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Feasibility and Acceptability of an Incentive-Based Intervention for Health Behaviour Change Among Rural Residents in China: A Mixed-Methods Evaluation 基于激励的中国农村居民健康行为改变干预的可行性和可接受性:混合方法评价
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-11 DOI: 10.1111/hex.70518
Bo Yan, Zhenke He, Ran Zhang, Bin Shao, Shuai Zheng, Xiaomin Wang, Xudong Zhou

Background

Encouraging healthy behaviours among rural residents in China is crucial to promote health and well-being. Although financial incentives are known to be effective in promoting single healthy behaviours, their efficacy in simultaneously encouraging multiple healthy behaviours remains unclear. This study aimed to test the feasibility and acceptability of an incentive-based intervention to encourage multiple healthy behaviours.

Methods

‘Health Bank’, a digital platform established by the Changxing County Center for Disease Control and Prevention, was employed financial incentives to engage villagers in promoting healthy behaviours. The intervention, conducted from January to October 2022, was followed by a mixed-methods evaluation in November 2022 to assess its feasibility and acceptability as the primary outcomes. Feasibility was assessed based on quantitative data from self-administered questionnaires and routine data, while acceptability was assessed by conducting semi-structured interviews.

Results

Routine data indicated that 1164 out of 3137 (37.1%) villagers participated in ‘Health Bank’, with the majority completing the required three daily healthy behaviours, despite their low participation rates in other behaviours. Among the 140 surveyed villagers, 68 respondents were not willing to participate in ‘Health Bank’, with only 19% refraining due to a lack of interest or need. The qualitative results suggested that financial incentives were a compelling factor for most participants, though challenges remained regarding the programme's elderly-friendliness, gift redemption process and the range of activities covered.

Conclusions

Although the incentive-based behaviour change intervention exhibited promising feasibility and acceptability, participant feedback necessitates further modifications. To comprehensively assess the efficacy of this intervention, larger-scale, randomised controlled trials were encouraged.

Patient or Public Contribution

A team-based approach was taken for developing the incentive-based intervention model for this study. This included experienced staff from local Centers for Disease Control and Prevention, as well as community workers and community residents.

背景:鼓励中国农村居民的健康行为对促进健康和福祉至关重要。虽然财政激励在促进单一健康行为方面是有效的,但其在同时鼓励多种健康行为方面的功效尚不清楚。本研究旨在测试以激励为基础的干预措施鼓励多种健康行为的可行性和可接受性。方法利用长兴县疾病预防控制中心建立的数字平台“健康银行”,采用财政激励的方式,鼓励村民积极促进健康行为。该干预于2022年1月至10月进行,随后于2022年11月进行了混合方法评估,以评估其作为主要结果的可行性和可接受性。可行性评估基于自填问卷和常规数据的定量数据,可接受性评估通过进行半结构化访谈。结果常规数据显示,3137名村民中有1164人(37.1%)参加了“健康银行”,尽管他们在其他行为中的参与率较低,但大多数人完成了所需的三种日常健康行为。在接受调查的140名村民中,68名受访者不愿意参加“健康银行”,只有19%的人因缺乏兴趣或需要而不愿参加。定性结果表明,对大多数参与者来说,财政奖励是一个令人信服的因素,尽管在方案的老年人友好性、礼品兑换程序和所涵盖的活动范围方面仍然存在挑战。结论虽然基于激励的行为改变干预显示出良好的可行性和可接受性,但参与者的反馈需要进一步的修改。为了全面评估该干预措施的疗效,鼓励进行更大规模的随机对照试验。本研究采用基于团队的方法来开发基于激励的干预模型。这包括来自当地疾病控制和预防中心的经验丰富的工作人员,以及社区工作者和社区居民。
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引用次数: 0
‘Why, Can I Not Have Control of My Own Insulin?’: Qualitative Exploration Amongst Older Adults With Diabetes With Lived Experience of Surgical Hospital Admission “为什么我不能控制自己的胰岛素?”对有外科住院生活经历的老年糖尿病患者进行定性研究。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-08 DOI: 10.1111/hex.70509
Christina Lange Ferreira, Hellena Habte-Asres, Angus Forbes, Kirsty Winkley

Aim

To explore the experiences and perspectives of older adults living with diabetes, in relation to insulin management during a surgical hospital admission and identify factors that appear to be associated with insulin safety in these older people. To identify key messages that address people with diabetes priorities, to be used in staff education.

Methods

Qualitative study, conducted in a single, rural NHS hospital. Ten semi-structured phone interviews were held with older adults with diabetes, with or without frailty, treated with insulin while undergoing surgical hospital admission. Framework analysis was employed in data analysis.

Results

Six people with type 2 diabetes and four people with type 1 diabetes, aged 68 to 91 years old (mean age 77.2 years [SD = 6.2]) participated in the study. Four themes identified specific to hospital insulin management and safety: (1) preparedness for hospital admission; (2) feeling disempowered in hospital; (3) staff knowledge, confidence, attitudes and behaviours; (4) diabetes and insulin management as a balancing act. In addition, participants co-designed an infographic to help hospital staff understand what matters most to older adults in terms of managing their insulin safely in the hospital.

Conclusion

Lack of joined-up care, staff knowledge gaps and lack of empowerment ethos hinder hospital insulin safety. This study identified that having a self-management policy in a hospital does not necessarily mean it is implemented for older adults with diabetes. Using a co-design approach to engage with older adults helped to identify components critical to hospital insulin safety interventions.

Patient or Public Contribution

Patients and members of the public are involved in study design and interpretation of findings. Before the study, a diabetes peer-support group reviewed and contributed to the interview topic guide and study recruitment documentation. Study participants co-designed the infographic developed.

目的:探讨老年糖尿病患者在外科住院期间胰岛素管理方面的经验和观点,并确定与这些老年人胰岛素安全性相关的因素。确定针对糖尿病患者的重点信息,用于员工教育。方法:定性研究,在一个单一的农村NHS医院进行。对10名患有糖尿病的老年人进行了半结构化电话访谈,有或没有虚弱,在接受手术住院期间接受胰岛素治疗。数据分析采用框架分析法。结果:2型糖尿病患者6例,1型糖尿病患者4例,年龄68 ~ 91岁,平均年龄77.2岁[SD = 6.2]。确定了针对医院胰岛素管理和安全的四个主题:(1)住院准备;(2)在医院感到被剥夺权利;(3)员工的知识、信心、态度和行为;(4)糖尿病和胰岛素管理作为一种平衡行为。此外,参与者共同设计了一个信息图表,以帮助医院工作人员了解在医院安全管理胰岛素方面对老年人最重要的是什么。结论:医院胰岛素安全管理中缺乏联合护理、员工知识差距和赋权精神。这项研究表明,医院有自我管理政策并不一定意味着它对老年糖尿病患者实施。采用共同设计方法与老年人接触,有助于确定医院胰岛素安全干预的关键组成部分。患者或公众贡献:患者和公众成员参与研究设计和结果解释。在研究之前,一个糖尿病同伴支持小组审查并撰写了访谈主题指南和研究招募文件。研究参与者共同设计了开发的信息图表。
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引用次数: 0
A Qualitative Study Exploring the Mechanisms Underlying Self-Management Behaviours Among Community-Dwelling Type 2 Diabetes Mellitus Patients in Nanjing, China 南京市社区2型糖尿病患者自我管理行为机制的定性研究
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-08 DOI: 10.1111/hex.70522
Jinxin Li, Yue Zhang, Nan Zhao, Jianxiao Zheng, Yang Wang, Jiajia Dong, Jianwen Zhu, Jie Fu, Hong Fan
<div> <section> <h3> Background</h3> <p>Effective self-management is essential for improving the health outcomes of patients with type 2 diabetes mellitus (T2DM). However, many patients fail to achieve ideal self-management. This qualitative study, grounded in the theory of planned behaviour (TPB), aims to explore the mechanisms underlying self-management behaviours of patients with T2DM in the community, to provide insights for improve patients' self-management and reduce the disease burden.</p> </section> <section> <h3> Methods</h3> <p>Within the framework of the TPB, a semi-structured interview guide was developed based on a literature review and expert consensus. Qualitative data were obtained from in-depth interviews with 21 patients with T2DM from a community health service centre in Nanjing, Jiangsu Province. All interviews were conducted by the same interviewer to ensure consistency. Content analysis was used to identify the key factors influencing patients' self-management behaviours and the underlying mechanism.</p> </section> <section> <h3> Results</h3> <p>This study systematically explained the underlying mechanisms of self-management behaviours among patients with T2DM based on Ajzen's TPB, including three key levels: (1) Attitudes towards self-management: shaped by both internal (e.g., self-perception, perceived importance and understanding of the disease) and external factors (e.g., perceived benefits and degree of acceptance). (2) Subjective norms: influenced by both intrinsic (e.g., personal motivations) and extrinsic pressures (e.g., surrounding individuals and social groups). (3) Perceived behavioural control: determined by both inner (e.g., personal characteristics, physical and mental experience, economic resources and time management) and outer factors (e.g., environmental suitability, policy support and technical availability).</p> </section> <section> <h3> Conclusion</h3> <p>This study provides a valuable theoretical basis and practical implications for designing effective interventions to improve self-management behaviours of patients with T2DM in the community. To optimize self-management behaviours of this population, a multifaceted approach is recommended, focusing on the following six key areas: improving T2DM knowledge, strengthening follow-up management system, empowering patients to take an active role in their care, fostering social support network, developing their own coping skills and expanding policy support for T2DM care.</p> </section> <section>
背景:有效的自我管理对于改善2型糖尿病(T2DM)患者的健康结果至关重要。然而,许多患者未能实现理想的自我管理。本定性研究基于计划行为理论(TPB),旨在探讨社区T2DM患者自我管理行为的机制,为改善患者自我管理,减轻疾病负担提供参考。方法:在TPB框架内,基于文献综述和专家共识,制定半结构化访谈指南。定性数据来源于对江苏省南京市某社区卫生服务中心21例T2DM患者的深度访谈。所有访谈均由同一位采访者进行,以确保一致性。通过内容分析,找出影响患者自我管理行为的关键因素及其机制。结果:本研究基于Ajzen的TPB系统地解释了T2DM患者自我管理行为的潜在机制,包括三个关键层面:(1)对自我管理的态度:由内部因素(如自我认知、感知的重要性和对疾病的理解)和外部因素(如感知的益处和接受程度)共同形成。(2)主观规范:受内在(如个人动机)和外在压力(如周围的个人和社会群体)的影响。(3)感知行为控制:由内部因素(如个人特征、身心经验、经济资源和时间管理)和外部因素(如环境适宜性、政策支持和技术可用性)共同决定。结论:本研究为设计有效的干预措施改善社区T2DM患者的自我管理行为提供了有价值的理论依据和实践意义。为优化这一人群的自我管理行为,建议采取多方面的措施,重点关注以下六个关键领域:提高T2DM知识,加强随访管理体系,使患者在护理中发挥积极作用,建立社会支持网络,发展自身应对技能,扩大对T2DM护理的政策支持。患者或公众贡献:T2DM患者积极参与本研究,提供了重要的见解和反馈。他们的第一手经验有助于确定子类别和类别。参与者还审查并确认了采访记录的准确性,确保了数据的可靠性。
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引用次数: 0
Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion 孤儿药的开发能否包括更广泛的患者参与?公民陪审团探讨承诺概念。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-05 DOI: 10.1111/hex.70524
Julia Frost, Widening Engagement Patient Advisory Group, Jessica Mandizha, Chantal van den Dungen, Lauren Asare, Catherine Pope
<div> <section> <h3> Background</h3> <p>Drug development practices for rare diseases promote a <i>promissory</i> notion that the drug pipeline will succeed (with the next new drug/drug trial) and an <i>imaginary</i> of widening patient engagement (often desired but yet to be enacted). Contemporary industry practices of patient engagement are shaped by this promissory, and engagement often includes limited patient perspectives, typically relying on patients from established Patient Organisations or identified by Contract Research Organisations.</p> </section> <section> <h3> Objective</h3> <p>We sought to explore whether more deliberative methods might enable wider, more diverse patient engagement for orphan drug trials.</p> </section> <section> <h3> Design</h3> <p>Citizen's Jury co-designed with patient advisors.</p> </section> <section> <h3> Setting and Participants</h3> <p>Results of an earlier ethnography of a biotech company's patient engagement practices, along with findings from clinical trials for patients with idiopathic pulmonary fibrosis, clinical practice and patient testimony, were presented to the Citizens' Jury made up of patients and carers.</p> </section> <section> <h3> Results</h3> <p>Jurors discussed and offered a ‘verdict’ on trial materials and processes that would optimise the engagement of more diverse patients for drug trials for rare diseases, suggesting that more could be done at an organisational level to ensure that potential trial participants were able to ‘engage’. They asserted that the industry could do more to understand the unmet needs and wishes of a wider group of patients and should seek input from more diverse groups.</p> </section> <section> <h3> Discussion</h3> <p>The Citizens' Jury called for practices to enable wider engagement—for both drug trials and drug trial design—and more transparency about the risks associated with engagement, for individual patients and currently marginalised groups.</p> </section> <section> <h3> Conclusions</h3> <p>Current drug development practices reify expert patient perspectives and often ignore the views of the wider group of patients who may participate in trials and/or use new medicines developed. More deliberative methods of engagement have the potential to democratise drug
背景:罕见病的药物开发实践促进了一种药物管道将成功(随着下一个新药/药物试验)的承诺概念和扩大患者参与的想象(通常是期望的,但尚未实施)。当代行业的患者参与实践是由这种承诺所塑造的,而参与往往包括有限的患者观点,通常依赖于已建立的患者组织或合同研究组织确定的患者。目的:我们试图探索更审慎的方法是否可以使更广泛、更多样化的患者参与孤儿药试验。设计:公民陪审团与患者顾问共同设计。环境和参与者:一家生物技术公司早期患者参与实践的人种志结果,以及特发性肺纤维化患者的临床试验结果、临床实践和患者证词,被提交给由患者和护理人员组成的公民陪审团。结果:陪审员讨论并提供了一个关于试验材料和过程的“裁决”,这些材料和过程将优化更多不同患者参与罕见疾病药物试验,这表明可以在组织层面做更多的工作,以确保潜在的试验参与者能够“参与”。他们断言,医疗行业可以做得更多,以了解更多患者群体的未满足需求和愿望,并应寻求更多不同群体的意见。讨论:公民陪审团呼吁采取措施,使更广泛的参与——无论是药物试验还是药物试验设计——以及对个体患者和目前被边缘化的群体而言,与参与相关的风险更加透明。结论:目前的药物开发实践具体化了专家患者的观点,往往忽视了可能参与试验和/或使用新开发药物的更广泛患者群体的观点。更审慎的参与方法有可能使药物开发民主化,并确保新药和试验满足更广泛患者群体的需求。患者或公众贡献:由6名IPF患者组成的患者咨询小组(PAG)对研究设计和实施的各个方面提供了意见,包括公民陪审团的共同设计。来自国际患者组织的两名患者担任指导小组(SG)。两组的成员都提供了他们对研究结果的解释,并提供了他们在临床设计和参与方面的经验。
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引用次数: 0
Correction to “Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services” 更正“让知识使用者参与卫生服务研究:从国家复发性流产服务评估中获得的集体反思和学习”。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-05 DOI: 10.1111/hex.70525

Hennessy, M., Dennehy, R., O'Leary, H., O'Donoghue, K., and RE:CURRENT Research Advisory Group (2024), “Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services,” Health Expectations, 27: e70125. https://doi.org/10.1111/hex.70125.

Please refer to the corrected text in the revised Table 1 below.

We apologise for these errors.

李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟,李丽娟。https://doi.org/10.1111/hex.70125.Please见以下订正表1中的更正文本。我们为这些错误道歉。
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引用次数: 0
Understanding Acceptability of AI Triage Tools Amongst Underserved Populations: Lessons From the Early Phases of Co-Production With Bangladeshi Communities in Birmingham, UK 在服务不足的人群中理解人工智能分类工具的可接受性:来自英国伯明翰与孟加拉国社区合作制作的早期阶段的经验教训。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-04 DOI: 10.1111/hex.70523
Ian Litchfield, Gayathri Delanerolle, Lorraine Harper, Sian Dunning

Background

Effective communication is central to safe, high-quality primary care. For Bangladeshi communities in the United Kingdom (UK), linguistic barriers continue to impede access to timely and culturally sensitive healthcare. This study describes an early phase of the co-production pathway of the tool seeking to understand the contextual acceptability of an AI-enabled translation tool designed for general practice, with functionality to capture symptoms, clinical problems, across diverse Bangladeshi dialects and provide guidance on next steps.

Methods

We conducted a series of semi-structured interviews with a sample of Bangladeshi patients from South Birmingham, UK to understand their attitudes towards using the AmarDoctor translation tool. The data were analysed using a directed content analysis to populate Sekhon's theoretical framework of acceptability.

Results

Seven participants, all native Bengali speakers, were recruited. AmarDoctor was viewed positively for supporting appointment booking, guiding appropriate next steps, and offering a safe, anonymous means of discussing sensitive concerns. Noted strengths were its ability to capture symptoms in multiple Bengali dialects and its ease of use by those with limited digital literacy. The most frequently shared concern centred on the potential for translation inaccuracies and the subsequent risks.

Conclusions

Participants expressed optimism about the role of AmarDoctor and similar AI-enabled translation tools in improving access to primary care. To gain wider acceptance, AmarDoctor must maximise the next steps of the co-production process that includes staff and commissioners to ensure translation accuracy meets the needs of all users and that credible pathways for implementation at scale are developed.

Patient or Public Contribution

Patients and the public have been involved from the beginning of the AmarDoctor initiative, contributing to the design and content of patient facing materials, and informing the content of our topic guide.

背景:有效的沟通对安全、高质量的初级保健至关重要。对于在联合王国(联合王国)的孟加拉国社区来说,语言障碍继续阻碍他们获得及时和顾及文化的保健服务。本研究描述了该工具联合生产途径的早期阶段,旨在了解为一般实践设计的支持人工智能的翻译工具的上下文可接受性,该工具具有捕获不同孟加拉国方言的症状和临床问题的功能,并为下一步提供指导。方法:我们对来自英国南伯明翰的孟加拉国患者样本进行了一系列半结构化访谈,以了解他们对使用AmarDoctor翻译工具的态度。使用直接内容分析对数据进行分析,以填充Sekhon的可接受性理论框架。结果:招募了7名以孟加拉语为母语的参与者。AmarDoctor在支持预约、指导适当的后续步骤以及提供安全、匿名的方式讨论敏感问题方面获得了积极的评价。值得注意的优点是它能够捕捉多种孟加拉语方言的症状,并且易于数字素养有限的人使用。最常见的共同担忧集中在翻译不准确的可能性和随后的风险上。结论:与会者对AmarDoctor和类似的人工智能翻译工具在改善初级保健可及性方面的作用表示乐观。为了获得更广泛的接受,AmarDoctor必须最大限度地提高合作生产过程的下一步,包括工作人员和专员,以确保翻译的准确性满足所有用户的需求,并开发出大规模实施的可靠途径。患者或公众贡献:患者和公众从一开始就参与到AmarDoctor计划中,为面向患者的材料的设计和内容做出贡献,并告知我们的主题指南的内容。
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引用次数: 0
Community Engagement in Long Covid: Insights From the Boston COVID Recovery Cohort 长期Covid中的社区参与:来自波士顿Covid恢复队列的见解。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-12-02 DOI: 10.1111/hex.70493
Marisha E. Palm, Callie A. Gu, Ingrid V. Bassett, Bruce D. Levy, Li Qing Chen, Janice John, Cheralyn Johnson, Jacqui Lindsay, Rebecca Lobb, Netia McCray, Bisola Ojikutu, Linda Sprague Martinez, Jacqueline Rodriguez-Louis, Alice Rushforth, Robert Torres, Danielle L. Zionts, Cheryl R. Clark
<div> <section> <h3> Background</h3> <p>In 2021, the National Institutes of Health launched a multi-centre observational study on long Covid: Researching COVID to Enhance Recovery (RECOVER). Six Boston academic medical centres joined community partners to become the Boston COVID Recovery Cohort (BCRC), a consortium of RECOVER sites. Our consortium developed a community engagement model, and this manuscript shares lessons and recommendations.</p> </section> <section> <h3> Design and Participants</h3> <p>The BCRC Community Partnership Table, which included community partners, senior equity leaders, academic researchers and health system collaborators, co-developed a charter to advance research, community education, clinical care, social support and institutional and policy change goals. BCRC engaged patients, providers, caregivers and legislators via multiple communication channels.</p> </section> <section> <h3> Findings</h3> <p>The BCRC Community Partnership Table faced several challenges: working within a novel, evolving pandemic; structural barriers to successful community engagement; perspectives on trustworthiness of research; and working across multiple organisations with distinct structures, resources and goals. There were also successes: leaders who were invested in community engagement; a focus on inclusive network building; co-production; flexible communication channels; a shift to centring communities and patients; and connection with the legislature to support broader policy impacts.</p> </section> <section> <h3> Discussion</h3> <p>To inform future community engagement models, we recommend the following: (1) healthcare research funders should build in time and resources for community engagement; (2) study consortia should include community engagement specialists in decision-making positions from the outset; and (3) community members should have prominent roles leading research engagement efforts.</p> </section> <section> <h3> Conclusions</h3> <p>Engagement models can enhance the equity impact of long Covid research. Reflections and recommendations in this paper can inform future efforts.</p> </section> <section> <h3> Patient or Public Contribution</h3> <p>The project included community leaders, community-based organisations, people with long Covid, and those caring for people with long Covid. Community leaders, community-based organisatio
背景:2021年,美国国立卫生研究院启动了一项关于长期Covid的多中心观察性研究:研究Covid以增强恢复(RECOVER)。波士顿六家学术医疗中心与社区合作伙伴一起成为波士顿COVID恢复队列(BCRC),这是一个由RECOVER站点组成的联盟。我们的联盟开发了一个社区参与模式,这份手稿分享了经验和建议。设计和参与者:BCRC社区伙伴关系表,包括社区合作伙伴、高级公平领导人、学术研究人员和卫生系统合作者,共同制定了一份章程,以推进研究、社区教育、临床护理、社会支持以及机构和政策变革目标。BCRC通过多种沟通渠道吸引患者、提供者、护理人员和立法者。调查结果:BCRC社区伙伴关系表面临若干挑战:在一种新的、不断演变的大流行病中开展工作;成功社区参与的结构性障碍;关于研究可信度的若干观点在不同结构、资源和目标的多个组织中工作。也有一些成功的例子:领导人致力于社区参与;注重包容性网络建设;合作生产;灵活的沟通渠道;转向以社区和患者为中心;以及与立法机构的联系,以支持更广泛的政策影响。讨论:为了为未来的社区参与模式提供信息,我们建议:(1)医疗保健研究资助者应该为社区参与投入时间和资源;(2)研究联盟应从一开始就将社区参与专家纳入决策职位;(3)社区成员应该在领导研究参与工作方面发挥重要作用。结论:参与模型可以增强长期Covid研究的公平影响。本文的思考和建议可以为今后的工作提供参考。患者或公众贡献:该项目包括社区领导人、社区组织、长冠患者以及长冠患者的护理人员。社区领袖、社区组织和长期患病的人都被纳入网络的各个方面。他们为决策提供信息,在网络领导中发挥关键作用,并且在作者团队中也都有代表。
{"title":"Community Engagement in Long Covid: Insights From the Boston COVID Recovery Cohort","authors":"Marisha E. Palm,&nbsp;Callie A. Gu,&nbsp;Ingrid V. Bassett,&nbsp;Bruce D. Levy,&nbsp;Li Qing Chen,&nbsp;Janice John,&nbsp;Cheralyn Johnson,&nbsp;Jacqui Lindsay,&nbsp;Rebecca Lobb,&nbsp;Netia McCray,&nbsp;Bisola Ojikutu,&nbsp;Linda Sprague Martinez,&nbsp;Jacqueline Rodriguez-Louis,&nbsp;Alice Rushforth,&nbsp;Robert Torres,&nbsp;Danielle L. Zionts,&nbsp;Cheryl R. Clark","doi":"10.1111/hex.70493","DOIUrl":"10.1111/hex.70493","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;In 2021, the National Institutes of Health launched a multi-centre observational study on long Covid: Researching COVID to Enhance Recovery (RECOVER). Six Boston academic medical centres joined community partners to become the Boston COVID Recovery Cohort (BCRC), a consortium of RECOVER sites. Our consortium developed a community engagement model, and this manuscript shares lessons and recommendations.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design and Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The BCRC Community Partnership Table, which included community partners, senior equity leaders, academic researchers and health system collaborators, co-developed a charter to advance research, community education, clinical care, social support and institutional and policy change goals. BCRC engaged patients, providers, caregivers and legislators via multiple communication channels.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Findings&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The BCRC Community Partnership Table faced several challenges: working within a novel, evolving pandemic; structural barriers to successful community engagement; perspectives on trustworthiness of research; and working across multiple organisations with distinct structures, resources and goals. There were also successes: leaders who were invested in community engagement; a focus on inclusive network building; co-production; flexible communication channels; a shift to centring communities and patients; and connection with the legislature to support broader policy impacts.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Discussion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To inform future community engagement models, we recommend the following: (1) healthcare research funders should build in time and resources for community engagement; (2) study consortia should include community engagement specialists in decision-making positions from the outset; and (3) community members should have prominent roles leading research engagement efforts.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Engagement models can enhance the equity impact of long Covid research. Reflections and recommendations in this paper can inform future efforts.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The project included community leaders, community-based organisations, people with long Covid, and those caring for people with long Covid. Community leaders, community-based organisatio","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 6","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12672388/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145662783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enablers and Barriers to Alternative Care: Perspectives of Community-Dwelling Older Adults and Service Providers in Kerala 替代护理的推动者和障碍:喀拉拉邦社区居住老年人和服务提供者的观点。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-30 DOI: 10.1111/hex.70507
Anu Mohan, Teddy Andrews Jaihind Jothikaran, Lena Ashok
<div> <section> <h3> Background</h3> <p>Decline of intergenerational co-residence, risk of functional and emotional deprivations in old age, and the diminishing capacity of families to care in-person for their older parents have intensified the demand for formal care provisions among left-behind older adults in migrant households of Kerala. While several attempts have been made to quantify the accessibility and utilisation of geriatric care, there is a dearth of evidence on the realities of alternative care in Kerala. The present study aims to explore the perception of older adults (65+) and service providers (government and non-governmental) on the systemic enablers and barriers of alternative care in migrant households of Kerala.</p> </section> <section> <h3> Materials and Methods</h3> <p>A qualitative approach using IDIs were employed among 20 left-behind older adults (65+) and 8 service providers across three districts of Kerala (Pathanamthitta, Thrissur and Kannur), using purpose sampling, and thematic analysis was followed using a deductive approach.</p> </section> <section> <h3> Results</h3> <p>Analysis using the Rainbow Model of Integrated Care revealed that the high cost of care at a micro level limits access and utilisation, while the inactivity of day care homes and their failure to upgrade as resource centres challenge the alternative care at a meso level of operation. The absence of need assessments, top-down implementation, inappropriate fund allocation, lack of measures to sustain the programme and rigid eligibility norms for inclusion pose challenges in the care avenues, while pain and palliative care community-based associations and doorstep delivery of essential services facilitate seamless delivery of alternative care.</p> </section> <section> <h3> Conclusion</h3> <p>Alternative care efforts should integrate regional, state and central levels of planning, concrete implementation guidelines, participation of older adults in planning and implementation, and efforts to upgrade day care homes into regional resource centres, along with systematic monitoring and evaluation and multi-stakeholder governance to realise alternative care for older adults.</p> </section> <section> <h3> Patient and/or Public Contribution</h3> <p>Informal discussions with community-dwelling older adults and service providers helped in refining research questions and in-depth interview guides to explore their lived experiences. Participants shared insights on t
背景:喀拉拉邦移民家庭中,代际共同居住的减少,老年功能和情感剥夺的风险,以及家庭亲自照顾老年父母能力的下降,加剧了对正式护理服务的需求。虽然已经进行了几次尝试来量化老年护理的可及性和利用率,但喀拉拉邦缺乏关于替代护理现实的证据。本研究旨在探讨老年人(65岁以上)和服务提供者(政府和非政府)对喀拉拉邦移民家庭替代护理的系统促进因素和障碍的看法。材料和方法:采用定性方法,对喀拉拉邦(Pathanamthitta、Thrissur和Kannur)三个地区的20名留守老年人(65岁以上)和8名服务提供者进行了目的抽样调查,并采用演绎方法进行了主题分析。结果:综合护理彩虹模型的分析显示,微观层面的高护理成本限制了人们的获取和利用,而日托之家的不活跃及其作为资源中心的升级失败,在中观层面上对替代护理提出了挑战。缺乏需求评估、自上而下的实施、资金分配不当、缺乏维持规划的措施以及严格的纳入资格规范,这些都给护理途径带来了挑战,而疼痛和姑息治疗社区协会和上门提供基本服务则有助于无缝提供替代护理。结论:替代护理工作应结合区域、州和中央各级的规划、具体的实施指南、老年人参与规划和实施、将日托所提升为区域资源中心的努力,以及系统的监测和评估和多方利益相关者治理,以实现老年人的替代护理。患者和/或公众贡献:与社区居住的老年人和服务提供者的非正式讨论有助于改进研究问题和深入访谈指南,以探索他们的生活经历。参与者分享了他们的护理经验,这为数据收集和解释提供了信息。研究结果在老年人和服务提供者的小组中进行了审查,以确保报告利益相关者所感知的替代护理的实际推动因素和障碍的上下文准确性。
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引用次数: 0
Exploring Emotional and Cognitive Perceptions of Cervical Cancer Screening and Self-Sampling Among Vulnerable Romanian Women: A Qualitative Study 探索情感和认知观念宫颈癌筛查和自我抽样脆弱罗马尼亚妇女:一项定性研究。
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-30 DOI: 10.1111/hex.70485
Nicoleta-Monica Pașca, Diana Tăut, Rachel Greenley, Pia Kirkegaard, Rikke Buus Bøje, Martin McKee, Marc Bardou, Adriana-Smaranda Băban, and the CBIG-SCREEN Consortium

Introduction

This study aimed to explore the emotional and cognitive perceptions of cervical cancer screening (CCS), with a focus on self-sampling for human papillomavirus (HPV) by vulnerable Romanian women.

Methodology

Eighteen semi-structured individual interviews were conducted with vulnerable women, defined by their low socioeconomic status (SES), residence in rural areas and membership in ethnic minorities. Participants were recruited using snowball sampling. Interviews followed a guide designed to assess constructs from the Health Belief Model (knowledge, barriers, evaluation of vulnerability) as they relate to women's views of prevention, the healthcare system and CCS. A Think Aloud protocol was used with a subsample of six women to identify potential barriers, opportunities and attitudes related to the use of self-sampling kits. A reflexive thematic analysis was conducted to identify the primary themes related to with women's perceptions of CCS and self-sampling.

Results

Four major themes emerged: (a) risk, fear and other emotional experiences; (b) women's perception of barriers; (c) knowledge, personal control and cues to action; and (d) women's perception of self-sampling. Participants unravelled emotional and logistical barriers to CCS and self-sampling. Limited health literacy, fear and shame influenced risk perceptions, hindering CCS participation. Logistical challenges and financial constraints further impeded access, while women often prioritized the needs of their families over their own health. The Think Aloud protocol revealed that initial concerns regarding self-sampling could be alleviated by having clear instructions, highlighting the importance of support during the decision-making process.

Conclusion

This study identified diverse barriers preventing vulnerable Romanian women from engaging in CCS, including logistical challenges, financial constraints and emotional factors.

Patient or Public Contribution

Patients or the public were not involved in the design, conduct, analysis or interpretation of the study.

简介:本研究旨在探讨宫颈癌筛查(CCS)的情感和认知观念,重点是弱势罗马尼亚妇女的人乳头瘤病毒(HPV)自我抽样。方法:对弱势妇女进行了18次半结构化的个人访谈,弱势妇女的社会经济地位(SES)较低,居住在农村地区,属于少数民族。参与者采用滚雪球抽样方式招募。访谈遵循了一份指南,该指南旨在评估健康信念模型(知识、障碍、脆弱性评估)的结构,因为它们与妇女对预防、医疗保健系统和CCS的看法有关。对六名女性的子样本使用了“大声思考”协议,以确定与使用自采样工具包相关的潜在障碍、机会和态度。通过反身性主题分析,确定了与妇女对CCS和自我抽样的看法有关的主要主题。结果:出现了四个主要主题:(a)风险、恐惧和其他情感体验;(b)妇女对障碍的看法;(c)知识、个人控制和行动线索;(d)女性对自我抽样的认知。参与者解开了CCS和自我抽样的情感和后勤障碍。有限的健康知识、恐惧和羞耻影响了风险认知,阻碍了CCS的参与。后勤方面的挑战和财政方面的限制进一步阻碍了获得医疗服务,而妇女往往将家庭需求置于自身健康之上。“大声思考”协议显示,最初对自我抽样的担忧可以通过明确的指示来缓解,强调了在决策过程中支持的重要性。结论:本研究确定了阻碍弱势罗马尼亚妇女参与CCS的各种障碍,包括后勤挑战、经济限制和情感因素。患者或公众贡献:患者或公众未参与本研究的设计、实施、分析或解释。
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引用次数: 0
Effect of Health Model-Based Menopausal Self-Care Training on Quality of Life and Health: A Randomised Controlled Trial 基于健康模型的绝经期自我保健训练对生活质量和健康的影响:一项随机对照试验
IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-11-28 DOI: 10.1111/hex.70511
Khadijeh Khademi, Mohammad Hossein Kaveh, Mahin Nazari, Abdolrahim Asadollahi
<div> <section> <h3> Background</h3> <p>Menopause is a natural biological transition in a woman's life, often accompanied by various physical and emotional challenges. Enhancing postmenopausal women's health and quality of life requires empowerment, particularly through self-care strategies. The present study aimed to evaluate the effectiveness of a training programme based on Longwe's Empowerment Framework and a Community-Based Participatory Research approach.</p> </section> <section> <h3> Methods</h3> <p>A randomised controlled trial was conducted involving 140 postmenopausal Iranian women, with 70 women in each control and intervention group. The intervention group received a 6-week training programme, with weekly 120-min sessions, designed using Longwe's framework in combination with the PRECEDE-PROCEED model. Data were collected at three time points: baseline, 2 weeks post-intervention and 4 months post-intervention, using validated questionnaires. Statistical analyses were performed using SPSS version 27, with significance set at <i>p</i> < 0.05.</p> </section> <section> <h3> Results</h3> <p>The training intervention significantly improved participants' quality of life (η² = 0.23, <i>p</i> < 0.001) and overall health (η² = 0.12, <i>p</i> < 0.001), with large and moderate effect sizes, respectively. Notably, the programme had a large effect on menopausal self-care behaviours (η² = 0.42, <i>p</i> < 0.001) and a small but significant effect on internal health locus of control (η² = 0.05, <i>p</i> < 0.001).</p> </section> <section> <h3> Conclusion</h3> <p>This study demonstrates that a structured self-care training programme, based on empowerment theory and community engagement, can effectively enhance the health outcomes and quality of life of postmenopausal women. The findings indicate that integrating participatory and empowerment-based educational interventions into public health initiatives for midlife women is advantageous.</p> </section> <section> <h3> Patient or Public Contribution</h3> <p>This study employed a community-based participatory research approach, actively engaging postmenopausal women as collaborators throughout the intervention process. Participants were involved in the initial needs assessment, where they shared their self-care priorities and preferences. They also provided input on the structure, scheduling, and delivery format of the educational sessions. Furthermore, they collaborated to develop and partic
更年期是女性生命中自然的生理转变,通常伴随着各种身体和情感上的挑战。提高绝经后妇女的健康和生活质量需要增强权能,特别是通过自我保健战略。本研究旨在评估基于龙威赋权框架和基于社区的参与性研究方法的培训项目的有效性。方法对140名绝经后伊朗妇女进行随机对照试验,对照组和干预组各70名。干预组接受为期6周的培训计划,每周120分钟,采用Longwe框架结合pre - proceed模型设计。在三个时间点收集数据:基线、干预后2周和干预后4个月,使用有效的问卷。采用SPSS 27进行统计学分析,显著性设置为p <; 0.05。结果训练干预显著改善了被试的生活质量(η²= 0.23,p < 0.001)和整体健康状况(η²= 0.12,p < 0.001),分别具有大效量和中等效量。值得注意的是,该方案对绝经期自我保健行为有很大影响(η²= 0.42,p < 0.001),对内部健康控制点有很小但显著的影响(η²= 0.05,p < 0.001)。结论基于赋权理论和社区参与的结构化自我保健培训方案可以有效提高绝经后妇女的健康状况和生活质量。研究结果表明,将参与性和赋权为基础的教育干预措施纳入针对中年妇女的公共卫生举措是有利的。患者或公众贡献本研究采用基于社区的参与式研究方法,在整个干预过程中积极参与绝经后妇女作为合作者。参与者参与了最初的需求评估,在那里他们分享了他们的自我护理优先事项和偏好。他们还就教育会议的结构、日程安排和交付形式提供了意见。此外,他们合作开发和参与每周的小组活动,以促进自我照顾行为。来自参与者的持续反馈被纳入改进干预措施,提高其文化相关性、可行性和与目标人群生活经验的一致性。
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Health Expectations
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