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The effects of changing the classroom play environment on the peer interactions of autistic children with an intellectual disability 改变课堂游戏环境对智障自闭症儿童同伴交往的影响
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-08-01 DOI: 10.1108/tldr-12-2022-0030
Hayley Locke, Brian Fennell

Purpose

Autistic children, particularly those with an intellectual disability, often face difficulties with early verbal development and social interaction. The science of behaviour analysis has developed procedures shown through research to help support and teach these skills. Interventions focusing solely on manipulating the antecedent stimuli in the environment are presented less frequently in the literature than those concerned with response consequences. This study aims to evaluate if changes to the classroom environment would evoke prosocial behaviours during play sessions.

Design/methodology/approach

A multiple treatment reversal design was used to compare the presence of anthropomorphic toys, pet animals and toys themed upon preferred interests, introduced on a central table within the existing play area. Data were collected on the social behaviour of peers in two primary classrooms.

Findings

For five of the six participants, all three conditions resulted in increased social behaviour compared to baseline conditions.

Originality/value

At the time of the study, social interaction opportunities were limited due to the COVID-19 pandemic restrictions, placing greater emphasis on safely encouraging opportunities within the classroom to ensure skill maintenance. Due to the reported outcomes, educators, particularly in specialised settings, should focus on evaluating their classroom environment to ensure the contents and layout support children in maintaining and generalising their social skills. Further research on the benefits of class pets is also encouraged.

目的 自闭症儿童,尤其是智障儿童,往往在早期语言发展和社会交往方面遇到困难。通过研究,行为分析学已经开发出了有助于支持和教授这些技能的程序。与那些关注反应后果的干预措施相比,仅关注操纵环境中前因刺激的干预措施在文献中出现的频率较低。本研究旨在评估教室环境的改变是否会在游戏过程中唤起亲社会行为。设计/方法/途径 采用多重处理逆转设计,比较在现有游戏区的中央桌子上放置拟人化玩具、宠物玩具和以偏好兴趣为主题的玩具的情况。原创性/价值在研究期间,由于 COVID-19 大流行病的限制,社交互动的机会有限,因此更加强调在教室内安全地鼓励社交互动的机会,以确保技能的维持。根据所报告的结果,教育工作者,尤其是特殊教育机构的教育工作者,应重点评估教室环境,以确保教室内容和布局有助于儿童保持和推广社交技能。我们还鼓励对班级宠物的益处进行进一步研究。
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引用次数: 0
Using the children’s accelerated trauma technique with adults with intellectual disabilities 对智障成人使用儿童加速创伤技术
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-07-25 DOI: 10.1108/tldr-10-2023-0026
Kevin O'Farrell, Nick Garner, Matt Symes

Purpose

This paper aims to explore using the children’s accelerated trauma technique (CATT) in an adult intellectual disability population, with the aim of reducing symptoms of post-traumatic stress disorder (PTSD).

Design/methodology/approach

A service evaluation was completed to investigate differences between pre- and post-CATT trauma scores.

Findings

Scores on a measure of PTSD decreased significantly following CATT.

Practical implications

The findings support continued use of CATT in adults with intellectual disabilities, and they highlight the need to evaluate effectiveness in a larger sample.

Originality/value

This paper evaluates the novel application of a trauma treatment – developed for use with children – in an adult intellectual disability population and adds to the existing evidence base.

目的本文旨在探讨在成年智障人群中使用儿童加速创伤技术(CATT),以减少创伤后应激障碍(PTSD)的症状.设计/方法/途径完成了一项服务评估,以调查儿童加速创伤技术使用前后创伤评分之间的差异.研究结果儿童加速创伤技术使用后,创伤后应激障碍的评分显著下降.研究结果支持在成年智障人士中继续使用 CATT,并强调了在更大样本中评估其有效性的必要性。
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引用次数: 0
Commentary on “The effects of changing the classroom play environment on the peer interactions of autistic children with an intellectual disability” 关于 "改变课堂游戏环境对智障自闭症儿童同伴交往的影响 "的评论
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-07-24 DOI: 10.1108/tldr-06-2024-0025
Jisan Phillips

Purpose

This paper aims to explore the challenges and themes discussed in the associated article “The Effects of Changing the Classroom Play Environment on the Peer Interactions of Autistic Children with an Intellectual Disability.” It expands on the research's context, foundation and potential impact, critically analysing the evidence on this topic.

Design/methodology/approach

This commentary evaluates the perceptions and effectiveness of different classroom play environments for autistic children with intellectual disabilities, using a multiple treatment reversal design (ABACADA) to investigate how various play conditions impact prosocial behaviours.

Findings

The inclusion of toys related to preferred interests, such as anthropomorphic toys and small animals, promotes engagement and social interactions. The commentary highlights common barriers, but the study’s results are encouraging. Further investigation could benefit clinicians and educators in optimising classroom setups for applied practice. Potential solutions to barriers are considered.

Originality/value

The value and design of classroom play environments for autistic children with intellectual disabilities remain debated. This commentary provides a balanced, evidence-based perspective on how specific stimuli can enhance prosocial behaviours, contributing to ongoing discussions on inclusive and supportive educational practices.

目的 本文旨在探讨相关文章 "改变课堂游戏环境对智障自闭症儿童同伴互动的影响 "中讨论的挑战和主题。本评论评估了智障自闭症儿童对不同教室游戏环境的看法和效果,使用多重治疗逆转设计(ABACADA)调查各种游戏条件如何影响亲社会行为。研究结果纳入与偏好兴趣相关的玩具,如拟人化玩具和小动物,可促进参与和社会互动。评论强调了常见的障碍,但研究结果令人鼓舞。进一步的调查可以帮助临床医生和教育工作者优化应用实践的课堂设置。原创性/价值针对智障自闭症儿童的教室游戏环境的价值和设计仍存在争议。这篇评论提供了一个平衡的、以证据为基础的视角,探讨了特定的刺激因素如何能够增强亲社会行为,为正在进行的有关包容性和支持性教育实践的讨论做出了贡献。
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引用次数: 0
Frontline managers’ experiences of practice leadership for when supporting autistic adults with complex support needs residing in community housing 一线管理人员在为居住在社区住房、有复杂支持需求的自闭症成人提供支持时的实践领导经验
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-07-16 DOI: 10.1108/tldr-01-2024-0001
Georgina Rickard, Roy Deveau

Purpose

This study aims to investigate the experiences of frontline managers supervising and developing staff to support autistic adults living in two types of residential housing in the community.

Design/methodology/approach

A qualitative approach used semi-structured interviews with 14 frontline managers. Audio-taped material was transcribed and analysed using thematic analysis.

Findings

Two main themes emerged. Theme 1 “autism in practice” illustrates commonalities observed to affect autistic adults with learning disabilities receiving staff support; whilst one sub-theme illustrated the diversity in how these commonalities may be experienced and expressed, another focused on participants’ experiences of staff concerns regarding behaviours described as challenging. Theme two, “what’s important in autism-informed support” reflected participants’ perceptions of the features of successful person-centred staff support for autistic service users.

Research limitations/implications

The “rich” experiences of these managers may not be readily generalised.

Practical implications

Features of good staff support for autistic adults who may show behaviours of concern included attending to individuals’ specific communication and sensory needs and for predictability within their environments. Developing staff skills and confidence to implement skilled approaches in the context of often high risk behaviour of concern took time and frontline managers “on site” to observe, coach, mentor and demonstrate good practice. More intellectually (verbally) able service-users were perceived as more “difficult” to support.

Social implications

Staff supporting autistic adults in ordinary housing need frontline managers to act as practice leaders rather than administrators.

Originality/value

This study is the first to report, to the best of the authors’ knowledge, on management for staff supporting autistic adults living in community housing.

本研究旨在调查一线管理人员在监督和培养员工以支持居住在社区两类住宅中的自闭症成年人方面的经验。对录音材料进行了转录,并采用主题分析法对其进行了分析。主题 1 "实践中的自闭症 "说明了所观察到的影响接受员工支持的有学习障碍的成年自闭症患者的共同点;一个次主题说明了这些共同点的体验和表达方式的多样性,另一个次主题侧重于参与者对员工关注被描述为具有挑战性的行为的体验。主题二 "自闭症支持的重要意义 "反映了参与者对工作人员为自闭症服务对象提供以人为本的成功支持的特点的看法。研究局限性/影响这些管理人员的 "丰富 "经验可能无法轻易推广。培养员工的技能和信心,使其能够在经常出现高风险行为的情况下采用熟练的方法,这需要时间,也需要一线管理人员 "现场 "观察、指导、辅导和示范良好的做法。社会影响在普通住房中为成年自闭症患者提供支持的工作人员需要一线管理人员充当实践领导者,而不是管理者。原创性/价值据作者所知,本研究是第一份关于在社区住房中为成年自闭症患者提供支持的工作人员管理的报告。
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引用次数: 0
Commentary on “Stakeholder experiences of deprescribing psychotropic medicines for challenging behaviour in people with intellectual disabilities” 关于 "利益相关者对智障人士因挑战行为而停用精神药物的经验 "的评论
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-07-12 DOI: 10.1108/tldr-05-2024-0022
Adam Clifford, Mariam Omokanye, Deval Bagalkote

Purpose

This paper aims to provide a commentary response to “Stakeholder experiences of deprescribing psychotropic medicines for challenging behaviour in people with intellectual disabilities”.

Design/methodology/approach

The commentary provides some evidence-based perspectives on the risks and challenges of psychiatric drug-withdrawal, emphasising the importance of the patient experience in deprescribing decisions. It also makes the case for clinical clarity and carer-engagement in optimising deprescribing outcomes for individuals. Some clinical reflections are provided.

Findings

Whilst efforts to reduce the overmedication of people with learning disabilities are welcomed, there is lacking evidence around this population’s experience of adverse effects from psychiatric deprescribing decisions, including differentiating between withdrawal and relapse effects. Clinical clarity and carer engagement are key to safe and effective prescribing, although in reality, this can be challenging.

Originality/value

This paper will be of value to all professionals with a role in the effective deprescribing of psychiatric medications with and/or for people with intellectual disability. It provides perspectives on aspects of stakeholder experience that warrant further consideration and research.

本文旨在对 "利益相关者对智障人士因具有挑战性行为而停用精神药物的经验 "进行评论回应。它还提出了临床清晰度和护理人员参与优化个人停药结果的理由。研究结果尽管减少对有学习障碍的人过度用药的努力受到欢迎,但仍缺乏有关这一人群在精神科处方决策中的不良反应体验的证据,包括区分戒断和复发的影响。临床清晰度和照护者的参与是安全有效处方的关键,尽管在现实中,这可能具有挑战性。原创性/价值 本文对所有参与对智障人士和/或为智障人士有效取消精神科药物处方的专业人士都有价值。它为利益相关者的经验提供了值得进一步考虑和研究的视角。
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引用次数: 0
Commentary on: an evaluation of a speech and language therapy eating, drinking, and swallowing service for adults with intellectual disability (Crocker et al., 2024) 评论:对智障成人饮食和吞咽语言治疗服务的评估(Crocker 等人,2024 年)
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-05-31 DOI: 10.1108/tldr-04-2024-0016
Kitty Stewart, Nina Heckelmann, Alida Roos

Purpose

The purpose of this paper is to expand upon some of the issues raised in “An evaluation of a speech and language therapy eating, drinking and swallowing service for adults with intellectual disability” (Crocker et al., 2024).

Design/methodology/approach

This commentary outlines considerations for multidisciplinary team working and professional roles both within and beyond the community learning disability team. It discusses models of service delivery and competency frameworks relating to eating, drinking and swallowing services.

Findings

Services should be integrated, include a broad multidisciplinary team and aim to increase competency in all contexts supporting people with eating, drinking and swallowing needs. Outcomes of service provision need to be measured outside of individualised care.

Originality/value

This paper broadens the discussion of quality of eating, drinking and swallowing services beyond speech and language therapy and considers a whole systems approach.

设计/方法/方法本评论概述了社区学习障碍团队内外的多学科团队工作和专业角色的注意事项。它讨论了与饮食和吞咽服务有关的服务提供模式和能力框架。研究结果服务应该是综合性的,包括一个广泛的多学科团队,并旨在提高在所有情况下支持有饮食和吞咽需要的人的能力。本文将饮食和吞咽服务质量的讨论范围扩大到言语治疗之外,并考虑了整体系统方法。
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引用次数: 0
Overcoming implementation challenges through using a train-the-trainer approach to teach numeracy in a special school setting 在特殊学校环境中采用培训员培训方法教授算术,克服实施挑战
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-04-29 DOI: 10.1108/tldr-08-2023-0019
Debbie Reardon, Magda M. Apanasionok, Corinna Grindle

Purpose

There is a sparsity of research that considers how to overcome implementation challenges for interventions in special school settings where specialist teaching methods are involved. Successful implementation has often relied on considerable researcher involvement, making them inaccessible and not sustainable for the majority of special schools. The purpose of this study was to implementa train-the-trainer approach to train teaching staff to use the Teaching Early Numeracy to Children with Developmental Disabilities (TEN-DD) programme in a large special school in the UK, thereby significantly reducing researcher involvement in its implementation.

Design/methodology/approach

One staff member was trained to become the school lead for TEN-DD and trained other teaching staff in the school on implementation. This study recruited 13 students aged between 12 and 16 years of age with developmental disabilities to receive TEN-DD. Pre- and post-intervention tests on a standardised numeracy measure were conducted.

Findings

A train-the-trainer model was developed and successfully delivered to train teaching staff in TEN-DD. A standardised outcome measure indicated that ten students made improvements to their numeracy skills after teachers trained using this approach delivered TEN-DD for between 3 and 10 months.

Originality/value

Very little research has been carried out to better understand methods for overcoming implementation challenges for delivering evidence-based teaching programmes at scale to students with developmental disabilities who attend special schools. To the best of the authors’ knowledge, this study reports the results of the first evaluation of using a train-the-trainer model for the delivery of a numeracy intervention (TEN-DD), whereby there was no involvement of researchers in implementation beyond the initial training of the school lead. This model of training for interventions may be more sustainable for special schools and help improve the uptake of evidence-based interventions.

目的:对于如何克服特殊学校环境中涉及专业教学方法的干预措施的实施挑战,目前还缺乏研究。干预措施的成功实施往往依赖于大量研究人员的参与,这使得大多数特殊学校无法获得干预措施,也无法持续实施干预措施。本研究的目的是在英国一所大型特殊学校中,采用 "培训培训师 "的方法,培训教学人员使用 "向发育障碍儿童教授早期算术(TEN-DD)"计划,从而大大减少研究人员在计划实施过程中的参与。本研究招募了13名年龄在12至16岁之间的发育障碍学生,让他们接受TEN-DD。研究结果 研发了一种 "培训培训师 "模式,并成功地对教学人员进行了 TEN-DD 培训。一项标准化的结果测量显示,在使用这种方法对教师进行了 3 至 10 个月的 TEN-DD 培训后,10 名学生的计算技能得到了提高。原创性/价值为了更好地了解如何克服实施挑战,为特殊学校中的发育障碍学生大规模提供循证教学计划,目前几乎没有开展任何研究。据作者所知,本研究报告了首次使用 "培训培训师 "模式实施算术干预(TEN-DD)的评估结果,根据该模式,除了对学校领导进行初步培训外,研究人员不参与实施工作。这种干预措施培训模式对特殊学校来说更具有可持续性,有助于提高对循证干预措施的吸收。
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引用次数: 0
Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network 共同努力提高智力和发育障碍研究证据的质量:学术与实践网络案例研究
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-04-29 DOI: 10.1108/tldr-08-2023-0018
Corinna Grindle, Louise D. Denne, Emily J. Roberts-Tyler, Suzi Jayne Sapiets, Magda M. Apanasionok, J. Carl Hughes, Richard P. Hastings, Nick Gore, Peter Baker, Claire McDowell

Purpose

With a historic lack of attention to synthesis methods such as systematic review and meta-analysis and a lack of randomised controlled trials, the evidence base for behavioural interventions for children and adults who are autistic or are diagnosed with developmental disabilities is patchy. The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), a network of like-minded researchers and practitioners across the UK, aims to address this. The purpose of this paper is to describe the network’s work and provide the context for the remaining articles in the special issue that exemplify network projects.

Design/methodology/approach

In this case study paper, the authors describe how the SF-DDARIN works and is resourced, detailing the process used to maximise research opportunities by facilitating network members working together. The authors outline the progressive research steps that the SF-DDARIN has identified are needed to develop and improve the evidence base for behavioural interventions systematically and, with examples, describe how the network delivers these steps.

Findings

Since its establishment in 2016, the SF-DDARIN network members have collectively worked on more than 53 projects involving over 50 researchers, had over 120 special schools contribute to projects and have recruited over 500 participants. This has been achieved through funding from the Sharland Foundation, primarily to cover the staffing costs of a small support team and internship partnerships with external organisations. Some projects have attracted external funding.

Originality/value

SF-DDARIN may provide an innovative, effective and resource-efficient model for other groups seeking to develop and extend their evidence base in developmental disability research.

目的由于历来缺乏对系统回顾和荟萃分析等综合方法的关注,也缺乏随机对照试验,因此针对自闭症儿童和成人或被诊断为发育障碍的儿童和成人的行为干预措施的证据基础是零散的。夏兰基金会发育障碍应用行为研究和影响网络(SF-DDARIN)是一个由英国各地志同道合的研究人员和从业人员组成的网络,旨在解决这一问题。本文旨在介绍该网络的工作,并为本特刊中介绍网络项目的其余文章提供背景资料。在这篇案例研究论文中,作者介绍了 SF-DDARIN 的工作方式和资源来源,并详细说明了通过促进网络成员合作来最大化研究机会的过程。作者概述了 SF-DDARIN 确定的循序渐进的研究步骤,这些步骤是系统开发和改进行为干预证据基础所必需的,并通过实例介绍了该网络如何实施这些步骤。研究结果自 2016 年成立以来,SF-DDARIN 网络成员已共同开展了超过 53 个项目,涉及 50 多名研究人员,有 120 多所特殊学校为项目做出了贡献,并招募了 500 多名参与者。这些成绩的取得得益于夏兰基金会的资助,主要用于支付小型支持团队的人事费用以及与外部组织的实习合作。原创性/价值SF-DDARIN 可以为其他寻求发展和扩大发育障碍研究证据基础的团体提供一个创新、有效和资源节约型的模式。
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引用次数: 0
An evaluation of a speech and language therapy eating, drinking and swallowing service for adults with intellectual disability 评估为智障成人提供的饮食和吞咽言语治疗服务
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-03-25 DOI: 10.1108/tldr-05-2023-0011
Angela Crocker, Jill Titterington, Michelle Tennyson
<h3>Purpose</h3><p>This study aims to evaluate the quality of a speech and language therapy (SLT) swallow service provided to adults with intellectual disability (ID) by exploring the process and outcome factors; to explore the process of what is done to and for the patient including identifying dysphagia, choking and pneumonia risk, typical interventions and management; examine clinical outcomes; and explore the relationship of outcomes with risk factors, satisfaction with the service and the impact of the service on the number of choking incidents and admissions to acute hospital with swallow concerns.</p><!--/ Abstract__block --><h3>Design/methodology/approach</h3><p>There were three specific work packages: (1) collecting and scrutinising patient data from the clinical record for adults with ID referred to the SLT swallow service over a six-month period. The researcher created aims, defined the limits to achieve the aims, designed a standardised data collection form, set out where data was in the clinical record, piloted, set limits for collection and trained reviewers; (2) gathering experience and satisfaction surveys from patients, caregivers and referrers over the six-month study period; and (3) monitoring choking adverse incident reports and hospital admission with swallow concerns for the whole ID population.</p><!--/ Abstract__block --><h3>Findings</h3><p>Choking and hospital admission were the main reasons for referral, and pneumonia risk significantly predicted dysphagia impairment. The research highlighted common dysphagia risk factors, interventions and recommendations for this population. The SLT swallow service is a quality service that is highly valued by patients, their caregivers and referrers. The service achieves significant clinical improvements, helps identify dysphagia and provides management to reduce associated risks.</p><!--/ Abstract__block --><h3>Research limitations/implications</h3><p>This study found common dysphagia risk factors, interventions and recommendations; it also found that the therapy outcome measures/Royal College of Speech and Language Therapy online outcome tool was a meaningful outcome measure, and that pneumonia risk significantly predicted dysphagia impairment, all of which could inform the identified dysphagia research priorities for this population.</p><!--/ Abstract__block --><h3>Practical implications</h3><p>Naming usual care in treatment and recommendations could help ensure a fair service and could help form quality indicators. People with ID, their caregivers and staff generated valuable ideas for improvement, and further involvement work could create a logic model for the service. Other future work could explore the use of screening tools, increase multidisciplinary team working, improve access to instrumental assessments, raise awareness of swallowing and promote important oral health and medication reviews. By using this information to shape quality improvement work and policies,
目的本研究旨在通过探讨过程和结果因素,评估为智障成人提供的言语和语言治疗(SLT)吞咽服务的质量;探讨为患者提供服务的过程,包括识别吞咽困难、窒息和肺炎风险、典型干预和管理;检查临床结果;探讨结果与风险因素的关系、对服务的满意度以及服务对窒息事件和因吞咽问题入住急症医院人数的影响。设计/方法/途径有三个具体的工作包:(1)从临床记录中收集并仔细检查六个月内转诊到 SLT 吞咽服务的智障成人患者数据。研究人员制定了目标,确定了实现目标的范围,设计了标准化的数据收集表格,规定了数据在临床记录中的位置,进行了试点,设定了收集范围,并对审查人员进行了培训;(2)在为期六个月的研究期间,收集患者、护理人员和转介者的经验和满意度调查;以及(3)监测整个智障人群的窒息不良事件报告和因吞咽问题入院的情况。研究结果窒息和入院是转介的主要原因,肺炎风险可显著预测吞咽障碍。研究强调了该人群常见的吞咽困难风险因素、干预措施和建议。SLT 吞咽服务是一项优质服务,受到患者、其护理人员和转介人的高度评价。这项研究发现了常见的吞咽困难风险因素、干预措施和建议;研究还发现,治疗结果测量/英国皇家言语和语言治疗学院在线结果工具是一项有意义的结果测量,肺炎风险可显著预测吞咽困难损伤,所有这些都可为确定的吞咽困难研究重点提供信息。实际意义在治疗和建议中命名常规护理有助于确保服务的公平性,并有助于形成质量指标。智障人士、其护理人员和工作人员提出了宝贵的改进意见,进一步的参与工作可以为服务创建一个逻辑模型。未来的其他工作可以探索筛查工具的使用、加强多学科团队合作、改善工具评估的使用、提高吞咽意识以及促进重要的口腔健康和药物审查。通过利用这些信息来制定质量改进工作和政策,我们可以努力解决这一弱势群体中与吞咽困难相关的严重健康不平等和可预防的死亡问题。社会影响提高人们对智障成年人提前衰老的认识可能是有益的,我们不应该因为年龄门槛(通常比预期寿命更高)而将他们排除在老年人服务之外。本研究强调了对于没有直接护理人员或日间护理人员的智障成年人来说,可能存在使用服务不平等的问题。总之,对智障成人吞咽服务的评估表明,SLT 为智障成人提供的优质服务得到了高度评价,并显著改善了临床状况。通过利用这些优势,SLT 可以扩大其服务范围、影响力和作用,以帮助那些新出现吞咽困难或没有获得服务的智障成人。
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引用次数: 0
Patient and referral characteristics of adults with intellectual disability referred to speech and language therapy with eating, drinking and swallowing difficulties 因进食、饮水和吞咽困难而接受言语和语言治疗的成年智障人士的患者和转介特征
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2024-03-25 DOI: 10.1108/tldr-12-2023-0038
Angela Crocker, Jill Titterington, Michelle Tennyson

Purpose

This study aims to investigate the prevalence and characteristics of dysphagia among adults with intellectual disabilities (ID) referred to speech and language therapy for swallow assessment, providing information on the demographic characteristics, referral trends, co-occurring health conditions and reasons for referrals highlighting the complex health-care needs of this population.

Design/methodology/approach

This study used a standardised patient data extraction method over a six-month period involving 74 adults with ID referred to speech and language therapy for swallow assessment.

Findings

This study revealed a high prevalence of dysphagia among adults with ID referred to speech and language therapy for swallow assessment. Increasing age and severity of ID were associated with an increased likelihood of swallowing difficulties. Co-occurring health conditions such as mobility difficulties, epilepsy and gastrointestinal conditions were prevalent, suggesting that adults with ID and swallowing difficulties are often living with complex health conditions. Choking incidents and hospital admissions were primary reasons for referral.

Research limitations/implications

This study stresses the pressing need for strategies to mitigate risks associated with choking incidents and hospital admission among this vulnerable population. Possible limitations include a reliance on referral and the focus being on a single service over a short period which may limit generalisation to the wider ID population.

Practical implications

This study emphasises the need to understand each person’s unique profile of health needs and the value of a specialised speech and language therapy service.

Social implications

The importance of increasing awareness among caregivers and medical experts is highlighted.

Originality/value

The findings underscore the importance of tailored assessment, caregiver involvement and heightened interdisciplinary awareness to effectively manage dysphagia in individuals with ID.

目的本研究旨在调查因吞咽评估而转诊至言语和语言治疗机构的智障成人中吞咽困难的患病率和特征,提供有关人口特征、转诊趋势、并发症和转诊原因的信息,突出强调这一人群复杂的医疗保健需求。设计/方法/途径本研究采用标准化患者数据提取方法,为期六个月,涉及74名转诊至言语和语言治疗机构进行吞咽评估的智障成人。研究结果本研究显示,转诊至言语和语言治疗机构进行吞咽评估的智障成人中,吞咽困难的发生率很高。智障者年龄和智障严重程度的增加与吞咽困难可能性的增加有关。行动不便、癫痫和胃肠道疾病等并发症也很普遍,这表明患有智障和吞咽困难的成年人往往伴随着复杂的健康状况。窒息事故和入院是转诊的主要原因。研究局限性/意义这项研究强调,迫切需要制定策略来降低这一弱势群体中与窒息事故和入院相关的风险。可能存在的局限性包括:依赖转诊,以及关注短期内的单一服务,这可能会限制对更广泛的智障人群的推广。社会影响强调了提高护理人员和医学专家认识的重要性。
{"title":"Patient and referral characteristics of adults with intellectual disability referred to speech and language therapy with eating, drinking and swallowing difficulties","authors":"Angela Crocker, Jill Titterington, Michelle Tennyson","doi":"10.1108/tldr-12-2023-0038","DOIUrl":"https://doi.org/10.1108/tldr-12-2023-0038","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>This study aims to investigate the prevalence and characteristics of dysphagia among adults with intellectual disabilities (ID) referred to speech and language therapy for swallow assessment, providing information on the demographic characteristics, referral trends, co-occurring health conditions and reasons for referrals highlighting the complex health-care needs of this population.</p><!--/ Abstract__block -->\u0000<h3>Design/methodology/approach</h3>\u0000<p>This study used a standardised patient data extraction method over a six-month period involving 74 adults with ID referred to speech and language therapy for swallow assessment.</p><!--/ Abstract__block -->\u0000<h3>Findings</h3>\u0000<p>This study revealed a high prevalence of dysphagia among adults with ID referred to speech and language therapy for swallow assessment. Increasing age and severity of ID were associated with an increased likelihood of swallowing difficulties. Co-occurring health conditions such as mobility difficulties, epilepsy and gastrointestinal conditions were prevalent, suggesting that adults with ID and swallowing difficulties are often living with complex health conditions. Choking incidents and hospital admissions were primary reasons for referral.</p><!--/ Abstract__block -->\u0000<h3>Research limitations/implications</h3>\u0000<p>This study stresses the pressing need for strategies to mitigate risks associated with choking incidents and hospital admission among this vulnerable population. Possible limitations include a reliance on referral and the focus being on a single service over a short period which may limit generalisation to the wider ID population.</p><!--/ Abstract__block -->\u0000<h3>Practical implications</h3>\u0000<p>This study emphasises the need to understand each person’s unique profile of health needs and the value of a specialised speech and language therapy service.</p><!--/ Abstract__block -->\u0000<h3>Social implications</h3>\u0000<p>The importance of increasing awareness among caregivers and medical experts is highlighted.</p><!--/ Abstract__block -->\u0000<h3>Originality/value</h3>\u0000<p>The findings underscore the importance of tailored assessment, caregiver involvement and heightened interdisciplinary awareness to effectively manage dysphagia in individuals with ID.</p><!--/ Abstract__block -->","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"43 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2024-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140198056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Tizard Learning Disability Review
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