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Understanding Needs for Chronic Musculoskeletal Pain Management in a Northern Dene and Métis Community: A Community Based Needs Assessment. 了解慢性肌肉骨骼疼痛管理在北方Dene和msamims社区的需求:基于社区的需求评估。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-12-06 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2412560
Tayah Zhang, Brenna Bath, Veronica McKinney, Jaris Swidrovich, Rachel Johnson, Heather Foulds, Nadia Makar, Melanie Montgrand, Stacey Lovo

Background: Chronic musculoskeletal (MSK) pain disproportionately affects Indigenous Peoples, and rural/remote communities face significant barriers in accessing care. La Loche, a Dene/Métis community in northern Saskatchewan, has limited access to specialized chronic pain management services and specialized health providers.

Aims: The aim of this needs assessment was to gain insight into the community's priorities, strengths, and concerns regarding chronic MSK pain management. Community engagement and relationship building were essential to ensure that cultural protocols were respected and community worldviews were accurately represented.

Methods: A community-directed needs assessment was conducted in collaboration with local health care providers and community members. To ensure appropriate representation of community-led priorities, reflexive thematic analysis was utilized and rooted within interpretive description and informed by community-based participatory research and Two-Eyed Seeing. Open discussions were conducted in person, over the phone, or via Zoom in a semistructured format. Thirteen individuals were interviewed (eight community members, five health care professionals).

Results: Interviews conducted with community members and health care providers were analyzed separately. Both yielded the same four major overarching themes: (1) impact of pain on daily living, (2) barriers limiting access to care and the understanding of pain between health care provider and patient, (3) systemic oppression and negative experiences with health care, and (4) strength-based solutions.

Conclusions: Five recommendations were developed to promote culturally safe and patient-centered environments for chronic MSK pain communication and future care delivery: (1) person-centered and community-directed care, (2) clinic model and staffing requirements, (3) practitioner education and awareness, (4) community education and awareness, and (5) community resources.

背景:慢性肌肉骨骼(MSK)疼痛对原住民的影响尤为严重,而农村/偏远社区在获得医疗服务方面面临着巨大障碍。拉洛克是萨斯喀彻温省北部的一个德尼/梅蒂斯社区,该社区获得专门的慢性疼痛管理服务和专业医疗服务提供者的机会有限。社区参与和建立关系对于确保尊重文化习俗和准确反映社区世界观至关重要:方法:与当地医疗服务提供者和社区成员合作,开展了以社区为导向的需求评估。为确保适当体现社区主导的优先事项,采用了反思性专题分析,并将其植根于解释性描述中,同时借鉴了社区参与式研究和 "双眼观察"。以半结构化的形式,通过面谈、电话或 Zoom 进行了公开讨论。共访谈了 13 人(8 名社区成员和 5 名医疗保健专业人员):对社区成员和医疗服务提供者的访谈分别进行了分析。结果:对社区成员和医疗服务提供者进行的访谈分别进行了分析,得出了相同的四大主题:(1)疼痛对日常生活的影响;(2)限制获得医疗服务的障碍以及医疗服务提供者和患者之间对疼痛的理解;(3)系统性压迫和医疗服务的负面体验;以及(4)基于力量的解决方案:为促进文化安全和以患者为中心的慢性 MSK 疼痛交流环境以及未来的医疗服务,我们提出了五项建议:(1)以人为本和社区导向的医疗服务;(2)诊所模式和人员配备要求;(3)从业人员教育和意识;(4)社区教育和意识;以及(5)社区资源。
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引用次数: 0
Prospective Preference Assessment for the Psilocybin for Enhanced Analgesia in Chronic nEuropathic PAIN (PEACE-PAIN) Trial. 用于增强慢性神经痛镇痛效果的迷幻药(PEACE-PAIN)试验的前瞻性偏好评估。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-11-08 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2406285
Jiwon Lee, Kaylyssa Philip, Duminda N Wijeysundera, Hance Clarke, Cheryl Pritlove, Joel Katz, Paul Ritvo, Akash Goel, Muhammad Ishrat Husain, Karim S Ladha

Background: Negative perceptions of psilocybin and challenges of participant enrollment may represent barriers to conducting a randomized controlled trial examining psilocybin for chronic neuropathic pain.

Aim: Prior to trial initiation, we aimed to examine patient attitudes toward the trial via a prospective preference assessment.

Methods: Twenty-six patients with chronic neuropathic pain participated in a prospective preference assessment comprising quantitative (survey) and qualitative (interview) components. Content analysis was used to inductively and deductively identify factors that would motivate or discourage participation in the proposed trial. Demographics, clinical characteristics, and perceptions of psilocybin were collected to explore differences in characteristics between patients who were willing and unwilling to participate.

Results: Survey results showed that most participants (76.9%) were willing to participate in the PEACE-PAIN trial. "Willing" participants reported higher prior psychedelic use (75%) as compared to the "maybe willing" (0%) and "not willing" participants (0%). Interviews indicated that the top two factors that motivated participation included the need for new treatment options (31.7%) and benefits to personal pain management (31.7%). The top two discouraging factors included practical difficulties of research participation (16.7%), and adverse events associated with psilocybin (16.7%).

Conclusions: The PEACE-PAIN trial study design is supported by patient survey responses but may benefit from modifications, namely incorporating thorough discussions of the current evidence for efficacy, safety, tolerability, and approaches to address adverse effects of psilocybin. Additionally, the interest in participation by individuals with prior psychedelic use holds important methodological implications for the inclusion/exclusion criteria of the trial.

背景:目的:在试验开始之前,我们旨在通过前瞻性偏好评估考察患者对试验的态度:26名慢性神经病理性疼痛患者参加了由定量(调查)和定性(访谈)两部分组成的前瞻性偏好评估。内容分析法用于归纳和演绎确定激励或阻碍参与拟议试验的因素。此外,还收集了人口统计学、临床特征和对迷幻剂的看法,以探讨愿意和不愿意参与试验的患者之间的特征差异:调查结果显示,大多数参与者(76.9%)愿意参加 PEACE-PAIN 试验。与 "可能愿意"(0%)和 "不愿意"(0%)的参与者相比,"愿意 "的参与者表示以前使用过更多的迷幻药(75%)。访谈显示,促使参与者参与的前两个因素包括对新治疗方案的需求(31.7%)和对个人疼痛治疗的益处(31.7%)。前两个阻碍因素包括参与研究的实际困难(16.7%)和与迷幻药相关的不良事件(16.7%):结论:PEACE-PAIN 试验的研究设计得到了患者调查反馈的支持,但可能需要进行修改,即对目前的疗效、安全性、耐受性以及应对迷幻药不良反应的方法进行全面讨论。此外,曾使用过迷幻药的患者对参与试验的兴趣也对试验的纳入/排除标准产生了重要的方法论影响。
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引用次数: 0
Assessing Quality of Referrals to a Community-Based Chronic Pain Clinic. 评估社区慢性疼痛诊所的转诊质量。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-28 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2402700
Angela Mailis, Amna Rafiq, Amol Deshpande, S Fatima Lakha

Introduction: Because patients with chronic pain are complex, with significant medical and psychiatric comorbidities, referrals to specialty pain clinics are often necessary. The present study explores the quality of information submitted and the profile of referring physicians associated with rejected patient referrals by a community pain clinic.

Methods: A retrospective cross-sectional study was conducted on a series of consecutive new patient referrals rejected by a noninterventional community pain clinic (November 2021-June 2022). Data were collected on the reasons for rejected referrals and physicians responsible for these referrals using the public database of the College of Physicians and Surgeons of Ontario.

Results: During the study period, 120 new referrals made by 99 physicians (88% primary care providers, or PCPs; male : female ratio 1:1.2; 53% Canadian university graduates) were rejected because of inadequate information (62%) or because they were inappropriate (38%). Only 46% of the rejected referrals were resubmitted within a median of 7 days (range 0-96 days) and accepted. Half of the non-resubmitted referrals could have been accepted if the referring provider had sent in the missing information.

Conclusion: A significant number of referrals to our pain clinic (primarily from PCPs) are rejected for mainly avoidable reasons. The process of rejected referrals and resubmissions requires 92 to 126 h of additional staff time/year. Without additional health care resources, our study highlights simple but effective improvements in the referral process that could facilitate patient care, avoid unnecessary delays, and decrease possible sources of patient complaints.

导言:由于慢性疼痛患者病情复杂,合并有严重的内科和精神科疾病,因此往往需要转诊到疼痛专科诊所。本研究探讨了社区疼痛诊所拒绝转诊病人时所提交信息的质量和转诊医生的情况:一项回顾性横断面研究针对一家非介入性社区疼痛诊所(2021 年 11 月至 2022 年 6 月)拒绝的一系列连续新患者转诊进行了研究。研究人员利用安大略内科和外科医生学院的公共数据库收集了转诊被拒的原因和负责这些转诊的医生的数据:在研究期间,99 名医生(88% 为初级保健提供者或初级保健医生;男女比例为 1:1.2;53% 为加拿大大学毕业生)的 120 个新转介病人因信息不足(62%)或不合适(38%)而被拒绝。在被拒绝的转介人中,只有 46% 在中位数 7 天(0-96 天不等)内重新提交并被接受。在未重新提交的转诊病例中,如果转诊医生提交了缺失的信息,有一半的病例本可以被接受:结论:我们疼痛诊所有大量转诊病人(主要来自初级保健医生)被拒,主要原因是可以避免的。处理被拒绝的转诊病人和重新提交转诊病人的过程需要工作人员每年额外花费 92 到 126 小时的时间。在不增加医疗资源的情况下,我们的研究强调了转诊流程中简单而有效的改进措施,这些措施可以促进患者护理、避免不必要的延误并减少患者投诉的可能来源。
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引用次数: 0
The Influence of Loneliness on Pain Outcomes for Adolescents: A Cross-Sectional Survey. 孤独对青少年疼痛结果的影响:一项横断面调查
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-28 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2404615
Paula A Forgeron, Jennifer Stinson, Kathryn Birnie, G Allen Finley, Abbie Jordan, Pamela Qualter, Ligyana Candido, Michelle Lamont, Cassidy Bradley, Delane Linkiewich, Trinity Lowthian, Samuel McNally, Natasha Trehan, Bruce Dick

Background: Loneliness, the perception that one's social relationships do not meet the desire for social connection, is a risk factor for poor mental and physical health. Adolescents with chronic pain experience higher rates of peer loneliness which persists over time. Previous studies used a single loneliness measure, limiting our understanding of the nature of their loneliness. This study describes the types of peer loneliness (intimate, relational, and collective) experienced by these adolescents and the impact that peer loneliness has on pain-related outcomes.

Methods: A cross-sectional online survey was completed by 128 Canadian adolescents aged 12-18 years who experienced pain for at least 3 months. Validated measures captured demographics, pain-related characteristics, types of peer-related loneliness, measures of social well-being, and mental and physical health outcomes.

Results: Friedman's tests of z-scores indicate that participants equally experienced dyadic, relational, and collective peer loneliness. MANCOVA revealed that those who identify as Black were lonelier after controlling for socioeconomic status. Multiple regression showed that loneliness was a robust predicter of worse scores on social well-being and mental health outcomes with males and females equally impacted by loneliness. Despite moderate correlations between loneliness and pain interference and pain intensity, loneliness did not predict school absences, suggesting that loneliness' influence on physical pain outcomes may be temporally earlier (e.g. contribute to pain chronification).

Conclusions: Peer loneliness among adolescents with chronic pain negatively impacts their social well-being and mental health outcomes. Interventions addressing loneliness to target all three types of peer loneliness may be key to improving pain-related outcomes.

背景:孤独是指一个人认为自己的社会关系不能满足其对社会联系的渴望,它是导致身心健康状况不佳的一个危险因素。患有慢性疼痛的青少年有较高的同伴孤独感,而且这种孤独感会随着时间的推移而持续。以往的研究使用单一的孤独感测量方法,限制了我们对其孤独感本质的理解。本研究描述了这些青少年经历的同伴孤独类型(亲密孤独、关系孤独和集体孤独),以及同伴孤独对疼痛相关结果的影响:128名年龄在12-18岁之间、经历过至少3个月疼痛的加拿大青少年完成了一项横断面在线调查。经过验证的测量指标包括人口统计学特征、疼痛相关特征、与同伴相关的孤独感类型、社会幸福感测量指标以及身心健康结果:弗里德曼 Z 值检验表明,参与者同样体验到了同伴间的双向孤独感、关系孤独感和集体孤独感。MANCOVA 显示,在控制了社会经济地位之后,那些被认定为黑人的人更孤独。多元回归显示,孤独感是社会福利和心理健康结果得分较差的可靠预测因素,男性和女性受到孤独感的影响相同。尽管孤独感与疼痛干扰和疼痛强度之间存在中等程度的相关性,但孤独感并不能预测缺课情况,这表明孤独感对身体疼痛结果的影响可能在时间上更早(如导致疼痛慢性化):结论:患有慢性疼痛的青少年的同伴孤独感会对他们的社会福祉和心理健康产生负面影响。针对这三类同伴孤独感的干预措施可能是改善疼痛相关结果的关键。
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引用次数: 0
[Enhancing Chronic Pain Management: Exploring the Essential Contribution of Primary Care Nurses]. [加强慢性疼痛管理:探索初级护理护士的重要贡献]。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-07 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2394207
Andréanne Bernier, Marie-Eve Poitras, Anaïs Lacasse
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引用次数: 0
Chronic pain experiences of immigrant Indian women in Canada: A photovoice exploration. 加拿大印度移民妇女的慢性疼痛经历:摄影选择探索。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-07 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2390355
Nida Mustafa, Shreeyaa Ramana, Margaret MacNeill, Judy Watt-Watson, Gillian Einstein

Background: Over the past two decades, the prevalence of chronic pain has significantly increased globally, with approximately 20% of the world's population living with pain. Although quantitative measures are useful in identifying pain prevalence and severity, qualitative methods, and especially arts-based ones, are now receiving attention as a valuable means to understand lived experiences of pain. Photovoice is one such method that utilizes individuals' own photography to document their lived experiences.

Aims: The current study utilized an arts-based method to explore immigrant Indian women's chronic pain experiences in Canada and aimed to enhance the understanding of those experiences by creating a visual opportunity for them to share their stories.

Methods: Twelve immigrant Indian women captured photographs and participated in one-on-one interviews exploring daily experiences of chronic pain.

Results: Women's photographs, and description of these photographs, provided a visual entry into their lives and pain experiences. Three themes emerged from our analysis: (1) bodies in pain, (2) traversing spaces including immigration, and (3) pain management methods. Findings revealed that women's representations of pain were shaped by a clash between culturally shaped gender role expectations and changing gender norms due to immigration processes. The use of photovoice visually contextualized and represented pain experiences, proving to be a valuable tool for self-reflection.

Conclusions: This research uncovers the multifaceted nature of chronic pain and identifies the influence of immigration, gender, and social relations on the exacerbation of pain in immigrant Indian women.

背景:在过去的二十年里,全球慢性疼痛的发病率大幅上升,约有 20% 的世界人口生活在疼痛之中。虽然定量测量有助于确定疼痛的流行率和严重程度,但定性方法,尤其是基于艺术的定性方法,作为一种了解疼痛生活体验的宝贵手段,现在正受到人们的关注。目的:本研究采用一种基于艺术的方法来探讨印度移民妇女在加拿大的慢性疼痛经历,旨在通过为她们创造一个分享自己故事的视觉机会来加深对这些经历的理解:方法:12 名印度移民妇女拍摄了照片,并参加了一对一的访谈,以探索慢性疼痛的日常经历:结果:妇女拍摄的照片以及对这些照片的描述,为我们提供了一个直观了解她们的生活和疼痛经历的机会。通过分析,我们发现了三个主题:(1) 疼痛中的身体;(2) 穿越空间,包括移民;(3) 疼痛管理方法。研究结果表明,文化形成的性别角色期望与移民过程中不断变化的性别规范之间的冲突塑造了妇女对疼痛的表述。摄影选言的使用直观地反映了疼痛经历的背景和表现形式,被证明是进行自我反思的宝贵工具:这项研究揭示了慢性疼痛的多面性,并确定了移民、性别和社会关系对印度移民妇女疼痛加剧的影响。
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引用次数: 0
Randomized controlled trial investigating the effectiveness of a multimodal mobile application for the treatment of chronic pain. 随机对照试验,调查多模式移动应用治疗慢性疼痛的效果。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-08-19 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2352399
Cynthia J Thomson, Hanna Pahl, Luisa V Giles

Background: Until recently, treatments for chronic pain commonly relied on in-person interventions, and despite more hybrid care options today, capacity for delivery remains challenged. Digital programs focusing on the psychosocial aspects of pain may provide low-barrier alternatives.

Aims: Through a randomized controlled trial, we investigated the effectiveness of a multimodal mobile application.

Methods: Participants (n = 198; 82% women, mean age = 46.7 [13.1] years; mean pain duration 13.6 [11.2] years) with nonmalignant chronic pain were randomized to either a 6-week intervention (n = 98) or a wait-listed usual care group (n = 100). The intervention involved regular engagement with a user-guided mobile application (Curable Inc.) informed by the biopsychosocial model of pain that included pain education, meditation, cognitive behavioral therapy, and expressive writing. The co-primary outcomes were pain severity and interference at 6 weeks.

Results: We observed significant improvements in the intervention group compared to the control group with estimated changes of -0.67 (95% confidence interval [CI] -1.04 to -0.29, P < .001, d = 0.43) and -0.60 (95% CI -1.18 to -0.03, P = .04, d = 0.27) for pain severity and interference, respectively. There were significant improvements across secondary outcomes (Patient-Reported Outcome Measurement Information System pain interference; pain catastrophizing; anxiety, depression; stress). Frequency of app use was correlated with improved pain interference (P < .001) and pain catastrophizing (P = 0.018), and changes from baseline persisted in the intervention group at 12 weeks (P < .05).

Conclusions: A short-term mobile app intervention resulted in significant improvements across physical and mental health outcomes compared to wait-listed usual care.

背景:直到最近,慢性疼痛的治疗通常依赖于面对面的干预,尽管如今有了更多的混合护理选择,但提供服务的能力仍然面临挑战。侧重于疼痛的社会心理方面的数字程序可能会提供低门槛的替代方案。目的:通过随机对照试验,我们研究了多模式移动应用程序的有效性:患有非恶性慢性疼痛的参与者(n = 198;82% 为女性,平均年龄 = 46.7 [13.1] 岁;平均疼痛持续时间为 13.6 [11.2] 年)被随机分配到为期 6 周的干预组(n = 98)或候补常规护理组(n = 100)。干预措施包括定期使用由用户指导的移动应用程序(Curable Inc.)共同主要结果为 6 周后的疼痛严重程度和干扰程度:我们观察到,与对照组相比,干预组的疼痛严重程度和干扰程度有明显改善,估计变化分别为-0.67(95% 置信区间 [CI] -1.04 至 -0.29,P d = 0.43)和-0.60(95% CI -1.18 至 -0.03,P = .04,d = 0.27)。次要结果(患者报告结果测量信息系统疼痛干扰;疼痛灾难化;焦虑、抑郁;压力)均有明显改善。应用程序的使用频率与疼痛干扰的改善相关(P = 0.018),干预组在 12 周后仍能保持与基线相比的变化(P 结论:与等待名单上的常规护理相比,短期移动应用程序干预显著改善了身心健康结果。
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引用次数: 0
Mission Critical, a Call to Action for Implementation of the Recommendations of the Canadian Pain Task Force. 关键任务--落实加拿大疼痛问题工作组建议的行动呼吁》。
IF 2.4 Q3 CLINICAL NEUROLOGY Pub Date : 2024-06-17 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2346253
Mary Lynch
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引用次数: 0
"Discharge doesn't mean the end": Exploring success in discharge to community self-management for young adults living with chronic pain: A qualitative study. “出院并不意味着结束”:一项定性研究:探讨患有慢性疼痛的年轻人出院后社区自我管理的成功。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-04-26 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2346943
Souraiya Kassam, Emi Wong, Marysa Thompson, Todd Tran, Rachael Bosma, Sarah Sheffe

Background: Living with chronic pain as a young adult (YA) can impact the physical, emotional, social, cognitive, and role function domains of life. Once YAs receive care for their specialist chronic pain care they are expected to self-navigate a complex health care system to transition to community-based care (i.e. primary care). Inadequate discharge planning may increase the unique difficulties YAs face in self-management, which may lead to adverse health outcomes, suboptimal discharge, and a need to reaccess care.

Aims: The purpose of this qualitative study is to explore how YAs with chronic pain define a successful discharge transition from a health service delivery model of specialized chronic pain services setting to self-management in a community setting (i.e. primary care) and contextual factors that promote discharge success.

Methods: This qualitative study included young adults with chronic pain. Data were obtained through semistructured interviews, which were transcribed verbatim and analyzed using inductive content analysis.

Results: Ten participants identified that successful discharge includes the following considerations: (1) acknowledging the tension between moving forward and looking back, (2) a collaborative discharge process, and (3) the need for ongoing, relevant resources and support.

Conclusion: This study provides a deeper understanding of how YAs with chronic pain characterize success in the discharge transition from specialized chronic pain services to community self-management. Our findings highlight the importance of provider-patient collaboration during the discharge planning process to develop a patient-centered self-management plan that incorporates community resources tailored to the needs of the individual to promote an optimal discharge.

背景:患有慢性疼痛的年轻人(YA)会影响身体、情感、社会、认知和生活中的角色功能领域。一旦他们接受了专业的慢性疼痛护理,他们就需要在复杂的卫生保健系统中自我导航,以过渡到社区护理(即初级保健)。出院计划不充分可能会增加asa在自我管理方面面临的独特困难,这可能导致不良的健康结果、次优出院以及需要重新获得护理。目的:本定性研究的目的是探讨慢性疼痛患者如何定义从专业慢性疼痛服务设置的健康服务提供模式到社区设置(即初级保健)的自我管理的成功出院转变,以及促进出院成功的环境因素。方法:本定性研究纳入了患有慢性疼痛的年轻成人。数据通过半结构化访谈获得,逐字记录,并采用归纳内容分析法进行分析。结果:10名参与者认为,成功的出院包括以下考虑因素:(1)承认前进和回顾之间的紧张关系;(2)协作出院过程;(3)需要持续的相关资源和支持。结论:本研究提供了对慢性疼痛患者在从专业慢性疼痛服务到社区自我管理的出院过程中如何成功转变的更深入的理解。我们的研究结果强调了在出院计划过程中,医患合作的重要性,以制定以患者为中心的自我管理计划,该计划结合了针对个人需求的社区资源,以促进最佳出院。
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引用次数: 0
Statement of Retraction: Role of dynorphin in memory deficits associated with chronic pain. 撤回声明:达吗啡肽在与慢性疼痛相关的记忆缺陷中的作用。
IF 2.4 Q3 CLINICAL NEUROLOGY Pub Date : 2024-04-15 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2337608

[This retracts the article DOI: 10.1080/24740527.2022.2088027.].

[本文撤稿,DOI: 10.1080/24740527.2022.2088027.]。
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引用次数: 0
期刊
Canadian Journal of Pain-Revue Canadienne de la Douleur
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