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Device-based 24-hour movement behaviours in adult phase III cardiac rehabilitation service-users during the COVID-19 pandemic: a mixed-methods prospective observational study. 在 COVID-19 大流行期间,基于设备的成人第三阶段心脏康复服务使用者的 24 小时运动行为:一项混合方法前瞻性观察研究。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2397086
S J Meredith,A I Shepherd,Z L Saynor,A Scott,P Gorczynski,M Perrisiou,M Horne,M A McNarry,K A Mackintosh,C S G Witcher
PURPOSETo examine changes in device-based 24-hour movement behaviours (MB), and facilitators and barriers to physical activity (PA) and exercise, during remotely-delivered cardiac rehabilitation (RDCR).MATERIALS AND METHODSThis prospective observational study used wrist-worn GENEActiv accelerometers to assess MB of 10 service-users (63 ± 10 years) at the start, middle, and end of three-months of RDCR. Barriers and facilitators to PA and exercise were explored through self-report diaries and analysed using content analysis.RESULTSAt start, service-users were sedentary for 12.6 ± 0.7 h · day-1 and accumulated most PA at a light-intensity (133.52 ± 28.57 min · day-1) - neither changed significantly during RDCR. Sleep efficiency significantly reduced from start (88.80 ± 4.2%) to the end (86.1 ± 4.76%) of CR, with values meeting health-based recommendations (≥85%). Barriers to RDCR exercise included exertional discomfort and cardiac symptoms, and reduced confidence when exercising alone. Setting meaningful PA goals, self-monitoring health targets, and having social support, facilitated PA and exercise during RDCR.CONCLUSIONSOur RDCR programme failed to elicit significant changes in MB or sleep. To increase the likelihood of successful RDCR, it is important to promote a variety of exercise and PA options, target sedentary time, and apply theory to RDCR design, delivery, and support strategies.
材料和方法这项前瞻性观察研究使用腕戴式 GENEActiv 加速度计评估 10 名服务用户(63 ± 10 岁)在为期三个月的远程心脏康复(RDCR)开始、中期和结束时的运动行为(MB)变化,以及体育活动(PA)和锻炼的促进因素和障碍。结果开始时,服务用户每天有 12.6 ± 0.7 小时久坐不动,积累的大部分活动量强度较轻(133.52 ± 28.57 分钟-天-1),这两种情况在 RDCR 期间都没有显著变化。从 CR 开始(88.80 ± 4.2%)到结束(86.1 ± 4.76%),睡眠效率明显降低,其值符合基于健康的建议(≥85%)。RDCR锻炼的障碍包括劳累不适和心脏症状,以及独自锻炼时信心不足。在 RDCR 期间,设定有意义的 PA 目标、自我监测健康目标以及获得社会支持有助于 PA 和锻炼。为了提高 RDCR 取得成功的可能性,重要的是要推广各种运动和 PA 选项,锁定久坐时间,并将理论应用于 RDCR 的设计、实施和支持策略中。
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引用次数: 0
Psychological factors of parental physical activity support among parents of children with disabilities: a meta-analysis. 残疾儿童家长支持体育锻炼的心理因素:一项荟萃分析。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2399222
Ashlyn Barry,Byungmo Ku,Gayatri Swarup,Leslie Ann Christensen,Luis Columna
PURPOSEParents of children with disabilities often encounter challenges when supporting their child's physical activity (PA). Research on the psychological factors influencing parental support for PA has produced mixed results. The purpose of this meta-analysis was to a) synthesize psychological factors associated with parental support for PA, and b) evaluate the moderators of the association between parental support for PA and these psychological factors.METHODSFollowing PRISMA guidelines, this meta-analysis reviewed peer-reviewed English articles on parental support for children with disabilities (ages 0-18) from January 2009 to February 2022, with updates in February 2024. We searched six databases-PubMed, CINAHL, Academic Search Premier, SPORTDiscus, Scopus, and CENTRAL-and applied four statistical methods (Egger's regression, Duval and Tweedi's Trim and Fill, Classic Fail-safe N, and Begg's test) to assess study bias.RESULTSTwelve studies met the inclusion criteria, showing a medium association (r = .41, 95% CI [.28 - .50], p < .001) between parental PA support and psychological factors in parents of children with disabilities. Psychological constructs and child's age were not significant moderators. No publication biases were detected.CONCLUSIONLimitations include the use of convenience samples and the lack of disability type as a moderator. Future research should address these gaps. Emphasizing parental intentions, parental PA, and self-efficacy can enhance parental support for PA in children with disabilities, promoting their PA engagement.
目的残疾儿童的父母在支持孩子进行体育锻炼(PA)时经常会遇到困难。有关影响家长支持儿童体育锻炼的心理因素的研究结果不一。本荟萃分析的目的是:a)综合与父母支持残疾儿童体育锻炼相关的心理因素;b)评估父母支持残疾儿童体育锻炼与这些心理因素之间关系的调节因素。方法根据 PRISMA 指南,本荟萃分析回顾了 2009 年 1 月至 2022 年 2 月经同行评审的有关父母支持残疾儿童(0-18 岁)体育锻炼的英文文章,并在 2024 年 2 月进行了更新。我们检索了六个数据库--PubMed、CINAHL、Academic Search Premier、SPORTDiscus、Scopus 和 CENTRAL,并采用四种统计方法(Egger 回归法、Duval 和 Tweedi 的修剪和填充法、经典失效安全 N 和 Begg 检验)来评估研究偏倚。结果12项研究符合纳入标准,显示残疾儿童父母的 PA 支持与心理因素之间存在中等关联(r = .41,95% CI [.28 - .50],p < .001)。心理结构和儿童年龄不是重要的调节因素。结论:该研究的局限性包括使用了便利样本,以及缺乏将残疾类型作为调节因素。未来的研究应弥补这些不足。强调父母的意向、父母的 PA 和自我效能可以加强父母对残疾儿童 PA 的支持,促进他们参与 PA。
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引用次数: 0
Carers in post-stroke aphasia: a scoping review of interventions and outcomes beyond communication partner training. 卒中后失语症患者的照护者:对交流伙伴培训之外的干预措施和成果的范围界定综述。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2399221
Nelson J Hernandez,Kathryn Pettigrove,Kathleen Mellahn,Jytte Kjærgaard Isaksen,John E Pierce,Miranda L Rose
PURPOSECarers of people with aphasia face unique challenges. Research has demonstrated that these carers have a higher burden of care and more negative stroke-related outcomes in comparison to carers of stroke survivors without aphasia. The aim of this scoping review was to map the range of interventions for carers other than communication partner training and to examine their outcomes.MATERIALS AND METHODSWe conducted a scoping review on this topic.RESULTSTwenty studies were included. Most studies were case series with four randomised control trials. Both quantitative and qualitative approaches were used. Most studies occurred during the long-term phase of care. Two interventions had only carers as participants. Interventions were comprised of different combinations of intervention components including psychoeducation, skill-building, and support. There was high variability on who led the interventions, the format, and the dose/schedule. Twenty-eight different outcome measures for carers and dyads were used across various domains with overall positive outcomes post-intervention.CONCLUSIONSThis review uncovered a wide range of formats, dosages, and outcome measures in interventions for carers. Encouragingly, the majority of these interventions included psychoeducation, skill-building, and support components. While most studies were case series, there are promising interventions that have the potential to enhance carer wellbeing.
目的失语症患者的照护者面临着独特的挑战。研究表明,与没有失语症的卒中幸存者的照护者相比,这些照护者的照护负担更重,与卒中相关的负面结果也更多。本次范围界定综述的目的是了解除交流伙伴培训以外的护理者干预措施的范围,并研究其结果。材料与方法我们对该主题进行了范围界定综述。大多数研究为病例系列,其中有四项随机对照试验。研究采用了定量和定性两种方法。大多数研究发生在长期护理阶段。有两项干预措施的参与者仅为照护者。干预措施由不同的干预内容组合而成,包括心理教育、技能培养和支持。干预的主导者、干预的形式以及干预的剂量/时间安排存在很大差异。针对照护者和照护组合的 28 种不同结果测量方法被用于不同领域,干预后的结果总体上是积极的。令人鼓舞的是,大多数干预措施都包含心理教育、技能培养和支持等内容。虽然大多数研究都是病例系列,但有些干预措施很有前景,有可能提高照护者的福祉。
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引用次数: 0
Healthcare provider perceptions of support provision for people with stroke: a qualitative study. 医疗服务提供者对为中风患者提供支持的看法:一项定性研究。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2398135
Brigid Clancy,Billie Bonevski,Coralie English,Ashleigh Guillaumier
PURPOSEThis study aimed to explore healthcare providers' perceptions of support provision for people who have experienced stroke.MATERIALS AND METHODSA qualitative descriptive study was conducted. Snowball sampling was used to recruit Australian healthcare workers providing care to people with stroke. Semi-structured one-on-one interviews were audiotaped and transcribed. An inductive thematic analysis of all transcripts was undertaken by two authors.RESULTSFourteen participants who worked across the care continuum in three Australian states were interviewed. Responses fit into three overarching themes: (1) attitudes to supports; (2) availability and accessibility of supports; and (3) awareness of supports. These themes encompassed perceptions of the support options available for people with stroke and the factors affecting support provision decision making among healthcare providers.CONCLUSIONSThe healthcare providers in this study thought people with stroke would benefit from a greater range of available supports. Supports should take into account the diverse experiences and acute and long-term needs of people with stroke, as well as be accessible to people from all cultural, linguistic, and socioeconomic backgrounds. Healthcare providers and people who have experienced stroke may benefit from a roadmap for post-stroke support that clearly outlines where responsibility lies for support provision.
本研究旨在探讨医疗服务提供者对为中风患者提供支持的看法。采用滚雪球抽样法招募了为中风患者提供护理的澳大利亚医护人员。对一对一的半结构化访谈进行了录音和转录。两位作者对所有记录誊本进行了归纳主题分析。结果在澳大利亚三个州从事连续护理工作的 14 位参与者接受了访谈。他们的回答可归纳为三大主题:(1) 对支持的态度;(2) 支持的可用性和可及性;(3) 对支持的认识。这些主题包括对脑卒中患者可用支持选项的看法,以及影响医疗服务提供者提供支持决策的因素。支持应考虑到脑卒中患者的不同经历、急性期和长期需求,并使所有文化、语言和社会经济背景的人都能获得支持。医疗服务提供者和脑卒中患者可能会从脑卒中后支持的路线图中受益,该路线图 明确了提供支持的责任所在。
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引用次数: 0
A systematic review of the factors associated with the psychological wellbeing of people with Parkinson's in the COVID-19 pandemic. 对 COVID-19 大流行中与帕金森病患者心理健康相关的因素进行系统回顾。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2395460
H Gotheridge,F J R Eccles,C Murray,R Henderson,J Simpson
PURPOSEThe lockdown and social distancing measures introduced as a result of the COVID-19 pandemic impacted the ability of people with Parkinson's to engage in normal health management practices. This led to documented reductions in psychological wellbeing. The aim of the present review was to identify factors associated with the psychological wellbeing of people with Parkinson's during the acute stage of the pandemic.MATERIALS AND METHODSFive academic databases (PsycINFO, MEDLINE, Embase, CINAHL, and Web of Science) were searched and 23 articles were identified using pre-defined inclusion and exclusion criteria. The findings are stratified by risk factor and analysed using a narrative synthesis.RESULTSWorsening of motor symptoms, poor motor-related daily living experiences and motor symptoms during "off time" (when symptom suppressing medication has worn off) as well as less physical activity emerged as the most consistent risk factors of worsened or poorer psychological wellbeing. A deviation from pre-pandemic risk factors was identified, with age and gender not identified as consistent risk factors.CONCLUSIONSThe implications of this review are not limited to preparing for future pandemics but can also be applied to more common concerns with comparable contextual characteristics such as yearly flu outbreaks, social isolation, and economic uncertainty.
目的因 COVID-19 大流行而采取的封锁和社会疏远措施影响了帕金森病患者参与正常健康管理实践的能力。这导致了有记录的心理健康下降。本综述旨在确定大流行急性期与帕金森病患者心理健康相关的因素。材料和方法检索了五个学术数据库(PsycINFO、MEDLINE、Embase、CINAHL 和 Web of Science),并使用预先定义的纳入和排除标准确定了 23 篇文章。结果运动症状恶化、与运动相关的日常生活体验不佳、"休息时间"(抑制症状的药物失效时)的运动症状以及运动量减少是导致心理健康恶化或变差的最一致的风险因素。本综述的意义不仅限于为未来的大流行病做准备,还可应用于具有相似背景特征的更常见问题,如每年的流感爆发、社会隔离和经济不确定性。
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引用次数: 0
A note on using the workability index (WAI) to predict future earnings capacity losses in moderate to severe partial disability cases. 关于使用工作能力指数(WAI)预测中度至重度部分残疾病例未来收入能力损失的说明。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2399224
Craig S Galbraith
PURPOSEDisability experts are often called upon to analyze the economic impact of an injury. Determining future economic loss in cases of disabilities is difficult, particularly when the disabilities are considered partial in nature, and the individuals have some capacity to mitigate their future income losses. This paper examines one possible approach for examining reduced future income capacity in cases of partial disabilities, the use of the Work Ability Index (WAI) and Work Ability Scale (WAS).MATERIALS AND METHODSEmpirical data from one-hundred six cases is analyzed using a censored tobit regression to determine the relationship between scores on the WAI/WAS and verified long-term income losses for individuals who suffered disabling events.RESULTSThe study found a high correlation between the scores obtained on both the WAI and WAS measures, and future economic loss. The results suggest that these scales may be very useful in analyzing reduced future income capacity in situations involving partial disabilities.CONCLUSIONSThis study assists the rehabilitation and disability expert to better understand the implications of a moderate to severe disability on the future income capacity of an injured person. It also provides additional support for the validity of the WAI/WAS scales.
目的 残疾问题专家经常被要求分析伤害的经济影响。确定残疾情况下的未来经济损失是很困难的,特别是当残疾被认为是部分性质的,并且个人有一定的能力减轻其未来收入损失时。本文研究了一种可能的方法,即使用工作能力指数 (WAI) 和工作能力量表 (WAS) 来检查部分残疾情况下未来收入能力下降的情况。材料和方法本文使用删减 tobit 回归法分析了来自一百零六个病例的经验数据,以确定 WAI/WAS 分数与遭受致残事件的个人经核实的长期收入损失之间的关系。结论:本研究有助于康复和残疾专家更好地理解中度至重度残疾对伤者未来收入能力的影响。本研究还为 WAI/WAS 量表的有效性提供了更多支持。
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引用次数: 0
Cross-cultural adaptation and validation of a French version of the Measure of Stroke Environment (MOSE) in stroke survivors in Sub-Saharan Africa. 在撒哈拉以南非洲地区的中风幸存者中对法文版中风环境测量(MOSE)进行跨文化调整和验证。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-11 DOI: 10.1080/09638288.2024.2396549
Orthelo Léonel Gbètoho Atigossou,Penielle Mahutchegnon Mitchaї,Aristide S Honado,Germain Mabèrou Houngbédji,Gbètogo Maxime Kiki,Fatimata Ouédraogo,Fiacre S D Akplogan,François Routhier,Véronique H Flamand,Charles Sèbiyo Batcho
PURPOSETo investigate the psychometric properties of the MOSE-Benin, a French-language version of the Measure of Stroke Environment (MOSE) for Sub-Saharan Africa.MATERIALS AND METHODSThe original English version of the MOSE has been translated into French following the guidelines for cross-cultural adaptation. The resulting questionnaire (MOSE-Benin) was administered to a convenience sample of participants recruited in Benin, a French-speaking country.RESULTSEighty-two stroke survivors (41 females; mean ± SD: 54.94 ± 11.6 years old) participated in the study. Internal consistency of each domain of the MOSE-Benin and the overall questionnaire was high (Cronbach's α: 0.78 to 0.92). Test-retest reliability was excellent (n = 31; ICC: 0.977 to 0.998). Overall, the standard error of measurement (SEM) and the minimum detectable change (MDC) showed very low values (SEM = 0.85; MDC = 2.35). Convergent validity demonstrated moderate correlations for the three domains in separate comparison respectively with the ACTIVLIM-Stroke questionnaire, the Participation Measurement Scale, and the communication domain of the Stroke Impact Scale (r or ρ: 0.42 to 0.54; p < 0.0001).CONCLUSIONMOSE-Benin has good evidence regarding psychometric properties (i.e., content validity, convergent validity, internal consistency, and test-retest reliability) that can support its use for the assessment of perceived environmental barriers after stroke in a French-speaking Sub-Saharan African country, such as Benin.
材料和方法根据跨文化适应指南将 MOSE 的英文原版翻译成法文。结果82 名中风幸存者(41 名女性;平均 ± SD:54.94 ± 11.6 岁)参与了研究。MOSE-Benin 各领域和整个问卷的内部一致性很高(Cronbach's α:0.78 至 0.92)。测试-再测可靠性极佳(n = 31;ICC:0.977 至 0.998)。总体而言,测量标准误差(SEM)和最小可测变化(MDC)的数值非常低(SEM = 0.85;MDC = 2.35)。在分别与 ACTIVLIM-Stroke 问卷、参与度测量量表和脑卒中影响量表的交流领域进行比较时,聚合效度显示三个领域具有中等程度的相关性(r 或 ρ:0.42 至 0.54;p < 0.0001)、结论MOSE-Benin在心理测量学特性(即内容效度、收敛效度、内部一致性和测试-再测可靠性)方面具有良好的证据,可以支持将其用于评估贝宁等撒哈拉以南非洲法语国家的脑卒中后感知环境障碍。
{"title":"Cross-cultural adaptation and validation of a French version of the Measure of Stroke Environment (MOSE) in stroke survivors in Sub-Saharan Africa.","authors":"Orthelo Léonel Gbètoho Atigossou,Penielle Mahutchegnon Mitchaї,Aristide S Honado,Germain Mabèrou Houngbédji,Gbètogo Maxime Kiki,Fatimata Ouédraogo,Fiacre S D Akplogan,François Routhier,Véronique H Flamand,Charles Sèbiyo Batcho","doi":"10.1080/09638288.2024.2396549","DOIUrl":"https://doi.org/10.1080/09638288.2024.2396549","url":null,"abstract":"PURPOSETo investigate the psychometric properties of the MOSE-Benin, a French-language version of the Measure of Stroke Environment (MOSE) for Sub-Saharan Africa.MATERIALS AND METHODSThe original English version of the MOSE has been translated into French following the guidelines for cross-cultural adaptation. The resulting questionnaire (MOSE-Benin) was administered to a convenience sample of participants recruited in Benin, a French-speaking country.RESULTSEighty-two stroke survivors (41 females; mean ± SD: 54.94 ± 11.6 years old) participated in the study. Internal consistency of each domain of the MOSE-Benin and the overall questionnaire was high (Cronbach's α: 0.78 to 0.92). Test-retest reliability was excellent (n = 31; ICC: 0.977 to 0.998). Overall, the standard error of measurement (SEM) and the minimum detectable change (MDC) showed very low values (SEM = 0.85; MDC = 2.35). Convergent validity demonstrated moderate correlations for the three domains in separate comparison respectively with the ACTIVLIM-Stroke questionnaire, the Participation Measurement Scale, and the communication domain of the Stroke Impact Scale (r or ρ: 0.42 to 0.54; p < 0.0001).CONCLUSIONMOSE-Benin has good evidence regarding psychometric properties (i.e., content validity, convergent validity, internal consistency, and test-retest reliability) that can support its use for the assessment of perceived environmental barriers after stroke in a French-speaking Sub-Saharan African country, such as Benin.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142200908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Building independence in self-care and household tasks: a qualitative study with adolescents with cerebral palsy and their caregivers. 培养自理能力和家务能力:一项针对脑瘫青少年及其照护者的定性研究。
IF 2.2 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-10 DOI: 10.1080/09638288.2024.2401142
Fernanda Iscorsoni,Kátia M P Bueno,Aline M Feitosa,Marisa C Mancini,Marina B Brandão
PURPOSEAdolescents with cerebral palsy (CP) may experience limitations in self-care and household tasks. The aim of the study was to understand the process of building independence in self-care and household tasks from the perspective of adolescents and their caregivers.MATERIALS AND METHODSWe conducted a qualitative study with a phenomenological approach with 10 adolescents (15-17 years old) and 11 caregivers from a transition service in Brazil. Semistructured, remote interviews were conducted with each participant. The interviews were recorded for transcription and content analysis.RESULTSTwo thematic categories emerged: (1) "Thinking about independence" and (2) "Possible ways to foster independence." The first category was divided into three subcategories: "Expectations and the desire to be independent," "Obstacles to independence," "Concerns about the future." The second category was divided into four subcategories: "People and places," "Opportunities for practice," "Personal attitude" and "Adaptations that facilitate."CONCLUSIONAdolescents' independence in several everyday activities involves physical, socioemotional and environmental aspects. Enabling opportunities for practice, an adapted environment, support from rehabilitation services and developing collaborative relationships with caregivers are elements that may favor the independence of adolescents with CP.
目的患有脑性瘫痪(CP)的青少年可能会在生活自理和家务劳动方面受到限制。本研究旨在从青少年及其照顾者的角度,了解他们在自我照顾和家务劳动方面建立独立性的过程。材料与方法我们采用现象学方法对巴西一家过渡服务机构的 10 名青少年(15-17 岁)和 11 名照顾者进行了定性研究。我们对每位参与者进行了结构化远程访谈。结果出现了两个主题类别:(1)"关于独立性的思考 "和(2)"培养独立性的可能方法"。第一个类别又分为三个子类别:"独立的期望和愿望"、"独立的障碍 "和 "对未来的担忧"。第二类分为四个子类别:"结论青少年在一些日常活动中的独立性涉及身体、社会情感和环境等方面。提供实践机会、适应环境、康复服务的支持以及发展与照顾者的合作关系是有利于脊柱侧弯症青少年独立的因素。
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引用次数: 0
Content and readability of patient educational materials about neuromodulation for childhood movement disorders. 有关神经调节治疗儿童运动障碍的患者教育材料的内容和可读性。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-09 DOI: 10.1080/09638288.2024.2397078
Jamie M Barnacoat, Jennifer Lewis, Kirsty Stewart, Shekeeb S Mohammad, Simon Paget

Purpose: To assess content and readability of online patient educational materials (PEMs) for paediatric deep brain stimulation (DBS) and intrathecal baclofen (ITB).

Methods: A content analysis of PEMs identified from top children's hospitals, institutions affiliated with published neuromodulation research, and DBS and ITB device manufacturers was conducted. PEM content was analysed using a predetermined framework. Readability was assessed using the Simple Measure of Gobbledygook (SMOG).

Results: Of 109 PEMs (72 DBS; 37 ITB) identified, most (77 (71%)) originated in the United States. More ITB PEMs (27 (73%)) contained specific paediatric information than DBS PEMs (16 (22%)). PEMS more frequently described benefits (DBS: 92%; ITB: 89%) than risks (DBS: 49%; ITB: 78%). Frequent content included pre- and post-operative care, procedural details, and device information. Less common content included long-term lifestyle considerations, alternatives, patient experiences, and financial details. Median readability of PEMs was 13.2 (interquartile range [IQR]: 11.4-14.45) for DBS and 11.8 (IQR: 11-12.9) for ITB.

Conclusions: Available ITB and DBS PEMs often miss important broader details of the treatments, and have additional shortcomings such as poor readability scores. Our findings highlight need for more holistic content within neuromodulation PEMs, improved accessibility, and more balanced representation of risks and benefits.

目的:评估儿科脑深部刺激(DBS)和鞘内巴氯芬(ITB)在线患者教育资料(PEMs)的内容和可读性:对从顶级儿童医院、已发表神经调控研究的附属机构以及 DBS 和 ITB 设备制造商处获得的 PEM 进行了内容分析。使用预先确定的框架对 PEM 内容进行分析。可读性采用 "简单粗话测量法"(SMOG)进行评估:在已确认的 109 个 PEM(72 个 DBS;37 个 ITB)中,大多数(77 个(71%))源自美国。包含特定儿科信息的 ITB PEMs(27 份(73%))多于 DBS PEMs(16 份(22%))。与风险(DBS:49%;ITB:78%)相比,PEMS 更经常描述益处(DBS:92%;ITB:89%)。常见的内容包括术前和术后护理、程序细节和设备信息。较少见的内容包括长期生活方式注意事项、替代方案、患者经验和财务细节。DBS 和 ITB PEM 的可读性中位数分别为 13.2(四分位数间距 [IQR]:11.4-14.45)和 11.8(IQR:11-12.9):结论:现有的 ITB 和 DBS PEM 常常遗漏治疗的重要细节,并存在可读性差等缺点。我们的研究结果表明,神经调控 PEM 需要更全面的内容、更好的可读性以及更平衡的风险和益处表述。
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引用次数: 0
Immersive VR movement visualization in patients with hemophilic knee arthropathy: randomized, multicenter, single-blind clinical trial. 血友病膝关节病患者的沉浸式 VR 运动可视化:随机、多中心、单盲临床试验。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-09-08 DOI: 10.1080/09638288.2024.2401138
Roberto Ucero-Lozano, Elena Donoso-Úbeda, Rubén Cuesta-Barriuso, Raúl Pérez-Llanes

Purpose: To evaluate the efficacy of an immersive movement visualization intervention in patients with hemophilia and hemophilic knee arthropathy.

Materials and methods: Randomized, single-blind clinical study. Twenty-eight patients with hemophilia were recruited. Patients were randomized to an experimental group (four weeks of immersive movement visualization) and a control group (no intervention). The intensity of pain, pressure pain threshold in the knee, tibialis anterior muscle, lower back level, conditioned pain modulation, range of knee motion, and lower limb functionality were evaluated.

Results: There were statistically significant differences in the intergroup effect on knee pain intensity (F = 23.71; p < 0.001) and lower limb functionality (F = 7.11; p = 0.003). 42.86% of the patients in the experimental group exhibited changes greater than the minimum detectable change (MDC) in functionality. 39.29% of the patients subject to the intervention experienced changes greater than the MDC in the knee pressure pain threshold.

Conclusions: Immersive motion visualization can improve the intensity of joint pain and functionality in patients with hemophilic knee arthropathy. Functionality, pressure pain threshold, and pain intensity improved in those patients who conducted immersive movement visualization.Implications for rehabilitationImmersive visualization of movement significantly improves intensity of joint pain, functionality, pressure pain threshold, joint health, and conditioned pain modulation in patients with hemophilic knee arthropathy.The fact that it is a therapy without potential aversive stimuli makes it a possible access pathway for patients with high levels of kinesiophobia and/or catastrophism.This low-cost, home-based technology allows its use in patients far from hemophilia reference centers or with difficult access to physiotherapy treatments.The immersive visualization of movement influences the democratization of treatment, in accordance with the WHO's Sustainable Development Goal 3 (health and well-being for all).

目的:评估沉浸式运动可视化干预对血友病和血友病膝关节病患者的疗效:随机、单盲临床研究。招募了 28 名血友病患者。患者被随机分为实验组(为期四周的沉浸式运动可视化)和对照组(无干预)。对疼痛强度、膝关节压痛阈值、胫骨前肌、下背部水平、条件性疼痛调节、膝关节活动范围和下肢功能进行了评估:膝关节疼痛强度的组间效应差异有统计学意义(F = 23.71;P F = 7.11;P = 0.003)。42.86%的实验组患者在功能方面的变化超过了最小可检测变化(MDC)。接受干预的患者中有 39.29% 的膝关节压痛阈值变化大于最小可检测变化(MDC):结论:沉浸式运动可视化可改善血友病膝关节病患者的关节疼痛强度和功能。对康复的意义浸入式运动可视化能显著改善血友病膝关节病患者的关节疼痛强度、功能、压力痛阈值、关节健康和条件性疼痛调节。这种基于家庭的低成本技术可用于远离血友病参考中心或难以获得物理治疗的患者。根据世界卫生组织的可持续发展目标 3(人人享有健康和福祉),身临其境的可视化运动对治疗的民主化产生了影响。
{"title":"Immersive VR movement visualization in patients with hemophilic knee arthropathy: randomized, multicenter, single-blind clinical trial.","authors":"Roberto Ucero-Lozano, Elena Donoso-Úbeda, Rubén Cuesta-Barriuso, Raúl Pérez-Llanes","doi":"10.1080/09638288.2024.2401138","DOIUrl":"https://doi.org/10.1080/09638288.2024.2401138","url":null,"abstract":"<p><strong>Purpose: </strong>To evaluate the efficacy of an immersive movement visualization intervention in patients with hemophilia and hemophilic knee arthropathy.</p><p><strong>Materials and methods: </strong>Randomized, single-blind clinical study. Twenty-eight patients with hemophilia were recruited. Patients were randomized to an experimental group (four weeks of immersive movement visualization) and a control group (no intervention). The intensity of pain, pressure pain threshold in the knee, tibialis anterior muscle, lower back level, conditioned pain modulation, range of knee motion, and lower limb functionality were evaluated.</p><p><strong>Results: </strong>There were statistically significant differences in the intergroup effect on knee pain intensity (<i>F</i> = 23.71; <i>p</i> < 0.001) and lower limb functionality (<i>F</i> = 7.11; <i>p</i> = 0.003). 42.86% of the patients in the experimental group exhibited changes greater than the minimum detectable change (MDC) in functionality. 39.29% of the patients subject to the intervention experienced changes greater than the MDC in the knee pressure pain threshold.</p><p><strong>Conclusions: </strong>Immersive motion visualization can improve the intensity of joint pain and functionality in patients with hemophilic knee arthropathy. Functionality, pressure pain threshold, and pain intensity improved in those patients who conducted immersive movement visualization.Implications for rehabilitationImmersive visualization of movement significantly improves intensity of joint pain, functionality, pressure pain threshold, joint health, and conditioned pain modulation in patients with hemophilic knee arthropathy.The fact that it is a therapy without potential aversive stimuli makes it a possible access pathway for patients with high levels of kinesiophobia and/or catastrophism.This low-cost, home-based technology allows its use in patients far from hemophilia reference centers or with difficult access to physiotherapy treatments.The immersive visualization of movement influences the democratization of treatment, in accordance with the WHO's Sustainable Development Goal 3 (health and well-being for all).</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156536","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Disability and Rehabilitation
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