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Improving communication partner training of familiar partners of people with aphasia: results of a pilot stepped wedge implementation trial and embedded process evaluation. 改善失语症患者熟悉伴侣的沟通伙伴培训:试点阶梯式实施试验及嵌入式过程评估结果。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-07-28 DOI: 10.1080/09638288.2025.2534525
Kirstine Shrubsole, Kris Rogers, Sarah J Wallace, Megan Isaacs, Wen Xuan Ong, Linda Worrall, Annie McCluskey, Emma Power

Purpose: Communication Partner Training (CPT) improves communication between people with aphasia and their families and friends, but there is considerable variation in practice. We evaluated the outcomes of an implementation package on speech pathologists' delivery of CPT to familiar partners of people with aphasia, and factors influencing outcomes.

Methods: 12-month pilot stepped wedge cluster non-randomised controlled trial and process evaluation involving three health services. Implementation package included online training, workshops, resources, and support. Data were collected through audits, clinician behaviour-change surveys, training logs, checklists, questionnaires, and focus groups.

Results: Thirty-six clinicians participated, and 113 patient files were audited. Post-implementation, there was a 26% increase in familiar partners being offered CPT and an 18% increase in those provided CPT. Significant improvements were recorded between immediate pre/post implementation time-points (offering CPT: p = 0.004; providing CPT: p = 0.021), and more comprehensive CPT practice was provided, but change was not sustained. Total behaviour-change scores increased (p < 0.001), with a higher intervention effect for targeted domains (p < 0.001). Clinicians reported valuing and intending to implement CPT, but organisational barriers and patient-partner dynamics impacted outcomes.

Conclusion: Short-term improvements in CPT practice were observed, but change was not sustained. Longer-term support and CPT tailored to readiness and stage of recovery is needed.

目的:沟通伙伴训练(CPT)提高失语症患者与家人和朋友之间的沟通,但在实践中存在很大差异。我们评估了语言病理学家向失语症患者熟悉的伙伴提供CPT的实施方案的结果,以及影响结果的因素。方法:涉及三个卫生服务机构的12个月的阶梯形聚类非随机对照试验和过程评价。实施包包括在线培训、研讨会、资源和支持。通过审计、临床医生行为改变调查、培训日志、检查清单、问卷调查和焦点小组收集数据。结果:36名临床医生参与,113例患者档案被审核。实施后,提供CPT的熟悉伙伴增加了26%,提供CPT的熟悉伙伴增加了18%。在实施前后的时间点之间记录了显著的改进(提供CPT: p = 0.004;提供CPT: p = 0.021),并提供更全面的CPT实践,但变化不能持续。总行为改变得分增加(p)。结论:观察到CPT练习的短期改善,但改变不能持续。需要针对准备情况和恢复阶段的长期支持和CPT。
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引用次数: 0
A biomechanical analysis of the effectiveness of the Graded Repetitive Arm Supplementary Program (GRASP) for chronic stroke rehabilitation. 分级重复性手臂辅助训练(GRASP)对慢性脑卒中康复效果的生物力学分析。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-07-05 DOI: 10.1080/09638288.2025.2530158
Madeleine A Grealy, Luke Meneilly, Lesley-Anne Rollins, William J McGeown

Purpose: The Graded Repetitive Arm Supplementary Program (GRASP) is used widely to reduce arm impairment from stroke. Evidence for its effectiveness in chronic stroke survivors is based on studies that used clinical measures and different treatment lengths. This study aimed to examine whether GRASP changes movement quality by conducting a biomechanical analysis of chronic stroke survivors' movements prior to, during and after GRASP; assess whether changes in kinematic and clinical measures are associated and an intervention duration shorter eight-weeks could be similarly effective.

Materials and methods: Chronic stroke survivors (n = 27) completed the baseline measures, GRASP for eight weeks and post-measures. They practiced one-hour daily at home for six days/week and visited the University weekly, where arm movements were recorded.

Results: There were significant GRASP related improvements in movement duration and smoothness in the affected arm. Significant improvements in arm function, self-efficacy and quality of life were also observed, but these did not consistently significantly correlate with kinematic changes. There was no evidence to support shortening the program.

Conclusion: Kinematic changes in movement patterns were evident across the GRASP program as were benefits on clinical measures, but additional research is needed to determine the benefits of GRASP for chronic stroke rehabilitation.

目的:分级重复性手臂辅助训练(GRASP)被广泛应用于减少中风引起的手臂损伤。它对慢性中风幸存者有效的证据是基于临床测量和不同治疗时间的研究。本研究旨在通过对慢性中风幸存者在抓握之前、期间和之后的运动进行生物力学分析,研究抓握是否会改变运动质量;评估运动和临床指标的变化是否相关,干预时间缩短至8周可能同样有效。材料和方法:慢性中风幸存者(n = 27)完成了基线测量,8周的GRASP和后期测量。他们每天在家练习一小时,每周练习六天,并每周访问大学,在那里记录手臂运动。结果:患臂的运动持续时间和平稳性有明显改善。手臂功能、自我效能和生活质量的显著改善也被观察到,但这些与运动学变化并不一致。没有证据支持缩短该项目。结论:在整个GRASP项目中,运动模式的运动学改变是明显的,在临床测量中也是明显的,但需要进一步的研究来确定GRASP对慢性卒中康复的益处。
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引用次数: 0
The effectiveness of feedback in exercise therapy on patient-related treatment outcome and patient satisfaction: a randomized controlled trial in inpatient orthopedic rehabilitation in Germany. 运动治疗中反馈对患者相关治疗结果和患者满意度的有效性:德国住院骨科康复患者的随机对照试验。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-08-21 DOI: 10.1080/09638288.2025.2533437
André Arik Schuber, Andrea Schaller

Purpose: Therapist feedback regarding the patient's performance, behavior or personal development constitutes an effective interventional technique in the context of psychotherapy. Due to the extensive patient-therapist interaction during exercise therapy in medical rehabilitation, this study evaluated the effects of multidimensional exercise therapy feedback on the patient-related treatment outcome and satisfaction with rehabilitation.

Materials and methods: The study was conducted as a two-armed, mono-center, randomized controlled trial with three measuring points: start of three-week inpatient rehabilitation (T0), end of three-week inpatient rehabilitation (T1), 12-week follow-up (T2), and included patients with chronic neck, shoulder and/or lumbar spine disorders. The intervention group received multidimensional exercise therapy feedback during the initial and final physical therapist examination as well as short therapist feedbacks during group-based exercise therapy. The control group received usual care.

Results: 109 (69%) participants completed the study. Although patients and exercise therapists regarded the intervention as conducive for patient-therapist interaction, no significant differences were found at T1 or T2 between the intervention and control group in terms of average pain intensity, impairment or satisfaction with rehabilitation.

Conclusion: While multidimensional exercise therapy feedback is appreciated by patients, it does not improve patient-related outcomes in the context of medical rehabilitation.

Trial registration: This trial was registered with the German Clinical Trial Register (DRKS) (https://www.drks.de/search/de/trial/DRKS00027263/details) under the registration number DRKS00027263 (Date of registration: 25/Mar/2022).

目的:治疗师对患者的表现、行为或个人发展的反馈构成了心理治疗背景下有效的介入技术。由于运动治疗在医疗康复中有广泛的患者-治疗师互动,本研究评估了多维运动治疗反馈对患者相关治疗结果和康复满意度的影响。材料与方法:本研究采用双臂、单中心、随机对照试验,有三个测点:三周住院康复开始(T0)、三周住院康复结束(T1)、12周随访(T2),纳入慢性颈、肩和/或腰椎疾病患者。干预组在最初和最终的物理治疗师检查中获得多维的运动治疗反馈,在小组运动治疗中获得简短的治疗师反馈。对照组接受常规护理。结果:109名(69%)参与者完成了研究。尽管患者和运动治疗师认为干预有助于患者与治疗师之间的互动,但在T1或T2时,干预组与对照组在平均疼痛强度、损伤或康复满意度方面没有显著差异。结论:虽然多维度运动治疗反馈得到了患者的认可,但在医学康复的背景下,它并没有改善患者相关的预后。试验注册:该试验已在德国临床试验注册(DRKS) (https://www.drks.de/search/de/trial/DRKS00027263/details)注册,注册号为DRKS00027263(注册日期:2022年3月25日)。
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引用次数: 0
Efficacy and safety of foot orthoses for improving pain and function in patients with plantar fasciitis: a systematic review and meta-analysis of randomized controlled trials. 足部矫形器改善足底筋膜炎患者疼痛和功能的有效性和安全性:随机对照试验的系统回顾和荟萃分析。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-09-26 DOI: 10.1080/09638288.2025.2563763
Dacun Wang, Zhanxiang Lin, Guina Tan, Xinxuan Han, Ying Huang

Purpose: This study aims to investigate the efficacy and safety of foot orthoses (FO) in improving pain and function among patients with plantar fasciitis.

Methods: Seven databases were searched from the time of construction to February 2025. Include randomized controlled trials (RCTs) evaluating the effects of foot orthoses on pain and function in patients with plantar fasciitis for data extraction, quality assessment, meta-analysis, and subgroup analysis. A random-effects model was used to calculate the pooled effect size and its 95% confidence interval (CI), with pain and foot function as the primary outcome measures.

Results: Eight RCTs involving 391 patients were analyzed. Meta-analysis revealed that compared with the control group, the experimental group demonstrated significant efficacy in alleviating pain in patients with plantar fasciitis (p = 0.0003). However, no significant differences were observed in foot function (p = 0.23) or walking ability (p = 0.44). No adverse events related to foot orthoses (FO) were reported in the studies.

Conclusion: FO effectively alleviates pain symptoms in patients with plantar fasciitis, but no clinically meaningful statistical differences were observed in functional improvement. Further high-quality, large-sample, multicenter randomized controlled trials are needed to confirm these findings.

目的:本研究旨在探讨足部矫形器(FO)在改善足底筋膜炎患者疼痛和功能方面的有效性和安全性。方法:检索自建库至2025年2月的7个数据库。纳入随机对照试验(rct),评估足部矫形器对足底筋膜炎患者疼痛和功能的影响,进行数据提取、质量评估、meta分析和亚组分析。采用随机效应模型计算合并效应大小及其95%置信区间(CI),以疼痛和足部功能作为主要结局指标。结果:共分析8项rct,共391例患者。meta分析显示,与对照组相比,实验组对足底筋膜炎患者疼痛的缓解效果显著(p = 0.0003)。然而,在足部功能(p = 0.23)或行走能力(p = 0.44)方面没有观察到显著差异。研究中未报告与足部矫形器(FO)相关的不良事件。结论:鱼油可有效缓解足底筋膜炎患者的疼痛症状,但在功能改善方面无临床意义的统计学差异。需要进一步的高质量、大样本、多中心随机对照试验来证实这些发现。
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引用次数: 0
Integrating people living with pain into pre-licensure pain education: a novel learning activity for health professional students. 将疼痛患者纳入执照前疼痛教育:卫生专业学生的新颖学习活动。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-10-03 DOI: 10.1080/09638288.2025.2563770
Christian Longtin, Alaanah Bhanji, Emilie Houston, Nathan Augeard, Fatima Amari, Lesley Singer, Lynn Cooper, Claire Ashton-James, Jordan Miller, Angela Towle, Geoff Bostick, Timothy H Wideman

Purpose: To explore the experiences of physiotherapy students and people living with pain regarding their participation in a novel partnered learning activity.

Materials and methods: A concurrent mixed method design integrating quantitative and open-ended survey questions with focus group discussions was used. The activity included a one-on-one interaction between physiotherapy students and people living with chronic pain to explore the multidimensional impact of pain. Quantitative data were analyzed using descriptive statistics. Qualitative data were analyzed using a qualitative description approach.

Results: Twenty-five students and 42 people living with pain consented to participate. For students, three overarching themes were identified: (1) the activity was perceived as a transformative learning experience; (2) first-hand interactions, the learning tools, and the environment contributed to learning; and (3) some challenges fostered learning, while others impeded it. For people living with pain, three themes emerged: (1) translating lived experience into an empowering contribution; (2) the complex role of compensation; and (3) engagement driven by purpose and trust.

Conclusion: The partnered learning activity served as a transformative learning experience for students and empowered people living with pain through meaningful contributions of their lived experience. Future research should explore the impact of partnered activities on student learning outcomes.

目的:探讨物理治疗学生和疼痛患者参与一种新型的伙伴学习活动的经验。材料与方法:采用定量开放式问卷调查与焦点小组讨论相结合的并行混合方法设计。该活动包括物理治疗学生和慢性疼痛患者之间的一对一互动,以探索疼痛的多维影响。定量资料采用描述性统计进行分析。采用定性描述方法分析定性数据。结果:25名学生和42名疼痛患者同意参与。对于学生,确定了三个总体主题:(1)该活动被视为一种变革性的学习经历;(2)第一手互动、学习工具和有助于学习的环境;(3)一些挑战促进了学习,而另一些则阻碍了学习。对于生活在痛苦中的人,出现了三个主题:(1)将生活经验转化为赋权的贡献;(2)薪酬作用复杂;(3)由目的和信任驱动的参与。结论:合作学习活动为学生提供了一种变革性的学习体验,并通过他们生活经验的有意义的贡献赋予了痛苦患者力量。未来的研究应探讨合作活动对学生学习成果的影响。
{"title":"Integrating people living with pain into pre-licensure pain education: a novel learning activity for health professional students.","authors":"Christian Longtin, Alaanah Bhanji, Emilie Houston, Nathan Augeard, Fatima Amari, Lesley Singer, Lynn Cooper, Claire Ashton-James, Jordan Miller, Angela Towle, Geoff Bostick, Timothy H Wideman","doi":"10.1080/09638288.2025.2563770","DOIUrl":"10.1080/09638288.2025.2563770","url":null,"abstract":"<p><strong>Purpose: </strong>To explore the experiences of physiotherapy students and people living with pain regarding their participation in a novel partnered learning activity.</p><p><strong>Materials and methods: </strong>A concurrent mixed method design integrating quantitative and open-ended survey questions with focus group discussions was used. The activity included a one-on-one interaction between physiotherapy students and people living with chronic pain to explore the multidimensional impact of pain. Quantitative data were analyzed using descriptive statistics. Qualitative data were analyzed using a qualitative description approach.</p><p><strong>Results: </strong>Twenty-five students and 42 people living with pain consented to participate. For students, three overarching themes were identified: (1) the activity was perceived as a transformative learning experience; (2) first-hand interactions, the learning tools, and the environment contributed to learning; and (3) some challenges fostered learning, while others impeded it. For people living with pain, three themes emerged: (1) translating lived experience into an empowering contribution; (2) the complex role of compensation; and (3) engagement driven by purpose and trust.</p><p><strong>Conclusion: </strong>The partnered learning activity served as a transformative learning experience for students and empowered people living with pain through meaningful contributions of their lived experience. Future research should explore the impact of partnered activities on student learning outcomes.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1494-1512"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145214322","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Unraveling tactile and proprioceptive upper limb function in children with unilateral cerebral palsy: a combination of robotic and clinical assessments. 揭示单侧脑瘫儿童上肢触觉和本体感觉功能:机器人和临床评估的结合。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-09-11 DOI: 10.1080/09638288.2025.2556944
Lize Kleeren, Lisa Mailleux, Monica Crotti, Lisa Decraene, Geert Verheyden, Olivier Lambercy, Els Ortibus, Anja Van Campenhout, Hilde Feys, Katrijn Klingels

Purpose: To map somatosensory impairments in the more-impaired and less-impaired upper limb of children with unilateral cerebral palsy (uCP) compared to typically developing children (TDC), using clinical and robotic assessments. Additionally, we explored which subgroups of children with uCP are more likely to experience somatosensory impairments.

Materials and methods: This cross-sectional study included 49 children with uCP (11y11m ± 2y10m, 26 males) and 49 age- and sex-matched TDC (11y10m ± 2y10m). Tactile registration (Semmes-Weinstein monofilaments), tactile perception (stereognosis, two-point discrimination), and proprioception (clinical movement sense, ETH MIKE robot, and Kinarm exoskeleton) were assessed. Differences between groups and across manual ability levels and brain lesion types were analyzed using generalized estimating equation models.

Results: Children with uCP exhibited tactile impairments in both hands (more-impaired: 27-43%; less-impaired: 12-16%) and worse proprioception bilaterally compared to TDC (p ≤ 0.003). Lower manual ability was related to worse tactile perception (p ≤ 0.001) and proximal proprioception (p ≤ 0.045). Predominant grey matter lesions were correlated with worse tactile registration (p = 0.016), perception (p ≤ 0.009), and distal proprioception (p = 0.009).

Conclusions: Our results underline the importance of including clinical and robotic assessments in the follow-up of children with uCP to identify bilateral somatosensory impairments. An international consensus on clinically relevant and well-defined assessment protocols is needed to enhance clinical translation.

目的:通过临床和机器人评估,与典型发育儿童(TDC)相比,单侧脑瘫(uCP)儿童上肢多损伤和少损伤的体感障碍。此外,我们还探讨了哪些uCP儿童亚组更容易出现体感障碍。材料和方法:本横断面研究纳入49例uCP患儿(11y11m±2y10m,男性26例)和49例年龄和性别匹配的TDC患儿(11y10m±2y10m)。评估触觉定位(Semmes-Weinstein单丝)、触觉感知(立体感知、两点辨别)和本体感觉(临床运动感觉、ETH MIKE机器人和Kinarm外骨骼)。使用广义估计方程模型分析组间、组间、组间手工能力水平和脑损伤类型的差异。结果:与TDC相比,uCP患儿表现出双手触觉障碍(重度损伤:27-43%;轻度损伤:12-16%),双侧本体感觉更差(p≤0.003)。较低的手动能力与较差的触觉知觉(p≤0.001)和近端本体感觉(p≤0.045)有关。主要的灰质病变与较差的触觉配准(p = 0.016)、知觉(p≤0.009)和远端本体感觉(p = 0.009)相关。结论:我们的研究结果强调了在uCP患儿随访中纳入临床和机器人评估以识别双侧体感障碍的重要性。需要在临床相关和定义明确的评估方案上达成国际共识,以加强临床翻译。
{"title":"Unraveling tactile and proprioceptive upper limb function in children with unilateral cerebral palsy: a combination of robotic and clinical assessments.","authors":"Lize Kleeren, Lisa Mailleux, Monica Crotti, Lisa Decraene, Geert Verheyden, Olivier Lambercy, Els Ortibus, Anja Van Campenhout, Hilde Feys, Katrijn Klingels","doi":"10.1080/09638288.2025.2556944","DOIUrl":"10.1080/09638288.2025.2556944","url":null,"abstract":"<p><strong>Purpose: </strong>To map somatosensory impairments in the more-impaired and less-impaired upper limb of children with unilateral cerebral palsy (uCP) compared to typically developing children (TDC), using clinical and robotic assessments. Additionally, we explored which subgroups of children with uCP are more likely to experience somatosensory impairments.</p><p><strong>Materials and methods: </strong>This cross-sectional study included 49 children with uCP (11y11m ± 2y10m, 26 males) and 49 age- and sex-matched TDC (11y10m ± 2y10m). Tactile registration (Semmes-Weinstein monofilaments), tactile perception (stereognosis, two-point discrimination), and proprioception (clinical movement sense, ETH MIKE robot, and Kinarm exoskeleton) were assessed. Differences between groups and across manual ability levels and brain lesion types were analyzed using generalized estimating equation models.</p><p><strong>Results: </strong>Children with uCP exhibited tactile impairments in both hands (more-impaired: 27-43%; less-impaired: 12-16%) and worse proprioception bilaterally compared to TDC (<i>p</i> ≤ 0.003). Lower manual ability was related to worse tactile perception (<i>p</i> ≤ 0.001) and proximal proprioception (<i>p</i> ≤ 0.045). Predominant grey matter lesions were correlated with worse tactile registration (<i>p</i> = 0.016), perception (<i>p</i> ≤ 0.009), and distal proprioception (<i>p</i> = 0.009).</p><p><strong>Conclusions: </strong>Our results underline the importance of including clinical and robotic assessments in the follow-up of children with uCP to identify bilateral somatosensory impairments. An international consensus on clinically relevant and well-defined assessment protocols is needed to enhance clinical translation.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1369-1390"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A timed sit-to-stand test and prediction equation had poor agreement with a graded exercise test in people with stroke. 在中风患者中,计时坐立测试和预测方程与分级运动测试的一致性很差。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-07-16 DOI: 10.1080/09638288.2025.2531301
Natasha Machado, Gavin Williams, John Olver, Liam Johnson

Purpose: To investigate the agreement between a graded exercise test (GXT) and a 45-second sit-to-stand test and prediction equation to predict cardiorespiratory fitness (CRF) in people with stroke.

Methods: People with ischaemic stroke admitted to subacute outpatient rehabilitation at Epworth HealthCare were screened for eligibility and invited to participate. Participants completed two tests of CRF: 1) a 45-second sit-to-stand test, and 2) a GXT with measurement of gas exchange. Both tests were completed within seven days of each other, with the order of test administration randomised. Heart rate response during and after the sit-to-stand test was input into a prediction equation to obtain predicted maximal volume of oxygen consumption (VO2max). Concurrent validity was determined by calculating Lin's concordance correlation coefficients (CCC).

Results: A total of 30 people with stroke (males n = 23, mean ± standard deviation age 67.1 ± 9.9 years) were recruited. Predicted mean VO2max based on the sit-to-stand test was 36.2 ml.kg-1.min-1, while the GXT mean VO2max was 28.0 ml.kg-1.min-1. There was poor agreement between the two fitness tests (CCC 0.11, 95% CI -0.07 to 0.28).

Conclusion: Predicted VO2max based on a 45-second sit-to-stand test does not appear to be a valid test of CRF in people with stroke.

目的:探讨分级运动试验(GXT)与45秒坐立试验及预测方程预测脑卒中患者心肺功能(CRF)的一致性。方法:对艾普沃斯医疗中心亚急性门诊康复收治的缺血性脑卒中患者进行资格筛选并邀请其参与。参与者完成了两项CRF测试:1)45秒的坐立测试,以及2)测量气体交换的GXT。两项试验均在7天内完成,试验给药顺序随机。将坐立测试期间和之后的心率反应输入到预测方程中,以获得预测的最大耗氧量(VO2max)。并发效度通过计算Lin’s一致性相关系数(CCC)来确定。结果:共纳入30例脑卒中患者(男性23例,平均±标准差年龄67.1±9.9岁)。根据坐立测试预测的平均VO2max为36.2 ml.kg-1。而GXT平均VO2max为28.0 ml.kg-1 min-1。两个适应度测试之间的一致性较差(CCC 0.11, 95% CI -0.07至0.28)。结论:基于45秒坐立测试的VO2max预测似乎不是脑卒中患者CRF的有效测试。
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引用次数: 0
Evolving rehabilitation needs across the lifespan: a mixed methods study with adults with cerebral palsy. 在整个生命周期中不断变化的康复需求:一项针对成年脑瘫患者的混合方法研究。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-09-22 DOI: 10.1080/09638288.2025.2561860
Cristina A Sarmiento, Christine Petranovich, Nancy Moran, Chloe Glaros, Erin Mundy, Moriah Mabry, Hannah Friedman, Lisa A Brenner, Brooke Dorsey

Purpose: Understand and describe the rehabilitation needs of adults with cerebral palsy (CP) who recently established adult-based physiatric care, and how these needs have changed over time.

Materials and methods: In this convergent mixed-methods study, qualitative data were collected using semi-structured interviews with adults with CP, caregivers, and dyads of adults with CP and caregivers to explore the rehabilitation needs of adults with CP. Quantitative data were collected through retrospective review of electronic health record data from patients with CP aged ≥18 years who had been seen in the adult CP clinic at least once since April 2022.

Results: We conducted 21 interviews with 27 participants (7 adults with CP, 10 caregivers, 5 dyads) and included 73 adults with CP in quantitative data extraction. We identified three qualitative themes and integrated these with quantitative findings related to rehabilitation and healthcare needs. Themes identified included: 1) The importance of therapy access throughout the lifespan; 2) Changes in and variety of equipment needs in adulthood; and 3) Evolving rehabilitation needs and goals.

Conclusions: Rehabilitation professionals play an important role in the ongoing care of adults with CP, including ensuring access to rehabilitative therapies, evaluating changing equipment needs, and supporting changing health-related goals.

目的:了解和描述最近建立成人物理护理的成年脑瘫(CP)的康复需求,以及这些需求如何随时间变化。材料和方法:在这项融合混合方法研究中,通过对成年CP患者、护理人员以及成年CP患者和护理人员的半结构化访谈收集定性数据,以探讨成年CP患者的康复需求。定量数据通过回顾性审查年龄≥18岁的CP患者的电子健康记录数据收集,这些患者自2022年4月以来至少在成人CP诊所就诊过一次。结果:我们对27名参与者进行了21次访谈(7名成年CP患者,10名护理人员,5对夫妇),并对73名成年CP患者进行了定量数据提取。我们确定了三个定性主题,并将其与与康复和医疗保健需求相关的定量结果相结合。确定的主题包括:1)在整个生命周期中获得治疗的重要性;2)成年期设备需求的变化和多样性;3)不断变化的康复需求和目标。结论:康复专业人员在成年CP患者的持续护理中发挥着重要作用,包括确保获得康复治疗,评估不断变化的设备需求,并支持不断变化的健康相关目标。
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引用次数: 0
Existing evidence of self-management interventions in acquired brain injuries and traumatic injuries: a scoping review. 获得性脑损伤和外伤性脑损伤自我管理干预的现有证据:范围综述。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-07-15 DOI: 10.1080/09638288.2025.2530159
Ksenia Theodora Alexandra Ustrimova, Brian Randall Fait, Silje Endresen Reme, Mari Storli Rasmussen, Solveig Lægreid Hauger

Purpose: Patients with acquired brain injuries (ABI) and severe traumatic injuries face many persisting and overlapping injury-related consequences. Despite a growing number of self-management (SM) interventions targeting these conditions, no comprehensive reviews exist. This scoping review aims to map the existing SM interventions across these injury populations.

Materials and methods: Five databases (MEDLINE, EMBASE, PsycINFO, CINAHL, PubMed) were systematically searched. Studies were included if they adhered to the operational definition by Jonkman et al. and targeted adults with ABI and traumatic injuries.

Results: A total of 43 studies were included. Most interventions targeted stroke and spinal cord injuries. The key ingredients were psychoeducation, goal setting, and training in self-management skills. Most interventions were conducted in hospitals by healthcare personnel in the chronic post-injury phase. A considerable variation of reported effects was observed. Additionally, Bandura's social cognitive theory was frequently applied as a theoretical background.

Conclusions: A significant lack of SM interventions for multiple/major trauma and burns was identified. Many studies were poorly described and did not indicate how the interventions were tailored to the patients, and the effects were inconsistent. However, the findings suggest that SM ingredients are applicable to both ABI and traumatic injury populations in clinical settings.

目的:获得性脑损伤(ABI)和重型外伤患者面临许多持续和重叠的损伤相关后果。尽管针对这些疾病的自我管理(SM)干预措施越来越多,但目前还没有全面的综述。这一范围审查的目的是绘制现有的SM干预措施在这些伤害人群。材料与方法:系统检索MEDLINE、EMBASE、PsycINFO、CINAHL、PubMed 5个数据库。如果研究符合Jonkman等人的操作定义,并针对ABI和创伤性损伤的成年人,则纳入研究。结果:共纳入43项研究。大多数干预措施针对中风和脊髓损伤。关键要素是心理教育、目标设定和自我管理技能的培训。大多数干预措施是在医院由慢性损伤后阶段的卫生保健人员进行的。观察到报告的效果有相当大的差异。此外,班杜拉的社会认知理论也经常被用作理论背景。结论:多发/严重创伤和烧伤明显缺乏SM干预。许多研究描述得很差,没有表明干预措施是如何针对患者量身定制的,而且效果也不一致。然而,研究结果表明,SM成分在临床环境中适用于ABI和创伤性损伤人群。
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引用次数: 0
My MAPS: incorporating personal and social factors to increase physical activity after stroke: a co-design study. 我的地图:结合个人和社会因素增加中风后的身体活动:一项共同设计研究。
IF 2 4区 医学 Q1 REHABILITATION Pub Date : 2026-03-01 Epub Date: 2025-07-14 DOI: 10.1080/09638288.2025.2527944
Karl Espernberger, Casey Peiris, Emily Ramage, Louise Suttie, Meg Symington, Rachel Brunker, Natalie Fini

Purpose: Engaging in meaningful social and community activities may be an option for promoting sustainable post-stroke physical activity participation. This research aimed to co-design an intervention to help people re-engage in meaningful activities and lead an active life after stroke.

Methods: A four-stage co-design methodology using an Integrated Knowledge Translation (IKT) approach was used to design a post-stroke intervention and resources: Stage one: research team planning, stage two: knowledge-user content development, stage three: research team intervention and resource development, stage four: knowledge-user review and research team adaptation and finalisation. The research team included four clinical researchers with expertise in stroke and/or physical activity, two stroke clinicians, and one stroke survivor. Knowledge-user informants were recruited to participate (Stages 2 and 4) and included eight stroke survivors (four female), median age 67 years (IQR 55-74); and 11 health professionals (10 allied-health and one registered nurse).

Results: An intervention and resources aiming to facilitate physical activity was successfully developed. It comprises a patient-facing booklet (including secondary-stroke prevention education, structured meaningful activity identification, and goal setting) and a health professional resource (including education, upskilling information, and resources).

Conclusions: This study successfully co-designed an intervention and resources which are ready for feasibility and acceptability testing.

目的:参与有意义的社会和社区活动可能是促进卒中后可持续身体活动参与的一种选择。本研究旨在共同设计一种干预措施,帮助人们在中风后重新参与有意义的活动,过上积极的生活。方法:采用集成知识翻译(IKT)方法的四阶段协同设计方法来设计卒中后干预和资源:第一阶段:研究团队计划,第二阶段:知识用户内容开发,第三阶段:研究团队干预和资源开发,第四阶段:知识用户审查和研究团队适应和定型。研究小组包括四名具有中风和/或身体活动专业知识的临床研究人员,两名中风临床医生和一名中风幸存者。知识使用者被招募参与(第二和第四阶段),包括8名中风幸存者(4名女性),中位年龄67岁(IQR 55-74);11名保健专业人员(10名联合保健人员和1名注册护士)。结果:成功开发了一套促进身体活动的干预措施和资源。它包括一个面向患者的小册子(包括二次中风预防教育、结构化的有意义的活动识别和目标设定)和一个卫生专业资源(包括教育、提高技能信息和资源)。结论:本研究成功地设计了一种干预措施和资源,为可行性和可接受性测试做好了准备。
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Disability and Rehabilitation
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