Hennessy, M., Dennehy, R., O'Leary, H., O'Donoghue, K., and RE:CURRENT Research Advisory Group (2024), “Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services,” Health Expectations, 27: e70125. https://doi.org/10.1111/hex.70125.
Please refer to the corrected text in the revised Table 1 below.
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Effective communication is central to safe, high-quality primary care. For Bangladeshi communities in the United Kingdom (UK), linguistic barriers continue to impede access to timely and culturally sensitive healthcare. This study describes an early phase of the co-production pathway of the tool seeking to understand the contextual acceptability of an AI-enabled translation tool designed for general practice, with functionality to capture symptoms, clinical problems, across diverse Bangladeshi dialects and provide guidance on next steps.
We conducted a series of semi-structured interviews with a sample of Bangladeshi patients from South Birmingham, UK to understand their attitudes towards using the AmarDoctor translation tool. The data were analysed using a directed content analysis to populate Sekhon's theoretical framework of acceptability.
Seven participants, all native Bengali speakers, were recruited. AmarDoctor was viewed positively for supporting appointment booking, guiding appropriate next steps, and offering a safe, anonymous means of discussing sensitive concerns. Noted strengths were its ability to capture symptoms in multiple Bengali dialects and its ease of use by those with limited digital literacy. The most frequently shared concern centred on the potential for translation inaccuracies and the subsequent risks.
Participants expressed optimism about the role of AmarDoctor and similar AI-enabled translation tools in improving access to primary care. To gain wider acceptance, AmarDoctor must maximise the next steps of the co-production process that includes staff and commissioners to ensure translation accuracy meets the needs of all users and that credible pathways for implementation at scale are developed.
Patients and the public have been involved from the beginning of the AmarDoctor initiative, contributing to the design and content of patient facing materials, and informing the content of our topic guide.
This study aimed to explore the emotional and cognitive perceptions of cervical cancer screening (CCS), with a focus on self-sampling for human papillomavirus (HPV) by vulnerable Romanian women.
Eighteen semi-structured individual interviews were conducted with vulnerable women, defined by their low socioeconomic status (SES), residence in rural areas and membership in ethnic minorities. Participants were recruited using snowball sampling. Interviews followed a guide designed to assess constructs from the Health Belief Model (knowledge, barriers, evaluation of vulnerability) as they relate to women's views of prevention, the healthcare system and CCS. A Think Aloud protocol was used with a subsample of six women to identify potential barriers, opportunities and attitudes related to the use of self-sampling kits. A reflexive thematic analysis was conducted to identify the primary themes related to with women's perceptions of CCS and self-sampling.
Four major themes emerged: (a) risk, fear and other emotional experiences; (b) women's perception of barriers; (c) knowledge, personal control and cues to action; and (d) women's perception of self-sampling. Participants unravelled emotional and logistical barriers to CCS and self-sampling. Limited health literacy, fear and shame influenced risk perceptions, hindering CCS participation. Logistical challenges and financial constraints further impeded access, while women often prioritized the needs of their families over their own health. The Think Aloud protocol revealed that initial concerns regarding self-sampling could be alleviated by having clear instructions, highlighting the importance of support during the decision-making process.
This study identified diverse barriers preventing vulnerable Romanian women from engaging in CCS, including logistical challenges, financial constraints and emotional factors.
Patients or the public were not involved in the design, conduct, analysis or interpretation of the study.
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