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Disability terminology: the use of "disability," "disorder," and "illness" in academic writing. 残疾术语:在学术写作中使用“残疾”、“紊乱”和“疾病”。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-11-16 DOI: 10.1080/09638288.2023.2280780
Jennifer Grandits, Alyssa Davis, Bradley Rikard, Angela Vatrano, Hannah Martin, Mary Anne Taylor

Purpose: The ways in which words are used to describe and discuss people with disabilities has long been an area of social concern. Previous research has demonstrated that language can overtly and subtly influence cognitions and perceptions of individuals, but there is less research on how language relates to perceptions of individuals with disabilities.

Materials and methods: A content analysis of 236 peer-reviewed articles was performed to explore differences in the frequency of the use of "disability," "disorder," and "illness" in academic articles related to eight common conditions: deafness, blindness, multiple sclerosis, quadriplegia, anxiety, depression, schizophrenia, and addiction.

Results: Results indicated that there were differences in how disability language was used by academic writers. Specifically, "disability" appeared in the writing more frequently in articles related to physical disabilities, "disorder" appeared most frequently in articles related to anxiety and depression, and "illness" appeared most frequently in articles related to schizophrenia.

Conclusions: This observed difference in frequency use could reflect differences in the context and meaning of the use of these conditions. Suggestions for future research are discussed.

目的:长期以来,词汇用来描述和讨论残疾人一直是社会关注的一个领域。先前的研究表明,语言可以明显而微妙地影响个体的认知和感知,但关于语言与残疾人感知之间的关系的研究较少。材料和方法:对236篇同行评议的文章进行内容分析,以探索与八种常见疾病相关的学术文章中“残疾”、“紊乱”和“疾病”使用频率的差异:耳聋、失明、多发性硬化症、四肢瘫痪、焦虑、抑郁、精神分裂症和成瘾。结果:研究结果表明,学术作家在残疾语言的使用上存在差异。具体来说,“残疾”在与身体残疾相关的文章中出现的频率更高,“紊乱”在与焦虑和抑郁相关的文章中出现的频率最高,“疾病”在与精神分裂症相关的文章中出现的频率最高。结论:观察到的使用频率的差异可能反映了这些条件使用的背景和意义的差异。最后对今后的研究提出了建议。
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引用次数: 0
Effectiveness of tele-rehabilitation after total hip replacement: a systematic review and meta-analysis of randomized controlled trials. 全髋关节置换术后远程康复的有效性:随机对照试验的系统回顾和荟萃分析。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-11-22 DOI: 10.1080/09638288.2023.2280070
Zheng Zhou, Xiang Zhou, Na Cui, Hongjie Huang, Fan Yang, Gang Yang, Dingge Liu, Kaiping Liu, Xin Zhang, Jianquan Wang

Purpose: To identify articles that evaluated the efficacy of tele-rehabilitation after total hip replacement and to provide a reference for clinical decision-making and continuous improvement of rehabilitation exercise intervention strategies for clinical medical staff.

Methods: Embase, PubMed, Web of Science, Medline, China National Knowledge Network and Google Scholar databases were searched for randomized controlled trials of tele-rehabilitation after total hip replacement from inception to March 4, 2023. The two researchers used the PEDro scale to assess the methodological quality of the included studies. Two researchers used the PEDro scale to assess the methodological quality of the included studies.

Results: Ten studies with 632 participants were analysed.Compared to face-to-face rehabilitation, Internet-based telerehabilitation showed better outcomes in Get-up and go test (SMD -0.54, 95% CI -0.79 to -0.29). telerehabilitation showed no significant difference in outcomes of other functional tests and functional questionnaires.

Conclusion: In this systematic review and meta-analysis, internet-based tele-rehabilitation and face-to-face rehabilitation had the same effect on patients after total hip replacement, and compliance was higher in the tele-rehabilitation group, but attention should be devoted to standardizing this form of rehabilitation to avoid adverse events. In addition, the number and quality of included studies in this study are limited, and the outcome indicators and intervention means have not been unified. More high-quality studies are needed to verify these conclusions to better evaluate the effectiveness and advantages of telerehabilitation.Implications for rehabilitationWith the development of science and technology, remote rehabilitation technology will be applied to various fields of rehabilitation, providing personalized and extensive rehabilitation services.The application of tele-rehabilitation technology to postoperative rehabilitation after total hip arthroplasty is feasible and can reduce the workload of healthcare professionals to a certain extent.This review evaluated the randomized controlled trials of telerehabilitation after total hip arthroplasty, and the results showed that the clinical efficacy of telerehabilitation after total hip arthroplasty was not inferior to that of traditional rehabilitation.

目的:收集评价全髋关节置换术后远程康复疗效的文章,为临床医务人员制定康复运动干预策略及持续改进提供参考。方法:检索Embase、PubMed、Web of Science、Medline、中国国家知识网、Google Scholar等数据库,检索自启动至2023年3月4日全髋关节置换术后远程康复的随机对照试验。两位研究者使用PEDro量表来评估纳入研究的方法学质量。两位研究者使用PEDro量表来评估纳入研究的方法学质量。结果:分析了10项研究,632名参与者。与面对面康复相比,基于网络的远程康复在起床和行走测试中表现出更好的效果(SMD -0.54, 95% CI -0.79 ~ -0.29)。远程康复组在其他功能测试和功能问卷结果上无显著差异。结论:在本系统综述和荟萃分析中,基于网络的远程康复与面对面康复对全髋关节置换术后患者的效果相同,远程康复组的依从性更高,但应注意规范这种形式的康复,避免不良事件的发生。此外,本研究纳入的研究数量和质量有限,结局指标和干预手段尚未统一。需要更多高质量的研究来验证这些结论,以更好地评估远程康复的有效性和优势。
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引用次数: 0
Reducing endocrine metabolic disease risk in adults with chronic spinal cord injury: strategic activities conducted by the Ontario-Quebec RIISC team. 降低慢性脊髓损伤成人的内分泌代谢性疾病风险:安大略-魁北克RIISC团队开展的战略活动。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-11-29 DOI: 10.1080/09638288.2023.2284223
Beverley Catharine Craven, Wagner Henrique Souza, Susan Jaglal, Jenna Gibbs, Matheus Joner Wiest, Shane N Sweet, Peter Athanasopoulos, Marie-Eve Lamontagne, Lynn Boag, Eleni Patsakos, Dalton Wolfe, Audrey Hicks, Désirée B Maltais, Krista Lynn Best, Dany Gagnon

Purpose: The Rehabilitation Interventions for Individuals with a Spinal Cord Injury in the Community (RIISC) team aimed to develop and evaluate innovative rehabilitation interventions to identify endocrine metabolic disease (EMD) risk, intending to reduce the frequency and severity of EMD related morbidity and mortality among adults living with chronic spinal cord injury or disease (SCI/D).

Materials and methods: An interprovincial team from Ontario and Quebec reviewed available EMD literature and evidence syntheses and completed an inventory of health services, policies and practices in SCI/D care. The review outcomes were combined with expert opinion to create an EMD risk model to inform health service transformation.

Results: EMD risk and mortality are highly prevalent among adults with chronic SCI/D. In stark contrast, few rehabilitation interventions target EMD outcomes. The modelled solution proposes: 1) abandoning single-disease paradigms and examining a holistic perspective of the individual's EMD risk, and 2) developing and disseminating practice-based research approaches in outpatient community settings.

Conclusions: RIISC model adoption could accelerate EMD care optimization, and ultimately inform the design of large-scale longitudinal pragmatic trials likely to improve health outcomes. Linking the RIISC team activities to economic evaluations and policy deliverables will strengthen the relevance and impact among policymakers, health care providers and patients.

目的:社区脊髓损伤个体康复干预(RIISC)团队旨在开发和评估创新康复干预措施,以识别内分泌代谢性疾病(EMD)风险,旨在降低慢性脊髓损伤或疾病(SCI/D)成人中EMD相关发病率和死亡率的频率和严重程度。材料和方法:来自安大略省和魁北克省的一个跨省团队审查了现有的EMD文献和证据综合,并完成了SCI/D护理的卫生服务、政策和实践清单。将审查结果与专家意见相结合,创建EMD风险模型,为卫生服务转型提供信息。结果:EMD风险和死亡率在慢性SCI/D成人中非常普遍。与此形成鲜明对比的是,很少有康复干预措施针对EMD结果。模型解决方案建议:1)放弃单一疾病范例,从整体角度审视个人EMD风险;2)在门诊社区环境中发展和传播基于实践的研究方法。结论:采用RIISC模型可以加速EMD护理优化,并最终为可能改善健康结果的大规模纵向实用试验的设计提供信息。将RIISC小组活动与经济评估和政策成果联系起来,将加强决策者、卫生保健提供者和患者之间的相关性和影响。
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引用次数: 0
Validity and reliability of selective control of upper extremity scale (SCUES) in patients with chronic stroke. 慢性中风患者上肢选择性控制量表(SCUES)的有效性和可靠性。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-12-23 DOI: 10.1080/09638288.2023.2291551
Didem Boz Sönmez, Esra Giray, Arzu Atıcı, Özge Gülsüm Illeez, Pınar Akpınar, Feyza Ünlü Özkan, Ilknur Aktaş

Purpose: The aim of this study is to investigate the validity and reliability of the Selective Control of Upper Extremity Scale (SCUES) in patients with stroke.

Materials and methods: Forty-two patients with stroke aged 18-75 years, were included in the study. Patients were video-recorded while SCUES was administered. The videos were scored to determine the intrarater and inter-rater reliability. Fugl Meyer Assessment of Upper Extremity (FMA-UE), Box and Block test (BBT) and Brunnstrom Stages of Motor Recovery were measured to evaluate validity of SCUES. Spearman correlation analysis was used to assess the validity of SCUES. Intraclass correlation coefficient (ICC), Kappa (κ) and weighted Kappa (κw) were calculated to determine intrarater and inter-rater reliability.

Results: There were significant positive high correlations between SCUES and FMA-UE and BBT and Brunnstrom upper extremity proximal and distal values (rho = 0.944, p = 0.01; rho = 0,875, p = 0.01; rho = 0.84, p = 0.01, rho = 0.82, p = 0.01; respectively) showing validity of SCUES. The ICC value of inter-rater reliability of SCUES was 0,99 (%95 CI: 0,989-0,997, p = 0,001) showing excellent reliability. κ and κ w values for inter-rater and intrarater reliability of individual SCUES items were above 0.7 indicating excellent reliability. ICC of SCUES and FMA-UE indicated excellent intrarater reliability (ICC = 0,99; %95 CI: 0,989-0,997, p = 0,001; ICC = 0.943; %95 CI: 0.9-0.97, p = 0,0001, consecutively).

Conclusions: SCUES showed similar validity and reliability with FMA-UE and SCUES can be used in the evaluation of upper extremity selective motor control in patients with stroke.

目的:本研究旨在调查脑卒中患者上肢选择性控制量表(SCUES)的有效性和可靠性:研究对象包括 42 名中风患者,年龄在 18-75 岁之间。在对患者进行 SCUES 施测时对其进行录像。对视频进行评分,以确定评分者内部和评分者之间的可靠性。为了评估 SCUES 的有效性,对 Fugl Meyer 上肢评估 (FMA-UE)、Box and Block 测试 (BBT) 和 Brunnstrom 运动恢复阶段进行了测量。斯皮尔曼相关分析用于评估 SCUES 的有效性。计算了类内相关系数(ICC)、卡帕(κ)和加权卡帕(κw),以确定评分者内部和评分者之间的可靠性:SCUES与FMA-UE、BBT和Brunnstrom上肢近端和远端值之间存在明显的正相关(分别为rho = 0.944,p = 0.01;rho = 0.875,p = 0.01;rho = 0.84,p = 0.01,rho = 0.82,p = 0.01),显示了SCUES的有效性。SCUES 的评分者间信度 ICC 值为 0.99 (%95 CI: 0.989-0.997, p = 0.001),显示出极佳的信度。SCUES 单个项目的评分者间和评分者内部信度 κ 和 κ w 值均高于 0.7,显示出极佳的信度。SCUES 和 FMA-UE 的 ICC 显示了极佳的内部信度(ICC = 0,99;%95 CI:0,989-0,997,p = 0,001;ICC = 0.943;%95 CI:0.9-0.97,p = 0,0001,连续):SCUES与FMA-UE具有相似的有效性和可靠性,可用于评估脑卒中患者的上肢选择性运动控制能力。
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引用次数: 0
The development of the Life Participation Approach to Aphasia knowledge scale and contribution to its validation. 失语症生活参与法知识量表的开发及其验证工作。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 DOI: 10.1080/09638288.2024.2403726
Fatimah Hani Hassan, Brooke Hallowell

Purpose: The Life Participation Approach to Aphasia (LPAA) supports the notion of personalized intervention for individuals who are affected by aphasia. However, knowledge about LPAA among speech-language therapists (SLTs), professionals who support the communication rehabilitation of people with aphasia, is unknown. SLTs with an established understanding of LPAA may be more likely to apply the approach in their practices. However, there is a lack of valid and reliable tools to measure SLTs' knowledge about LPAA. We developed and evaluated the validity and reliability of a new tool to assess SLTs' knowledge of the LPAA.

Materials and methods: An initial scale was constructed and validated by a panel of LPAA experts. The scale was revised based on the recommendations from the panel. A total of 59 SLT participants completed the revised version on the Qualtrics Online Survey Platform.

Results: The scale achieved a Cronbach's alpha value of 0.73. The deletion of two items increased the alpha value to 0.80 and raised the total accuracy score.

Conclusions: The LPAA Knowledge Scale is a valid tool with good internal consistency to measure the knowledge of SLTs about the LPAA. This scale may be used to evaluate the effectiveness of LPAA training for SLTs, as well as a self-assessment tool for SLTs to reflect on the application of LPAA in their practices.

目的:"失语症患者生活参与法"(LPAA)支持为失语症患者提供个性化干预的理念。然而,语言治疗师(SLTs)--为失语症患者的交流康复提供支持的专业人员--对 LPAA 的了解尚不清楚。如果言语治疗师对 LPAA 有一定的了解,他们可能会更愿意在实践中应用这种方法。然而,目前还缺乏有效可靠的工具来衡量辅助治疗师对 LPAA 的了解程度。我们开发并评估了一种新工具的有效性和可靠性,以评估 SLTs 对 LPAA 的了解程度:由 LPAA 专家小组构建并验证了初始量表。根据专家小组的建议对量表进行了修订。共有 59 名 SLT 参与者在 Qualtrics 在线调查平台上完成了修订版:量表的 Cronbach's alpha 值为 0.73。结果:量表的 Cronbach's Alpha 值为 0.73,删除两个项目后,Alpha 值增至 0.80,并提高了准确性总分:LPAA 知识量表是一种有效的工具,具有良好的内部一致性,可用于测量辅助医务人员对 LPAA 的了解程度。该量表可用于评估 SLT 的 LPAA 培训效果,也可作为 SLT 的自我评估工具,用于反思 LPAA 在其实践中的应用。
{"title":"The development of the Life Participation Approach to Aphasia knowledge scale and contribution to its validation.","authors":"Fatimah Hani Hassan, Brooke Hallowell","doi":"10.1080/09638288.2024.2403726","DOIUrl":"https://doi.org/10.1080/09638288.2024.2403726","url":null,"abstract":"<p><strong>Purpose: </strong>The Life Participation Approach to Aphasia (LPAA) supports the notion of personalized intervention for individuals who are affected by aphasia. However, knowledge about LPAA among speech-language therapists (SLTs), professionals who support the communication rehabilitation of people with aphasia, is unknown. SLTs with an established understanding of LPAA may be more likely to apply the approach in their practices. However, there is a lack of valid and reliable tools to measure SLTs' knowledge about LPAA. We developed and evaluated the validity and reliability of a new tool to assess SLTs' knowledge of the LPAA.</p><p><strong>Materials and methods: </strong>An initial scale was constructed and validated by a panel of LPAA experts. The scale was revised based on the recommendations from the panel. A total of 59 SLT participants completed the revised version on the Qualtrics Online Survey Platform.</p><p><strong>Results: </strong>The scale achieved a Cronbach's alpha value of 0.73. The deletion of two items increased the alpha value to 0.80 and raised the total accuracy score.</p><p><strong>Conclusions: </strong>The LPAA Knowledge Scale is a valid tool with good internal consistency to measure the knowledge of SLTs about the LPAA. This scale may be used to evaluate the effectiveness of LPAA training for SLTs, as well as a self-assessment tool for SLTs to reflect on the application of LPAA in their practices.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142331687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intensified acute in-hospital physiotherapy for patients after hip fracture surgery: a pragmatic, randomized, controlled feasibility trial. 髋部骨折术后患者强化急性住院物理治疗:一项实用、随机、对照的可行性试验。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-12-01 DOI: 10.1080/09638288.2023.2288672
Camilla Kampp Zilmer, Morten Tange Kristensen, S Peter Magnusson, Inger Birgitte Bährentz, Thomas Giver Jensen, Signe Østergaard Zoffmann, Henrik Palm, Theresa Bieler

Purpose: Intensified acute in-hospital physiotherapy (IP) after hip fracture (HF) may enhance patient's ability to regain basic mobility at discharge. The primary objective was to assess the feasibility of IP. Secondary to estimate the effect of IP on regained basic mobility at discharge.

Materials and methods: In a pragmatic, randomized, unblinded feasibility trial, 60 patients (mean age 79 years, 41 women) with HF and an independent pre-fracture basic mobility level were randomized (2:1) to IP with two daily sessions on weekdays focusing on functional training and weight-bearing activities (n = 40) versus usual care (UC) physiotherapy once daily (n = 20). Feasibility outcomes included physiotherapy completion rates, reasons for non-successful completion, and adverse events. The primary effect outcome was recovery of basic mobility (Cumulated Ambulation Score (CAS)).

Results: Eighty-two percent of the sessions in the IP group were successfully- or partially completed versus 94% of the sessions in the UC group. No adverse events occurred. The main reason for not completing physiotherapy was fatigue. At discharge (median 7 days), 50% in the IP group had regained their pre-fracture basic mobility level (CAS = 6) versus 16% in the UC group; odds ratio = 5.33, 95%CI [1.3;21.5].

Conclusions: IP seems feasible for patients after HF surgery, and it may enhance recovery. Fatigue was the primary obstacle to completing IP.

目的:髋部骨折(HF)后强化急性住院物理治疗(IP)可提高患者出院时恢复基本活动能力。主要目的是评估知识产权的可行性。其次,估计IP对放电时恢复基本活动能力的影响。材料和方法:在一项实用的、随机的、非盲的可行性试验中,60名HF患者(平均年龄79岁,41名女性)和独立的骨折前基本活动水平被随机(2:1)分配到每天两次的IP,在工作日集中于功能训练和负重活动(n = 40)和每天一次的常规护理(UC)物理治疗(n = 20)。可行性结局包括物理治疗完成率、未成功完成的原因和不良事件。主要疗效指标为基本活动能力恢复(累积活动评分(CAS))。结果:IP组82%的会话成功或部分完成,而UC组为94%。无不良事件发生。未完成物理治疗的主要原因是疲劳。出院时(中位7天),50%的IP组恢复了骨折前的基本活动能力水平(CAS = 6),而16%的UC组;优势比= 5.33,95%CI[1.3;21.5]。结论:对心衰手术后患者进行IP治疗是可行的,并可促进康复。疲劳是完成IP的主要障碍。
{"title":"Intensified acute in-hospital physiotherapy for patients after hip fracture surgery: a pragmatic, randomized, controlled feasibility trial.","authors":"Camilla Kampp Zilmer, Morten Tange Kristensen, S Peter Magnusson, Inger Birgitte Bährentz, Thomas Giver Jensen, Signe Østergaard Zoffmann, Henrik Palm, Theresa Bieler","doi":"10.1080/09638288.2023.2288672","DOIUrl":"10.1080/09638288.2023.2288672","url":null,"abstract":"<p><strong>Purpose: </strong>Intensified acute in-hospital physiotherapy (IP) after hip fracture (HF) may enhance patient's ability to regain basic mobility at discharge. The primary objective was to assess the feasibility of IP. Secondary to estimate the effect of IP on regained basic mobility at discharge.</p><p><strong>Materials and methods: </strong>In a pragmatic, randomized, unblinded feasibility trial, 60 patients (mean age 79 years, 41 women) with HF and an independent pre-fracture basic mobility level were randomized (2:1) to IP with two daily sessions on weekdays focusing on functional training and weight-bearing activities (<i>n</i> = 40) versus usual care (UC) physiotherapy once daily (<i>n</i> = 20). Feasibility outcomes included physiotherapy completion rates, reasons for non-successful completion, and adverse events. The primary effect outcome was recovery of basic mobility (Cumulated Ambulation Score (CAS)).</p><p><strong>Results: </strong>Eighty-two percent of the sessions in the IP group were successfully- or partially completed versus 94% of the sessions in the UC group. No adverse events occurred. The main reason for not completing physiotherapy was fatigue. At discharge (median 7 days), 50% in the IP group had regained their pre-fracture basic mobility level (CAS = 6) versus 16% in the UC group; odds ratio = 5.33, 95%CI [1.3;21.5].</p><p><strong>Conclusions: </strong>IP seems feasible for patients after HF surgery, and it may enhance recovery. Fatigue was the primary obstacle to completing IP.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138464132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers and facilitators to outcome measurement and treatment practices in aphasia rehabilitation in the USA: a mixed methods approach using the Theoretical Domains Framework. 美国失语症康复成果测量和治疗实践的障碍和促进因素:使用理论领域框架的混合方法。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-12-05 DOI: 10.1080/09638288.2023.2288221
Carla Tierney-Hendricks, Megan E Schliep, Sofia Vallila-Rohter

Purpose: To identify clinician-perceived barriers and facilitators to the delivery of outcome measurement and evidence-based treatment practices and integration of these practices in aphasia rehabilitation.

Materials and methods: Using a convergent mixed methods design, aphasia clinicians (n = 87) across care settings in the United States completed an online survey designed within the Theoretical Domains Framework (TDF). Participants responded to open-ended questions and rated Likert scale statements. Qualitative data were analyzed using content analysis and quantitative data were summarized using descriptive statistics.

Results: Factors related to the TDF domain of "environmental context and resources" (priority and productivity demands; characteristics of resources) were cited as primary barriers in 70% of qualitative responses for both outcome and treatment practices and were consistent with Likert rating statements. Facilitators were associated with TDF domains of "memory, attention, decision-making" (decision-making processes), "knowledge" (awareness of evidence) and "social influences" (client and caregiver preferences).

Conclusions: Organizational-level factors and the misalignment of the research evidence with clinical needs are barriers to delivering evidence-based care in aphasia rehabilitation. Theoretically informed strategies such as establishing organizational infrastructure for practice change, developing clinically relevant evidence through research-practice partnerships, and implementing algorithms to support clinical decision-making can address barriers and leverage facilitators.

目的:确定临床医生在提供结果测量和循证治疗实践以及在失语症康复中整合这些实践时所遇到的障碍和促进因素:美国不同医疗机构的失语症临床医生(n = 87)采用聚合混合方法设计,完成了一项根据理论领域框架(TDF)设计的在线调查。参与者回答了开放式问题,并对李克特量表陈述进行了评分。定性数据采用内容分析法进行分析,定量数据采用描述性统计法进行总结:在 70% 的定性回答中,与 TDF "环境背景和资源 "领域相关的因素(优先级和生产率要求;资源特点)被认为是结果和治疗方法的主要障碍,并且与李克特量表陈述一致。促进因素与 TDF 的 "记忆、注意力、决策"(决策过程)、"知识"(对证据的认识)和 "社会影响"(客户和护理人员的偏好)相关:结论:组织层面的因素以及研究证据与临床需求的错位是在失语症康复中提供循证护理的障碍。从理论上讲,建立促进实践变革的组织基础设施、通过研究与实践合作开发临床相关证据、实施支持临床决策的算法等策略可以解决障碍并发挥促进作用。
{"title":"Barriers and facilitators to outcome measurement and treatment practices in aphasia rehabilitation in the USA: a mixed methods approach using the Theoretical Domains Framework.","authors":"Carla Tierney-Hendricks, Megan E Schliep, Sofia Vallila-Rohter","doi":"10.1080/09638288.2023.2288221","DOIUrl":"10.1080/09638288.2023.2288221","url":null,"abstract":"<p><strong>Purpose: </strong>To identify clinician-perceived barriers and facilitators to the delivery of outcome measurement and evidence-based treatment practices and integration of these practices in aphasia rehabilitation.</p><p><strong>Materials and methods: </strong>Using a convergent mixed methods design, aphasia clinicians (<i>n</i> = 87) across care settings in the United States completed an online survey designed within the Theoretical Domains Framework (TDF). Participants responded to open-ended questions and rated Likert scale statements. Qualitative data were analyzed using content analysis and quantitative data were summarized using descriptive statistics.</p><p><strong>Results: </strong>Factors related to the TDF domain of \"environmental context and resources\" (priority and productivity demands; characteristics of resources) were cited as primary barriers in 70% of qualitative responses for both outcome and treatment practices and were consistent with Likert rating statements. Facilitators were associated with TDF domains of \"memory, attention, decision-making\" (decision-making processes), \"knowledge\" (awareness of evidence) and \"social influences\" (client and caregiver preferences).</p><p><strong>Conclusions: </strong>Organizational-level factors and the misalignment of the research evidence with clinical needs are barriers to delivering evidence-based care in aphasia rehabilitation. Theoretically informed strategies such as establishing organizational infrastructure for practice change, developing clinically relevant evidence through research-practice partnerships, and implementing algorithms to support clinical decision-making can address barriers and leverage facilitators.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138488929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
ICF classification of therapeutic goals for outpatient episodes of neurorehabilitation in post-stroke and Parkinson disease. 脑卒中和帕金森病患者门诊神经康复治疗目标的ICF分类。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-12-07 DOI: 10.1080/09638288.2023.2290201
Marghuretta D Bland, Carey L Holleran, Caitlin A Newman, Meghan Fahey, Timothy J Nordahl, Tamara R DeAngelis, Teresa D Ellis, Darcy S Reisman, Gammon M Earhart, Catherine E Lang

Purpose: To understand therapeutic priorities, a secondary data analysis on a retrospective cohort was conducted to classify rehabilitation goals according to the International Classification of Functioning, Disability, and Health (ICF).

Materials and methods: Therapeutic goals from an initial outpatient physical or occupational therapy evaluation for patients post-stroke or with Parkinson disease, were classified into Level 1 of the ICF. Goals in the Activity and Participation component were further sub-classified as activity capacity or activity performance (self-report or direct) in daily life.

Results: 776 goals across 104 participants were classified into Level 1 of the ICF. The majority, 73% (563/776) were classified as Activity and Participation, 20% (155/776) as Body Function and 2% (17/776) as Environmental Factors. Fifty-two percent (400/776) of all goals were classified as activity capacity and 21% (163/776) as activity performance in daily life, with 21% (160/776) of goals measuring self-report activity performance in daily life and less than 1% (3/776) of goals measuring direct activity performance in daily life.

Conclusions: While the majority of therapeutic goals were classified into the Activity and Participation component, less than 1% of goals measured direct activity performance in daily life. If people seek outpatient rehabilitation to improve functioning in their real-world environment, therapeutic goal setting should reflect this.

目的:为了了解治疗优先级,对回顾性队列进行二次数据分析,根据国际功能、残疾和健康分类(ICF)对康复目标进行分类。材料和方法:对卒中后或帕金森病患者进行初步门诊物理或职业治疗评估,治疗目标被划分为ICF 1级。活动和参与部分的目标进一步细分为日常生活中的活动能力或活动表现(自我报告或直接)。结果:104名参与者的776个目标被划分为ICF的一级。73%(563/776)被分类为活动和参与,20%(155/776)被分类为身体功能,2%(17/776)被分类为环境因素。所有目标中有52%(400/776)被归类为活动能力,21%(163/776)被归类为日常生活中的活动表现,其中21%(160/776)的目标测量日常生活中的自我报告活动表现,不到1%(3/776)的目标测量日常生活中的直接活动表现。结论:虽然大多数治疗目标被归类为活动和参与部分,但不到1%的目标测量了日常生活中的直接活动表现。如果人们寻求门诊康复来改善他们在现实环境中的功能,治疗目标的设定应该反映这一点。
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引用次数: 0
Translating scientific recommendations into reality: a feasibility study using group-based high-intensity functional exercise training in adolescents with cerebral palsy. 将科学建议转化为现实:基于小组的高强度功能性运动训练在青少年脑瘫患者中的可行性研究。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-12-02 DOI: 10.1080/09638288.2023.2290204
Alice Minghetti, Michèle Widmer, Elke Viehweger, Ralf Roth, Ramon Gysin, Martin Keller

Purpose: To examine the feasibility and effects of a functional high-intensity exercise intervention performed in a group-setting on functionality, cardiovascular health and physical performance in adolescents with cerebral palsy (CP).

Methods: Ten adolescents with a diagnosis of CP (2 females; 16.6 ± 3.4 years; GMFCS: I-II) participated in a 12-week training intervention, containing progressive resistance training using free weights and high-intensity workouts twice a week. The six-minute walking test, arterial stiffness and physical performance (strength and power tests) were measured before and after the intervention.

Results: No adverse events were reported. We measured small increases in the six-minute walking test (Δ = 28.8 m, 95% CI [-1.78;52.7]; g = 0.34 [-0.04;0.72]) and a small reduction in arterial stiffness (Δ = -4.65% [-10.90;1.25]; g = -0.46 [-1.36;0.21]). All measures of physical performance increased (0.24 ≤ g ≤ 0.88).

Conclusion: Functional training with free weights in high-functioning adolescents with CP is safe and effective in increasing parameters of physical performance and cardiovascular health. Positively influenced indicators of everyday independence (i.e. strength parameters) showed a transfer into movements of daily life. Concerns about adverse events through high-intensity training in adolescents with CP appear unjustified when training is performed progressively, following basic training principles.

目的:探讨功能性高强度运动干预对青少年脑瘫(CP)功能、心血管健康和身体表现的可行性和效果。方法:诊断为CP的青少年10例(女性2例;16.6±3.4岁;GMFCS: I-II)参加了一项为期12周的训练干预,包括使用自由重量进行渐进式阻力训练和每周两次的高强度训练。干预前后分别测量6分钟步行测试、动脉僵硬度和身体性能(强度和功率测试)。结果:无不良事件报告。我们在6分钟步行测试中测量到微小的增加(Δ = 28.8 m, 95% CI [-1.78;52.7];G = 0.34[-0.04;0.72]),动脉僵硬度略有降低(Δ = -4.65% [-10.90;1.25];G = -0.46[-1.36;0.21])。各项体能指标均有所提高(0.24≤g≤0.88)。结论:自由力量训练对高功能青少年CP患者的身体机能和心血管健康指标的提高是安全有效的。受到积极影响的日常独立性指标(即力量参数)显示了向日常生活动作的转移。当训练按照基本训练原则逐步进行时,对CP青少年高强度训练中不良事件的担忧似乎是不合理的。
{"title":"Translating scientific recommendations into reality: a feasibility study using group-based high-intensity functional exercise training in adolescents with cerebral palsy.","authors":"Alice Minghetti, Michèle Widmer, Elke Viehweger, Ralf Roth, Ramon Gysin, Martin Keller","doi":"10.1080/09638288.2023.2290204","DOIUrl":"10.1080/09638288.2023.2290204","url":null,"abstract":"<p><strong>Purpose: </strong>To examine the feasibility and effects of a functional high-intensity exercise intervention performed in a group-setting on functionality, cardiovascular health and physical performance in adolescents with cerebral palsy (CP).</p><p><strong>Methods: </strong>Ten adolescents with a diagnosis of CP (2 females; 16.6 ± 3.4 years; GMFCS: I-II) participated in a 12-week training intervention, containing progressive resistance training using free weights and high-intensity workouts twice a week. The six-minute walking test, arterial stiffness and physical performance (strength and power tests) were measured before and after the intervention.</p><p><strong>Results: </strong>No adverse events were reported. We measured small increases in the six-minute walking test (Δ = 28.8 m, 95% CI [-1.78;52.7]; <i>g</i> = 0.34 [-0.04;0.72]) and a small reduction in arterial stiffness (Δ = -4.65% [-10.90;1.25]; <i>g</i> = -0.46 [-1.36;0.21]). All measures of physical performance increased (0.24 ≤ <i>g</i> ≤ 0.88).</p><p><strong>Conclusion: </strong>Functional training with free weights in high-functioning adolescents with CP is safe and effective in increasing parameters of physical performance and cardiovascular health. Positively influenced indicators of everyday independence (i.e. strength parameters) showed a transfer into movements of daily life. Concerns about adverse events through high-intensity training in adolescents with CP appear unjustified when training is performed progressively, following basic training principles.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138479134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Duration, frequency, and factors related to lower extremity prosthesis use: systematic review and meta-analysis. 下肢假体使用的持续时间、频率和相关因素:系统综述和荟萃分析。
IF 2.1 4区 医学 Q1 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-11-05 DOI: 10.1080/09638288.2023.2276838
Roland Paquette, M Jason Highsmith, Giselle Carnaby, Timothy Reistetter, Samuel Phillips, Owen Hill

Purpose: A systematic review and meta-analysis investigating the duration and frequency of lower extremity prosthesis use and what factors were associated with changes in their use.

Materials and methods: A search of PubMed, CINAHL, and Scopus over 20 years revealed 2409 articles. After review, 29 studies remained, representing 4814 participants with lower limb loss. Quality, funding, publication, and quantitative analyses were addressed.

Results: The mean prosthesis use was 9.6 (5.3) hours/day and 6.4 (1.9) days/week. Distal amputation sites averaged more hours/day of prostheses use than proximal amputations (13.2 [3.2] vs. 10.8 [5.0], p < .001). After hemipelvectomy or hip dislocations, average prostheses use was less hours/day (6.0 [4.7]) than after transfemoral (12.9 [4.8]) or transtibial amputations (14.0 [4.5]) (p < .05). Pooled effects revealed an association between comorbidities and abandonment (OR 0.35, p = .03). The data supported six empirical evidence statements concerning age, sex, social support, amputation proximity, balance, skin condition, comorbidities, pain, falls, and fitness in association with changes in prosthesis utilization.

Conclusions: The study provided systematic data on lower-extremity prosthesis use, thus helping to inform clinical decision-making and patient education. It also elucidated a path for future studies focused on modifiable factors related to prosthesis use and related outcomes.Implications for rehabilitationLower limb loss can trigger costly and debilitating sequela, which could be mitigated by increased prosthesis use and functionality, but there is no consensus on how often prostheses are being used and what affects changes in their use.When counseling patients on what they can expect after a lower extremity amputation and to set goals, the aggregated means of 9.6 (5.3) hours per day and 6.4 (1.9) days per week can be informative.Individuals who use a lower extremity prosthesis or may have to use one in the future can increase their prosthesis use and mobility by limiting further health deterioration.Rehabilitative care involving the multidisciplinary prioritization of proper socket fit, fitness training, gait training, and social support is associated with increased prosthetic device usage.

目的:对下肢假体使用的持续时间和频率以及与使用变化相关的因素进行系统综述和荟萃分析。材料和方法:检索PubMed、CINAHL和Scopus超过20年的文章,发现2409篇。经过审查,仍有29项研究,代表4814名下肢损伤参与者。讨论了质量、资金、出版和定量分析。结果:假体的平均使用时间为9.6(5.3)小时/天和6.4(1.9)天/周。远端截肢部位平均每天使用假肢的时间比近端截肢多(13.2[3.2]对10.8[5.0],p p=.03)。该数据支持了六项经验证据陈述,涉及年龄、性别、社会支持、截肢距离、平衡、皮肤状况、合并症、疼痛、跌倒和与假肢使用变化相关的健康状况。结论:该研究提供了下肢假体使用的系统数据,有助于为临床决策和患者教育提供信息。它还阐明了未来研究的途径,重点是与假体使用和相关结果相关的可改变因素。对康复的影响下肢缺失可能会引发代价高昂且使人衰弱的后遗症,这可以通过增加假肢的使用和功能来缓解,但对于假肢的使用频率以及影响其使用变化的因素,目前还没有达成共识。当咨询患者下肢截肢后的预期情况并设定目标时,每天9.6(5.3)小时和每周6.4(1.9)天的总平均数可以提供信息。使用下肢假肢或将来可能不得不使用假肢的个人可以通过限制进一步的健康恶化来增加假肢的使用和灵活性。康复护理涉及多学科的优先事项,包括正确的插座安装、健身训练、步态训练和社会支持,这与假肢装置的使用增加有关。
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Disability and Rehabilitation
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