy.

Methods: Fifty-two stroke survivors with chronic (>6 months) upper limb hemiplegia were randomized to 12 weeks of CCFES or CCFES + HTVG. Treatment involved self-administration of technology-mediated therapy at home plus therapist-administered CCFES-assisted task practice in the lab. Pre- and post-treatment assessments were made of hand dexterity, upper limb impairment and activity limitation, and cognitive function.

Results: No significant between-group differences were found on any outcome measure, and the average magnitudes of improvement within both groups were small. The incidence of technical problems with study devices at home was greater for the CCFES + HTVG group. This negatively affected adherence and may partially explain the absence of effect of HTVG. At end-of-treatment, large majorities of both treatment groups had positive perceptions of treatment efficacy and expressed enthusiasm for the treatments.

Conclusion: This study makes an important contribution to the research literature on the importance of environmental factors, concomitant impairments, and technology simplification when designing technology-based therapies intended to be self-administered at home. This study failed to show any added benefit of HTVG to CCFES therapy.Clinicaltrials.gov (NCT03058796).

目的:评估将定制设计的手部治疗视频游戏(HTVG)与对侧控制功能电刺激(CCFES)治疗相结合的效果。方法:52例慢性(bbb6个月)上肢偏瘫的脑卒中幸存者随机分为CCFES组和CCFES + HTVG组。治疗包括在家中自行进行技术介导的治疗,加上治疗师在实验室进行ccfis辅助的任务练习。治疗前和治疗后评估了手灵巧度、上肢损伤和活动限制以及认知功能。结果:两组间在任何结果测量上均无显著差异,两组的平均改善幅度均较小。CCFES + HTVG组在家中研究设备的技术问题发生率更高。这对依从性产生负面影响,可能部分解释了HTVG没有效果的原因。在治疗结束时,两个治疗组的绝大多数人对治疗效果有积极的看法,并表达了对治疗的热情。结论:本研究对环境因素、伴随损伤和技术简化的重要性的研究文献做出了重要贡献,当设计以技术为基础的在家自我给药的治疗方法时。该研究未能显示HTVG对CCFES治疗有任何额外的益处。
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引用次数: 0
Tailoring of exercise and dietary interventions to adverse effects and existing comorbidities in patients with ovarian cancer receiving chemotherapy: a clinical vignettes study among expert physical therapists and dietitians. 针对接受化疗的癌症卵巢患者的不良反应和现有合并症,制定运动和饮食干预措施:一项针对专业理疗师和营养师的临床小插曲研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-10-10 DOI: 10.1080/09638288.2023.2265820
Stephanie Stelten, Marieke R Ten Tusscher, Martijn M Stuiver, Yvonne A W Hartman, Luc R C W van Lonkhuijzen, Gemma G Kenter, Marike van der Leeden, Meeke Hoedjes, Laurien M Buffart

Purpose: This study aims to capture the complex clinical reasoning process during tailoring of exercise and dietary interventions to adverse effects and comorbidities of patients with ovarian cancer receiving chemotherapy.

Methods: Clinical vignettes were presented to expert physical therapists (n = 4) and dietitians (n = 3). Using the think aloud method, these experts were asked to verbalize their clinical reasoning on how they would tailor the intervention to adverse effects of ovarian cancer and its treatment and comorbidities. Clinical reasoning steps were categorized in questions raised to obtain additional information; anticipated answers; and actions to be taken. Questions and actions were labeled according to the evidence-based practice model.

Results: Questions to obtain additional information were frequently related to the patients' capacities, safety or the etiology of health issues. Various hypothetical answers were proposed which led to different actions. Suggested actions by the experts included extensive monitoring of symptoms and parameters, specific adaptations to the exercise protocol and dietary-related patient education.

Conclusions: Our study obtained insight into the complex process of clinical reasoning, in which a variety of patient-related variables are used to tailor interventions. This insight can be useful for description and fidelity assessment of interventions and training of healthcare professionals.

目的:本研究旨在了解癌症化疗患者在调整运动和饮食干预措施以应对不良反应和合并症过程中的复杂临床推理过程。方法:向专业物理治疗师(n = 4) 和营养师(n = 3) 。使用大声思考的方法,这些专家被要求说出他们的临床推理,说明他们将如何根据卵巢癌症的不良影响及其治疗和合并症调整干预措施。临床推理步骤在提出的问题中进行分类,以获得更多信息;预期答案;以及要采取的行动。根据循证实践模型对问题和行动进行标记。结果:获得额外信息的问题通常与患者的能力、安全性或健康问题的病因有关。提出了各种假设性的答案,导致了不同的行动。专家们建议采取的行动包括广泛监测症状和参数、对运动方案的具体调整以及与饮食相关的患者教育。结论:我们的研究深入了解了临床推理的复杂过程,其中使用了各种与患者相关的变量来定制干预措施。这一见解可用于干预措施的描述和保真度评估以及医疗保健专业人员的培训。
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引用次数: 0
Patients experience of cognitive fatigue post-stroke: an exploratory study. 脑卒中后患者的认知疲劳体验:一项探索性研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-11-08 DOI: 10.1080/09638288.2023.2280065
Sorayya Askari, Keri Harvey, Mary Sam-Odutola

Purpose: Cognitive fatigue is commonly reported and described as disabling by patients recovering from neurological conditions including stroke. However, cognitive fatigue is usually underdiagnosed among stroke survivors which leads to a lack of specific treatments for this condition. Therefore, the aim of this study was to explore post-stroke cognitive fatigue as it is experienced by stroke survivors.

Methods: This qualitative research followed the principles of descriptive phenomenology within a constructivist paradigm. Individual semi-structured interviews were conducted with stroke survivors experiencing post-stroke cognitive fatigue recruited through the Heart and Stroke Foundation, the Canadian Partnership for Stroke Recovery, and social media posts. Data were analyzed through inductive content analysis.

Results: Eleven stroke survivors participated. The analysis revealed five themes illustrating the experience and descriptions of post-stroke cognitive fatigue: (1) characteristics, (2) aggravating factors, (3) management, (4) effect of cognitive fatigue on daily life, and (5) social awareness and support.

Conclusion: This study highlights the complexity of post-stroke cognitive fatigue. Cognitive fatigue becomes more evident after discharge; therefore, clinicians should consistently screen for it and provide proper education to the patients and their carers.IMPLICATIONS FOR REHABILITATIONCognitive fatigue is a complex phenomenon that can negatively affect the daily life of stroke survivors.Sensory-overloaded environments, emotional distress, poor sleep, and engaging in complex cognitive tasks can trigger post-stroke cognitive fatigue.More education on the concept of cognitive fatigue should be provided to healthcare providers to be able to identify and manage this symptom properly.

目的:认知疲劳通常被报道和描述为从包括中风在内的神经系统疾病中恢复的患者致残。然而,认知疲劳在中风幸存者中通常诊断不足,这导致缺乏针对这种情况的具体治疗方法。因此,本研究的目的是探索中风幸存者所经历的中风后认知疲劳。方法:这项定性研究在建构主义范式中遵循了描述性现象学的原则。对通过心脏与中风基金会、加拿大中风康复伙伴关系和社交媒体帖子招募的经历中风后认知疲劳的中风幸存者进行了个人半结构化访谈。通过归纳内容分析对数据进行分析。结果:11名脑卒中幸存者参与。分析揭示了五个主题,说明了脑卒中后认知疲劳的经历和描述:(1)特征,(2)加重因素,(3)管理,(4)认知疲劳对日常生活的影响,以及(5)社会意识和支持。结论:本研究突出了脑卒中后认知疲劳的复杂性。出院后认知疲劳更加明显;因此,临床医生应该持续筛查,并为患者及其护理人员提供适当的教育。认知疲劳是一种复杂的现象,会对中风幸存者的日常生活产生负面影响。感觉超负荷的环境、情绪困扰、睡眠不足以及从事复杂的认知任务都会引发脑卒中后的认知疲劳。应该向医疗保健提供者提供更多关于认知疲劳概念的教育,以便能够正确识别和管理这种症状。
{"title":"Patients experience of cognitive fatigue post-stroke: an exploratory study.","authors":"Sorayya Askari, Keri Harvey, Mary Sam-Odutola","doi":"10.1080/09638288.2023.2280065","DOIUrl":"10.1080/09638288.2023.2280065","url":null,"abstract":"<p><strong>Purpose: </strong>Cognitive fatigue is commonly reported and described as disabling by patients recovering from neurological conditions including stroke. However, cognitive fatigue is usually underdiagnosed among stroke survivors which leads to a lack of specific treatments for this condition. Therefore, the aim of this study was to explore post-stroke cognitive fatigue as it is experienced by stroke survivors.</p><p><strong>Methods: </strong>This qualitative research followed the principles of descriptive phenomenology within a constructivist paradigm. Individual semi-structured interviews were conducted with stroke survivors experiencing post-stroke cognitive fatigue recruited through the Heart and Stroke Foundation, the Canadian Partnership for Stroke Recovery, and social media posts. Data were analyzed through inductive content analysis.</p><p><strong>Results: </strong>Eleven stroke survivors participated. The analysis revealed five themes illustrating the experience and descriptions of post-stroke cognitive fatigue: (1) characteristics, (2) aggravating factors, (3) management, (4) effect of cognitive fatigue on daily life, and (5) social awareness and support.</p><p><strong>Conclusion: </strong>This study highlights the complexity of post-stroke cognitive fatigue. Cognitive fatigue becomes more evident after discharge; therefore, clinicians should consistently screen for it and provide proper education to the patients and their carers.IMPLICATIONS FOR REHABILITATIONCognitive fatigue is a complex phenomenon that can negatively affect the daily life of stroke survivors.Sensory-overloaded environments, emotional distress, poor sleep, and engaging in complex cognitive tasks can trigger post-stroke cognitive fatigue.More education on the concept of cognitive fatigue should be provided to healthcare providers to be able to identify and manage this symptom properly.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71488425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Radial extracorporeal shock wave therapy as an additional treatment modality for spastic equinus deformity in chronic hemiplegic patients. A randomized controlled study. 放射状体外冲击波治疗作为慢性偏瘫患者痉挛性马畸形的一种额外治疗方式。一项随机对照研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-11-05 DOI: 10.1080/09638288.2023.2278185
Doaa Waseem Nada, Amira Mohamed El Sharkawy, Elham Mahmoud Elbarky, El Sayed Mohamed Rageh, Abdallah El Sayed Allam

Purpose: To evaluate the effectiveness of radial extracorporeal shock wave therapy (r ESWT) as an additional treatment modality for spastic equinus deformity in chronic hemiplegic patients.

Methods: 100 eligible stroke patients with calf muscles spasticity were randomized into 2 groups. Group I: 50 patients exposed to rESWT 1.500 pulses, 0.10 mJ to 0.3mJ/mm2, with a frequency 4 Hz once weekly for one month. Group II: 50 patients exposed to Sham rESWT once weekly for one month. Clinical, electrophysiological & musculoskeletal ultrasound assessments were done for all patients.

Results: After controlling baseline as covariate, the trend for modified Ashworth scale (MAS), Passive ankle dorsiflexion motion (PADFM), 10 meters walk test (10-MWT), and Ratio of maximum H reflex to maximum M response (H/M ratio) after one & two months was significantly different between the two groups, with improvement of all clinical and electrophysiological parameters in group I.

Conclusion: ESWT represents a useful non-invasive, additional modality for the reduction of foot spasticity and equinus deformity in stroke patients.

目的:评价放射状体外冲击波治疗(r ESWT)作为慢性偏瘫患者痉挛性马畸形的一种额外治疗方式的有效性。方法:将100例符合条件的脑卒中小腿肌肉痉挛患者随机分为2组。I组:50名患者暴露于rESWT 1.500脉冲,0.10 mJ至0.3mJ/mm2,频率为4 Hz,每周一次,为期一个月。第二组:50例患者暴露于ShamrESWT,每周一次,持续一个月。对所有患者进行了临床、电生理和肌肉骨骼超声评估。结果:在控制基线作为协变量后,两组在一个月和两个月后的改良Ashworth量表(MAS)、被动踝关节背屈运动(PADFM)、10米步行测试(10-MWT)和最大H反射与最大M反应之比(H/M比)的趋势有显著差异,I组的所有临床和电生理参数都有所改善。结论:ESWT是一种有用的非侵入性、额外的方式,可减少中风患者的足部痉挛和马畸形。
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引用次数: 0
Completeness of intervention reporting in randomised trials of technology-enabled remote or hybrid exercise-based cardiac rehabilitation: a systematic review using the TIDieR framework. 技术支持的远程或混合运动心脏康复随机试验中干预报告的完整性:使用TIDieR框架的系统综述。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-10-30 DOI: 10.1080/09638288.2023.2274887
Aoife McGrath, Sheona McHale, Coral L Hanson, Colin McLelland, David F Hamilton

Background: Exercise-based cardiac rehabilitation improves clinical outcomes and quality of life. Technology-enabled delivery of remote cardiac rehabilitation is as effective in improving health outcomes as in-person delivery and has the potential to transform clinical service delivery. However, for the successful translation of research to clinical practice, interventions must be adequately reported in the literature.

Methods: Systematic review of MedLine, CINAHL, PubMed and SPORT Discus databases applying PRISMA guidance. Randomised controlled trials of remote or hybrid technology-enabled exercise-based cardiac rehabilitation interventions were included. Completeness of reporting was evaluated against the TIDieR checklist.

Results: The search strategy returned 162 articles which, following screening, resulted in 12 randomised trials being included containing data for 1588 participants. No trial fully reported their rehabilitation intervention as per the 12-item TIDieR checklist, with a median score of eight out of 12 categories. Notably, intervention detail, dosage and modification were comparatively poorly reported.

Conclusion: Technology-enabled remotely delivered cardiac rehabilitation may be effective at improving cardiovascular fitness; however, the quality of reporting of these interventions in randomised trials is insufficient for replication which has material implications for translation into clinical practice.

背景:基于运动的心脏康复可以改善临床结果和生活质量。技术支持的远程心脏康复在改善健康结果方面与亲自提供一样有效,并有可能改变临床服务的提供。然而,为了成功地将研究转化为临床实践,必须在文献中充分报告干预措施。方法:应用PRISMA指导对MedLine、CINAHL、PubMed和SPORT Discus数据库进行系统评价。包括远程或混合技术支持的基于运动的心脏康复干预的随机对照试验。根据TIDieR检查表评估报告的完整性。结果:搜索策略返回了162篇文章,经过筛选,包括了12项随机试验,其中包含1588名参与者的数据。没有试验根据12项TIDieR检查表完全报告他们的康复干预,中位得分为12类中的8分。值得注意的是,干预细节、剂量和修改的报道相对较少。结论:远程心脏康复技术可有效改善心血管健康状况;然而,随机试验中这些干预措施的报告质量不足以复制,这对转化为临床实践具有重大意义。
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引用次数: 0
Fun and games: a scoping review of enjoyment and intensity assessment in studies of game-based interventions for gait rehabilitation in neurological disorders. 乐趣与游戏:对基于游戏的神经系统疾病步态康复干预研究中的乐趣和强度评估进行范围界定。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 DOI: 10.1080/09638288.2024.2390044
Laura Duval, Marie-Claire Smith, Stacey A Reading, Winston D Byblow, Cathy M Stinear

Purpose: Exergames are used to promote gait rehabilitation in patients with neurological disorders because they are believed to heighten patient enjoyment and training intensity. This scoping review evaluated whether and how studies support these claims.

Methods: A search for studies published up until October 2023 involving virtual reality or exergames for patients with neurological disorders (stroke, Parkinson's disease, multiple sclerosis, spinal cord injury) was conducted on PubMed and Scopus, with additional articles identified through backward and forward citation searching. Studies collecting gait measurements, with at least five participants and a control group were included. Data extracted were rationale, and whether participants' enjoyment of the intervention and training intensity were assessed.

Results: 1060 records were identified with 58 included in this review. There were 34 articles on stroke, 11 on multiple sclerosis, and 13 on Parkinson's disease. Participant enjoyment and greater training intensity were important rationales but were only evaluated in 12 and seven of the included studies, respectively.

Conclusion: Results highlight that participant enjoyment and heightened training intensity are commonly cited rationales for using exergames in gait rehabilitation, but these effects are assumed and not routinely measured or analysed. Greater consistency is needed in the design and execution of exergaming studies for neurological disorders.

目的:外部游戏被用于促进神经系统疾病患者的步态康复,因为它们被认为能提高患者的乐趣和训练强度。本范围界定综述评估了相关研究是否以及如何支持这些说法:在 PubMed 和 Scopus 上检索了截至 2023 年 10 月发表的涉及神经系统疾病(中风、帕金森病、多发性硬化症、脊髓损伤)患者虚拟现实或电子游戏的研究,并通过前后向引文检索确定了其他文章。其中包括收集步态测量数据、至少有五名参与者和一个对照组的研究。提取的数据均为合理性数据,并对参与者是否喜欢干预和训练强度进行了评估:结果:共发现 1060 条记录,其中 58 条被纳入本综述。其中 34 篇关于中风,11 篇关于多发性硬化,13 篇关于帕金森病。参与者的乐趣和更大的训练强度是重要依据,但分别只有 12 篇和 7 篇纳入研究:结论:研究结果表明,参与者的乐趣和训练强度的提高是步态康复中使用外部游戏的常见理由,但这些效果都是假定的,并未进行常规测量或分析。在设计和实施针对神经系统疾病的外部游戏研究时,需要加强一致性。
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引用次数: 0
Exploring post-stroke fatigue from the perspective of stroke survivors: what strategies help? A qualitative study. 从中风幸存者的角度探讨中风后疲劳:什么策略有帮助?定性研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-10-09 DOI: 10.1080/09638288.2023.2266363
Alex Delbridge, Julie Davey, Margaret Galloway, Avril Drummond, Lucette Lanyon, Natasha Olley, Gillian Mason, Coralie English, Dawn B Simpson

Purpose: Post-stroke fatigue is a research priority for stroke survivors and health professionals but there is limited evidence to guide management. We aimed to explore (1) the experience of post-stroke fatigue from the perspective of stroke survivors and their caregivers and (2) fatigue management strategies that are used.

Materials and methods: This was a qualitative study using semi-structured interviews. People with self-reported post-stroke fatigue and caregivers were recruited using maximum variation sampling. Analysis was done via the framework approach.

Results: We recruited 17 stroke survivors, nine male (53%), most under 65 years (n = 12, 76%), and greater than 1-year post-stroke (n = 16, 94%, range 10-months to 22-years). One-third of participants self-reported having aphasia (n = 5, 36%). We also recruited eight caregivers, most of whom were female (n = 7, 88%). We identified four themes: (1) fatigue is unexpected after stroke and symptoms vary; (2) the individual experience of fatigue is complex, influenced by multifactorial and biopsychosocial factors; (3) learning to adapt and accept fatigue; and (4) Strategies to manage fatigue and personal approaches to rest.

Conclusions: Post-stroke fatigue experience varies presenting cognitively, physically, and psychologically according to a complex interplay of biopsychosocial factors and personal triggers. Self-management strategies are individualised and include organisation, medications, lifestyle modifications, and peer support.

目的:中风后疲劳是中风幸存者和卫生专业人员的研究重点,但指导治疗的证据有限。我们旨在探讨(1)从中风幸存者及其照顾者的角度探讨中风后疲劳的经历,以及(2)所使用的疲劳管理策略。材料和方法:这是一项使用半结构化访谈的定性研究。采用最大变异抽样法招募了自我报告的卒中后疲劳患者和护理人员。分析是通过框架方法进行的。结果:我们招募了17名中风幸存者,其中9名为男性(53%),大多数年龄在65岁以下(n=12,76%),中风后1年以上(n=16,94%,范围为10个月至22年)。三分之一的参与者自我报告患有失语症(n=5.36%)。我们还招募了8名护理人员,其中大多数是女性(n=7,88%)。我们确定了四个主题:(1)中风后疲劳是出乎意料的,症状各不相同;(2) 个体疲劳体验是复杂的,受多因素和生物心理社会因素的影响;(3) 学会适应和接受疲劳;以及(4)管理疲劳的策略和个人休息方法。结论:脑卒中后的疲劳体验在认知、身体和心理上都有所不同,这取决于生物心理社会因素和个人触发因素的复杂相互作用。自我管理策略是个性化的,包括组织、药物、生活方式改变和同伴支持。康复的意义中风后疲劳是一种复杂的个人经历,涉及生物心理社会因素,中风幸存者需要帮助来确定他们的诱因,并得到家人、同龄人和中风社区的支持,才能在疲劳中过得很好。健康专业人员通常不讨论疲劳,中风幸存者需要简单、实用的长期建议来减少恐惧和痛苦。有一系列的策略可能会有所帮助。中风幸存者可能会从解决问题的方法、试验性起搏、生活方式的改变和计划中受益,并找到适合他们的休息方式。
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引用次数: 0
The role of robot-assisted training on rehabilitation outcomes in Parkinson's disease: a systematic review and meta-analysis. 机器人辅助训练对帕金森病康复结果的作用:一项系统综述和荟萃分析。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-01 Epub Date: 2023-10-11 DOI: 10.1080/09638288.2023.2266178
Yanmin Tao, Jingsong Luo, Jing Tian, Sihan Peng, Hongyan Wang, Jun Cao, Zhifei Wen, Xiangeng Zhang

Purpose: The study aims to assess the efficacy of robot-assisted rehabilitation training on upper and lower limb motor function and fatigue in Parkinson's disease (PD), and to explore the best-acting robotic rehabilitation program.

Methods: We searched studies in seven databases and the search period was from the build to 30 June 2023. Two researchers independently screened studies and assessed the quality of the studies for data extraction.

Results: A total of 21 studies were included, 18 studies related to lower limbs rehabilitation and 3 studies related to upper limbs rehabilitation, involving a total of 787 participants. The results showed that robot-assisted rehabilitation significantly improved indicators of lower limb motor function UPDRS Part III (WMD = -3.58, 95% CI = -5.91 to -1.25, p = 0.003) and BBS (WMD = 4.24, 95% CI = 2.88 to 5.54, p < 0.001), as well as non-motor symptoms of fatigue (WMD = -13.39, 95% CI = -17.92 to -8.86, p < 0.001) in PD patients. At the level of upper limb function, there was no statistically significant difference in the outcome measures of PFS (WMD = -0.25, 95% CI = -4.44 to 3.93, p = 0.9) and BBT (WMD = 1.73, 95% CI = -2.85 to 6.33, p = 0.458).

Conclusion: Robot-assisted rehabilitation significantly improved motor function, fatigue, and balance confidence in PD patients, but current evidence doesn't show that intelligent rehabilitation systems improve upper limb function. In particular, robotics combined with virtual reality worked best.

目的:本研究旨在评估机器人辅助康复训练对帕金森病患者上下肢运动功能和疲劳的影响,并探索最佳的机器人康复方案。方法:我们在7个数据库中搜索研究,搜索期为2023年6月30日。两名研究人员对研究进行了独立筛选,并评估了数据提取研究的质量。结果:共纳入21项研究,其中18项与下肢康复有关,3项与上肢康复有关,共涉及787名参与者。结果表明,机器人辅助康复显著改善了下肢运动功能指标UPDRS第三部分(WMD = -3.58,95%CI = -5.91至-1.25,p = 0.003)和BBS(WMD=4.24,95%CI=2.88-5.54,p p p = 0.9)和BBT(WMD=1.73,95%置信区间 = -2.85至6.33,p = 结论:机器人辅助康复显著改善了帕金森病患者的运动功能、疲劳和平衡信心,但目前没有证据表明智能康复系统能改善上肢功能。特别是,机器人与虚拟现实相结合的效果最好。
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期刊
Disability and Rehabilitation
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