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The intersectional implications of a quantitative epistemology in pain care and research. 定量认识论在疼痛护理和研究中的交叉影响。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2025-02-28 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2025.2454672
Michelle Charette, Gabi Schaffzin

Background: There is a growing interest in understanding the long-standing tension between subjective experience and objective measurement, with a focus on better understanding personal or lived experience. However, quantitative pain measurement is itself a complicated practice that is rarely examined. The method does not exist in a vacuum but along a historical trajectory that we believe to be worth unpacking.

Aims: We seek to highlight (1) the problematics associated with a systemic reliance on quantitative tools that are themselves validated via statistical methods; (2) what alternatives already exist, regardless of their logistical shortcomings; and (3) the actual and possible consequences of continuing a trajectory of data-based pain rating.

Methods: We present historical and contemporary case studies through theoretical frames that help the reader understand the social construction of pain as a phenomenon whose quantification has been justified with statistical approaches.

Results: Relying on quantitative data for a pain rating that is perceived as more valid, reliable, and efficient-a triad that has come to represent the ideal pain measurement instrument-risks entrenching both patient/participant and clinician/researcher in systems of computation and control. This is detrimental to society's most vulnerable populations.

Conclusions: Patients, practitioners, and social scientists all have an opportunity to reframe their understanding of pain measurement as medical practice to build more equitable spaces in pain medicine.

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引用次数: 0
Coping in youth living with chronic pain: A systematic review of qualitative evidence.
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2025-02-25 eCollection Date: 2025-01-01 DOI: 10.1080/24740527.2025.2455494
Roberta L Woodgate, Ashley Bell, Julianna Petrasko, Christine J Neilson, Olabisi Ayeni

Background: Chronic pain is progressively receiving attention as a universal public health priority. It is anticipated that there will be an increase in the prevalence of chronic pain in the coming years, particularly among youth. Chronic pain can be stressful and have a significant impact on young people and their family.

Aims: The aim of this systematic review was to synthesize the best available qualitative evidence on the coping experiences of youth living with chronic pain and to note whether there were any differences in their coping experiences.

Methods: A multi-database search was conducted including child development and adolescent studies. CINAHL, MEDLINE, PsycINFO, Embase, and Scopus were searched for eligible English-language articles from inception to December 2023. Out of 1625 article titles and abstracts screened for eligibility, 280 articles underwent full-text screening, with 20 ultimately meeting all inclusion criteria. We conducted a thematic analysis of data extracted from the 20 reviewed articles.

Results: We arrived at two synthesized findings. A Different Way of Being considers the experience of being a youth with chronic pain. Learning to Get By looks at the coping strategies youth use to manage their chronic pain and involved youth using self-directed strategies, as well as relying on external supports.

Conclusions: It is apparent from these synthesized findings that youths' lives have been significantly impacted by chronic pain. Findings from this study can be used to support the care and well-being of youth living with chronic pain.

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引用次数: 0
An exploration of the increasing prevalence of chronic pain among Canadian veterans: Life After Service Studies 2016 and 2019.
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2025-01-30 eCollection Date: 2025-01-01 DOI: 10.1080/24740527.2024.2443631
Jhalok Ronjan Talukdar, Dena Zeraatkar, Andrew Thomas, Jason W Busse

Background: The Life After Service Study (LASS) suggests that the absolute prevalence of chronic pain among Canadian veterans, defined as pain lasting 3 months or longer, increased by 10% from 2016 to 2019.

Aims: We explored the association of year of survey administration, sociodemographic characteristics, military service, and health-related factors with the prevalence of chronic pain among Canadian veterans.

Methods: We analyzed 2016 and 2019 LASS data and built a multivariable regression model to explore factors associated with chronic pain. Measures of association are reported as adjusted odds ratios (ORs) and absolute risk increases (ARIs).

Results: The 2016 LASS (73% response rate; 3002 of 4121) reported a 41.4% prevalence of chronic pain, and the 2019 LASS (72% response rate; 2630 of 3671) reported a 51.5% prevalence of chronic pain among Canadian veterans. Respondents who completed the 2019 LASS were more likely to endorse an anxiety or related disorder, mood disorder, probable posttraumatic stress disorder, and traumatic brain injury. In our adjusted regression model, year of survey administration was not associated with chronic pain (OR = 1.08, P = 0.8); however, we found large associations with obesity class 1 (body mass index [BMI] = 30.0-34.9; OR = 3.66; 95% confidence interval [CI] 1.46-9.17; ARI 27%), obesity class 2 (BMI = 35.0-39.9; OR = 8.10; 95% CI 1.67-39.3; ARI 47%), mood disorder (OR = 3.20; 95% CI 1.49-6.88; ARI 24%), and an anxiety or related disorder (OR = 4.53; 95% CI 1.28-16.0; ARI 33%).

Conclusions: The increase in chronic pain among Canadian veterans from 2016 to 2019 appears confounded by increased comorbidities associated with chronic pain among responders in 2019.

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引用次数: 0
Enhancing self-management in chronic pain: Reflections on a qualitative study.
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2025-01-24 eCollection Date: 2025-01-01 DOI: 10.1080/24740527.2024.2448997
John Patrick C Toledo
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引用次数: 0
A regional program evaluation of the Stanford Chronic Pain Self-Management Program in Eastern Ontario, Canada.
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2025-01-24 eCollection Date: 2025-01-01 DOI: 10.1080/24740527.2024.2440338
E Hum, S Karunananthan, A Adil, I Moroz, R Davidson, C Liddy

Background: Health care providers often struggle to treat patients with chronic pain. One potential solution is to facilitate access to programs and tools that develop patients' skills and confidence in managing their own care.

Aims: This study aimed to describe the uptake of the Chronic Pain Self-Management Program (CPSMP) in Eastern Ontario and evaluate the effectiveness of the program in the acquisition of knowledge, confidence, and skills required to manage chronic pain, as measured by the Patient Activation Measure (PAM).

Methods: Using data routinely collected through the CPSMP between December 2017 and May 2023, we conducted a descriptive analysis of the number of participants each year, their gender, and their age distributions. We conducted a longitudinal analysis of the change in PAM score between participants' first (baseline) and last (follow-up) day in the program.

Results: Overall, 1023 individuals enrolled in the CPSMP during the study period, with enrollments peaking in 2018 and remaining stable thereafter. There was a higher proportion of females compared to males (69%, n = 709) and 50- to 59-year-olds compared to other ages. Of the 1023 participants enrolled, 151 completed PAM surveys at baseline and follow-up (15%), of which 69% experienced an increase of at least 4 points on the PAM (104/151).

Conclusion: Most participants were female and aged 50 to 59 years old. Among a sample of participants with available longitudinal data, the CPSMP demonstrated promising effectiveness at equipping participants with the knowledge, skills, and confidence to manage their pain. Replication in a larger representative sample is warranted.

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引用次数: 0
Understanding Needs for Chronic Musculoskeletal Pain Management in a Northern Dene and Métis Community: A Community Based Needs Assessment. 了解慢性肌肉骨骼疼痛管理在北方Dene和msamims社区的需求:基于社区的需求评估。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-12-06 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2412560
Tayah Zhang, Brenna Bath, Veronica McKinney, Jaris Swidrovich, Rachel Johnson, Heather Foulds, Nadia Makar, Melanie Montgrand, Stacey Lovo

Background: Chronic musculoskeletal (MSK) pain disproportionately affects Indigenous Peoples, and rural/remote communities face significant barriers in accessing care. La Loche, a Dene/Métis community in northern Saskatchewan, has limited access to specialized chronic pain management services and specialized health providers.

Aims: The aim of this needs assessment was to gain insight into the community's priorities, strengths, and concerns regarding chronic MSK pain management. Community engagement and relationship building were essential to ensure that cultural protocols were respected and community worldviews were accurately represented.

Methods: A community-directed needs assessment was conducted in collaboration with local health care providers and community members. To ensure appropriate representation of community-led priorities, reflexive thematic analysis was utilized and rooted within interpretive description and informed by community-based participatory research and Two-Eyed Seeing. Open discussions were conducted in person, over the phone, or via Zoom in a semistructured format. Thirteen individuals were interviewed (eight community members, five health care professionals).

Results: Interviews conducted with community members and health care providers were analyzed separately. Both yielded the same four major overarching themes: (1) impact of pain on daily living, (2) barriers limiting access to care and the understanding of pain between health care provider and patient, (3) systemic oppression and negative experiences with health care, and (4) strength-based solutions.

Conclusions: Five recommendations were developed to promote culturally safe and patient-centered environments for chronic MSK pain communication and future care delivery: (1) person-centered and community-directed care, (2) clinic model and staffing requirements, (3) practitioner education and awareness, (4) community education and awareness, and (5) community resources.

背景:慢性肌肉骨骼(MSK)疼痛对原住民的影响尤为严重,而农村/偏远社区在获得医疗服务方面面临着巨大障碍。拉洛克是萨斯喀彻温省北部的一个德尼/梅蒂斯社区,该社区获得专门的慢性疼痛管理服务和专业医疗服务提供者的机会有限。社区参与和建立关系对于确保尊重文化习俗和准确反映社区世界观至关重要:方法:与当地医疗服务提供者和社区成员合作,开展了以社区为导向的需求评估。为确保适当体现社区主导的优先事项,采用了反思性专题分析,并将其植根于解释性描述中,同时借鉴了社区参与式研究和 "双眼观察"。以半结构化的形式,通过面谈、电话或 Zoom 进行了公开讨论。共访谈了 13 人(8 名社区成员和 5 名医疗保健专业人员):对社区成员和医疗服务提供者的访谈分别进行了分析。结果:对社区成员和医疗服务提供者进行的访谈分别进行了分析,得出了相同的四大主题:(1)疼痛对日常生活的影响;(2)限制获得医疗服务的障碍以及医疗服务提供者和患者之间对疼痛的理解;(3)系统性压迫和医疗服务的负面体验;以及(4)基于力量的解决方案:为促进文化安全和以患者为中心的慢性 MSK 疼痛交流环境以及未来的医疗服务,我们提出了五项建议:(1)以人为本和社区导向的医疗服务;(2)诊所模式和人员配备要求;(3)从业人员教育和意识;(4)社区教育和意识;以及(5)社区资源。
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引用次数: 0
Prospective Preference Assessment for the Psilocybin for Enhanced Analgesia in Chronic nEuropathic PAIN (PEACE-PAIN) Trial. 用于增强慢性神经痛镇痛效果的迷幻药(PEACE-PAIN)试验的前瞻性偏好评估。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-11-08 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2406285
Jiwon Lee, Kaylyssa Philip, Duminda N Wijeysundera, Hance Clarke, Cheryl Pritlove, Joel Katz, Paul Ritvo, Akash Goel, Muhammad Ishrat Husain, Karim S Ladha

Background: Negative perceptions of psilocybin and challenges of participant enrollment may represent barriers to conducting a randomized controlled trial examining psilocybin for chronic neuropathic pain.

Aim: Prior to trial initiation, we aimed to examine patient attitudes toward the trial via a prospective preference assessment.

Methods: Twenty-six patients with chronic neuropathic pain participated in a prospective preference assessment comprising quantitative (survey) and qualitative (interview) components. Content analysis was used to inductively and deductively identify factors that would motivate or discourage participation in the proposed trial. Demographics, clinical characteristics, and perceptions of psilocybin were collected to explore differences in characteristics between patients who were willing and unwilling to participate.

Results: Survey results showed that most participants (76.9%) were willing to participate in the PEACE-PAIN trial. "Willing" participants reported higher prior psychedelic use (75%) as compared to the "maybe willing" (0%) and "not willing" participants (0%). Interviews indicated that the top two factors that motivated participation included the need for new treatment options (31.7%) and benefits to personal pain management (31.7%). The top two discouraging factors included practical difficulties of research participation (16.7%), and adverse events associated with psilocybin (16.7%).

Conclusions: The PEACE-PAIN trial study design is supported by patient survey responses but may benefit from modifications, namely incorporating thorough discussions of the current evidence for efficacy, safety, tolerability, and approaches to address adverse effects of psilocybin. Additionally, the interest in participation by individuals with prior psychedelic use holds important methodological implications for the inclusion/exclusion criteria of the trial.

背景:目的:在试验开始之前,我们旨在通过前瞻性偏好评估考察患者对试验的态度:26名慢性神经病理性疼痛患者参加了由定量(调查)和定性(访谈)两部分组成的前瞻性偏好评估。内容分析法用于归纳和演绎确定激励或阻碍参与拟议试验的因素。此外,还收集了人口统计学、临床特征和对迷幻剂的看法,以探讨愿意和不愿意参与试验的患者之间的特征差异:调查结果显示,大多数参与者(76.9%)愿意参加 PEACE-PAIN 试验。与 "可能愿意"(0%)和 "不愿意"(0%)的参与者相比,"愿意 "的参与者表示以前使用过更多的迷幻药(75%)。访谈显示,促使参与者参与的前两个因素包括对新治疗方案的需求(31.7%)和对个人疼痛治疗的益处(31.7%)。前两个阻碍因素包括参与研究的实际困难(16.7%)和与迷幻药相关的不良事件(16.7%):结论:PEACE-PAIN 试验的研究设计得到了患者调查反馈的支持,但可能需要进行修改,即对目前的疗效、安全性、耐受性以及应对迷幻药不良反应的方法进行全面讨论。此外,曾使用过迷幻药的患者对参与试验的兴趣也对试验的纳入/排除标准产生了重要的方法论影响。
{"title":"Prospective Preference Assessment for the Psilocybin for Enhanced Analgesia in Chronic nEuropathic PAIN (PEACE-PAIN) Trial.","authors":"Jiwon Lee, Kaylyssa Philip, Duminda N Wijeysundera, Hance Clarke, Cheryl Pritlove, Joel Katz, Paul Ritvo, Akash Goel, Muhammad Ishrat Husain, Karim S Ladha","doi":"10.1080/24740527.2024.2406285","DOIUrl":"https://doi.org/10.1080/24740527.2024.2406285","url":null,"abstract":"<p><strong>Background: </strong>Negative perceptions of psilocybin and challenges of participant enrollment may represent barriers to conducting a randomized controlled trial examining psilocybin for chronic neuropathic pain.</p><p><strong>Aim: </strong>Prior to trial initiation, we aimed to examine patient attitudes toward the trial via a prospective preference assessment.</p><p><strong>Methods: </strong>Twenty-six patients with chronic neuropathic pain participated in a prospective preference assessment comprising quantitative (survey) and qualitative (interview) components. Content analysis was used to inductively and deductively identify factors that would motivate or discourage participation in the proposed trial. Demographics, clinical characteristics, and perceptions of psilocybin were collected to explore differences in characteristics between patients who were willing and unwilling to participate.</p><p><strong>Results: </strong>Survey results showed that most participants (76.9%) were willing to participate in the PEACE-PAIN trial. \"Willing\" participants reported higher prior psychedelic use (75%) as compared to the \"maybe willing\" (0%) and \"not willing\" participants (0%). Interviews indicated that the top two factors that motivated participation included the need for new treatment options (31.7%) and benefits to personal pain management (31.7%). The top two discouraging factors included practical difficulties of research participation (16.7%), and adverse events associated with psilocybin (16.7%).</p><p><strong>Conclusions: </strong>The PEACE-PAIN trial study design is supported by patient survey responses but may benefit from modifications, namely incorporating thorough discussions of the current evidence for efficacy, safety, tolerability, and approaches to address adverse effects of psilocybin. Additionally, the interest in participation by individuals with prior psychedelic use holds important methodological implications for the inclusion/exclusion criteria of the trial.</p>","PeriodicalId":53214,"journal":{"name":"Canadian Journal of Pain-Revue Canadienne de la Douleur","volume":"8 1","pages":"2406285"},"PeriodicalIF":2.0,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11552286/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing Quality of Referrals to a Community-Based Chronic Pain Clinic. 评估社区慢性疼痛诊所的转诊质量。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-28 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2402700
Angela Mailis, Amna Rafiq, Amol Deshpande, S Fatima Lakha

Introduction: Because patients with chronic pain are complex, with significant medical and psychiatric comorbidities, referrals to specialty pain clinics are often necessary. The present study explores the quality of information submitted and the profile of referring physicians associated with rejected patient referrals by a community pain clinic.

Methods: A retrospective cross-sectional study was conducted on a series of consecutive new patient referrals rejected by a noninterventional community pain clinic (November 2021-June 2022). Data were collected on the reasons for rejected referrals and physicians responsible for these referrals using the public database of the College of Physicians and Surgeons of Ontario.

Results: During the study period, 120 new referrals made by 99 physicians (88% primary care providers, or PCPs; male : female ratio 1:1.2; 53% Canadian university graduates) were rejected because of inadequate information (62%) or because they were inappropriate (38%). Only 46% of the rejected referrals were resubmitted within a median of 7 days (range 0-96 days) and accepted. Half of the non-resubmitted referrals could have been accepted if the referring provider had sent in the missing information.

Conclusion: A significant number of referrals to our pain clinic (primarily from PCPs) are rejected for mainly avoidable reasons. The process of rejected referrals and resubmissions requires 92 to 126 h of additional staff time/year. Without additional health care resources, our study highlights simple but effective improvements in the referral process that could facilitate patient care, avoid unnecessary delays, and decrease possible sources of patient complaints.

导言:由于慢性疼痛患者病情复杂,合并有严重的内科和精神科疾病,因此往往需要转诊到疼痛专科诊所。本研究探讨了社区疼痛诊所拒绝转诊病人时所提交信息的质量和转诊医生的情况:一项回顾性横断面研究针对一家非介入性社区疼痛诊所(2021 年 11 月至 2022 年 6 月)拒绝的一系列连续新患者转诊进行了研究。研究人员利用安大略内科和外科医生学院的公共数据库收集了转诊被拒的原因和负责这些转诊的医生的数据:在研究期间,99 名医生(88% 为初级保健提供者或初级保健医生;男女比例为 1:1.2;53% 为加拿大大学毕业生)的 120 个新转介病人因信息不足(62%)或不合适(38%)而被拒绝。在被拒绝的转介人中,只有 46% 在中位数 7 天(0-96 天不等)内重新提交并被接受。在未重新提交的转诊病例中,如果转诊医生提交了缺失的信息,有一半的病例本可以被接受:结论:我们疼痛诊所有大量转诊病人(主要来自初级保健医生)被拒,主要原因是可以避免的。处理被拒绝的转诊病人和重新提交转诊病人的过程需要工作人员每年额外花费 92 到 126 小时的时间。在不增加医疗资源的情况下,我们的研究强调了转诊流程中简单而有效的改进措施,这些措施可以促进患者护理、避免不必要的延误并减少患者投诉的可能来源。
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引用次数: 0
The Influence of Loneliness on Pain Outcomes for Adolescents: A Cross-Sectional Survey. 孤独对青少年疼痛结果的影响:一项横断面调查
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-28 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2404615
Paula A Forgeron, Jennifer Stinson, Kathryn Birnie, G Allen Finley, Abbie Jordan, Pamela Qualter, Ligyana Candido, Michelle Lamont, Cassidy Bradley, Delane Linkiewich, Trinity Lowthian, Samuel McNally, Natasha Trehan, Bruce Dick

Background: Loneliness, the perception that one's social relationships do not meet the desire for social connection, is a risk factor for poor mental and physical health. Adolescents with chronic pain experience higher rates of peer loneliness which persists over time. Previous studies used a single loneliness measure, limiting our understanding of the nature of their loneliness. This study describes the types of peer loneliness (intimate, relational, and collective) experienced by these adolescents and the impact that peer loneliness has on pain-related outcomes.

Methods: A cross-sectional online survey was completed by 128 Canadian adolescents aged 12-18 years who experienced pain for at least 3 months. Validated measures captured demographics, pain-related characteristics, types of peer-related loneliness, measures of social well-being, and mental and physical health outcomes.

Results: Friedman's tests of z-scores indicate that participants equally experienced dyadic, relational, and collective peer loneliness. MANCOVA revealed that those who identify as Black were lonelier after controlling for socioeconomic status. Multiple regression showed that loneliness was a robust predicter of worse scores on social well-being and mental health outcomes with males and females equally impacted by loneliness. Despite moderate correlations between loneliness and pain interference and pain intensity, loneliness did not predict school absences, suggesting that loneliness' influence on physical pain outcomes may be temporally earlier (e.g. contribute to pain chronification).

Conclusions: Peer loneliness among adolescents with chronic pain negatively impacts their social well-being and mental health outcomes. Interventions addressing loneliness to target all three types of peer loneliness may be key to improving pain-related outcomes.

背景:孤独是指一个人认为自己的社会关系不能满足其对社会联系的渴望,它是导致身心健康状况不佳的一个危险因素。患有慢性疼痛的青少年有较高的同伴孤独感,而且这种孤独感会随着时间的推移而持续。以往的研究使用单一的孤独感测量方法,限制了我们对其孤独感本质的理解。本研究描述了这些青少年经历的同伴孤独类型(亲密孤独、关系孤独和集体孤独),以及同伴孤独对疼痛相关结果的影响:128名年龄在12-18岁之间、经历过至少3个月疼痛的加拿大青少年完成了一项横断面在线调查。经过验证的测量指标包括人口统计学特征、疼痛相关特征、与同伴相关的孤独感类型、社会幸福感测量指标以及身心健康结果:弗里德曼 Z 值检验表明,参与者同样体验到了同伴间的双向孤独感、关系孤独感和集体孤独感。MANCOVA 显示,在控制了社会经济地位之后,那些被认定为黑人的人更孤独。多元回归显示,孤独感是社会福利和心理健康结果得分较差的可靠预测因素,男性和女性受到孤独感的影响相同。尽管孤独感与疼痛干扰和疼痛强度之间存在中等程度的相关性,但孤独感并不能预测缺课情况,这表明孤独感对身体疼痛结果的影响可能在时间上更早(如导致疼痛慢性化):结论:患有慢性疼痛的青少年的同伴孤独感会对他们的社会福祉和心理健康产生负面影响。针对这三类同伴孤独感的干预措施可能是改善疼痛相关结果的关键。
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引用次数: 0
[Enhancing Chronic Pain Management: Exploring the Essential Contribution of Primary Care Nurses]. [加强慢性疼痛管理:探索初级护理护士的重要贡献]。
IF 2 Q3 CLINICAL NEUROLOGY Pub Date : 2024-10-07 eCollection Date: 2024-01-01 DOI: 10.1080/24740527.2024.2394207
Andréanne Bernier, Marie-Eve Poitras, Anaïs Lacasse
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引用次数: 0
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Canadian Journal of Pain-Revue Canadienne de la Douleur
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