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The prognostic nutritional index and a multifactorial nomogram for predicting early stoma-related complications after prophylactic ileostomy: A retrospective cohort study 一项回顾性队列研究:预测预防性回肠造口术后早期造口相关并发症的预后营养指数和多因素nomogram。
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-24 DOI: 10.1016/j.ejon.2025.103086
Xiao Lin , Yafei Zhang , Yuqin Wang , Wenjing Yan , Jing Bian , Xinrong Pei , Yan Zhang , Xia Sun

Purpose

To evaluate the predictive value of the Prognostic Nutritional Index (PNI) and multiple factors for early stoma-related complications in patients undergoing prophylactic ileostomy.

Methods

A retrospective analysis was conducted in a cohort of 229 patients who underwent prophylactic ileostomy. The optimal cut-off value of the PNI was determined using receiver operating characteristic (ROC) curve analysis. Based on this threshold, patients were stratified into a low nutritional risk group (PNI >45.55, n = 122) and a high nutritional risk group (PNI ≤45.55, n = 107). Univariate and multivariate binary logistic regression analyses were conducted to identify factors associated with stoma-related complications. A predictive nomogram was subsequently developed and validated. An ROC curve was constructed for the nomogram model, and its predictive performance was compared with that of the PNI-alone model.

Results

The incidence of early stoma-related complications following prophylactic ileostomy was 47.2 %. Multivariate analysis identified neoadjuvant therapy, absence of preoperative stoma site marking, stoma height < 2cm, and a low PNI as independent risk factors. The nomogram demonstrated excellent predictive performance, with an area under the curve (AUC) of 0.808 (95 % CI: 0.751–0.865), compared to the PNI-alone model (AUC = 0.748; P = 0.007). Internal validation confirmed good calibration, with the calibration curve showing close agreement with the ideal reference.

Conclusion

The developed nomogram outperforms the PNI-alone model in predicting early stoma-related complications, demonstrating strong discrimination, calibration, and clinical utility. It enables rapid perioperative risk quantification, aids in the early identification of high-risk patients, and facilitates targeted interventions to improve outcomes.
目的:评价预后营养指数(PNI)及多因素对预防性回肠造口术患者早期造口相关并发症的预测价值。方法:对229例接受预防性回肠造口术的患者进行回顾性分析。采用受试者工作特征(ROC)曲线分析确定PNI的最佳临界值。根据该阈值将患者分为低营养风险组(PNI bb0 45.55, n = 122)和高营养风险组(PNI≤45.55,n = 107)。进行单因素和多因素二元logistic回归分析,以确定与造口相关并发症相关的因素。随后开发并验证了预测图。对nomogram模型构建ROC曲线,并将其预测性能与单独的pni模型进行比较。结果:预防性回肠造口术后早期造口相关并发症发生率为47.2%。多因素分析发现,新辅助治疗、术前没有造口标记、造口高度< 2cm、低PNI是独立的危险因素。与单独的pni模型(AUC = 0.748; P = 0.007)相比,nomogram具有出色的预测性能,曲线下面积(AUC)为0.808 (95% CI: 0.751-0.865)。内部验证证实了良好的校准,校准曲线与理想参考值非常吻合。结论:开发的nomogram在预测早期造口相关并发症方面优于单独的pni模型,具有很强的辨别性、校准性和临床实用性。它能够快速量化围手术期风险,有助于早期识别高危患者,并促进有针对性的干预措施以改善预后。
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引用次数: 0
How do healthcare providers adapt to AYA–parent dynamics when supporting adolescents and young adults (AYA) with cancer? A qualitative study 在支持患有癌症的青少年和年轻人(AYA)时,医疗保健提供者如何适应AYA -家长动态?定性研究
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-23 DOI: 10.1016/j.ejon.2025.103085
Cassandra Patinet , Isabelle Aujoulat , Karl-Léo Schwering , Manon Fontaine , Anne-Laure Sébert , Cécile Perrier , Nicolas Boissel , Elise Ricadat

Purpose

This paper aims to better understand the challenges faced by oncology teams in dedicated adolescent and young adult (AYA) units as they strive to involve both patients and their parents, seeking a balance between patient-centered and family-centered care. Specifically, it examines the dynamics between AYAs, their parents, and healthcare providers (HCPs) during prolonged hospitalizations.

Methods

Conducted between 2018 and 2021 in a dedicated AYA hematology unit in Paris, the study included 10 in-depth individual interviews, research observations, and focus groups. Data were analyzed inductively according to Grounded Theory principles.

Results

Rather than combining patient-centered and family-centered care, HCPs tend to adopt an “AYA-parent dyad-centric” model of care. These results highlight the importance of understanding and assessing the unique dyadic dynamics between AYAs and their parents to effectively support AYA's psychosocial needs, particularly in fostering their autonomy process.

Conclusion

Our findings suggest that a dyad-centered model of care, one that allows the involvement of AYAs and their parents as a dyad, enables a better understanding of and adaptation to the family dynamics at play, leading to more tailored and effective healthcare management.
目的:本文旨在更好地了解青少年和年轻人(AYA)专科肿瘤团队所面临的挑战,因为他们努力让患者和他们的父母都参与其中,寻求以患者为中心和以家庭为中心的护理之间的平衡。具体地说,它检查了长期住院期间AYAs,他们的父母和医疗保健提供者(HCPs)之间的动态。该研究于2018年至2021年在巴黎的一个专门的AYA血液学单位进行,包括10次深入的个人访谈、研究观察和焦点小组。根据扎根理论原理对数据进行归纳分析。结果HCPs倾向于采用“以患者为中心和以家庭为中心”的护理模式,而不是将以患者为中心和以家庭为中心相结合。这些结果强调了理解和评估青少年和父母之间独特的二元动态的重要性,以有效地支持青少年的社会心理需求,特别是在培养他们的自主过程中。结论:我们的研究结果表明,一个以双元为中心的护理模式,一个允许双元儿童及其父母参与的模式,可以更好地理解和适应家庭动态,从而实现更有针对性和更有效的医疗保健管理。
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引用次数: 0
Exploring young women's experiences throughout the journey of hormone-sensitive breast cancer: A qualitative secondary analysis 探索年轻女性在激素敏感性乳腺癌过程中的经历:一项定性的二次分析。
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-23 DOI: 10.1016/j.ejon.2025.103089
Madeleine Zackrisson , Emelie Blomqvist , Roshan Tofighi , Margareta Haag , Cecilia Ungerstedt , Axel Wolf , Karin Ahlberg

Purpose

To explore young women's experiences during the pre-, peri-, and post-diagnostic phases of hormone-sensitive breast cancer and survivorship.

Method

A descriptive qualitative secondary analysis was conducted with ten women aged 28–39, diagnosed within five years and recruited via two national Swedish patient organizations. Semi-structured interviews were conducted virtually or by phone, recorded, and transcribed verbatim. Data were analysed inductively using qualitative content analysis.

Results

The analysis revealed one overarching theme, Navigating Uncertainty in the Journey Through Breast Cancer, capturing young women's experiences across diagnosis, treatment, and survivorship. Five descriptive categories illustrated key aspects of this journey: Experiences of Neglect While Seeking Care for Breast Cancer Symptoms; The Lack of Age-Specific Support in Healthcare; Seeking Knowledge, Regaining Control, and Developing Coping Strategies; Balancing Parenthood and Cancer Treatment; and Existential Anxiety and the Importance of Addressing Mortality.

Conclusions

Young women with hormone-sensitive breast cancer face unique challenges related to age bias, limited reproductive and psychosocial support, and existential distress. Tailored, age-sensitive, person-centered care is essential to address these needs and improve survivorship experiences.
目的:探讨年轻女性在激素敏感型乳腺癌诊断前、诊断中、诊断后的经历和生存率。方法:对10名年龄在28-39岁之间的女性进行描述性定性二次分析,这些女性在5年内被诊断出来,并通过两个瑞典国家患者组织招募。半结构化的访谈是通过虚拟或电话进行的,记录下来,并逐字抄写。采用定性含量分析法对资料进行归纳分析。结果:分析揭示了一个总体主题,在乳腺癌的旅程中导航不确定性,捕捉了年轻女性在诊断,治疗和生存方面的经历。五个描述类别说明了这一旅程的关键方面:在寻求乳腺癌症状治疗时被忽视的经历;医疗保健中缺乏针对年龄的支持;寻求知识、重获控制与制定应对策略平衡生育与癌症治疗;以及存在焦虑和应对死亡的重要性。结论:患有激素敏感性乳腺癌的年轻女性面临着与年龄偏见、有限的生殖和社会心理支持以及存在压力相关的独特挑战。量身定制的、对年龄敏感的、以人为本的护理对于满足这些需求和改善生存体验至关重要。
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引用次数: 0
A mixed methods study of psychological distress in family caregivers of ovarian cancer patients based on the ABC-X model 基于ABC-X模型的卵巢癌家庭照顾者心理困扰的混合方法研究
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-23 DOI: 10.1016/j.ejon.2025.103088
Xiaoyu Xu , Shuanghan Yu , Ma Jing , Yuan Liu , Wei Zhang

Purpose

Exploring the psychological distress of family caregivers of ovarian cancer patients in conjunction with the ABC-X model.

Methods

(i) Cross-sectional study. Between November 2022 and May 2023, 270 family caregivers were collected using convenience-sampled convenience sampling. Data were analyzed using SPSS 26.0. (ii) Descriptive qualitative study. Interview guides were designed based on the ABC-X model and quantitative results. From June to August 2023, 14 participants from the quantitative study were selected for semi-structured interviews using a maximum difference purposive sampling strategy. The interview data were compiled and analyzed using the content analysis method.

Results

(i) Among 258 FCGs, 74.4 % experienced psychological distress.Stratified regression results indicated significant predictive roles of lack of caregiving experience, self-efficacy, family resilience, and caregiving burden on caregiver psychological distress, with an R2 of 75.8 %. (ii) In-depth interviews revealed that the experience of psychological distress varied across individuals and was influenced by factors such as surrounding support, illness status, caregiving burden, and self-coping ability, and can also be denoted as “ABCDE”: “Assistance,” “Burden,” “Condition,” “Determination,” and “Emotion,” each comprising three corresponding sub-themes.

Conclusions

The psychological distress level among family caregivers is high, with approximately 3/4 of family caregivers experiencing distress. Future research could focus on reducing caregiving burden and targeting interventions to enhance family resilience and self-efficacy.
目的:结合ABC-X模型探讨卵巢癌患者家庭照顾者的心理困扰。方法:(1)横断面研究。在2022年11月至2023年5月期间,采用方便抽样方法收集了270名家庭照顾者。数据采用SPSS 26.0进行分析。描述性质的研究。访谈指南的设计基于ABC-X模型和定量结果。2023年6月至8月,采用最大差异有目的抽样策略,从定量研究中选取14名参与者进行半结构化访谈。采用内容分析法对访谈数据进行整理和分析。结果:(i) 258名FCGs中有74.4%的人有过心理困扰。分层回归结果显示,缺乏照顾经验、自我效能感、家庭弹性和照顾负担对照顾者心理困扰有显著的预测作用,R2为75.8%。(ii)深入访谈显示,个体的心理困扰体验各不相同,受周围支持、疾病状况、照顾负担和自我应对能力等因素的影响,也可以表示为“ABCDE”:“援助”、“负担”、“条件”、“决心”和“情绪”,每一个都包含三个相应的子主题。结论:家庭照顾者的心理困扰程度较高,约3/4的家庭照顾者存在心理困扰。未来的研究可以集中在减轻照顾负担和有针对性的干预措施,以提高家庭弹性和自我效能。
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引用次数: 0
Seeing the self again: A phenomenological photo elicitation study of Italian laryngectomy survivors 再次看到自我:意大利喉切除术幸存者的现象学照片启发研究
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-22 DOI: 10.1016/j.ejon.2025.103087
Valentina Bressan , Elisabetta Losi , Gianluca Catania , Luca Ghirotto

Purpose

Total laryngectomy profoundly alters persons’ lives physiologically and psychosocially, with major consequences for communication, identity, and social participation. While qualitative studies have examined aspects of survivorship, few have employed visual methodologies to capture the embodied and existential experiences of individuals who have had total laryngectomy, particularly within the Italian context. This study explored how individuals who underwent total laryngectomy perceive themselves as cancer survivors and visually represent their illness experiences and self-redefinition after surgery.

Methods

As part of a broader qualitative project informed by phenomenology, we employed photo elicitation. Nineteen participants (15 men, four women; mean age 66.3 years) were purposively recruited from two Otorhinolaryngology departments in Northern Italy. Participants selected or produced photographs illustrating aspects of post-laryngectomy life and discussed them in individual, in-depth, semi-structured interviews. Visual and narrative data were analyzed using a four-step phenomenological approach: preview, review, cross-photograph comparison, and theorizing.

Results

Two interrelated themes emerged: (1) The challenges of illness and a rebirth, capturing the transformation of self and the symbolic tension between loss and renewal; and (2) Rooting hope and the thrust in a new future, highlighting the roles of family support, self-esteem, and meaningful environments in sustaining resilience. Photographs often revealed complex meanings and aspirations not fully conveyed through verbal narratives.

Conclusions

Photo elicitation allowed participants to express survivorship experiences beyond verbal communication, providing unique insights into identity reconstruction, resistance to stigma, and envisioning a future after life-altering surgery. Findings suggest visual methods can enhance psychosocial care and promote person-centered communication in oncology settings.
目的全喉切除术深刻地改变了人们的生理和社会心理生活,对沟通、身份和社会参与产生了重大影响。虽然定性研究已经检查了生存的各个方面,但很少有使用视觉方法来捕捉全喉切除术患者的具体和存在经验,特别是在意大利的背景下。本研究探讨了接受全喉切除术的个体如何将自己视为癌症幸存者,并在视觉上代表他们的疾病经历和手术后的自我重新定义。方法作为现象学定性研究的一部分,我们采用了照片启发法。19名参与者(15名男性,4名女性,平均年龄66.3岁)被有意从意大利北部的两个耳鼻喉科招募。参与者选择或制作说明喉切除术后生活各方面的照片,并在个人、深入、半结构化的访谈中讨论这些照片。使用四步现象学方法分析视觉和叙事数据:预览,回顾,交叉照片比较和理论化。结果出现了两个相互关联的主题:(1)疾病与重生的挑战,捕捉自我的转变以及失去与再生之间的象征张力;(2)为新的未来注入希望和动力,强调家庭支持、自尊和有意义的环境在维持韧性中的作用。照片往往揭示了复杂的意义和愿望,不能完全通过口头叙述来传达。结论:照片启发使参与者能够表达语言交流之外的生存经历,为改变生活的手术后的身份重建、抵抗耻辱和展望未来提供了独特的见解。研究结果表明,视觉方法可以增强肿瘤环境中的社会心理护理和促进以人为本的交流。
{"title":"Seeing the self again: A phenomenological photo elicitation study of Italian laryngectomy survivors","authors":"Valentina Bressan ,&nbsp;Elisabetta Losi ,&nbsp;Gianluca Catania ,&nbsp;Luca Ghirotto","doi":"10.1016/j.ejon.2025.103087","DOIUrl":"10.1016/j.ejon.2025.103087","url":null,"abstract":"<div><h3>Purpose</h3><div>Total laryngectomy profoundly alters persons’ lives physiologically and psychosocially, with major consequences for communication, identity, and social participation. While qualitative studies have examined aspects of survivorship, few have employed visual methodologies to capture the embodied and existential experiences of individuals who have had total laryngectomy, particularly within the Italian context. This study explored how individuals who underwent total laryngectomy perceive themselves as cancer survivors and visually represent their illness experiences and self-redefinition after surgery.</div></div><div><h3>Methods</h3><div>As part of a broader qualitative project informed by phenomenology, we employed photo elicitation. Nineteen participants (15 men, four women; mean age 66.3 years) were purposively recruited from two Otorhinolaryngology departments in Northern Italy. Participants selected or produced photographs illustrating aspects of post-laryngectomy life and discussed them in individual, in-depth, semi-structured interviews. Visual and narrative data were analyzed using a four-step phenomenological approach: preview, review, cross-photograph comparison, and theorizing.</div></div><div><h3>Results</h3><div>Two interrelated themes emerged: (1) <em>The challenges of illness and a rebirth</em>, capturing the transformation of self and the symbolic tension between loss and renewal; and (2) <em>Rooting hope and the thrust in a new future</em>, highlighting the roles of family support, self-esteem, and meaningful environments in sustaining resilience. Photographs often revealed complex meanings and aspirations not fully conveyed through verbal narratives.</div></div><div><h3>Conclusions</h3><div>Photo elicitation allowed participants to express survivorship experiences beyond verbal communication, providing unique insights into identity reconstruction, resistance to stigma, and envisioning a future after life-altering surgery. Findings suggest visual methods can enhance psychosocial care and promote person-centered communication in oncology settings.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"80 ","pages":"Article 103087"},"PeriodicalIF":2.7,"publicationDate":"2025-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145975908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Distress, problems and unmet rehabilitation needs after haematopoietic stem cell transplantation for haematologic malignancies: A cross-sectional study 恶性血液病患者造血干细胞移植后的痛苦、问题和未满足的康复需求:一项横断面研究
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-19 DOI: 10.1016/j.ejon.2025.103083
Mette Seland , Sylvia Rognli , Tone Skaali , Rune Blomhoff , Geir E. Tjønnfjord , Astrid M.A. Eriksen , Grethe Solvang , Lene Thorsen

Purpose

Haematopoietic stem cell transplantation (HSCT) is an intensive treatment potentially resulting in distress, physical and psychosocial problems, and need for rehabilitation services. The purpose of this study was to assess the prevalence of distress, problems, and unmet rehabilitation needs among patients with haematological malignancies treated with HSCT, and to identify demographic and clinical factors associated with being distressed.

Methods

A cross-sectional questionnaire-based study among patients with a haematological malignancy was conducted 3-24 months post HSCT. Distress and problems were assessed by the National Comprehensive Network (NCCN) Distress Thermometer (DT) and Problem List (PL), and problems with physical endurance and muscle strength by 11-point scales. Unmet rehabilitation needs were assessed by a questionnaire constructed by the authors.

Results

Among 130 invited patients, 98 (75%) were included. Mean observation time since HSCT was 8 months, mean age at survey was 54 years and 61% were male. About half (51%) of the participants reported distress. The most common problems reported on the PL were fatigue (56%), tingling in hands/feet (49%), and worry (47%). Impaired physical endurance and muscle strength were reported by 65% and 59 %, respectively. Thirty-seven percent reported unmet rehabilitation needs. Distressed participants reported more problems included in the PL [mean 10.3 (SD 5.1) vs 4.8 (SD 2.9), p<0.001] and more unmet rehabilitation needs (52% vs 21%, p=0.003) compared to non-distressed participants.

Conclusion

The high prevalence of distress, problems and unmet rehabilitation needs emphasize the importance of regular screening and tailored rehabilitation programs in this population.
目的:造血干细胞移植(HSCT)是一种可能导致痛苦、身体和心理问题以及需要康复服务的强化治疗。本研究的目的是评估接受造血干细胞移植治疗的血液系统恶性肿瘤患者的痛苦、问题和未满足的康复需求的患病率,并确定与痛苦相关的人口统计学和临床因素。方法对造血干细胞移植后3-24个月的恶性血液病患者进行横断面问卷调查。采用全国综合网络(NCCN)焦虑温度计(DT)和问题表(PL)评估焦虑和问题,并采用11分制评估身体耐力和肌肉力量问题。未满足的康复需求通过作者编制的问卷进行评估。结果入选患者130例,入选98例(75%)。HSCT术后平均观察时间8个月,平均年龄54岁,61%为男性。大约一半(51%)的参与者报告了痛苦。最常见的问题是疲劳(56%),手/脚刺痛(49%)和担忧(47%)。身体耐力和肌肉力量受损的比例分别为65%和59%。37%的人报告未满足康复需求。与非痛苦参与者相比,痛苦参与者报告了更多的问题包括在PL中[平均10.3 (SD 5.1) vs 4.8 (SD 2.9), p<;0.001]和更多未满足的康复需求(52% vs 21%, p=0.003)。结论高患病率的困扰,问题和未满足的康复需求强调了定期筛查和量身定制的康复方案在这一人群中的重要性。
{"title":"Distress, problems and unmet rehabilitation needs after haematopoietic stem cell transplantation for haematologic malignancies: A cross-sectional study","authors":"Mette Seland ,&nbsp;Sylvia Rognli ,&nbsp;Tone Skaali ,&nbsp;Rune Blomhoff ,&nbsp;Geir E. Tjønnfjord ,&nbsp;Astrid M.A. Eriksen ,&nbsp;Grethe Solvang ,&nbsp;Lene Thorsen","doi":"10.1016/j.ejon.2025.103083","DOIUrl":"10.1016/j.ejon.2025.103083","url":null,"abstract":"<div><h3>Purpose</h3><div>Haematopoietic stem cell transplantation (HSCT) is an intensive treatment potentially resulting in distress, physical and psychosocial problems, and need for rehabilitation services. The purpose of this study was to assess the prevalence of distress, problems, and unmet rehabilitation needs among patients with haematological malignancies treated with HSCT, and to identify demographic and clinical factors associated with being distressed.</div></div><div><h3>Methods</h3><div>A cross-sectional questionnaire-based study among patients with a haematological malignancy was conducted 3-24 months post HSCT. Distress and problems were assessed by the National Comprehensive Network (NCCN) Distress Thermometer (DT) and Problem List (PL), and problems with physical endurance and muscle strength by 11-point scales. Unmet rehabilitation needs were assessed by a questionnaire constructed by the authors.</div></div><div><h3>Results</h3><div>Among 130 invited patients, 98 (75%) were included. Mean observation time since HSCT was 8 months, mean age at survey was 54 years and 61% were male. About half (51%) of the participants reported distress. The most common problems reported on the PL were fatigue (56%), tingling in hands/feet (49%), and worry (47%). Impaired physical endurance and muscle strength were reported by 65% and 59 %, respectively. Thirty-seven percent reported unmet rehabilitation needs. Distressed participants reported more problems included in the PL [mean 10.3 (SD 5.1) vs 4.8 (SD 2.9), p&lt;0.001] and more unmet rehabilitation needs (52% vs 21%, p=0.003) compared to non-distressed participants.</div></div><div><h3>Conclusion</h3><div>The high prevalence of distress, problems and unmet rehabilitation needs emphasize the importance of regular screening and tailored rehabilitation programs in this population.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"80 ","pages":"Article 103083"},"PeriodicalIF":2.7,"publicationDate":"2025-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146037550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring difficulties, dropout causes, and professional involvement in applying dignity therapy for palliative care patients: a scoping review. 探索困难,辍学的原因,和专业参与应用尊严治疗姑息治疗患者:范围审查。
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-04 DOI: 10.1016/j.ejon.2025.103069
Ana Fernández-Araque, Esther Sapiña-Beltrán, Marta Llorente Alonso, Zoraida Verde, Carmen Amaia Ramírez-Torres, E Begoña García-Navarro

Purpose: To explore and summarize the published literature on the most common causes of dropout and the challenges in implementing Dignity Therapy (DT) in terminally ill patients, as well as the training of the professionals involved.

Methods: A systematic scoping review was conducted following the methodology of the Joanna Briggs Institute (JBI) for scoping reviews, using the PAGER framework. The databases consulted included PUBMED, CINAHL, PsycINFO, and SCOPUS. Two independent reviewers applied the established criteria. The PRISMA-ScR guidelines were followed for reporting.

Results: The review identified twenty-seven published articles, highlighting three key themes: reasons for dropout and/or recruitment issues, challenges and limitations in studies on Dignity Therapy, and the professionals who implement it, along with their training. These themes prompted reflection on the pre-methodological preparation for patient and family recruitment, as well as therapy continuity. While Dignity Therapy is beneficial, it presents challenges in terms of follow-up and efficacy.

Conclusions: Refusal or dropout from Dignity Therapy in palliative care is associated with emotional, cultural, physical, and contextual factors. Understanding these factors is crucial to improving communication and adapting the therapy, thereby promoting its acceptance. Dignity Therapy faces challenges related to patient health, costs, cultural diversity, and staff training. The shortage of trained professionals and the lack of detailed information on therapist training are key limitations that must be addressed for effective implementation.

目的:探索和总结已发表的关于最常见的辍学原因和在绝症患者中实施尊严治疗(DT)的挑战,以及相关专业人员的培训的文献。方法:采用PAGER框架,按照乔安娜布里格斯研究所(JBI)的范围审查方法进行系统的范围审查。参考的数据库包括PUBMED、CINAHL、PsycINFO和SCOPUS。两名独立的审稿人采用了既定的标准。报告遵循PRISMA-ScR指南。结果:审查确定了27篇已发表的文章,突出了三个关键主题:辍学和/或招聘问题的原因,尊严治疗研究中的挑战和限制,以及实施尊严治疗的专业人员及其培训。这些主题促使对患者和家属招募的方法前准备以及治疗连续性的反思。虽然尊严疗法是有益的,但它在后续治疗和疗效方面存在挑战。结论:在姑息治疗中拒绝或退出尊严治疗与情感、文化、身体和环境因素有关。了解这些因素对于改善沟通和适应治疗至关重要,从而促进其接受。尊严疗法面临着与患者健康、成本、文化多样性和员工培训相关的挑战。缺乏训练有素的专业人员和缺乏关于治疗师培训的详细信息是有效实施必须解决的关键限制。
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引用次数: 0
Comparison of self-removal and clinic-removal of catheter after Robot-Assisted Laparoscopic prostatectomy 机器人辅助腹腔镜前列腺切除术后导管自行拔除与临床拔除的比较。
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-03 DOI: 10.1016/j.ejon.2025.103072
John Mitchell Lunas , Catherine Holborn , Robert Appleyard , Hilary Baker , John Kelly , Hazel McBain , Joann Dharmaseelan

Purpose

Prostate cancer is the most common cancer in men, with Robot-Assisted Laparoscopic Prostatectomy (RALP) a common treatment for localised cases. Postoperative catheterisation is routine, with removal typically occurring in hospital (Trial Without Catheter, TWOC). Home-based catheter removal (home-TWOC) is a newer option offering potential benefits in patient experience, clinic capacity and sustainability, though evidence remains limited.
This service evaluation examined the effectiveness of a home-TWOC programme for post-RALP patients, assessing clinical outcomes - including re-catheterisation, urinary tract infections (UTIs) and other complication - and comparing them to clinic-TWOC. It also explored patient experiences and potential economic benefits.

Methods

Using a cross-sectional design, the service evaluation included retrospective and prospective arms with convenience sampling. The prospective cohort consisted of all post-RALP patients from a single UK centre over 16 weeks from January 8, 2024. The retrospective group covered the 16 weeks from February 1, 2022, immediately prior to the programme's launch. Quantitative data from clinical audits were calculated using the Agresti-Coull method. Qualitative data, collected via questionnaires, were analysed descriptively and thematically.

Results

Findings showed home-TWOC to be safe and effective, with no re-catheterisations or UTIs reported. Patient satisfaction was high, with most willing to repeat the process. Though sample size limited statistical power, outcomes aligned with existing studies. Minor concerns included anxiety, pain and information clarity. Improvements in patient education, support resources and staff training were identified, along with indicative benefits.

Conclusions

Home-TWOC is a safe, effective and well-received alternative to clinic-based catheter removal, offering clinical, economic and experiential benefits for post-RALP patients.
目的:前列腺癌是男性中最常见的癌症,机器人辅助腹腔镜前列腺切除术(RALP)是局部病例的常用治疗方法。术后导尿是常规的,通常在医院进行拔除(无导管试验,TWOC)。家庭导尿管拔除(home-TWOC)是一种较新的选择,在患者体验、诊所能力和可持续性方面具有潜在的好处,尽管证据仍然有限。这项服务评估检查了家庭twoc方案对ralp后患者的有效性,评估了临床结果-包括再导尿,尿路感染(uti)和其他并发症-并将其与临床twoc进行比较。它还探索了患者体验和潜在的经济效益。方法:采用横断面设计,采用方便抽样,分为回顾性和前瞻性两组进行服务评价。该前瞻性队列包括来自一个英国中心的所有ralp后患者,从2024年1月8日开始为期16周。该回顾性小组涵盖了从2022年2月1日,即该计划启动之前的16周。使用Agresti-Coull方法计算临床审计的定量数据。通过问卷调查收集的定性数据进行了描述性和主题性分析。结果:结果显示家庭- twoc是安全有效的,没有再置管或尿路感染的报道。患者满意度很高,大多数人愿意重复这个过程。尽管样本量限制了统计效力,但结果与现有研究一致。轻微的担忧包括焦虑、疼痛和信息清晰度。在患者教育、支持资源和工作人员培训方面的改进被确定,以及指示性益处。结论:Home-TWOC是一种安全、有效且广受欢迎的替代临床基础导管拔除方法,为ralp后患者提供临床、经济和经验上的益处。
{"title":"Comparison of self-removal and clinic-removal of catheter after Robot-Assisted Laparoscopic prostatectomy","authors":"John Mitchell Lunas ,&nbsp;Catherine Holborn ,&nbsp;Robert Appleyard ,&nbsp;Hilary Baker ,&nbsp;John Kelly ,&nbsp;Hazel McBain ,&nbsp;Joann Dharmaseelan","doi":"10.1016/j.ejon.2025.103072","DOIUrl":"10.1016/j.ejon.2025.103072","url":null,"abstract":"<div><h3>Purpose</h3><div>Prostate cancer is the most common cancer in men, with Robot-Assisted Laparoscopic Prostatectomy (RALP) a common treatment for localised cases. Postoperative catheterisation is routine, with removal typically occurring in hospital (Trial Without Catheter, TWOC). Home-based catheter removal (home-TWOC) is a newer option offering potential benefits in patient experience, clinic capacity and sustainability, though evidence remains limited.</div><div>This service evaluation examined the effectiveness of a home-TWOC programme for post-RALP patients, assessing clinical outcomes - including re-catheterisation, urinary tract infections (UTIs) and other complication - and comparing them to clinic-TWOC. It also explored patient experiences and potential economic benefits.</div></div><div><h3>Methods</h3><div>Using a cross-sectional design, the service evaluation included retrospective and prospective arms with convenience sampling. The prospective cohort consisted of all post-RALP patients from a single UK centre over 16 weeks from January 8, 2024. The retrospective group covered the 16 weeks from February 1, 2022, immediately prior to the programme's launch. Quantitative data from clinical audits were calculated using the Agresti-Coull method. Qualitative data, collected via questionnaires, were analysed descriptively and thematically.</div></div><div><h3>Results</h3><div>Findings showed home-TWOC to be safe and effective, with no re-catheterisations or UTIs reported. Patient satisfaction was high, with most willing to repeat the process. Though sample size limited statistical power, outcomes aligned with existing studies. Minor concerns included anxiety, pain and information clarity. Improvements in patient education, support resources and staff training were identified, along with indicative benefits.</div></div><div><h3>Conclusions</h3><div>Home-TWOC is a safe, effective and well-received alternative to clinic-based catheter removal, offering clinical, economic and experiential benefits for post-RALP patients.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"80 ","pages":"Article 103072"},"PeriodicalIF":2.7,"publicationDate":"2025-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145967590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“You're not the only one who went through this”: Cancer survivors' reflections on peer encounters during the Desert Journey program “你不是唯一一个经历过这些的人”:在沙漠之旅项目中,癌症幸存者对同伴遭遇的反思
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-02 DOI: 10.1016/j.ejon.2025.103073
I. Levkovich , L. Hamama , S. Kuperman , M. Bar- Doron , Y. Hamama-Raz

Purpose

This study explores how peer support within Desert Journey, a nature-based group intervention developed by an Israeli non-governmental organization, shapes coping, belonging, and meaning among young cancer survivors. Grounded in a biopsychosocial and ecopsychological framework, we examine survivors’ lived experiences to identify that support rehabilitation.

Method

A qualitative approach was used to explore participants’ subjective experiences. In-depth, semi-structured interviews were conducted with 21 participants who had completed Desert Journey within the past two years. Participants aged 29–44 years, all in the recovery stage, represented a range of cancer diagnoses. The interviews were conducted between March–May 2025, audio-recorded, transcribed verbatim, and analyzed thematically.

Results

Three central themes emerged: (1) A group of strangers who just got it.” Participants described a profound sense of belonging and emotional validation through honest dialogue and nonverbal connection; (2) “An intimate space.” The desert setting fostered reflection on family, parenthood, and romantic relationships, allowing participants to voice complex emotions often silenced in daily life; (3) “There's something very overwhelming about being together all the time.” Some participants experienced emotional flooding, anxiety, and a need for solitude as the group process intensified.

Conclusions

Nature-based group interventions such as Desert Journey provide a unique therapeutic context for young cancer survivors by fostering emotional connection, peer support, and self-reflection. The findings highlight the potential of such programs to complement traditional survivorship care. Oncology nurses can play a critical role in identifying suitable patients, advocating for the integration of holistic interventions, and collaborating with interdisciplinary teams to enhance survivorship care.
本研究探讨了以色列非政府组织开发的基于自然的群体干预项目“沙漠之旅”中的同伴支持如何塑造年轻癌症幸存者的应对、归属感和意义。在生物心理社会和生态心理学框架的基础上,我们检查幸存者的生活经历,以确定支持康复。方法采用定性方法探讨被试的主观体验。我们对21位在过去两年内完成《沙漠之旅》的参与者进行了深入的半结构化访谈。参与者年龄在29-44岁之间,都处于康复阶段,代表了一系列癌症诊断。访谈在2025年3月至5月期间进行,录音,逐字抄写,并按主题进行分析。结果出现了三个中心主题:(1)“一群刚刚得到它的陌生人”。参与者通过诚实的对话和非语言联系描述了深刻的归属感和情感认可;(2)“私密空间。”沙漠环境培养了对家庭、亲子关系和浪漫关系的反思,让参与者表达在日常生活中经常被压抑的复杂情感;(3)“总在一起让人有种难以抗拒的感觉。”随着小组过程的加剧,一些参与者经历了情绪泛滥、焦虑和独处的需要。结论:沙漠之旅等基于自然资源的群体干预通过培养情感联系、同伴支持和自我反思,为年轻的癌症幸存者提供了独特的治疗环境。研究结果强调了这类项目补充传统生存护理的潜力。肿瘤科护士可以在确定合适的患者、倡导整合整体干预措施以及与跨学科团队合作以加强生存护理方面发挥关键作用。
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引用次数: 0
Corrigendum to “Acceptance and commitment therapy effectiveness for fear of cancer recurrence: A systematic review and meta-analysis” [Europ. J. Oncol. Nurs. 76 (2025) 102862] “接受和承诺治疗对癌症复发恐惧的有效性:一项系统回顾和荟萃分析”的更正[欧洲]。j .杂志。护理,76(2025)102862]。
IF 2.7 3区 医学 Q1 NURSING Pub Date : 2025-12-01 DOI: 10.1016/j.ejon.2025.103032
Yin Yuyan , Li Jiaqi , Wang Ting , Xu Juan , Wu Jinfeng , Luo Jing
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引用次数: 0
期刊
European Journal of Oncology Nursing
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