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Beyond ‘bad’ behaviors: A call for occupational scientists to rethink autism 超越“坏”行为:呼吁职业科学家重新思考自闭症
IF 2.4 Q1 Social Sciences Pub Date : 2022-11-11 DOI: 10.1080/14427591.2022.2136231
Elinor Taylor
ABSTRACT In this paper, I explore how autistic behaviors are rendered Othered transgressive acts in general research and in the figured world of occupation. I assess how the normalization agenda, which aims to condition autistic people into appearing abled, is associated with endemic disparities. I contend that occupational science has often countered anti-autistic stigma. However, I analyze how the field has perpetuated ableism by replicating normalization ideology and through its silence on the occupational significance of autistic behaviors. To contrast dominant assumptions, I examine autistic ways of being within occupational frameworks. I propose that the field can foster inclusion, rethink its figured worlds, and recognize autistic behaviors to promote social responsiveness. I argue these steps are ethically imperative as evidence on the harms of normalization accumulates.
在本文中,我探讨了自闭症行为是如何在一般研究和职业世界中呈现其他越界行为的。我评估了旨在使自闭症患者表现得有能力的正常化议程是如何与地方性差异联系起来的。我认为,职业科学经常反驳反自闭症的污名。然而,我分析了这个领域是如何通过复制正常化的意识形态以及通过对自闭症行为的职业意义的沉默来延续残疾歧视的。为了对比占主导地位的假设,我研究了自闭症患者在职业框架内的生存方式。我建议该领域可以促进包容,重新思考其数字世界,并认识到自闭症行为以促进社会反应。我认为,随着有关正常化危害的证据越来越多,这些措施在道德上是必要的。
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引用次数: 2
The experience of sleep: A descriptive phenomenological study of Dutch adults 睡眠体验:荷兰成年人的描述性现象学研究
IF 2.4 Q1 Social Sciences Pub Date : 2022-11-07 DOI: 10.1080/14427591.2022.2132998
Robert David van der Veen, Staffan Johansson, T. Satink
ABSTRACT Sleep is a frequently mentioned topic in current occupational science and occupational therapy literature, indicating an increasing interest in this occupation. However, we found a lack of understanding of the sleep experience in the literature. In our study, we sought to explore the experience of sleep among a sample of adults living in the Netherlands. We used a qualitative research design following descriptive phenomenology methodology. Data were collected via semi-structured interviews with 13 adults (two males, 10 females, one nonbinary), transcribed verbatim, and analysed according to descriptive phenomenology. Findings indicate that sleep can be understood as a personal experience on physical, mental, and emotional levels under unique temporal, spatial, and sociocultural conditions. Participants described sleep as a tripartite process: (a) approaching sleep to finish the day, (b) being asleep and dreaming, and (c) leaving sleep behind for a new day. A core element of sleep is making a transition between 2 days, during which recovery and processing occur. Fundamental to engaging in sleep are the feelings of safety and security shaped by habits, routines, and adjustments to the social and physical context. Participants expressed a personal need for and personal meaning in this occupation, describing sleep as an intertwined experience affected by and affecting other occupations.
摘要睡眠是当前职业科学和职业治疗文献中经常提到的话题,表明人们对这一职业越来越感兴趣。然而,我们发现文献中对睡眠体验缺乏了解。在我们的研究中,我们试图探索居住在荷兰的成年人的睡眠体验。我们采用了描述现象学方法论的定性研究设计。数据是通过对13名成年人(两名男性,10名女性,一名非二进制)的半结构化访谈收集的,逐字转录,并根据描述性现象学进行分析。研究结果表明,睡眠可以被理解为在独特的时间、空间和社会文化条件下,在身体、心理和情感层面上的个人体验。参与者将睡眠描述为一个三方过程:(a)接近睡眠以结束一天,(b)入睡并做梦,以及(c)放弃睡眠,开始新的一天。睡眠的一个核心要素是在两天之间进行过渡,在此期间进行恢复和处理。睡眠的基础是由习惯、日常生活以及对社会和身体环境的调整形成的安全感。参与者表达了对这一职业的个人需求和个人意义,将睡眠描述为一种受其他职业影响和影响的交织体验。
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引用次数: 2
Tensions in describing Muslim religious practices: Insights generated from an Islamic monotheist perspective 描述穆斯林宗教习俗的紧张:从伊斯兰一神论的角度产生的见解
IF 2.4 Q1 Social Sciences Pub Date : 2022-11-06 DOI: 10.1080/14427591.2022.2132997
Fatima Hendricks, R. Galvaan, Shaykh Muhammad bin Yahya al-Ninowy
ABSTRACT As forms of human occupation, religious practices have tended to be separated from spirituality in occupational science discussions. This paper describes the tensions we experienced in trying to situate a religious practice in Islam, namely salah (prayer), in relation to existing understandings of human occupation. We think through these tensions, drawing upon Islamic ontology and epistemology. Using a qualitative research design, we generated data using critical reflections by the first and third authors. Using their experience, and an Islamic ontology and epistemology, the co-authors analyzed and explicated the tensions experienced and identified during the academic project describing Muslim religious practices in occupational science. We use the embodiment and enactment of salah as our prominent illustrative example. The findings represent three tensions: Ontological differences through Islamic Monotheism; A fragmented and segregated view of Islam and Deen versus religion; and Tackling the dichotomy between religious and non-religious. We discuss how Islamic epistemology provides a harmonious way of capturing the fullness of religious practices such as salah. We suggest that this demonstrates a decolonial effort at focusing on viewing religious practices as occupations.
摘要宗教实践作为人类职业的一种形式,在职业科学的讨论中往往与精神分离。本文描述了我们在试图将伊斯兰教中的一种宗教实践,即祈祷,与对人类职业的现有理解联系起来时所经历的紧张关系。我们利用伊斯兰本体论和认识论来思考这些紧张关系。使用定性研究设计,我们使用第一和第三作者的批判性反思生成数据。利用他们的经验,以及伊斯兰本体论和认识论,合著者分析和阐述了在职业科学中描述穆斯林宗教实践的学术项目中所经历和确定的紧张关系。我们用萨拉赫的具体化和设定作为我们突出的例证。这些发现代表了三种紧张关系:伊斯兰一神论的本体论差异;对伊斯兰教和迪恩与宗教的分裂和隔离的看法;以及处理宗教和非宗教之间的二分法。我们讨论了伊斯兰认识论如何提供一种和谐的方式来捕捉宗教实践的完整性,如萨拉赫。我们认为,这表明了一种非殖民化的努力,专注于将宗教实践视为职业。
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引用次数: 2
Contested occupation in place: Experiences of inclusion and exclusion in seniors’ housing 有争议的职业:老年人住房中的包容和排斥经历
IF 2.4 Q1 Social Sciences Pub Date : 2022-09-29 DOI: 10.1080/14427591.2022.2125897
C. Hand, Kris Prentice, Colleen McGrath, D. Rudman, C. Donnelly
ABSTRACT Congregate living among older adults aims to enhance important aspects of well-being, such as sense of community and social engagement. Such settings, however, involve a complexity of social and power relations, and inclusion and exclusion along lines of occupation and place can occur. In this paper we develop a concept of contested occupation in place and use this concept to explore experiences of inclusion and exclusion in a seniors-only apartment building. Data were drawn from a participatory action research (PAR) project aimed at building social connectedness among residents of this building. Throughout the project we collected data about the PAR processes and outcomes through observation and reflexive notetaking. We also conducted end-of-project semi-structured interviews with nine residents who were part of the PAR collective. Analysis focused on data pertaining to issues of occupation in place, including key collective occupations, points of tension, and links to communal spaces in the apartment building. The findings presented here centre on collective occupations in the building common room that were contested and illustrate how occupation in place can be a mechanism of exclusion. Residents attempted to assert power in a variety of ways, often related to pre-existing social tensions. These findings indicate the importance of attending to power dynamics over time and identifying potentially exclusionary practices within collective occupation in place. Further research can explore how dynamics at micro scales reflect larger societal dynamics of inclusion and exclusion, as well as explore additional settings in which older adults live and engage in collective occupations.
老年人聚会生活旨在增强幸福感的重要方面,如社区感和社会参与感。然而,这种环境涉及复杂的社会和权力关系,可能会出现职业和地点的包容和排斥。在本文中,我们提出了一个有争议的职业概念,并利用这个概念来探索老年公寓楼中的包容和排斥体验。数据来自参与性行动研究(标准杆数)项目,该项目旨在建立该建筑居民之间的社会联系。在整个项目中,我们通过观察和反射性笔记收集了有关标准杆数过程和结果的数据。我们还对标准杆数集体的九名居民进行了项目结束时的半结构化访谈。分析的重点是与现有职业问题有关的数据,包括关键的集体职业、紧张点以及与公寓楼公共空间的联系。这里介绍的调查结果集中在有争议的建筑公共休息室的集体职业上,并说明了现有职业如何成为一种排斥机制。居民们试图以各种方式维护权力,通常与先前存在的社会紧张局势有关。这些发现表明,关注随着时间的推移的权力动态,并确定现有集体占领中潜在的排斥性做法的重要性。进一步的研究可以探索微观层面的动态如何反映包容和排斥的更大社会动态,并探索老年人生活和从事集体职业的其他环境。
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引用次数: 3
Representing informal caregivers of older adults in occupation-focused research: A critical interpretive synthesis 在以职业为中心的研究中代表老年人的非正式照顾者:一个关键的解释性综合
IF 2.4 Q1 Social Sciences Pub Date : 2022-09-26 DOI: 10.1080/14427591.2022.2122542
H. Abigail Reid, J. Holmes, D. Rudman, Andrew M. Johnson
ABSTRACT Within the current demographic and political context, it is likely there will be increasing reliance on informal caregivers in the provision of care to older adults in Western nations. This critical interpretive synthesis explored how informal caregiving has been conceptualized and researched in the occupation-based literature. Five occupation-focused journals were searched for articles on informal caregiving for older adults, resulting in 17 primary research articles. Analysis of these articles revealed that there has been an increasing focus on the experiences of caregivers (as opposed to divided focus between caregivers and care recipients) and that transactional perspectives and exploration of co-occupations have expanded the scope of the literature in this field. This synthesis points to a need to turn greater attention to diversity among informal caregivers, particularly in relation to gender and gender identity and raises concerns regarding lack of critical attention to informal caregiving as embedded in social relations of power. An occupational perspective can contribute to research on informal caregiving by generating knowledge regarding how this occupation is shaped in relation to contextual and political elements and has the potential to illuminate implications for the occupations of caregivers and care recipients.
在当前的人口和政治背景下,西方国家在提供老年人护理方面可能会越来越依赖非正式护理人员。这一批判性的解释性综合探讨了非正式护理是如何在基于职业的文献中被概念化和研究的。我们在5本以职业为重点的期刊上搜索了关于老年人非正式照顾的文章,得到了17篇主要研究文章。对这些文章的分析表明,人们越来越关注照顾者的经历(而不是照顾者和被照顾者之间的分裂焦点),交易视角和共同职业的探索扩大了这一领域的文献范围。这种综合表明,需要更多地关注非正式照顾者之间的多样性,特别是与性别和性别认同有关的多样性,并引起人们对社会权力关系中非正式照顾缺乏批判性关注的关注。职业视角可以通过产生关于该职业如何与环境和政治因素相关的知识来促进非正式护理的研究,并有可能阐明护理者和护理接受者的职业含义。
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引用次数: 1
Examining racial, ethnic, and cultural diversity in occupational science research: Perspectives of persons of color 审视职业科学研究中的种族、民族和文化多样性:有色人种的视角
IF 2.4 Q1 Social Sciences Pub Date : 2022-09-25 DOI: 10.1080/14427591.2022.2119269
Sachindri Wijekoon, Nedra Peter
ABSTRACT Diverse sociodemographic identities, including race, culture, ethnicity, and gender, are important influences on one’s occupational patterns and choices. However, occupational science theories and research were originally driven by Western White middle-class researchers and conducted on White participants. With a focus on the Western context, we sought to identify areas for improvement in the delivery and conduct of occupational science research with considerations of race, ethnicity, culture, and occupation among underrepresented racial groups. A critical content analysis was conducted of empirical research undertaken in Western countries between 2015 and 2020 and published in the Journal of Occupational Science (JOS). This analysis asked (a) What is the stated positionality of first author? (b) What are the racial or ethnic orientations of research participants? and (c) Is there explicit discussion of a racial/ethnic phenomenon? The findings reveal a lack of scholarship on race, ethnicity, and culture. Many primary authors did not explicate their positionality in relation to the research topics and study participants. The findings reify that the current production of occupational science research continues to occur within a wider field of social relations that is characterized by the agendas, interests, and values of the dominant group. Informed by critical race theory, we urge occupational science academic journals and their contributing authors to commit to epistemological antiracism. We recommend making space for racialized perspectives; acknowledging how these identities affect engagement and choice of occupations; clarifying who regulates, narrates, and participates in occupational science research; and creating inclusive scholarly ecosystems.
不同的社会人口特征,包括种族、文化、民族和性别,对一个人的职业模式和选择有重要影响。然而,职业科学理论和研究最初是由西方白人中产阶级研究人员推动的,并以白人为对象进行的。以西方背景为重点,我们试图在考虑种族、民族、文化和未被充分代表的种族群体的职业的情况下,确定职业科学研究的交付和实施方面需要改进的领域。对2015年至2020年间在西方国家进行的实证研究进行了批判性内容分析,并发表在《职业科学杂志》(JOS)上。这个分析问(a)第一作者的地位是什么?(b)研究参与者的种族或民族倾向是什么?(c)是否有关于种族/民族现象的明确讨论?研究结果表明,在种族、民族和文化方面缺乏学术研究。许多主要作者没有说明他们在研究主题和研究参与者方面的立场。研究结果证实,目前的职业科学研究继续发生在一个更广泛的社会关系领域,这个领域以主导群体的议程、利益和价值观为特征。在批判种族理论的指导下,我们敦促职业科学学术期刊及其投稿作者致力于认识论的反种族主义。我们建议为种族化观点留出空间;承认这些身份如何影响职业的投入和选择;明确谁来规范、叙述和参与职业科学研究;创造包容性的学术生态系统。
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引用次数: 3
Engaging with occupational reconstructions: A perspective from the Global South 参与职业重建:来自全球南方的视角
IF 2.4 Q1 Social Sciences Pub Date : 2022-09-13 DOI: 10.1080/14427591.2022.2110659
M. Motimele
ABSTRACT The discipline of occupational science informs philosophy and theory in the profession of occupational therapy. It is therefore imperative that the discipline and profession develop a symbiotic relationship that is mutually responsive to the occupational engagement patterns of populations and groups within their respective contexts. Protest is a phenomenon with a long, violent history in South Africa. Protests that are characterised by violence and met with state-sanctioned violence have continued to occur across multiple sectors despite South Africa’s shift from an Apartheid to a Democratic state in 1994. It is of concern that both violence and protest are minimally explored within occupational science and occupational therapy, even though these two phenomena regularly co-occur, impacting the health and well-being of participating citizens. Occupational reconstruction is a concept developed in the Global North that offers an understanding of social activism from an occupational perspective. Decolonial theory reminds us to pay attention to geo-political relations of power and how these influence what is considered as knowledge, who is positioned as knowers, and how context is read. Guided by this framework, I situate myself as a thinker from the Global South and engage with the concept of occupational reconstructions from this position, identifying what this construct might offer research concerned with violence in protest. I consider the case of Rhodes Must Fall (RMF) at the University of Cape Town between 2015 and 2016, noting questions raised by the application of this construct to these protests, the need for context-driven research in occupational science, and implications for the role and scope of occupational therapy practice.
职业科学学科为职业治疗提供了哲学和理论基础。因此,学科和专业必须发展一种共生关系,在各自的背景下对人群和群体的职业参与模式作出相互反应。抗议在南非是一种有着悠久暴力历史的现象。尽管南非在1994年从种族隔离国家转变为民主国家,但以暴力为特征并遭遇国家批准的暴力的抗议活动仍在多个地区持续发生。令人关切的是,在职业科学和职业治疗中,暴力和抗议都很少被探讨,尽管这两种现象经常同时发生,影响了参与公民的健康和福祉。职业重建是在全球北方发展起来的一个概念,它从职业的角度提供了对社会激进主义的理解。非殖民化理论提醒我们注意权力的地缘政治关系,以及这些关系如何影响被视为知识的东西,谁被定位为知者,以及如何解读上下文。在这个框架的指导下,我将自己定位为一个来自全球南方的思想家,并从这个位置参与职业重建的概念,确定这种结构可能为抗议中的暴力研究提供什么。我考虑了2015年至2016年间开普敦大学罗兹必须倒下(RMF)的案例,注意到将这一概念应用于这些抗议活动所提出的问题,职业科学中情境驱动研究的必要性,以及对职业治疗实践的作用和范围的影响。
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引用次数: 3
Occupational science’s stalled revolution and a manifesto for reconstruction 职业科学停滞不前的革命和重建宣言
IF 2.4 Q1 Social Sciences Pub Date : 2022-08-23 DOI: 10.1080/14427591.2022.2110658
Gelya Frank
ABSTRACT This publication develops a keynote presented at the 27th USC Chan Occupational Science Symposium, “Occupations disrupted: Pandemics and the reshaping of everyday life,” on November 5, 2021. I used the social theory of occupational reconstructions—shared problem-solving through narrative alignments and collective action—to reflect on occupational science’s progress since its founding 30 years ago. I argue that (1) the science of occupation has stalled in today’s neoliberal university; and that (2) ‘consequential questions’ must be formulated across the discipline to develop useful knowledge from different locations, positionalities, and contexts. A ‘consequential question,’ I propose, produces knowledge useful to solving problems of wide concern to the discipline, other disciplines, and the public; and sets up a scientific research program that progresses empirically and theoretically. I explain why the founders’ pragmatist framing of occupation as mind-body experience remains important to recent critiques of the discipline and its future advancement. Likewise, I explain how pragmatism can and must transact with various critical (Marxist, poststructuralist) philosophies and other (positivist, alternative) epistemologies regarding societal problems such as occupational justice, human rights, decolonization, political polarization, and the erosion of democracy. I suggest that federally funded biomedical research in the neoliberal university is not currently designed to advance a science of occupation, although it could if occupational scientists were to face the discipline’s contradictions under neoliberalism and reconstruct its common purpose.
摘要本出版物在2021年11月5日举行的第27届南加州大学陈职业科学研讨会上发表了主题演讲“职业被打乱:流行病和日常生活的重塑”。我使用了职业重建的社会理论——通过叙事对齐和集体行动共同解决问题——来反思职业科学自30年前成立以来的进步。我认为(1)职业科学在今天的新自由主义大学里停滞不前;以及(2)必须在整个学科中制定“后果性问题”,以从不同的位置、立场和背景发展有用的知识。我建议,一个“间接问题”产生的知识有助于解决学科、其他学科和公众广泛关注的问题;并建立了一个实证和理论相结合的科学研究计划。我解释了为什么创始人将职业视为身心体验的实用主义框架对最近对该学科及其未来发展的批评仍然很重要。同样,我解释了实用主义如何能够也必须与各种批判性(马克思主义、后结构主义)哲学和其他(实证主义、另类)认识论打交道,这些哲学和认识论涉及社会问题,如职业正义、人权、非殖民化、政治两极分化和民主的侵蚀。我认为,联邦政府资助的新自由主义大学生物医学研究目前并不是为了推进职业科学,尽管如果职业科学家在新自由主义下面对该学科的矛盾并重建其共同目的,这是可能的。
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引用次数: 7
Exploring doing activism as a means for political action and social transformation in Germany 探索行动主义作为德国政治行动和社会转型的手段
IF 2.4 Q1 Social Sciences Pub Date : 2022-08-21 DOI: 10.1080/14427591.2022.2110146
C. Müllenmeister, Jesper Larsen Maersk, L. Farias
ABSTRACT Activism is what people do to bring about social transformation. Yet, there is scarce research on activism and its shaping of everyday life in occupational science. Understanding activism as a product of collective doing in specific contexts can contribute to current debates about the political nature of occupation and processes of social transformation through occupation. Therefore, the aim of this study was explore the doing of activism by people in Germany who identify as activists and the ways it influences their everyday lives. An Interpretative Phenomenological Analysis (IPA) was used to analyze data from semi-structured interviews with six individuals living in Germany who self-identify as activists. The analysis focussed on the doing, experiences, and tensions resulting from engagement in activism. The findings are presented through three themes: ‘Doing activism together’, ‘Doing activism versus personal/family obligations’, and ‘Doing activism around the clock’. Together, the findings present a more nuanced understanding of occupations oriented towards social transformation by illustrating how activism can raise awareness of important social issues but also take over participants’ everyday lives and create tensions with their family/work/study priorities and responsibilities. This study enriches current understandings of occupation for individual and society’s social transformation by illustrating how occupation can be used as political expression and action. The findings also contribute to debates about a tendency to focus on the positive nature of occupations, neglecting tensions and potential risks for participants and others.
激进主义是人们为实现社会变革所做的事情。然而,在职业科学中,很少有关于激进主义及其对日常生活的塑造的研究。将激进主义理解为特定背景下集体行动的产物,有助于当前关于占领的政治性质和通过占领实现社会转型的过程的辩论。因此,本研究的目的是探索德国那些认为自己是活动家的人的激进主义行为,以及它对他们日常生活的影响。解释现象学分析(IPA)用于分析对六名居住在德国的自我认同为活动家的个人进行的半结构化访谈的数据。分析的重点是参与激进主义所带来的行为、经历和紧张关系。研究结果分为三个主题:“一起行动主义”、“行动主义与个人/家庭义务”和“全天候行动主义”。总之,这些发现展示了激进主义如何提高人们对重要社会问题的认识,同时也接管了参与者的日常生活,并与他们的家庭/工作/学习优先事项和责任产生紧张关系,从而对面向社会转型的职业有了更细致的理解。本研究通过阐释职业如何被用作政治表达和行动,丰富了当前对职业的理解,促进了个人和社会的社会转型。研究结果也有助于讨论一种倾向,即关注职业的积极性质,忽视参与者和其他人的紧张关系和潜在风险。
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引用次数: 2
Batok: The exploration of Indigenous Filipino tattooing as a resistive collective occupation 巴托克:探索菲律宾土著纹身作为一种抵抗性的集体职业
IF 2.4 Q1 Social Sciences Pub Date : 2022-08-18 DOI: 10.1080/14427591.2022.2110145
Chelsea Ramirez, Karen McCarthy, Ana Cabalquinto, Carmela Dizon, Mai Santiago
ABSTRACT Batok (also known as Fatek/Burik/Tatak/Batek/Patik) is an Indigenous Filipino tattooing practice where the practitioner marks the skin by hand-tapping the ink using bone/wood implements. Previous research on tattooing from an occupational science perspective has considered European tattooing and its engagement and implication on the individual. This qualitative research explores how batok is experienced by the person and their identified community. Three Filipino participants with batok, and four family or community members were interviewed. Thematic analysis highlighted three themes recognized as Kapwa, Revealing One’s Batok, and Decolonization and Reclamation as a Cultural Practice. These themes are situated in the lens of a collective occupation and encapsulate the experience of the batok process among individuals with batok and their family/community members. Findings support the conceptualization of batok as a resistive collective occupation. This research provides deeper insight into the collective occupation of Indigenous cultural practice, with the potential to expand occupational science’s understanding of decolonizing occupations.
摘要巴托克(也称为Fatek/Burik/Tatak/Batek/Patik)是一种菲律宾土著纹身实践,从业者使用骨器/木制工具用手敲击墨水在皮肤上做标记。先前从职业科学角度对纹身的研究考虑了欧洲纹身及其对个人的参与和影响。这项定性研究探讨了这个人和他们所确定的社区是如何体验巴托克的。三名菲律宾参与者和四名家庭或社区成员接受了采访。专题分析突出了三个主题,即Kapwa、揭示自己的巴托克和非殖民化和开垦作为一种文化实践。这些主题以集体职业为视角,概括了拥有巴托克的个人及其家庭/社区成员对巴托克过程的体验。研究结果支持将巴托克视为一种抵抗性集体占领的概念。这项研究为土著文化实践的集体职业提供了更深入的见解,有可能扩大职业科学对非殖民化职业的理解。
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引用次数: 1
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