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Making the world a better place: achieving impact through innovation and an entrepreneurial ethos 让世界变得更美好:通过创新和创业精神实现影响力
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-08-21 DOI: 10.1108/tldr-08-2020-0019
Jonathan Pepin
PurposeThe purpose of this paper is to describe and evaluate the programme of philanthropy arising from the work of the Shirley Foundation, with particular reference to its impact in addressing issues related to autism.Design/methodology/approachThe paper is based on the 2017 evaluation of The Shirley Foundation 1996–2016 by Aperio Group (Europe) Limited entitled 20 Years of Grant Making Autism and Information Technology: An Overview of The Foundation’s Impact (Pepin, 2017). The evaluation included interviews with Dame Stephanie Shirley CH (the Foundation’s founder), a documentation review and a survey of key grantees.FindingsThe evaluation concluded that the funding achieved both grantee purposes and those of The Shirley Foundation. The projects funded generally produced outcomes that made a difference and grant-making and monitoring processes were regarded, on the whole, as efficient.Originality/valueThe evaluation demonstrates the value of an innovative, catalytic, social entrepreneurial approach to funding to achieve impact.
本文的目的是描述和评估由雪莉基金会的工作产生的慈善项目,特别是它在解决与自闭症有关的问题方面的影响。设计/方法/方法本文基于Aperio Group (Europe) Limited对Shirley Foundation 1996-2016的2017年评估,题为“20年的资助自闭症和信息技术:基金会影响概述”(Pepin, 2017)。评估包括对基金会创始人斯蒂芬妮·雪莉·CH夫人的采访,对文件的审查和对主要受助者的调查。评估的结论是,该基金既达到了受助人的目的,也达到了雪莉基金会的目的。资助的项目通常产生了产生影响的结果,总的来说,赠款和监测过程被认为是有效的。原创性/价值该评估展示了创新的、催化的、社会企业家的融资方法的价值,以实现影响。
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引用次数: 0
The experience of COVID-19 “lockdown” for people with a learning disability: results from surveys in Jersey and Guernsey 新冠肺炎对学习障碍者的“封锁”体验:泽西岛和根西岛的调查结果
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-08-10 DOI: 10.1108/tldr-12-2020-0041
Sinead Peacock-Brennan, K. Stewart, Rosalind Jayne Angier, J. Morris, Rachel Rud, T. Byrom
PurposeThe purpose of this paper is to outline a service evaluation that gathered feedback from people with a learning disability on their experience of lockdown in Jersey and Guernsey. This feedback was intended to guide planning for service provision during any future lockdown and for life as we exit lockdown.Design/methodology/approachAn accessible survey was sent to everyone accessing learning disability services across the two islands and Mencap in Jersey. Data was analysed quantitatively and qualitatively to identify patterns in the data and key themes.FindingsMost respondents felt safe, calm and happy and valued support from services. Key themes emerging from the data included the importance of relationships, messages of safety, keeping busy and communication.Originality/valueThis survey has been undertaken at a time where there is a paucity of research and consultation with individuals with a learning disability self-reporting on their experiences of lockdown, during the COVID-19 pandemic.
目的本文的目的是概述一项服务评估,该评估收集了学习障碍者对他们在泽西岛和根西岛被封锁经历的反馈。该反馈旨在指导未来封锁期间的服务提供计划以及我们解除封锁后的生活。设计/方法/方法向两个岛屿和泽西岛Mencap的每个获得学习障碍服务的人发送了一份无障碍调查。对数据进行了定量和定性分析,以确定数据中的模式和关键主题。调查结果大多数受访者感到安全、平静和快乐,并重视服务部门的支持。数据中出现的关键主题包括关系的重要性、安全信息、保持忙碌和沟通。原创/价值这项调查是在新冠肺炎大流行期间,对学习障碍个人自我报告封锁经历的研究和咨询很少的时候进行的。
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引用次数: 2
Commentary on: a comparison of dementia assessment service provision across three English county intellectual disability services 评论:英国三个县智力残疾服务机构提供痴呆症评估服务的比较
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-08-10 DOI: 10.1108/tldr-05-2021-0011
Karen Dodd
PurposeThe purpose of this paper is to consider the issue of types of assessment offered by services for people with learning disabilities from the research study “A Comparison of Dementia Assessment Services for People with Intellectual Disabilities”.Design/methodology/approachThe commentary is based on a review of the associated literature.FindingsAssessment for possible dementia is a complex activity. The gold standard is to ensure that the assessment process is comprehensive including both direct assessments with the person and gathering information from key informants. The issues in not adopting this methodology are considered, as are issues in what services and assessments are called.Originality/valueThe commentary considers the studies presented from a practitioner perspective.
本文的目的是考虑“智障人士痴呆症评估服务比较”研究中为学习障碍人士提供的评估类型问题。设计/方法/方法这篇评论是基于对相关文献的回顾。对可能的痴呆进行评估是一项复杂的活动。黄金标准是确保评估过程是全面的,包括与当事人的直接评估和从关键举报人那里收集信息。考虑了不采用这种方法的问题,以及称为什么服务和评估的问题。原创性/价值这篇评论从实践者的角度来考虑所提出的研究。
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引用次数: 0
Commentary on “The experiences of Covid-19 ‘lockdown’ for people with a learning disability: results from surveys in Jersey and Guernsey” 评论“学习障碍者新冠肺炎‘封锁’的经历:泽西岛和根西岛的调查结果”
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-08-09 DOI: 10.1108/tldr-06-2021-0016
Gemma Rogers
PurposeThis paper aims to consider the experiences of people with intellectual disabilities in relation to the COVID-19 pandemic and subsequent lockdown restrictions.Design/methodology/approachThis commentary reflects on the issues raised by Morris et al., and in the wider literature.FindingsAlthough there have been some benefits to lockdown for people with intellectual disabilities, mainly they have experienced isolation, increased mental health and well-being challenges, difficulty in accessing services, support and adequate adapted information.Originality/valueThis commentary argues that it is important to continue to capture the experiences of people with intellectual disabilities now and over time to assess the long-term consequences of the pandemic and to design services which are respondent to their needs.
目的本文旨在考虑智障人士在新冠肺炎大流行和随后的封锁限制方面的经历。设计/方法论/方法本评论反映了Morris等人以及更广泛的文献中提出的问题。发现尽管封锁对智障人士有一些好处,但主要是他们经历了隔离、心理健康和幸福挑战增加、难以获得服务、支持和充分的适应信息。独创性/价值这篇评论认为,重要的是要继续捕捉智障人士现在和一段时间以来的经历,以评估疫情的长期后果,并设计符合他们需求的服务。
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引用次数: 0
Commentary on “Making the world a better place: achieving impact through innovation and an entrepreneurial ethos” 评论“让世界更美好:通过创新和企业家精神实现影响力”
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-07-29 DOI: 10.1108/tldr-06-2021-0015
P. McGill
PurposeThe purpose of this paper is to provide a commentary on “Making the world a better place: achieving impact through innovation and an entrepreneurial ethos” written by John Pepin.Design/methodology/approachThe commentary considers the broader role of philanthropy especially with respect to learning disability and autism.FindingsThe work of the Shirley Foundation is a good example of the contribution that can be made by philanthropy. Although philanthropy has many critics, it remains one way in which significant change can by supported.Originality/valuePartnerships between philanthropic and government funding may help both to address some of the concerns raised about philanthropy and maximise the potential for beneficial impacts.
本文的目的是对John Pepin的《Making the world a better place: achieve impact through innovation and an entrepreneurial ethos》一文进行评论。这篇评论考虑了慈善事业更广泛的作用,特别是在学习障碍和自闭症方面。研究结果雪莉基金会的工作是慈善事业可以做出贡献的一个很好的例子。尽管慈善事业受到许多批评,但它仍然是支持重大变革的一种方式。创意/价值慈善机构和政府资助之间的合作可能有助于解决人们对慈善事业的一些担忧,并最大限度地发挥有益影响的潜力。
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引用次数: 0
Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020 2020年2019冠状病毒病大流行期间,英国各地有学习障碍的成年人获得医疗和社会护理的机会
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-06-12 DOI: 10.1108/tldr-06-2021-0014
S. Flynn, C. Hatton
Purpose This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales. Design/methodology/approach Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021 and concerned the use of health and social care services since the start of the first COVID-19 national lockdown in March 2020. Findings Access to and use of health and social care services significantly reduced for adults with learning disabilities across the UK during the COVID-19 pandemic between March 2020 and February 2021, with many people not receiving any services at all during that period. Similar patterns were seen across England, Northern Ireland, Scotland and Wales. However, data suggest some variations between countries for some services. Practical implications Future pandemic planning must ensure that access to these essential services is not completely lost for adults with learning disabilities and their family carers, as it was in some cases during the COVID-19 pandemic in 2020. Originality/value This is the largest study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. The authors primarily collected data directly from adults with learning disabilities, and worked with partner organisations of people with learning disabilities throughout the study.
本文旨在介绍英格兰、北爱尔兰、苏格兰和威尔士各地学习障碍成年人在2019冠状病毒病大流行期间获得卫生和社会护理服务的数据。设计/方法/方法直接从621名有学习障碍的成年人中收集数据,并通过家庭照顾者和另外378名有学习障碍的成年人的有偿支持人员的单独代理报告收集数据。这些数据是在2020年12月至2021年2月期间收集的,涉及自2020年3月第一次COVID-19国家封锁开始以来卫生和社会护理服务的使用情况。在2020年3月至2021年2月的COVID-19大流行期间,英国各地有学习障碍的成年人获得和使用卫生和社会护理服务的机会大大减少,许多人在此期间根本没有接受任何服务。英格兰、北爱尔兰、苏格兰和威尔士也出现了类似的情况。然而,数据表明,某些服务在各国之间存在一些差异。未来的大流行规划必须确保有学习障碍的成年人及其家庭照顾者不会完全失去获得这些基本服务的机会,就像2020年COVID-19大流行期间的一些情况一样。这是关于COVID-19大流行对英国有学习障碍的成年人的健康和社会护理服务影响的最大研究。作者主要直接从有学习障碍的成年人那里收集数据,并在整个研究过程中与有学习障碍的人的伙伴组织合作。
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引用次数: 7
Participation of learning disabled people in the parliamentary election of 2019 in the United Kingdom 学习障碍人士参与2019年英国议会选举
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-06-10 DOI: 10.1108/TLDR-07-2020-0014
E. James, C. Hatton, R. Mitchell
PurposeParticipation of people with learning disabilities in the United Kingdom (UK) Parliamentary Elections has previously been found to be lower than that of non-learning disabled peers. This paper aims to consider whether an intervention to support the right to take part in democratic and political life may result in increased participation rates.Design/methodology/approachData were gathered by social workers from 135 learning disabled people about their voter registration and voting in the May 2019 UK local government election. Social workers subsequently ran a promote the vote campaign with this cohort and gathered the same data in respect of the December 2019 UK Parliamentary Election.FindingsFollowing the campaign, there were statistically significant increases in both the proportion of people who registered to vote and in the proportion who voted.Originality/valuePeople with learning disabilities are more likely to vote if made aware of their rights and supported to do so.
目的学习障碍者参加联合王国议会选举的人数此前被发现低于非学习障碍同龄人。本文旨在考虑为支持参与民主和政治生活的权利而进行的干预是否会导致参与率的提高。设计/方法/方法社会工作者从135名学习障碍者中收集了关于他们在2019年5月英国地方政府选举中的选民登记和投票的数据。社会工作者随后与这一群体一起开展了一场宣传投票活动,并收集了2019年12月英国议会选举的相同数据。结果在这场活动之后,登记投票的人数比例和投票人数比例都有了统计上的显著增加。原创性/价值观如果有学习障碍的人意识到自己的权利并得到支持,他们更有可能投票。
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引用次数: 1
Commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel” 对“学习障碍者的老年照护者:他们在地方当局评估程序和人员方面的经验”的评论
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-06-01 DOI: 10.1108/TLDR-02-2021-0005
V. Gant
PurposeThe purpose of this paper is to provide a commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel” written by Rachel Forrester-Jones.Design/methodology/approachThis commentary considers the experiences of older carers in the context of research, legislative and policy changes over the past 30+ years.FindingsThe needs of older carers of adults with learning disabilities are well recognised within the (limited) literature. Less attention has been given to practical strategies to identify and support such carers or to their broader family context.Originality/valueThis commentary highlights that assessors carrying out carers’ needs assessments should consider whether adults with learning disabilities are providing care to their older relative. The recognition of possible mutual or reciprocal care needs to be acknowledged and appropriate support offered.
本文的目的是对Rachel forrest - jones撰写的《学习障碍者的老年照护者:他们与地方当局评估程序和人员的经验》进行评论。设计/方法/方法这篇评论在过去30多年的研究、立法和政策变化的背景下考虑了老年照顾者的经验。研究结果:在(有限的)文献中,老年人照顾有学习障碍的成年人的需求得到了很好的认可。对确定和支持这些照顾者的实际战略或对其更广泛的家庭背景的注意较少。原创性/价值本评论强调,评估人员在进行照顾者需求评估时,应考虑有学习障碍的成年人是否在照顾他们的年长亲属。需要承认可能的相互或互惠关怀,并提供适当的支持。
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引用次数: 0
Political engagement in the 2019 UK general election of patients with autism and/or a learning disability detained in a psychiatric hospital 2019年英国大选中被拘留在精神病院的自闭症和/或学习障碍患者的政治参与
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-06-01 DOI: 10.1108/TLDR-09-2020-0024
R. Armstrong
Purpose This case study aims to describe how patients with autism and/or a learning disability detained in a psychiatric hospital were supported to register and vote in the 2019 UK general election. Design/methodology/approach A speech and language therapist supported patients to register and vote. Data on the number of patients who registered and voted are reported as well as feedback from patients about their experiences. Findings Forty-two per cent of patients registered to vote; 27% did not want to register; and 31% could not understand the information provided and/or state a clear preference because of the severity of their cognitive and communication difficulties. Fifteen per cent of patients voted and were all first-time voters. Originality/value This study demonstrates that it is possible to support significant numbers of autistic and learning disabled patients in a psychiatric hospital to register for and vote in a parliamentary election.
目的本案例研究旨在描述被拘留在精神病院的自闭症和/或学习障碍患者如何在2019年英国大选中获得登记和投票支持。设计/方法/方法言语和语言治疗师支持患者注册和投票。报告了注册和投票的患者人数数据,以及患者对其经历的反馈。调查结果42%的患者登记投票;27%的人不想注册;31%的人由于认知和沟通困难的严重性而无法理解所提供的信息和/或表达明确的偏好。15%的患者参加了投票,而且都是第一次投票。独创性/价值这项研究表明,支持精神病院中大量自闭症和学习障碍患者在议会选举中登记和投票是可能的。
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引用次数: 1
Exploring new ways of thinking about and developing staff practice: the role of modes of thinking 探索新的思维方式和发展员工实践:思维方式的作用
IF 0.6 Q4 EDUCATION, SPECIAL Pub Date : 2021-06-01 DOI: 10.1108/TLDR-11-2020-0036
R. Deveau, J. Ockenden, P. Björne
Purpose Nobel Prize winner Daniel Kahneman’s work on modes of ‘thinking’ provides a comprehensive text which is little explored in respect of work with people who have an intellectual or developmental disability. This paper explores the potential of this work to change staff development and practice. Design/Methodology Key themes from Thinking Fast, and Slow (Kahneman, 2011) are described and applied to current staff practice. Findings Modes of thinking are relevant and important to understanding and improving manager and staff practice. Originality To our knowledge this is the first attempt to describe and understand staff thinking and practice using Kahneman’s ideas.
目的诺贝尔奖获得者Daniel Kahneman关于“思维”模式的工作提供了一个全面的文本,在与智力或发育障碍者的工作方面很少被探索。本文探讨了这项工作改变员工发展和实践的潜力。设计/方法论描述了《快速思考》和《慢速思考》(Kahneman,2011)中的关键主题,并将其应用于当前的员工实践。研究结果思维模式对于理解和改进经理和员工的实践是相关和重要的。独创性据我们所知,这是第一次尝试用卡尼曼的思想来描述和理解员工的思维和实践。
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引用次数: 1
期刊
Tizard Learning Disability Review
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