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Cross-cultural adaptation, reliability, and validity study of the Turkish version of the "Spinal Cord Injury-Falls Concern Scale". 对土耳其版 "脊髓损伤-跌倒关注量表 "的跨文化适应性、可靠性和有效性研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-01-29 DOI: 10.1080/09638288.2024.2302893
Tulay Basak, Senem Duman

Purpose: This study aims to conduct a Turkish validity and reliability study of the Spinal Cord Injury-Falls Concern Scale (SCI-FCS).

Methods: The study involved 134 volunteer patients with spinal cord injury. Various validity analyses, including content validity analysis, Confirmatory Factor Analysis (CFA), Pearson product-moment correlation coefficient, and Cronbach's alpha value based on a single application for reliability, were employed. The Falls Efficacy Scale-International (FES-I) was used for criterion validity.

Results: All the standardized regression coefficients for the single factor measurement model established with 16 items in the scale are above 0.84. The CFA model, also with a single factor and 16 items, yields the following fit indices: Root-Mean-Square Error of Approximation value of 0.15, Standardized Root Mean Residual Squares value of 0.06, Chi-square value of 2.20, and Comparative Fit Index and Non-Normed Fit Index values of 0.98. The scores they received from the SCI-FCS and the scores they received from the FES-I scale have a statistically significant positive correlation (p < 0.01). The test-retest reliability coefficient value is 0.81, and the Cronbach Alpha value is 0.97.

Conclusion: The Turkish version of the SCI-FCS is a valid and reliable tool for determining fall concerns for patients with spinal cord injury.

目的:本研究旨在对脊髓损伤-跌倒关注量表(SCI-FCS)进行土耳其语效度和信度研究:研究涉及 134 名脊髓损伤患者志愿者。研究采用了多种效度分析方法,包括内容效度分析、确证因子分析(CFA)、皮尔逊积矩相关系数和基于单一应用的 Cronbach's α 值等。标准效度采用国际跌倒效能量表(FES-I):结果:量表中 16 个项目所建立的单因素测量模型的标准化回归系数均高于 0.84。同样是单因素 16 个项目的 CFA 模型得出了以下拟合指数:均方根近似误差值为 0.15,标准化均方根残差平方值为 0.06,卡方值为 2.20,比较拟合指数和非标准化拟合指数值为 0.98。他们从 SCI-FCS 量表中获得的分数与他们从 FES-I 量表中获得的分数在统计学上具有显著的正相关性(p 结论):土耳其版 SCI-FCS 是确定脊髓损伤患者跌倒问题的有效而可靠的工具。
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引用次数: 0
Occupational therapists' assessment and reporting of functional cognition in stroke care. 职业治疗师对中风护理中功能认知的评估和报告。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-02-01 DOI: 10.1080/09638288.2024.2310760
Jana Ward, Geraldine Foley, Frances Horgan

Purpose: To investigate how functional cognition of people post-stroke is evaluated and reported by occupational therapists in Ireland. Functional cognition refers to the use and integration of cognitive skills for daily function.

Methods: This study used a qualitative design. Six focus groups and one individual interview were conducted with 20 occupational therapists purposively sampled for variation across different clinical grades. Data were analysed according to the Braun and Clark thematic analysis framework.

Results: Participants felt that assessment of functional cognition was an integral feature of occupational therapy assessment in stroke care but acknowledged that terminology used by occupational therapists for functional cognition was inconsistent. Non-standardised observational assessment was routinely used by participants. Challenges were reported with respect to written documentation of non-standardised observations. Participants reported that use of standardised cognitive assessments required considered clinical reasoning before administration. Standardised performance-based assessments were not widely implemented by participants.

Conclusion: Occupational therapists in Ireland reported a multi-component assessment process to evaluate functional cognition post-stroke. Establishing practice guidelines for the assessment of functional cognition may be of benefit to occupational therapists working in stroke care. Further research is needed to quantify procedures in this assessment process to account for variation in practice.

目的:调查爱尔兰的职业治疗师是如何评估和报告中风后患者的功能认知的。功能认知是指在日常功能中使用和整合认知技能:本研究采用定性设计。对 20 名职业治疗师进行了六次焦点小组讨论和一次个别访谈,这些职业治疗师都是有目的性地从不同临床级别的职业治疗师中抽取的。根据布劳恩和克拉克主题分析框架对数据进行了分析:结果:参与者认为功能认知评估是卒中护理中职业治疗评估的一个组成部分,但也承认职业治疗师对功能认知的术语使用不一致。参与者经常使用非标准化的观察评估。据报告,非标准化观察的书面记录存在挑战。参与者报告称,使用标准化认知评估需要在实施前进行深思熟虑的临床推理。结论:爱尔兰的职业治疗师报告说,他们采用了一种多成分评估程序来评估中风后的功能认知。为功能认知评估制定实践指南可能会对从事中风护理的职业治疗师有所帮助。还需要进一步的研究来量化评估过程中的程序,以解释实践中的差异。
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引用次数: 0
Transforming research systems for meaningful engagement: a reflexive thematic analysis of spinal cord injury researchers' barriers and facilitators to using the integrated knowledge translation guiding principles. 改革研究系统,促进有意义的参与:对脊髓损伤研究人员使用综合知识转化指导原则的障碍和促进因素进行反思性专题分析。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-02-14 DOI: 10.1080/09638288.2024.2310171
Heather L Gainforth, Alanna Shwed, Emily E Giroux, Femke Hoekstra, Rhyann C McKay, Lee Schaefer, Kathryn M Sibley, Anita Kaiser, Lowell McPhail, Christopher B McBride, Barry Munro, Christopher R West

Purpose: To develop an in-depth understanding of spinal cord injury (SCI) researchers' barriers and facilitators to deciding to use 1) a partnered approach to research and, 2) systematically developed principles for guiding Integrated Knowledge Translation (IKT) in spinal cord injury research (IKT Guiding Principles).

Methods: Qualitative interview study with North American SCI researchers who were interested in using a partnered research approach. The research was conducted using an IKT approach, and interview data were analyzed using reflexive thematic analysis.

Results: Thirteen SCI researchers whose research focused on prevention, clinical, rehabilitation, and/or community SCI research were interviewed. Three themes were co-constructed with partners: 1) the principles are necessary but not sufficient for the implementation of a partnered approach to research; 2) relational capacity building is needed; and 3) institutional transformation is needed to value, resource, and support meaningful engagement.

Conclusions: Supporting change that enables SCI researchers to adopt and implement the IKT Guiding Principles will require transformation at the individual (theme 1), relational (theme 2), and institutional levels (theme 3). Findings provide clear, practical, and tangible actions to promote change that can support meaningful engagement in the SCI Research System.

目的:深入了解脊髓损伤(SCI)研究人员在决定使用 1) 合作研究方法和 2) 系统开发的脊髓损伤研究中综合知识转化(IKT)指导原则(IKT 指导原则)时遇到的障碍和促进因素:方法:对北美脊髓损伤研究人员进行定性访谈研究,这些研究人员对使用合作研究方法感兴趣。研究采用 IKT 方法进行,访谈数据采用反思性主题分析法进行分析:对 13 位 SCI 研究人员进行了访谈,他们的研究侧重于预防、临床、康复和/或社区 SCI 研究。与合作伙伴共同构建了三个主题:1) 原则是实施合作研究方法的必要条件,但还不够;2) 需要进行关系能力建设;3) 需要进行机构转型,以重视、提供资源和支持有意义的参与:支持变革,使 SCI 研究人员能够采纳和实施《IKT 指导原则》,需要在个人(主题 1)、关系(主题 2)和机构(主题 3)层面进行改革。研究结果提供了明确、实用和具体的行动,以促进变革,从而支持 SCI 研究系统的有意义参与。
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引用次数: 0
Effects of inpatient rehabilitation after acute care on motor, neuropsychological and behavioral outcomes in children with severe traumatic brain injury. 急性护理后住院康复对严重脑外伤儿童运动、神经心理和行为结果的影响。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-01-03 DOI: 10.1080/09638288.2023.2297920
Shiyao Gao, Amery Treble-Barna, Anthony Fabio, Sue R Beers, M Kathleen Kelly, Bedda L Rosario, Michael J Bell, Stephen R Wisniewski

Purpose: An observational study of children with severe traumatic brain injury (TBI) (Approaches and Decisions in Acute Pediatric TBI [ADAPT] Trial) demonstrated the benefits of inpatient rehabilitation on functional outcomes for those with more severely impaired consciousness when medically stable. We conducted a secondary analysis to assess whether using an inpatient rehabilitation or skilled nursing facility after acute hospitalization was associated with better motor, neuropsychological, and behavioral outcomes compared to receiving only non-inpatient rehabilitation among children with severe TBI.

Materials and methods: We included 180 children who used an inpatient rehabilitation or skilled nursing facility and 74 children who only received non-inpatient rehabilitation from the ADAPT trial. At 12 months post-injury, children underwent tests of motor skills, intellectual functioning, verbal learning, memory, processing speed, and cognitive flexibility. Parents/guardians rated children's executive function and behaviors. We performed inverse probability weighting to adjust for potential confounders.

Results: No significant differences were found in any motor, neuropsychological, or behavioral measures between children receiving inpatient rehabilitation and children receiving only non-inpatient rehabilitation.

Conclusions: Analyses of comprehensive outcomes did not show differences between children receiving inpatient rehabilitation and children receiving only non-inpatient rehabilitation, suggesting a need for more research on specific components of the rehabilitation process.

目的:一项针对严重创伤性脑损伤(TBI)患儿的观察性研究(急性儿科 TBI [ADAPT] 试验的方法和决策)表明,住院康复治疗对那些病情稳定、意识受损较严重的患儿的功能预后有好处。我们进行了一项二次分析,以评估与仅接受非住院康复治疗相比,急性住院后使用住院康复治疗或专业护理机构是否能改善严重 TBI 儿童的运动、神经心理和行为结果:我们纳入了ADAPT试验中使用住院康复或专业护理设施的180名儿童和只接受非住院康复的74名儿童。受伤后 12 个月,儿童接受了运动技能、智力功能、语言学习、记忆、处理速度和认知灵活性测试。家长/监护人对儿童的执行功能和行为进行评分。我们对潜在的混杂因素进行了反概率加权调整:结果:接受住院康复治疗的儿童与仅接受非住院康复治疗的儿童在运动、神经心理学或行为测量方面均未发现明显差异:对综合结果的分析表明,接受住院康复治疗的儿童与只接受非住院康复治疗的儿童之间没有差异,这表明有必要对康复过程中的特定环节进行更多研究。
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引用次数: 0
Defining dignity at the intersection of disability: a scoping review. 在残疾问题的交叉点上定义尊严:范围界定审查。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-01-24 DOI: 10.1080/09638288.2024.2302582
Kelsey Chapman, Angel Dixon, Elizabeth Kendall, Kelly Clanchy

Purpose: This scoping literature review aimed to determine the definition of dignity in relation to disability. It also examined the extent to which inclusive research methods have been used to develop working definitions.

Materials and methods: A comprehensive search was conducted in five electronic databases, using a modified framework by Arksey and O'Malley. Narrative synthesis and qualitative content analysis were employed to examine definitions of dignity and the use of inclusive research methods.

Results: 22 peer-reviewed studies were included. The majority of the studies were qualitative (72.72%) and examined various disability populations in diverse settings. Although 19 studies offered a definition of dignity, there was no clear consensus. Dignity was frequently defined from a utilitarian perspective, emphasising affordances and barriers. However, engagement with theoretical constructs was superficial and limited. Further, no studies mentioned the use of inclusive research methods.

Conclusions: The absence of inclusive research methods hinders the development of a comprehensive definition of dignity that is accepted by and relevant to people with disability. Engaging with both theoretical and empirical perspectives of dignity is crucial to develop a meaningful and inclusive definition, which can inform interventions and policies that enhance dignity for people with disability across diverse settings and contexts.

目的:本范围性文献综述旨在确定与残疾有关的尊严定义。它还考察了包容性研究方法在多大程度上被用于制定工作定义:采用 Arksey 和 O'Malley 修改过的框架,在五个电子数据库中进行了全面搜索。采用叙事综合法和定性内容分析法对尊严的定义和包容性研究方法的使用进行了研究。大部分研究为定性研究(72.72%),研究对象为不同环境中的各种残疾人群。虽然有 19 项研究给出了尊严的定义,但并没有达成明确的共识。尊严通常是从功利的角度来定义的,强调承受能力和障碍。然而,对理论建构的涉及是肤浅和有限的。此外,没有研究提到使用包容性研究方法:结论:包容性研究方法的缺失阻碍了尊严全面定义的发展,而这一定义既为残障人士所接受,也与他们息息相关。对尊严的理论和实证观点进行研究对于制定一个有意义的包容性定义至关重要,该定义可为干预措施和政策提供依据,从而在不同的环境和背景下提高残疾人的尊严。
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引用次数: 0
Grade-4/5 motor activity log-Brazil for post-stroke individuals with a severely impaired upper limb: a validity, reliability and measurement error study. 针对上肢严重受损的中风后患者的巴西 4/5 级运动活动日志:有效性、可靠性和测量误差研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-01-24 DOI: 10.1080/09638288.2024.2305298
Gabriela da Silva Matuti, Juliana Firmo Dos Santos, Maria Liliane da Silva, Elaine Menezes de Oliveira, Adriana Cláudia Lunardi, Fedora Biney, Gitendra Uswatte, Edward Taub, Sandra Regina Alouche

Purpose: This study examined the clinimetrics of the Brazilian-Portuguese translation of the Grade-4/5 Motor Activity Log (MAL 4/5), which assesses everyday use of the more affected upper-limb (UL) in stroke survivors with moderate/severe or severe motor impairment.

Materials and methods: The translated MAL 4/5 was administered to 47 stroke survivors with moderate/severe or severe UL motor impairment. Accelerometers were worn on participants' wrists for five days on average prior to the first assessment. Test-retest and inter-rater reliabilities were assessed using the intraclass correlation coefficient (ICC), internal consistency using Cronbach's α, and construct validity was tested with correlations with the accelerometry. The measurement error (SEM) and the minimal detectable change (MDC) were calculated.

Results: MAL4/5-Brazil's test-retest reliability (AOU: ICC = 0.84; QOU: ICC = 0.90), inter-rater reliability (AOU: ICC = 0.83; QOU: ICC = 0.91), internal consistency (Cronbach's α = 0.91 and 0.95 for AOU and QOU scales, respectively), the SEM and MDC were 0.3 and 0.8 points for the AOU subscale and 0.2 and 0.5 points for the QOU subscale, respectively. The construct validity (AOU scale: r = 0.67; QOU scale: r = 0.76) was high.

Conclusion: Grade-4/5 Motor Activity Log-Brazil is a reliable and valid instrument for assessing the more-affected UL use of stroke patients with moderate/severe or severe UL motor impairments.

目的:本研究考察了巴西-葡萄牙语翻译的 4/5 级运动活动日志(MAL 4/5)的临床计量学,该日志用于评估中度/重度或严重运动障碍的中风幸存者日常使用受影响较大的上肢(UL)的情况:对 47 名患有中度/重度或严重上肢运动障碍的中风幸存者进行了翻译后的 MAL 4/5。在首次评估前,参与者手腕上平均佩戴加速度计五天。使用类内相关系数(ICC)评估了测试重复可靠性和评估者之间的可靠性,使用克朗巴赫α评估了内部一致性,并通过与加速度计的相关性测试了结构效度。计算了测量误差(SEM)和最小可检测变化(MDC):结果:MAL4/5-Brazil 的测试-再测可靠性(AOU:ICC = 0.84;QOU:ICC = 0.90)、评分者间可靠性(AOU:ICC = 0.83;QOU:ICC = 0.91)、内部一致性(Cronbach's α = 0.AOU 量表和 QOU 量表的内部一致性(Cronbach's α = 0.91 和 0.95)、SEM 和 MDC 分别为 0.3 分和 0.8 分(AOU 子量表)和 0.2 分和 0.5 分(QOU 子量表)。建构效度(AOU 量表:r = 0.67;QOU 量表:r = 0.76)较高:结论:《巴西 4/5 级运动活动日志》是评估中度/重度或严重 UL 运动障碍的脑卒中患者 UL 使用情况的可靠有效工具。
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引用次数: 0
Does the level of mobility on ICU discharge impact post-ICU outcomes? A retrospective analysis. 重症监护室出院时的活动能力水平会影响重症监护室的后期疗效吗?回顾性分析。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-01-31 DOI: 10.1080/09638288.2024.2310186
Rebekah Haylett, Jonathan Grant, Mark A Williams, Owen Gustafson

Purpose: Mobilisation is a common intervention in Intensive Care (ICU). However, few studies have explored the relationship between mobility levels and outcomes. This study assessed the association of the level of mobility on ICU discharge with discharge destination from the hospital and hospital length of stay.

Materials and methods: A retrospective analysis of data from 522 patients admitted to a single UK general ICU who were ventilated for ≥5 days was performed. The level of mobility was assessed using the Manchester Mobility Score (MMS). Multivariable regression analysed demographic and clinical variables for the independence of association with discharge destination and hospital length of stay.

Results: MMS ≥5 on ICU discharge was independently associated with discharge destination and hospital LOS (p < 0.001). Patients achieving MMS ≥5 on ICU discharge were more likely to be discharged home (OR 3.86 95% CI 2.1 to 6.9, p < 0.001), and had an 11.8 day shorter hospital LOS (95% CI -17.6 to -6.1, p < 0.001).

Conclusions: The ability to step transfer to a chair (MMS ≥5) before ICU discharge was independently associated with discharge to usual residence and hospital LOS, irrespective of preadmission morbidity. Increasing the level of patient mobility at ICU discharge should be a key focus of rehabilitation interventions.

目的:移动是重症监护(ICU)中的一项常见干预措施。然而,很少有研究探讨移动水平与预后之间的关系。本研究评估了 ICU 出院时的活动能力水平与出院目的地和住院时间的关系:本研究对英国一家普通重症监护病房收治的 522 名通气时间≥5 天的患者的数据进行了回顾性分析。采用曼彻斯特活动能力评分(MMS)对患者的活动能力进行评估。多变量回归分析了人口统计学和临床变量与出院目的地和住院时间的相关性:结果:ICU出院时曼彻斯特移动能力评分≥5与出院目的地和住院时间无关(p p p 结论:出院时曼彻斯特移动能力评分≥5与出院目的地和住院时间无关(p p p无论入院前的发病率如何,ICU出院前步态转移到椅子上的能力(MMS≥5)与出院后的常住地和住院时间都有独立的相关性。提高患者在ICU出院时的活动能力应成为康复干预的重点。
{"title":"Does the level of mobility on ICU discharge impact post-ICU outcomes? A retrospective analysis.","authors":"Rebekah Haylett, Jonathan Grant, Mark A Williams, Owen Gustafson","doi":"10.1080/09638288.2024.2310186","DOIUrl":"10.1080/09638288.2024.2310186","url":null,"abstract":"<p><strong>Purpose: </strong>Mobilisation is a common intervention in Intensive Care (ICU). However, few studies have explored the relationship between mobility levels and outcomes. This study assessed the association of the level of mobility on ICU discharge with discharge destination from the hospital and hospital length of stay.</p><p><strong>Materials and methods: </strong>A retrospective analysis of data from 522 patients admitted to a single UK general ICU who were ventilated for ≥5 days was performed. The level of mobility was assessed using the Manchester Mobility Score (MMS). Multivariable regression analysed demographic and clinical variables for the independence of association with discharge destination and hospital length of stay.</p><p><strong>Results: </strong>MMS ≥5 on ICU discharge was independently associated with discharge destination and hospital LOS (<i>p</i> < 0.001). Patients achieving MMS ≥5 on ICU discharge were more likely to be discharged home (OR 3.86 95% CI 2.1 to 6.9, <i>p</i> < 0.001), and had an 11.8 day shorter hospital LOS (95% CI -17.6 to -6.1, <i>p</i> < 0.001).</p><p><strong>Conclusions: </strong>The ability to step transfer to a chair (MMS ≥5) before ICU discharge was independently associated with discharge to usual residence and hospital LOS, irrespective of preadmission morbidity. Increasing the level of patient mobility at ICU discharge should be a key focus of rehabilitation interventions.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"5576-5581"},"PeriodicalIF":2.1,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139643264","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Physical activity for people with chronic conditions: a systematic review of toolkits to promote adherence. 慢性病患者的体育锻炼:促进坚持锻炼的工具包系统回顾。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2023-12-22 DOI: 10.1080/09638288.2023.2296525
Tamina Levy, Kelly Huxley, Sally Vuu, Lucy K Lewis

Purpose: The World Health Organisation (WHO) recommends that health professionals develop and implement "adherence counselling toolkits" to promote adherence to long-term therapies in people with chronic conditions. This prospectively registered review aimed to systematically identify and evaluate existing toolkits developed to promote adherence to physical activity in people with chronic conditions.

Materials and methods: Grey literature and six e-databases were searched for studies investigating the use of "toolkits" to promote adherence to physical activity or exercise recommendations in people with chronic conditions (Medline, PsycInfo, EmCare, Cochrane, CINAHL Plus, Pedro). A two-stage screening process was completed by two independent reviewers.

Results: Five studies describing five toolkits were included. Three toolkits displayed all WHO recommended features, including information on adherence, a clinically useful way of using this information, and behavioural tools for maintaining habits. The included toolkits featured "adherence" to the intervention; however, this was not their primary aim. There were trends towards improved physical activity with some of the included toolkits.

Conclusions: There are a lack of rigorously developed toolkits that focus on adherence to physical activity in people with chronic conditions. Toolkits should be developed, tested, and implemented to improve adherence and outcomes for people with chronic conditions.

目的:世界卫生组织(WHO)建议卫生专业人员开发并实施 "坚持咨询工具包",以促进慢性病患者坚持长期治疗。本前瞻性注册综述旨在系统地识别和评估现有的工具包,以促进慢性病患者坚持体育锻炼:对灰色文献和六个电子数据库(Medline、PsycInfo、EmCare、Cochrane、CINAHL Plus、Pedro)进行了检索,以了解有关使用 "工具包 "促进慢性病患者坚持体育锻炼或运动建议的研究。两名独立审稿人完成了两阶段的筛选过程:结果:共纳入五项研究,介绍了五种工具包。其中三个工具包展示了世界卫生组织推荐的所有特征,包括关于坚持治疗的信息、使用这些信息的临床实用方法以及保持习惯的行为工具。这些工具包的特点是 "坚持 "干预,但这并不是它们的主要目的。一些工具包有改善体育锻炼的趋势:结论:目前缺乏针对慢性病患者坚持体育锻炼的严格开发的工具包。应开发、测试和实施工具包,以改善慢性病患者坚持体育锻炼的情况和效果。
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引用次数: 0
Patient reported outcomes in brachial plexus birth injury: results from the iPLUTO world-wide consensus survey. 臂丛神经产伤的患者报告结果:iPLUTO 全球共识调查的结果。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-01-04 DOI: 10.1080/09638288.2023.2298708
Hazel Brown, Ruth van der Looven, Emily S Ho, Willem Pondaag

Purpose: Brachial plexus birth injuries (BPBI) can have lifelong effects on the development and functional use of the upper extremity. Currently there is no agreement with regards to what patient-reported outcome (PRO) measures should be used. Therefore, the ability to compare the effects of treatment between individuals and institutions is challenging. This study aimed to achieve consensus among clinicians on the use of PRO measures within this patient group to allow for improved comparison of treatments and outcomes in the future.

Materials and methods: Online, a 3 round Delphi survey was completed by 35 international multi-disciplinary specialist centers.

Results: All respondents (100%) agreed that PRO measures are useful for clinical evaluation and patient treatment. None of the outcome measures scored >75% agreement for ability to assess responsiveness and current state in children with BPBI as most outcome measures were judged as not specific for BPBI. Additionally, participant centers were asked their perspective on the best available PRO option for each of the 3 categories: functional use of the upper limb, quality of life and pain. This resulted in endorsement by the participant centers of the Brachial Plexus Outcome Measure - Self-Evaluation, the Pediatric Quality of Life Inventory, and Visual Analogue Scale/Brief Pain Inventory respectively.

Conclusion: International specialists in BPBI agree that PRO measures are important to use both clinically and in research in children aged 5 years and above.

目的:臂丛神经产伤(BPBI)会对上肢的发育和功能使用产生终生影响。目前,对于应采用何种患者报告结果 (PRO) 测量方法还没有达成一致意见。因此,比较个人和机构之间的治疗效果具有挑战性。本研究旨在让临床医生就该患者群体中PRO测量方法的使用达成共识,以便将来更好地比较治疗方法和结果:35家国际多学科专业中心完成了3轮德尔菲在线调查:结果:所有受访者(100%)都认为PRO测量对临床评估和患者治疗有用。在评估 BPBI 患儿的反应能力和当前状态方面,没有一项结果测量的同意率超过 75%,因为大多数结果测量被认为不是专门针对 BPBI 的。此外,参与中心还被问及他们对上肢功能使用、生活质量和疼痛这三个类别中现有的最佳PRO选项的看法。结果,参与中心分别认可了臂丛神经结果测量--自我评价、儿科生活质量量表和视觉模拟量表/简易疼痛量表:国际臂丛神经损伤专家一致认为,PRO 测量方法对于 5 岁及以上儿童的临床和研究都非常重要。
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引用次数: 0
Effects of aerobic exercise on balance and mobility in individuals with visual impairment: a systematic review. 有氧运动对视力障碍患者平衡和活动能力的影响:一项系统综述。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2023-12-07 DOI: 10.1080/09638288.2023.2288931
Qin Zhikai, Guo Zizhao, Wang Junsheng

Background: This meta-analysis aimed to assess the impact of aerobic exercise on the balance and mobility of visually impaired individuals and identify potential factors affecting these outcomes.

Methods: A systematic review was conducted following PRISMA guidelines. The eligibility criteria for the study included visual impairment in the participant population, type of visual impairment, aerobic exercise intervention, controlled trials, age, design, and outcomes. Data were extracted based on these seven questions, and a narrative synthesis approach was employed for analysis. A comprehensive search of the database yielded 1987 articles, and ultimately, 14 randomized controlled trials involving 685 participants were selected for inclusion.

Results: The study findings indicate that aerobic exercise can greatly enhance the static balance ability [SMD = 1.23, 95%CI 0.80-1.66, p < 0.00001] and dynamic balance ability [SMD = 1.04, 95% CI 0.09-1.99, p = 0.03] of individuals with visual impairment. However, it appeared that mobility did not exhibit significant improvement [SMD = -0.49, 95% CI -1.06 to 0.09, p = 0.10]. Through subgroup analysis, it was found that exercise frequency, age, and degree of visual impairment significantly affect static balance.

Conclusions: Engaging in aerobic exercise 3-6 times per week, with each session lasting between 30 and 60 min, and continuing for a cycle of 8-16 weeks has been shown to enhance both dynamic and static balance in individuals with visual impairments.

背景:本荟萃分析旨在评估有氧运动对视力受损个体的平衡和活动能力的影响,并确定影响这些结果的潜在因素。方法:按照PRISMA指南进行系统评价。该研究的合格标准包括参与者人群中的视力障碍、视力障碍类型、有氧运动干预、对照试验、年龄、设计和结果。根据这七个问题提取数据,采用叙事综合的方法进行分析。对数据库的全面检索产生了1987篇文章,最终选择了14项随机对照试验,涉及685名参与者。结果:研究结果表明,有氧运动可以显著提高视力障碍个体的静态平衡能力[SMD = 1.23, 95%CI 0.80-1.66, p p = 0.03]。然而,活动性似乎没有明显改善[SMD = -0.49, 95% CI -1.06 ~ 0.09, p = 0.10]。通过亚组分析发现,运动频率、年龄、视力损害程度对静态平衡有显著影响。结论:每周进行3-6次有氧运动,每次持续30 - 60分钟,持续8-16周的周期,可以增强视力障碍患者的动态和静态平衡能力。
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引用次数: 0
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Disability and Rehabilitation
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